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Originally Processed With FOIA(s): FOIA Number: S S FOIA MARKER This is not a textual record. This is used as an administrative marker by the George Bush Presidential Library Staff. Record Group/Collection: Donated Historical Materials Collection/Office of Origin: Frieden, Lex, Collection Series: Printed Materials Subseries: Papers/Books OA/ID Number: 52115 Folder ID Number: 52115-002 Folder Title: "Human Rehabilitation Techniques Project Working Paper Number 2: Social Contexts of Human Rehabilitation: Past, Present and Future" [1976] Stack: Row: Section: Shelf: Position: WORKING COPY NOT To BE QUOTED SOCIAL CONTEXTS OF HUMAN REHABILITATION: PAST, PRESENT, AND FUTURE Technology Assessment: Human Rehabilitation Techniques Project Department Research and Training of Center Industrial Engineering in Mental Retardation TEXAS TECH UNIVERSITY Lubbock, Texas Prepared for: CONSEQUENCE ANALYSIS WORK SESSION July 6 - 9, 1976 WORKING PAPER NUMBER 2 LIST OF WORKING PAPERS Conceptual Framework/Program Thrusts 1 Social Contexts of Human Rehabilitation: Past, Present and Future 2 Scope of the Problem of Disability: Life Functions 3 Rehabilitation Technologies 4 Abstracts of Papers Concerning Special Problem Dimensions 5 Related Data 6 Possible Related Issues 7 NOTE Please make all your comments (review comments, raise questions, raise arguments, provide supplemental material and references, etc.) within this booklet. Please use the margins and opposite page. These will be used to assist the team in producing the Work Session report and final report. i TABLE OF CONTENTS Issues, Problems, Policies and Solution Within Society 4 A Perspective on the Issues of the Disabled Population 10 The Past - A Prologue to the Future 19 Development of Scenarios 26 Scenario Group I 35 Scenario Group II 37 Scenario Group III 39 Tables 1 Views of the Problem 13 2 State of Society Variables 42 Figures 1 General Relationship of Issues, Problems, Policies and Solutions Within Society 4 2 Classification Hierarchy of the Members of Society 10 3 Hierarchical Arrangements of Elements Appearing in Scenarios 30 4 Net National Product 43 5 Society's Capability of Addressing Problems 44 6 Range of Government Expenditures 45 7 Range of Society's Willingness to be Taxed 46 8 Disabled Population. 47 9 Range of Government Expenditures for Social Needs 48 ii SOCIAL CONTEXTS OF HUMAN REHABILITATION: PAST, PRESENT AND FUTURE This technology assessment (TA) examines the impacts and consequences upon society of techniques used in support of the disabled in American society. All of the techniques have a primary objective of effectively reducing the size of our disabled population through assimilation of rehabilitated individuals into the community and if possible into the work- force, and thus, making their lives fuller and happier. The primary objective of the various rehabilitation programs fit into three basic classifications according to the technology they employ, each with various "program thrusts," including rehabilitation techniques based on environmental change, on training and counseling, on physical intervention. A fourth related technology is that of rehabilitation-service delivery systems. As various programs are used to achieve objectives in reducing the number of disabled persons through rehabilitation, they concurrently produce impacts on society as a whole. In general, the programs require resources from the entire society; thus "impact" on and have "consequences" for nondisabled per- sons by reducing the resources available to meet other objec- tives within society. Likewise, some programs impact or have consequences which improve societies general well being. Similarly, programs for meeting social objectives outside the rehabilitation domain limit resources available for rehabili- the Growth 2 tation programs. Such interaction between the disabled popu- lation and the entire society is both an extremely important and an extremely complex relationship which must be accounted for in assessing future impacts and consequences of rehabilita- tion technology. To permit ordered examination of possible roles that rehabilitation technology may play in the future of American society, the interactive relationships must be carefully observed and described. The "rails of inference" leading into the future include concretely observable trends from the past and present. Moreover, they also include a mechanism for recognizing social characteristics and events which may occur or develop in the future despite our lack of inference with which to project them from the past. Economic boom or depression, war, technological breakthrough, and rapid politi- cal change are among many other social characteristics and events which may also shape the role of rehabilitation techno- logy within society in the future. The complex disposition of American society is, in this TA, accounted for by descriptive "scenarios" literally, "plot outlines' - of the future. A most probable scenario group des- cribes certain events and characteristics likely to occur accord- ing to projections from the past. Two other scenario groups estab- lish plausible limits of possibility in the future of American events and characteristics with respect to the primary objec- tive of rehabilitation; the first describes an accelerated 3 growth in funding for social needs and effectiveness of foreseeable rehabilitation programs, and the second describes a reduced growth in funding for social needs and effectiveness of rehabilitation programs. Within these three scenario groups, various possibilities for the future of rehabilitation techno- logy will be analyzed. 4 Issues, Problems, Policies and Solutions Within Society This problem oriented TA deals specifically with the pro- blems and policies related to the area of human rehabilitation. In order to provide a common understanding of terms for use in the project work sessions and to highlight various concepts which will have an influence on the consequence analysis of programs thrusts, the following brief discussion relative to issues within a society is presented. A general relationship is presented in Figure 1 indicating that the problem emanates Issue Question to be decided Solution Problem Act, Method on Issue Proposed Process of for Solution, Solving Problem Objective Defined [Need] Y Policy General Course of Action Alternatives Options [Means] [Methods] Figure 1 5 from an issue. Consideration of the problem leads to a defined objective which in turn leads to an adopted policy after various options or methods of approach are considered. Upon the consideration of alternative means a solution is obtained. It should be noted that an issue may surface in various ways; in fact, a certain solution selected at one point in time may be- come an issue at a later point in time. A problem may be defined as one or more "needs" that are considered for solution while each "need" is identified as the difference or gap between "what is" and "what could be" or "what should be." Although defining a specific problem in these terms may appear to be a relatively easy task, experience teaches that this is generally not the case. Several questions are encountered in defining problems. The first question may occur in obtaining agreement in identi- fying the "what is" of a current situation in that the present is not always perceived with unanimity. The second question may be encountered in defining the "what could be" or "what should be." It should be noted here that even if agreement is reached on the "what could be" or "what should be," this does not require that those agreeing are doing SO for the same reasons. It is very possible that agreement can be reached due to very different or even opposite reasons. Given that an agreement can be reached on the "what is" and the "what could be" or "what should be," a third question 6 may arise. This question deals with establishing the relative priority any one "need" should have in relation to various other "needs." It may be safe to say that many individuals have had to answer these questions when attempting to identify personal "needs" and subsequently establishing the relative priorities of the needs that they may have identified. It is assumed here that, at least on the individual level, decisions are generally based on some value judgements either rational or emotional. Initially the value judgement may be used in defining the "what is" only if in terms as something that should not be. Actions taken under these conditions often result in adversity. If the "what should be" is measurably identified, again based on some value judgement, the individual has at least established some direction and the progress in achieving an objective can be measured. Due to the fact that often times an individual is faced with problems competing for action, the individual may find it necessary to establish priorities among the various problems. As the number of individuals involved in this process increases thereby forming a society, it is very likely that the magnitude of the difficulty in answering the above questions increases also. If the numerical size of the population is relatively small, i.e., a family, the difficulty in establishing a value judgement upon which to base a decision may be minor. As the society in question increases from family size to include neighborhood, to the community, to the entire population of the nation, the difficulties encountered differ only in complexity 7 and magnitude. The value judgements made at these various levels are referred to here as "common" value judgements. This designation, i.e., "common," does not mean that the value judgement represents the value judgement of all the individuals involved or even the majority of those individuals. For the purposes here it is assumed that "common" value judgements affecting society are established within two interre- lated and interdependent subsystems within the social system. The first of these two subsystems is the cultural subsystem. The "common" value judgements influencing the decisions and thus the actions of the members of society within the cultural subsystem usually take an unwritten form and are generally referred to as customs and courtesies. It should be recognized that in any large society there may exist many subcultures each with its own set of customs and courtesies. The second of these two subsystems is the political subsystem. The "common" value judgements within a political subsystem generally take a written form commonly referred to as laws, statutes or policies. The set of common value judgements established within a subculture within the cultural subsystem may be no less binding on the individual than the set established within the political subsystem. On many occasions a violation of the subcultural values of a group may be dealt with more harshly than a violation of the politically established values of society. Many common value judgements that originated within the cultural subsystem may find their way into the set of political common value judgements. Thus, a review of the political 8 subsystem of a society within a specific area, may possibly be used to establish trends relating to society's formalized identification of "needs" and the priority given to providing solutions to the various problems in relationship to the other problems of society. If a problem has, in fact, been identified as the measurable difference or gap between "what is" and "what should be," then a solution can be generally defined as a measurable reduction in or the elimination of a problem. This definition requires action concerning not only the identification of those methods available that can measurably reduce or eliminate a problem but also the selection and implementation of the means capable of achieving the solution. As used here, the consideration of "method" leads to the establishment of policy and procedure which may be employed in obtaining a solution whereas the consideration of "means" specifies the resources used in obtaining a solution. A method in obtaining a solution may consist of altering the constraints upon a problem. For example, in the definition of a problem, the "what should be" can be set equal to the "what is," thereby eliminating the problem. It may also be possible to change the common value judgements, i.e., rules or laws pertaining to the problem. In defining the "means" in terms of the resources utilized in obtaining a solution, the reference here is to those factors which are commonly referred to as economic resources. 9 Just as in the case of the cultural and political subsystems, the actual distribution of the economic resources and the relative authority exercised within this subsystem do not necessarily express the desire of the majority of society. As individual or societal value judgements shift; whether due to changes in customs, growth, or special interest groups influence; new problems are identified. The utilization of means in providing solutions to these problems often requires various shifts in the distribution of allocatable resources. It may be considered sufficient to many to simply state that society in general is faced with a myraid of needs both public and private. Further it is generally acknowledged that the allocatable re- sources available to solve these many problems are limited in one form or another. 10 A Perspective on the Issues of the Disabled Population The questions in defining the problems associated with the issues of a population of physically or mentally disabled or disadvantaged individuals are quite similar to those encountered in defining most other complex social problems. The general "what is" of the issues is that within the American society consisting of approximately 215 million individuals, there exists a group of people that for some physical and/or mental reason, cannot perform a minimum of normal human functions with a minimum normal degree of ease. This group of people form a subpopulation which can be further divided into two subgroups. This division may well be to distinguish between those who cannot perform a minimum of normal human functions and those that can, however, not with a minimum normal degree of ease. The latter subgroup is referred to here as the handicapped population whereas the former is referred to as the disabled population. Figure 2 depicts a classification hierarchy of the members of society based on the qualitative characteristic of human functions and ease as quantified by some nebulous measure of normality. Members of American Society Physically or Mentally Able Members Disabled or Disadvantaged Normal Disabled Handicapped Figure 2 11 This general connotation would appear to be supported by some of the various definitions of disability as found in the literature. For example, James Garrett 1 states that " disability is defined as the inability to perform a certain role. " The distinction between disabled and handicapped was made here to allow for those individuals who are able "to perform a certain role" but with difficulty. This TA deals with the issues and problems of both the disabled and the handicapped. For ease of reference this subpopulation will be referred to as the disabled population. It could be argued at least in general terms, that the "what should be" of this issue could be stated in terms that there would be no disabled population. Sufficient empirical evidence exists that would tend to support the position that a subpopulation of this type will continue to exist at least within the 50 year time frame used in this TA. Any given set of criteria used in defining normal activities may be considered aribtrary depending on individually held view- points. Even if agreement could be reached in defining normality, thereby establishing a common "what is" concerning the issues, it may be possible that perhaps some fatalistically oriented members of society would consider that the "what should be" is equal to the "what is. " To these members of society, the disabled population would pose no problems within society. However, the remainder of society apparently considers that the existence of a disabled population does pose many problems within society. 1 Garrett, James F., "Handicapped Americans--Overview," American Rehabilitation, May/June, 1976. 12 In viewing the problems connected with the existence of a disabled population it may be helpful to at least estimate not only the total size of this population but also the size of the various groupings that could be formed based on the normal activities affected through the disability or handicapped. Table 1 outlines a few of the affected activities along with some general parameter of the individual problems. It is assumed here that, due to the technicalities of the terms used in defining the disabled and handicapped, many indivi- duals included within this total subpopulation will continue to remainso indifinitely. If one were to address a single characteristic of the disabled population in order to define a specific objective of rehabilitation the characteristic could well be its size. The objective of rehabilitation could then be stated as the measurable reduction or elimination of the size of the disabled population. One method of achieving this overall objective would be to assimilate the disabled into society as functioning members and if possible, into the workforce. This could be accomplished through the identification and achievement of many subobjectives, such as: restoration of skills, secondary prevention, etc., as represented by the program thrusts. Once the present size of the disabled population is identi- fied under current definitions, its future size will be deter- mined by the number of individuals entering this population in relation to the number leaving this population. Table 1 Views of the Problem: Normal Activities Affected Numbers affected Issue Problem Dimensions: "what is" and "what should be" Community and Lack of access to "Almost totally neglected by all federal agencies are the transportation extended locomo- mass transportation problems of persons with multiple and severe disabilities." tion facilities "Federal programs for meeting transportation needs of persons with disabilities are piecemeal, fragmented, incomplete, and inadequate." 13.4 million "Federal support of training programs must be increased if persons with disabilities are to increase their ability to effectively use transportation modes." 2.4 million " have difficulty with some or all of the following functions related to reaching, handling, and grasping, passing through turnstile, opening vehicle doors, lifting baggages, grasping overhead supports, using hand rails, and handling small change." 5.2 million by 1985 " citizens will be unable to change levels under their own strength.' 13 "The major problems are costs of obtaining services, availability of services, physical demands made on passengers by the design of transportation facilities and equipment, and comprehension and under- standing as to when services are appropriate and adequate.' "The availability of accessible transportation affects directly the quality of life" "There are too many loopholes, too many ways local government can cite their commonly shared fiscal shortfalls and not do justice to the intent of these proposed rules." "UMTA is reluctant to encourage manufacturers and require transit authorities to immediately utilize exciting technology to solve trans- portation problems of the disabled." Numbers affected Issue Problem Dimensions: "what is" and "what should be" "The FAA underlying assumption is 'that handicapped persons will cause most, if not all, of the difficulties in an emergency evacuation of an airline' " Litigation " constitutional principles guaranteeing freedom of movement and equal protection, require federal and local transit authorities se- curing federal funds to provide accessible services." " the legislation in question is nothing more than a broad, non operative statement of national policy, requiring little more than the present research and demonstration programs There is no constitu- tionally guaranteed right to accessible transportation and that whatever services disabled persons receive will be entirely at the discretion of America's transit policy makers. " Education** lack of development "A recent survey by Metz estimated that ten percent of the due to lack of access children were handicapped. only 63 percent of these received one or to proper Education. more specialized services ranging from separate classrooms to individual instruction." 14 8.7 million "Using an incidence estimate of ten percent handicapped, a total of handicapped children would need and have a right to publicly supported educational services by 1980. This would be a sizeable increase over 4.7 million the school age handicapped children in 1970 needing special services 2.9 million and a quantum leap over the estimated 62 percent of who were re- ceiving them in 1970. "A recent report from BEH indicated that only 25 percent of the handi- capped graduating from school will get adequate employment. Another 40 percent will be significantly underemployed and 35 percent will be under the care of social services without employment." "One well known conservative contender for the presidential post has suggested cutting Federal spending in the area of special education by $6.9 billion. " Numbers affected Issue Problem Dimensions: "what is" and "what should be" "Governor Edward Brown, Jr., of California stated we are entering an era of limits It's now a question of reordering priorities and choosing one program over another, based on a vigorous standard of equity and common sense'. "Other steps should be taken in order to effectively utilize the budget and to satisfy the two important objectives of (1) assuring equal access to programs and (2) achieving maximum efficiency in use of resources. Litigation "Predominantly class-action in nature, the litigation has focused on three major issues: the right to education; the right to treatment, and the use of inappropriate procedures for the classification and placement of children with special needs." " the court declared that insufficient funds were not an excuse for noncompliance when stated, 'the inadequacies of the District of Columbia public school system, whether occasioned by insufficient funding or administrative inefficiency, certainly cannot be permitted 15 to bear more heavily on the exceptional or handicapped child than on the normal child'. " By stating that such programs must be made available to all children, no matter how seriously or extensively they are re- tarded', the court eliminated the severity of a child's disability as justification for non delivery of services." Litigation All Handicapped Children Act (PL 94-142) "The act establishes a formula in which the Federal governments makes a commitment to pay a gradually - escalating percentage of the national average expenditure per public school This percentage escalates to a 40 percent level in 1982 and remains through subsequent years. Numbers affected Issue Problem Dimensions: "what is" and "what should be" "This law has far reaching implications not only for education of the handicapped but also for shifting balances of powers among Federal, state, and local levels. Such rearrangements could result in a backlog. This would leave the school district without the monies and the Federal government without impact in this much needed area. Heated debates on issues raised by this Act are likely to continue for some time to come. Employment*** Lack of opportu- possible factors nity to become self-supporting right to work discrimination in hiring practices safety of employment environment 6-7 million lower productivity more costly Independent Lack of freedom possible factors living from financially related living right to quality life conditions. independent of costs 16 excessive costs disincentive to be rehabilitated Barrier free Lack of proper possible factors housing design in general housing right to living location right to all types of dwellings costs costs All quoted material came from the following papers written for this T.A. *Transportation Problems of Persons with Disabilities: The Federal Response. Researched and prepared by E. Clark Ross, March 1, 1976. **The Futures of Public Education and the Handicapped. Ron Wiegernik and Vincent J. Feudo. ***The Employment, Independent Living and Barrier Free Housing are presented as examples of other issues and problems. Additional papers are being written in various areas and will be available before the work sessions. 17 Individuals may enter this population as a result of various natural and social causes. They may also enter through an expansion of the definitions of disabilities. Many also leave this population for various reasons. Some individuals depart the American society either through death or emigration, others may be rehabilitated with or without public social assist- ance. At some time in the future others may leave due to a restriction in the definitions of disabilities. Society's success in its rehabilitation efforts in reducing the size of the disabled population is related to society's capabilities and willingness to provide solutions to identified problems. Success also depends on the capability and willing- ness of the members of the disabled population to cooperate in these efforts. Thus, even though society may have the necessary capabilities and willingness to provide solutions to these problems through rehabilitating techniques, success is not automatic. Despite any rules or regulations prohibiting various forms of discriminatory practices, difficulties do arise in assimi- lating the rehabilitated. Individual attitudes are very diffi- cult to change. Factors such as the disabled individual's age, sex, race, education and economic levels and the visibility of disability all play very important roles [see the Life Function report] in solving the problem even when the physical capabilities to provide a solution are present. These factors influence whether or not the rehabilitated individual will 18 be able to function in the environment. Other factors may adversely influence the disabled individual and hinder rehabilitation. For example, the loss of attention previously received from family, friends, etc., the loss of current economic benefits, i.e., income supplement or income maintenance. Addressing the problem of the currently defined disabled population poses many subproblems. If both society and the disabled population were to achieve "tremendous" success in reducing the size of the disabled population through assorted combinations of human rehabilitation techniques, various impacts may be felt. For example, these consequences could be in the areas of employment and unemployment in general and specifically within the rehabilitation field. Success in reducing the size of the currently defined disabled population may allow anexpansion of the definition of the disabled in keeping with society's capability and will- ingness to address additional disabilities in relationship to society's other problems. ( 19 The Past - A Prologue to the Future The American social system has a history relating to problem solving activities. From its inception, its economic resources, including not only money and material but also human resources, have continued to grow. The increase in growth is generally believed to have been brought about by the continual change in the objectives and goals established by society and improvements in the method and means used in solving problems. On many occasions resources had to be developed, modified or designed before the means to solve a particular problem became available. For example, education has assisted in developing human resources, new technologies had to be designed for man to reach the moon. The economic strength of society has, on occasion, been measured through indicators dealing with the society's gross national product (GNP). With an occasional exception, the American society's GNP has continued to grow both in absolute terms and in relationship to the total population. The GNP has also continued to grow relative to the human resources whose production is reflected in GNP. Thus, it may be possible to consider that the productivity of society has increased not only due to technological development in materials re- sources, i.e., machines, electronics, etc. but also due to the development of the human resources. Although the size of the GNP has been used as a reflection of society's standard of living, other factors must be considered 20 when reference is made to that group of problems dealing with the concept of the quality of life or the social well being of society. Efforts to develop more effective methods and means of solving this group of problems began to gain momentum after the turn of the century. As the American society entered the Twentieth Century, attempts were being made to solve many of its problems. The amount of authority exercised by the public sector within the economic subsystem was comparatively limited. One of these problems dealt with status of the "less fortunate" members of society. Activities of organized labor that began prior to World War I had identified the problem of retraining those workers who had been injured in industrial accidents. By the time the legislation was enacted in 1921 the problem had been enlarged to include other than those injured within industry. This act was termed the Vocational Rehabilitation Act. [For more detailed discussion of the legal environment surrounding the disabled and rehabilitation, see Bubany. Thus, a shift in attitude had taken place; whereas previously problems associ- ated with disabilities had been handled almost exclusively within the private sector, they were now addressed in the public sector. During the depression years that followed the crash of 1929, the Social Security Act was passed. This act, passed in 1935, generally addressed the problems of unemployment and old age. Survivor insurance was added to the Social Security Act in 1939. The Railroad Retirement Act of 1937 was established to 21 provide disability and old age benefits to railroad workers. Society gradually increased its capability to provide economic resources in an attempt to reduce or eliminate pro- blems in those areas. Yet many segments of society still faced severe problems. World War II brought about a period of rapid growth in the GNP. A common cause provided the impetus needed to ac- celerate the growth in many areas of technology. During the middle of the war (1943) the Vocational Rehabilitation Act was amended to permit the extension of publicly supported rehabilitation service to the mentally retarded (MR) and the mentally ill (MI). This one stroke formally added hundreds of thousands to the rolls of the disabled by way of a change in policy and the resulting solution--a change in definition of eligibility. These hundreds of thousands did not just appear on the horizon. Until 1943, at least on the federal level, neglect was the former value judgement. Care for, or rehabili- tation of, these individuals had been generally dealt with at the state or local level or in the private sector. Since that time the number of programs dealing with society's problems have continued to increase. The federal, state, and local governments have increased the exercise of their authority within the economic subsystem considerably. For example, during the 20 year period from 1950 to 1970, total government expendi- tures increased from 21.34 percent of the GNP to 32.04 percent. If capital consumption values were removed from the GNP, thereby leaving what is termed the net national product (NNP), the 22 relative exercise of economic authority during this same period shows that government expenditures have increased from 22.82 percent to 35.07 percent. It may be well to note that the bulk of the monies used by the federal, state and local govern- ments in this exercise of the public's authority within the economic subsystem is derived from the members of society through various forms of taxes. The taxes over the years have continued to increase as evidenced by government's increased contribution to the GNP. It may be possible that at some level of taxation, the productive members of the private sector may become dissatisfied with its share of authority within the economic subsystem. History states that taxes were a major issue in the founding of this nation. The dissatisfaction, of course, may not be aimed at any specific issue, problem, policy or solution. Other political events dealing with humanitarian problems occured during the 1960's. Civil rights issues came to the forefront. Various cultural minorities characterized by ethnic background, socioeconomic levels, or sex began articulating their interests within the political, economic and cultural subsystems. For example, these groups identified the "what should be" of the problems in such a manner that the resultant legislation not only made it illegal to use discriminatory practices in hiring but also stipulated positive employment practices that were to be followed. Specific employers were required to have a certain percentage of their employees come from within these groups. Additionally, regulations required 23 that many of these employees could not be hired into dead-end, low-level positions. Although the military forces of the country were involved in an unpopular conflict in Vietnam, the federal government launched the "War on Poverty. One subgroup of the target population of this "War on Poverty," the welfare population, became visible and vocal in expressing the opinion that welfare benefits should be increased. Many of the "benefits" described in the "what should be" were considered as rights and were granted. The tenor of the 60's and early to mid 70's has been one showing concern for equity issues. These issues are referred to here as equity issues in that they dealt with inequalities resulting from past actions. For example, the affirmative actions legislation designed to ensure employment of members of minority groups in various occupations. It was felt that due to past discrimination practices members of the minority groups had received unequal treatment. Some members of society viewed these actions as preferrential treatment for minorities, especially those people adversely affected because they were not members of any minority group. The economic recession that began in 1973 and extended well into 1975 initiated a shift in eligibility requirements for receiving unemployment. The length of eligibility was eventually extended from 13 weeks to 65 weeks in order to assist those members of society that had been adversely effected by the recession. 24 Regulations dealing with civil rights issues, the "War on Poverty," affirmative actions in the employment field and unemployment benefits are primarily the results of the actions of or concern for "special interest" groups. Unlike some regulations, most of these regulations detail the rights of the individuals with little if any delineation of responsi- bilities that these rights carry. Some regulations, however, do specify rights and responsibilities. For example, one such regulation states the members of the society have the "right" to earn a living by working or investing in order to receive income, the IRS rules and regulations deal with the responsi- bilities to pay taxes on this income. All in all, it can be said that the American society has continually increased its total capability to address the various problems of society. It would appear logical to state that historically society is willing to address its problems. Throughout its history, society has chosen to either measurably reduce or to eliminate many problems. Of course, others have been considered infeasible for solution and still others may appear to some as having been ignored. The solution of the specific problems selected required coordinated joint activity in the use of many resources. The success of the solution was dependent upon the extent of the compatibility of societies capability and willingness to solve the specific problem. For example, the present state of space technology has resulted from past decisions to develop this technology 25 wherein the decisions were based on some value judgements either "commonly held or individually held." Sufficient empirical evidence exists to demonstrate that the current level of technological development within a specific area is reflective of past compatibility of society's capability and willingness to pursue a specific technological problem, e.g., the moon landing. The review of the past as presented here highlights the various shifts in attitudes toward human problems dealing with the disabled population and other "less fortunate" groups. Detailed discussion of various aspects of problems related to the disabled population is presented in the supplemental reports. Concepts of rights and equity, relating to the quality of life or social well being, have been discussed within the context of society's general capability and willing- ness to provide the methods and means of solving its problems. 26 Development of Scenarios Introduction Scenarios provide useful vehicles for the impact- or consequence-analysis step of technology assessment. They pro- vide an outline of some conceivable future state (s) of affairs given certain assumptions about the present and a consideration of the occurrences leading to the future period. Vlachos states that "Scenarios or future histories are narrative des- criptions of potential courses of development which may describe some expected or desired future state." Scenarios should develop alternative possible futures- "to demonstrate the range of developments, those likely to occur, those reasonably expected, and even those that are conceivable or plausible as well as desirable." They are developed in order to illustrate the future, to stimulate thought about the future, and to provide a background against which an understanding of the impacts and consequences of special issues or program thrusts can be determined. Usually TA studies use scenarios to represent "high" or "good", "average," and "low" or "bad" situations. These are usually expressed by a limited number of scenario theme dimensions that are selected to be basic characteristics which are representative of potential futures. Assumptions Relative to Human Rehabilitation In order to develop the future states to provide for the assessment of long-range effects from various program thrusts applied to the problem of rehabilitation, the following general 27 assumptions underlie the function of human rehabilitation in the future. 1. Concepts of humanitarianism and equity influencing the rehabilitation of the disabled will continue to prevail within society. 2. Public funding for social welfare programs will con- tinue and will receive increasing consideration in relation to the total needs of society. 3. Increased consideration will be given to establishing responsibilities required of those receiving the benefits. 4. For society to continue present levels or increased levels of funding for social programs, increasing productivity is a necessity. 5. Governmental expenditures will continue to be funded primarily through taxation. 6. The present goals of rehabilitation- to improve the social well being of the disabled by assimilating them into society and if possible into the workforce--will continue, at least for the immediate future. 7. As the general level of technology increases, there will be greater improvement in rehabilitation techniques. Basic Scenario Themes and Dimensions Based upon past trends, present consideration and emerging policies three broad potential futures emerge within which the problem of human rehabilitation can be assessed. These are the following: 28 Scenario Group I MGFS: Moderate Growth in Funding for Social Needs, No Limit on Willingness to be Taxed. MGFS-C: Moderage Growth in Funding for Social Needs, Constraints on Willingness to be Taxed. Scenario Group II AGFS: Accelerated Growth in Funding for Social Needs, No Limit on Willingness to be Taxed. AGFS-C: Accelerated Growth in Funding for Social Needs, Constraints on Willingness to be Taxed. Scenario Group III RGFS: Reduced Growth in Funding for Social Needs, No Limit on Willingness to be Taxed. RGFS-C: Reduced Growth in Funding for Social Needs, Constraints on Willingness to be Taxed. These three represent a continuum of possible alternatives from minimal to rapid growth as well as redistribution of funds among programs and a host of other conditions which will be discussed later. Society's decision to continue addressing social problems and especially those of the disabled population will be pre- dicated on both its capability and willingness to do SO. These two major dimensions are selected, in that for any problem involving humans the mere existence of the capability to act a certain way under a given set of circumstances does not in and of itself state that humans will act that way. Thus, although 29 society may possess the capabilities to provide the means, it may not be willing to provide the means. Conversely, even if society were eager to provide the means, it could not do so without the capabilities. A general conceptual hierarchy of these basic variables and rehabilitation program thrusts is depicted in Figure 3. The capability of society to address any of its needs and problems is a function of multiple factors, the main contri- butors being financial, technological, organizational, and social attitudes. Based on a consideration of the problem at hand and society's operation in the past, it appears valid to assume that capability can be represented and measured best by the financial and technological factors. Society has been able to develop proper organizational structures and change social attitudes when the finances and technologies are avail- able. Further, it is assumed that government spending (funding of programs) is a valid representation of society's considera- tion of handling public problems and/or issues which it faces. A general measure of society's financial capability to address the problems of the disabled is defined as per capita net national product (NNP = GNP - Capital Consumption) obtained by dividing the NNP by the size of the population (NNP/Pop.). The financial capabilities alone cannot directly produce rehabilitation. Thus, society's technological capabilities are also important. A measure for society's overall technological capability could be employed; e.g., in terms of the difference over time 30 LEVEL I /CAPABILITY/ LEVEL II WILLINGNESS TO BE TAXED / / STANDARD OF LIVING / LEVEL III TOTAL GOVERNMENT SPENDING LEVEL IV / FUNDS FOR SOCIETAL NEEDS / FUNDS FOR SECURITY NEEDS / LEVEL V / SOCIETAL FUNDING FOR REHABILITATION / / OTHER SOCIETAL FUNDING / FIGURE 3. Hierarchical Arrangement of Elements Appearing in Scenarios 31 in the NNP contribution per individual in the employed workforce; i.e., [NNP, T n /Size Employed Workforce - NNP T n-1 /Size n Employed Workforce, T ], where ᵀₙ is the latest period being n-1 considered and T n-1 is a prior period and assuming productive hours remain constant. The difference (increase) in each worker's contribution to NNP can be viewed as the contribution of increased technology available to society. This measure, however, considers technological contributions and advances in all areas of need or endeavor and what is required to consider the problem under study--human rehabilitation techni- ques--is a measure of the technological capability in addressing only this problem. Therefore, when the cumulative effects of applying technological advances are felt, the rate of rehabila- tation will increase, thereby reducing the population of dis- abled. Thus, society's technological capability in addressing the human rehabilitation problem will be reflected in the size of "disabled population," as other factors remain constant in this study. The general willingness of society to address any of its problems is also a function of multiple factors, such as: private funds and foundations; society funds and programs at federal, state and local levels; attitudinal positions; etc. Here, based on the problem under consideration, it appears valid to assume that society's willingness to be taxed to provide governmental funds for federal spending is representa- 32 tive of this dimension. Therefore, the general measure of society's willingness to address public problems is defined in terms of the total federal dollars applied to security needs, social needs and other needs relative to the net national 2 product That is: Willingness = Σ (Security needs) + Σ (Social needs) + Other needs NNP Security Needs Social Needs Other Needs i.e., national defense, i.e., education and i.e., general international affairs, social security, health, government, science and technology, income security, veterans interest. natural resources and benefits, revenue sharing, environment, agriculture, community and regional commerce and transportation, development. law enforcement and justice. This measure also permits the consideration of the rehabilita- tion problem within the total needs of society. Based on some of the discussion presently taking place in current literature this measure appears to have an upper limit. Within this general structure of society as defined by the measures of capability and willingness the problem of rehabilitation of the disabled is embedded as one of the social needs requiring and receiving consideration and support. The problem of human rehabilitation is a function of multiple factors, for example size of the disabled population, funds and other resources required, visibility, political power, etc. The significance of a problem and/or the sub- population affected varies considerably and is usually related to its visibility. It is not the intention here to determine 2 The United States Budget in Brief--Fiscal Year 1977, Executive Office of the President of the United States, Office of Management and Budget, Washington, DC (January, 1976). 33 the significance, visibility, etc., but rather to accept that human rehabilitation is a problem as indicated by the extent of attention and funding provided both by legislation enacted and by private and governmental agencies. Thus, the problem must be dimensioned. The general scope of this pro- blem is best defined by the size of the problem, both from the aspect of financial support provided for it and by the number of individuals included in the disabled population. The disabled population is defined here as including those disabled indivi- duals not assimilated into the community or the workforce. The measures selected to represent the general problem are therefore the funds made available to rehabilitation expressed as the funds allocated to rehabilitation relative to the funding for all social needs, and the size of the disabled population, both severely and moderately disabled, which also reflects the technological capability of society to address this problem. It is with these four basic variables 3 reflecting the general dimensions of the state of society and the size of the problem being assessed that the themes for the scenarios utilized in the TA are formulated. With these scenarios and utilization of the hierarchial model described in Figure 3, it is possible to perform the consequence analysis of various program thrusts considered for adoption in rehabilitation. Further, the scenarios as basically described in terms of funds available for social needs are depictive of many potential futures. For example, should a major war or famine involve our 3 capability, willingness, disabled population, and funds for social needs 34 society, or should society decide on a major accelerated pro- gram for the development of energy technologies in the future, funds for security needs would increase thus having a decreasing affect on funds for social needs. Even though willingness to be taxed under these conditions would most likely increase there would be reduced growth in funding for social needs as represented by Scenario Group III, RGFS and RGFS-C. Likewise, should a major breakthrough in technology as applied to the disabled take place in the future, this would have the same effect as that of an increase in capability with no increase in security needs, thus providing accelerated growth in funding for social needs. This future would be represented by Scenario Group II, AGFS and AGFS-C. The MGFS scenario reflecting moderate growth in funding for social needs with no limit on the willingness to be taxed is discussed first. 35 Scenario Group I MGFS: Moderate Growth in Funding for Social Needs, No Limit on the Willingness. to be Taxed. No major new funding for rehabilitation occurs though moderate growth is experienced, the maintenance of programs initiated in the 70's continues, and some minor reallocations among programs are made. The disabled population grows at a moderate rate (main- taining approximately the same percentage of total population) to about the year 2000. At this time, due to continuing research programs of the 60's and 70's, technological develop- ment for rehabilitation needs begins to have marked effect and the disabled population stabilizes growth. Due to increased technological development in related areas, by the year 2000 the moderately disabled and handicapped are being better assimilated into society. For example, new trans- portation systems are capable of handling the disabled; public buildings are designed or remodeled to permit the disabled to use them; industry has positive programs for their employment, etc. The United States continues to improve its productivity at a moderately increasing rate and the NNP grows at an average annual rate of 3.4 percent. [Prediction from Energy, the Economy and Mass Transit, United States Congress, Office of Technology Assessment, 1975]. The population grows moderately at an average annual rate of .685 percent. [Predictions based on Statistical 36 Abstract of the United States, 1975]. The capability and the willingness of society to address its public needs grows moderately along with the economy. Due to legislation of Congress in the 60's and 70's, a sizable amount of future tax funding is committed both for the natural growth of committed programs and for the retirement of debt. Thus, the tax rate rises at a moderate rate and this coupled with a continuing moderate inflation rate has the effect of lowering the standard of living or "lifestyle." Unemployment rates continue at approximately the 6-7 percent level. For this reason and the fact that the work ethic grows no major changes occur in work schedules, the work week remains much as it is today. The telecommunications industry contributes technology that permits some work to be performed in the home. This makes more jobs available to the disabled population but at the same time they are competing for the work with the non- disabled unemployed. The problem of energy continues through the year 2025, thus any energy intensive program thrusts are not highly favored. MGFS-C: Moderate Growth in Funding for Social Needs, Constraints on Willingness to be Taxed. Under this scenario, all factors are as depicted above except that as the tax rate rises beyond a certain point society reacts by opposing any new or additional funds for governmental programs. This has an affect on funds available for rehabilitation. 37 Scenario Group II AGFS: Accelerated Growth in Funding for Social Needs, No Limit on Willingness to be Taxed. With an increasing growth of the economy, funding for social programs grows and this has the effect of increasing funds available for rehabilitation. The disabled population grows at a moderate rate (main- taining approximately the same percentage of total population) to about the year 2000. At this time, due to continuing re- search programs of the 60's and 70's, as well as additional funding through the 80's and 90's, technology development for rehabilitation needs begins to have marked affect and the effective disabled population begins to reduce at a rate of about 3 percent per year. New funding for rehabilitation occurs as well as the maintenance of funding trends of the 70's and some major reallocations among programs occurs. Due to increased technological development in related areas, by the year 1995 the moderately disabled and handi- capped are being better assimilated into society. For example, new transportation systems are capable of handling the disabled; public buildings are designed or remodeled to permit the disabled to use them; and industry has positive programs for employment of the disabled, etc. The United States improves its productivity at an increas- ing rate and the NNP grows at an average annual rate of 4.5 percent from now to 2025. [Predictions based on Technology Assessment of Portable Energy, RDT & P Center for Energy Studies, The University of Texas at Austin]. 38 The population grows moderately at a annual rate of .682 percent until 1985. From 1985 to 2020 the annual rate is reduced to 2014 percent. From 2020 to 2025 the population declines by an annual rate of .255 percent. [Predictions based on Statistical Abstract of the United States, 1975]. The capability and the willingness of society to address its public needs increases along with the economy. Due to legislation of Congress in the 60's and 70's, a sizable amount of future tax funding is committed both for the natural growth of programs committed and for the retirement of debt. The tax rate arises at a very moderate rate since taxable income is increasing and a moderate inflation rate continues. Unemployment rates decrease to approximately the 4-5 percent level. For this reason and the relative prosperity of society and their desire for leisure time in larger amounts than provided by the two-day weekend, experimentation with different work scheduling procedures occurs. By the turn of the century, people are permitted to "bid" on work time and with the use of computers, individualized worker schedules are a reality. The basic 1920 working hours per year is maintained, however. The telecommunications industry contributes technology that permits considerable work to be performed in the home. This makes more jobs available to the disabled population and many are gainfully employed because of the general prosperity and the increasing productivity taking place. 39 The service and information industry continues to grow as society continues to utilize more services. This trend also provides a greater job market for the disabled. Some programs of rehabilitation are required to permit the dis- abled to take advantage of this opportunity. Due to increased programs of energy technology, the energy problem begins to subside around the turn of the century. AGFS-C: Accelerated Growth in Funding for Social Needs, Constrained a Willingness to be Taxed. Under this scenario all factors are as depicted above except that as the tax rate rises beyond a certain point society reacts by opposing any new or additional funds for governmental programs. Because of the prosperity and the increasing standard of living, this threshold limit is somewhat higher than under Scenario Group I. Also, due to the prosperity, national debt has been decreased and govern- mental interest is reduced, thus permitting more funds for other programs. This has a beneficial affect on funds for rehabilitation. Scenario Group III RGFS: Reduced Growth in Funding for Social Needs, No Limit on Willingness to be Taxed. As the economy declines thus producing a decline in society's capability to address public problems and also in their willingness, funds for social programs experience reduced growth. This has an affect on funds for rehabilitation, 40 in fact, some programs initiated in the 60's and 70's experi- ence curtailment. The disabled population grows at a moderate rate (main- taining approximately the same percentage of total population). Due to reduction of research programs of the late 70's and 80's, technology development for rehabilitation is less effective and the disabled population continues the moderate growth rate. Technological development in related areas is slowed, thus affecting the rate at which the moderately disabled and handicapped can be assimilated into society. Due to legislation of Congress in the 60's and 70's, a sizable amount of future tax funding is committed both for the natural growth of programs committed and for the retire- ment of debt. Thus, the tax rate rises at an accelerated rate and this coupled with a continuing moderate inflation rate and reduced productivity has the effect of lowering the standard of living or "lifestyle." Government funding programs are all subjected to review. The United States experiences reduced productivity after 1985 and the NNP stabilizes to grow at an annual rate of only an estimated 1.33 percent. The population growth rate is higher due to reduction in emphasis on population control and grows at an average annual rate of 1.125 percent. [Prediction based on Statistical Abstract of the United States, 1975]. Unemployment rates rise to approximately the 9-11 percent level. Thus, social needs for the unemployed increase. This 41 factor affects the disabled and handicapped considerably, both in that jobs for them are not readily available and in that funds for rehabilitation programs are reduced. RGFS-C: Reduced Growth in Funding for Social Needs, Constrained on Willingness to be Taxed. Under this scenario, all factors are as depicted above except that as the tax rate rises above a certain point society reacts by opposing any new or additional funds for governmental programs. Because of the reduced standard of living, this threshold limit is somewhat lower than under Scenario Group I. Data Base To accompany these scenarios considerable data concerning various variables will be provided. Foremost among these will be the four theme variables (see Figure ;4 to 9) which will be reported from the past to the present and projected into the future. Other data being accumulated will include information about the variables indicated in Table 2. Some of these will be presented only with data from the past to the present; however, a few critical ones will also be projected into the future. The general time frame will include data obtained from as far into the past as necessary to establish trends. Projections into the future will not be made past the year 2025. 42 Table 2 State of Society Variables TA: Human Rehabilitation Report Report Variable Dimension Variable Dimension Population Economics Size Source of funds for DA Taxes, etc. Demographics (DEM) * Total No. Distribution of funds % by Life Sex % total pop. Research functions Age Groups Rehabilitation by employ. Race Institutional Based direct Disabled pop. (DA) % total by DEM Community Based indirect Severe Transfer funds Moderate Employment "Probable" work- % Total pop. Social Attitudinal force 18-64 years View of DA Available work- % Probable WF by Able pop. Degree acceptance force laws Employed % WF by DA and by DA pop. Self-image Able Willingness to Goods enter WF and Services community Information Unemployed % WF by DA-A Benefits to society Income Earned by A-DA pop. Disbenefits to society Median Less than $3000 Quintile *Age groups: 0-5, 6-18, 19-30, 31-45, 46-64, 65 up. Race: Balck, white, other 7200 Growth rate of 4.5% 43 6900 6600 6300 6000 5700 Note: Growth rates based on predictions made for GNP in "Energy, the Economy 5400 and Mass Transit," United States Congress, Office of Technology Assessment, 1975, and "Technology Assessment of Portable Energy Growth rate of 5100 RDT & P," Center for Energy Studies, The 3.35% University of Texas at Austin, 1975. 4800 4500 4200 3900 Dollars in Billions 3600 3300 3000 2700 2400 2100 Growth rate of 1.33% 1800 1500 1200 900 600 300 0 1940 1950 1960 1970 1980 1990 2000 2010 2020 2025 Year Figure 4. Net National Product (Projected in Constant '69 Dollars) 44 60000 57000 Capability under Scenario Group II 54000 Note: Population projections for each scenario group taken from "Statistical Abstract of -51000 the United States," 1975. 48000 45000 42000 -39000 36000 33000 Dollars per Capita -30000 27000 24000 -21000 Capability under Scenario Group I 18000 15000 -12000 9000 Capability under Scenario Group III 6000 3000 1940 1950 1960 1970 1980 1990 2000 2010 2020 2025 Year Figure 5. Society's Capability of Addressing Problems Capability = Net National Product ('69$) Total Population 45 6000 Growth rate of 5.6% 5700 5400 5100 4800 Note: Work session may consider selecting a 4500 probable projection of government expendi- tures or establish a probable projection on the willingness factor. 4300 4000 3700 3300 3000 n 2700 2400 2100 Growth rate of 3.0% 1800 1500 1200 900 Growth rate of 1.3% 600 300 0 1940 1950 1960 1970 1980 1990 2000 2010 2020 2025 Year Figure 6. Range of Government Expenditures (Projected in Constant '69 Dollars). I 46 III Legend: Range of Willingness for Scenario I Scenario II Scenario III Government Expenditure as Percent of NNP II III I Willingness Total Government Spending ('69$) = NNP ('69$) II 1940 1950 1960 1970 1980 1990 2000 2010 2020 2025 Years Figure 7. Range of Society's Willingness to be Taxed 47 Note: Population figures for disabled population are very sparse. Past data 70 available are individual estimates of total disabled population for years 1966 and 1973 only. 65 Scenario I 60 Scenario II III 55 Scenario III 50 Population (Millions of Disabled All Ages) 45 40 I 35 II 30 25 20 15 10 5 1940 1950 1960 1970 1980 1990 2000 2010 2020 2025 Years Figure 8. Disabled Population Growth rate 3.5% 2200 2100 Note: Work session will select probable growth rate as function 2000 of willingness factor. 1900 1800 1700 Growth rate 3.0% 1600 1500 1400 1300 1200 1100 1000 [...art Growth rate 7.9% 900 800 700 600 500 400 300 200 Growth rate - 9% 100 Growth rate Growth rate .9% 1.3% 1940 1950 1960 1970 1980 1990 2000 2010 2020 2025 Years Figure 9. Range of Government Expenditures for Social Needs (projected in constant '69 dollars)