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Originally Processed With FOIA(s): FOIA Number: S S FOIA MARKER This is not a textual record. This is used as an administrative marker by the George Bush Presidential Library Staff. Record Group/Collection: Donated Historical Materials Collection/Office of Origin: Frieden, Lex, Collection Series: Government Records Subseries: Government-created Organizations OA/ID Number: 52008 Folder ID Number: 52008-007 Folder Title: CST [Committee on Science and Technology] - Panel Documents (2) [1976-1977] [2] Stack: Row: Section: Shelf: Position: G 5 2 2 1 Mr. Lex Frieden Texas Institute for Rehabilitation & Research Texas Medical Center 1333 Moursund Avenue Houston, Texas 77030 / November 8, 1976 Dear Lex: In response to Dr. Spencer's request that we contact you regarding travel plans for the panel meeting, here are my Mother's and mine: Arrival: Eastern Airlines Flight # 555, departing from Dulles at 6:18 P.M. on Sunday, Nov. 14th, arriving at Houston at 8:30 your time. Departure: Eastern Airlines Flight # 554, departing from Houston at 6:20 P.M on Wednesday, Nov. 17th, arriving at Dulles at 10:10 P.M. Hope this is helpful for setting up wheelchair transpor tation. I'm looking forward to seeing you and Dr. Spencer next week. Sincerely, Pat Bradley Lex Friden TEXAS INSTITUTE FOR REHABILITATION AND RESEARCH IN THE TEXAS MEDICAL CENTER 1333 MOURSUND AVENUE HOUSTON, TEXAS 77030 P. O. Box 20095 Telephone Houston, Texas 77025 November 3, 1976 Area Code 713, 797-1440 To: Members, Panel on Research Programs to Aid the Handicapped From: William A. Spencer, M.D. Re: Meeting in Houston November 15-17, 1976 Our meeting will begin at 9:30 on Monday morning, the 15th, in the Library (Room D-103) of the Texas Institute for Rehabilitation and Research. The Institute is located at 1333 Moursund Avenue, within the Texas Medical Center (4 or 5 blocks from the Holiday Inn). The Holiday Inn has courtesy bus transportation to the Medical Center. For those of you with special transportation needs, please telephone Mr. Lex Friday (797-1440, ext. 504 business # or 781-8949 home #; area code 713) and let him know your travel arrangements, arrival times, etc. He can then arrange for you to be picked up at the airport and to have transportation from the hotel to the meeting. You should receive the meeting agenda by the middle of next week. William all is my feeling that we may we losing sight of our fluing good which was to falltel the delivery and applic of misder Tech to Panel on Research Programs to Aid the Handicapped November 15-17, 1976 Houston, Texas AGENDA MONDAY, NOV. 15 Discussion of Individual Members' Recommendations by Each Panel Member Discussion of Testimony findings (by K. Salvatore) and of Solicited Recommendations (by D. Childress, W. Holsberg, W. Spencer and other panel members) Review of Proposed Report Format -- See Attachment of Panel Goals & Objectives Assignment of Report Writing Responsibilities (Topic or Subject Matter) [3 study sections] TUESDAY, NOV. 16 Study Section Work Presentation by Mr. W. R. Matthews, Matthews & Associates-Architects, Bryan, Texas (Requested by Congressman Teague) Study Section Work Review of Preliminary Writing WEDNESDAY, NOV. 17 Study Section Work Final Review of Preliminary Report Charge to "Report Compilation" Group [Members: R. Leclair, K. Salvatore, J. Seybold] Excerpt from Minutes of Panel Meeting, September 1-2, 1976 The following goals and objectives were agreed upon by the Panel: (1) To define the need, characteristics, and requirements for building a national research program benefiting the rehabilitation of the handicapped using the participatory input of those affected by the objective; (2) To define and seek answers to questions posed by the needs and report findings and recommendations to the Committee; and (3) To compile a report of findings and recommendations which is sound, reasonable, and understandable, leading to the effective implementation of recommendations. COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 MEMORANDUM October 26, 1976 To: Panel on Research Programs to Aid the Handicapped From: Sherman Roodzant Enclosed is miscellaneous material received subsequent to the Panel's New York meeting and in response to the Panel's solicitations for input from various groups. I also take this opportunity to remind each Panel member that revised reports of personal views and recommendations for the Panel's report were due October 25th. Please forward them to this office, as soon as possible, for distribution to the Panel. Under separate cover, a copy of "An Evaluation of Policy-Related Rehabilitation Research" is being forwarded. This is a report of a study being conducted at Rutgers University in 1974, under the auspices of the National Science Foundation, Research Applied to National Needs program. COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 MEMORANDUM December 14, 1976 To: Members of the Panel on Research Programs to Aid the Handicapped From: Sherman Roodzant Subject: Notice of Chairman Teague's Request for Individual Reports from Panel Members To complement Dr. Spencer's announcement on Thursday, December 9th, this memorandum will serve to remind you of Chairman Teague's request for a brief report from each Panel member on what you think should be done for the handicapped. Your reply may be sent to me for delivery to the Chairman with the other Panel member's reports, or you may forward it directly to him at the following address: Honorable Olin E. Teague, Chairman Committee on Science and Technology U. S. House Of Representatives Washington, D. C. 20515 In any event, individual replies will be held in strict confidence between this office and the Chairman. Thank you for your prompt response! 193 HAMMER HEARINGS ON : 2 RESEARCH PROGRAMS TO AID THE HANDICAPPED + ÷ + 3 HOUSE OF REPRESENTATIVES 4 Connittee on Science and Technology Subconnittee on Science, Research and 5 Technology Washington, D.C. G Thursday, Saptember 23, 1976 7 + + + B The Subcommittee met, pursuant to adjournment, at 9.30 9 a.m., in Room 2318, Rayburn House Office Building, the Honorable 10 George E. Brown, Jr., Chairman of the Subconnittee, presiding. 11 + + + 12 Chairman Brown. The meeting will come to order. 13 I want to welcome everyone hera to the second day of the 14 two-day hearings of the Subcommittes on Science, Research and 15 Technology on the general subject of Research Programs to Aid 16 the Handicapped. 17 Yesterday we had the pleasure of hearing several profes- 18 sionals, doctors and engineers, therapists, and 30 forth, ex 19 pound on their views of research as 14 applies to the handi- 20 capped population. 21 Today we are fortunate to have with us to express treir 22 views several rapresentatives of handicapped consumer groups. 23 We are also pleased to hear from the Director of the 24 unique National Institute for Rehabilitition Enginsering, and 25 194 at: the conclusion of our hearings a demonstration of a new stain- 2 climbing whealchair. 8 The Committee on Science and Technology is chaired by the 4 Honçrable Olin E. Teacur of Texas, and his been deeply concerns: 5 about the problems of the handicapped and how we might better C apply America's research, technology and ingenuity to thair 7 possible resolution. 0 Before you today is a panel of expert consultants, includ- 3 ing consumers, which the Committee has retained to explore so this area and render its recommendations to the Committre. 11 We trust the testimony heard today and presented here tom 12 day will play an important part in the Danel's recommendations 13 to Congress. 14 Just a few weeks ago, the TV Guide magazine portrayed on :s its cover the $6-million man, and titled its story cover are- 15 icle "The $6-million Man's Assistant Tin Lizzie." It reminded 17 me of the comic strip and TV series not too many years ago, 10 which depicted science fiction, the lives of Buck Rogers and 19 others, moving about in outer space. 20 As you all know, we have landed on the moon and returned 21 safely. We have placed sophisticated machines on plansts 22 dreds of millions of miles away. And in the not-too-distait 23 future we plan with the space shuttle to enter, work, and 24 from outer space on a regular basis. 25 I submit to you today that the dream of hundreds of 195 1 thousands of handicapped Americans and people around the world 2 to become inispendent, productive individuals need not be a 3 dream before too long, if we are to direct the great American 4 resource of research and technological expertise which nut us 5 into outer space into. solving the problems of the handicapped G individual. 7 We trust that the witnesses today will give us more guid- 8 ance and direction in implementing new research programs of ben- 9 efit to the handicapped. We will have a lengthy list of wit- 10 nesses today, and 1t. will be necessary to proceed expeditiously 11 and wa do ask the cooperation of the witnesses in doing that 12 and of course in would depend upon the sound management of Dr. 13 Spencer, who will be conducting most of iha panel discussion 14 today as to how rapidly we are able to proceed. 15 Our first witness this morning -- and we will deviate from 10 the printed list just slightly -- is Mr. Andre Densertine, rep- 17 resenting the World Veterans Fedecation, from Paxis, France. 18 We're very fortunate and happy to have him here in order to 19 testify before this panel. 20 You may proceed with your testimony, Mr. Dessertine. STATEMENT OF 21 ANDRE DESSERPINE, WORLD VITERANS FEDERATION, PARIS, FRANCE 22 23 Mr. Dessertine. Mr. Chairman, ladies and gentlemen: 24 Permit me to say first of all that it is a. great honor and 25 privilege fox me to testify before your Committee at the Copeland 1 1 RESEARCH PROGRAMS TO AID THE HANDICAPPED 2 - - 3 Wednesday, September 22, 1976 4 - - 5 House of Representatives, 6 Subcommittee on Science, Research and Technology of the 7 Committee on Science & Technology, 8 Washington, D. C. 9 The subcommittee met, pursuant to notice, at 9:40 a.m. 10 in Room 2318, Rayburn House Office Building, Honorable George E. 11 Brown presiding. - - 12 Mr. Brown. The subcommittee will come to order. I want 13 14 to welcome everyone here this morning for this important effort 15 that the subcommittee is making in the field of research pro- grams to aid the handicapped. 16 The Committee on Science and Technology has become increas- 17 ingly aware of the problems of the handicapped and the 18 obstacles they face in the usual functions of daily living. As 19 a result, we have made a commitment, and I want to acknowledge 20 the special concern of the chairman of the full committee, the 21 Honorable Olin "Tiger" Teague, of Texas, in this area. His 22 commitment extends for many, many years, but the full committee 23 has made a commitment to look at these problems and examine 24 their potential for resolution through Federal research programs. 25 2 1 Experts estimate that up to 18 percent of our population, nearl 2 40 million people in this country alone, have a handicap, 3 either mental, physical, or sensory. To tackle such an enormou: 4 job the Committee on Science and Technology has retained ten 5 exports in this field, and I would like to take a moment to 6 introduce them. Before I do so, I would just like to comment 7 that this is an unusual and unique committee procedure that 8 we are following here, and because it is different from the 9 normal proceedings, it probably will be much more effective and successful than most of our committee proceedings. 10 Dr. Dudley S. Childress is Director of the Rehabilitation 11 12 Engineering Program at Northwestern University in Chicago. He is not here this morning yet. Mr. Lex Frieden comes to us 13 from Houston and is representing the American Coalition of 14 Citizens with Disabilities. From Newtown, Connecticut, we 15 have Mr. Robert Fulton, Jr., representing Rehabilitation 16 International, USA; and Mr. Wilfred G. Holsberg is the Chief 17 of the Prosthetics Field Operations at the Veterans Administra- 18 tion. The Disabled American Veterans have chosen as their 19 representative Mr. Sol Kaminsky from New York. Mr. Richard R. 20 Leclair is with the Rehabilitation Engineering Program, the 21 Department of Health, Education and Welfare. Karen Ann 22 Salvatore represents Goodwill Industries of America; Mr. James 23 E. Seybold is the National Research Director of the Paralyzed 24 Veterans of America. And we also have with us an accomplished 25 3 i author, lecturer and, along with the other members of this 2 panel, a champion in behalf of the handicapped population, Mrs. 3 Patricia Galbreaith. And the Chairman of the panel, chosen by 4 his colleagues, is Dr. William A. Spencer, Professor and Chair- 5 man of the Department of Rehabilitation Medicine at Baylor 6 College of Medicine. Under Dr. Spencer's leadership we are 7 looking forward to very fruitful results from this panel and 8 also for the further conduct of this hearing this morning after 9 I have to leave. 10 Today, the members of the Subcommittee on Science, Research and Technology and the panel will hear testimony from 11 12 representatives of the biomedical, engineering, and medical communities as well as from government agencies with ongoing 13 14 projects in this area. Together with this testimony, the in- dividual research and expertise that each member of this panel 15 brings with them in this area, this panel will be compiling a 16 report for the committee and the Congress identifying areas 17 where a more concentrated and intensified research effort can 18 directly aid handicapped persons. 19 We are concerned with the quality of life that exists for 20 the handicapped person. New technological advances have been 21 so suc cessful that, with guidance and direction, we are 22 convinced the application of this new knowledge can help these 23 people live more fulfilling and productive lives. This is why 24 we are here today. 25 COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 MEMORANDUM September 14, 1976 To: Panel on Research Programs to Aid the Handicapped From: Sherman E. Roodzant, Committee Professional Staff Subject: General Information on Panel's Activities Enclosed for your perusal are the minutes of our initial meeting, as well as a copy of the preliminary organization and group assign- ments and the schedule of activity approved by the Panel in our initial meeting. Also enclosed are sample copies of the letters and questionaires which the Panel groups requested be sent to the Workshop Participants (witnesses), various Department and Executive agency heads, handicapped organizations, and the list of 600 'handicapped' scientists affiliated with the American Association for the Advancement of Science. May I remind you of the need to have the preliminary report on your views and recommendations prepared prior to our next meeting, September 22nd and 23rd, to be held at 9:30 a.m. in Room 2318 of the Rayburn House Office Building. This will enable the timely consolidation of the infor- mation and recommendations of the group in preparation for the review by the Panel. Again, if we can be of any assistance to you, please do not hesitate to contact us. We look forward to seeing you on the 22nd and 23rd. COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 MINUTES OF THE PANEL ON RESEARCH PROGRAMS TO AID THE HANDICAPPED September 1-2, 1976 The Panel on Research Programs to Aid the Handicapped began its study with a two-day organizational meeting which was held in Room 2325 of the Rayburn House Office Building in Washington, D. C. on September 1 and 2, 1976. The Panel (attachment I) met at 9:30 a. m. subsequent to prior notification from Committee staff. Olin E. Teague, Chairman of the Committee on Science and Technology delivered a brief welcoming statement to the group and Congressman Timm L. Hall (D.-Ill.) greeted the Panel. Congressman Teague requested that the Panel visit and conduct one of its panel meetings at the New York University Medical Center's Institute of Rehabilitation Medicine and indicated that he was appointing another member to the consultant panel group (Mrs. Kenneth 'Patricia' Galbreaith). Mrs. Regina Davis, Chief Clerk of the Committee, apprised the Panel of the administrative matters which the Panel would need to be aware of when working in a consultant capacity for a congressional committee. The Panel then heard from Mr. Sherman E. Roodzant, a Technical Consultant with the Committee professional staff. Events leading up to the formation of the Panel were discussed as well as the jurisdiction of the Committee and how this should guide the Panel's efforts. Congressman George E. Brown (D.-Cal.) and Congressman Larry Winn, Jr. (R.-Kansas) briefly joined the Panel and extended a welcoming message and hopes for a successful effort on behalf of the handicapped. Minutes page 2 The next order of business was to choose a chairman. Nominations were accepted from members of the group. Mr. Sol Kaminsky submitted the name of Dr. William A. Spencer and it was seconded by Mr. Richard Leclair. Dr. Spencer was chosen unanimously and Mr. Roodzant turned the meeting over to the new chairman. Dr. Spencer introduced each member of the Panel and asked each member of the Panel to further introduce themselves, discuss the ex- pectations that they had in terms of the Panel's efforts and the im- plementing capabilities that they felt their individual expertise (and those of the organization that they represented) provided to the group. Dr. Spencer also introduced Mr. William O. Cooper, Secretary General of the World Veterans Federation, an organization vitally interested and active in the problems of the handicapped, and Mr. Joseph Traub, Director of the Rehabilitation Engineering Section of the Rehabilitation Services Administration, Department of Health, Education and Welfare, both of whom expressed their thoughts on the Panel's charge. After considerable Panel discussion of personal goals and interests, the scope of the study, and the effect on the study by the jurisdiction of the Committee, Dr. Spencer proposed a preliminary organization and assignment of responsibilities, necessary to complete the Panel's assignment, which was accepted by the Panel Members (Attachment II). Congressman Ray Thornton (D.-Ark.) briefly sat in on the Panel's deliberations and after a few brief remarks was asked by Dr. Spencer what the Committee's interests were in regard to the Panel's charge. Mr. Thornton Minutes page 3 suggested that the Panel need address itself to what the purposes of the proposed research were, whether there was a need to alter the existing system of research and development programs to aid the handi- capped, and if so, what institutional framework the Panel would recommend to effectively carry out a national program in this area. The following goals and objectives were agreed upon by the Panel: (1) To define the need, characteristics, and requirements for building a national research program benefiting the rehabilitation of the handicapped using the participatory input of those affected by the objective; (2) To define and seek answers to questions posed by the needs and report findings and recommendations to the Committee; and (3) To compile a report of findings and recommendations which is sound, reasonable, and easily read, leading to the effective implementation of recommendations. The Panel then met in its various subgroups, outlining plans and strategy for conducting the study responsibilities assigned to each group. Both the Consumer and Scientific Advocacy Liaison Groups defined questions and lists of groups, agencies, departments, and organizations which should be solicited for input to this study. The Executive Planning Group compiled a schedule of milestones and meetings which they felt were necessary to accomplish the Panel's mission (Attachment III), which was approved by the full Panel. The Panel recessed its group effort at 3:45 p.m., September 2, 1976 to continue their individual research and reconvene as a group on Minutes page 4 September 22-23, 1976, to hear recommendations from the Workshop Participants and discuss each other's individual research findings. Also present during the Panel proceedings were: Mr. Dana Peck, representing Congressman Jerry Ambro (D.-N.Y.), Mr. Ted Waggoner, representing Congressman Ray Thornton (D.-Ark.), and Mr. Jim Crosby, representing Congressman Lou Frey, Jr. (R.-Fla.). COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 9/1/76 PANEL ON RESEARCH PROGAMS TO AID THE HANDICAPPED Preliminary Organization and Group Assignments Executive, Planning, Agenda Dr. William A. Spencer, Chairman Mr. Robert E. Fulton, Jr. Mr. Sol Kaminsky Status of Existing Studies and Compilation of Relevant Information Dr. Dudley S. Childress Mr. Wilfred G. Holsberg Scientific Advocacy and Liaison Mr. James E. Seybold Mr. Richard R. Leclair Dr. Dudley S. Childress Consumer Advocacy and Liaison Mr. Lex Frieden Ms. Karen Ann Salvatore Mr. Sol Kaminsky Report Compilation Mr. Richard Leclair Ms. Karen Ann Salvatore Mr. James E. Seybold COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 Schedule for Panel on Research Programs to Aid the Handicapped Organization and Planning Sept. 1-2 Hearings and Submission of Panel Member's Preliminary Sept. 22-23 Report on Views and Recommendations (Washington, D. C.) Consolidation of Information and Recommendations Oct. 11 and Development of Preliminary Summary of Findings Panel Meeting to Review Findings (New York) Oct. 18-19 Panel Members Submit Revised Report of Personal Oct. 25 Views and Recommendations Synthesize Reports and Prepare a Preliminary Nov. 8 Report Outline and Principle Recommendations Working Panel Meeting to Draft Report (Houston) Nov. 15-17 Critiqued by Staff for Legislative Implications Executive Group Review and Final Report Outline, Dec. 2 and Preparation of Recommendations (Washington, D. C.) Preparation of Draft for Final Report and Review Dec. 20 by Panel Members Final Draft Dec. 31 9/1/76 OLIN E. TEAGUE. TEX., CHAIRMAN LETTER & QUESTIONNAIRE SENT TO JOHN L. SWIGERT. JR. KEN HECHLER. W. VA. CHARLES A. MOSHER, OHIO EXECUTIVE DIRECTOR THOMAS N. DOWNING, VA. ALPHONZO BELL. CALIF. DON FUQUA, FLA. JOHN JARMAN, OKLA. AGENCY/DEPARTMENT HEADS HAROLD A. COULD JAMES.W. SYMINGTON, MO. JOHN W. WYOLER, N.Y. PHILIP B. YEAGER WALTER FLOWERS, ALA. LARRY WINN, JR., KANS. COMMITTEE ON SCIENCE AND TECHNOLOGY FRANK R. HAMMILL. JR. ROBERT A. ROE. N.J. LOUIS FREY, JR., FLA. JAMES E. WILSON MINE MC CORMACK, WASH. BARRY M. GOLDWATER, JR., CALIF. J. THOMAS RATCHFORD GEORGE E. BROWN, JR., CALIF. MARVIN L. ESCH. MICH. U.S. HOUSE OF REPRESENTATIVES JOHN D. HOLMFELD DALE MILFORD, TEX. JOHN B. CONLAN, ARIZ. RALPH N. READ RAY THORNTON, ARK. GARY A. MYERS, PA. SUITE 2321 RAYBURN HOUSE OFFICE BUILDING ROBERT C. KETCHAM JAMES H. SCHEVER, N.Y. DAVID F. EMERY. MAINE ROBERT D. DILLAWAY RICHARD L. OTTINGER. N.Y. LARRY PRESSLER. S. DAK. WASHINGTON, D.C. 20515 REGINA A. DAVIS HENRY A. WAXMAN, CALIF. PHILIP H. HAYES, IND. MINORITY COUNSEL: TOM HARKIN, TOWA MICHAEL A. SUPERATA JIM LLOYD, CALIF. JEROME A. AMBRO, N.Y. CHRISTOPHER J. DODD. CONN. September 8, 1976 MICHAEL T. BLOUIN, IOWA TIM L. HALL, ILL. ROBERT KRUEGER, TEX. MARILYN LLOYD. TENN. JAMES J. BLANCHARD, MICH. TIMOTHY E. WIRTH, COLO. The Honorable Richard L. Roudebush Administrator of Veterans Affairs The Veterans Administration Washington, D. C. 20420 Dear Mr. Roudebush: The Committee on Science and Technology is genuinely concerned with the problems of the handicapped and has authorized further study in this field to identify areas where a more concentrated and intensified research effort should be put forth in programs to aid the handicapped. The need for this study became evident this past year when my colleagues and I were privileged to observe several new developments of remarkable benefit to the handicapped, such as the voice-controlled wheelchair for quadraplegics and the rechargeable cardiac pacemaker for heart attack victims, the outgrowth or spinoff of our National Aeronautics and Space Administration program. Considering the great number of handicapped people in this nation and the enormity of the problems they face in the usual functions of daily living, it became obvious to us that a legislative look at the problems and their potential resolution was most timely. As a result of these concerns, the Committee on Science and Technology has authorized a consultant panel to study further this important area. As part of their study, the Panel will have the need for information of your Department's research and development (R&D) efforts in this area. En- closed is a list of questions they have posed which need to be answered in their evaluation of our federal R&D programs for the handicapped. I would appreciate the response of those groups within your organization who have responsibility for these areas. Your response and any questions you may have should be directed to Mr. Sherman Roodzant of the Committee staff and should be received by October 8, 1976. Thank you for your assistance and cooperation in this important study. Sincerely, OLIN E. TEAGUE Chairman Enclosure QUESTIONS SENT TO AGENCY/DEPARTMENT HEADS PANEL ON RESEARCH PROGRAMS TO AID THE HANDICAPPED In the area of research and development (R&D) projects to aid the handicapped, please identify: 1. The titles (only) of those R&D projects completed by your organization during the last five years; 2. The titles of on-going projects, including cost and duration of each project, and the total funding for this general area of research; 3. What mechanism is employed by your organization to transfer research results from the laboratory to handicapped individuals; 4. Several significant achievements of your organization's research which has had direct impact on the handicapped; 5. How your organization's research efforts are coordinated with those of other governmental agencies; and 6. How are your research needs and priorities determined in this area? LETTER & QUESTIONNAIRE SENT TO OLIN E. TEAGUE. TEX., CHAIRMAN KEN HECHLER. W. VA. WORKSHOP PARTICIPANTS JOHN L. SWIGERT. JR. CHARLES A. MOSHER, OHIO EXECUTIVE DIRECTOR THOMAS N. DOWNING, VA. ALPHONZO BELL, CALIF. DON FUQUA, FLA. JOHN JARMAN, OKLA. HAROLD A. GOULD JAMES W. SYMINGTON, MO. JOHN W. WYDLER, N.Y. PHILIP B. YEAGER WALTER FLOWERS, ALA. LARRY WINN, JR., KANS. ROSERT A. ROE, N.J. LOUIS FREY, JR., FLA. COMMITTEE ON SCIENCE AND TECHNOLOGY FRANK R. HAMMILL, JR. JAMES E. WILSON MIKE MC CORMACK. WASH. BARRY M. GOLDWATER. JR., CALIF. J. THOMAS RATCHFORD GEORGE E. BROWN. JR., CALIF. MARVIN L. ESCH. MICH. U.S. HOUSE OF REPRESENTATIVES JOHN D. HOLMFELD DALE MILFORD. TEX. JOHN B. CONLAN. ARIZ. RALPH N. READ RAY THORNTON, ARK. GARY A. MYERS, PA. SUITE 2321 RAYBURN HOUSE OFFICE BUILDING ROBERT C. KETCHAM JAMES H. SCHEUER. N.Y. DAVID F. EMERY, MAINE ROBERT B. DILLAWAY RICHARD L. OTTINGER, N.Y. LARRY PRESSLER, S. DAK. WASHINGTON, D.C. 20515 REGINA A. DAVIS HENRY A. WAXMAN, CALIF. PHILIP H. HAYES. IND. MINORITY COUNSEL: TOM HARKIN, IOWA MICHAEL A. SUPERATA JIM LLOYD, CALIF. JEROME A. AMBRO, N.Y. CHRISTOPHER J. DODD. CONN. September 8, 1976 MICHAEL T. BLOUIN, IOWA TIM L. HALL. ILL. ROBERT KRUEGER, TEX. MARILYN LLOYD. TENN. JAMES J. BLANCHARD, MICH. TIMOTHY E. WIRTH, COLO. Dr. James B. Reswick Director Rehabilitation Engineering Center Rancho Los Amigos Hospital, Inc. 7601 East Imperial Highway Downey, California 90242 Dear Dr. Reswick: The Panel on Research Programs to Aid the Handicapped has convened and begun its research and study. In conjunction with my invitation for you to appear before the Committee and Panel, the Panel has requested that you specifically address the questions posed on the attached list, in addition to any other areas of con- cern you may wish to bring to our attention. We look forward to your participation and appreciate your interest in this important study. Sincerely, oe. OLIN Chairman E. TEAGUE Frague Attachment OLIN E. TEAGUE, TEX., CHAIRMAN LETTER & QUESTIONNAIRE SENT TO JOHN L. SWIGERT, JR. MEN HECHLER, W. VA. CHARLES A. MOSHER, OHIO EXECUTIVE DIRECTOR THOMAS N. DOWNING, VA. ALPHONZO BELL, CALIF. HANDICAPPED ORGANIZATIONS DON FUQUA, FLA. JOHN JARMAN. OKLA. HAROLD A. GOULD JAMES W. SYMINGTON, MO. JOHN W. WYDLER, N.Y. PHILIP B. YEAGER WALTER FLOWERS. ALA. LARRY WINN, JR., KANS. FRANK R. hammill, JR. LOUIS FREY, JR., FLA. COMMITTEE ON SCIENCE AND TECHNOLOGY ROBERT A. ROE. N.J. JAMES E. WILSON MIKE MC CORMACK, WASH. BARRY M. GOLDWATER, JR., CALIF. J. THOMAS RATCHFORD GEORGE E. BROWN, JR., CALIF. MARVIN L. ESCH. MICH. U.S. HOUSE OF REPRESENTATIVES JOHN D. HOLMFELD DALE MILFORD, TEX. JOHN B. CONLAN, ARIZ. RALPH N. READ RAY THORNTON, ARK. GARY A. MYERS, PA. SUITE 2321 RAYBURN HOUSE OFFICE BUILDING ROBERT C. KETCHAM JAMES H. SCHEUER, N.Y. DAVID F. EMERY. MAINE ROBERT B. DILLAWAY RICHARD L. OTTINGER. N.Y. LARRY PRESSLER, 3. DAK. REGINA A. DAVIS WASHINGTON, D.C. 20515 HENRY A. WAXMAN, CALIF. PHILIP H. HAYES, IND. MINORITY COUNSEL: ToM HARKIN, IOWA MICHAEL A. SUPERATA JIM LLOYD, CALIF. JEROME A. AMBRO, N.Y. CHRISTOPHER J. DODD. CONN. MICHAEL T. BLOUIN, IOWA TIM L. HALL, ILL. ROBERT KRUEGER, TEX, September 10, 1976 MARILYN LLOYD, TENN. JAMES J. BLANCHARD, MICH. TIMOTHY E. WIRTH, COLO. Dear Sirs: The Committee on Science and Technology is genuinely concerned with the problems of the handicapped and has authorized further study in this field to identify areas where a more concentrated and intensified research effort should be put forth in programs to aid the handicapped. The need for this study became evident this past year when my colleagues and I were privileged to observe several new developments of remarkable benefit to the handicapped, such as the voice-controlled wheelchair for quadraplegics and the rechargeable cardiac pacemaker for heart attack victims, the outgrowth or spinoff of our National Aero- nautics and Space Administration program. Considering the great number of handicapped people in this nation and the enormity of the problems they face in the usual functions of daily living, it became obvious to us that a legislative look at the problems and their potential resolution was most timely. As a result of these concerns, the Committee on Science and Technology has authorized a consultant panel to study further this important area. As part of their study, the Panel will have need for a considerable amount of information and opinion; and as an organization interested in this area, we would welcome your input in answering the enclosed list of questions posed by the Panel in their evaluation of our Federal R&D programs for the handicapped. Your response and any questions you may have should be directed to Mr. Sherman E. Roodzant of the Committee staff and should be received by October 8, 1976. Thank you for your assistance and cooperation in this important study. Sincerely, OlinE Teague OLIN E. TEAGUE Chairman OLIN E. TEAGUE. TEX., CHAIRMAN JOHN L. SWIGERT. JR. KEN HECHLER, W. VA. CHARLES A. MOSHER, OHIO LETTER & QUESTIONNAIRE SENT EXECUTIVE DIRECTOR THOMAS N. DOWNING, VA. ALPHONZO BELL, CALIF. DON FUQUA, FLA. JOHN JARMAN, OKLA. TO AAAS SCIENTISTS HAROLD A. GOULD JAMES W. SYMINGTON, MO. JOHN W. WYDLER, N.Y. PHILIP B. YEAGER WALTER FLOWERS, ALA. LARRY WINN, JR., KANS. ROBERT A. ROE. N.J. LOUIS FREY, JR., FLA. COMMITTEE ON SCIENCE AND TECHNOLOGY FRANK R. HAMMILL. JR. JAMES E. WILSON MIKE MC CORMACK, WASH. BARRY M. GOLDWATER, JR., CALIF. J. THOMAS RATCHFORD GEORGE E. BROWN, JR., CALIF. MARVIN L. ESCH. MICH. U.S. HOUSE OF REPRESENTATIVES JOHN D. HOLMFELD DALE MILFORD, TEX. JOHN B. CONLAN, ARIZ. RALPH N. READ RAY THORNTON, ARK. GARY A. MYERS. PA. SUITE 2321 RAYBURN HOUSE OFFICE BUILDING ROBERT C. KETCHAM JAMES H. SCHEUER, N.Y. DAVID F. EMERY, MAINE ROBERT B. DILLAWAY RICHARD L. OTTINGER, N.Y. LARRY PRESSLER, S. DAK. HENRY A. WAXMAN, CALIF. WASHINGTON, D.C. 20515 REGINA A. DAVIS PHILIP H. HAYES, IND. MINORITY COUNSEL: TOM HARKIN, IOWA MICHAEL A. SUPERATA JIM LLOYD. CALIF. JEROME A. AMBRO, N.Y. CHRISTOPHER J. DODD, CONN. MICHAEL T. BLOUIN, IOWA TIM L. HALL, ILL. ROBERT KRUEGER, TEX. MARILYN LLOYD, TENN. September 15, 1976 JAMES J. BLANCHARD, MICH. TIMOTHY E. WIRTH, COLO. Dear Friends: The Committee on Science and Technology is genuinely concerned with the problems of the handicapped and has authorized further study in this field to identify areas where a more concentrated and inten- sified research effort should be put forth in programs to aid the handicapped. The need for this study became evident this past year when my colleagues and I were privileged to observe several new developments of remarkable benefit to the handicapped, such as the voice-controlled wheelchair for quadraplegics and the rechargeable cardiac pacemaker for heart attack victims, the outgrowth or spinoff of our National Aero- nautics and Space Administration program. Considering the great number of handicapped people in this nation and the enormity of the problems they face in the usual functions of daily living, it became obvious to us that a legislative look at the problems and their potential resolution was most timely. As a result of these concerns, the Committee on Science and Technology has authorized a consultant panel to study further this important area. As part of this study, the Panel will have need for a considerable amount of information and opinion. As a 'handicapped' scientist affiliated with the AAAS, we would welcome your input in answering the enclosed list of questions posed by the Panel in their evaluation of our Federal R&D program for the handicapped. Your response and any questions you may have should be directed to Mr. Sherman E. Roodzant of the Committee staff and should be received by October 15, 1976. Thank you for your assistance and cooperation in this important study. Sincerely, Olin E. Yeague OLIN E. TEAGUE Chairman QUESTIONS SENT TO WORKSHOP PARTICIPANTS/ HANDICAPPED ORGANIZATIONS/ AAAS COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 PANEL ON RESEARCH PROGRAMS TO AID THE HANDICAPPED In the area of research and development (R&D) projects to aid the handicapped, please identify: 1. The application of existing technology and "state of the art" in present programs of R&D; 2. Problem areas presently being addressed which need amplification and should be further researched and/or developed; 3. The significant reports you are aware of which were prepared as a result of the R&D efforts cited above; 4. Problem areas which heretofore have not been addressed, yet need investigation as to possible future Federal programs of R&D; 5. How the results of R&D are made available to users and indicate existing problems in the application and transfer of technology to the handicapped; 6. Your recommendations on possible action in the area of R&D which might be considered in ameliorating the problems of the handi- capped, including funding, training (supplier and user), evaluation, coordination, and national organization; and 7. Your recommendations for possible mechanisms which will in- corporate consumer and provider viewpoints. in directing future R&D in this area. COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 SUBCOMMITTEE ON SCIENCE, RESEARCH AND TECHNOLOGY Hearings on Research Programs to Aid the Handicapped R Thursday, September 23, 1976 Room 2318 Rayburn House Office Bldg. 9:30 a.m. Your WITNESS LIST John D. Collins, III REHAB, Inc. The Alexandria, Virginia a Andre Dessertine World Veterans Federation Paris, France Edward Golembieski No American Legion Washington, D. C. 2 Judith E. Heumann Center for Independent Living, Inc. Berkeley California N Irvin P. Schloss American Foundation for the Blind, Inc. lave Washington, D. C. Frederick C. Schreiber National Association for the Deaf Silver Springs, Maryland PORS Penny Styles Westside Community for Independent Living, Inc. dree Los Angeles, California Donald Selwyn E.E., Ph.D. The National Institute for Rehabilitation Engineering Pomptor Lakes, New Jersey Call Norman Van Dine (Demonstration) StairCat, Inc. Nashua, New Hampshire Workshop Participants Organization Representatives Andre Desertine World Veterans Federation Paris, France Edward Golembieski American Legion Washington, D. C. Frederico Juarde, Jr. (d Veterans of Foreign Wars Washington, D. C. Irvin P. Schloss American Foundation for the Blind, RECiul Inc. Washington, D. C. Penny Styles Westside Community for Independent Living, Inc. Los Angeles, California Judith E. Heumann Center for Independent Living, Inc Berkeley, California Frederick C. Schreiber National Association for the Deaf Silver Springs, Maryland John D. Collins, III REHAB, Inc. manufac Alexandria, Va. Government Agency Representatives William P. McCahill budgenier Committee for the Handicapped, People-To-People Program Washington, D. C. Edward F. Rose faviers President's Committee on Employment of the Handicapped Washington, D. C. Donald J. Vargo toolup up National Aeronautics and Space Administration Washington, D. C. Workshop Participants cont. Biomedical Engineering Representatives bosic of applied John G. Linvill, Sc. D. Stanford University Stanford, California James B. Reswick, Sc. D. 2nd d 3rd list Rancho Los Amigos Hospital Downey, California Physical Medicine and Rehabilitation Representatives Joseph Goodgold, M. D. York Medical Center Jack New New American New M. York, York, Hofkosh University Physical N. N. Y. Y. low Therapy Association doy mfo aft prescrip COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 SUBCOMMITTEE ON SCIENCE, RESEARCH AND TECHNOLOGY Hearings on Research Programs to Aid the Handicapped Wednesday, September 22, 1976 Room 2318 Rayburn House Office Bldg. 9:30 a.m. WITNESS LIST / John G. Linvill, Sc.D. Stanford University Stanford, California 6 James B. Reswick, Sc.D. Rancho Los Amigos Hospital Downey, California 2 Marjorie W. Linvill, President OPTACON, Inc. Palo Alto, California J William P. McCahill Committee for the Handicapped People-to-People Program Washington, D. C. 3 Joseph Goodgold, M.D. New York University Medical Center New York, N. Y. 3 Jack M. Hofkosh American Physical Therapy Association New York, N. Y. Mr. Edward Z. Gray and Mr. Donald Vargo National Aeronautics and Space Administration Washington, D. C. goodwill GOODWILL Industries of America Inc. EXECUTIVE OFFICES 9200 WISCONSIN AVENUE, WASHINGTON, D.C. 20014 (301) 530-6500 September 16, 1976 Mr. Lex Frieden American Coalition for Citizens With Disabilities, Inc. 9667 Meadowvale Houston, Texas 77042 Dear Lex: I was delighted to meet you, and I'm especially glad that we were assigned to the Consumer Advocacy and Liaison Group. I feel that we have chosen a sound approach by inviting various consumer groups to respond to the questionnaire. The meeting that we had with Bill Bean set me to thinking about the societal commitment in relation to advanced technology. I agree with you that we must address ourselves to the philosophical questions involved. I passed on a copy of the March 10th Washington Post article Doctors Decide on Life Support End, to Sherman Roodzant and suggested that we include in our workshop session an expert on biothetics. Sherman agreed that this was a good idea and I suggested that he contact the Kennedy Institute for the Study of Human Reproduction and Biothetics. I have also requested from Sherman a copy of the list of consumer groups which you sent him so that I can be sure we haven't missed any of the groups on my list. I'm very excited about the work of this panel, and I am looking forward to seeing you again on September 22 and 23. If you found the time to get over to the Air and Space Museum as you planned, I do hope that you saw the 70 millimeter film "To Fly" - it is an experience! Sincerely yours, Karen Ann Salvatore VP17536 CC: Sherman Roodzant COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 PANEL ON RESEARCH PROGRAMS TO AID THE HANDICAPPED Schedule of Activities New York, N. Y. October 18-19, 1976 - Monday, October 18, 1976 9:00 a.m. - 12:00 p.m. Tour and Presentation: New York University Institute of Rehabilitation Medicine (Dr. Howard Rusk) 400 East 34th Street New York, N. Y. 10017 212-679-3200 12:00 p.m. - 1:00 p. m. Lunch at NYU 1:30 p.m. - 3:30 p.m. Tour and Presentation: ICD Rehabilitation and Research Center (Dr. James Folsom) 340 East 24th Street New York, N. Y. 10010 212-679-0100 3:30 p.m. - (OPEN) Panel Work Session at NYU Early Evening Informal Reception at Dr. Folsom's Residence Tuesday, October 19, 1976 8:30 a.m. - 11:00 a.m. Tour and Presentation: Veterans Administration Prosthetics Center 252 7th Avenue, New York, N. Y. (Mr. Anthony Staros) 212-620-6636 11:00 a.m. - 12:30 p.m. Lunch at VAPC 1:00 p.m. - (OPEN) Panel Work Session at (OPEN) COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 MEMORANDUM September 30, 1976 To: Members of the Panel on Research Programs to Aid the Handicapped From: Sherman E. Roodzant, Committee Staff Subject: Panel Meeting In New York October 18 and 19 Enclosed is a copy of the proceedings from the first day of hearings and the testimony presented therein for your perusal. Copies of the second day of proceedings will be disseminated as soon as it is received and time allows for reproduction. Also enclosed is a schedule of activities for the panel meetings in New York, October 18-19, 1976. The length of the panel work sessions is open and, of course, is dependent on the Panel's preparation and productivity at this meeting. For your convenience, Barbara Weinblatt has reserved a block of rooms (including some with wheelchair accomodations) at the New York Hilton, Rockefeller Center, 53rd Street and 6th Avenue, (212) 586-7000, for the nights of October 17, 18, and 19 (if necessary), at the follow- ing 'special' federal rates: Singles - $36.00 Doubles - $48.00 The Veterans Administration has offered to provide surface trans- portation in the New York area for those in wheelchairs and preliminary arrangements are being made to work out this possibility. During the week (October 4-8) we will be telephoning each Panel member to arrange the necessary accomodations for these meetings and discuss the possibility of providing air travel tickets, thereby eliminating the need for reimbursement of that expense. If we can be of any further assistance, please do not hesitate to call on us at any time. COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 PANEL ON RESEARCH PROGRAMS TO AID THE HANDICAPPED Schedule of Activities New York, N. Y. October 18-19, 1976 | Monday, October 18, 1976 9:00 a.m. - 12:00 p.m. Tour and Presentation: New York University Institute of Rehabilitation Medicine (Dr. Howard Rusk) 400 East 34th Street New York, N. Y. 10017 212-679-3200 12:00 p.m. - 1:00 p. m. Lunch at NYU 1:30 p.m. - 3:30 p.m. Tour and Presentation: ICD Rehabilitation and Research Center (Dr. James Folsom) 340 East 24th Street New York, N. Y. 10010 212-679-0100 3:30 p.m. - (OPEN) Panel Work Session at NYU Tuesday, October 19, 1976 8:30 a.m. - 11:00 a.m. Tour and Presentation: Veterans Administration Prosthetics Center 252 7th Avenue, New York, N. Y. (Mr. Anthony Staros) 212-620-6636 11:00 a.m. - 12:30 p.m. Lunch at (OPEN) 1:00 p.m. - (OPEN) Panel Work Session at (OPEN) COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 undep. living PANEL ON drans RESEARCH PROGRAMS TO AID THE HANDICAPPED ascational Introduction tais There is a need for futher study of the problems of the handi- capped, to identify areas where a more concentrated and intensified research effort should be put forth in programs to aid the handicapped. Toward this end the Committee has authorized a panel to be retained as consultants for the purpose of subjecting this matter to further study and rendering a report to the Committee on their findings. Scope of Study The function of the panel will be to research and study the problems of the handicapped and render a report to the Committee of its findings and possible recommendations. This study will include, but not be limited to, the following: 1. Identifying the application of existing technology and "state of the art" in present domestic and foreign programs of research and development; and 2. Identifying problem areas presently being addressed which need amplification and should be further researched and/or developed; and 3. Identifying problem areas which heretofore have not been addressed, yet need further investigation as to possible future Federal programs of research and development; and 4. Identifying any possible existing problems in the application or transfer of technology to the problems of the handicapped, and 5. Recommendations to this Committee as to this Committee's (or other Committee's) possible action in the area of research and development which might be considered in ameliorating the problems of the handicapped. Method of Study The Panel will convene and meet in Washington, D. C. three to four times in executive and open workshop sessions during the course of this study. A comprehensive, select group of handicapped citizens, as well as expert government, medical and biomedical engineering representatives, will meet with the panel to convey their ideas and recommendations. Additionally, the panel members may conduct individual analytical research and investigative procedures necessary to individually contribute their views and recommendations in the report to the Committee. The Panel will be assisted by one member of the Committee professional staff and the necessary clerical support. Length of Study The panel will convene on or about September 1, 1976 and complete their efforts on or before December 31, 1976. It is expected that the Panel members will dedicate some 25-30 days to this effort, 8-10 days in panel and workshop sessions and the remainder in related individual effort. Workshop participants will be scheduled as witnesses so as to minimize their time (1 day) and more effectively make use of the panel members' time. Study Results The Panel will compile a record of its proceedings and findings and render to the Committee a summary and comprehensive report of its recommendations. COMMITTEE ON SCIENCE AND TECHNOLOGY (94-88) U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 PRESS RELEASE FOR IMMEDIATE RELEASE October 6, 1976 HANDICAPPED TESTIFY BEFORE CONGRESS Hearings before the Subcommittee on Science, Research and Technology were held September 22-23, 1976 on Research Programs to Aid the Handicapped. The Subcommittee, chaired by Congressman George E. Brown, Jr. (D.-Cal.) heard from a wide range of witnesses including representatives of the medical and engineering professions, government agencies involved with handicapped persons, and members of handicapped consumer-groups. Throughout the two-day hearings, the witnesses reiterated the need for involve- ment of handicapped consumers in the research and development (R&D) phases (systems and devices) of technology to benefit the disabled. This is of particular im- portance since the results of this R&D must be accepted and used by the handi- capped population if the research and development is to be of any significant value. Olin E. Teague (D.-Tex.), Chairman of the House Committee on Science and Technology, pointed out that the Committee clearly considered this need when they appointed the precedent-setting consultant panel which is presently studying research programs for the handicapped. Congressman Teague said, "Over one-half of the members on the appointed panel have severe physical disabilities, and I am confident that their input, influenced by their own personal experiences with severe disabilities, will help the panel reflect the true needs of handi- capped people." In addition to making several specific recommendations for Federally-supported research of benefit to the handicapped, several witnesses emphasized the necessity for communication among and coordination of the many Federal and private research programs on behalf of the handicapped. Mr. Andre Dessertine, Director General of INTER-ACCENT, World Veterans Federation, Paris, France, further suggested the need for international coordination and communication in this area and the importance of considering the world market for handicapped assistive devices. This is especially important when we consider that many new developments of remarkable benefit to handicapped persons never reach their intended users simply because the U. S. market for these devices is often considered too small by U. S. manufacturers. The Panel will conclude its work by year-end and a report of its findings and recommendations will be forthcoming soon after the first of the year. OLIN E. TEAGUE, TEX., CHAIRMAN JOHN L. SWIGERT, JR. KEN HECHLER, W. VA. CHARLES A. MOSHER, OHIO EXECUTIVE DIRECTOR THOMAS N. DOWNING, VA. ALPHONZO BELL, CALIF. DON FUQUA, FLA. JOHN JARMAN, OKLA. HAROLD A. GOULD JOHN W. WYDLER, N.Y. PHILIP B. YEAGER JAMES W. SYMINGTON, MO. WALTER FLOWERS, ALA. LARRY WINN, JR., KANS. FRANK R. hammill, JR. LOUIS FREY, JR., FLA. COMMITTEE ON SCIENCE AND TECHNOLOGY JAMES E. WILSON ROBERT A. ROE, N.J. MIKE MC CORMACK, WASH. BARRY M. GOLDWATER, JR., CALIF. J. THOMAS RATCHFORD GEORGE E. BROWN, JR., CALIF. MARVIN L. ESCH, MICH. U.S. HOUSE OF REPRESENTATIVES JOHN D. HOLMFELD JOHN B. CONLAN, ARIZ. RALPH N. READ DALE MILFORD, TEX. GARY A. MYERS, PA. ROBERT c. ketcham RAY THORNTON, ARK. SUITE 2321 RAYBURN HOUSE OFFICE BUILDING JAMES H. SCHEUER, N.Y. DAVID F. EMERY, MAINE ROBERT B. DILLAWAY RICHARD L. OTTINGER, N.Y. LARRY PRESSLER, S. DAK. REGINA A. DAVIS WASHINGTON, D.C. 20515 HENRY A. WAXMAN, CALIF. PHILIP H. HAYES, IND. MINORITY COUNSEL: ToM HARKIN, IOWA MICHAEL A. SUPERATA JIM LLOYD, CALIF. JEROME A. AMBRO, N.Y. CHRISTOPHER J. DODD, CONN. August 23, 1976 MICHAEL T. BLOUIN, IOWA TIM L. HALL, ILL. ROBERT KRUEGER, TEX, MARILYN LLOYD, TENN. JAMES J. blanchard, MICH. TIMOTHY E. WIRTH, COLO. Mr. Lex Frieden 9667 Meadowvale Houston, Texas 77042 Dear Mr. Frieden: Congratulations on your selection by the Committee on Science and Technology and your decision to serve the Committee and our nation as a consultant on the problems of the handicapped. I look forward to working together with you and the other members of the Panel in studying further this important area and the challenges of compiling some meaningful re- commendations to the Committee in behalf of our handicapped brothers and sisters. The initial meeting of the Panel will be held in Washington, D. C. on Wednesday and Thursday, September 1 and 2, in Room 2325 of the Rayburn House Office Building, commencing at 9:30 a.m. This meeting will be for the purpose of organizing the Panel, receiving guidance, and a preliminary discussion of individual panel member's views and interests in this area. The second meeting has been scheduled for Wednesday and Thursday, September 22 and 23, in Room 2318 of the Rayburn HOB, at 9:30 a.m. and will include the hearing of presentations from a select list (copy enclosed) of workshop participants who will add their input to the Panel's deliberations and study. Additional meetings will be necessary and the proposed schedule enclosed is only tentative. Future meetings and dates will be scheduled by all concerned at the initial meeting, September 1 and 2. A few panel members have requested additional material related to the Panel's proposed efforts, I suppose in an effort to determine the scope of the Panel's effort. Without limiting your perceptions or objectives, I have enclosed a two-page memorandum which further describes and defines the proposed efforts of the Panel. We look forward to meeting with you September 1st and the commencement of this challenging undertaking. If we can be of any assistance to you in this effort, please do not hesitate to call on me (202-225-5029) or Mrs. Barbara Weinblatt (202-225-5183) of the Committee staff. We look forward to working with you. Sincerely As Ronlant Technical Consultant Sherman E. Roodzant COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 AGENDA Panel on Research Programs to Aid the Handicapped September 1, 1976 - Welcome and Remarks from Chairman and Members of the Committee - Introduction of Panel Members and Committee Staff - Administrative Guidance and Instruction - Remarks from Committee Staff - Selection of Panel Chairman - Remarks from Panel Members - Discussion of Goals and Direction of Study LEGISLATIVE AND OVERSIGHT JURISDICTION OF THE COMMITTEE ON SCIENCE AND TECHNOLOGY "RULE X. ESTABLISHMENT AND JURISDICTION OF STANDING COMMITTEES "The Committees and Their Jurisdiction "1. There shall be in the House the following standing committees, each of which shall have the jurisdiction and related functions assigned to it by this clause and clauses 2, 3, and 4; and all bills, resolutions, and other matters relating to subjects within the jurisdic- tion of any standing committee as listed in this clause shall (in accordance with and subject to clause 5) be referred to such commit- tees, as follows: * * * "(r) Committee on Science and Technology. "(1) Astronautical research and development, including resources, personnel, equipment, and facilities. "(2) Bureau of Standards, standardization of weights and measures and the metric system. "(3) National Aeronautics and Space Administration. "(4) National Aeronautics and Space Council. "(5) National Science Foundation. "(6) Outer space, including exploration and control thereof. "(7) Science scholarships. "(8) Scientific research and development. "(9) Civil aviation research and development. "(10) Environmental research and development. "(11) All energy research and development except nuclear research and development. "(12) National Weather Service. "In addition to its legislative jurisdiction under the preceding provisions of this paragraph (and its general oversight function under clause 2(b)(1)), the committee shall have the special oversight functions provided for in clause 3(f) with respect to all non- military research and development. * "SPECIAL OVERSIGHT FUNCTIONS "3. (f) The Committee on Science and Technology shall have the function of reviewing and studying, on a continuing basis, all laws, programs, and Government activities dealing with or involving nonmilitary research and development." U.S. house of Representatives COMMITTEE ON SCIENCE AND TECHNOLOGY RAYBURN HOUSE OFFICE BUILDING TELEPHONE ROOM STAFF OFFICES 225-6371 2321 COMMITTEE STAFF ENERGY 225-9117 B374 PUBLICATIONS OFFICE 225-6275 B374A MINORITY STAFF 225-8772 2321 JOHN L. SWIGERT, Jr., Executive Director HEARINGS 2318 2325 HAROLD A. GOULD, Deputy Director REGINA A. DAVIS, Chief Clerk PHILIP B. YEAGER, Counsel NINETY-FOURTH CONGRESS 2D SESSION FRANK R. HAMMILL, Jr., Counsel JAMES E. WILSON, Technical Consultant J. THOMAS RATCHFORD, Science Consultant Olin E. Teague, Tex., Chairman JOHN D. HOLMFELD, Science Consultant Ken Hechler, W. Va. Charles A. Mosher, Ohio RALPH N. READ, Technical Consultant Thomas N. Downing, Va. Alphonzo Bell, Calif. Don Fuqua, Fla. John Jarman, Okla. ROBERT C. KETCHAM, Counsel James W. Symington, Mo. John W. Wydler, N.Y. R. B. DILLAWAY, Science Consultant Walter Flowers, Ala. Larry Winn, Jr., Kans. Robert A. Roe, N.J. Louis Frey, Jr., Fla. MICHAEL A. SUPERATA, Minority Counsel Mike McCormack, Wash. Barry M. Goldwater, Jr., Calif. George E. Brown, Jr., Calif. Marvin L. Esch, Mich. Dale Milford, Tex. John B. Conlan, Ariz. Ray Thornton, Ark. Gary A. Myers, Pa. James H. Scheuer, N.Y. David F. Emery, Maine Richard L. Ottinger, N.Y. Larry Pressler, S. Dak. Henry A. Waxman, Calif. Philip H. Hayes, Ind. Tom Harkin, lowa GPO 68-730-h Jim Lloyd, Calif. Jerome A. Ambro, N.Y. Christopher J. Dodd, Conn. Michael T. Blouin, lowa Tim L. Hall, III. Robert (Bob) Krueger, Tex. Marilyn Lloyd, Tenn. James J. Blanchard, Mich. Timothy E. Wirth, Colo. SUBCOMMITTEE ON ENERGY RESEARCH, DEVELOPMENT AND SUBCOMMITTEE ON ENERGY RESEARCH, DEVELOPMENT DEMONSTRATION (FOSSIL FUELS) AND DEMONSTRATION Mr. HECHLER, Chairman Mr. MCCORMACK, Chairman Mr. DOWNING Mr. BELL Mr. HECHLER Mr. GOLDWATER Mr. FLOWERS Mr. MYERS Mr. FUQUA Mr. BELL Mr. McCORMACK Mr. EMERY Mr. SYMINGTON Mr. WYDLER Mr. THORNTON Mr. PRESSLER Mr. BROWN Mr. WINN Mr. WAXMAN Mr. THORNTON Mr. FREY Mr. HAYES Mr. OTTINGER Mr. BLOUIN Mr. ESCH Mr. KRUEGER Mr. WAXMAN Mr. CONLAN Mrs. LLOYD Mr. HAYES Mr. WIRTH Mr. HARKIN Mr. AMBRO SUBCOMMITTEE ON SPACE SCIENCE AND APPLICATIONS Mr. DODD Mr. FUQUA, Chairman Mr. KRUEGER Mr. DOWNING Mr. WINN Mrs. LLOYD Mr. SYMINGTON Mr. WYDLER Mr. FREY Mr. BLANCHARD Mr. FLOWERS Mr. ROE Mr. EMERY Mr. WIRTH Mr. LLOYD Mr. HALL SUBCOMMITTEE ON THE ENVIRONMENT AND THE ATMOSPHERE Mr. WAXMAN Mr. BROWN, Chairman Mr. BLOUIN Mr. McCORMACK Mr. ESCH SUBCOMMITTEE ON SCIENCE, RESEARCH AND TECHNOLOGY Mr. MILFORD Mr. WINN Mr. OTTINGER Mr. MYERS Mr. SYMINGTON, Chairman Mr. FUQUA Mr. MOSHER Mr. HAYES Mr. EMERY Mr. FLOWERS Mr. ESCH Mr. AMBRO Mr. MCCORMACK Mr. PRESSLER Mr. BLANCHARD Mr. BROWN Mr. SCHEUER Mr. SCHEUER Mr. HARKIN Mr. LLOYD SUBCOMMITTEE ON AVIATION AND TRANSPORTATION R. & D. Mr. DODD Mr. MILFORD, Chairman Mr. HALL Mr. ROE Mr. WYDLER Mr. KRUEGER Mr. SCHEUER Mr. GOLDWATER Mrs. LLOYD Mr. HARKIN Mr. CONLAN Mr. WIRTH Mr. LLOYD SUBCOMMITTEE ON DOMESTIC AND INTERNATIONAL SCIENTIFIC Mr. HALL PLANNING AND ANALYSIS Mr. OTTINGER Mr. THORNTON, Chairman NOTE.-The Chairman and the Ranking Minority Member shall serve as Mr. ROE Mr. CONLAN ex officio members of all subcommittees and shall have the right to vote on Mr. MILFORD Mr. JARMAN Mr. SCHEUER Mr. MYERS all matters before the subcommittees, subject to the provisions of Clause B15 Mr. WAXMAN of the Committee Rules Governing Procedure. Mr. AMBRO Mr. BLANCHARD COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 9/1/76 PANEL ON RESEARCH PROGAMS TO AID THE HANDICAPPED Preliminary Organization and Group Assignments Executive, Planning, Agenda Dr. William A. Spencer, Chairman Mr. Robert E. Fulton, Jr. Mr. Sol Kaminsky Status of Existing Studies and Compilation of Relevant Information Dr. Dudley S. Childress Mr. Wilfred G. Holsberg Scientific Advocacy and Liaison Mr. James E. Seybold Mr. Richard R. Leclair Dr. Dudley S. Childress Consumer Advocacy and Liaison Mr. Lex Frieden Ms. Karen Ann Salvatore Mr. Sol Kaminsky Report Compilation Mr. Richard Leclair Ms. Karen Ann Salvatore Mr. James E. Seybold COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 PANEL ON RESEARCH PROGRAMS TO AID THE HANDICAPPED Proposed Schedule I 2 day panel session to organize the study, receive guidance and hear individual panel member's views September 1 & 2 II 4 days of individual research September 3 - - 21 III 2 day workshop to receive views of workshop participants September 22 & 23 IV 10 days of individual research and contacts with various organizations and agencies September 24 - October 19 V 2 day panel session - receive reports on preliminary findings of individual panel members and organize report October 20 & 21 VI 4 days of individual research and drafting of final report October 22 - November 16 VII 3 day panel meeting to consolidate report November 17 - 18 OLIN E. TEAGUE, TEX., CHAIRMAN JOHN L. SWIGERT, JR. KEN HECHLER, W. VA. CHARLES A. MOSHER, OHIO EXECUTIVE DIRECTOR THOMAS N. DOWNING, VA. ALPHONZO BELL, CALIF. DON FUQUA, FLA. JOHN JARMAN, OKLA. HAROLD A. GOULD JAMES W. SYMINGTON, MO. JOHN W. WYDLER, N.Y. PHILIP B. YEAGER WALTER FLOWERS, ALA. LARRY WINN, JR., KANS. FRANK R. hammill, JR. LOUIS FREY, JR., FLA. COMMITTEE ON SCIENCE AND TECHNOLOGY ROBERT A. ROE, N.J. JAMES E. WILSON MIKE MC CORMACK, WASH. BARRY M. GOLDWATER, JR., CALIF. J. THOMAS RATCHFORD GEORGE E. BROWN, JR., CALIF. MARVIN L. ESCH, MICH. U.S. HOUSE OF REPRESENTATIVES JOHN D. HOLMFELD DALE MILFORD, TEX. JOHN B. CONLAN, ARIZ. RALPH N. READ RAY THORNTON, ARK. GARY A. MYERS, PA. ROBERT C. ketcham SUITE 2321 RAYBURN HOUSE OFFICE BUILDING JAMES H. SCHEUER, N.Y. DAVID F. EMERY, MAINE ROBERT B. DILLAWAY RICHARD L. OTTINGER, N.Y. LARRY PRESSLER, S. DAK. REGINA A. DAVIS WASHINGTON, D.C. 20515 HENRY A. WAXMAN, CALIF. PHILIP H. HAYES, IND. MINORITY COUNSEL: ToM HARKIN, IOWA MICHAEL A. SUPERATA JIM LLOYD, CALIF. JEROME A. AMBRO, N.Y. CHRISTOPHER J. DODD, CONN. August 12, 1976 MICHAEL T. blouin, IOWA TIM L. HALL, ILL. ROBERT KRUEGER, TEX, MARILYN LLOYD, TENN. JAMES J. blanchard, MICH. TIMOTHY E. WIRTH, COLO. Mr. Lex Frieden 9667 Meadowvale Houston, Texas 77042 Dear Mr. Frieden: Thank you for accepting the appointment to serve with the Committee's Panel on Research Programs to Aid the Handicapped. Your contribution to the success of this program is greatly appreciated by me and my colleagues in the Congress. In the interest of expediting the usual administrative procedures necessary to convene a panel of expert consultants, and anticipating your formal acceptance to serve as a member of the Panel, I am enclosing a Contract Agreement for your approval. This Agreement, when properly en- dorsed and executed, will serve as the authorization to reimburse you for expenses and compensation for your efforts as a panel member. Please endorse the five (5) copies of the Contract Agreement form at the line designated "Contractor", and sign and date pages 2 and 3 attached to the Contract Agreement form and return in the enclosed, preaddressed envelope at your early convenience in order that we might receive them by Monday, August 22, 1976 and convene the Panel on September 1st, as scheduled. An extra copy is enclosed for your records and a completed copy will be provided for you on or before the first panel session. If you have any questions regarding this contract or the Panel, please do not hesitate to contact Mr. Sherman Roodzant of the Committee staff at (202) 225-5029 or 225-6371. Thank you again for your participation in this very important program. Sincerely, Olin E. Jeague OLIN E. TEAGUE Chairman Enclosures CONTRACT AGREEMENT "THIS AGREEMENT is made and entered into this 12 day of August $ 19.76 by :and between the Committee on Science and Technology of the U.S. House of Representatives, hereinafter referred to as the Committee, and Lex Frieden; 9667 Meadowvale; Houston, Texas 77042 (Name of contractor) hereinafter referred to as the Contractor, subject to the approval of this Agreement by the Committee on House Administration of the U.S. House of Representatives. It is hereby agreed that the Committee under authority of House Resolution 1038 approved March 29 , 1976, 94th , Congress, retain the Contractor to render the follow- ing services: As set forth in pages 2 and 3 attached hereto, which are incorporated and made a part hereof. It is understood, however, that the Chairman of the Committee, reserves the right to terminate this Agree- ment at any time. In such cases, the payment shall be based upon work performed. The Committee further agrees to pay the said Contractor for all such contractual services rendered, a sum not to exceed $3,000 plus, authorized traveling expenses. It is further agreed that payment for such contractual services may be paid on a partial basis from time to time and in such amounts as the Chairman of the Committee may approve. The Contractor further agrees and warrants that it: 1. Has not employed any person to solicit or obtain this Agreement for any commission, per- centage, brokerage, or contingent fee; 2. Will save the Government harmless from liability in performance; 3. Will release no information obtained in carrying out the provisions of the Contract without prior consent of the contracting Committee; 4. Will not subcontract or assign elsewhere any of the work or service involved without prior consent of the contracting Committee; and 5. Will not discriminate in its performance of this Agreement because of race, creed, color, sex, or national origin and shall comply with all laws appertaining to the compensation for labor. The Contractor further agrees and warrants that it will fully complete its services to the Committee hereunder not later than the 31st day of December , 19.76 , unless said date shall be extended by mutual agreement of the parties to this Agreement with the approval of the said Committee on House Administration. No Member or Delegate to Congress, or Resident Commissioner, shall be admitted to any share or part in this Contract or to any benefit that may arise therefrom. Approved by the Committee on House Adminis- Committee on Science and Technology tration of the U.S. House of Representatives: Chairman Ranking Minority Member Contractor (Individual or Partnership) Dated: (Address) (Address) Contractor (Corporation) [CORPORATERS] (Business Address) By: (Title) (To be submitted in quintuplicate to the Committee on House Administration) (See instructions on the reverse side.) Contract Agreement Olin E. Teague, Chairman Page 2 Charles E. Mosher, Ranking Minority Member Contractor - Lex Frieden PANEL ON RESEARCH PROGRAMS TO AID THE HANDICAPPED I Purpose There is a need for further study of the problems of the handi- capped, to identify areas where a more concentrated and intensified research effort should be put forth in programs to aid the handicapped. Toward this end the Committee has authorized a panel to be retained as consultants, heretoafter referred to as the "Panel" or "panel member (s) for the purpose of subjecting this matter to further study and rendering a report to the Committee on their findings. II Scope of Study The function of the Panel will be to research and study the problems of the handicapped and render a report to the Committee of its findings and possible recommendations. This study will include, but not be limited to, the following: A. Identifying the application of existing technology and "state of the art" in present and foreign programs of research and develop- ment; and B. Identifying problems areas presently being addressed which need amplification and should be further researched and/or developed; and C. Identifying problem areas which heretofore have not been addressed, yet need further investigation as to possible future Federal programs of research and development; and D. Identifying any possible existing problems in the application or transfer of technology to the problems of the handicapped, and E. Recommendations to this Committee as to this Committee's (or other Committee's) possible action in the area of research and development which might be considered in ameliorating the problems of the handicapped. Contract Agreement Olin E. Teague, Chairman Page 3 Charles E. Mosher, Ranking Minority Member Contractor - Lex Frieden III Method of Study The Panel will convene and meet in Washington, D. C. three to four times in executive and open workshop sessions, during the course of this study. A comprehensive, select group of handicapped citizens, as well as expert government, medical and biomedical engineering representatives, will meet with the Panel to convey their ideas and recommendations. Additionally, the panel members may conduct individual analytical research and investigative procedures necessary to individually contribute their views and recommendations in the final report to the Committee. The Panel will be assisted by one member of the Committee professional staff and the necessary clerical support. IV Length of Study The Panel will convene on or about September 1, 1976 and complete their efforts on or before December 31, 1976. It is expected that the panel members will dedicate some 25-30 days to this effort, 8-10 days in panel and workshop sessions and the remainder in related individual research effort. V Study Results In addition to the individual reports prepared by the panel members, the Panel will compile a record of its proceedings and findings and render to the Committee a summary and comprehensive report of its recommendations. 9667 Meadowvale Houston, Texas 77063 August 12, 1976 Honorable Olin E. Teague U. S. House of Representatives Suite 2321 Rayburn House Office Building Washington, D. C. 20515 Dear Congressman Teague: Thank you for inviting me to join your panel on Research Programs to And the Handicapped. I appreciate the oppor- tunity to contribute, and I look forward to working with Bush Library Photocopy Preservation you and the committee on Science and Technology. I will plan to be in Washington to meet on September 1st and 2nd. I am anxious to receive more background informa- tion so that I can begin researching relevant issues. Sincerely, Lex Frieden LF/asm 9667 Meadowvale Houston, Texas 77063 August 12, 1976 Honorable Olin E. Teague U. S. House of Representatives Suite 2321 Rayburn House Office Bldg. Washington, D. C. 20515 Dear Congressman Teague: Thank you for inviting me to join your panel on Research Pro- grams to Aid the Handicapped. I appreciate the opportunity to contribute, and I look forward to working with you and the committee on Science and Technology. I will plan to be in Washington to meet on September 1st and 2nd. I am anxious to receive more background information S O that I can begin researching relevant issues. OLIN E. TEAGUE, TEX., CHAIRMAN JOHN L. SWIGERT, JR. KEN HECHLER, W. VA. CHARLES A. MOSHER, OHIO EXECUTIVE DIRECTOR . THOMAS'N. DOWNING, VA. ALPHONZO BELL, CALIF. DON FUQUA, FLA. JOHN JARMAN, OKLA. HAROLD A. GOULD JAMES W. SYMINGTON, MO. JOHN W. WYDLER, N.Y. PHILIP B, YEAGER WALTER FLOWERS, ALA. LARRY WINN, JR., KANS. ROBERT A. ROE, N.J. LOUIS FREY, JR., FLA. COMMITTEE ON SCIENCE AND TECHNOLOGY FRANK R. HAMMILL, JR. JAMES E. WILSON MIKE MC CORMACK, WASH. BARRY M. GOLDWATER, JR., CALIF. J. THOMAS RATCHFORD GEORGE E. BROWN, JR., CALIF. MARVIN L. ESCH, MICH, U.S. HOUSE OF REPRESENTATIVES JOHN D. HOLMFELD DALE MILFORD, TEX. JOHN B. CONLAN, ARIZ. RALPH N. READ RAY THORNTON, ARK. GARY A. MYERS, PA. JAMES H. SCHEUER, N.Y. SUITE 2321 RAYBURN HOUSE OFFICE BUILDING ROBERT C. KETCHAM DAVID F. EMERY, MAINE ROBERT B. DILLAWAY RICHARD L. OTTINGER, N.Y. LARRY PRESSLER, S. DAK. HENRY A. WAXMAN, CALIF. WASHINGTON, D.C. 20515 REGINA A. DAVIS PHILIP H. HAYES, IND. MINORITY COUNSEL: TOM HARKIN, IOWA MICHAEL A. SUPERATA JIM LLOYD, CALIF. JEROME A. AMBRO, N.Y. CHRISTOPHER J. DODD, CONN. August 6, 1976 MICHAEL T. BLOUIN, IOWA TIM L. HALL, ILL. ROBERT KRUEGER, TEX. MARILYN LLOYD, TENN. JAMES J. BLANCHARD, MICH. TIMOTHY E. WIRTH, COLO. Mr. Lex Frieden 9667 Meadowvale Houston, Texas 77042 Dear Mr. Frieden: I am grateful for your interest in the Committee's Panel on Research Programs to Aid the Handicapped; and, in my capacity as Chairman of the Committee on Science and Technology, I would like to ask you to serve as a member of the consultant panel group which I am appointing to advise the Committee. The function of the panel will be to conduct a study of the problems of the handicapped and how research on the application of our present scientific and technological achievements might be applied in research programs to ameliorate or resolve the problems of the handicapped. The need for this study became evident this past year when my colleagues and I were privileged to observe several new developments of remarkable benefit to the handicapped, such as the voice-controlled wheelchair for quadraplegics and the rechargeable cardiac pacemaker for heart attack victims, the outgrowth or spinoff of our National Aeronautics and Space Administration program. Considering the great number of handicapped people in this nation and around the world and the enormity of the problems they face in the usual functions of daily living, it became obvious to us that a legislative look at the problems and their potential resolution was most timely. As a result of these concerns, the Committee on Science and Technology has authorized a consultant panel to study further this important area. I expect that the panel will meet in Washington on three or four occasions to conduct its business. Subject to the wishes of the Chairman and the members of the panel group, I would expect the panel to receive briefings by representatives of various professional, government, and consumer groups interested in this endeavor and to review the documents and publications relevant to the subject. Since the panel is directed to submit its report by December 15, 1976, I am suggesting, again subject to the wishes of the members, and the Chairman of the panel that the meeting be held in Washington on Wednesday and Thursday, September 1 and 2. page 2 As a member of the panel you will be eligible for a consultant fee of $100 per day and your travel expenses will be reimbursed to you. Mr. Sherman Roodzant, a member of the Committee professional staff, will assist you and the panel in its efforts, on a full-time basis. I believe the work of the panel will make an important contribution in brightening the future of hundreds of thousands of our handicapped fellow Americans and neighbors around the world; and I hope you will be able to accept this invitation. Sincerely, Oli OLIN E. TEAGUE E. Teague Chairman RUSSELL B. LONG, LA., CHAIRMAN HERMAN E. talmadge, GA. CARL T. CURTIS, NEBR. VANCE HARTKE, IND. PAUL J. FANNIN, ARIZ. ABRAHAM RIBICOFF, CONN. CLIFFORD P. HANSEN, WYO. HARRY F. BYRD, JR., VA. ROBERT J. DOLE, KANS. GAYLORD NELSON, WIS. BOB PACKWOOD, OREG. WALTER F. MONDALE, MINN. WILLIAM V. ROTH, JR., DEL. United States Senate MIKE GRAVEL, alaska BILL BROCK, TENN. LLOYD BENTSEN, TEX. WILLIAM D. HATHAWAY, MAINE COMMITTEE ON FINANCE FLOYD K. HASKELL, COLO. WASHINGTON, D.C. 20510 MICHAEL STERN, STAFF DIRECTOR DONALD v. MOOREHEAD, CHIEF MINORITY COUNSEL July 15, 1976 Mr. Lex Frieden 9667 Meadowvale Houston, Texas 77063 Dear Mr. Frieden: I thought you would be interest in the letter I received from Chairman Teague, of the House Committee on Science and Technology concerning my letter recommending you for a position on the panel on Programs to Aid the Handicapped. I am certainly pulling for you. Best Wishes, Lloyd Bentsen OLIN E. TEAGUE, TEX., CHAIRMAN JOHN L. SWIGERT, JR. KEN HECHLER, W. VA. CHARLES A. MOSHER, OHIO EXECUTIVE DIRECTOR THOMAS N. DOWNING, VA. ALPHONZO BELL, CALIF. DON FUQUA, FLA. JOHN JARMAN, OKLA. HAROLD A. GOULD JAMES W. SYMINGTON, MO. JOHN W. WYDLER, N.Y. PHILIP B. YEAGER WALTER FLOWERS, ALA. LARRY WINN, JR., KANS. COMMITTEE ON SCIENCE AND TECHNOLOGY FRANK R. hammill, JR. ROBERT A. ROE, N.J. LOUIS FREY, JR., FLA. JAMES E. WILSON MIKE MC CORMACK, WASH. BARRY M. GOLDWATER, JR., CALIF. J. THOMAS RATCHFORD GEORGE E. BROWN, JR., CALIF. MARVIN L. ESCH, MICH. U.S. HOUSE OF REPRESENTATIVES JOHN D. HOLMFELD DALE MILFORD, TEX. OHN B. CONLAN, ARIZ. RALPH N. READ RAY THORNTON, ARK. GARY A. MYERS, PA. SUITE 2321 RAYBURN HOUSE OFFICE BUILDING ROBERT C. KETCHAM JAMES H. SCHEVER, N.Y. DAVID F. EMERY, MAINE ROBERT B. DILLAWAY RICHARD L. OTTINGER, N.Y. LARRY PRESSLER, S. DAK. WASHINGTON, D.C. 20515 REGINA A. DAVIS HENRY A. WAXMAN. CALIF. PHILIP H. HAYES, IND. MINORITY COUNSEL: TOM HARKIN, IOWA MICHAEL A. SUPERATA JIM LLOYD, CALIF. JEROME A. AMERO, N.Y. CHRISTOPHER J. DODD, CONN. MICHAEL T. BLOUIN. IOWA July 2, 1976 TIM L. HALL, ILL. ROBERT KRUEGER, TEX. MARILYN LLOYD, TENN. JAMES J. BLANCHARD, MICH. TIMOTHY E. WIRTH, COLO. Honorable Lloyd Bentsen United States Senate Room 240 Russell S. O. B. Washington, D. C. 20510 Dear Lloyd: Thank you for your recommendation of Lex Frieden to serve with our panel on Programs to Aid the Handicapped. Mr. Frieden must be an outstanding young man, as your letter, the number of distinguished people who have recommended him, and his resume indicate. Presently, Mr. Frieden is high on the list of Committee staff recommendations and the panel will be selected by the Committee in the next few weeks. Thank you for your interest in Mr. Frieden and our panel on Programs to Aid the Handicapped. Your support is always most welcome. Type OLIN E. TEAGUE Sincerely Chairman 9667 Meadowvale Houston, Texas 77063 June 16, 1976 Senator Lloyd Bentson 240 Russell Senate Office Building Washington, D.C. 20510 Dear Seaator Bentson, The House Committee on Science and Technology is planning to appoint a panel of experts and consumers to study the needs and problems of handicapped persons. I would like to be appointed to this panel, and since you are familiar with my interest and activity in this area, I would appreciate it very much if you would recommend me to the commi- ttee. I am enclosing a copy of my detter to Chairman Teague for your reference, as well as a copy of my resume. Thank you for your assistance in this matter. Bush Library Photocopy Preservation Sincerely, Lex Frieden LF/asm 9667 Meadowvale Houston, Texas 77063 June 16, 1976 Seaator Harrison Williams 240 Russell Senate Office Building Washington, D.C. 20510 Dear Senator Williams: The House Committee on Science and Technology is planning to appoint a panel of experts and consumers to study the needs and problems of handicapped persons. I would like to be appointed to this panel, and since you are familiar with my interest and activity in this area, I would appreciate it very much if you would recommend me to the commi- ttee. I am enclosing a copy of my letter to Chairman Teague for your reference, as well as a copy of my resume. Bush Library Photocopy Preservation Thank you for your assistance in this matter. Sincerely, Lex Frieden Jaden LF/asm 9667 Meadowvale Houston, Texas 77063 June 16, 1976 Congressman Albert H. Quie, Room 2182, Rayburn Building Washington, D.C. 20515 Dear Congressman Quie, The House Committee on Science and Technology is planning to appoint a panel of experts and consumers to study the needs and problems of handicapped persons. I would like to be appointed to this panel, and since you are familiar with my interest and activity in this area, I would appreciate it very much if you would recommend me to the commi- ttee. I am enclosing a copy of my letter to Chairman Teague for your reference, as well as a copy of my resume. Thank you for your assistance in this matter. Bush Library Photocopy Preservation Sincerely, Lex Frieden LF/asm American Coalition of Room 308, 1346 Connecticut Avenue, N.W. . (202) 785-4265 Citizens with Washington, D.C. 20036 7 Disabilities Inc. June 18, 1976 Honorable George E. Brown, Jr, Committee on Science and Technology U. S. House of Representatives Suite 2321 Rayburn House Office Building Washington, D. C. 20515 Dear Mr. Brown: I am delighted to learn of the Committee on Science and Tech- nology and of their interest and concern regarding the problems of the handicapped. We are pleased to know that you are set- ting up a panel that will address itself to these problems and to developing a national program of needed research. Such a study and plan is long overdue. Disabled people of this country are of the opinion that research in the past has been done mainly to meet the interests of researchers, and not to meet the needs of the handicapped themselves. As an organization representing millions of disabled persons who are consumers of the products that result from the research, the American Coalition of Citizens with Disabilities believes that the panel which you are constructing should have on it at least a majority of consumers. These consumers, along with the pro- viders and the research scientists, would undoubtedly be able to develop a sound plan with priorities that could meet the needs of people with differing disabilities. At this time, we are recommending the appointment of Mr. Lex Frieden to represent the American Coalition of Citizens with Disabilities on this panel Mr Frieden is a= quadraplegic who is currently employed at the Texas Rehabilitation and Research Institute and working on a doctorate in social psychology. He has been most active in the consumer movement, functioning as secretary of ACCD in its first year of existence. He has a wide knowledge of the problems confronting people with different disabilities, and not only those who are quadraplegic. He has demonstrated a keen interest in the area of research that is scientifically based and pragmatically developed for all people with disabilities. I know he would be an asset to the panel and to the Committee's work. Mr. Frieden can be reached at -2- 9667 Meadowvale, Houston, Texas 77042. His business phone is 713-797-1440. His home phone is 713-781-8949. Under separate cover, we will forward a copy of Mr. Frieden's resume for your consideration. The Board and members of the American Coalition of Citizens with Disabilities and I look forward to your appointment of Mr. Frieden and to the results of the study and to working with you in the future. Should you be interested in receiving names of other qualified consumers, please do contact me at my New York office, Mayor's Office for the Handicapped, 250 Broadway, Room 1414A, New York, N. Y. 10007. Telephone: 212-566-0972. Sincerely, Eunie Firsto Eunice Fiorito President American Coalition of Citizens with Disabilities EF/ls CC: Sherman Roodzant Lex Frieden Lex Frieden 9667 Meadowvale Houston, Texas June 14, 1976 Honorable Olin Teague Chairman, House Committee on Science and Technology Room 2311 Rayburn House Office Building Washington, D.C. 20515 Dear Congressman Teague, I understand the House Committee on Science and Technology will soon appoint a panel of individuals to study the problems and needs of handicapped persons. I believe this is a necessary step toward effectively utilizing available tech- nology and further directing scientific and technological developments to fully benefit Mandicapped persons. I would appreciate your consideration of me as a participant on this panel. I have been confined to a wheelchair since 1967 when my neck was broken in an automobile accident. At that time, I was a Freshman engineering student at Oklahoma State University. Since then, I have earned a Bachelors degree in Psychology from Tulsa University, and I am now finishing my Ph.D. in Social Psychology and Rehabilitation at the University of Houston. For the past year Bush Library Photocopy Preservation I have been a Consumer Consultant to the Rehabilitation Engineering Center at the Texas Institute for Rehabilitation and Research and the Bioengineering Program at Texas A & M University. I am presently Director of Research for the New Options Transitional Program at Texas Institute for Rehabilitation and Research. I believe my academic and personal experience qualify me to serve on your panel. Additionally, I have served as a representative of the handicapped community in a variety of capacities. I am past Secretary of the American Coalition of Citi- zens with Disabilities, and I am presently Chairman of that organizatioas' Governmental Relations Committee. I am also the Southwest Regional Representative on the National Rehabilitation Associations Council of Consumer Members. I am on the Board of Directors of the Houston Coalition for Barrier Free Living and Quality Living, Inc., both local groups of handicapped individuals. Page 2 I have enclosed my resume for your review and I would be glad to provide you with any other information about me or my qualifications which you desire. I look forward to hearing from you and I thank you for your concern about the needs of handicapped individuals. Sincerely, Lex Frieden LF/asm Bush Library Photocopy Preservation Lex Frieden 9667 Meadowvale Houston, Texas June 14, 1976 Honorable Olin Teague Chairman, House Committee on Science and Technology Room 2311 Rayburn House Office Building Washington, D.C. 20515 Dear Congressman Teague, I understand the House Committee on Science and Technology will soon appoint a panel of individuals to study the problems and needs of handicapped persons. I believe this is a necessary step toward effectively utilizing available tech- nology and further directing scientific and technological developments to fully benefit handicapped persons. I would appreciate your consideration of me as a participant on this panel. I have been confined to a wheelchair since 1967 when my neck was broken in an automobile accident. At that time, I was a Freshman engineering student at Oklahoma State University. Since then, I have earned a Bachelors degree in Psychology from Tulsa University, and I am now finishing my Ph. D. in Social Psychology and Rehabilitation at the University of Houston. For the past year I have been a Consumer Consultant to the Rehabilitation Engineering Center at the Texas Institute for Rehabilitation and Research and the Bioengineering Program at Texas A & M University. I am presently Director of Research for the New Options Transitional Program at Texas Institute for Rehabilitation and Research. I believe my academic and personal experience qualify me to serve on your panel. Additionally, I have served as a representative of the handicapped community in a variety of capacities. I am past Secretary of the American Coalition of Citi- zens with Disabilities, and I am presently Chairman of that organizations' Governmental Relations Committee. I am also the Southwest Regional Representative on the National Rehabilitation Associations Council of Consumer Members. I am on the Board of Directors of the Houston Coalition for Barrier Free Living and Quality Living, Inc., both local groups of handicapped individuals. Page 2 I have enclosed my resume for your review and I would be glad to provide you with any other information about me or my qualifications which you desire. I look forward to hearing from you and I thank you for your concern about the needs of handicapped individuals. Sincerely, Lex Frieden LF/asm Lex Frieden 9667 Meadowvale Houston, Texas June 14, 1976 Honorable Olin Teague Chairman, House Committee on Science and Technology Room 2311 Rayburn House Office Building Washington, D.C. 20515 Dear Congressman Teague, I understand the House Committee on Science and Technology will soon appoint a panel of individuals to study the problems and needs of handicapped persons. I believe this is a necessary step toward effectively utilizing available tech- nology and further directing scientific and technological developments to fully benefit handicapped persons. I would appreciate your consideration of me as a participant on this panel. I have been confined to a wheelchair since 1967 when my neck was broken in an automobile accident. At that time, I was a Freshman engineering student at Oklahoma State University. Since then, I have earned a Bachelors degree in Psychology from Tulsa University, and I am now finishing my Ph.D. in Social Psychology and Rehabilitation at the University of Houston. For the past year I have been a Consumer Consultant to the Rehabilitation Engineering Center at the Texas Institute for Rehabilitation and Research and the Bioengineering Program at Texas A & M University. I am presently Director of Research for the New Options Transitional Program at Texas Institute for Rehabilitation and Research. I believe my academic and personal experience qualify me to serve on your panel. Additionally, I have served as a representative of the handicapped community in a variety of capacities. I am past Secretary of the American Coalition of Citi- zens with Disabilities, and I am presently Chairman of that organizations' Governmental Relations Committee. I am also the Southwest Regional Representative on the National Rehabilitation Associations Council of Consumer Members. I am on the Board of Directors of the Houston Coalition for Barrier Free Living and Quality Living, Inc., both local groups of handicapped individuals. Page 2 I have enclosed my resume for your review and I would be glad to provide you with any other information about me or my qualifications which you desire. I look forward to hearing from you and I thank you for your concern about the needs of handicapped individuals. Sincerely, Lex Frieden LF/asm Lex Frieden 9667 Meadowvale Houston, Texas June 14, 1976 Honorable Olin Teague Chairman, House Committee on Science and Technology Room 2311 Rayburn House Office Building Washington, D.C. 20515 Dear Congressman Teague, I understand the House Committee on Science and Technology will soon appoint a panel of individuals to study the problems and needs of handicapped persons. I believe this is a necessary step toward effectively utilizing available tech- nology and further directing scientific and technological developments to fully benefit handicapped persons. I would appreciate your consideration of me as a participant on this panel. I have been confined to a wheelchair since 1967 when my neck was broken in an automobile accident. At that time, I was a Freshman engineering student at Oklahoma State University. Since then, I have earned a Bachelors degree in Psychology from Tulsa University, and I am now finishing my Ph.D. in Social Psychology and Rehabilitation at the University of Houston. For the past year I have been a Consumer Consultant to the Rehabilitation Engineering Center at the Texas Institute for Rehabilitation and Research and the Bioengineering Program at Texas A & M University. I am presently Director of Research for the New Options Transitional Program at Texas Institute for Rehabilitation and Research. I believe my academic and personal experience qualify me to serve on your panel. Additionally, I have served as a representative of the handicapped community in a variety of capacities. I am past Secretary of the American Coalition of Citi- zens with Disabilities, and I am presently Chairman of that organizations' Governmental Relations Committee. I am also the Southwest Regional Representative on the National Rehabilitation Associations Council of Consumer Members. I am on the Board of Directors of the Houston Coalition for Barrier Free Living and Quality Living, Inc., both local groups of handicapped individuals. June 7, 1976 TO: Lex friedan FROM: Lisa Walker Sherman Roodzant has been hired by the House Science and Technology Committee to look into problems of technology and handicapped persons. (phone - 202-225-8126; address - Suite 2321 RHOB) I spoke to him the other day about technology and urban mass transit. He is interested in looking into the issue of whether the limitation is technology as the opponents and the industry claim or whether that issue can be laid aside. Dennis Cannon has spoken to him already. He will also be looking at other issues. I will be talking to him further but you may want to contact him directly. The attached copy of a letter to RIVSA also will show you what the Committee's plans are in case you know people who have not been contacted. OLIN E. TEAGUE, TEX., CHAIRMAN JOHN L. SWIGERT, JR. KEN HECHLER, W. VA. CHARLES A. MOSHER, OHIO EXECUTIVE DIRECTOR THOMAS N. DOWNING, VA. ALPHONZO BELL. CALIF. JOHN JARMAN, OKLA. HAROLDY COULD DON FUQUA, FLA. JAMES W. SYMINGTON, MO. JOHN W. WYDLER, N.Y. PHILIP B. VAGER WALTER FLOWERS, ALA. LARRY WINN, JR., KANS. FRANK R. HAMMILL JR. COMMITTEE ON SCIENCE AND TECHNOLOGY LOUIS FREY, JR., FLA. JAMES E. WILSON/ ROBERT A. ROE, N.J. SENATOR BARRY M. GOLDWATER, JR., CALIF. J. THOMAS RATCHFORO MIKE MC CORMACK, WASH. GEORGE E. BROWN, JR., CALIF. MARVIN L. ESCH, MICH. U.S. HOUSE OF REPRESENTATIVES JOHN D. HOLMFELD JOHN B. CONLAN, ARIZ. RALPH N. READ DALE MILFORD, TEX. RAY THORNTON, ARK. GARY A. MYERS, PA. ROBERT C. KETCHAM SUITE 2321 RAYBURN HOUSE OFFICE BUILDING DAVID F. EMERY, MAINE ROBERT B. DILLAWAY JAMES H. SCHEVER, N.Y. PM LARRY PRESSLER, S. DAK. REGINA A. DAVIS RICHARD L. OTTINGER, N.Y. WASHINGTON, D.C. 20515 ? HENRY A. WAXMAN, CALIF. MINORITY COUNSEL: PHILIP H. HAYES, IND. TOM HARKIN, IOWA MICHAEL A. SUPERATA 18 JIM LLOYD, CALIF. JEROME A. AMBRO, N.Y. CHRISTOPHER J. DOOD, CONN. May 24, 1976 MICHAEL T. BLOUIN, IOWA TIM L. HALL, ILL. ROBERT KRUEGER, TEX. MARILYN LLOYD, TENN. JAMES J. BLANCHARD, MICH. TIMOTHY E. WIRTH, COLO. Ellis Reida, Executive Director Rehabilitation International USA 17 East 45th Street New York, New York 10017 Dear Mr. Reida: The Committee on Science and Technology, U.S. House of Represen- tatives is genuinely concerned with the problems of the handicapped and has authorized further study in this field to identify areas where a more concen- trated and intensified research effort should be put forth in programs to aid the handicapped. Furthermore, the Committee has authorized a panel to be retained as consultants for the purpose of subjecting this matter to further study and rendering a report to the Committee on their findings. The panel will be composed of experts in the field as well as representation from the handi- capped community. The panel will be asked to address itself to areas of research which should be undertaken as a national program to aid the permanent and temporarily disabled and includes studies incident to visual, sensory, audio, ambulant, and other types of physical disabilities. In this regard we invite your participation or your recommendation of an interested individual, knowledgeable in the problems of the handicapped, who would desire to serve on this panel. A proposed schedule of panel sessions and studies is enclosed. Please contact Mr. Sherman E. Roodzant of the Committee staff (202-225-6371) if there are any questions regarding this study. Resumes of experience related to prob- lems of the handicapped from you or your representative should be received by June 18, 1976 for consideration. Thank you for your participation and interest in the problems of the handicapped. George Sincerely E. Brown Ji. GEORGE E. BROWN, Jr. COMMITTEE ON SCIENCE AND TECHNOLOGY U.S. HOUSE OF REPRESENTATIVES WASHINGTON, D.C. 20515 PANEL ON PROGRAMS TO AID THE HANDICAPPED Proposed Schedule I Notify Panelmembers of selection August 3, 1976 II 2 day Panel session to organize the September 1 & 2 study and receive guidance III 4 days of individual research September 3 - - 21 IV 2 day Panel session to receive September 22 & 23 individual panel member's views V 10 days of individual research and September 24 - October 19 contacts with various organizations and agencies VI 2 day Panel session - receive reports October 20 & 21 on preliminary findings of individual panel members and organize report VII 4 days of individual research and October 22 - November 16 drafting of final report VIII 3 day Panel meeting to consolidate report November 17 - 18