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file TB HEC ARKANSAS Area Health Education Centers October 30, 1998 Program University Tower Office The Honorable Hillary Rodham Clinton 1123 S. University, Suite 400 The White House Little Rock, AR 72204 Washington, DC 20500-2000 (501) 686-2590 [Voice] (501) 686-2585 [Fax] Dear Hillary: I was delighted to learn yesterday of your recent meeting regarding tuberculosis, since we have undertaken one in Volgograd, Russia. With USAID support given to UAMS and the Volgograd Medical Academy by the American International Health Alliance, we have trained two young physicians from Volgograd and next week will participate in a conference there sponsored by the Academy. Dr. Joe Bates is the senior, distinguished member of our team. In his laboratory, Dr. Kathy Eisenach and Dr. Don Cave are international leaders in the molecular biology of tuberculosis. A description of our project accompanies this. We look forward to your leadership with respect to the grave threat presented by tuberculosis and would welcome opportunities to discuss the matter with you. Please let me add that Ruth Remmel, Maggie Garcia, and Mary all enjoyed seeing you a couple of weeks ago in Little Rock. We all remain solid supporters. Sincerely, Jin James C. Wohlleb Assistant Director Enc. University of Arkansas for Medical Sciences Equal Opportunity Employer VOLGOGRAD TUBERCULOSIS CONFERENCE, NOVEMBER 1998 Background From Tuesday through Thursday, November 3 to 5, the tuberculosis conference of the Arkansas-Volgograd partnership (funded by AIHA) will take place at the Volgograd Medical Academy. Originally anticipated as a national conference, its scope was altered in June 1998 during the trip of the Arkansas team to Moscow and Volgograd. They discovered during conversations in Moscow that another national conference was planned at the Moscow Medical Academy in September. The Arkansas-Volgograd partners also concluded during discussions in Volgograd that focus on improving laboratory procedures in Volgograd might alone enhance cure rates through achieving more precise and reliable identification of specific strains of tuberculosis. Further, the Arkansas team sensed that an opportunity to compare management of cases and their outcomes with open discussion might reveal why 10 per cent or more of therapies fail. This seems more appropriately conducted in a local rather than a national forum. On the other hand, the stature of the lecturers recruited for the laboratory sessions is international. Desiring to continue the dialogue begun during our introductions in Moscow, the partners also believe that participation by the leaders there would be beneficial to long-term progress of aiding in the war against tuberculosis in Russia. Contents of the conference On Tuesday and Wednesday, the "consecutive case conference" proposed by Dr. Bates and accepted in Volgograd last June will occur. Dr. Karaduta and Dr. Kosolapov will describe approaches to tuberculosis control, procedures, and results that they have observed during their 6 months in Arkansas. Following their lectures, we propose to stop for a half-hour then begin presentations and discussions of 10 tuberculosis cases from Arkansas. This will require the remainder of the day. On Wednesday, cases from Volgograd will be given and discussed. The amount of time allotted might not be enough to hear all 10 cases from each Arkansas and Volgograd. Participants will proceed with as many as possible within the allotted periods of time. Dr. Jennifer Dillaha, a fellow in infectious diseases at UAMS and the Veterans Administration Medical Center, prepared 2-page summaries of 10 consecutive cases who presented to clinics in Little Rock starting four years ago. Dr. Karaduta translated these into Russian and carried them back to Volgograd two weeks before the conference. Illustrations and graphs will be labeled in both English and Russian. To provide the clinicians and laboratory staff with an overview of the laboratory's role in tuberculosis control, lectures will cover this in the afternoon on Wednesday. Thursday, the focus shifts to specific laboratory methodologies, which will be most informative to the technicians in tuberculosis laboratories. Following is the schedule for the conference. Sessions on Tuesday, November 3 Sessions on Wednesday, November 4 09:00 Introductions 09:00 Case Presentations 09:15 TB Control in the US, Dr. Karaduta 10:45 Break 10:00 US Lab Methods, Dr. Kosolapov 11:15 Case Presentations 10:45 Break 13:15 Lunch 11:15 Case Presentations 14:00 Role of the Laboratory in the Diagnosis of Tuberculosis, Dr. Eisenach 13:00 Lunch 15:00 Molecular Epidemiology of TB, Dr. 14:00 Case Presentations Cave 16:00 Summary and Discussion 16:00 Summary and Discussion Lectures on Thursday, November 5 Lectures on Thursday, November 5 09:00 Specimen Collection and Handling; 13:30 Identification and Drug Microscopy, Dr. Pfyffer Susceptibility Testing, Dr. Siddiqi 10:00 Discussion 14:30 Discussion 10:30 Break 15:00 Molecular Methods for Direct Detection and Drug Susceptibility Testing, 11:00 Specimen Processing and Culture Dr. Eisenach Methods, Dr. Pfyffer 16:00 Discussion 12:00 Discussion 16:30 Summary and Conclusions 12:30 Lunch Friday, November 6 Friday, November 6 Evaluation of conference Plan laboratory changes Tours of laboratories Other project plans 2 On Thursday, two family physicians from Arkansas -- the director of a residency program and another in private practice -- will lecture and discuss cases with faculty and residents of the new family medicine department of Volgograd Medical Academy. As many laboratory staff as possible will attend from the laboratories of the academy as well as from those of the oblast and city of Volgograd. This includes people who collect and prepare specimens. Because the visiting experts will emphasize practical techniques for achieving reliable and precise results, their instruction will lead to improvements of laboratory performance during the next year as the partners continue communications. This outcome of the conference is critically important to the future of the project in so far as it will lay the foundation for advances in laboratory development and, indirectly, clinical successes. The direction planned for the next year or more emphasizes the necessity and achievement of reliable and precise laboratory performance. Continuing education and monitoring operations will follow initial training. Studies of laboratory procedures in Arkansas by visiting faculty and staff from Volgograd will continue. These will stress quality control. With funds currently being sought, a new reference laboratory will be constructed in space already designated for this purpose by the academy. The educational activities in Volgograd and Arkansas will prepare staff for this reference laboratory. The rationale for emphasis on laboratory performance is twofold. It rests on observations of last June that faculty of the Academy are more open to instruction and improvements in their laboratories than in their clinics. The other reason is the expectation that more precise and reliable laboratory methods will result more frequently in appropriate medications for patients and enhance the capacity for detecting ineffective treatments. Because similar attitudes seemed to prevail in Moscow, and because effectiveness of treatment appeared to be approximately the same in Moscow as in Volgograd, the partners believe that involving leaders of tuberculosis clinics and laboratories of Moscow will benefit national progress against tuberculosis through dissemination of technology. An additional advantage to nationwide anti-tuberculosis actions will be increased exchange of information and solidarity among groups of experts. Private sector support Becton Dickinson (BD)-Europe has agreed to support the meeting by sending Dr. Gaby Pfyffer from the University of Zurich and Dr. Salman Siddiqi from the Maryland, USA offices of BD Biological Systems. Dr. Pfyffer, who consults internationally on laboratory methods, will lecture on collecting and processing specimens. Another expert on methods in tuberculosis laboratories, Dr. Siddiqi will describe drug susceptibility testing. Dr. Andrey Pchelkin of the DINA firm in Moscow is invited to attend with a guest and to exhibit diagnostic kits sold be his firm for use in tuberculosis laboratories. 3 The partnership has submitted a request to BD for assistance with the construction of a new laboratory for tuberculosis. Its intended function is as a reference resource where technicians of the oblast will be trained, operations of other laboratories will be monitored, and research will be conducted (in addition to its routine service of laboratory clinics). Invited guests The Volgograd Medical Academy and the University of Arkansas for Medical Sciences invited the following tuberculosis leaders and officials (or their designated alternates) to the November conference in Volgograd. Due to relatively late invitations and prior commitments, however, most could not attend. Alexander G. Khomenko, M.D., Director of the Central Tuberculosis Institute and member of the Russian Academy of Medical Sciences Vitaliy I. Litvinov, M.D., Director of the Moscow Anti-TB Center and Corresponding Member of the Russian Academy of Medical Science (Formerly he headed the Immunology Department of the Central Tuberculosis Institute.) Valentina I. Golyshevskaya, M.D., and Inna R. Dorozhkova, M.D., Institute for Phthisiopulmonology Research of the Moscow Sechenov Medical Academy Farit A. Batyrov, M.D., Director of the Moscow Clinical Tuberculosis Hospital No. 7 Adalbert Laszlo, PhD, Consultant, WHO and IUATLD, Ottawa, Ontario, CANADA Donald Enarson, M.D., Director of Scientific Activities, IUATLD, Paris, FRANCE Natalia V. Voziianova, Project Management Specialist, Health Division; George R. Oswald, Health Industry Specialist, Office of General Development; and Nikita Yu. Afanasiev, M.D., M.P.H., Project Management Specialist for Health and Pharmaceuticals; USAID, Moscow, RUSSIA Victor Boguslavsky, M.D., Director, AIHA/Moscow Alex Goldfarb, Ph.D., Public Health Research Institute, New York, NY, USA Rick O'Brien, M.D., Kenneth Castro, M.D., and Nancy J. Benkin, M.D., Tuberculosis Control Program, Centers for Disease Control and Prevention, Atlanta, GA, USA (Unable to attend.) Lee B. Reichman, M.D., M.P.H., Director, National Tuberculosis Center, Medical College of New Jersey, Newark, NJ, USA (Consultant to this project but unable to attend.) 4 file Tuberculosis Meeting October 28, 1998 Briefing Book Table of Contents 1- - List of Participants 2- Seating Chart 3 - - Talking Points U.S. Government Activities 4 - Department of Health and Human Services 5 - - U.S. Agency for International Development 6- Gore/Primakov Commission NGO/International Organizations Activities 7- - OPEN Society Institute 8 - World Health Organization 9 - World Bank Al D'Amato letter? TB Meeting October 28, 1998 List of Participants World Health Organization Project 55 TB Initiative (Ralph Nader grp.) Dr. Gro Brundtland Christoph Lee Dr. David Heymann AID Executive Director for Communicable Administrator Brian Atwood Diseases Duff Gillespie Ambassador Jonas Store Deputy Assistant Administrator for Executive Director Population, Health and Nutrition Ambassador Thomas Loftus HHS Secretary Donna Shalala World Bank Dr. James Wolfensohn Peggy Hamburg President Asst. Secretary for Planning and Evaluation Jan Piercy State U.S. Executive Director Frank Loy Undersecretary of State for Global Affairs Dr. David de Ferranti Vice President, Human Development Douglas Wake Network Office of Assistance to the NIS Chris Lovelace WH/NSC Director, Human Development Sector Melanne Verveer Marsha Berry Open Society Institute Ken Bernard George Soros Andrew Weiss Dr. Paul Edward Farmer Leon Furth Dr. Alexander Goldfarb Dr. Srdan Matic TB Meeting Seating Chart October 28, 1998 -- The Map Room David Amb. Jonas Amb. Thomas David Chris Heyman Store Loftus de Ferranti Lovelace Door X X X X X George Gro James Soros Brundtland Wolfensohn X X X Srdan X x Jan Matic Frank X Piercy Loy Alexander X X Melanne Goldfarb Leon X Verveer Furth X Ken Paul X Bernard Farmer X X X Brian HRC Donna Atwood Shalala X X X x X X Duff Andrew Douglas Peggy Chrisoph Marsha Gillespie Weiss Wake Hamburg Lee Berry TUBERCULOSIS MEETING OCTOBER 28, 1998 MAP ROOM TALKING POINTS OPENING REMARKS: I am pleased all of you could come to take part in this discussion of international tuberculosis control, one of the most critical and threatening global disease issues of our day. Looking around the room, it is clear that we have assembled the talent to help support a coordinated strategy to deal with TB worldwide. We all know the statistics concerning the resurgence of this age-old scourge: 8 million new cases per year over and over 2,000,000 deaths - that's over 5,000 deaths per day. As we enter the 21st century, TB remains the single largest infectious disease killer of adults. And most Americans still believe that TB is a disease of the past. We have recently been reminded again of how pressing this problem has become by George, who with his seemingly unlimited energy and commitment, has highlighted the TB epidemic in Russia and the other countries in the Newly Independent States. And the epidemic in Russia is raising a new issue - multi-drug resistant TB, which not only will make treatment far more expensive, but also poses a serious threat outside the region - a deadly form of disease that can cross borders as quickly as an international plane flight. There are no simple answers to the TB epidemic. This is not a disease that is easily treated with a single antibiotic prescription or injection. We must look at TB control in the context of development of quality health care at the community level. And we need high-level political commitment to ensure that a "best-practices" approach to control is seen as a high government priority. Obviously, funding is critically important to carry out these important control programs. Also important is the need to develop broad-based partnerships with other concerned nations, the private sector, academia, foundations and especially the 2 UN. With a global partnership under the expert leadership of Dr. Brundtland and W.H.O to carry out the needed TB control, we can, and will, move to control this killer. Introduce other speakers: I would like to turn at this point to Secretary Donna Shalala, whose national and international leadership in health promotion and disease control need no elaboration for this group. She co-chairs the Health Committee of the Gore-Primakov Commission, and is passionate in her support of the new leadership of Gro Brundtland at W.H.O. [Note: Secretary Shalala will likely speak on the components of international TB control as learned from our domestic experience. For Russia, she will emphasize the critical political commitment that can be developed through the work of the Health Committee of the Gore Commission. She will touch on countries building a rational national control strategies and the "Global Stop TB Initiative" of W.H.O.] Introduce Brian Atwood, Administrator, USAID [Note: he will describe the USAID approach to TB internationally concentrating on broadening the issue to the NIS and other affected countries. He will note institutional investments, and may mention the mission of the Strategic Design Team leaving next month to set up "Demonstration Sites." in Russia.] Introduce Dr. Gro Brundtland, Director General, W.H.O. [Note: She will discuss W.H.O.'s leadership in the "Global Stop TB Initiative" - including the complex constraints related to inadequate trained health personnel, inefficient drug procurement systems, poor political will, and problems of drug resistance. She will outline the W.H.O. actions.] 3 Introduce James Wolfensohn, President, World Bank [Note: He will outline the World Bank's interest in the problem, its past investments, and interests in working in Russia and other countries with significant TB problems.] Introduce George Soros. [We are told that he will support W.H.O.'s lead in dealing with the global epidemic, and will offer his assistance in building a global consortium of major institutions and intergovernmental organizations (such as the EU) to raise the required funds.] Discussion. open CONCLUDING REMARKS: I am gratified to hear that we seem to have the same basic approach for dealing with the global TB epidemic. I won't recapitulate what was said, you all are better than I at representing your agencies and interests. We have much to do. With regards to Russia, I encourage the joint CDC/USAID/WHO Strategic Design Team to report back on what specific intervention plans will work best. We must help Russia and the other Newly Independent States develop rational and "do- able" national plans for TB control and treatment given their specific circumstances. Globally, we have an important task laid out before us. Each of us can contribute to our collective goal of controlling this epidemic - and doing so by doing what each agency or organization does best. But we should move forward quickly and resolutely - working together jointly with a common ideal of caring for and treating those who are infected, and stopping the spread of the disease through both community and international action. HEALTH& ) THE SECRETARY OF HEALTH AND HUMAN SERVICES WASHINGTON, D.C. 20201 USA. AUG 28 1998 MEMORANDUM FOR THE PRESIDENT SUBJECT: Tuberculosis Epidemic in Russia Because the tuberculosis (TB) epidemic in Russia is such an important health care issue, I am providing you with an update and background on its current status and the steps we are taking to address this significant, world-wide threat to the public health. Also, I have attached talking points and a brief background paper for your use should the opportunity arise during your visit to further our recent progress made in combating this deadly disease. As you know, I have had the pleasure of serving as a co-chairperson, together with the Russian Minister of Health, on the Health Committee of the Gore-Chernomyrdin Commission. TB control is a key issue for the Health Committee and many resources of the Department of Health and Human Services, especially through the Centers for Disease Control and Prevention (CDC), and the USAID, Department of State have been mustered to assist the Russian government in fighting this disease. But urgent problems continue that need to be addressed. First, although Russia has the relatively low-cost drugs that can be used to treat TB, there are often more TB patients in the prisons and sanitoria than can be treated with the drugs available. Also lacking is surveillance, laboratory support and the organizational systems and discipline to see treatments completed. Second, when the inexpensive, simple antibiotic treatments for TB are not adhered to, are inadequate or unavailable, a Multi-Drug Resistant Tuberculosis (MDR-TB) may emerge that is treatment-resistant and requires much more expensive antibiotics. If these are unavailable or are used in a haphazard fashion, there is substantial risk of developing even more resistant strains of TB and spreading an airborne epidemic beyond Russia. We have worked with our Russian colleagues to encourage them to adopt a treatment regimen, known as Directly Observed Therapeutic Strategy (DOTS), that has been advocated by the CDC and the World Health Organization (WHO). DOTS entails carefully monitoring patients to ensure that they take the full course of antibiotics prescribed to eliminate TB. This can be done in either an in-patient or out-patient setting, but the cost savings of out-patient treatment are substantial. It is an important world-wide strategy to treat TB that can improve the quality of care and reduce costs without the need for prolonged institutionalization. However, some have argued that because DOTS does not require institutionalization, drug treatment compliance could be lower, which could lead to the emergence of MDR-TB. The official Russian policy on TB retains the traditional approach of treatment in sanitoria. This is especially true among local officials where the sanitoria system is a major source of employment. Page 2 - The President Seeing both sides of this issue, we have pushed hard, but respectfully, for reform in Russia. I am especially pleased that the Gore-Chernomyrdin Health Committee has given us a forum to convince the Minister of Health to adopt DOTS and to make the organizational changes necessary for its implementation. The cost of adequate treatment of TB in Russia, including transition to a system of DOTS, remains a challenge but HHS and the State Department are working with our Russian counterparts to develop a short- and long-term strategy. One example of our success stems from our convincing the Ministry of Health to adopt DOTS which paved the way for Mr. George Soros and his grantees to implement DOTS demonstration projects in Russia. Under this effort, Mr. Soros' Open Society Institute is providing funding to the New York City-based Public Health Research Institute (PHRI) to implement DOTS pilot projects in Russia with a focus on the possible emergence of MDR-TB. I would note that the First Lady is keenly aware of the public health threat of MDR-TB and raised it during a meeting with Mr. Soros where he was explaining his initiative in Russia You should also be aware that Mr. Soros' grantee, PHRI, together with the Britain-based Medical Emergency Relief International and the Belgian-based Medecins Sans Frontieres (Medicine Without Frontiers) have sent an open letter to President Yeltsin urging that he do more to combat the spread of MDR-TB, warning that Russia has become the "world's incubator of the deadly disease." Some Russian conservatives consider these efforts to be a "plot" by western drug companies to sell Russia expensive pharmaceuticals. We would suggest a less politically confrontational, more public health approach to this complicated issue. An approach based on the scientific evidence that DOTS can be a more effective and lower cost approach to the treatment of TB, especially with respect to the threat of MDR-TB. We hope that the progress that we have made with the Russian Ministry of Health, which has made it possible for the Mr. Soros' initiative to occur, can be continued. As I mentioned above, I am making the attached talking points and briefing paper available to you should the opportunity arise to further our public health goals of reducing the incidence of TB, especially MDR-TB, among the Russian people. I have also attached an informative editorial by Harvard Professor, Howard Hiatt, who argues because of its airborne spread, resurgent tuberculosis, and MDR-TB in particular, are an even greater threat to society than the AIDS epidemic. Please let me know if you would like any additional information. Donn 98hlole Donna E. Shalala Enclosures Tuberculosis Epidemic in Russia Talking Points We share your concern about the increased incidence of tuberculosis (TB) in Russia, and especially the emergence of a particularly dangerous form of tuberculosis, multidrug- resistant TB (MDR-TB) that cannot be treated with conventional antibiotics. We understand that MDR-TB is now a particular challenge in the penal system of the Russian Federation. Prisoners released after even brief stays in crowded prisons may have acquired the disease and become the source of infection in the community at large. We in the U.S. have had our own unfortunate experience with drug-resistant tuberculosis. During late 1985 and early 1990's, we had outbreaks of MDR-TB in hospitals and prisons, much of which was associated with HIV/AIDS co-infection. We have committed a substantial level of effort and resources to bring the situation under control. Only after implementation of treatment methods, such as directly observed therapy, that are recommended by the World Health Organization and our own Centers for Disease Control and Prevention, were we able to make real progress in controlling this persistent disease. We are aware of the situation in Russia and applaud your recent efforts of the Russian Ministry of Health and the Chief Administration of Execution of Punishment to implement international standards of TB control. We also understand the difficulties you face, both economic and social, in restructuring the system of TB care. However, we also are aware that there are successful pilot projects underway in Ivanovo and Tomsk that are being carried out as part of multilateral and our own bilateral cooperation. Based on these experiences, we stand ready to provide technical assistance as you work towards a nationwide program of tuberculosis control in Russia. Russia's Health Care System and Condition Serious shortcomings in Russia's health system and disease profile threatens the country's ability to provide adequate public health services to the Russian people, and for some diseases, poses a cross-border threat to the health of other nations, including the United States. While many general health statistics have improved modestly in the last two years, including life expectancy, alarming increases are evident in rates of STDs, HIV and TB. Between 1990 and 1997, the incidence of syphilis has increased from 5.4 per 100,000 to 216.9 per 100,000 - an increase of nearly 5,000%. Gonorrhea is increasing rapidly as well, and what shocks health officials and local leaders is that many of those infected are under the age of 20. In 1987, Russia had 24 recorded cases of HIV. By the first half of 1998 there were close to 8,700 cases of HIV and 300 AIDS deaths reported. Outside estimates are much higher, but even the Russian Duma estimated that Russia can expect at least one million cases of HIV in the coming years, with which the health and economic system will be unable to cope. The rise in TB cases has been dramatic, with civilian notifiable cases increasing from 36 per 100,000 in 1992 to 75 per 100,000 in 1996; particularly worrisome is the level of multiple-drug resistant TB which is estimated at 7.3% of all civilian cases, posing a distinct threat beyond Russia's borders. The TB situation in prisons is far worse. The health system suffers from low and underfunded health budgets, poor performance of the mandatory health insurance program in collecting premiums, and the lack of a legal framework for the private provision of health care despite survey findings indicating that upwards of 40% of health expenditures are out-of-pocket. The work of medical providers suffers from a lack of evidence-based medicine and quality improvement in all aspects of healthcare, especially diagnosis and treatment protocols. Nonetheless, successful dialog between U.S. and Russian health experts through the bi-lateral commission initiated by Vice President Gore, and effective use of USAID foreign assistance contributions are evident. Since 1992, the U.S. has provided over $95 million to address a broad range of health issues important to Russia such as immunization, women's reproductive health, pharmaceutical investment and quality control, environmental health, and health information and response activities. Approaches involving partnerships between U.S. and Russian organizations have been successful at the local level and, in one program's case, has led to U.S. private contributions of time and equipment estimated at $45 million over the last four years. Attempts at strengthening the role of non-governmental organizations in the delivery of public health information and services health field requires more attention. Tangible results are evident from the U.S.-Russian cooperation. For example, an estimated three million Russian couples now have access to safe and effective family planning services, and U.S. assistance has been credited with bringing down abortion rates. Yet, controversy about family planning has increased from the political right and from some religious groups. The Yeltsin administration wants to continue U.S.-Russian cooperating on reproductive health programs, and expand into improvements in maternal and neo-natal health. Russia is also working with the U.S. on a national initiative to improve the quality and access to health services, and a multi-year strategy aimed at STD/HIV prevention and control. A design effort for USG assistance in TB control is scheduled for Fall 1998. More Deadly Than AIDS Howard Hiatt Washington Post August 14, 1998 Many Americans think that with the discovery of streptomycin more than 50 years ago, the tuberculosis problem was solved. But a little-noticed (in the United States) TB epidemic now kills 3 million adults a year worldwide, more than AIDS or malaria. Even more threatening is the increasing appearance around the globe of forms of TB that are resistant to streptomycin and many other drugs that have been used to treat the disease. Almost every person with the common variety of TB can be cured with two to four medications daily for at least six months at a total cost of about $100. In recent years the World Health Organization, with support from the World Bank, has treated drug-sensitive TB in many countries with a very effective strategy that involves supervised administration of the drug over the prescribed period. But when TB sufferers are treated inadequately, that is, when they don't have all the required drugs or don't take them long enough, mutant TB bacteria that are more resistant to the drugs grow. Patients may feel better temporarily, but what was a curable condition can become a death sentence. And their now multidrug-resistant (MDR) TB bacteria infect others. MDR TB can often be cured, but at a cost eight to 80 times higher than that of treating ordinary TB. Until a few months ago that cost led to the view that treatment of MDR TB in resource-poor countries was not "cost-effective." But Paul Farmer and Jim Kim, two physician- anthropologists who divide their time between work at Harvard Medical School and Brigham and Women's Hospital, on the one hand, and the poorest areas of Haiti, Peru and Mexico, on the other, have changed that. In the barrios of Lima, where they have been involved in community-building for five years, they recognized that treating only patients with drug-sensitive TB, the most prevalent kind, could encourage the spread of MDR TB. Even more important, they regard treatment for MDR TB as the right of all its victims. Finally, they know well that infectious diseases respect no border and that their spread to the rest of the world is more than a threat. In fact, an American priest who recently died of MDR TB in Boston had come there from service in the barrios of Lima. Therefore, they began treating almost 100 of the many desperately ill patients with MDR TB in Lima with five or more drugs daily over a period of two or more years. More than 85 percent appear to have been cured. Farmer and Kim ascribe a large part of their success to their partnership with community members whom they have trained to ensure that every patient takes every dose of every medication every day. The cost has been great (although 1 much, much less than the cost in a U.S. hospital), but they have thus far succeeded in obtaining the needed drugs, partly by going into debt. Earlier this year tuberculosis specialists from around the world gathered at the American Academy of Arts and Sciences and examined and then endorsed the preliminary Lima evidence. Subsequently, the World Health Organization decided to replicate. the Lima experiment in a few other sites around the world that it has designated MDR TB "hot zones." Thanks to the generosity of George Soros, the first such sites will be in Russia and Latvia, where MDR TB is prevalent and spreading rapidly. The Soros foundations have committed to pay for programs there. But if the worldwide epidemics are to be contained, many more groups must be mobilized. The World Bank, national governments -- particularly those of industrialized nations -- the pharmaceutical industry, other business leaders concerned with international trade, scientists and others all can play crucial roles in a program to wipe out all forms of TB. The AIDS pandemic has appropriately aroused the concerns of people around the world. The tuberculosis pandemic requires no less. Because it is spread much more readily than AIDS - through the air that everybody may breathe -- it represents an even greater threat. The writer, a professor of medicine at Harvard, is director of the Initiatives for Children Program of the American Academy of Arts and Sciences. c Copyright 1998 The Washington Post Company 2 AID U.S. AGENCY FOR INTERNATIONAL DEVELOPMENT MEMORANDUM TO: WH/OFL, Melanne Verveer FROM: Acting AA/ENI, Donald L. Pressley Dm SUBJECT: Tuberculosis in the ENI Region In response to my conversations with Mrs. Clinton during our recent trip to Eastern Europe, please find below a summary of USAID's tuberculosis activities in Europe and the New Independent States (ENT). Following a general decline in the incidence of tuberculosis (TB) prior to 1991, rates have risen dramatically since then. With a continuing breakdown of the health systems in the troubled economies of the NIS, most countries continue to follow a very cost-inefficient TB control strategy involving active case-finding, regular chest X-rays, excessive skin testing and immunizations, and a well-entrenched, costly sanitoria network. USAID is assisting in reorienting the TB control effort in the region through: pilot efforts on the WHO recommended directly observed therapy, short course (DOTS); strengthening epidemiological monitoring and surveillance; more rational pharmaceutical management, including appropriate prescribing practices and pharmaceutical procurement; and strengthening health care delivery systems. In addition, USAID awarded a first tranche of funding to the Department of Health and Human Services (DHHS) to create an ENI regional TB working group to include expertise from WHO, SOROS and other entities to address TB in the region. The working group will help define the barriers to acceptance and adoption of DOTS in the NIS and will recommend activities necessary to overcome the barriers. A. TUBERCULOSIS IN RUSSIA As you know, since the collapse of the ruble and the banking system in Russia, the State Department (S/NIS/C) and the NSC have been closely tracking the TB and pharmaceutical situation in Russia, and have discussed the possibility of humanitarian assistance to respond to particular needs. TB in Russia, however, is not responsive to short-term humanitarian assistance. The number of notifiable cases of TB in Russia has more than doubled over the past six years, from approximately 35/100,000 population in 1992 to approximately 1300 PENNSYLVANIA AVENUE, N.W. WASHINGTON, D.C. 20523 202 647 9973 P.03 USAID ES:9T 2 75/100,000 population in 1998, according to the Ministry of Health (MOH) and WHO. Russia's TB rates are among the highest in Europe. Rampant TB rates in prisons continue to serve as a source of infection for the civilian population and multi-drug resistant forms of the disease are on the increase. These two factors have emerged as major threats to successful control of the epidemic. Mortality due to TB in the general population is about 17 per 100,000 population, while in the prison population it is estimated to be as high as 484 per 100,000 population. Russia continues to follow outdated diagnostic and treatment practices. Efforts by the USG, Soros and other donors to modify those practices, are showing some positive results. But TB in Russia is a complex problem, for which there is no clear or short term fix. Progress towards adoption of modern methods is constrained by a range of difficult economic, political, institutional, psychological, ethical, social and logistical impediments. In an effort to position itself to respond to the growing crisis, USAID/Moscow commissioned a study to examine the availability of and procurement methods for first-line TB drugs in Russia. The September 1998 report indicates that: a) the first-line anti-tuberculosis (TB) drugs are all available on the Russian market; b) that Russian drug manufacturers increased production of first-line TB drugs by 50% during 1997 and now claim to have sufficient production capacity to satisfy 100% of the country's need for these first-line TB drugs for 1998; but c) chronic shortages nevertheless exist due to perpetual problems with raw materials, procurement, distribution, affordability, and stock management. An emergency drop of TB pharmaceuticals is not needed now and would complicate or even worsen the situation, since the system is not prepared to properly handle a DOTS program. Nonetheless, USAID/Moscow will continue to monitor the situation. Programs Underway Because of the risk of promoting multi-drug resistant TB, there is a growing recognition that "doing DOTS badly is worse than doing nothing at all." It is absolutely critical that Russia have in place a sensible and comprehensive plan and adequate implementation capacity to support a DOTS program before drugs are distributed and treatment activities are initiated. USAID and the Centers for Disease Control (CDC) are moving quickly and responsibly to develop a plan to deal with the current crisis. With S/NIS assistance, USAID set aside in FY98 $1.5 million of Freedom Support Act (FSA) funding for TB efforts in Russia. In November, USAID and CDC will begin a TB assessment and design effort to identify likely sites for a multi-year TB program. It is envisioned that the USAID/CDC program will support pilot, community-based activities which complement and build on the work supported by the Soros Foundation and other bilateral donors. Because of statutory limitations, USAID and CDC expects to focus on civilian (not prison) populations. The programs will P.04 3973 647 202 DIASN ES:9T 3 institute a "DOTS-Plus" strategy (including food supplements and other inputs besides TB drugs) while tracking the prevalence of multi-drug resistant TB.¹ A one year hospital partnership (funded by USAID) between the University of Arkansas, School of Medical Sciences and the Volgograd State Medical Academy is initiating modern standards for tuberculosis diagnosis, treatment, and case management in a very limited way. All new health partnerships under the American International Health Alliance (AIHA) will explicitly include TB in the initial needs assessment. The American College of Physicians in collaboration with DHHS is working on a pilot effort to integrate TB into other quality and primary care initiatives.. For other donors working on TB programs in Russia, please see attached matrix, "Summary of Donors' Tuberculosis Programs in the Russian Federation as of October 1998. B. TUBERCULOSIS IN CENTRAL ASIAN REPUBLICS (CAR) Central Asia has seen a three to four fold increase in tuberculosis since the early 1990's. Although a number of other countries have TB rates higher than those found in CAR, the situation is still grave because of the often incurable form of the disease multi-drug resistant TB. USAID, Chevron and other donors, in a unique public-private partnership, are funding a TB initiative in CAR, and the results are just beginning to surface. Programs Underway Chevron Munaigas funded Project HOPE to introduce DOTS at pilot sites in Kazakhstan in 1994. Chevron also delivered a TB mobile clinic to Almaty Oblast, with transportation costs covered by the Department of State. In 1997, USAID/CAR started its "TB Initiative", in collaboration with Chevron, building upon on-going health reform efforts. The implementing team includes Abt Associates, Project HOPE, and CDC - a collahorative public-private partnership which has worked extremely well in the region. Broad objectives have been to update the existing TB diagnostic, treatment and control practices in the region through demonstration pilot sites in Kazakhstan and Kyrgyzstan. Activities include: developing national TB education campaigns; training health care professionals; supporting and monitoring DOTS pilot projects in Almaty (81 patients) as a model for national expansion; strengthening TB epidemiology and surveillance; and analyzing the cost-effectiveness of DOTS. 1 It should be noted, however, that Russian-Iran legislative directives, if enacted, will dramatically constrain the flexibility and scope of this program both at the federal and community levels. 202 647 9973 P.05 USAID ES:9T TOTAL P.06 4 Because of USAID's TB initiative, in May 1998, the President of Kazakhstan, Mr. Nazarbaev, signed a decree to implement DOTS nationwide. Some funding has been allocated and momentum is apparent in the MOH. Supported by all the donors in the region, a development plan for the National TB Control Program has been finalized to implement DOTS at limited pilot sites which will act as centers for training for the rest of the country. Thus far, USAID has committed $1,980,000 of FSA funding for the program. Through collaboration with the World Bank, TB activities will be expanded to additional oblasts in Kazakhstan and Kyrgyzstan over the next few years. In 1999, subject to availability of funding, elements of the program will be expanded to Tajikistan, Turkmenistan and Uzbekistan. Other organizations involved in or exploring TB-related activities in Central Asia include AMOCO, Lutheran Ministries, Medecins sans Frontiers-Luxenburg, Philip Morris, SOROS and the University of Wisconsin. Although too early to measure impact, TB initiatives accomplishments in CAR to date include: training of 385 physicians and other health workers in DOTS therapy, laboratory methods, drug supply and logistics, and health surveillance; provision of modern laboratory equipment and supplies for smear microscopy to three demonstration sites; initiating an information campaign including two press conferences on TB in Kazakhstan and two TV videos which are shown on national and Almaty TV; and ongoing policy dialogue on costs and laws concerning TB prevention, diagnosis and treatment. C. TUBERCULOSIS IN OTHER AREAS OF THE ENI Caucasus: The Mission is currently revising their health strategy and will explore possible TB initiatives. Ukraine: During the period 1990-1996, the TB rate in Ukraine increased by 45 percent and the MOH states that the country now has 45.8 people per 100,000 infected with TB. The Mission in Ukraine is exploring TB initiatives in conjunction with a future primary health care strategy. Kosovo: USAID's Office of Disaster Assistance (OFDA) has provided about $696,000 to Doctors of the World to provide food and hygiene parcels for TB patients and their families as incentives to increase treatment compliance in collaboration with a Swedish and multi-donor funded screening and treatment program in Kosovo. Over 4,000 TB patients have benefitted from this program. Initial results show a significant increase in the patient compliance rate. As peace plans begin to take effect, USAID will continue to review the status of TB in Kosovo especially when developments programs become more regular. 90'd 51.66 109 7.07 (THSN DC:91 866I-97-100 LOS ANGELES TIMES MONDAY. FEBRUARY 16, 1998 B5 An Ancient Marauder Looms Again Tuberculosis: The fight control programs misuse antibiotics and which the U.S. contributes only about ineffectively treat patients, practices that $500,000. WHO estimates that, in addition against it must be global as foster drug-resistant strains. These MDR- to commitments from developing countries, drug-resistant strains spread. TB "hot-zones" pose a grave threat to glo- $100 million more is needed annually to bal health, as international travel and control the epidemic and prevent the migration put all areas of the world in close spread of MDR-TB. Surely, Americans By RALPH NADER contact. would be willing to foot some portion of that and R. GORDON DOUGLAS Few people recognize the danger that bill to prevent a disease that WHO's Rich- MDR-TB poses to Americans. It is very ard Bumgarner called "Ebola with wings" For the first time since the introduction difficult and expensive to contain, and the from descending on our shores. of anti-tuberculosis drugs in the 1950s, the industrialized world is by no means world faces the threat of incurable TB, a immune. Since 1991, when these strains Congress has approved additional money disease that destroys the lungs, dooming its were found in only 13 states, MDR-TB has for the Agency for International Develop- ment, which channels funds to WHO, to victims to drown in their own blood. This spread to 42 states and the District of combat infectious diseases worldwide. If deadly infection is airborne; it spreads like Columbia. In September, a new strain of only the Clinton administration would fol- the common cold. Worst of all, highly highly contagious TB that multiplies at low through more comprehensively. Some resistant strains have been discovered in 34 1,000 times the normal rate was identified of the proposed new funding for biomedical countries by the Global Project on Anti-TB along the Tennessee-Kentucky border. research and for the National Institutes of Drug Resistance. Transmission of tuberculosis can occur Health also should be channeled into TB If tuberculosis were a newly emerging anywhere, from planes to schools to neigh- research. Furthermore, the U.S. must pay disease rather than an ancient marauder, it borhood bars. In 1994, a South Korean its dues to the United Nations if WHO is to would be making headlines almost daily. woman with MDR-TB infected four Amer- be effective in fighting TB and other such However, in the four years since the World icans on a plane. deadly diseases. Unless this funding is sus- Health Organization declared TB a global The importation of TB across interna- tained over the long term, TB programs will emergency, there has been little interna- tional borders is very common. In this be ineffective, treatment of patients will be tional alarm. Inexpensive, generic medica- country, 37% of TB patients are foreign- incomplete and our temporary good inten- tions have long existed to cure tuberculosis, born, 25% of them from one of four "hot tions will only fuel the spread of drug- yet 3 million people die each year, making zones": India, Korea, Vietnam and the resistant strains. TB the greatest infectious killer world- Dominican Republic. In the Dominican wide, responsible for one-fourth of the Republic, where 9% of TB cases are MDR, The only way to protect Americans world's preventable deaths. one out of every seven residents has against multi-drug-resistant tuberculosis is In October, an unprecedented report obtained a visa for travel to the U.S. to support effective treatment and control released by top U.S. and international The U.S. learned a harsh lesson when the programs that prevent MDR-TB from health agencies issued the ultimate warn- dismantling of TB control infrastructure in developing. It is a war that must be fought ing: Multi-drug-resistant strains of tuber- the 1980s led to sharp increases in tubercu- internationally, before this country culosis (MDR-TB), which can be virtually losis. According to New York City's director becomes a primary TB battleground. untreatable, have emerged worldwide and of TB control, the explosion of MDR-TB threaten to overwhelm the public health required more than $700 million between Ralph Nader and Dr. R. Gordon Douglas systems of India, Russia, Latvia, Estonia, 1992 and 1996 to quell the outbreak. are on the steering committee of the Prince- Argentina, Ivory Coast and the Dominican The World Health Organization spends ton Project 55 Tuberculosis Initiative of Republic. In these countries, poor TB $11 million annually on TB control, of Princeton University's Class of 1955. 21/oct/98 Health IV TUBERCULOSIS GARE-PRIMIKOV Summary of Situation In Russia, as in much of the former Soviet Union, tuberculosis (TB) cases have increased dramatically in recent years. In addition, multi-drug resistant (MDR) TB which does not respond to conventional treatment has emerged. MDR-TB has spread in environments such as prisons and hospitals, and threatens TB control efforts since the costs for treating MDR-TB are 100 fold-higher than for treating non-resistant TB ($3000/case versus $30/case). The problems have emerged because of unstable drug supplies and reluctance of the medical establishment to use the simple, effective strategy known as DOTS that consists of five elements that include government commitment, appropriate methods of TB diagnosis, an adequate supply of quality drugs, supervised administration of these drugs, and careful monitoring of treatment outcomes. This approach is used in the U.S. as well in more than 100 other countries. Unless the TB problem in Russia is dealt with immediately, drug resistance due to poor treatment practices will continue to develop and spread in the community, making TB virtually untreatable. U.S. Activities to Date TB has been considered as an important disease by the Health Committee of the Gore- Primakov Commission. At the request of the Department of Health and Human Services, CDC has participated in the committee's TB activities, which until now have been limited because of availability of resources and resistance at the national level in Russia to institute meaningful changes in national TB policies. CDC activities to date have included a series of visits to Russia in which meetings were held with national counterparts for the purpose of discussing possible collaboration. In addition, CDC planned and hosted a U.S. study tour of TB experts from the leading TB institute in Russia in February 1997 to see the U.S. TB strategy in action in a variety of settings. Although CDC has been involved in a number of TB projects in the Central Asian Republics and the Baltics, direct involvement in Russia has been limited. Recently, however, USAID in Moscow has recognized the importance of the problem and is planning on providing mission funds for a three year period to CDC for the development of one or more pilot projects. PHRI/Soros Activities In September 1998 CDC staff conducted a joint visit with members of the Public Health Research Institute/Soros Steering Committee to examine their activities in the civilian and prison populations in the Tomsk Oblast and a TB prison in the Kemerovo Oblast. Public Health Research Institute (PHRI) of New York City has received a $12 million grant from the Soros Foundation (Open Society Institute, OSI) to undertake projects aimed at reform of tuberculosis control in the Russian Federation (RF). Dr Alex Goldfarb, 9 a senior scientist in PHRI, serves as the director of the project. After one year of operation, PHRI has joined DOTS demonstration projects in the civilian sectors in Ivonova (initially supported by WHO) and Tomsk (supported by the British NGO, MERLIN), strengthening laboratory capacity and entering into contracts with local authorities to achieve cost savings by reducing the number of TB hospital beds and of unproductive TB screening activities. For assistance in training, project monitoring, and surveillance/reporting, PHRI is working with the Central TB Research Institute (Prof Alexander Khomenko) in Moscow. PHRI is also supporting a DOTS project initiated by MSF/Belgium in a TB prison in Mariinsk (Kemerovo) and has begun DOTS projects in four other prisons (Tomsk, Ivonova, Mari-El, Vladimir and Nidzy-Novgograd). Based on information available to CDC, it appears that the DOTS projects in the civilian sectors, where rates of initial MDR-TB appear to be relatively low, are succeeding. However, failure rates has high as 40% have been found in the Mariinsk prison, likely because of an equivalent rate of MDR-TB in new patients beginning treatment. Clearly, in such a setting a DOTS-alone approach may be inadequate. As a next step, PHRI intends to implement a DOTS-plus project in Tomsk (both the civilian and prison sectors). With project funds now fully committed, PHRI is looking for other partners and funding sources. to expand DOTS-plus programs in regions where it is working and extend DOTS implementation to other regions in RF. U.S. Planned Activities Beginning November 15, CDC will detail a public health advisor to Moscow for a 4 to 5 week period to assist the USAID Mission in the development of a TB in Russia Background/Strategy Document. In late November, a joint CDC-AID team will visit Russia to perform an assessment of three areas to determine which area would be most suitable to serve as a demonstration site for CDC-guided TB control project activities. This multi-disciplinary team will consist of a senior epidemiologist, a TB laboratory specialist, a senior public health advisor and an experienced program management officer. One of the sites to be visited, the Kemerovo Oblast in Siberia, has expressed a strong interest in introducing the basic DOTS strategy in the civilian population (Medecins Sans Frontieres, Belgium is already working successfully in the main prison). The second site, the Ivanovo Oblast near Moscow has been used as a pilot area by the World Health Organization and has one of the two most developed DOTS programs in Russia. In this oblast, the U.S. contribution would be the development of a strategy to identify and cure the MDR-TB patients who are not cured by the routine DOTS approach. The third area under consideration is the Novgorod Oblast which is said to have a progressive governor and chief TB doctor, and has allegedly indicated it's willingness to provide an adequate supply of required TB drugs. If successful, a demonstration project would serve as model for other oblasts in the country. It is hoped that if success is demonstrated in various oblasts, the other oblasts 10 which are still expressing considerable reluctance to abandon old treatment strategies will be willing to change to the DOTS approach. Major Obstacles 1. The amount of money that is being made available at the USAID mission is inadequate to fully support the proposed activities. 2. Current U.S. government restrictions on the ways in which money can be spent in Russia may limit the usefulness of available monies. At least part of the potentially available mission funds cannot be spent on activities benefitting the national, oblast, or local governments or on salary support for Russian nationals). 3. For these projects to be conducted successfully, USAID money must be spent (or other sources must be located) to pay for drugs. Although the need for the expensive MDR TB drugs may diminish over time if the program is successful, the need for basic TB drugs will remain, and it appears unlikely that the oblast or national governments will be able to bear these costs in the next several years. 4. Sustainability of efforts beyond the duration of the project may be difficult unless the financial situation of the country undergoes dramatic improvement. Coordination Meeting on TB in Russia, 15 October, 1998 At a meeting convened last week (15 October, 1998) by the Office of the Coordinator for NIS Assistance, the group, including Drs. Hamburg and Eisenberg, explored several ideas that were later discussed with Dr. Helene Gayle at CDC. The demonstration projects described above will be most effective in the long run, if they are combined with the following initiatives: 1. The setting of a national framework and establishment of an environment for broader adoption of improved care patterns (especially if the demonstrations can show the effectiveness of "best practices"). This would likely be done with Russian TB leaders, oblast leaders, medical education and professional leaders, and political leaders. This should be linked with the American International Health Alliance (AIHA) and American College of Physicians (ACP) projects, and integrated with the Health Committee's quality and primary care initiatives. 2. The building of capacity to care for patients with TB outside sanitoria and prisons. This means upgrading the ability of hospitals and polyclinics to care for TB patients, especially once they have been successfully started on treatment and can be sent into community-based DOTS programs (more difficult, obviously, with 11 MDR-TB).. This can be done in conjunction with the ACP project, perhaps with other Health Committee efforts to help upgrade primary care and polyclinics. 3. The building of capacity in laboratories for testing TB sensitivities and for assisting clinicians in the selection of appropriate treatment, combined with laboratory support for a more extensive surveillance system to identify the disease burden and to characterize the epidemic better. Dr. Hamburg emphasized this as having been very important in New York City's success in reducing MDR-TB. 4. The identification of the Russian drug availability situation. Funds should be considered to assist the broader distribution and delivery of drugs, some of which are already in Russia but are not being used. A combination of the lack of money to buy pharmaceuticals, poor health sector organization for their distribution to the areas most in need, and the lack of knowledge or commitment to use the drugs appropriately, as well as other factors, contribute to this problem. These efforts will be very expensive, but the Health Committee should take advantage of the attention this is getting to emphasize that one can't do demonstration projects without building reform of TB care into the public health infrastructure, improving the community-based care, and paying attention to quality of care. Depending on the intervention, these could be done either in the demonstration regions, in the nation as a whole, or as part of other donor and collaborative programs (eg, the Access to Quality Care Initiative, AIHA). It should also be linked with the Soros initiative, of course. The challenge is how to do the demonstrations with the little money available to the Health Committee, and to have concrete and near-term products and achievements, yet offer a broader scope of ideas that focuses those who may direct more funds toward the program on the full spectrum of components of the initiative if it is to be long lasting. V MATERNAL CHILD HEALTH The USAID Women's Reproductive Health Project This project has continued its roll-out and institutionalization activities. A team recently left Russia after developing a strategy for the next 3-4 years which will expand current work in the area of women's reproductive health to Women's and Children's Health. New efforts will include work in policy development, NGO development; research; and information, education, and communication activities. 1. To date, six of the eight roll-out sites have received contraceptive technology update trainings and four have received contraceptive shipments. Training in the 12 cc Melame OPEN SOCIETY INSTITUTE S I GEORGE SOROS Chairman 20th August 1998 ARYEH NEIER President Mrs. Hillary Rodham Clinton The White House Washington D.C. 20500-2000 Dear Hillary, You told me at our last meeting of your interest in the problem of tuberculosis in Russia. As you noted, explosive prison epidemics in Russia are fueling the larger national epidemic; these outbreaks are, of course, not contained by national boundaries. I am very pleased that Dr. Gro Brundtland of the World Health Organization has underlined the importance of U.S. leadership in addressing this global emergency. We have started a program to address TB in Russia through the WHO-endorsed control strategy of directly observed therapy or "DOTS" which cures sensitive TB and prevents new multiple drug-resistant TB from developing. We have received requests to support programs from our foundations in such countries as Kazakhstan, Kyrgyzstan, and Azerbaijan which are currently under consideration. Since we initiated this work a year ago, we have discovered that the problem is considerably worse and more difficult than we imagined. My concerns fall into two main areas: MDR-TB, and other impediments to the adoption of the DOTS approach. First, the situation is greatly complicated by the multidrug-resistant strains of TB which are not effectively treated through the DOTS approach. The World Health Organization last month endorsed a "DOTS-Plus" strategy which addresses drug resistant treatment in circumstances such as those found in Russia. Since we met, I have directed our TB team to adopt this expanded approach in order to save lives and halt epidemics already underway. This enhanced approach is significantly more costly than the simpler "DOTS" approach. This expansion will require additional funding, though far less than the cost of ignoring these drug- resistant strains. While I am prepared to commit some additional funds to TB, I have become convinced that the problem can be addressed only with the coordinated and solid financial commitment of a wide range of international, bilateral and private donors. Second, as our programs develop in Russia, we have encountered a range of economic, political, social, and logistical impediments to the adoption of the WHO/DOTS strategy. Similar impediments exist in other countries as well. We appreciate that failure to overcome these issues could jeopardize our investments in TB control, but simple solutions are not readily available. This is an issue you may want to raise in connection with your visit to Russia in September. 400 West 59th Street, New York, New York 10019 Phone: 212. 548. 0600 Fax: 212. 548. 4679 Website: http://www.soros.org Hillary Rodham Clinton 20th August 1998 Page 2 I understand that the WHO is currently considering undertaking a global TB program. I have written Dr. Brundtland a similar letter, and would like to find ways to work with them. A handful of key players-yourself, Dr. Brundtland, Jim Wolfenson of the World Bank, for example-could make all the difference if we act promptly. It is my hope that we can join together in calling for the sustained international attention and funding that could contain outbreaks in the former Soviet Union and elsewhere. The United States has a critical and new role to play in confronting public health threats outside of its borders. I look forward to hearing from you on this important issue. Yours sincerely, George Soros Fax :212-2627580 Sep 23 '98 15:08 P. 03/14 OPEN SOCIETY INSTITUTE o S GEORGE SOROS 20th August 1998 Chairman ARYEH NEIER President Dr. Gro Brundtland World Health Organization Geneva, Switzerland Dear Dr. Brundtland: I understand that the WHO is currently considering undertaking a global program to address the problem of tuberculosis. As you may know, my foundations have started a program to address TB in Russia through a DOTS based approach. We have received requests to support programs from our foundations in such countries as Kazakhstan, Kyrgyzstan, and Azerbaijan which are currently under consideration. Since we initiated this work a year ago, we have discovered that the problem is considerably worse and more difficult than we imagined. My concerns fall into two main areas: MDR-TB, and other impediments to the adoption of the DOTS approach. First, as you are well aware, the situation is greatly complicated by the multidrug-resistant strains of TB. We were very pleased to learn that the WHO last month endorsed a "DOTS-Plus" strategy addressing drug resistant treatment in circumstances such as those found in Russia. I have since directed our TB team to adopt this expanded approach in order to save lives and halt epidemics already underway. Unfortunately, we realize that this enhanced approach is significantly more costly than the simpler "DOTS" approach, and will require additional funding, though far less than the cost of ignoring these drug-resistant strains. While I am prepared to commit some additional funds to TB, I have become convinced that the problem can be addressed only with the coordinated and solid financial commitment of a wide range of international, bilateral and private donors. Second, as our programs develop in Russia, we have cncountered a range of economic, political, ethical, and logistical impediments to the adoption of the DOTS strategy. Similar impediments exist in other countries as well. We appreciate that failure to overcome these issues could jeopardize our investments in TB control, but simple solutions are not readily available. I am hopeful that the WHO will decide to undertake a global plan to control TB. I would like to find ways to work together in addressing this public health emergency, I have spoken with Hillary Clinton about this problem, and have written her a similar letter. A handful of key players-- yourself, Hillary Clinton, Jim Wolfenson of the World Bank, for example--could make all the difference if we act promptly. 1 look forward to discussing this important matter with you in the near future. Personson Yours sincerely, George Soros 400 West 50th street, Ngw YOUR. New York 1000 Phone 211. 548. 11600 Tax 212 518 16/9 Withhite hip I/www Fax :212-2627580 Sep 23 '98 15:09 P.04/14 OSI-LED INITIATIVE TO ERADICATE TB AUGUST 1998 "The two largest TB NGOs, KNCV in The Netherlands, and the International Union Against TB and Lung Disease, have a combined budget for fighting TB of just over $10 million. Last year, the Wellcome Trust announced it could provide over $2 million to determine the complete sequence of the genome of the tubercle bacillus. Unfortunately, most of the largest foundations, such as Ford, Rockefeller, Kellogg and Pew, and the largest health and development NGOs, such as CARE, Save the Children and Oxfam, remain conspicuously absent in the battle against TB." BASIC TENETS OF THE OSI-TB INITIATIVE Tuberculosis remains the single largest infectious contributor to adult mortality in the world today. Increasing globalization of economies demands a global response to the TB pandemic. An effective and concerted response demands not only the leadership of the medical and scientific communities, but also the full participation of the private sector, including international trade and finance. JUSTIFICATION FOR OSI INVOLVEMENT IN GLOBAL TB CONTROL George Soros is the single largest individual donor to. TB control in the world today. The regions in which the Network of Foundations is established- from the former Soviet Union to South Africa- are those in which TB is endemic or recrudescent; these regions are particularly hit hard by drug-resistant TB. The OSI brings two critical and previously missing components to TB control: a human-rights approach and new leadership from the business OSI-TB INITIATIVE 1 Fax :212-2627580 Sep 23 '98 15:09 P.05/14 sector, previously a minor player in the TB community. Furthermore, the geographical reach of the Network of Foundations is unparalleled and the OSI would bring significant experience to the containment of prison-related outbreaks. OSI-TB INITIATIVE 2 Fax :212-2627580 Sep 23 '98 15:10 P.06/14 JUSTIFICATION FOR CHOICE OF PARTNERING INSTITUTIONS AND COMPOSITION OF ADVISORY BOARD The organizations identified as potential partners in an OSI-led TB eradication effort are the major participants in global TB control. The Advisory Board would bring together the leaders of these organizations, as well as key players in international public health. Others will no doubt be identified. PROPOSED ORGANIZATIONS PROPOSED ADVISORY BOARD REPRESENTATIVE AMERICAN ACADEMY OF ARTS AND SCIENCES HOWARD HIATT CARTER CENTER WILLIAM FOEGE CENTERS FOR DISEASE CONTROL AND PREVENTION HELENE GAYLE HARVARD MEDICAL SCHOOL PAUL FARMER INTERNATIONAL UNION AGAINST TUBERCULOSIS NILS BILLO AND LUNG DISEASE KNCV, HOLLAND KITTY LAMBRECHT LONDON SCHOOL OF HYGIENE AND TROPICAL JOHN PORTER MEDICINE, UK MEDICAL RESEARCH COUNCIL, SOUTH AFRICA BERNARD FOURIE NATIONAL JEWISH MEDICAL AND RESEARCH MICHAEL ISEMAN CENTER NATIONAL TUBERCULOSIS CENTER & LEE REICHMAN PUBLIC HEALTH RESEARCH INITIATIVE RESEARCH INSTITUTE OF TUBERCULOSIS, AMAN ZHANGIREEV KAZAKSTAN OSI-TB INITIATIVE 3 Fax:212-2627580 Sep 23 '98 15:10 P.07/14 PARTNERS IN HEALTH JIM YONG KIM ROCKEFELLER FOUNDATION AND THE LINCOLN CHEN HARVARD SCHOOL OF PUBLIC HEALTH UNIVERSITY OF ALABAMA MICHAEL KIMERLING WORLD HEALTH ORGANIZATION ARATA KOCHI OSI-TB INITIATIVE 4 Fax:212-2627580 Sep 23 'yr 15:10 P.08/14 WHAT ARE THE GOALS OF OSI-TB? OSI-TB would not seek to replicate existing TB-control structures, nor would it seek to act alone in inaugurating new TB treatment and control efforts. Rather, OSI-TB would seek to fill in gaps: Leadership gaps must be filled if truly global efforts are to progress. OSI-TB would have a special focus on leadership from business sectors, including international finance, the pharmaceutical industry, and philanthropies; the human-rights community would also be engaged. Gaps in political will must be filled if government support for national DOTS-based programs, including "DOTS-Plus," are to have real impact on the global TB pandemic. Gaps internal to the TB community have neglected critical developments- MDRTB and prison-centered outbreaks of TB- that threaten the hard-won gains of global TB control. Funding gaps will be filled not through direct OSI contributions, but rather through coalition building to channel new resources into priority TB- control efforts. How WOULD OSI-TB WORK? OSI-TB can make have an enduring impact on global TB control through a four-step process: 1. Forge a powerful consortium of actors and institutions, led by an expert Advisory Board. 2. Convene a meeting of Dr. Gro Brundtland (WHO), Jim Wolfensen (World Bank) George Soros, the U.S. Surgeon-General Satcher, and leaders of the global TB community to launch a worldwide campaign to bring new resources to TB control. 3. This campaign will have as its centerpiece a drive to secure an unprecedented commitment of public and private resources- the Global Trust for TB Control- targeted to Board-approved projects. OSI-TB INITIATIVE 5 Fax :212-2627580 Sep 23 '98 15:11 P.09/14 4. Identify TB "hot zones" where new public-private partnerships, funded through the Trust, can contain deadly epidemics and promote the primary goals of modern TB control. OSI-TB INITIATIVE 6 Fax:212-2627580 Sep 23 '98 15:11 P.10/14 LILLY PHRI OTHER PARTNERS HMS/HU OSI CDC PIH KNCV ROCKEFELLER WHO IUATLD OSI-TB ADVISORY BOARD PROJECTS OSI-TB INITIATIVE 7 Fax 212-2627580 Sep 23 '98 15:11 P.12/14 PROGRAM IN INFECTIOUS DISEASE AND SOCIAL CHANGE DEPARTMENT OF SOCIAL MEDICINE, HARVARD MEDICAL SCHOOL 641 HUNTINGTON AVENUE, BOSTON, MA 02115 PH. (617)432-3715, FAX: (617)432-2565 PAUL FARMER AND JIM YONG KIM. DIRECTORS To: ARYEH NEIER & GEORGE SOROS OPEN SOCIETY INSTITUTE FAX: 212-548-4608 FROM: PAUL FARMER, M.D., PH. D. DATE: 17 SEPTEMBER 1998 During the week of 6-11 September, I traveled with a fact-finding mission to investigate the state of tuberculosis (TB) control in Russia, with a particular interest in assessing the problem of TB in prisons. We also evaluated the OSI-funded TB control initiative conducted by the Public Health Research Institute (PHRI). Our team included representatives of the World Health Organization (WHO) and U.S. Centers for Disease Control, as well as clinical and research specialists in tuberculosis control. This group, which serves as the advisory committee to the PHRI projects, counts decades of experience in TB control and research. I myself acted as special consultant on TB epidemiology and treatment to the OSI. For a number of reasons, we expected the TB situation in Russia to be grim. Several of us had previously visited regional TB facilities; all of us were familiar with reports, in the Russian and foreign popular press, describing large outbreaks of TB and high case-fatality rates. These outbreaks, in tandem with the dismantling of the public-health infrastructure, have led to a rapid rise in national case rates. In 1990, TB incidence in Moscow was estimated at 27 per 100,000 population; by 1993, it had almost doubled, to 50 per 100,000. The situation is significantly worse in Siberia, where incidence went from 43 to 94 per 100,000 during the same period. By March 24th, 1998, it was possible for the WHO to announce that TB incidence in Russia had risen another 50% between 1994 and 1996. About a quarter of a million new cases were detected in 1996 alone. We were also concerned about multidrug-resistant tuberculosis (MDRTB). Most members of the committee had read the recent WHO/IUATLD report, which suggested decreased cure rates and significant levels of resistance to first-line antituberculous drugs in the region surveyed. Finally, we knew that the epidemic was particularly affecting, and amplified within, the prison system. In the space of the last few years, TB has become the leading cause of mortality among Russian prisoners and detainees, accounting for 40-80% of all prison deaths in some facilities. National TB mortality among Russian prisoners was recently pegged at 484 per 100,000- among the highest in the world. P. FARMER/REPORT TO OSI, 17 SEPTEMBER 1998 1 Fax :212-2627580 Sep 23 '98 15:12 P. 13/14 In the light of these unwelcome trends, the OSI-funded initiatives were deemed particularly welcome both by many Russian officials and by the broader, global TB community. The PHRI has initiated work in both the civilian and prison populations of Tomsk, and has recently expanded its support of key reforms to the neighboring oblast, Kemerovo. Similar efforts are also underway in Vladimir, closer to Moscow. I have visited all of these regions. On this most recent trip, however, the mission visited Siberian facilities only. What we found disturbed us greatly. A PHRI-led public-private coalition- linking foreign NGOs, including Médecins Sans Frontières (MSF) and MERLIN UK, with both prison and civilian health authorities- has already led to substantial improvements in aspects of TB control ranging from case detection to the standardization of record-keeping and program evaluation. Furthermore, this coalition has been able to substantially reduce improper TB-control practices, which are the root cause of increased rates of treatment failure and increased rates of acquired resistance to the best and least expensive drugs. The committee was unanimous in deeming these reforms central to any effort designed to avert further disaster. These reforms, however, come late. When the OSI-funded initiative was planned and funded, the contribution of drug resistance to low cure rates was unknown, but MDRTB was estimated to represent no more than 5% of incident cases. What we found, however, was a rate of MDRTB many times in excess of this estimate, and we suspect that drug resistance helps to explain the very low cure rates seen inside a number of the institutions in which standard TB-control practices have been implemented. The case of Penal Colony 33, in Mariinsk, Kemerovo, gives an idea of both the gravity and extent of the problem. For the last few years, the Belgian branch of MSF has worked inside the Colony with close cooperation, obviously, from prison officials. Treatment has been standardized, and case detection, treatment protocols, and record-keeping are now in keeping with WHO-endorsed TB-control practices. And yet, preliminary cohort studies have revealed cure rates of less than 60% even though the standardized regimen has been bolstered by a fifth drug, and all doses are directly observed. Although complete drug-susceptibility data are not available, preliminary testing in Belgium suggests that a majority of treatment failures are due to drug resistance. Patients who fail therapy now constitute an increasingly large proportion of those detained in Colony 33; they are eventually isolated from other prisoners. Since Russian law does not permit indefinite detention, however, these prisoners, still infectious, are simply released into the community at the end of their term. A majority of the group- 80% by some estimates-are lost to follow up after release, underscoring the need for close coordination of prison and civilian TB control. Rapidly rising TB case rates elsewhere in Kemerovo Oblast are further proof of the relationship between prisons and the surrounding community, as is the fact that fully a third of all civilian TB diagnoses are made in those with a history of imprisonment. Finally, the highest extramural rates are registered among prison guards and others working in close association with TB-affected prisoners. Equally disturbing, and again suggestive of the increasing contribution of drug resistance to poor outcomes, are data showing that, between 1987 and 1997, as rates of TB skyrocketed, cure rates went from an already-low 67% to a sobering 44 %. (See Figure 1). Death rates among those treated also increased, from 9% to 30%. Note that rates of abandonment and death due to other causes during treatment remained constant. P. FARMER/REPORT TO OSI, 17 SEPTEMBER 1998 2 Fax 212-2627580 Sep 23 '98 15:13 P. 14/14 Figure 1. Trends in TB treatment outcomes, 1987 and 1997 Kemerovo Oblast, civilian population 1987 16% cure 8% TB deaths during treatment deaths from other causes during 9% TB treatment 67% transferred out 1997 16% 10% 44% 30% After meeting with both civilian and prison officials from Kemerovo, the fact-finding mission met with the state governor and leading health officials. We urged the governor to declare tuberculosis an "emergency," and he assured us of his strong and unconditional support for the institution of P. FARMER/REPORT TO OSI, 17 SEPTEMBER 1998 3 202 331 9097 WHO NSC INIL HEALTH 10/23/98 11:43 NO. I WHO's Response to the Global Tuberculosis Emergency 1. In 1993, the World Health Organization declared TB a global emergency. It took this imprecedented step as TB was claiming the lives of 2-3 million people each year, making it the eading infectious killer of youth and adults. Increasingly, the disease was becoming resistant to currently available medicines because of careless TB treatment practices. (Drug resistance can levelop when patients get the wrong drugs, drug supply is irregular or patients stop taking their nedicines too soon because they feel better). And yet, in spite of these dangers, the world's response to the epidemic was minimal WHO defined the enormous size of the global TB problem through expanded monitoring and surveillance. For example, it determined that TB had become the leading cause of death among HIV positive people. The disease also orphans hundreds of thousands of children each year and is the single biggest killer of young women. 3. WHO also determined that TB is a major contributor to poverty. Eighty per cent of TB patients are in the most economically productive years of their lives. TB sends many self-sustaining funilies into poverty. If the breadwinner of a family is not properly diagnosed or treated, he or she will lose, on average, a full year of work 4. WHO developed an effective TB control strategy known as DOTS. DOTS is the most effective rategy available for detecting and curing TB. It was developed from two decades of testing and best practices. DOTS requires direct observation of treatment to ensure that patients take the edicines; and it also requires government commitment, microscopy services, reliable drug supply and monitoring systems. DOTS can help any country rich or poor -- to achieve high cure rates. COTS achieves cure rates as high as 95 per cent even in economically devastated or war-torn areas. Besides achieving high cure rates, DOTS has a number of important advantages: The strategy can be integrated successfully within general health services to achieve widespread coverage. DOTS does not require hospitalization or isolation. Parients can remain at home and return to work in a few short weeks. DOTS is as effective in curing TB in both HIV-positive and HIV-negative people, and is one of the most affordable ways of extending the life of a HIV-positive person. 5. WHO and the World Bank determined the cost effectiveness of DOTS. DOTS helps prevent In ultidrug resistance; which is often fatal and up to 100 times more expensive to treat. The World Bank considers DOTS as one of the most cost-effective health strategies available. A six-month course of drugs for DOTS costs between $10 to $20 per patient in most developing countries. DOTS is a sound economic investment for any government. For example proper use of DOTS in TI riland could save the country $2.3 billion over 20 years. 6. Ite Organization promoted the global implementation of DOTS. WHO developed the DO essary tools, guidelines, training materials and policies to promote the implementation of DOTS. A.T the same time, WHO embarked on major advocacy and intensified technical assistance to over 50 countries, focusing on big countries with largest TB burdens. These efforts have made DOTS Date of the fastest expanding health interventions of this decade. Today, nearly 2 million people are being cured with DOTS. Inc icator 1990 1998 Number of countries using DOTS 10 110 cent of TB patients being treated by DOTS Under 1 percent 15 percent Drug costs per patient $40-60 $10-20 E-- emal donor aid to TB control $16 million $70 million 10/23/98 11:44 0202 331 3001 RBV WHO's Challenge Ahead 1. WHO has identified the main constraints that are preventing further progress against the TB epidemic. These are 1) lack of political commitment; 2) lack of human and financial resources; 3) unavailability of affordable and secure supplies of anti-TB drugs; 4) increased multiple-drug resistant TB (MDR-TB); and 5) the HIV epidemic, which is partly fueling the global TB epidemic. $ global strategy is needed to address these constraints, particularly in high-burden countries. 2. WHO's new Director General - Dr Gro Harlem Brundtland - has identified TB as a priority concern or the "renewed" WHO. 3. froundwork must now be established among global partners for a major initiative on TB. The Stop TB Initiative will lay out and prioritize the steps needed to overcome current constraints to 2 ction and provide the basis for a significant expansion of global efforts against TB. 4. The Stop TB Initiative will serve to command increased attention and resources for further i uplementation of DOTS; swiftly establish solutions to sustained global access to anti-TB drugs; lentify cost effective options for addressing MDR-TB and frame a long term vision for a TB desearch and development agenda to include new tools - most importantly an effective vaccine. 10/23/98 11:44 202 331 9097 WHO NSC INTL HEALTH 005/010 THE GLOBAL TUBERCULOSIS EPIDEMIC Burden of disease - There were an estimated 8 million new cases of TB in 1997, including 3.6 million cases of infectious pulmonary disease, and 16.1 million existing cases of disease. - An estimated 2.0 million people died of TB that year, about 1 in 4 cases. TB causes more deaths than any other single infectious agent. - Roughly 1 in 3 people carry the M. tuberculosis bacterium (MTB), i.e. 1.8 billion people. - Countries in South East Asia had the largest number of new cases (3.0 million) in 1997), but the rate per head was highest in sub-Saharan Africa (257/10⁵ persons). - 22 countries had 80% of all incident cases. The leading five together accounted for over half the global total. They were all in Asia: India (1.9 million), China (1.4 million), Indonesia (583,000), Bangladesh (292,000) and Pakistan (261,000). - 1 in every 500 people was infected with both TB and HIV. Three-quarters of a million TB cases (8%) were infected with HIV. The highest rates of co-infection (over 1 in 50 people) were in southern Africa, but India had the largest number of co-infected individuals (1.9 million) and the largest number of HIV-infected TB cases (190,000). - Surveys suggest that about 1 in 10 TB cases is resistant to at least one drug; about 1 in 50 cases is multi-drug resistant (to at least isoniazid and rifampin) - The huge scale of the problem is explained mainly by poor control and population growth in south Asia and sub-Saharan Africa, and high rates of MTB/HIV CO- infection in some African countries. Trends - Without greater control effort, annual TB incidence is expected to increase from about 8 million cases/year in 1997 to 11 million cases/year by 2020. - Reaching WHO targets of 70% case detection and 85% cure by year 2010 could save about 1 in 4 cases (approx. 50 million) over the next two decades. - The incidence of disease is increasing most quickly in African countries that have high levels of HIV (e.g. Malawi, Kenya, Tanzania). It is also increasing quickly in countries where control programmes have broken down (e.g. Russian Federation). 10/23/98 11:45 202 331 9097 WHO NSC INTL HEALTH 006/010 Control - Only about half of infectious cases are treated and cured. The cure rate in DOTS Programmes is much higher than average, typically about 80%. - Approximately half of all countries have now adopted the WHO DOTS strategy. Twenty-one of the 22 highest-burden countries have DOTS Programmes, but most with low rates of case finding and cure. - At present, about 1 in 10 infectious TB cases is cured in DOTS programmes - Among high-incidence countries, the best control programmes are in Peru, Tanzania and Viet Nam, though programmes in Bangladesh and China have expanded rapidly during the 1990s. - Progress in TB control is very slow in the majority of high-burden countries, notably India, Indonesia, Nigeria, Pakistan, Philippines and Russia. NSC INTL HEALTH 007/010 11:45 202 331 9097 WHO 10/23/98 No. 2 Briefing Points for the Director-General's 28 October meeting at the White House With Mrs H Clinton, Mr J Wolfensohn and MrG Soros The Tuberculosis Problem Each year there are about 8 million new TB cases, with about 2 million deaths. Multidrug-resistant TB (MDR-TB) has emerged as a major threat to TB control in some countries, including Russia and the Baltic States. In 1997 an estimated 8% of TB cases were attributable to HIV, the burden falling mainly on sub-Saharan Africa and increasing in other regions, especially the Indian sub- cominent. 11 TB is the biggest single killer of women aged 15-44 world-wide, is the major cause of death among the HIV infected, and is a significant brake on socio-economic development in poor countries as it affects mostly young adults. #: The global response to TB has thus far been inadequate: many poor countries are failing to control it; rich countries are not doing enough to support TB control in the poor countries and, as a result, the prevalence of TB globally remains unacceptably high, and MDR TB is being created and spread internationally. The Current Solution to the TB Problem The DOTS strategy has been shown by the WHO in collaboration with the World Bank to be one of the most cost effective health interventions. Proper case detection and curc of infectious cases are the comerstone of the TB control strategy. Successful implementation of such strategy achieves high cure rates (e.g., 95% cure among a quarter of a million TB patients annually in China). Existing Constraints to the Solution 0 The DOTS strategy is labour intensive, requires direct observation of treatment and strict patient monitoring. Where the prevalence of MDR-TB is high or where HIV infection is widespread, control measures in addition to the DOTS strategy are necessary. Although 97 countries have adopted the DOTS strategy, only 15% of TB patients globally are treated under DOTS because only few countries have achieved full coverage. Governments of high prevalence countries have shown insufficient political will and leadership, and have not allocated adequate financial resources. There is 3 lack of trained human resources and of secure, quality controlled drugs. Inefficient drug procurement systems in most countries result in an increase in the cost of drugs and produce shortages of stocks. BCG vaccine is ineffective to prevent infectious forms of TB, thus it cannot interrupt TB transmission. 10/23/98 11:46 202 331 9097 WHO NSC INTL HEALTH 008/010 Recommended Actions The current global TB control situation is similar to that of vaccine preventable diseases in the mid 1980s. EPI has successfully progressed to achieve the global targets in the early 1990s through global coalition building and country specific social mobilization. Even hough TB control and the implementation of DOTS may be more complicated than EPI operations, through global coalition and country specific social mobilization, DOTS coverage can be expanded to allow achievement of the global targets of 70% case detection and 85% were rate by 2010. Therefore, we recommend the following: WHO, the World Bank and various US agencies and private charitable interests such as the Open Society Institute commit themselves to work together and combine efforts to analyse constraints, prepare, appraise and finance projects that provide solutions and assist countries with high quality technical implementation of TB control. 2. WHO, in partnership with the World Bank, various agencies throughout the world, and other private and public interests will establish a Stop TB Initiative which has the following four components: A global charter for advocacy and commitment to TB control and elimination of MDR- TB. A global action plan to coordinate interaction among international partners to ensure effective TB control A mechanism to swiffly establish global access to anti-TB drugs. A global research agenda balancing short and long-term vision. !. successful Initiative will ensure the following: TB activities at WHO and worldwide are facilitated. Expanded effective TB control in high burden priority countries. Expanded global surveillance of drug resistance and new interventions to treat MDR-TB focusing on Russia and other high MDR-TB burden countries. A global drug facility or direct drug funding to countries in need to ensure the sustained supply of quality, fixed-dose, combination TB drugs. Coordinated approaches to the care and prevention of TB and HIV, especially in Sub- Saharan Africa Improved tools to deliver effective TB control services as an integral part of primary health care. Development of new tools, such as rapid diagnostic tests, drugs and vaccines. , The World Bank's Current Activities in Tuberculosis Control The World Bank is fully committed to fighting the global tuberculosis epidemic. The World Bank's contribution is twofold: through the policy advice it provides to countries, and through country-specific lending. In pursuing TB control activities, the Bank collaborates closely with WHO, NGOs, bilateral and technical agencies. For example, a current Bank project in Latvia will be financing improved TB treatment and surveillance, with technical assistance provided by the U.S. Centers for Disease Control. The Bank is also working closely with partners regarding potential interventions for improved TB control in Russia. The Bank has provided nearly US$ 300 million in financing for tuberculosis control programs since 1989, making it the largest single source of external funding for tuberculosis control in developing countries. About twenty countries are using World Bank financing to implement the WHO- recommended TB control strategy (DOTS). Several new projects are under preparation. Some projects are tuberculosis-specific, but a majority address TB control within broad health sector development and health sector reform projects. The two largest Bank-supported TB control projects are in China and India. These countries are home to more than one third of the world's estimated 8 million new TB cases each year. The project in China was initiated in 1992 and has demonstrated dramatic results with the DOTS strategy: half of the country's population is now covered, and over one million infectious cases have been cured to date. The challenge now is to expand this success to the rest of China and to achieve financial sustainability. In India, the TB control project, which began in 1997, has also achieved excellent results with DOTS in several pilot regions. It has established the foundation for the Revised National TB Control Program, and is providing the impetus for an 8-12 year process of extending the approach nationwide. Political commitment, assured drug supply, health worker training and supervision, patient education and motivation, and operational research are critical to the progress of these projects. The Bank is supporting implementation of the DOTS strategy in countries as diverse as Bangladesh, Cambodia, Cote d'Ivoire, Egypt, Haiti, Krygyzstan, Morocco, Niger, Philippines, Romania, and Vietnam. In some countries, tuberculosis control is intimately linked to prevention and control of HIV/AIDS, and the strengthening of collaborative interventions, education, and referral is critical. 2 d 3561964233 11:00/17 86 26 '01 (NOW) FROM WB EXC 7142 ALFONSE D'AMATO, NEW YORK, CHAIRMAN COMMISSION ON CHRISTOPHER H. SMITH, NEW JERSEY, Co-CHAIRMAN SECURITY AND COOPERATION IN Ben Nighthorse Campbell, Colorado John Edward Porter, Illinois EUROPE Spencer Abraham. Michigan Frank R. Wolf, Virginia 234 FORD HOUSE OFFICE BUILDING Conrad Burns, Montana Matt Salmon, Arizona WASHINGTON, DC 20515-6460 Olympia J. Snowe, Maine Jon Christensen, Nebraska (202) 225-1901 Frank R. Lautenberg, New Jersey Steny H. Hoyer, Maryland Harry Reid, Nevada Edward J. Markey, Massachusetts FAX: (202) 226-4199 Bob Graham, Florida Benjamin L Cardin. Maryland E-MAIL: [email protected] Russell P. Feingold, Wisconsin Louise Mcintosh Staughter, New York EXECUTIVE BRANCH COMMISSIONERS JOHN SHATTUCK, DEPARTMENT OF STATE (Vacant). DEPARTMENT OF DEFENSE (Vacant). DEPARTMENT OF COMMERCE October 9, 1998 - MICHAEL R. HATHAWAY, CHIEF OF STAFF DOROTHY D. TAFT, DEPUTY CHIEF OF STAFF To: K.BERNAI The Honorable Madeleine Albright Secretary of State FYI. Department of State 2201 C Street, NW Washington, DC 20520 Dear Madame Secretary: We are writing to focus your attention on the growing threat of Multiple Drug Resistant Tuberculosis (MDRTB) in the Russian Federation, as outlined in the attached information. We would appreciate learning what initiatives have been undertaken by the United States to help contain and defeat this biological threat. Like the Y2K problem, the MDTRE problem can become a crisis if not addressed in a timely and effective manner. With easy international travel and limited means of protecting people from an airbome pathogen, the incubation and spread of MDRTB in Russia also poses a threat to the health of the U.S. population. Moreover, as the world has seen before in this century, the spread of disease, whether influenza after World War I or AIDS in Africa, can threaten and even upset social, political, and economic structures necessary for peace and security. This medical threat must be addressed now, while it may still be possible to limit the consequences. Given Russia's economic troubles and political uncertainty, a concerted international effort to help the Russian authorities contain the spread of this disease and treat its victims appears to be urgently necessary. Currently, the Open Society Institute of the Soros Foundations is funding a $12 million program to combat TB and MDRTB in Russia. Other NGOs, such as Doctors Without Borders, Medical Emergency Relief International, and the New York Health Research Institute, have already begun studying the issue and have raised the alarm. But the problem is genuinely global in scope and will require assistance from governments. We understand that George Soros is planning in the near future to discuss this troubling matter with Mrs. Hillary Rodham Clinton and World Bank President James Wolfensohn, and to emphasize the necessity of governmental involvement. The United States should certainly take the lead in coordinating the activity of medical experts, foreign capitals, international organizations and NGOs to assess the risk and PRINCETON PROJECT 55 INC. file 5/15 Tuberculosis Initiative Ralph Nader P.O. Box 19312 Washington, DC 20036 May 27, 1998 First Lady Hillary Rodham Clinton The White House 1600 Pennsylvania Avenue NW Washington, DC 20500 Dear Mrs. Clinton, In your recent speech before the World Health Assembly in Geneva, you provided an excellent account of the severity and urgency of many global health crises. We are particularly pleased by your emphasis on the prevention and treatment of infectious diseases like tuberculosis. Major public addresses such as yours are exactly what is now required to revive this nation's awareness of these profoundly neglected health causes. TB is one of the most disproportionately unheeded pandemics, yet it is the world's number one infectious killer and the death toll is rising every year. Few people in this country are aware of the enormous burden TB exacts from the citizens of developing countries, and the clear and present threat that drug resistant strains pose to the health and national security of the United States. TB kills more women than all causes of maternal mortality combined, yet most Americans consider it a disease of the past. The yearly death toll from land mines is matched by TB every single day, however many journalists and even public officials believe we have won the war against tuberculosis. You have the unique capacity to refocus America's attention on health issues of major global importance, and this speech was an exemplary first step. Now, as you said, "We must put our hearts, our minds, and our resources in action." In South America, you witnessed the unprecedented successes that can be achieved through the use of directly- observed treatment for tuberculosis patients. As you saw, the WHO-recommended regimen, Directly-Observed Treatment, Short-course (DOTS) is a very simple system, that the World Bank determined to be one of the world's most cost-effective health interventions. Successful application of DOTS has produced cure rates above 85% in places as diverse at New York, Peru, China, Tanzania, and Bangladesh. In most countries, the overall effect of DOTS on the primary health infrastructure and the incidence of infectious diseases has been remarkable. For the health and stability of developing nations, and to protect Americans from multi- drug resistant TB (MDR-TB), it is time for the U.S. to make a significant investment in DOTS for the most severely affected nations of the world. USAID's new infectious disease initiative is a good beginning, but this pilot project must be expanded to other key regions of the world. MDR-TB is already threatening to overwhelm the public health systems of "hot-zones" such as Latvia, Estonia, Russia, the Dominican Republic, Argentina, and the Ivory Coast. Unless we ensure the rapid application of DOTS in these and other countries, epidemics of MDR-TB will become commonplace in many more countries. A global assault on TB will also require significant commitments from the WHO, and from developing nations. The U.S. should make use of its diplomatic influence to encourage endemic nations to dedicate resources to the control of TB within their borders. Additionally, the U.S. should help to accelerate the introduction of WHO Secretary General-Elect Gro Harlem Brundtlandt's "Roll Back Malaria" and "Roll Back TB" initiatives. Currently the WHO Global TB Programme's total annual budget for the application of DOTS is a paltry $11 million. Dr. Brundtlandt should be supported in significantly increasing funding for the TB program, in accordance with its prominence among causes of death globally. Finally, with the introduction of the President's "Research Fund for the 21st Century," now is the time for the U.S. to make a meaningful investment in research on the infectious diseases of major global health importance identified by USAID's new initiative. DOTS can make a significant impact on the global disease burden, but without an effective TB vaccine, we will not be able to control TB over the long-term. Now that scientists have read the entire genetic code of the TB microbe, the potential for the development of new drugs, diagnostics, and vaccines has never been better. This March, a working group of TB and vaccine experts, convened by Secretary Shalala, met to formulate a national "Blueprint for a Tuberculosis Vaccine," which sets the course for accelerated development of a TB vaccine, but without new funding, this initiative cannot get under way. Thank you, Mrs. Clinton, for your dedication to the health of the world's population. We hope that you will work with us to significantly increase U.S. commitments to global health. Sincerely, Ralph Nader Steering Committee Enclosures: informational packet cc: Mr. Sidney Blumenthal, Dr. Laura Efros, Mr. Tom Friedman, Mr. Leon Fuerth, Mr. David Halperin, Mr. Chris Jennings, Dr. Donald Jordan, Dr. David W. Kampt, Mr. Peter Rundlet, Mr. Eric Schwartz, Mr. Michael Waldman, and Mr. Joel Wilson. I file TB THE WHITE HOUSE WASHINGTON Shalak - Lemons from the us up 'ce - we can't deal w TB in us unless deal asrood Cheques to do in Inden than us - Cent be complacent maiting more costs. - need clear + measureshe - pal. goals will cutient - takesh levely mobil, zaken - Ramia: Diagnosis, etc - real problems time urgent prob. I THE WHITE HOUSE WASHINGTON more from fails r Sanatria to a DOT strategy. - "gali at highest leads' us: $ for research around the world. went to make peagress in us. Bean: prob- hiR- moning to Dols strategy If don't do well - (DOTS) coued be worse drug resistant - often due DOTS misapplied THE WHITE HOUSE WASHINGTON This issue appects all us directly in us This has to be overall stratgic agreement ind - long term - not N hunand's - accelerate dev. ) a global plan -palicyt resource < surveillance septems main - Runi - field sites demo it from CDC, USAID WHO r to Ramia for besement madel for dead THE WHITE HOUSE WASHINGTON Go wito - Con do little alone we Can give 8d advise multi drug reaesice - weakness in strategy nds Buvill'a 9 patients to 6 ms. treatment - nd countries to be active - 22 countries wi highest 7 TB (reen Do TS) how in Norway fear TB + dip herea Ren R, not mindi I THE WHITE HOUSE WASHINGTON nd to Change mechanism to affect new treatments L may be new effort for vaccine world Bal - partnership in w Ho. - in - dealague w Runeins DOTS Drts- plus - nd a special strategy prepared to nicrease fundy In stop TB- They have to do dealy wi countries. Clase Rolal 'nship at AIDS \ [ THE WHITE HOUSE WASHINGTON Soros - got sharted in Pressia - Then realyzed multi drug resister prob. lone showed witred in / since al the same hive - request we from an action plan Heering group - under WHO. need a donors conference to mobilgi pleases support 16 target pro bases for big. Mendahous lished to ding Welcome Just \ THE WHITE house WASHINGTON in R - needs h be a give request - ministry health - can't many one critical pros. ash solely In TB too menistry 9 justice recog'd as the Seggen prob. Saras - should be stranger "teatment"- action plan peas: DOTS DOTS plus HRC - have to raid puslic aware new as a public health issue \ THE WHITE HOUSE WASHINGTON for Bring to atter 9 busanadore to rain with pal. leaders ferious leaders Snos - steering group to freus on Reesea ger anement regard to everyone armed the table. - been ment should Look at Soros projects +30pm European pegies assest hi Ruma [ THE WHITE house WASHINGTON 100c basica effort deserves speel atta. within layer mit 've. [ PRINCETON PROJECT 55 INC. Tuberculosis Initiative Project Managers Celine Gounder Scott Regenbogen 1600 20th Street NW Center for Civic Leadership Washington, DC 20009 32 Nassau Street (202)588-7748 Princeton, NJ 08542 fax: (202)588-7798 (609) 921-7812 [email protected] fax: (609) 921-2712 [email protected] HOW IS PRINCETON PROJECT 55 A FINAL WORD PRINCETON PROJECT 55 FINANCED? We are Democrats, Republicans, Independents and and its none of the above. 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The leaders of these programs see mentoring as are available to assist other public interest projects on a focus on systemic change rather than treating a "foot in the door" for a variety of interventions designed shared cost basis. By locating in Princeton, the Center symptoms to re-instill hope and accomplishment in the lives of our benefits from the intellectual resources of the University inner-city children. hold promise of significant impact and its students and faculty. Service Exchange Program. The Service Exchange encourage and utilize community participation Program enables citizens in impoverished areas to provide opportunities for substantial involvement by provide needed services to each other on a barter Princeton students and alumni basis. Every hour of service given by a participant Princeton Project 55 was born of the realization that there entitles that participant to an hour of service in return. is a vast untapped resource, available for the public be non-partisan For example, a resident who does shopping for an good. among women and men of our generation. We elderly person who is incapacitated might receive are prepared to devote a larger share of our time and The Public Interest Internship Program places babysitting servicesi return. All ecords are maintained energy to preserving and improving a world from which Princeton students and recent graduates in summer in a central computer, and the program is administered Internships and full-year Fellowships with public interest we have received so much. We believe that the by a local agency. The program not only provides organizations across the country. Interns and Fellows needed services, it also rebuilds a sense of community knowledge and experience we have accumulated can work for groups selected by Project 55 for the quality of among the participants. PP55 has organized three be used to find new solutions to difficult problems. their work and their emphasis on finding systemic service credit programs in New Jersey and is working to solutions to the problems they address. Project 55 establish another in Atlanta. We believe that in a society that has recently been members and other Princeton graduates serve as characterized by so much greed and self-interest, many mentors, orienting Interns and Fellows to the Outreach. Project 55 has encouraged and assisted of the young men and women who are now graduating communities where they work and meeting with them the formation of similar projects by other alumni groups on a regular basis during their service. both from Princeton and other colleges and universities. from Princeton and other colleges and universities across the country are seeking guidance and opportunities to The Public Interest Program has been hugely Representatives of over 50 other universities have successful. The number of applicants and placements attended PP55 conferences. The Princeton Club of contribute to the public good. We believe we can have increased dramatically since the program began Chicago has launched a major educational effort in respond to their needs. in the summer of 1990. The program both helps the host an inner-city high school and co-sponsored a three- organizations and introduces increasing numbers of day seminar on urban problems. The Harvard Law Princeton Project 55 and its Center for Civic Leadership Princeton graduates to public interest work. Asignificant School Class of 1958 has formed Project Appleseed to are our effort to transform these beliefs into reality. number of participants have decided on a public organize centers for public interest law. ReachOut 56 service career as a result of their experience. Many has been established by the Princeton Class of 1956, more will be motivated to participate in public service and Yale has formed its own Project 55. on a volunteer basis while pursuing other careers. It is Program Development. Project 55's Program "You're going to be saying something that is profoundly the goal of the Public Interest Program to provide a Development Committee evaluates additional relevant to American life at this moment. This is an era of meaningful public interest experience to 10 percent of program proposals against the criteria described above non-commitment. You will be saying that commitment each Princeton graduating class by 1995. in light of such factors as cost, practicality, and the matters. This is an era of self-preoccupation. You will be presence of a "passionate leader" whose devotion Character Education. Princeton Project 55 took the saying that self-absorption is not enough. This is an era of and enthusiasm are essential to the success of any leadin organizing The Character Education Partnership, disintegrating values. You will be saying that we do have project. The committee also provides program a nonpartisan, nonprofit coalition of individuals and shared values worthy of commitment, even sacrifice. development assistance and support. organizations, including prominent national education You will be saying that shared effort to solve our problems associations. The Partnership encourages schools Princeton Project 55 is not a grant-making foundation. is not a hopeless venture." throughout the United States to initiate or strengthen Its resources are used to maintain the Center for Civic K-12 character education. By stressing such commonly Leadership and provide coordination, assistance and John W. Gardner held values as honesty, responsibility, perseverance seed money for its projects. With the exception of a (Addressing Princeton Project 55) and respect for self and others, character education small paid staff, the time devoted by members and has proved successful in (a) reducing student violence, associates to Princeton Project 55 programs is donated. pregnancy, substance abuse and disrespect, (b) Many projects will require additional funding from improving academic performance, and (c) preparing outside sources, and it is the responsibility of each young people to become responsible citizens. project team to raise those funds from independent public or private sources. file TB October 6, 1997 Melanne Verveer, Chief of Staff Office of the First Lady The White House Washington, D.C., 20500 Dear Melanne: That was an encouraging telephone conversation we had about the First Lady possibly engaging the scourge of tuberculosis worldwide and its drug resistant strain. A number of Administration officials made the suggestion that Hillary Clinton could make a major contribution to raising the visibility of that challenge within the govern- ment and the general public. As I mentioned, the entire area of global infectious diseases and the increasing resistance that these organisms are displaying should be- come a new and major pillar of American foreign policy. Just TB and malaria are taking five and one half million lives a year. With more international travel, even nations with well developed public health systems are becoming more vulnerable, according to recent studies. So, for starters, I am enclosing a very concise and readable collection of materials on TB prepared by Princeton Project 55 (also described herein) and the Project Managers--Celine Gounder here in Washington and Scott Regenbogen in Princeton, New Jersey. It would be useful if the First Lady were to spend a few minutes perusing these fact sheets. Please let me know if any action is forthcoming or any interest is incubating. Her trip to Central Asia takes her to a region where TB is all too pre- valent. Ralph Ralph Nader PO Box 19312 Washington, D.C., 20036 Enclosure--TB packet WORLD REPORT tough, lodging itself within the lung, Fighting TB: a second where it is contained indefinitely by the body's immune system or, for an unlucky 10 percent, breaks out into active, infec- tious tuberculosis. With the drugs found chance to do it right at midcentury, TB mortality in developed countries dropped sharply. In the United States, TB deaths fell from almost 20,000 in 1953 to below 2,000 in the 1980s. But the foe now includes 'Ebola with wings' Many richer nations, including America, considered TB defeated and began cutting research and treatment funds. GILBERT-SYGMA But the disease continued to thrive in the developing world, where incomplete treatments were common. From a public- health standpoint, faulty treatments-in which some patients would neither die nor be cured-turned out to be worse than no treatment at all. Statistically, if 10 people were left untreated, 5 died and 2 remained uncured and infectious (the other 3 were cured by their own natural defenses). But of every 10 on an incom- plete drug regimen, only 2 died while 4 remained uncured and infectious. One in- fectious person typically would infect 10 to 15 additional people in a year. Thus in- adequate treatments tended to double the rate of transmission. They also created drug-resistant strains. The calamity, says Dr. John Sbarbaro of the University of Colorado, has been "a global failure of politicians, a failure of public health, and a failure of physicians." Today, the WHO estimates that 50 mil- The new campaign is aimed at curing millions of TB victims like this man in Somalia. lion people carry the extraordinarily du- rable form of tuberculosis known as MDR, Last week, the World Health Organiza- or multidrug-resistant TB. The several BY TIM ZIMMERMANN tion urged the expansion of an anti-TB million in the developing world who get ollywood screenwriters might favor strategy that has the potential to cure active MDR-TB will be as good as dead. H newer and more exotic bugs. But nearly every person treated, except for Elsewhere, even in good hospitals, MDR the infectious disease that ranks as those with the new superbugs. Known as treatment can cost $250,000 a patient, the world's deadliest is very old and DOTS-Directly Observed Treatment, and still some 40 to 50 percent will very familiar, a plague spread by mere Short-course-the approach relies upon die. "It's like Ebola with wings," warns coughing and sneezing. Hippocrates the careful monitoring of patients for six Richard Bumgarner, deputy director of called it phthisis ("shriveling and wasting to eight months as they take a daily dose the WHO's Global TB Program. "And once away"). Victorians called it consumption. of four different drugs. The hope is that 7 that MDR epidemic is created outside our In 1900, not long after people began call- of every 10 TB victims will receive the borders, there is no way to protect ing it tuberculosis, it accounted for 1 in 7 treatment over the next decade and that the U.S." deaths in America and Europe. But when 10 million lives thus will be saved. A brief resurgence of TB in the United a drug-based remedy emerged at mid- DOTS isn't new. More than 70 nations States caused by the AIDS epidemic has century, the scourge suddenly seemed have used it this decade, and data now been brought under control. But the Cen- doomed-only to bounce back. show its effectiveness in places as differ- ters for Disease Control and Prevention Today, the TB microbe is harbored by ent as New York City and Peru. But the says outbreaks of MDR continue. up to 2 billion people, about a tenth of approach is being used for only 1 in 10 TB If this were Greek tragedy, there would whom will become sick and infectious. sufferers worldwide. The WHO initiative be no second chance. But decades after Each year, TB claims nearly 3 million targets 13 countries-including Russia, researchers developed the drugs neces- lives-which is more than all other infec- China, and Mexico-that harbor three sary to treat tuberculosis, DOTS repre- tious diseases combined. Worse, shoddy fourths of the world's estimated 20 mil- sents a cost-effective strategy to redress treatment has spawned drug-resistant lion active TB cases. The additional cost the policy failures of the past. Whether strains that are virtually incurable. "It's a would be about $100 million a year. the strategy is widely implemented is a re- scary story," says John Crofton, an Edin- Lung wrecker. DOTS may be a therapeu- peat test of global priorities for the politi- burgh clinician who 40 years ago helped tic breakthrough, but the history of ef- cians. Whether the right antibiotics to prove that a cure was at hand. "And what's forts to stamp out tuberculosis is a tale of treat multidrug-resistant TB can be found so tragic is that it is preventable." hubris. The TB bacillus is insidious and is yet another test for the scientists. U.S.NEWS & WORLD REPORT. MARCH 31, 1997 45 The Washington Post June 24, 1997 Controlling Infectious Diseases David Brown ably chronicles specif- the health and economic well-being of ic progress made against infectious Americans is immense, but we are diseases such as leprosy and river not doing nearly enough to control blindness but overall paints too rosy a them. It is particularly appalling that picture of the future ["The Long there is no global system for surveil- March Toward Stamping Out Infec- lance and control of infectious disease tious Diseases," news story, June 2). outbreaks. The patchwork of uncoor- New evidence is beginning to sketch a dinated agencies and programs should truer and more frightening picture. be linked with a global information Ln the 1970s, with the eradication network. and public health systems of smallpox and the discovery of the should be greatly boistered in coun- polio vaccine, it seemed that infec- tries where potentially catastrophic tious diseases would be eliminated by diseases such as AIDS and the Ebola the year 2000. Since then the medical virus originate. world has identified some 30 new diseases, and multidrug-resistant The government and the pharma- forms of TB. malaria and other dis- ceutical industry need to work togeth- eases once thought to be under con- er. While firms such as Merck have trol threaten to overwhelm fragile donated drugs to fight river blindness, health systems in many countries. corporate generosity is not a substi- Infectious diseases today kill 17 mil- tute for creating the financial incen- lion people each year. With 2 million tives for developing new drugs and people crossing international borders building the local infrastructure for every day, stopping these microbial distributing them in needy countries. threats at our borders is not a realis- PATRICK LEAHY tic option. U.S. Sentor (D-Vt) The dangers these diseases pose to Washington FINANCIAL TIMES MONDAY MARCH 24 1997 Action on TB would bring big economic returns, says WHO By Clive Cookson, TB worldwide: DOTS can turn the tide lowing every dose and moni- clear evidence even 10 per Science Editor tors his or her progress until cent use of DOTS has led to TB cases (m) the disease is cured. a levelling off of the world- Effective tuberculosis 8 This strict supervision is a wide TB epidemic after control programmes would Without DOTS striking contrast to what decades of growth. "We now bring huge economic returns happens today in India and know that if we use DOTS as well as health and social many other developing coun- more widely, we can send 6 benefits. according to a Current tries: doctors prescribe anti- the epidemic into decline report released by the World DOTS impact biotics in a haphazard way and can save many millions Health Organisation and they make little effort to of lives in the next 10 years," today. World TB day. 4 ensure that the patients take he says. Tuberculosis kills an esti- the whole course. As a The WHO's target is to Impact If DOTS mated 3m people a year is used more widely result, people stop taking the raise the DOTS treatment more than any other infec- drugs when they feel better rate from one in 10 to seven 2 tious illness. but before the TB bacillus in 10 patients worldwide. The first detailed eco- has been eliminated from That could halve the number nomic study of TB treatment their body. total of new TB cases, Dr's has been carried out for 0 Then, after a while, the 1990 95 2000 05 10 15 20 Kochi says. WHO in India, where about disease returns - sometimes The world's governments 30 per cent of the world's Source WHO in a drug-resistant form and aid agencies would need tuberculosis cases occur. It more difficult to treat. to spend an additional $500m shows that. if the Indian carried out the Indian study account between them for At present DOTS is used a year to achieve a 70 per government spent $200m a with Professor Ravindra over 40 per cent of the for no more than 10 per cent cent DOTS treatment rate. year on an effective control Dholakia and colleagues at world's TB. of the world's TB patients, says Dr Almeida an insig. programme. the tangible the Indian Institute of Man- WHO's recommended con- although the latest WHO sta- nificant amount compared benefits to the economy agement, Ahmedabad. trol strategy is DOTS tistics show that it is far with the projected economic would he worth at least A similar study, soon to be (directly observed treatment more effective than other gains from having millions $750m a year and might be published for Thailand, will short-course). This requires approaches. of people working healthily much greater. show a larger benefit per each patient to take a com- It typically achieves cure instead of sickening or dying Comparable benefits for patient there than in India bined dose of four powerful rates of 80 to 90 per cent, from TB. The Indian study the world as a whole would because average income is antibiotics every day (or on compared with about 40 per shows economic benefits run to billions of dollars a higher. Dr Almeida says. alternate days) for six to cent for unsupervised treat- would justify spending as year and could exceed $20bn The same would apply) to eight months. ment. much as $750m a year on TB a year. says Dr Joel Almeida, other rapidly industrialising The main feature of DOTS Indeed Dr Arata Kochi, control in India, assuming a medical officer at the WHO Asian countries such as is that a health worker director of the WHO global "discount rate" as high as 16 global TB programme. who China and Indonesia, which observes the patient swal- TB programme. says there is per cent. Herald INTERNATIONAL Tribune PUBLISHED WITH THE NEW YORK TIMES AND THE WASHINGTON POST TUESDAY, MARCH 18, 1997 Russian Prisons Breeding Drug- Resistant Tuberculosis, Officials Warn By Barry James which will be made public in Berlin on fore they are sentenced because of over- International Herald Tribune Wednesday. crowding, poor hygiene and lack of de- "The recent dramatic increase in TB cent nutrition in holding prisons. Russian prisons and labor camps have cases is a clear reflection of the eco- Dr. Kluge said that from a public become incubators of virulent, drug-res- nomic turmoil and social upheaval in the health point of view it was better not to istant tuberculosis that is spreading Russian Federation since 1990," the re- treat the infected prisoners and allow through the region as prisoners are re- port says. them to die, rather than give them partial leased, officials in Moscow and at the Figures given by Alexander Khomen- drug treatment that built up resistance to World Health Organization said ko, director of Russia's central research the disease and spread it among the Monday. institute of tuberculosis, indicate that the population. The Moscow Center for Prison Re- rate of TB in the general population may Doctors Without Borders runs a treat- form said 2,481 of every 100,000 pris- almost have tripled between 1991 and ment program at the Mareensk special oners contract TB, but at some labor 1996 to 70 cases for every 100,000 TB camp in central Siberia based on camps the question is almost not whether people in the Russian Federation. multiple drug therapy. but Dr. Kluge prisoners will catch the disease but This is between four and seven times said sputum samples sent to Belgium for when. higher than the figures reported in most analysis indicated that some prisoners Russia has a prison population of Western countries, where the disease is had acquired resistance to the entire more than one million. largely controlled by multiple drug ther- panoply of drugs. The situation is even worse in some apies but is nevertheless becoming an The Mareensk program reaches only other regions of the Commonwealth of increasing public health hazard. In 1995, 400 of the 2,000 prisoners at Mareensk, Independent States. The International the last year for which figures are avail- but Dr. Kluge said he was trying to Committee of the Red Cross, which ad- able. the United States reported 8.7 cases persuade authorities to expand it to pre- ministers a treatment program in Baku, of TB per 100,000, a total of 22,860 vent continual reinfection. The camp, Azerbaijan, reported recently that there cases, of which 4.1 percent were in cor- built for 700, is so overcrowded that were 4,667 cases of TB for every rectional institutions. prisoners sleep in shifts. and some rent 100,000 prisoners - 50 times higher Dr. Hans Kluge, Moscow coordinator out their beds by the hour. Nevertheless. than in the general population with a for Doctors Without Borders, said that in prisoners consider they are better off 25 percent mortality rate. some regions, 60 percent of TB patients there than in the labor camps and de- In Kazakstan. the government last were former prisoners. liberately avoid taking medication or year released about 56,000 prisoners un- If we want to break the chain of fake their sputum tests in order to avoid der an amnesty, many of them suffering transmission, we have to tackle the prob- being sent back. from drug-resistant tuberculosis, ac- lem at the root, in the prisons,¹ he It is a disaster." Dr. Kluge said. "In cording to the Global TB Education said. January and February this year, 115 pa- Fund in Washington. Nick Banatvala of Medical Emer- tients died. It's a real cemetery." The fact that prisoners are spreading gency Relief in London, which operates He said that hundreds of TB victims the disease among the general popu- a TB treatment program among the gen- were awaiting admission to Mareensk, lation after their release is one reason eral population, said there was a "tre- and in the meantime spreading the dis- along with the collapse of medical ser- mendous need" for good work in the ease in other camps. The problem was vices and general poverty - why "TB prisons, where the disease was mostly compounded by homosexuality and rates are climbing back to levels of 20 affecting young male adults. promiscuity in the camps, he added. years ago, spawning the highest mor- Valeri Sergeyev of the Moscow Cen- A principal means of spreading the tality rates in Europe and taking the lives ter for Prison Reform said many pris- disease. Dr. Kluge said, were prison of those in their most productive years. oners can expect to contract TB. which is trains where detainees were crammed 30 according to the WHO's 1997 TB report. spread by an airborne bacillus, even. be- into a compartment. FRONTIER POST Pakistan Monday, March 24, 1997 World TB day being observed today The scourge that kills 100,000 in Pakistan annually By Dr. KHABIR AHMAD years later. the effective tools and infectious cases. so that they can PESHAWAR - Tuberculosis - medicines discovered long ago for be cured. assumed by many as a disease of fighting TB. are not being put to 2. The patients must be OB- the past. poor and poets - has proper use." he said. SERVED and recorded swallowing become the world's leading infec- This year. the core theme of each dose of their medicines by a tious killer, claiming nearly three the day IS "Use DOTS more wide- health worker million people in 1995 and likely ly" DOTS (Directly Observed 3- TB patients must be provid- to kill at least 30 million people in Treatment Strategy) which was ed treatment within a system that the next 10 years. If the current endorsed by the WHO in 1993 ensures that they are being cured trends continue. when It declared TB as a global 4- The correct dosage of anti- According to World Health emergency, involves health work- TB medicines - known as Organisation (WHO). one-third ers or family members watching SHORT-COURSE chemotherapy the world's population - about 2 patients take each dose of anti-TB - must be used for the right billion people - have already in- drugs and monitor patients' length of time. fected with tuberculosis. progress until the patients are 5- Governments must support "Someone IS infected with TB cured This supervision must con- the DOTS strategy emphatically every second. Left untreated, one tinue every day for the first two and make TB control a high prior- person with active TB will in fact months and, ideally. for all SIX ity 10 to 15 people in a year's time. months of treatment As far as Pakistan IS con- Like the common cold. TB Dr Kochi said that DOTS cur- cerned. "TB is back with a spreads through air and by rela- rently covered only about 10 per venguance, claiming 100,000 lives tively casual contact." says WHO. cent of the worlds population every year." says Dr M.A. Barzgar, The World TB Day. being ob- "DOTS has doubled cure rates WHO representative to Pakistan served worldwide today reminds in Tanzania. China and New York Talking to The Frontier Post by is the fact that more than 40 City. Many other countries have Telephone. Dr Barzgar said: "At years after the discovery of drugs also started adopting the DOTS least 15 million people are al- that can wipe out TB, the disease strategy and are also achieving ready infected with TB to which continue to kill more people than higher cure rates" he said 400,000 new cases are added ev. ever. It reminds us that the TB adding that the DOTS strategy ery year." epidemic IS still out of control. was able to cure as mucn as 95 "If we don't take appropriate The day. according to Dr Arata per cent of all TB patients - measures, the TB epidemic could Kochi. the WHO director of global twice as many as any previous only get worse," he warned TB programme. gives us an op- anti-TB strategy. TB medicines According to Dr Barzgar, the portunity to help break this SI- can cost as little as $11. day IS aimed at generating public lence and stop the spread of tu- DOTS strategy of the WHO has awareness that TB today IS a berculosis five main elements. problem that will not wait. The This day IS the anniversary of 1- The first priority for every TB, he said. was frustrating killer the discovery of the cause of TB programme must be to DIRECT and stressed the need for adopt. in 1882. "Ye!, over one hundred attention toward identifying sick. ing the DOTS strategv The Indian Express SATURDAY, APRIL 5, 1997 Tuberculosis time-bomb Fight it globally, fight it at home I T is tuberculosis more than any other disease maturely and get saddled with multi-drug-resistant that underlines John Donne's pragmatic obser- TB. Thirdly, there has been a general failure of vation that no man is an island. The time-bomb diagnosis. For this, both patients and medical per- ticks, not just for some forgotten hill tribe, but for sonnel have to blame. Social prejudice has meant the residents of New York and London, Chennai that those afflicted by TB present themselves to and Dacca; not just for the refugee from regions medical attention only in the later stages of the dis- that exist below the poverty line, but for the well- ease. Even then their condition could remain unde- heeled and well-fed. Today this 19th century mala- tected because of tardy data-collection. A proper dy, that once went by the romantic term 'consump- sputum examination is the only way to diagnose 'tion', is killing more people in the world than ever TB accurately, yet many doctors continue to before. What is worse. it has combined with late- depend on X-ray reports emanating from faulty 20th century killers like AIDS to wreak further equipment. Thus valuable time is lost, even as more damage. A person afflicted by AIDS is ten times people are exposed to the contagion. more likely to contract TB than others. The battle against the disease world-wide has to The roller-coaster ride of this centuries-old dis- be waged particularly hard in this country, which ease may appear strangely out of sync with the has an estimated 14 million TB patients. Every promise of modernity. The hopes raised by the year at least five lakh Indians die of it. It is an unre- identification of the TB bacillus by Robert Koch in lenting epidemic that few speak about, an epidem- 1882 and the discovery of rifampicin as an effective ic that hasn't been controlled in these 50 years of drug against the disease in the late 1960s seem to independence. The National Tuberculosis Control have been belied. There are three main reasons for Programme and its recently revised version have this. The first, of course, is the highly contagious often been a charade of simulated sputum samples, nature of the disease and the close proximity with broken-down X-ray equipment and a severe short- which human beings live and work together in a age of medicines. If there is a glimmer of hope in world where an estimated one-third inhabitants car- all this it is the internationally recommended ry the TB bacilli. The second, even more tragic, breakthrough in TB control known as Directly aspect is that the battle against the disease the world Observed Treatment Short-course or DOTS. The over has been an extremely half-hearted one. Time strategy here is to merge conventional multi-drug and again, once the obvious symptoms of the dis- therapy with a new management system that ease like bouts of coughing disappear, patients ensures the monitoring of each TB patient until he, imagining they are cured give up medication pre- or she is certified as cured. INTERNATIONAL Herald Tribune PUBLISHED WITH THE NEW YORK TIMES AND THE WASHINGTON POST London. Thursday, March 20, 1997 WHO Hails Advance in Tuberculosis As Milestone TB: World Health Organization Hails a Treatment That Could Save Millions of Lives By Alan Cowell health radar screen" in the 1960s and and asphyxiation. Patients also display New York Times Service 1970s amid widespread assumptions it wasting as muscle tissue is eaten away. was under control. According to the World Health Or- GENEVA - Claiming "the biggest Only in the early 1990s, when "huge ganization, the disease dates back about health breakthrough of this decade,' increases" in tuberculosis cases began 6,000 years and was once known as the the World Health Organization forecast to be identified in New York City, did "white plague." Wednesday that millions of lives could health officials focus anew on the dis- It was so much part of the fabric of be saved over the next 10 years through ease, Dr. Nunn said. 19th century European society that it a tuberculosis treatment that has been He added that tuberculosis claims 2 to inspired poets and musicians in works field-tested in such disparate places as 3 million deaths per year from a re- including Puccini's opera "La Bo- New York City and rural Tanzania. ported 6 to 8 million cases. heme. Researchers said the benefits of the In an interview, Dr. Nunn said that In the early 20th century, richer pa- system. known as Directly Observed several factors explained the worldwide tients were confined to sanatoriums Treatment Short-course. or DOTS, have upsurge in the ailment in the 1990s. such as the institution depicted in become apparent only in the past few These included the spread of the HIV Thomas Mann's novel, "The Magic months as a mass of new data has shown virus resulting in reduced natural im- Mountain." dramatic increases in the numbers of munity, immigration from developing These days. Dr. Nunn said, tuber- people cured as a result of the regi- to developed countries and the break- culosis claims more lives than AIDS. He men. down of health-care systems in Russia said a full one third of people stricken The new treatment and management and parts of Eastern Europe following with the HIV virus - and thus sus- regime is based on close monitoring of the collapse of communism. ceptible to infection - die from tuber- tuberculosis patients to ensure that they The epidemic "has been running un- culosis. fully complete a course of powerful abated in most of the world's countries An assessment by the World Health medication lasting six to eight months. and has even begun to worsen in Eastern Organization published Wednesday In the past, said Dr. Paul Nunn, the Europe and parts of Western Europe," called the disease the "leading infec- head of the World Health Organization said Jaap Broekmans, an official who tious killer of youths and adults' in the Tuberculosis Research and Surveil- helped in the development of the DOTS world, claiming most of its victims lance Unit here, patients who failed to strategy. According to Mario Ravigli- among economically active people pre- complete such courses ended up gen- one, a medical officer at the World dominantly in the Third World. erating drug-resistant and incurable Health Organization, recently compiled The DOTS program centers on the strains of the disease. data from surveys of 98 percent of the use of four established, low-cost tuber- The new system - in use in 70 of the global population show that the new culosis drugs - isoniazid, rifampicin, world's 216 countries and territories - treatment and management system pro- parazinamide and either ethambutol or differs markedly from other forms of duces cure rates of 77 percent, com- streptomycin - taken in conjunction. treatment where the therapy regimen is pared with 41 percent from other pro- An advantage of the system, Dr. Nunn not standardized or where tuberculosis grams to combat tuberculosis. said, is that the full course of treatment treatment centers on mass scanning of The highest rate using the new system can cost as little as $11. much less than the population by X-ray and institu- was recorded in the mid-1990s in China, other cures. tionalization of infected patients, re- Dr. Nunn said, in a project where 95 Under the new system, health officers searchers said. percent of 114,000 people infected with must physically witness a patient taking The development was revealed si- tuberculosis were cured. a full course of medication. multaneously at the World Health Or- Hiroshi Nakajima, the director-gen- "The most important thing is to hold ganization headquarters in Geneva and eral of the World Health Organization, on to the patients,' Dr. Nunn said. at the institute in Berlin named for said in a statement that the new system "People take drugs for a month and feel Robert Koch, the German physician was 'the biggest health breakthrough of much better and think, 'Why should I go who announced his discovery of the this decade, in terms of the lives we will on seeing this health worker?' In fact. bacilli causing tuberculosis on March be able to save." by breaking off a course of treatment. 24. 1882. Dr. Nakajima said the organization Dr. Nunn said, patients encourage drug- Since then. the disease has killed un- anticipated that "at least 10 million resistant, incurable tuberculosis. told millions of people, said Dr. Nunn. deaths" would be prevented in the next The DOTS program is billed by the but ``completely fell off the public 10 years "with the introduction and World Health Organization as a break- extensive use" of the new strategy. through in part because other research Tuberculosis is an infectious disease has not so far produced a vaccine to almost always transmitted through air- prevent tuberculosis. borne bacteria from an infected person. "Prevention lies in the cure," Dr. It destroys the lungs. leading to bleeding Nunn said. "If you cure patients, you prevent them from transmitting the dis- ease. Newsday March 20, 1997 WORLD'S TB EPIDEMIC COULD HIT 9 MILLION by Laurie Garrett, Staff Writer The world's tuberculosis epidemic will top nine million active cases annually within 20 years if governments fail to swiftly change the way they handle the disease, according to a report released yesterday by the World Health Organization. In countries using appropriate TB control measures - called Directly Observed Therapy - TB is leveling off and the incidences of drug-resistant forms are at manageable levels. Currently, there are 7.5 million active cases of TB worldwide. But several countries refuse to use the labor-intensive DOT to treat what Richard Bumgarner, WHO's TB deputy director, calls "ebola with wings." The reference is to TB's airborne contagion and 50-percent lethality if untreated. The refusal seems part economic, part philosophic. For example, Russian authorities insist that TB's spread is due to poverty and poor housing rather than to improper treatment. And, they say, the appropriate cure involves months or years of quarantine in sanitoriums, where patients are given a succession of antibiotic treatments. "The patients are charged for everything, including the drugs. When they run out of money, they're kicked out of the institutions," Bumgarner said. Under DOT, properly medicated patients can live at home because the medication renders them noncontagious. The DOT system of daily monitoring to ensure proper use of four antibiotics proved its worth in New York City. Through DOT, and at a cost of about $1 billion, New York's early 1990's epidemic was controlled by 1994. The incidence of TB in Russia in 1995 was 6 1/2 times that of the United States. Several other Eastern European countries have even higher rates. Latvia, Lithuania and Moldova report TB rates that are 7 1/2 times greater than in the United States and Romania's TB rate is nearly 12 times greater, according to WHO. In the short run, Bumgarner said, persuading governments to switch to DOT could not only save lives, but prevent the otherwise inevitable spread of drug-resistant TB into Western Europe. TB Weekly April 1, 1996 Epidemiology TB Rates in U.S. Drop but Authorities Fear Complacency The renewed fight against tuberculosis (TB) in the U.S. is yielding results, with the number of cases dropping for the third consecutive year, but experts said another lapse in complacency could be lethal. According to statistics released by the U.S. Centers for Disease Control and Prevention (CDC), there were 22,812 new TB cases in 1995, a six percent drop from 1994. The rate per 100,000 people fell to 8.7 from 9.4. The goal remains elimination - less than one case per 100,000. But several barriers remain, according to doctors and public health experts at a conference in Washington, D.C., marking World Tuberculosis Day. Tuberculosis killed three million people and made eight million sick in 1995, the World Health Organization (WHO) said. WHO projected it would take $500 million a year to bring the epidemic under control globally. In an age of international travel and migration, no single country can wipe it out alone, experts from the CDC, American Lung Association and Pan-American Health Organization said. Perception is part of the problem. Effective drugs have been available to fight TB for 50 years and health authorities had begun to think of the lung disease as a vanquished enemy, a problem of the past. But as soon as they let their guard down, TB re-emerged as a serious health threat. The problem was exacerbated by the AIDS epidemic because AIDS patients are particularly vulnerable to TB. "The 20 percent resurgence of TB in this country from 1985 to 1992 after more than three decades of steady decline clearly demonstrates the high price of complacency," Dr. Kenneth Castro of the CDC told a news conference. "To be successful in this battle we must refrain from premature declarations of victory, which lead to complacency." Doctors are also alarmed that there are more strains of TB resistant to standard drugs and they fear that if lowered vigilance results in another surge of cases, drug resistance will be an even more treacherous problem the next time around. INDIANAPOLIS STAR Indianapolis, IN Thursday, March 20, 1997 TB epidemic exploding in Russia Global threat of disease leveling off due to better Return of tuberculosis treatment, but Eastern Tuberculosis claims as many as 3 million lives each year. Thirteen countries are Europe headed for 'crisis. home to nearly 75 percent of the world's TB cases. By Paul Geitner ASSOCIATED PRESS Russia BERLIN - Better treatment Pakistan China has stabilized the spread of tuber- Mexico culosis worldwide for the first time Ethiopia The Philippines India in decades, but U.N. health offi- Zaire Brazil Bangladesh cials said Wednesday that a grow- Thailand ing TR epidemic in Russia is South Indonesia threatening Europe. Africa The global TB epidemic has lev- Source: World Health Mization eled off because health care work- ers are being trained to make sure Associated Press patients take the full, six-month losis explosion there. Although effective and afford- course of medication. World Since 1991, Russia has seen a able drugs have been available Health Organization officials said 70 percent rise in TB cases and'a since the 1950s. they generally at a news conference. 90 percent jump in TB death must be taken for six to eight They said widespread use of the rates. said Richard Bumgarner. months. Many patients, especially new "DOTS" - or Directly Ob- deputy director of the WHO's in poorer countries, stop taking served Treatment. Short-course Global TB Program. them as soon as they begin to feel - method could cut the number Lethal drug-resistant strains better because of the inconve- of TB cases in half over the next account for 6 percent of the TB nience or to save money. decade. saving 10 million lives. as cases in the Baltic country of Lat- That allows the stronger TB well as prevent the development of via, 14 percent in Estonia and 18 germs that resisted the initial drug drug-resistant strains. percent in Lithuania, he said. onslaught to reproduce. making it But the method is still not being "Make no mistake," Bumgarner harder. if not impossible. to cure used in Eastern Europe. and eco- said. "Europe has been heading later. nomic and social upheaval in Rus- slowly but surely to another TB Fully adopted in the United crisis." sia and other former Soviet bloc States and elsewhere since the countries since the end of commu- Tuberculosis. the world's top early 1990s. the DOTS method nism has contributed to a tubercu- infectious killer. is spread through involves better identification of TB coughing and sneezing and can be cases and training of people to highly contagious. administer medication. Attachment 5 Foreign Operations Subcommittee Hearing "Combating Infectious Diseases" May 15, 1997 Witnesses Dr. Barry Bloom, Investigator, Howard Hughes Medical Institute; Professor of Microbiology and Immunology, Albert Einstein College of Medicine Dr. David Heymann, Director, Division of Emerging and Other Communicable Diseases Surveillance Control, WHO Dr. Nils Daulaire, Chief Health Policy Advisor, USAID Dr. Gordon Douglas, President, Merck Vaccines Dr. John Sbarbaro, Professor of Medicine and Preventive Medicine, University of Colorado Health Sciences Center Dr. Barry Bloom discussed three major infectious diseases that he felt most needed to be addressed in developing countries: tuberculosis, AIDS, and malaria. Dr. Bloom suggested that three major WHO extrabudgetary programs be considered for increased financial support, including the WHO Global Program for Tuberculosis (GTB). In Africa, he noted, TB is the most common cause of death among those infected with HIV, killing 30% of AIDS patients there. In addition, multi-drug resistant strains of tuberculosis are now emerging, as seen recently in New York. Unless drug treatment is properly supervised, tuberculosis becomes rapidly resistant to the only drugs available. Directly observed treatment prevents emergence of resistance and leads to cures in over 85% of tuberculosis patients, rendering them non-infectious within a month. In the long-term, efforts should be made to develop an effective vaccine. Dr. David Heymann outlined a global framework for surveillance and control of infectious diseases, which WHO is putting in place. Dr. Heymann noted that within a year, there have been 27 infectious disease outbreaks in addition to the heavy burden of underlying diseases. Included among these is TB, the spread of which is now facilitated by HIV infections. Dr. Heymann emphasized the need for strengthening public health infrastructure. He explained that WHO's programs should be empowered to help in strengthening national capacities to detect and control infectious diseases. He also stated that the WHO's existing infectious disease monitoring networks and computerized information systems should be expanded. Dr. Nils Daulaire noted that in FY 1996, USAID devoted approximately $320 million to infectious disease programs. USAID's approach to infectious diseases consists of four elements: basic prevention through changing the conditions that allow infectious diseases to spread and flourish; secondary prevention by improving health systems so that they can prevent and control infectious diseases; targeted prevention and control through specifically tailored programs that focus on high priority diseases; and, response to emergency situations. USAID's principal efforts, outside childhood BCG immunization (which provides modest protection against new TB infection), have been in support of programs aimed at developing a rational approach to managing TB among people with HIV infection. "It is clear that the resource needs of a truly global effort to address TB are enormous, in all likelihood dwarfing today's AIDS control efforts. This is unquestionably the biggest unmet need among infectious diseases today." Dr. Daulaire maintains that before a global TB program can be launched, greater efforts should be made to improve health infrastructures in developing countries. Dr. Gordon Douglas explained that the US needs a comprehensive public policy that addresses issues ranging from research initiatives to health care delivery infrastructure, and whose implementation depends on strategic partnership efforts between government and other segments of society, such as the private sector. Dr. Douglas noted that the failure to use TB drugs appropriately has led to widespread emergence of TB strains that are resistant to existing antibiotics. Dr. Douglas also observed that the HIV/AIDS pandemic is further fueling emergence of multi-drug resistant tuberculosis. Dr. Douglas outlined barriers to increased involvement of the private sector in infectious disease control efforts: inadequate protection of intellectual property; parallel trade in patent-protected medicine (when different prices are set by governments among price-controlled markets); government price and profit controls; black market sales; lack of quality assurance and the willingness to compromise on quality to achieve cost savings; inadequate resources for countries to acquire effective therapies and newer vaccines; lack of epidemiological data; and the lack of health system infrastructures that can support rigorous treatment regimens. Dr. John Sbarbaro began by saying, "I was asked to come up with a disease that exemplified all the points my colleagues have made. The obvious answer is tuberculosis." Dr. Sbarbaro noted that the WHO approach to TB, DOTS, is a highly effective approach to controlling tuberculosis. According to Dr. Sbarbaro, little advancement in health infrastructure is necessary to apply DOTS because all that is required is the participation of primary health care workers and village health workers. Dr. Sbarbaro believes that USAID should become a leader on global tuberculosis control by putting more money into WHO's DOT program. The WHO uses its funding as seed money to start programs that governments find so effective that they then fund it themselves. Dr. Sbarbaro also noted that WHO should be encouraged to make TB a higher priority, and that the World Bank should be encouraged to lend money for controlling TB. Attachment 2 Tuberculosis Fact Sheet United States Statistics In 1996, a total of 21,337 cases of tuberculosis were reported to the CDC from the 50 states, the District of Columbia, and New York City (8.0 cases per 100,000 population). This represents a 6.7% decrease from 1995. During 1996, a total of 29 states reported fewer TB cases than in 1995, and 21 states and DC reported no change or more cases in 1996 than in 1995. Data indicates a decreased number of TB cases among U.S.-born persons and an increased number among foreign-born persons. During 1996, TB cases reported among persons born outside the U.S. accounted for 36.6% of total reported cases, compared with 34.7% in 1995. In 1996, the number of TB cases among foreign-born persons decreased 2.9%, representing the first decreases among foreign-born persons since 1986 (the first year such data were collected). Homeless populations in big cities are reservoirs for tuberculosis: some estimates show that as many as 30% of the homeless population of San Francisco may beinfected with the TB bacillus. In 1990, it is estimated that $700 million was spent to treat the 26,000 U.S. cases of TB that year. SOURCE: CDC. (1996) "Tuberculosis Morbidity - United States, 1995." MMWR. 45: 365-370. (1997) "Tuberculosis Morbidity - United States, 1996." MMWR. 46: 695-700. Global Tuberculosis Statistics In 1995, more people died of tuberculosis than in any other year in history. There are 8 million new TB cases annually. Of these, only 5 million receive any form of treatment at all, and only 500,000 receive DOTS. TB causes more deaths than any other infectious disease. It kills 3 million people every year. Of these, 1 million are women. The WHO estimates that 180 million children less than fifteen years of age were infected with tuberculosis as of 1995. In 1994, there were about 23 million refugees worldwide. As many as half of them may be infected with the tuberculosis bacillus, as refugee camps present prime conditions for the spread of tuberculosis. TB is the leading killer of HIV-positive people worldwide. The American Lung Association estimates that improvements in TB control could increase economic output in developing countries by more than $24 billion annually. SOURCE: WHO web site, http://www.who.ch/programmes/gtb/tbrep-96/tbreport.htm. 696 MMWR August 1, 1997 Tuberculosis - Continued TABLE 1. Number of reported tuberculosis cases, percentage change in number of cases, and case rates*, by state and year - United States, 1995-1996 No. cases Case rate % Change from State 1995 1996 1995 to 1996 1995 1996 Alabama 420 423 + 0.7% 9.9 9.9 Alaska 81 96 +18.5% 13.4 15.8 Arizona 319 282 -11.6% 7.6 6.4 Arkansas 271 225 -17.0% 10.9 9.0 California 4,677 4,313 - 7.8% 14.8 13.5 Colorado 95 104 + 9.5% 2.5 2.7 Connecticut 139 138 - 0.7% 4.2 4.2 Delaware 56 43 -23.2% 7.8 5.9 District of Columbia 102 139 +36.3% 18.4 25.6 Florida 1,556 1,417 - 8.9% 11.0 9.8 Georgia 746 790 + 5.9% 10.4 10.7 Hawaii 193 200 + 3.6% 16.3 16.9 Idaho 14 15 + 7.1% 1.2 1.3 Illinois 1,024 1,060 + 3.5% 8.7 8.9 Indiana 199 202 + 1.5% 3.4 3.5 lowa 72 70 - 2.8% 2.5 2.5 Kansas 89 74 -16.9% 3.5 2.9 Kentucky 327 259 -20.8% 8.5 6.7 Louisiana 476 420 -11.8% 11.0 9.7 Maine 28 21 -25.0% 2.3 1.7 Maryland 370 319 -13.8% 7.3 6.3 Massachusetts 330 262 -20.6% 5.4 4.3 Michigan 424 443 + 4.5% 4.4 4.6 Minnesota 156 131 -16.0% 3.4 2.8 Mississippi 271 251 - 7.4% 10.0 9.2 Missouri 244 224 - 8.2% 4.6 4.2 Montana 21 19 - 9.5% 2.4 2.2 Nebraska 24 22 - 8.3% 1.5 1.3 Nevada 115 137 +19.1% 7.5 8.5 New Hampshire 23 21 - 8.7% 2.0 1.8 New Jersey 848 820 - 3.3% 10.7 10.3 New Mexico 85 89 + 4.7% 5.0 5.2 New York 3,066 2,588 -15.6% 16.9 14.2 North Carolina 519 554 + 6.7% 7.2 7.6 North Dakota 5 8 +60.0% 0.8 1.2 Ohio 280 301 + 7.5% 2.5 2.7 Oklahoma 237 201 -15.2% 7.2 6.1 Oregon 156 190 +21.8% 5.0 5.9 Pennsylvania 674 583 -13.5% 5.6 4.8 Rhode Island 50 35 -30.0% 5.1 3.5 South Carolina 334 348 + 4.2% 9.1 9.4 South Dakota 28 19 -32.1% 3.8 2.6 Tennessee 465 504 + 8.4% 8.8 9.5 Texas 2,369 2,103 -11.2% 12.7 11.0 Utah 48 58 +20.8% 2.5 2.9 Vermont 4 4 - 0.7 0.7 Virginia 359 349 - 2.8% 5.4 5.2 Washington 278 285 + 2.5% 5.1 5.2 West Virginia 71 57 -19.7% 3.9 3.1 Wisconsin 117 114 - 2.6% 2.3 2.2 Wyoming 5 7 +40.0% 1.0 1.5 Total 22,860 21,337 - 6.7% 8.7 8.0 * Per 100,000 population. DOTS: A PROVEN STRATEGY The most effective way to control TB is to stop its spread at the source - curing sick patients. The secret to treating TB is as simple as making certain that patients regularly swallow the right medicines until they are cured. This supervision is the cornerstone for the World Health Organization's (WHO) Short-Course Chemotherapy recommended TB control strategy: directly-observed treatment, short- Initial Phase of Treatment course (DOTS). (Daily for 2 months) Isoniazid 300 mg Rifampicin 600 mg DOTS is the only viable method for Pyrazinamide 2000 mg reducing TB transmission and death Ethambutol 1200 mg worldwide. It has been successful in Continuation Phase of Treatment such diverse locations as New York (3 times a week, 4 months) City, Tanzania, Peru, Guinea, Isoniazid 600 mg Bangladesh, and China. Rifampicin 600 mg DOTS Is an Effective Cure & Prevents New Infections DOTS is a strategy that provides a standardized combination of the most effective medicines; ensures through direct observation that these medicines are taken regularly until patients are cured; and monitors patients' overall progress. This three-pronged approach is key to saving lives and stopping the TB epidemic. DOTS uses a specific combination of four anti-TB medicines - isoniazid, rifampicin, pyrazinamide, and ethambutol (or streptomyecin) - in a treatment known as short-course chemotherapy. When patients take these drugs consistently for the required six months, they are more than 95% effective. In addition to providing the right medicines, ensuring that patients regularly take all the drugs in their treatment is one of the most vital aspects of TB control. Direct observation of treatment is one of the most vital aspects of TB control. Direct observation of treatment is one important element of the DOTS strategy and is necessary because the most serious impediment to controlling TB is that patients often interrupt or stop their treatment, sometimes because they mistakenly believe they are cured or because the medicines cause side effects. In addition, in some countries, drugs are not available continually. The DOTS strategy addresses these problems by making it the responsibility of the health worker - not the patient - to ensure that treatment is complete and the patient's progress is monitored carefully. DOTS Prevents Multi-Drug Resistant TB The DOTS strategy also prevents TB from becoming multi-drug resistant. Many patients fail to take all their medicines consistently because of the extended treatment period or because they no longer have any of the outward symptoms of the disease. In addition, many doctors and health workers prescribe the wrong drugs or the wrong combination of drugs. This inconsistent or partial treatment is the primary cause of multi-drug resistant TB. By providing the right combination of medicines, supervision, careful evaluation and monitoring of a patient's progress, the DOTS approach successfully prevents multi-drug resistance by ensuring full treatment of a sick patient until they are proven cured. DOTS Has Been Successful Around the World Tanzania, China, Guinea, Peru, Bangladesh, Mpumalanga (South Africa), and New York City have used the DOTS approach and seen their cure rates skyrocket. For example in: New York City: Using the DOTS approach, New York City has achieved a 36% decrease in the number of TB cases between 1992 and 1995 and cut the MDR-TB rate by 75%. Bangladesh: In 1993, the government of Bangladesh adopted DOTS to cure its widespread TB cases. By 1995, as many as 80% of the TB patients treated were being completely cured in the parts of the country using the DOTS strategy. China: Since DOTS was implemented in 1991, the TB cure rate in participating provinces of China has improved dramatically from less than 50% to over 90% among new cases. Peru: From 1991-94, the treatment and cure of contagious cases is estimated to have prevented 1.5 million new infections. South Africa: DOTS is currently being tested in Mpumalanga District with good results. Over 80% of TB patients have been successfully treated in the Mpumalanga demonstration project. Other countries who are just beginning to use the DOTS strategy are also witnessing significant results. In India, pilot projects in New Delhi, Gujarat, and Bombay are using the DOTS strategy and are tripling their previous cure rates. But More Countries Need To Implement DOTS The DOTS strategy needs to be put into effect in many countries plagued by TB. Of the 8 million people who develop active TB each year, only about 500,000 have access to a DOTS based approach. If the DOTS strategy were used consistently throughout a dozen large countries - such as Bangladesh, Brazil, China, Ethiopia, India, Indonesia, Mexico, Nigeria, Pakistan, Russia, South Africa, Zaire - nearly three-fourths of the world's TB cases could be cured. As of 1995, only five of these twelve countries had aggressively committed to establishing and expanding TB control based on the DOTS strategy. The disease already is endemic globally. Russia and Eastern Europe have seen reports of TB cases surge upwards, with some regions experiencing high rates similar to those found in Africa. Industrialized countries are not exempt; cities such as Montreal, Milan, Amsterdam, Dallas, and Paris have seen TB rates rise in recent years. Multi-Drug Resistant TB: An Incurable Disease? Recent Outbreaks of MDR-TB New, multi-drug resistant strains of New York City tuberculosis are threatening to make London TB incurable again, as it was before a Milan India cure was found in 1952. Multi-drug Thailand resistance is a man-made phenomena South Africa and is created by inconsistent or Estonia Pakistan partial TB treatment. Multi-drug resistant strains of TB spread as Source: WHO Global TB Program quickly as regular TB and have emerged in cities all over the world. Humans Are Breeding Multi-Drug Resistant TB Inconsistent or partial TB treatment is the primary cause of multi-drug resistant strains of tuberculosis - it does not occur naturally. Many patients do not take their medicines for the entire six-month treatment period or stop treatment because they no longer have the outward symptoms of the disease. In addition, many doctors and health workers prescribe the wrong combination of drugs. The World Health Organization estimates that nearly two-thirds of those who are prescribing TB medication are putting people at risk to drug-resistant TB. A standardized four-drug regimen of anti-TB medicines taken consistently for six months offers a 95% cure rate for TB. But when treatment is inconsistent or not properly administered, some TB bacteria may not be killed. They will be weakened, but not dead. If treatment continues haphazardly, or is simply repeated when a patient begins to feel sick again, the bacteria could become resistant to some, or all, of the drugs. They can then multiply, creating millions of copies of themselves, all drug resistant. Multi-Drug Resistant TB Is Too Costly to Cure Strains of multi-drug resistant TB are just as contagious as the regular TB bacteria, but in many cases, they cannot be cured with available and affordable drugs. Multi-drug resistant TB can raise the cost of treating tuberculosis 100 times. The mutant TB strains may be resistant to one, two, three, or even up to nine different anti-TB drugs, making treatment more difficult and costly to administer. In developing countries, people with multi-drug resistance usually die because effective treatment is impossible in a poor nation. In wealthy countries, approximately 50% of patients with MDR-TB die because of the difficulty of treating the disease. Multi-Drug Resistant TB is Spreading Researchers estimate that as many as 50 million people may already be infected with TB that is resistant to one or more common anti-TB drugs - and that number is growing. Although no one knows exactly how far multi-drug resistant TB has spread, it exists in both the developing and industrialized world. A 1995 study of regions in Pakistan showed that 75% of TB patients were resistant to at least one drug, and over 40% were resistant to more than three drugs. In the United States, New York City has seen a 36% decrease in the number of TB cases reported between 1992 and 1995 - but, new drug resistant strains of TB persist. A new study documents the transmission of a TB bacteria resistant to seven drugs from New York to metropolitan areas in Florida, Nevada, Georgia, and Colorado. These cities have a combined population of 7.1 million and are hubs for air and auto travel. DOTS Can Prevent Multi-Drug Resistant TB Failure to adhere consistently and completely to the standardized combination of anti-TB drugs can cause multi-drug resistance to an effective cure. Because of this phenomenon, the most vital aspect of TB control is not the choice of drugs available today, but the measures taken to ensure that patients regularly take all the drugs in their treatment. The World Health Organization's recommended strategy of treatment - directly-observed treatment, short-course - meets that challenge. DOTS is a strategy that provides a standardized combination of the most effective medicines, ensures through direct observation that these medicines are taken regularly until patients are cured, and monitors patients to ensure their overall progress. This three-pronged approach is the key to saving lives and stopping the TB epidemic. If adequate funds are spent to attack the TB problem at its source - in sick patients - we could cure more than 85% of those infected with TB in developing countries, stop the spread of the disease, and prevent the creation of MDR-TB in the first place. The World Bank has called the DOTS strategy one of the "most cost-effective of all health interventions." Figure 3.2 Benefits and costs of forty-seven health interventions Increase in DALYs (log scale) 100 Chemotherapy for tuberculosis 10 Vitamin A supplementation 1 0.1 $1/DALY Treatment of leukemia 0.01 $10/DALY Greater effectiveness Environmental 0.001 Lower control of dengue $100/DALY cost $10,000/DALY $1,000/DALY 0.0001 10,000 1,000 100 10 1 0.10 Cost per intervention or per intervention-year (dollars, log scale) Target: Children under age 15 Adults age 15 or older Note: DALY, disablility-adjusted life year. Interventions are specific activities intended to reduce disease risks, treat illness, or palliate the consequences of disease and disability; an intervention-year is an intervention repeated throughout the year rather than provided only once. a. Includes some interventions that benefit all age groups. Source: Jamison and others forthcoming; World Bank data. SOURCE: The World Bank. 1993. Investing in Health: World Development Indicators. New York: Oxford University Press. p. 62. Projected Change in the Rank Order of Disease Burden for 15 Leading Causes, Worldwide 1990-2020 1990 Rank 2020 Disease or injury Order Disease or injury Lower respiratory infections 1 Ischemic heart disease Diarrheal diseases 2 Unipolar major depression Conditions arising during perinatal period 3 Road traffic accidents Unipolar major depression 4 Cerebrovascular disease Ischemic heart disease 5 Chronic obstructive pulmonary disease Cerebrovascular disease 6 Lower respiratory infections TUBERCULOSIS 7 TUBERCULOSIS Measles 8 War Road traffic accidents 9 Diarrheal diseases Congenital anomalies 10 HIV Malaria 11 Conditions arising during perinatal period Chronic obstructive pulmonary disease 12 Violence Falls 13 Congenital anomalies Iron-deficiency anemia 14 Self-inflicted injuries Protein-energy malnutrition 15 Cancers of trachea, lunch, and bronchus NOTE: Disease burden is measured in disability-adjusted life years (DALYs), a measure that combines the impact on health of years lost due to premature death and years lived with a disability. One DALY is equivalent to one lost year of healthy life. SOURCE: Murray, C. J. L., and Lopez, A. D. 1996. Global Burden of Disease and Injury, Vol. 1. Boston: Harvard University Press. MEMORANDUM DATE: October 2, 1997 TO: Eric Schwartz, Richard Ragan National Security Council FROM: Ralph Nader Steering Committee, Princeton Project 55 Tuberculosis Initiative RE: global tuberculosis control activities ATTACHMENTS: 1. Princeton Project 55 brochure 2. Tuberculosis fact sheets 3. Media coverage of tuberculosis 4. Congressional interest in increasing funding for TB programs 5. Senate hearing on infectious diseases The mission of the Princeton Project 55 Tuberculosis Initiative is to encourage United States leadership of effective and innovative tuberculosis prevention and treatment programs, and to raise public awareness about tuberculosis. We are a public service interest organization, and the steering committee of the PP55 Tuberculosis Initiative includes myself, Dr. Gordon Douglas (President of Merck Vaccines), Dr. Myron Freund, Bill Shafer, and Pete Milano, all members of Princeton's Class of 1955. The Project Managers of the Tuberculosis Initiative are Celine Gounder and Scott Regenbogen. Tuberculosis is the single greatest infectious killer in the world, causing 8 million illnesses and 3 million deaths every year. Like the common cold, TB is spread through the air by casual contact. The primary cause of this epidemic is ineffective treatment and prevention strategies, which fail to identify infected individuals, and poorly address infectious cases. The HIV/AIDS epidemic is now fueling the TB epidemic and threatens an explosion of TB, especially in Asia, Eastern Europe, and the nations of the former USSR. Yet an extremely cost-effective treatment and management system has proven to effectively control TB in all parts of the world. This strategy is known as DOTS (Directly Observed Therapy Short-course). DOTS ensures that each patient's treatment and cure is monitored and documented, and that action is taken if progress is not made. As part of the strategy, health workers watch their patients take their medication, and monitor them until they are cured. DOTS has achieved cure rates of greater than 85% in places as different as New York City, Peru, China, Tanzania and Bangladesh. The World Bank has called the DOTS strategy one of the "most cost-effective of all health interventions." This comprehensive therapy can cost as little as $11 per patient in developing countries. DOTS is essential because when patients do not take all of their medications, they produce strains of the bacteria that are resistant to anti-TB drugs. Some strains have become resistant to the whole arsenal of drugs, making them virtually incurable. These especially dangerous multi-drug resistant forms of tuberculosis (MDR-TB) can be prevented by ensuring that patients take their medicines. MDR-TB is the most serious infectious disease threat for the early 21st century for three reasons: i) it is virtually incurable and highly fatal in the developing world; ii) it is transmitted by casual contact, through the air; and iii) it is already widespread, and is poised to break out of the "hot-zones" which have been identified as areas of particular danger. The world stands at a crossroads for mobilizing international action. Effective TB control would protect US public health well into the next century. It is imperative that an effective program be installed, and that commitments be sustained. Attachment 4 Congressional Interest in Tuberculosis The Princeton Project 55 Tuberculosis Initiative has been in contact with all senators and congressmen on the Foreign Operations subcommittees of the Appropriations committees. Both Foreign Operations subcommittees have discussed appropriations to USAID for the purpose of combating infectious diseases. In the Senate subcommittee, Sen. Patrick Leahy (D-Vermont) has been a strong proponent of increasing funding to infectious disease programs. In May, the Foreign Operations subcommittee held a hearing - "Combating Infectious Diseases" - on behalf of Sen. Leahy. Sen. Daniel Inouye (R-Hawaii) is also interested in TB control because Hawaii has the second highest case rate of tuberculosis in the country. Others supportive of increased funding to tuberculosis programs include: Sen. Tom Harkin (D-Iowa), Sen. Frank Lautenberg (D-New Jersey), and Sen. Patty Murray (D-Washington). No senators expressed opposition to increasing funding available for tuberculosis control programs. In the House subcommittee, Rep. Rodney Frelinghuysen (R-New Jersey), Rep. Nita Lowey (D- New York), Rep. Sidney Yates (D-Illinois), Rep. Nancy Pelosi (D-California), Rep. Esteban Torres (D-California), and Rep. David Obey (D-Wisconsin) are most strongly supportive of increasing funding to tuberculosis control programs. Rep. Frelinghuysen will be taking the lead during the conference committee on the Foreign Operations Appropriations bill to insert report language advocating funding of the Global Tuberculosis Initiative. No congressmen expressed opposition to increasing funding available for tuberculosis control programs. Other senators and congressmen have a record of supporting tuberculosis programs: Rep. James Walsh (R-New York) had tuberculosis himself, and is a strong supporter of increased funding to tuberculosis control programs. Rep. John Dingell's (D-Michigan) father had tuberculosis and the congressman is supportive of TB control initiatives. In 1995, he requested a report from the General Accounting Office on the incidence of tuberculosis in the United States. In 1994, Sen. Frank Lautenberg (D-New Jersey) supported a measure allotting $500,000 to support two demonstration projects whose focus was to be on collaborative approaches to controlling the spread of TB. In 1994, Rep. Tony Hall (D-Ohio) called upon USAID to make tuberculosis a priority, and if it failed to do so, he called upon Congress to earmark funding for tuberculosis programs. In 1992, Sen. Edward Kennedy (D-Massachusetts), Reps. Henry Waxman (D-California), and Edolphus Towns (D-New York) jointly requested a congressional Office of Technology Assessment report on the rise of tuberculosis cases in the United States. In 1994, Sen. Kennedy and Rep. Dingell requested a follow-up study. In 1992, Rep. Waxman and Rep. Charles Schumer (D-New York) proposed that $100 million be spent for special testing and drug programs to fight drug resistant tuberculosis. In contrast, Rep. Lamar Smith (R-Texas) said in 1993 with regard to tuberculosis prevention, "You know, prevention is always best. But I look upon prevention a little bit differently. To me, prevention means that we have more border security, a better border patrol." PRINCETON PROJECT 55 INC. file TB Tuberculosis Initiative Ralph Nader P.O. Box 19312 Washington, DC 20036 May 27, 1998 First Lady Hillary Rodham Clinton The White House 1600 Pennsylvania Avenue NW Washington, DC 20500 Dear Mrs. Clinton, In your recent speech before the World Health Assembly in Geneva, you provided an excellent account of the severity and urgency of many global health crises. We are particularly pleased by your emphasis on the prevention and treatment of infectious diseases like tuberculosis. Major public addresses such as yours are exactly what is now required to revive this nation's awareness of these profoundly neglected health causes. TB is one of the most disproportionately unheeded pandemics, yet it is the world's number one infectious killer and the death toll is rising every year. Few people in this country are aware of the enormous burden TB exacts from the citizens of developing countries, and the clear and present threat that drug resistant strains pose to the health and national security of the United States. TB kills more women than all causes of maternal mortality combined, yet most Americans consider it a disease of the past. The yearly death toll from land mines is matched by TB every single day, however many journalists and even public officials believe we have won the war against tuberculosis. You have the unique capacity to refocus America's attention on health issues of major global importance, and this speech was an exemplary first step. Now, as you said, "We must put our hearts, our minds, and our resources in action." In South America, you witnessed the unprecedented successes that can be achieved through the use of directly- observed treatment for tuberculosis patients. As you saw, the WHO-recommended regimen, Directly-Observed Treatment, Short-course (DOTS) is a very simple system, that the World Bank determined to be one of the world's most cost-effective health interventions. Successful application of DOTS has produced cure rates above 85% in places as diverse at New York, Peru, China, Tanzania, and Bangladesh. In most countries, the overall effect of DOTS on the primary health infrastructure and the incidence of infectious diseases has been remarkable. For the health and stability of developing nations, and to protect Americans from multi- drug resistant TB (MDR-TB), it is time for the U.S. to make a significant investment in DOTS for the most severely affected nations of the world. USAID's new infectious disease initiative is a good beginning, but this pilot project must be expanded to other key regions of the world. MDR-TB is already threatening to overwhelm the public health systems of "hot-zones" such as Latvia, Estonia, Russia, the Dominican Republic, Argentina, and the Ivory Coast. Unless we ensure the rapid application of DOTS in these and other countries, epidemics of MDR-TB will become commonplace in many more countries. A global assault on TB will also require significant commitments from the WHO, and from developing nations. The U.S. should make use of its diplomatic influence to encourage endemic nations to dedicate resources to the control of TB within their borders. Additionally, the U.S. should help to accelerate the introduction of WHO Secretary General-Elect Gro Harlem Brundtlandt's "Roll Back Malaria" and "Roll Back TB" initiatives. Currently the WHO Global TB Programme's total annual budget for the application of DOTS is a paltry $11 million. Dr. Brundtlandt should be supported in significantly increasing funding for the TB program, in accordance with its prominence among causes of death globally. Finally, with the introduction of the President's "Research Fund for the 21st Century," now is the time for the U.S. to make a meaningful investment in research on the infectious diseases of major global health importance identified by USAID's new initiative. DOTS can make a significant impact on the global disease burden, but without an effective TB vaccine, we will not be able to control TB over the long-term. Now that scientists have read the entire genetic code of the TB microbe, the potential for the development of new drugs, diagnostics, and vaccines has never been better. This March, a working group of TB and vaccine experts, convened by Secretary Shalala, met to formulate a national "Blueprint for a Tuberculosis Vaccine," which sets the course for accelerated development of a TB vaccine, but without new funding, this initiative cannot get under way. Thank you, Mrs. Clinton, for your dedication to the health of the world's population. We hope that you will work with us to significantly increase U.S. commitments to global health. Sincerely, RalyMander Ralph Nader Steering Committee Enclosures: informational packet cc: Mr. Sidney Blumenthal, Dr. Laura Efros, Mr. Tom Friedman, Mr. Leon Fuerth, Mr. David Halperin, Mr. Chris Jennings, Dr. Donald Jordan, Dr. David W. Kampt, Mr. Peter Rundlet, Mr. Eric Schwartz, Mr. Michael Waldman, and Mr. Joel Wilson. cc: melanne from FACSIMILE WORLD HEALTH ORGANIZATION Tel: +41 (22) 791.2711 CH-1211 Geneva 27 - Switzerland Fax: +41(22) 791. Telegram: UNISANTE GENEVA Email: [email protected] Telex: 415416 WWW: http://www.who.ch Message No.: Page 1 of 2 pages Date: 5 November 1998 From: Office of the Director General To: Office of the First Lady of the United States of HQ Geneva America Fax No.: (1 202) 456 2883 Our ref.: GTB/T9-370-30 Subject: PERSONAL MESSAGE FROM THE DIRECTOR-GENERAL FOR KIND TRANSMISSION TO THE FIRST LADY, MRS HILLARY RODHAM CLINTON Dear Mrs Clinton, Dear Hillary Thank you for hosting the meeting on Tuberculosis at the White House on 28 October 1998. 1 was strongly encouraged by the clear level of commitment among US agencies, the Open Society Institute and the World Bank to accelerating the fight against TB. Strong support and leadership from these institutions, including the National Institutes of Health (NIH), US Agency for International Development (USAID) and Centers for Disease Control and Prevention (CDC), and of course also a number of other partners, are critical to renewed global efforts to combat this preventable disease. The situation of the present TB control effort is very similar to that of child immunization in the mid-1980s. Basically, technical knowledge existed, a critical mass of people were being trained to implement Expanded Programme on Immunization (EPI) and many countries, mainly small and mid-size, were making good progress. But the progress was very slow in large countries, resulting in a low global immunization coverage. However, child immunization has achieved the global target in the early 1990s by adding coalition building at global level and country specific social mobilization to the ongoing effort. I believe we can drastically expand coverage of the directly observed treatment, short-course (DOTS) strategy, as well as pursuing new and innovative approaches, by following a similar path. As we discussed during our meeting, WHO is prepared to give its fullest attention to a renewed attack on TB globally, including a special focus on the situation in the Russian Federation. I have instructed my staff to accelerate the careful preparation of a Stop TB Initiative which will serve to galvanize a broad global coalition of important partners, and to initiate social mobilization in the target countries. As such, WHO welcomes the opportunity to lead this effort. I am delighted that Mr Soros and Mr Wolfensohn have committed to participate in and support this Initiative. cc: Mr George Soros, Soros Foundation, New York (Fax 1 212 974 0367) Mr James Wolfensohn, World Bank, Washington (Fax 1 3031) 1948 1998 WORLD MEALTH ORGANIZAT ORGANISATION MONDIALE ps LA LINTE A 66 It T6L +4122 PAX T : : LT NHL 86, TT/90 Office of the First Lady of the United States of America page 2. 5 November 1998 A critical first step is a meeting of potential Initiative partners on 28 November 1998 in Bangkok to begin planning for the expansion of the partner base in the fight against TB. This will be important in order to achieve the level of political and economic commitment needed to reverse the grip of this disease in the 22 countries which account for 80% of the world's TB. WHO staff will be working with representatives from the CDC, the World Bank and others to identify appropriate collaborators and secure expanded commitment to this Initiative. In early 1999, a second meeting of partners is planned. This meeting will serve to build global consensus regarding strategy and direction of the Initiative. I am confident that by working together through a Stop TB Initiative we will make a difference in mobilizing worldwide commitment required to adequately confront the global TB epidemic. I thank you again for hosting the important meeting last month, your continued interest in global health issues, and the particular support you are giving to WHO and to myself. Yours sincerely, Ero Gro Harlem Brundtland, MD, MPH Director-General WHO/GTB/GVA 66 11 T6L +1112 PAY T:21 NHL 86, TT/90 WORLD HEALTH ORGANIZATION ORGANISATION MONDIALE DE LA SANTE Q file WHO/TB Téléphone Central/Exchange: +41(22) 791.2111 Direct: 791.2963 Direct fax: 791.4199 Mrs Hillary Rodham Clinton E-mail: [email protected] First Lady of the United States of America In reply refer to: STB-T9/370/30 The White House Prière de rappeler la référence: 1600 Pennsylvania Avenue, NW Washington, DC 20500 USA 27 April 1999 Dear Hillary Further to our recent meeting and communications regarding the global tuberculosis epidemic, the STOP TB Initiative and specific efforts to assist the government of the Russian Federation to improve the TB control situation, I would like to brief you on the results of recent WHO activities in these areas. Following our meeting at the White House in October 1998, WHO, on behalf of a growing coalition of partners, launched the STOP TB Initiative. Over the past few months, through generous support from USAID, CDC and others, a Secretariat based in Geneva consisting of staff seconded from WHO and various external partners has been laying the foundations of a global campaign to STOP TB. Its aims are to create greater public demand for action against TB and to stimulate the political leadership necessary to mount an effective response - with special focus on the 22 highest burden countries which account for 80% of the global burden of disease. To build momentum and draw high level political attention to this campaign, a stream of activities is planned for 1999-2000. These events will serve to bring new partners, including donor agencies, foundations, industry and academia, into the Initiative, and in a stepwise fashion establish the foundation for expanded global action against TB. This includes a "Ministerial Conference to STOP TB" which will be co-organized by STOP TB and the Government of The Netherlands and will be held in The Netherlands in March 2000. This conference will bring together the Ministers of burden Health as well as Finance, Development or Planning from the highest burden countries to set the stage for expanded country action against TB across sectors of government and society. An All Partners' Forum is slated for the spring of 2000 with the aim of bringing in a wider range of players into TB control and strengthening the co-ordination between the internal and external TB control organizations working in high TB prevalence countries. I have welcomed the World Bank and the Soros Foundation as partners in this Initiative and have requested the support of Mr Wolfensohn and Mr Soros for several of these activities. In addition, I have invited the participation of Ms Carol Bellamy (UNICEF) and Mr James Gustave Speth (UNDP) in the STOP TB Initiative in order to ensure wider participation of UN system agencies in the fight against TB. ./2 cc: Mr G. Soros, Open Society Institute, New York Mr J. Wolfensohn, World Bank, Washington, D.C. 1211 GENEVA 27-SWITZERLAND Telegr.: UNISANTE-GENEVA Telex 415416 OMS Fax 791.07.46 1211 GENEVE 27-SUISSE Télégr.: UNISANTE-GENEVE Our joint efforts to assist the Russian Federation have also progressed since we last met. In early March 1999, a WHO delegation, led by Dr David Heymann, Executive Director of Communicable Diseases, visited Moscow and met with officials at the Ministry of Health, the Russian Academy of Medical Science, the health committee of the DUMA and the Russian Red Cross. During these meetings, an agreement was reached to establish an interdisciplinary group, led by the Ministry of Health and WHO and comprised of Russian and international TB experts, with the objective of developing the best strategy for the control of TB in the Russian Federation. I was particularly happy regarding this agreement, as it shows significant progress by the government of the Russian Federation in their concern for and political commitment to TB control. We have suggested that the USAID, CDC, the Soros Foundation's Open Society Institute, the World Bank, and other donors assisting the government of the Russian Federation in TB control be invited to join this working group. We are currently in the process of finalising the terms of reference with the Russian Ministry of Health. I am confident that this working group will facilitate the improvement of TB control in the Russian Federation, make it more cost effective, more accessible to larger populations and provide recommendations on areas such as TB in prisons and the management of drug resistant forms of TB. Regarding the issue of multiple drug resistance (MDR-TB) in the Russian Federation and other heavily impacted areas of the world, in January 1999 WHO convened a meeting to plan and coordinate a rational, evidence-based approach to this emerging issue. Meeting participants, which included USAID and CDC, agreed to strengthen collaboration on MDR-TB work between institutions and affected communities. WHO was called upon to serve as the coordinating institution to establish a global working group of experts and interested parties, and to serve as the negotiator to facilitate the implementation of pilot projects in settings where MDR-TB is firmly entrenched. It is anticipated that the results from these projects will provide the necessary evidence for policy recommendations to WHO member states facing this complicated health issue. I thank you for your continued interest in and leadership on global health issues and look forward to communicating more progress on these and other important activities in the months to come. Yours sincerely, hno 11.Bundtled Gro Harlem Brundtland, MD, MPH Director-General file TB OPEN SOCIETY INSTITUTE S I GEORGE SOROS Chairman ARYEH NEIER President March 3, 1999 Mr. J. Brian Atwood Administrator Agency for International Development 1300 Pennsylvania Avenue, N.W. Room 6.9 Washington, D.C. 20523 Dear Mr. Atwood, I want to congratulate you on the decision of US AID to fund a DOTS-Plus pilot project on treatment of multi drug resistant TB in Russia, to be carried out by a team from the U.S. Centers of Disease Control and Prevention. I was particularly pleased to learn that the city of Ivanovo was chosen as the project site. As you know, a TB control program of the Public Health Research Institute (PHRI), supported by OSI, has been operational in Ivanovo for nearly a year. PHRI has prepared the groundwork for the CDC project and will continue to maintain the infrastructure to support and interact with the CDC team, thus significantly increasing the chances for our joint success. The complimentary effort by PHRI and CDC which is funded, respectively, by OSI and US AID is a perfect, albeit rare, example of public/private collaboration to address pressing issues of global public health. And it appears to be the first concrete outcome of the meeting that we had last October at the White House. I am looking forward to continued work with you. Yours)sincerely, George Soros CC: Hillary Clinton, Donna Shalala, Gro Brundtland, James Wolfensohn, John Eisenberg, Margaret Hamburg 400 West 59th Street, New York, New York 10019 Phone: 212. 548. 0600 Fax: 212. 548. 4679 Website: http://www.soros.org 09/08/95 09:54 202 647 2762 STATE LEG AFF. 002 H8542 CONGRESSIONAL RECORD-HOUSE September 6, 1995 gentlemen, the government is begin- and the need for responsible behavior by port of that country, protections ning to govern and Congress has little. every member of the International community against discrimination. if any. control over the FBI, the ATF. to confront the oppression that afflicts millions I am very pleased to say that at the and IRS. of women. request of myself and the gentlewoman Shame Congress. Clean hands? My as- With the assistance of the U.S. Ambassador from California [Ms. WATERS] about 70 sets. to the United Nations, Madeleine Albright, Mrs. Members of this House have joined in Clinton has laid the important groundwork for sending a letter to Mr. Mugabe object- continued dialog between Secretary of State ing strenuously to his bigoted attack WHAT I LEARNED ON SUMMER Christopher and the Chinese Foreign Minister on people who simply have a different VACATION in their upcoming meeting. sexual 'orientation, noting that this (Mr. HAYWORTH asked and was Hillary Clinton deserves our gratitude for her kind of denunciation of people who are given permission to address the House efforts which engage China while steadfastly decent citizens is contrary to the re- for 1 minute and to revise and extend advocating the need for advances in human spect for human rights that we had his remarks.) rights which are necessary for China's genu- hoped Mr. Mugabe would show. Mr. HAYWORTH Mr. Speaker, we ine integration in the international arena. I am including at this point in the might entitle this, "What I Learned on RECORD the letter and the list of signa- Summer Vacation." The fact is, going tures, as follows: back home, we reorient ourselves to OUR COMMITMENT TO GET THE His Excellency ROBERT MUGABE, the great and good common sense of JOB DONE President. Harare. Zimbabwe. the American people. (Mr. BASS asked and was given per- DEAR MR. PRESIDENT: We were distressed mission to address the House for 1 to read your attack on people who are gay Did I hear uniformity among the con- and lesbian. stituents of the Sixth District of Ari- minute and to revise and extend his re- As Members of Congress dedicated to pro- zona? Of course not. Good people can marks.) tecting the human rights of all people. we disagree, but overwhelmingly the peo- Mr. BASS. Mr. Speaker, I am proud believe that you are gravely mistaken in ple of the Sixth District of Arizona told to say that today the House Repub- your denunciation of people based on their me. "Stay the course, stick to your licans are ready to finish the job we sexual orientation and your assertion that started 8 months ago. We are ready to they should be excluded from the protection principles, work hard to reform this balance the budget for the first time in of their "individual freedom and human government." rights." Indeed, we have heard today already a generation, to help save this country When individuals are mistreated by gov- broad bipartisan consensus, and so in for our children and our grandchildren, ernment because of some basic characteris- that spirit of bipartisanship, I extend and we are ready to pass a. plan that tic of their nature, human rights are vio- my hand to my friends on this side of will protect. preserve, and strengthen lated. Attacking docunt individuals who are the aisle, saying the problems we Medicare for our senior citizens. fully respectful of the rights of others. who confront are too great for politics as We are willing to take the heat on are productive and responsible citizens, but this controversial issue to save a bro- who happen to be gay or lesbian is wrong. As usual. ken system that three, I repeat, three strong supporters of the struggle of the peo- Let us get about the business of gov- of President Clinton's own Cabinet sec- ple of South Africa against the oppressive, erning America. dehumanizing apartheid system, WB wel- retaries say needs to be dealt with im- comed the inclusion in the Constitution of mediately. We are ready to pass a plan South Africa of recognition that discrimins- FIRST LADY DESERVES OUR that will help end our country's wel- nion based on an individual's sexual orients- PRAISE fare system that creates poverty, de- tion is wrong. We strongly urge you to re-ex- (Mr. RICHARDSON asked and was pendency, destitution, breaks up fami- amine this issue and to follow the example of lies. and discourages people from work- the new government of South Africa in re- given permission to address the House specting the human rights of all people. for 1 minute and to revise and extend ing. BARNEY FRANK, his remarks.) We are committed to ending a system Member of Congress. Mr. RICHARDSON. Mr. Speaker, the that has created debt and has rewarded MAXINE WATERS, First Lady deserves credit. first for inefficiency. Member of Congress. going to China, and second for speak- We are not afraid to take on the spe- COSIGNERS OF THE LETTER TO PRESIDENT ing out so forcefully for human rights cial interests and the status quo here ROBERT MUGABE OF ZIMBABWE and women's rights. in Washington. In fact, the only ones Noil Abercrombie, MC; Xavier Becerra, The First Lady spoke out eloquently interested in preserving the old ways MC; George Brown, MC; Ronald Del- against forced abortions and forced are the defenders of the old order who lums, MO; Lloyd Doggett. MC; Anna sterilizations and other women's rights live and breathe inside Route 495 in Eshoo, MC; Elizabeth Furse. MC: Ste- abuses common in other countries, Washington, DC. and if we learned any- ven Gunderson. M,C; Alcee Hastings, thing during this August recess, it is MC: Steny Hoyer. MC; Patrick Ken- such as rape, mutilation, and domestic that the American people want us to nody, MC; Zoe Lofgren. MC; Edward violence. She also stressed the impor- stay the course and continue with this Markey, MC: Marty Meehan. MC: tance of women to families and the George Miller, MC; Joseph Moakley, need for setting new standards for revolution in 1995. MO; Eleanor Holmes Norton. MO: women's health, economic welfare. Frank Pallone, MC; Jack Reed, MC: family planning, and the status of Martin Sabo. MC; Charles Schumer, PROTECTING HUMAN RIGHTS OF MC; Gerry Studds, MC; Melvin Watt. women in general. ALL PEOPLE MC: Sidney Yates, MC; Gary Acker- Mr. Speaker, the First Lady showed guts and commitment in China, and (Mr. FRANK of Massachusetts asked man, MC; Howard Berman, MC; WIl- and was given permission to address liam Clay, MC; Norman Dicks, MC: she deserves our praise. Richard Durbin, MC: Sam Farr. MC; Mr. Speaker, the First Lady has worked the House for 1 minute and to revise Sam Gejdenson, MO; Luis Gutierrez, continuously on issues related to women, chil- and extend his remarks and include ex- MC. dren, and families for the past 25 years. This traneous material.) Sheila Jackson-Lee, MC; Tom Lantos. week she has combined her skills and experi- Mr. FRANK of Massachusetts. Mr. MC; Nita Lowey, MC: Jim McDermott, ences with the role of diplomat. Speaker, sadly, just before we left for MC; Carrie Meek. MC; Norman Mineta, Amidst tenuous United States-Chinese rela- recess, the President of Zimbabwe, MC; James Moran, MC; John Olver, tions, the First Lady has walked a fine line in Robert Mugabe, engaged in an unjusti- MC; Nancy Pelosi, MO: Lucille Roybal- Allard. MC; Bernard Sanders. MC; Beijing-balancing the urgent need for worth fied wholly prejudicial attack on gay David Skagga, MC; Edolphus Towns, en's rights and the administration's policy of men and lesbian citizens of his coun- MC; Henry Waxman, MC; Thomas constructive engagement with China. try. Barrett, MC: Sherwood Boehlert, MC: Mrs. Clinton has successfully pointed out The attack was in sharp contrast to Peter DeFazio, MC; Julian Dixon. MC; the need for a forum of openness of free the leadership of, for instance, Nelson Ellot Engel. MC; Thomas Foglietta, speech in Beljing. Her remarks underscore the Mandela, who has included in the Con- MC; Henry Gonzalez, MC; Jane Har- magnitude of the U.N. Women's Conference stitution of South Africa. with the sup- man. MC: Maurice Hinchey, MC; Eddie 09/08/95 09:55 202 647 2762 STATE LEG AFF. 003 September 6, 1995 CONGRESSIONAL RECORD-HOUSE H8543 Berrice Johnson, MC; John Lewis, MC; to Dut together anything that we minute and to revise and extend her re- Carolyn Maloney, MC; Cynthia McKin- could. because these issues are very, marks) ney. MC: Kwelui Miume. MC; Patsy very critical. Ms. DELAURO. Mr. Speaker, over the Mink., MC; Jerrold Nadler, MC: Major There will not be another inter- August break. I had a chance to meet Owens, MC. Charles Rangel. MC: Bobby national meeting. for 10 years, and to with my constituents to discuss the Rush, MC: Patricia Schroeder. MC; Louise Slaughter. MC; Nydia have allowed China to play with it this Republican plan to cut Medicare in Valánquez, MC; Lynn Woolsoy. MC. way is outrageous. order to finance a tax cut for the I think the House leadership owes wealthy. The people I represent want American women also an apology, be- me to bring a message back to the Re- INTRODUCTION OF THE MOTOR cause the delegation sent from this publican leadership: Medioare 18 a trust SPORTS PROTECTION ACT body to the women's meeting could not fund, not a slush fund. (Mr FUNDERBURK asked and was have a woman chair. A woman could Now, I know that my Republican ool- given permission to address the House only be a cochair. They had to send a leagues were also back home wying to for 1 minute and to revise and extend male along, too, and one who does rot sell themselves as the true protectors have a good record on women's issues. of Medicare. But, the American public his remarks.) I find that very troubling. and the isn't buying this GOP makeover. The Mr. FUNDERBURK. Mr. Speaker. as message from all of this 15. "Women. public 18 skeptical about the sketchy you know. North Carolina is the home of professional auto racing and it is on our time scill has not come yet." When GOP plan that claims private insur- will be treated as first-class rather behalf of thousands of North Caro- ance companies will offer seniors more than the second-class citizens the Unit- linians and millions of NASCAR, for less. With suoh fantastic claims, NHRA and INDY racing fans across ed Nations relegated us to as we see it's no wonder that a recent poll found America that I introduce the Motor this meeting in Beling proceed? 71 percent of Americans have little Sports Protection Act today. trust in the House Republicans to han- dle Medicare. Mr. Speaker. Bill Clinton 1s waging 1220 For 30 years Republicans have wart- war or the tobacco family. He has threatened the livelihood of thousands CAL RIPKEN, JR.'S MANY ad to privatize Medicare. In fact, the ACHIEVEMENTS current majority leader has said that of tobacco farmers across the South he would have no part of Medicare in a and he 18 now or the verge of destroy- (Mr. EHRLICH asked and was given free world. Does that sound like a ing professional automobile racing as permission to address the Rouse for 1 WE know it. party that wants to protect Medicare? minuts and to revise and extend his re- The Funderburk bill, which Richard marks.) Petty says all race Cans can rally Mr. EHRLICH. Mr. Speaker. today I THERE IS MORE TO DO around, will stop Bill Clinton before he rise in tribute to a constituent whose (Mr. RADANOVICH asked and was crosses the finish line. It prevents Big achievement 18 tho talk of the Nation. Brother agents from slapping advertis- given permission to address the House Tonight Cal Ripken, Jr. a native of for 1 minute.) ing restrictions on the tobacco spon- Aberdeen, MD. will play his 2,131st con- Mr. RADANOVICH. Mr. Speaker. this sors of pro racing. Mr. Speaker. each secutive game with the Baltimore Ori- 104th Congress now moves forward NASCAR alone pumps over $2 billion oles, breaking a longstanding record from the Contract With America. And. into the southern economy. Racing held by the legendary Lou Gehrig It is "move" must be the operative word. fans are hard-working, law-abiding fitting that Cal 18 the only player ever The lesson learned in our August re- Americans. They deserve better than to accomrlish this feat, because he cess is that the public wants action not to be used as pawns in Bill Clinton's uniquely represents the qualities for words. Everywhere I went, men and shell-game. Lets send him a message which Lou Gehrig will always be re- women said, "Congresaman, we'd soon- right now: Bill Clinton keep your membcred-sportsmanship. fair play. er have you moving ahead * even if hands off racing. and sheer love of the game. the path is rough and you stumble 00- Support the Funderburk Motor Fans across the Nation have started casionally * don't let Congress just Sports Protection Act calling Cal the Iron Man. But endur- stand there." ance is only one aspect of his success. America bought in to our program. He was Rookie of the Year in 1982: MVP WOMEN STILL TREATED AS They approve our commitment to a in 1983 and 1991; and played in 13 con- SECOND-CLASS CITIZENS balanced budget. They like outting secutive All-Star games. He has hit tack the bureaucracy. They commend (Mrs. SCHROEDER asked and was more home runs than any shortstop in term limits. given permission to address the House major league history. Most of this we delivered in this for 1 minute and to revise and extend DesDite his fame. Cal Ripkes takes House. Yet, there is more to do here on her remarks.) precious time before and after every the Hill, and I urge the Senate to heed Mrs. SCHROEDER. Mr. Speaker. the game to sign autographs, pose for pic- the call. United Nations owes the women of the tures, or simply to chat with his fans- Let us get down to business, but let glebo a great apology. the way Babe Ruth. Lou Gehrig. and 118 make sure it 18 dealing with unfin- Every 10 years. there is an inter- Jackie Robinson once did. At a time iehed business, not business AS usual. national U.N. Women's meeting. and when many fans are disillusioned by the United Nations could have carod the big-business approach to baseball. less about what the host d'd to make Cal's sincere passion for the sport re- REPUBLICANS TAKING THE CARE this meeting as inconvenient and as minds us of a time when baseball was OUT OF MEDICARE swful as possible. In fact. the Secretary what it was always meant to be-a (Mr. ENGEL asked and was given Ceneral of the United Nations could game. permission to address the House for 1 not even bother to come. He predicted I urge all my colleagues to join with minute and to revise and extend his re- he W&B going to have a fever all 12 days me and the citizens of Maryland as we marks.) that this meeting was going to be salute Call Ripken. Jr. His accomplish- Mr. ENGEL. Mr. Speaker. I rise going on. ment 13 a timely illustration of what is today on behalf of my mother, Seroy Now, the message that sends to all best about our national pastime. Engel. and the millions of mothers. fa- countries 18 that the United Nations 18 thers. sisters. and brothers throughout Dutting thie on only because it is po- our Nation whose lives depend on Medi- litically cerrect, but they do not really NOW 71 PERCENT OF AMERICANS care. In the next few weeks this legisla- care. and the Secretary General cannot DO NOT TRUST REPUBLICANS TO tive body is going. to have to make really bother to come. HANDLE MEDICARE some tough decisions. The question I find that tragic. and I am very (Ms. DELAURO asked and was given will be will we let the Republicans take grateful the First Lady went and tried permission to address the House for 1 the care out of Medicare. I say, "No." 09/08/95 09:56 202 647 2762 STATE LEG AFF. 004 H8550 CONGRESSIONAL RECORD-HOUSE September 6, 1995 bill. If we are going to vote, to put Con- that shey made at the U.N. Fourth The First Lady reaffirmed and BUD- gress first and make sure Congress does world Conference on Women. Mr. ported the conference's main themes of not have to shut down and take tho Speaker, I rise as one who opposed economic and educational opportunity. same lumps that the rest of the Fed- Beijing as the venue for this important health care. and protecting women sral Government and the rost of the conference. I still think it was a most against violence. Again. the First Lady public does, at jeast give the public unfortunate choice. and the Ambassador did not mince lobby reform. Let us vote on lobby re- I rise as one who does not think that words of protest over repression. igno- iorm today. It 19 very easy and it 18 the United Nations has been strong rance. abuse, and torture while the very. very simple. Ban the trips. ban enough in enforcing its own rules in Chinese Government looked on. We the gifts. ban the free meals. terms of open participation for women have been told that the Chinese Gov- Mr. Speaker. I have taken the lobby in the conference. The United Nations emment has not reported on the First reform pledge. I have voluntarily taken did not do enough, whether we are Lady's speech. but we do know that the on and agreed to abide by the provi- talking about the accreditation of word will get out. sions of the lobby reform package. even women from Taiwan and Tibet, or As one who has opposed the First though it is not the law. This House women who are concerned about wom- Lady's attendance. I want to commend can do the same thing today. There- en's and human rights in those coun- her for her outstanding courage for fcre, I would just call upon the Repub- tries. The United Nations did not do breaking the silence on human rights lican leadership and the Speaker. first enough in regard to people that the in China. for breaking the silence on of all, to schedule something else. Get Chinese just did not want into that sterilization and forced abortion in some other bills moving that mean conference because their countries rec- China. There are many in this body something to the public besides Con- ognize Taiwan; for example. the ren who opposed the conference itself. I do Gress' appropriation. resentatives from Niger. not include myself among them. be- The second thing. If we are going to However. Mr. Speaker. what I really cause I believe that the conference 18 a bring Congress appropriation to the want to oal! to the attention of our ool- very important one. I think that some floor today. please put lobby reform on leagues are the strong statements of those who opposed the conference LC. End the free trips, end the junkets, made by the two leaders of our delega- and opposed the First Lady's attend- and the meals, end the guasts. end the ance did so because of China's forced tion. I strongly supported a high-pow- bad perception. Bring some reform to ered delegation to the Beijing con- abortion policy. this Congress. I look forward to working with those ference I strenuously opposed the at- Finally. third, if I could just set time colleagues. as some of us have been for 026 more, Mr. Speaker, could we do tendance by First Lady Hillary working together in the Subcommittee Rodham Clinton. I did so because I campaign finance reform? we have on Foreign Relations of the Committee thought it W&B not possible for her to heard a lot of calk about it. There was on Appropriations and in other com- attend the conference and make the a great handshake out there in New mittees of this House. to improve the Hampshire 8 to 10 months ago; but how strong statement that she made. lot of the women in the world by im- about real campaign finance reform to Indeed, Hillary Rodham Clinton's proving their health. The First Lady make it easier for challengere? ! volten- statements, are the strongest state- talked about women's health. she carily agreed to limit the campaign ments made on human rights in China, talked about violence against women, spending that I do. I voluntarily take in Asia, and in the world by this ad- she talked about child survival, ahe the voluntary campaign pledge that ministration to date. I am very, very talked about the spread of AIDS and our Secretary of State in West Virginia proud that the women of the Clinton how rapidly it is spreading among administration are taking such a issues every election seasor. Congress. wonten in the developing countries. though, ought to be willing to Dase this strong stand on this very important I look forward to continuing my issue. for the entire country. and so make it work with our colleaguee on this sub- easier for challengers, make it easier The First Lady, in Beijing. very cou- ject, and certainly working with the for the public, and make sure that the rageously. stood up and broke the si- Clinton administration on those areas money ohase ends. lence on sterilization and forced abor- where more common ground has now Finally. Mr. Speaker, let me just tions in a country where that is the been laid by the First Ledy. and where urge the Members today, do not make policy. Therefore, I say in the spirit of more opportunity has been presented the Arst thing Congress does when it commendation to the First Lady and by this very important conference corres back into session to passits own to Ambassador Albright that when which called attention to these issues. bill for its own appropriation to feather they said they would not mince words With that, Mr. Speaker. I am very its own nest. If we are going to do that. when they went to China, that they proud to place into the RECORD the two Mr. Speaker. I would urge, please lot us would make the statements that would statements, by First Lady Hillary have lobby reform: End the tripe. end be necessary. they. indeed. did. I com- Rodham Clinton to the United Nations the jurkets, end the free meals. and II- mend them-for that. Fourth World Conference on Women. nally begin to restore some faith in IE 18 shamen!. : think, that such an and the remarks before the World this congressional system. and particu- important conference on the rights of Health Organization, as well as the larly, in this House of Representatives. women and the economic future of statement of our Ambassador to the women and families was held in a coun- United Nations, Ambassador Madeleine try with such an appalling human Albright. She was a sreat participant COMMENDING HILLARY CLINTON rights record. The strong statements of in the conference, she represented our AND MADELEINE ALBRIGHT FOR these members of the U.S. delegation country very excellently. as she.always STRONG STATEMENTS ON made 10 clear that our Nation must not does. I am very pleased to put Ambas- HUMAN RIGHTS DURING THE waiver from its commitment to per- sador Albright's very strong statement U.N. FOURTH WORLD CON- sona! and political freedom to equal on human rights. indeed, basic free- FERENCE ON WOMEN rights and equal opportunity - doms for all people. men and women, in The SPEAKER pro tempore. Under a The First Lady, in her remarks, was the RECORD of this Congress. previous order of the House. the gentle- eloquent in her defense of the prin- The material referred to follows: woman from California [Ms. PELOSI] is ciples of women's rights and human AMBASHADOR MADEL.EINE K. ALBRIGHT. U.S. recognized for 5 minutes: rights. and she spent a great deal of her PERMANENT REPRESENTATIVE TO THE UNIT- ED NATIONS-REMARKS TO THE FOURTH Ms. PELOSI. Mr. Speaker. I appre- time talking about how advancing WORLD CONFERENCE ON WOMEN clate the opportunity to address the women's rights would strengthen fami- BEIJING INTERNATIONAL CONVENTION CENTER. House on this very important day. I lies throughout the world. She empha- BEIJING. CHINA, SEPTEMBER 6. 1996 rise to commend First Lady Hillary sized how that strengthening families. Honored guests, fellow delegates and ob- Clinton and our Ambassador to the building families. was what was impor- servers. I am pleased and proud to address United Nations. Ambassador Madeleine tant in strengthening sooieties this historic conference on behalf of the Albright, for the strong statements throughout the world. United States of America 09/08/95 09:57 202 647 2762 STATE LEG AFF. 005 September 6, 1995 CONGRESSIONAL RECORD-HOUSE H8551 My government congratulates the thou- Second, in accordance with recently-ap- Let us be clear. Freedom to participate in sands who have helped to organize the con- proved law, the Department of Justice will the political process of our countries is the ference, to draft the Platform for Action. to launch a six-year. $1.6 billion initiative to inalienable right of every woman and man. inform the world about the subjects under fight domestic violence and other crimes Deny that right, and you deny everything. discussion here and to encourage wide par- against women. Funds will be used for spa- It 18 unconscionable, therefore, that the ticipation both by governments and NGO's. cialized police and prosecution units and to right to free expression has been called into We have come here from all over the world train police, prosecutors and judicial person- question right here, at a conference con- to carry forward an age-old struggle: the nel. ducted under the auspices of the UN and pursuit of economic and social progress for Third. our Department of Health and whose very purpose is the free and open dis- all people, based on respect for the dignity Human Services will lead a comprehensive cussion of women's rights. and value of each. assault on threats to the health and security And it is a challenge to us all that so many We are here to promote and protect numan or women-promoting healthy behavior. in- countries in so many parts of the world- rights and to stress that women's rights are creasing awareness about AIDS, discouras- north. south, west and east-fall far short of neither separable nor different from those of ing the use of cigarettes, and striving to win the noble objectives outlined in the Platform men. the battle against-breast cancer. for Action. We are here to stop sexual crimes and And, as Mrs. Clinton made clear yesterday, Every nation. including my own, must do other violence against women; to protect ref- the United States remains firmly committed better and do more-to make equal rights a ugees, SQ many of whom are women; and to to the reproductive health rights gains made fundamental principle of law; to enforce end the despicable notion-in this era of con- in Cairo. those rights and to remove barriers to the niots-that rape is just another tactic of Fourth. our Department of Labor will con- exercise of those rights. war. duct a grassroots campaign to improve con- That is why President Clinton has made fa- We are here to empower wornen by enlarg- ditions for women in the workplace. The vorable action on the Convention to Elimi- ing their role in making economic and politi- campaign will work with employers to de- nate Discrimination Against Women a top cal decisions, an idea some find redical, but velop more equitable pay and promotion priority. The United States should be a party which my government believes 18 essential policies and to help employees balance the to that Convention. to economic and social progress around the twin responsibilities of family and work. And it is why we will continue to seek a world; because no country can develop If half Fifth, our Department of the Treasury will dialogue with governments-here and else- its human resources are de-valued or re- take new steps to promote access to finan- where-that deny to their citizens the rights pressed. cial credit for women. Outstanding U.S. onumerated in the Universal Declaration We are here because we want to strengthen microenterprise lending organizations will In preparing for this conference. I came families. the heart and soul of any society. be honored through special Presidential across an old Chinese poem that is worth re- We believe that girls must be valued to the awards and we will improve coordination of calling. especially today. as we observe the same degree as boys. We believe, with Pope (ederal efforts to encourage growth in this Day of the Girl-Child. In the poem. a father John Paul II. in the "equality of spouses field of central importance to the economic says to his daughter: with respect to family rights". We think empowerment of women. Sixth. the Agency for International Devel- We keep a dog to watch the house, women and men should be able to make in- formed judgments 8.8 they plan their fami- opment will continue to lead in promoting A pig is useful. too. lies. And we want to see forces that weaken and recognizing the vital role of women in We keep a cat to catch a mouse. families-including pronography. domestic development. Today, we announce important But what can we do with a girl like you? initiatives to increase women's participation Fellow delegates, lot us make sure that violence and the sexual exploitation of chil- in political processes and to promote the en- question never needs to be asked again-in dren-condemned and curtailed. forcement of women's legal rights. China or anywhere else around the world. Finally, we have come to this conference There is & seventh and final commitment Let us strive for the day when every young to assure for women equal access to edu- cation and health care, to help women pro- my country 18 making today. We, the people girl, in every village and metropolis, can and government of the United States of look ahoud with confidence that their lives tect against infection by HIV. to recognize America. will continue to speak out openly will be valued, their individually recognized, the special needs and strengths of women and without hesitation on behalf of the their rights protected and their futures de- with disabilities, and to attack the root human rights of all people. termined by their own abilities and char- causes of poverty. in which so many women. My country is proud that, nearly. a half acter. children and men are entrapped, century ago. Eleanor Rooseveit, a former Let us reject outright the forces of repres- We have come to Beijing CO make further First Lady of the United States. helped draft sion and ignorance that have held us back: progress towards each of these goals. But the Universal Declaration of Human Rights. and act with the strength and optimism real progress depend not on what we say We are proud that, yesterday afternoon, in unity can provide. here, but on what we do after we leave hur. The Fourth World Conference for Women is this very hall, our current First Lady-HII- Let us honor the legacy of the heroines, fa- lary Rodham Clinton-re-stated with memo- mous and unknown who struggled in years not about conversations; it 18 about commit- rable eloquence our national commitment to past to build the platform upon which we ments. that Declaration. now stand. For decades, my nation has led efforts to The Universal Declaration reflects spir- And let us heed the instruction of our own promote equal rights for women. Women in (tual and moral tenets which are central to lives. Look around this hall, and you will see their varied roles-as moshers. farm labor- all cultures. encompassing both the won- women who have reached positions of owner ers. factory workers, organizers and commu- drous diversity that defines us and the com- and authority. Go to Huairou, and you will nity leaders helped build America. My gov- mon humanity that binds us. It obliges each see an explosion of energy and intelligence ernment 18 based on principles that recognize government to strive in law and practice to devoted to every phase of struggle. Enter the right of every person to equal rights and protest the rights of those under its jurisdic- any community in any country, and you will equal opportunity. Our laws forbid discrimi- tion. Whether & government fulfills that ob- find women insisting-often at great risk- nation on the basis of sex and we work hard ligation is a matter not simply of domestic. on their right to an equal voice and equal a.c. to enforce those laws. A rich network of non- but of universal, concern. For it 18 R funding ccss to the levers of power. governmental organizations has blossomed principle of the United Nations that no gov- This past week, on video at the NGO within our borders. reaching out to women ernment can hide its humar rights record Forum. Aung San Sun Kyl. said that "it is and girls from all segments of society. edu- from the world. time to apply in the arena of the world the cating, counseling and advocating change. At the heart of the Universal Declaration wisdom and experience" women have gained. The United States is a leader, but leaders 18 a fundamental distinction between coer- Let us all agree; it 18 time. It is time to cannot stand still Barriers to the equal par- cion and choice. turn bold talk into concrete action. ticipation of women persist in my country. No woman-whether in Birmingham. Bom- It is time to unleash the full capacity for The Clinton Administration is determined to bay. Beirut or Beijing-should be foreibly production, accomplishment and the enrich- bring those barriers down. sterilized or forced to have an abortion. ment of life that 1s inherent to us-the Today. in the spirit of this conference, and No mother should feel compelled to aban- women of the world. in the knowledge that concrete steps to ad- don her daughter because of a societal pref- Thank you very much. vance the status of women are required in erence for males. every nation, I am pleased to announce the No woman should be forced to undergo gen- FIRST LADY HILLARY RODHAM CLINTON-RE- new commitments my government will un- ital mutilation, or to become a prostitute. or MARKS FOR THE WORLD HEALTH ORGANIZA- dertake: to onter into marriage or to have sex. TION FORUM ON WOMEN AND HEALTH SECU- First. President Clinton will establish a No one should be forced to remain silent RITY White House Council on Women to plan for for rear of religious or political persecution, BEIJING, CHINA, SEPTEMBER 5, 1995 the effective implementation within the arrest, abuse or torture. Thank you, Dr. Nakajima. United States of the Platform for Action. All of us should be able to exercise control Dr. Nakajima, Dr. Sadik. Gertrude That Council will build on the commit- over the course of our own lives and be able Mongella, delegates to the Fourth U.N. Con- ments made today and will work every day to help shape the destiny of our communities ference on Women, and guests from all cor- with the nongovernmental community. and countries. nors of the world, I am honored to be here 09/08/95 09:58 202 647 2762 STATE LEG AFF. 006 H8552 CONGRESSIONAL RECORD-HOUSE September 6, 1995 this morning among women and men who are around the world die in childbirth Most of the physical integrity of a woman's body. committed to improving the health of those deaths could be prevented with basic leaving a lifetime of physical and emotional women and girls everywhere. primary. reproductive and emergency obstet- scars. I commend the World Health Organization rio health care. In some places, there are HIV, AIDS, and sexually transmitted dis- for making women's health a top priority 175,000 motherless children (or every one mil- eases threaton more and more women-and and for eatablishing the Global Commission lion families. Manv of those children JON'T experts predict that by the end of this decade on Women's Hoalth. survive. And of those who do. many are re- more than half of the people in the world I am proud that in the preparatory meet- cruited into a life of exploitation on the with HIV will be women. AIDS, which ing for this Fourth world Conference on streets of our world's cities. subjected daily threasens whole families and regions. de- Women, the United States took the lead in to abuse, indignity. disease. and the specter mands the strongest possible reeponse. Gov. highlighting the importance of a comprehen- of early death. ernments and the international community sive approach to women's health. That ap. Thero must be a renewed commitment to. must address head-on the growing number of proach. builds on actions taken at previous improving maternal health. The WHO women who are being infected. women's- conferences and the recent con- launched in 1987 a Safe Motherhood Initia- More than 700,000 women worldwide face ferencee at Cairo and Copenhagen, whose tive to halve maternal mortality by the yeur breast cancer each year-and over 300,000 die goals to promote the health and well-being 2000. To reach that goal. more attention of it. It's the leading cause of death for of all people were endorsed by 180 nations. must be Daid to emergency medical care as women in their prime in the developed world Cairo was particularly significant us gov. well as primary prenatal cure. Providing In the time I speak to you today. 25 women ernmental and non-sovernmental partici- emergency obstetric care is a relatively around the world will die of breast cancer. In pants worked together to craft of Program choap way of saving lives-and 2:0ng with my own country. it is hard to find a family. for Action which, among other things. calls family planning services is among the most an office. or a neighborhood that has not for universal access to good quality repro- cost effective interventions in even the poor- been touched by this disease. My mother-in- duotive health care services. including safe. 595 of countries. law struggled against breast cancer for four effective. voluntary family planning. greater The commitment of the WHO and its Glob- years before losing her battle. access to education and health care: more re- at Commission on Women's Health to make Tobacco use is the number one preventable sponsibility on the part of men in sexual and childhenring and childbirth a safe and cause of death. Ninety percent or women who reproductive health and childbearing; and re- healthy period of ovory woman's life deserves smoke began to smoke as adolescents-lead- ductiono wasteful resource consumption. action on the part of every nation res 1016 to high rates of heart disease, cancer. Here at this conference. improving girls resented here. and chronic lung disease later in life. and women's health 18 A priority of the draft One hundred million women cannot obtain As the WHO points out. we also need to Platform for Action. It includes such goals or are not using samily planning services be- recognize and effectively address the fact as:- Access to universal Drimary health caro cause then are poor, uneducated or lack ac- that women are far more likely to be exposed for all people-a goal not yot schieved in casa to care. Twenty million of these women to work-related and environmental health many countries, including my own. The pro- will seek unsafe abortions-some will dic. hazards. Policies to alloviate and eliminate motion of breast feeding. The provision of some will De disabled for life. A growing such health hazards associated with work in ferinking water and sanitation. Research number of unwanted pregnancies are occur- the home and in the workplace demand a.c- in and attention to wornen's health issues, ring among young women, barely beyond tjon. including: environmental hazards, Dreven- childhood chemselves. As we knew. when Research also indicates that certain com- don of HIV/AIDS and other sexually trars- children have children. the chances 21 municable diseases affect women in greater mitted. diseases. encouragement for adolos- schooling. jobs, and good health is reduced numbers. Tuberculosis. for example. 18 re- cents to-postpone sexual activity and child- for both Durent and ohild. And our progress epcnaible for the deaths of one million bearing. and discouragement of cultural tra- as a human family takes another step back. women each year and those in their early ditions and customs that deny food and The Cairo document recogDizes "the basic and reproductive years are most vulnerable. health care to girls and women. right of all couples and individuals to decide When health care systems around the Goals such BA these illustrate 8 new com- *sely and responsibly thu number. spacing world don't work for women: when our moth- mitment to the well-being of girls and and timing of their ohildren and to have the ers. daughters, sisters, friends and coworkers worden and E belief in their rights to live up information and means to do BO." Women are denied access to quality care because to their own God-given.potentials. should have the right to health care that they are poor. do not have health insurance. At long last, people and their governments will enable them to go safely through preg- or simply because they are women, It 18 not overywhere are beginning to undorstand that nancy and childbirth and provide them with just their health that is put at risk. It is the investing in the health of women and girls is the bust chance of having a healthy infant. health of their families and communities as as important 00.thn prosperity of nations as Women and men must also have the right well. investing in the development of open mar- is make those most intimate of all decisions Like many nations. the United States kets and trade. The health of women and !ree of discrimination. coercion and violence. brings to this conference A serious commit- girls cannot be divorced from progress on particularly any coeroive practices that ment to improving women's health. We bring other economic and social issues. force women into abortions or sterilizations. with us a series of initiatives which reg- Scientists: doctors. nurses, community On these issues, the U8 supports the provi- resent the first steps to carrying out this leaders and women themselves are working sions in the Boijing Platform for Action that Conference's Platform for Action. to improve and safeguard the health of realizm consensus language that was agreed We are continuing to work for health care women and families all over the world. If we to at the Cairo Conference about a year ago. reform to ensure that every citizen has ao- Join together as a global community. we can It deolared that "in no case should abortion cess to affordable. quality care. lift up the health and dignity of all women be promoted as a method of family plan- We are proposing a comprehensive and co- and their families in the remaining years of ning." The Platform asks governments "to ordinated plan to reduce smoking by chil- the 20cD century and on into the next millen- strengthen their commitment to women's dren and adolescents by 50 percent. nium. health, to deal with the health impact of un- We art working to address the many fac- Yet, for all the promise the future holds. safe abortion as a major- public health con- tors that contribute to teanage pregnancy, WB also know that many barriers lio in our cern and to reduce the recourse to abortion our most serious social problems, by encour- way. For too long. women have been denied through expanded and improved family plan- asing abstinence and personal responsibility 400668 to health care. education. economic ning services." on the part of young men and women: im- opportunities, legal protection and human Violence tigainst women remains a leading proving access to health care and family righta-all of which are used as building cause of death among girls and women be- planning services; and supporting health blooks for 2 healthy and productive life. tween the ages of 14 and 44-violence from education in our schools. In too many places today. the health of ethnic and religious conflicts. crime in the WE are pursuing a public policy agendu on women and families 18 compromised by Inad- streets and brutality in the home. For HIV/AIDS that is specific to women. adoles- equate, inaccessible and unaffordable medi- woman who survive the violence. what often cents. and children. cal care, lack of sanitation, unsafe drinking awaits them is a life of unrelenting physical We are continuing to fund and conduct water. poor nutrition. insufficient research and emotional Dain that destroys their cn- contraceptive reaearch and development. and aducation sbout women's health issues. pacity for mothering. homemaking or work- Wo are addressing the health needs of and cosrcive and abusive sexual practices. ing and can lead to substance abuse, and women through initiatives such as: 5 too many places. the status of woman's even suioide. The National Action Plan on Breast Can- health is a pioture of human euffering and Violence against girls and women goes be- cer-a public, Drivate partnership working pain. The faces in that Dicture are of girla yond the beatings, rape, killings and forced with all agencies of government. the media. and women who, but for the grace of God or prostitution that arise from poverty. wars ecientific organizations. advocacy groupe the accident of birth. could be ue or one of and domestic conficts. Every day, more and industry to Advance breast health and our sistars, mothers or daughters. than 5.000 young girls are forced 30 endure eradicate breast cancer as a threat to the Today, at least fifteen percent of prognant the brutal practice of genital mutilation. lives of American women. woman suffer life threatening complications The procedure is painful and life-threaten- An Expansion of the National Breast and and more than one-half million women ing. It is degrading. And it is a violation of Cervical Cancer Early Detection Program- 09/08/95 10:00 202 647 2762 STATE LEG AFF. 007 September 6, 1995 CONGRESSIONAL RECORD - H H8553 which wili ensure that women w!lo need reg- human rights and participate fully in the Do- much or the work we do 18 not valued-not ular screening and detection services have litical life of their countries. by economists. not by historians. not by pop- access to them, and that those services meet There are some who question the reason ular culture. not by government leaders. quality standards. for this conference. Let them listen to the At thie very moment. as we s!t here. The inclusion of women in clinical trials voices of women in their homes. neighbor- women around the world are giving birth. for research and testing of drugs or other hoods. and workpilaces. raising children. cooking meals. washing interventions that probe specific differences There are some who wonder whether the clothes. cleaning houses. planting crops. between men and women is batterns or dis- Ilves cr women and girls matter to economic working or assembly lines. running compa. ease and reactions to therapy. and political progress around the nies. and running countries. The special health needs of older women klobc Lil them 100k at the wonnan women also are dying from diseases that will be addressed through educational cam- gathered here and at Heirou the nome- should have been provented or treated. they paigns about osteoporosis. oancer and other makers. nurses. teachers. lawyers. policy- are watching their children succumb to mal- diseases. makers. and women who run thoir own busi- nutrition caused by Doverty and economic And the US is conducting the largest clini- nesses. deprivation: they are being denied the right cal research study ever undertaken CO exam- It is conferences like this that compel gov. to Ko to school by their own fathers and the the major causes of death; disability and ernments and peoples everywhere to liston. brothers: they are being forced into prostitu- frailty in post-menopausal women. look and !ace the world's most pressing prob- tion. and they are being barred from the bal- Women's health security must we a prior- lems. lot box and the bank lending office. ity of all people and governments working Wasn't 10 after the women's conference in Those of us who have the opportunity to be together. Without good health. a woman's Nairobi ten years ago that the world recused here have the responsibility to speak for God-gives potential can never be realized. for the first time or the crisis of domestic v.° those who could not. And without healthy women. the world's pc- olence? As an American. I want to speak up for tential can never be realized. Earlier ecday, I participated in B World women in my own country-wort.en who are So let us Join together to ensure that overy Health Organization forum. where govern- raising children on the minimum wage. little boy and girl that comes into our world ment officials. NGOs. and individual citizens women who CAN't niford health care or child 18 healthy and wanted, that every young are working on ways to address the health care, women whose lives are throatened by woman has the education and economic on- problems of women and girls. violence. including violence in their own portunity to live a healthy life; and that Tomorrow, I will attend a gashering of the homes. every woman has access to the health care United National Development Fund for I want to speak up for mothers who are she needs throughout her life to fulfill her women. There. the discussion will focus on !ighting for good schools. safe neighbor- potential in her family, her work, and her local-nnd highly successful-prostams that hoods. clean air and clean airwaves for community. give hard-working women access to credit x0 older women. some of them widows, who If we care about the futures of our daugh- they can Improve their own lives and the have raised their families and now find that ters, our sons. and the generations that will lives of their families. their skills and life experiences are not val- follow them. do nothing less. What WB are learning around the world is ued in the workplace for women who are Thank you for the work you do every day that, :! women are healthy and educated working all night AS nurses, hotel clerks. and to bring better health to the women. chil- their families will flourish. If wornen are free fast food chefs 90 that they can be at home dren. and families of this world. Thank you from violence, their families will Nourish. If during the day with their kids and for for helping governments and citizens around women rave a chance to work and card as women everywhere who simply don't have the world understand that we cannot ta.k full and equal partners in societ.v. their fami- time to do everything they are called upoc about equality and social development with- lies will flourish. to do each day. out also talking about health care. And when families Nourtsh, communities Speaking to you today. I speak for them. Most of All, thank you for being par. of and nations will flourish. :USC as each of us speaks for women around this bietoric and vital discussion which That is why every woman. every man. the world who are denied the chance to RO to holds 80 much promise for our future. overy child. every family. and every nation school. or see a doctor. or OWD property. or cn our Dlanet bas u stade in the discussion have a say about the direction of their lives, FIRST LADY HILLARY RODHAN! CLINTON-RE- that takes place here. simply because they are women. MARKS FOR THE UNITED NATIONS FOURTH Over the past 25 years. I have worked per- The truth is that most women around the WORLD CONFERENCE ON WOMEN sistently on Issues relating to women. chil world work both inside and outside the dren and familes. Over the Past two-and-1- home. usually by necessity. BELJING, CHINA, REPTEMBER 3. 1996 hair years. I have had the opportunity to He need to understand that there is no for- Mrs. Mongella. distinguished delegates and learn more about the challenges facing mula for now women should lead their lives. guests: women in my own country and around the That is why we must respect the choices that I would like to chark the Secretary Gen- world. each woman makes for herself and her :am- eral of the United Nations for invitime me to I have met new mothers ID Jojakarta. In- 11y. Every woman descrves the ohance to re- be part of the United Nations Fourth world donesia. who como together regularly in alize her God-given potential. Conference on Women. This is truly a cole- their village to discuss nutrition. family We a:so must recognize that women will bration-a celebration of the contributions planning. and baby care. never gain full disnity until their human women make in every aspect of life: in the I have met working parents In Denmark rights are respected and protected. home. on the job. :n the!r communities. as who talk about the comfort they fcol in Our goals for this conference. to swength- mothers, wives, sisters, daughters, learners. knowing that their children can be cared for en families and societies by empowering workers. citizens and leaders in creative. ea!e. and nurturing after-school women to take greater control over their It is also a coming together, much the way centers. own deetinies, cannot be fully a.chioved un. women come together every day to every I have met women in South Africa who less all governmenta-bare and around the country. helped land the struggle to end apartheid and world-accept their responsibility to protect We come together in fleids and in sac- are now belping build a now democracy. and promote internationally recognized wries. In village markets and supermarkets. I have me: with the leading women of the human rights. In living rooms and board rooms. Western Hemisphere who are working every 'rhe international community has long ac- Whether it 18 while Diaying with our chil- day to promote interacy and better health knowledged-and recently affirmed at V1- dren in the park. or washing clothes in a care for the children of their countries. enna-that both women and men are entitled river. or taking a break at the office water 1 have met worr.en in India and Bangladesh to a range of protections and personal Tea- cooler. we nome together and talk about our who are taking out small loans to huy milk doma. from the right of personal security to aspirations and concerns. And time and cowg. Mckshaws. thread and other materials the right to determine freely the number and again. our talk turns to our children and our to create a livelihood for themselves ADD spacing of the children they bear. families. their families. No one should be forced to remain silent However different wc may bc. there 16 far I have met doctors and nurses in Belarus for !ear of religioue or political persecution. more that unites us than divides us. We and Ukraine who are trying to keep children arrest. abuse or torture. share a common future. And we are here to alive in the aftermath of Chernobyl. Trasically, women are most often the Ones find common ground 80 that we may help The great challenge of this conference !a to whose human rights are violated Evon !n bring new dignity and respect to womun and give voice to woman everywhere whose expe- the late 20th contury. the rage of women girls all over the world-and in so doing. riences zo unnoticed. whose words go un- continues to be used as an instrument of bring new strength and stability w families heard. armed conflict. Women and children make as well. Women comprise more than half the up a large majority of the world's refugees. By gathering in Beljing, we are focusing world's population. women are 70 percent or Ana when women are excluded from the DO. world atten On issues that matter most the world's poor, and two-thirds of those who litical process. they become even more vul- in the lives of women and their 'amilies: ac. are not caught to :ead and write. nerable to abuse. cess to ecucation. health care. jobs. and Women use the primary caretakers for I bolieve that. on the eye of a new millen- credit. the chance to enjoy basic legal and most of the world's children and alderly TAC nium. it 18 time to break our silence. It is 09/08/95 10:01 202 647 2762 STATE LEG AFF. 008 H8554 CONGRESSIONAL RECORD-HOUSE September 6, 1995 time for us to say here in Beijing. and the If WO take bold stops to better the lives of into Kuwait, three R-2's interdioted IT, world to hear. that it ta no longer acceptable women we will be taking bold steps to better dropped the sensor-fused wea.pons. and to discuss women's rights as separate from the Ilves of obildren and families too. Fami- were able to knock out 46 percent of human rights. lies rely on mothers and wives for emotional These abuses have continued because, for support and care; families rely OD women for the mechanized vehicles including too long, the history of women has been R labor in the home: and increasingly. families tanks in that division. That. Mr. history of allence. Even today, there are rely on women for income needed to raise Speaker. is a revolutionary conven- those who are trying to ailence our words. healthy children and care for other relatives. tional capability. The voloes of this conference and of the As long as discriminacion and inequities The problem is that every study that women at Hairou must be heard loud and remein so commonplace around the world- has been done on the B-2 indicates that clear: as long as girls and women are valued less, having only 16 of them 18 simply not It is & violation of human rights when ba- red less, red last. overworked, underpaid, not bies are donied food, or drowned. or surro- enough. The Rand study and the study schooled and subjected to violence in and out cated. or their spines broken. simply because of thoir homes-the potential of the human that was done by Gen. Jasper Welch, they are born girls. family to create a peaceful. prosperous world stated that somewhere between 40 and It 18 & violation of human rights when will not be realized. 60 are needed. I in fact asked General women and-girle are sold into the slavery of Let this conference be our-and the Powell what he recommended to Dick prostitution. world's-jall to action. Cheney, and he said. "I recommended It 18 a violation of human rights when And let us heed the call BO that we can cre- 50." women are doused with gasoline, set on fire ace & world in which every woman is treated In my judgment. this is the most 1m- and burned to death because their marriage with respect and disnity. every boy and girl dowries are deemed too small. is loved and cared for equally, and every portant defense decision we will be It is a violation of human rights when indi- family has the hope of a strong and stable no- making in this decade. Seven former vidual women are raped intheir own commu- turs. Secretaries of Defense wrote President nities and when thousands of women are aud- Thank you very much. Clinton urging him to procure addi- Jected to rape 6.B a tectic or prize of war. God's blessing on you. your work and all tional B-2's. We have spent $11.4 billion It is a violation of human rights when a who will benefit from st. to develop the technology for the B-2 leading cause of death worldwide among bomber. We are now able to get an ad- women ages 14 to 44 is the violence they are ditional 20 B-2's for about $15.3 billion. subjected to in their own homes. THE B-2 BOMBER AND AMERICA'S It is a violation of human rights when In my mind. that 18 affordable. If we READINESS young girls are brutalized by the painful and shut down the line. and if we come desrading practice of gonital mutilation. The SPEAKER pro tempore (Mr. Ev- back to it in 5 or 10 years and say. "My It La a violation of human rights when ERETT). Under a previous order of the gosh. we do not have the bombers we women are denied the rights to plan their House. the gentleman from Washington need for the future." it will cost $10 bil- own families, and that includes being forced [Mr. DICKS] is recognized for 5 minutes. lion just to open the line and we get to have abortions or being sterilized against Mr. DICKS. Mr. Speaker, today I nothing. their will. want to address the House of Rep- My judgment 18 that there is another If there is one message that schoos forth resentatives in this special order on a from this conference, it is that human rights important issue that has been missed are women's rights. And women's rights very important issue that will come be- by the press. That 18 the cost of the are human rights. fore the House tomorrow morning, to- munitions on these planes. If we have Let us not forget that among those rights morrow afternoon, when we consider standoff weapons, which the adminis- are the right to speak freely. And the right the defense appropria.tions bill. Since tration supports, on the B-52's and the to be hoard 1980, I have been a strong supporter of B-1-B's, first of all, they have no util- Women must enjoy the right to participate the policy of former President Carter ity against mobile targets. No. 2, is rully in the social and political lives of their and Secretary of Defense Harold Brown that they cost $1.2 million per missile, countries if we want freedom and democracy in initiating the stealth bomber, the B- to thriveand endure. because you have to have long-range It is indefensible that many woman in non- 2 program. missiles. They also cost about $15 to governmental organizations who wished to In the gulf war, we saw with vivid $20 billion for a load of them. participate in this conference have not been evidence the effectiveness of stealth The cost of the wearons in the B-2 J- able to attend-or have been prohibited from. technology when it was decided to use DAMS weapon 18 $320,000 for 16 of them, fully taking part. the F-117's against the most heavily and in my judgment, that is a major Let me be clear. Freedom means the right defended targets inside Saddam Hus- difference, one-fourth the oost of one of people to assemble. organize. and debate sein's Iraq. The F-117's, without the re- cruise missile and a fraction. of the cost openly. It means respecting the views of quirement for jammers and other sup- those who may.disasree with the views of of a load of missiles. In a few days of a their governments. It means not taking citi- port aircraft, were able to go in and at major conflict, you could pay for the rens away from their loved ones and jalling tack the most heavily defended tar- B-2 simply by having these less expen- them. mistreating them, or denying them gets, using 2,000 pound precision-guided sive weapons. either the sensor-fused their freedom or dignity because of the munitions. They were able to knock weapon or the J-DAMS. I think that is peaceful expression of their ideas and opin- out those radars and surface to air mis- a major difference. I also believe. 18 we ions. siles almost instantly, and come back had enough B-2's. the potential some- In my country. we recently celebrated the without out Dilots being shot down. day for a conventional deterrent. 75th anniversary of women's suMrage. It took I believe that the B-2 bomber 18 Just What If we had been able to show 150 years after the signing of our Declaration of Independence for women to win the right a bigger and better version of the F- Saddam that we had this capability to vots. It took 72 years of organized swug- 117. It allows us to go five times as far and we could have avoided the gulf gle on the part of many courageous women and carry eight times as muoh conven- war? It oost us $10 billion to move all and men. tional munitions and submunitions. our forces out to the gulf, Then it cost It was one of America's most divisive phil- With those eame 2.000 pounds. it could 560 billion to prosecute the war, $70 b11- osophical wars. But it was also a bloodless carry 16, each of which would be inde- lion was expended. war. Summer was achieved without a shot pendently targetable. fired. I think the most revolutionary thing 1330 We have also been reminded, in V-J Day about stealth technology is its capabil- The cold war is over, yet we still observances last weekend. of the good that comes when men and women join together to ity against mobile targets. In a B-2 have threats out there. People say combat the forces of tyranny and build a bet- study that was done by Rand back in there are no threats. Saddam still ex- ter world. 1991. a simulation was used of Saddam 18ts. We have problems with Iran, we We have seen peace provail In most places Hussein's division, moving from Saudi have problems with North Korea. And for a half century. We have avoided another Arabia into Kuwait. The B-2 was load- in each of thoee scenarios. there could world war. ed up with sensor-fused - weapons. Each be military divisions coming across the But we have not solved older, deeply-root- B-2 could carry about 1,400 of these borders into a neighboring country. ed problems that continue to diminish the potential of half the world's population. submunitions that looks like a puck In my judgment, having this long- Now it is time to act on behalf of women with a parachute on top when dis- range stealth bomber capability that everywhere. pensed. With Saddam's division coming can go in without any other support PRIORITY UNCLASSIFIED file TB WHITE HOUSE SITUATION ROOM PAGE 01 OF 07 PRT: FIRSTLADY SIT: BERNARD SIT: NSC <PREC PRIORITY <CLAS> UNCLASSIFIED <DTG> 121529Z JUL 99 FM USMISSION GENEVA TO RUEHC/SECSTATE WASHDC PRIORITY 6961 INFO RUCNDT/USMISSION USUN NEW YORK 5220 RUEHAT/AMCONSUL AMSTERDAM 0015 RUEHPH/CDC ATLANTA GA UNCLAS SECTION 01 OF 04 GENEVA 005322 DEPT FOR IO PASS TO HHS FOR OS, OPHS (LURI), OIRH, CDC, NIH, FDA PASS TO USAID FOR GLOBAL BUREAU, AFR, PPC PASS TO NSC WHITE HOUSE FOR DR. BERNARD E.O. 12958: N/A TAGS: TPHY, TBIO, WHO SUBJECT: W.H.O. - INVITATION TO MRS. CLINTON TO PARTICIPATE IN YEAR 2000 STOP TB CONFERENCE 1. THIS IS AN ACTION MESSAGE FOR THE DEPT. SEE PARA 15. 2. SUMMARY: DR. GRO HARLEM BRUNDTLAND, DIRECTOR GENERAL, W.H.O. HAS INVITED THE FIRST LADY TO PARTICIPATE IN A MARCH 2000 CONFERENCE IN AMSTERDAM ON TUBERCULOSIS CONTROL AND THE HIGHEST BURDEN COUNTRIES. THIS MESSAGE REVIEWS OUR UNDERSTANDING OF THE OBJECTIVES, FORMAT, AND AGENDA OF THE CONFERENCE. END SUMMARY. INVITATION TO MRS CLINTON 3. MISSION HAS RECEIVED A COPY OF A LETTER DATED JUNE 14 SENT TO THE FIRST LADY, HILLARY RODHAM CLINTON, FROM DR. GRO HARLEM BRUNDTLAND, DIRECTOR-GENERAL, WORLD HEALTH ORGANIZATION (W.H.O.) INVITING MRS. CLINTON TO PARTICIPATE IN A MINISTERIAL CONFERENCE TO STOP TB, TO BE HELD IN THE NETHERLANDS, MARCH 21-23, 2000. TEXT FOLLOWS: UNCLASSIFIED PRIORITY UNCLASSIFIED WHITE HOUSE SITUATION ROOM PAGE 02 OF 07 DEAR HILLARY, FURTHER TO MY RECENT LETTER OF 27 APRIL 1999 REGARDING THE TUBERCULOSIS EPIDEMIC AND THE STOP TB INITIATIVE, I WOULD LIKE TO ENQUIRE ABOUT YOUR AVAILABILITY TO PARTICIPATE IN A MINISTERIAL CONFERENCE TO STOP TB. THIS CONFERENCE IS TENTATIVELY SCHEDULED FOR 21-23 MARCH 2000 AND WOULD BE CO-SPONSORED BY W.H.O., AND THE GOVERNMENT OF THE NETHERLANDS WHICH WOULD HOST THE MEETING. THERE, FOR THE FIRST TIME, THE SOCIAL, HEALTH AND ECONOMIC DEVELOPMENT CONSEQUENCES OF THE EPIDEMIC WOULD BE CLEARLY ENUNCIATED TO MINISTERS OF HEALTH AS WELL AS MINISTERS OF FINANCE, DEVELOPMENT OR PLANNING FROM THE WORLD'S HIGHEST BURDEN COUNTRIES. WE KNOW THAT COMBATING TB REQUIRES SUSTAINED SUPPORT ACROSS SECTORS OF GOVERNMENT AND SOCIETY. THE MINISTERIAL EVENT WOULD SET THE STAGE FOR WIDENING THE RANGE OF ACTORS INVOLVED IN TB CONTROL AT COUNTRY LEVEL. FOLLOWING FORMAL AGREEMENT, WHICH WE ANTICIPATE SOON, FROM THE GOVERNMENT OF THE NETHERLANDS, YOU WILL BE INVITED TO JOIN ME AT THE MINISTERIAL CONFERENCE ON THE EVENING OF 22 MARCH AND MORNING OF 23 MARCH. YOUR PRESENCE AND COMMITMENT TO ISSUES SUCH AS TB WOULD LEND STRONG CREDIBILITY TO THE PROCEEDINGS. I LOOK FORWARD TO OUR CONTINUED COOPERATION AS PARTNERS IN THE STOP TB INITIATIVE, AND TO A SUCCESSFUL MINISTERIAL CONFERENCE TO STOP TB. YOURS SINCERELY, GRO HARLEM BRUNDTLAND, MD, MPH DIRECTOR-GENERAL END LETTER OBJECTIVES/OVERALL PURPOSE 4. MISSION'S HEALTH ATTACHE DISCUSSED PLANS FOR THE CONFERENCE WITH DR. MAARTEN BOSMAN OF THE STOP TB INITIATIVE. THE FOLLOWING MAY BE HELPFUL TO THE WHITE HOUSE IN DECIDING WHETHER TO ACCEPT THIS INVITATION: A. THE OVERALL OBJECTIVE OF THE CONFERENCE IS TO BUILD, ENHANCE AND SUSTAIN THE POLITICAL WILL OF GOVERNMENTS TO COMMIT TO INVESTING IN AND SUSTAINING EFFECTIVE TB CONTROL AS PART OF OVERALL HEALTH SECTOR DEVELOPMENT. UNCLASSIFIED PRIORITY UNCLASSIFIED WHITE HOUSE SITUATION ROOM PAGE 03 OF 07 B. THE CONFERENCE WILL ADDRESS TB AS A MAJOR CONSTRAINT ON SOCIO-ECONOMIC DEVELOPMENT. IT WILL PRESENT TB AS A MAJOR CAUSE OF HUMAN SUFFERING, AFFECTING PARTICULARLY THE POOR, WOMEN AND CHILDREN, AND EMPHASIZE THE NEED FOR GOOD TB CONTROL SERVICES AS AN INTEGRAL COMPONENT OF EXPANDED AND STRENGTHENED HEALTH SERVICES WHICH CAN ACCELERATE ECONOMIC GROWTH AND SOCIAL DEVELOPMENT. UNCLAS SECTION 02 OF 04 GENEVA 005322 DEPT FOR IO PASS TO HHS FOR OS, OPHS (LURI), OIRH, CDC, NIH, FDA PASS TO USAID FOR GLOBAL BUREAU, AFR, PPC PASS TO NSC WHITE HOUSE FOR DR. BERNARD E.O. 12958: N/A TAGS: TPHY, TBIO, WHO SUBJECT: W.H.O. - INVITATION TO MRS. CLINTON TO PARTICIPATE IN YEAR 2000 STOP TB CONFERENCE C. TWO POSITION PAPERS WILL BE PRESENTED ADDRESSING THE OVERRIDING ISSUE OF BUILDING AND SUSTAINING POLITICAL WILL AND INVESTING IN AND SUSTAINING EFFECTIVE TB CONTROL AS PART OF OVERALL HEALTH SECTOR DEVELOPMENT. D. THE CONFERENCE AIMS TO ACHIEVE ITS OBJECTIVES THROUGH THE FOLLOWING: --DISCUSSING THE IMPACT OF THE TB PROBLEM ON THE ECONOMY AND SOCIETY AND THE SOCIETAL AND ECONOMIC GAINS THAT CAN BE DERIVED FROM INVESTING IN TB CONTROL; --STIMULATING INCREASED AWARENESS OF THE GLOBAL TUBERCULOSIS PROBLEM, THE STALLED PROGRESS IN IMPLEMENTING EFFECTIVE TB CONTROL IN MANY OF THE MOST AFFECTED COUNTRIES AND THE FACT THAT NEARLY 85 PERCENT OF THE WORLD'S POPULATION LACKS ACCESS TO THE MOST COST EFFECTIVE CURE STRATEGY; ANALYZING EXPERIENCES, LESSONS LEARNED AND CHALLENGES TO TB CONTROL IN THE MAJOR HIGH BURDEN COUNTRIES; -- DISCUSSING AND ADOPTING NEW APPROACHES TO APPLICATION OF DOTS (DIRECTLY OBSERVED THERAPY, SHORT COURSE) IN THE CONTEXT OF SOCIETY AND THE HEALTH SECTOR AT LARGE, INCLUDING SECTOR DEVELOPMENT APPROACHES. UNCLASSIFIED PRIORITY UNCLASSIFIED WHITE HOUSE SITUATION ROOM PAGE 04 OF 07 EXPECTED RESULTS 5. W.H.O. HOPES THAT THE CONFERENCE WILL YIELD A RESOLUTION, ENDORSED BY MINISTERIAL PARTICIPANTS, STATING THEIR COMMITMENT TO REVIEW THEIR GOVERNMENTS' CURRENT INVESTMENTS IN TB CONTROL, REDIRECT COMMITMENT TO REVIEW THEIR GOVERNMENTS' CURRENT INVESTMENTS IN TB CONTROL, REDIRECT THESE RESOURCES TO MORE EFFECTIVE TB ACTIVITIES, WHERE APPROPRIATE RAISE PUBLIC AWARENESS OF TB AND SEEK INCREASED INVESTMENTS IN TB CONTROL TO SUPPORT SECTOR- WIDE DEVELOPMENT. 6. COMMITMENT TO THE STOP TB INITIATIVE INCLUDING OWNERSHIP OF THE DEVELOPMENT PROCESS FOR THE GLOBAL ACTION PLAN AND THE GLOBAL CHARTER. FORM AND PARTICIPATION 7. THE CONFERENCE WILL INCLUDE PANEL PRESENTATIONS AND FACILITATE DISCUSSION OF KEY ISSUES FACED BY THE HIGHEST BURDEN COUNTRIES. COUNTRY EXPERIENCES ON SIGNIFICANT CONSTRAINTS TO ACTION WILL BE PRESENTED BY PARTICIPATING DELEGATES. A CONFERENCE REPORT REFLECTING THE MAJOR OUTCOMES OF DISCUSSIONS WILL BE PREPARED FOR ENDORSEMENT DURING THE FINAL SESSION. 8. THE CONFERENCE WILL HAVE APPROXIMATELY 130 PARTICIPANTS, WITH AN ESTIMATED 66 OF THESE FROM HIGH BURDEN COUNTRIES, ONE REPRESENTATIVE FROM EACH OF THE SIX W.H.O. REGIONAL OFFICES, FIVE CHAIRS AND SPEAKERS, THE W.H.O. TB INITIATIVE STEERING GROUP, DUTCH GOVERNMENT DELEGATIONS. 9. COUNTRIES BEING INVITED ARE: BANGLADESH, BRAZIL, CAMBODIA, CHINA, DR CONGO, ETHIOPIA, INDIA, INDONESIA, KENYA, NIGERIA, PAKISTAN, PERU, PHILIPPINES, RUSSIA, SOUTH AFRICA, TANZANIA, THAILAND, UGANDA, VIETNAM, ZIMBABWE. WE UNDERSTAND THAT THEIR MINISTERS OF HEALTH ARE EXPECTED TO PARTICIPATE. 10. THE OFFICIAL LANGUAGE OF THE CONFERENCE WILL BE ENGLISH. TRANSLATION INTO RUSSIA, CHINESE, FRENCH, PORTUGUESE AND SPANISH IS PLANNED FOR THE TECHNICAL SESSIONS, PANEL DISCUSSION AND FINAL SESSION. 11. THE GOVERNMENT OF THE NETHERLANDS IS THE ACTUAL HOST OF THE CONFERENCE, BUT IS ENTERING INTO A CONTRACT WITH UNCLASSIFIED PRIORITY UNCLASSIFIED WHITE HOUSE SITUATION ROOM PAGE 05 OF 07 W.H.O. FOR ORGANIZATION AND IMPLEMENTATION. PROPOSED AGENDA UNCLAS SECTION 03 OF 04 GENEVA 005322 DEPT FOR IO PASS TO HHS FOR OS, OPHS (LURI), OIRH, CDC, NIH, FDA PASS TO USAID FOR GLOBAL BUREAU, AFR, PPC PASS TO NSC WHITE HOUSE FOR DR. BERNARD E.O. 12958: N/A TAGS: TPHY, TBIO, WHO SUBJECT: W.H.O. - INVITATION TO MRS. CLINTON TO PARTICIPATE IN YEAR 2000 STOP TB CONFERENCE 12. THE CONFERENCE WILL BE DIVIDED INTO TWO PARTS. THE FIRST ONE AND ONE-HALF DAYS WILL BE FOCUSED ON ACTIVE INVOLVEMENT OF THE PARTICIPANTS THROUGH COUNTRY PRESENTATIONS AND PANEL DISCUSSIONS. A DRAFTING GROUP WILL SUMMARIZE THE RECOMMENDATION FORMULATED DURING THE PANEL DISCUSSIONS INTO A DRAFT CONFERENCE RESOLUTION. DURING THE FINAL HALF DAY OF THE CONFERENCE DR. BRUNDTLAND AND WORLD BANK, PRESIDENT WOLFENSON, OR HIS DESIGNEE WILL ADDRESS THE PARTICIPANTS. IT WILL END WITH A PLENARY SESSION TO DISCUSS AND ENDORSE THE CONFERENCE RESOLUTION. 13. PROVISIONAL AGENDA FOLLOWS: A. DAY ONE: BEGINS AT 1400 HRS. WELCOMING STATEMENT: MINISTER A (TO BE DETERMINED) INTRODUCTION TO THE STOP TB INITIATIVE - DR. DAVID HEYMANN SUMMARY REPORT OF PRE-CONFERENCE REGIONAL AND COUNTRY WORKSHOP RESULTS AND RECOMMENDATION SUMMARY OF POSITION PAPERS ON THE ECONOMIC IMPACT OF TB AND HEALTH SECTOR DEVELOPMENT AND TB PANEL DISCUSSION: INVESTING IN TB CONTROL WORKS ---THE W.H.O. RECOMMENDED TB CONTROL STRATEGY UNCLASSIFIED PRIORITY UNCLASSIFIED WHITE HOUSE SITUATION ROOM PAGE 06 OF 07 ---PANEL PRESENTATIONS: KENYA, VIETNAM, PERU DISCUSSION ON THE PROPOSITION: "A COST-EFFECTIVE STRATEGY FOR DIAGNOSING AND TREATING TUBERCULOSIS PATIENTS IS AVAILABLE" DRAFTING GROUP SESSION DINNER B. DAY TWO PROGRESS MADE AND LESSONS LEARNED IN IMPLEMENTING EFFECTIVE TB CONTROL -- PANEL DISCUSSION: CHANGING ECONOMICS AND THE EFFICIENCY OF GOVERNMENT IN DELIVERING TB CONTROL -- PANEL DISCUSSION: HEALTH SECTOR DEVELOPMENT AND TB CONTROL -- PANEL DISCUSSION: PARTNERSHIPS AND PRIVATE/PUBLIC MIX APPROACHES FOR TB CONTROL -- PANEL DISCUSSION; COPING WITH THE TB/HIV CO-EPIDEMIC DINNER AND SOCIAL EVENT C. DAY THREE FINAL SESSION: RESPONDING TO THE GLOBAL TB EPIDEMIC IN THE NEW MILLENNIUM -- WELCOMING STATEMENT: MINISTER B (TO BE DETERMINED) -- ADDRESS: DG W.H.O. - THE STOP TB INITIATIVE -- KEYNOTE ADDRESS: "THE IMPORTANCE OF INVESTING IN TB CONTROL" MR. JAMES WOLFHENSON, PRESIDENT, WORLD BANK (OR HIS REPRESENTATIVE) -- PLENARY: "THE AGENDA FOR INTERNATIONAL ACTION AGAINST "TB" DISCUSSION AND ENDORSEMENT OF CONFERENCE RESOLUTION CLOSING CEREMONY. ROLE FOR FIRST LADY UNCLASSIFIED PRIORITY UNCLASSIFIED WHITE HOUSE SITUATION ROOM PAGE 07 OF 07 14. ACCORDING TO DR. BOSMAN SHOULD MRS. CLINTON DECIDE TO ACCEPT DR. BRUNDTLAND'S INVITATION, A UNIQUE ROLE WOULD BE CREATED FOR HER. SHE WOULD BE ACCORDED UNCLAS SECTION 04 OF 04 GENEVA 005322 DEPT FOR IO PASS TO HHS FOR OS, OPHS (LURI), OIRH, CDC, NIH, FDA PASS TO USAID FOR GLOBAL BUREAU, AFR, PPC PASS TO NSC WHITE HOUSE FOR DR. BERNARD E.O. 12958: N/A TAGS: TPHY, TBIO, WHO SUBJECT: W.H.O. - INVITATION TO MRS. CLINTON TO PARTICIPATE IN YEAR 2000 STOP TB CONFERENCE RECOGNITION IN HER OWN RIGHT FOR HER LEADERSHIP IN THE HEALTH SECTOR AND THE SPECIAL INTEREST SHE HAS SHOWN, PARTICULARLY IN PRIOR DISCUSSIONS WITH DR. BRUNDTLAND, IN TUBERCULOSIS. 15. ACTION REQUEST: MISSION WOULD APPRECIATE BEING ADVISED OF MRS. CLINTON'S ACCEPTS DR. BRUNDTLAND'S INVITATION AND WHETHER SHE WOULD LIKE US TO PLAY A ROLE IN ARRANGING HER PARTICIPATION. MOOSE <^SECT>SECTION: 01 OF 04 <^SSN>5322 <MSGID> M3955114 UNCLASSIFIED Tuberculosis Meeting October 28, 1998 first B Briefing Book Table of Contents 1- - List of Participants 2- Seating Chart 3 - Talking Points U.S. Government Activities 4 - Department of Health and Human Services 5 - U.S. Agency for International Development 6- Gore/Primakov Commission NGO/International Organizations Activities 7- OPEN Society Institute 8 - World Health Organization 9 - World Bank Al D'Amato letter? TB Meeting October 28, 1998 List of Participants World Health Organization Project 55 TB Initiative (Ralph Nader grp.) Dr. Gro Brundtland Christoph Lee Dr. David Heymann AID Executive Director for Communicable Administrator Brian Atwood Diseases Duff Gillespie Ambassador Jonas Store Deputy Assistant Administrator for Executive Director Population, Health and Nutrition Ambassador Thomas Loftus HHS Secretary Donna Shalala World Bank Dr. James Wolfensohn Peggy Hamburg President Asst. Secretary for Planning and Evaluation Jan Piercy State U.S. Executive Director Frank Loy Undersecretary of State for Global Affairs Dr. David de Ferranti Vice President, Human Development Douglas Wake Network Office of Assistance to the NIS Chris Lovelace WH/NSC Director, Human Development Sector Melanne Verveer Marsha Berry Open Society Institute Ken Bernard George Soros Andrew Weiss Dr. Paul Edward Farmer Leon Furth Dr. Alexander Goldfarb Dr. Srdan Matic TUBERCULOSIS MEETING OCTOBER 28, 1998 MAP ROOM TALKING POINTS OPENING REMARKS: I am pleased all of you could come to take part in this discussion of international tuberculosis control, one of the most critical and threatening global disease issues of our day. Looking around the room, it is clear that we have assembled the talent to help support a coordinated strategy to deal with TB worldwide. We all know the statistics concerning the resurgence of this age-old scourge: 8 million new cases per year over and over 2,000,000 deaths - that's over 5,000 deaths per day. As we enter the 21st century, TB remains the single largest infectious disease killer of adults. And most Americans still believe that TB is a disease of the past. We have recently been reminded again of how pressing this problem has become by George, who with his seemingly unlimited energy and commitment, has highlighted the TB epidemic in Russia and the other countries in the Newly Independent States. And the epidemic in Russia is raising a new issue - multi-drug resistant TB, which not only will make treatment far more expensive, but also poses a serious threat outside the region - a deadly form of disease that can cross borders as quickly as an international plane flight. There are no simple answers to the TB epidemic. This is not a disease that is easily treated with a single antibiotic prescription or injection. We must look at TB control in the context of development of quality health care at the community level. And we need high-level political commitment to ensure that a "best-practices" approach to control is seen as a high government priority. Obviously, funding is critically important to carry out these important control programs. Also important is the need to develop broad-based partnerships with other concerned nations, the private sector, academia, foundations and especially the 2 UN. With a global partnership under the expert leadership of Dr. Brundtland and W.H.O to carry out the needed TB control, we can, and will, move to control this killer. Introduce other speakers: I would like to turn at this point to Secretary Donna Shalala, whose national and international leadership in health promotion and disease control need no elaboration for this group. She co-chairs the Health Committee of the Gore-Primakov Commission, and is passionate in her support of the new leadership of Gro Brundtland at W.H.O. [Note: Secretary Shalala will likely speak on the components of international TB control as learned from our domestic experience. For Russia, she will emphasize the critical political commitment that can be developed through the work of the Health Committee of the Gore Commission. She will touch on countries building a rational national control strategies and the "Global Stop TB Initiative" of W.H.O.] Introduce Brian Atwood, Administrator, USAID [Note: he will describe the USAID approach to TB internationally concentrating on broadening the issue to the NIS and other affected countries. He will note institutional investments, and may mention the mission of the Strategic Design Team leaving next month to set up "Demonstration Sites." in Russia.] Introduce Dr. Gro Brundtland, Director General, W.H.O. [Note: She will discuss W.H.O.'s leadership in the "Global Stop TB Initiative" - including the complex constraints related to inadequate trained health personnel, inefficient drug procurement systems, poor political will, and problems of drug resistance. She will outline the W.H.O. actions.] 3 Introduce James Wolfensohn, President, World Bank [Note: He will outline the World Bank's interest in the problem, its past investments, and interests in working in Russia and other countries with significant TB problems.] Introduce George Soros. [We are told that he will support W.H.O.'s lead in dealing with the global epidemic, and will offer his assistance in building a global consortium of major institutions and intergovernmental organizations (such as the EU) to raise the required funds.] Discussion. open CONCLUDING REMARKS: I am gratified to hear that we seem to have the same basic approach for dealing with the global TB epidemic. I won't recapitulate what was said, you all are better than I at representing your agencies and interests. We have much to do. With regards to Russia, I encourage the joint CDC/USAID/WHO Strategic Design Team to report back on what specific intervention plans will work best. We must help Russia and the other Newly Independent States develop rational and "do- able" national plans for TB control and treatment given their specific circumstances. Globally, we have an important task laid out before us. Each of us can contribute to our collective goal of controlling this epidemic - and doing so by doing what each agency or organization does best. But we should move forward quickly and resolutely - working together jointly with a common ideal of caring for and treating those who are infected, and stopping the spread of the disease through both community and international action. THUMAN SERVICES THE SECRETARY OF HEALTH AND HUMAN SERVICES WASHINGTON, D.C. 20201 USA. AUG 28 1998 MEMORANDUM FOR THE PRESIDENT SUBJECT: Tuberculosis Epidemic in Russia Because the tuberculosis (TB) epidemic in Russia is such an important health care issue, I am providing you with an update and background on its current status and the steps we are taking to address this significant, world-wide threat to the public health. Also, I have attached talking points and a brief background paper for your use should the opportunity arise during your visit to further our recent progress made in combating this deadly disease. As you know, I have had the pleasure of serving as a co-chairperson, together with the Russian Minister of Health, on the Health Committee of the Gore-Chernomyrdin Commission. TB control is a key issue for the Health Committee and many resources of the Department of Health and Human Services, especially through the Centers for Disease Control and Prevention (CDC), and the USAID, Department of State have been mustered to assist the Russian government in fighting this disease. But urgent problems continue that need to be addressed. First, although Russia has the relatively low-cost drugs that can be used to treat TB, there are often more TB patients in the prisons and sanitoria than can be treated with the drugs available. Also lacking is surveillance, laboratory support and the organizational systems and discipline to see treatments completed. Second, when the inexpensive, simple antibiotic treatments for TB are not adhered to, are inadequate or unavailable, a Multi-Drug Resistant Tuberculosis (MDR-TB) may emerge that is treatment-resistant and requires much more expensive antibiotics. If these are unavailable or are used in a haphazard fashion, there is substantial risk of developing even more resistant strains of TB and spreading an airborne epidemic beyond Russia. We have worked with our Russian colleagues to encourage them to adopt a treatment regimen, known as Directly Observed Therapeutic Strategy (DOTS), that has been advocated by the CDC and the World Health Organization (WHO). DOTS entails carefully monitoring patients to ensure that they take the full course of antibiotics prescribed to eliminate TB. This can be done in either an in-patient or out-patient setting, but the cost savings of out-patient treatment are substantial. It is an important world-wide strategy to treat TB that can improve the quality of care and reduce costs without the need for prolonged institutionalization. However, some have argued that because DOTS does not require institutionalization, drug treatment compliance could be lower, which could lead to the emergence of MDR-TB. The official Russian policy on TB retains the traditional approach of treatment in sanitoria. This is especially true among local officials where the sanitoria system is a major source of employment. Page 2 - The President Seeing both sides of this issue, we have pushed hard, but respectfully, for reform in Russia. I am especially pleased that the Gore-Chernomyrdin Health Committee has given us a forum to convince the Minister of Health to adopt DOTS and to make the organizational changes necessary for its implementation. The cost of adequate treatment of TB in Russia, including transition to a system of DOTS, remains a challenge but HHS and the State Department are working with our Russian counterparts to develop a short- and long-term strategy. One example of our success stems from our convincing the Ministry of Health to adopt DOTS which paved the way for Mr. George Soros and his grantees to implement DOTS demonstration projects in Russia. Under this effort, Mr. Soros' Open Society Institute is providing funding to the New York City-based Public Health Research Institute (PHRI) to implement DOTS pilot projects in Russia with a focus on the possible emergence of MDR-TB. I would note that the First Lady is keenly aware of the public health threat of MDR-TB and raised it during a meeting with Mr. Soros where he was explaining his initiative in Russia You should also be aware that Mr. Soros' grantee, PHRI, together with the Britain-based Medical Emergency Relief International and the Belgian-based Medecins Sans Frontieres (Medicine Without Frontiers) have sent an open letter to President Yeltsin urging that he do more to combat the spread of MDR-TB, warning that Russia has become the "world's incubator of the deadly disease." Some Russian conservatives consider these efforts to be a "plot" by western drug companies to sell Russia expensive pharmaceuticals. We would suggest a less politically confrontational, more public health approach to this complicated issue. An approach based on the scientific evidence that DOTS can be a more effective and lower cost approach to the treatment of TB, especially with respect to the threat of MDR-TB. We hope that the progress that we have made with the Russian Ministry of Health, which has made it possible for the Mr. Soros' initiative to occur, can be continued. As I mentioned above, I am making the attached talking points and briefing paper available to you should the opportunity arise to further our public health goals of reducing the incidence of TB, especially MDR-TB, among the Russian people. I have also attached an informative editorial by Harvard Professor, Howard Hiatt, who argues because of its airborne spread, resurgent tuberculosis, and MDR-TB in particular, are an even greater threat to society than the AIDS epidemic. Please let me know if you would like any additional information. Donn 98hlole Donna E. Shalala Enclosures Tuberculosis Epidemic in Russia Talking Points We share your concern about the increased incidence of tuberculosis (TB) in Russia, and especially the emergence of a particularly dangerous form of tuberculosis, multidrug- resistant TB (MDR-TB) that cannot be treated with conventional antibiotics. We understand that MDR-TB is now a particular challenge in the penal system of the Russian Federation. Prisoners released after even brief stays in crowded prisons may have acquired the disease and become the source of infection in the community at large. We in the U.S. have had our own unfortunate experience with drug-resistant tuberculosis. During late 1985 and early 1990's, we had outbreaks of MDR-TB in hospitals and prisons, much of which was associated with HIV/AIDS co-infection. We have committed a substantial level of effort and resources to bring the situation under control. Only after implementation of treatment methods, such as directly observed therapy, that are recommended by the World Health Organization and our own Centers for Disease Control and Prevention, were we able to make real progress in controlling this persistent disease. We are aware of the situation in Russia and applaud your recent efforts of the Russian Ministry of Health and the Chief Administration of Execution of Punishment to implement international standards of TB control. We also understand the difficulties you face, both economic and social, in restructuring the system of TB care. However, we also are aware that there are successful pilot projects underway in Ivanovo and Tomsk that are being carried out as part of multilateral and our own bilateral cooperation. Based on these experiences, we stand ready to provide technical assistance as you work towards a nationwide program of tuberculosis control in Russia. Russia's Health Care System and Condition Serious shortcomings in Russia's health system and disease profile threatens the country's ability to provide adequate public health services to the Russian people, and for some diseases, poses a cross-border threat to the health of other nations, including the United States. While many general health statistics have improved modestly in the last two years, including life expectancy, alarming increases are evident in rates of STDs, HIV and TB. Between 1990 and 1997, the incidence of syphilis has increased from 5.4 per 100,000 to 216.9 per 100,000 - an increase of nearly 5,000%. Gonorrhea is increasing rapidly as well, and what shocks health officials and local leaders is that many of those infected are under the age of 20. In 1987, Russia had 24 recorded cases of HIV. By the first half of 1998 there were close to 8,700 cases of HIV and 300 AIDS deaths reported. Outside estimates are much higher, but even the Russian Duma estimated that Russia can expect at least one million cases of HIV in the coming years, with which the health and economic system will be unable to cope. The rise in TB cases has been dramatic, with civilian notifiable cases increasing from 36 per 100,000 in 1992 to 75 per 100,000 in 1996; particularly worrisome is the level of multiple-drug resistant TB which is estimated at 7.3% of all civilian cases, posing a distinct threat beyond Russia's borders. The TB situation in prisons is far worse. The health system suffers from low and underfunded health budgets, poor performance of the mandatory health insurance program in collecting premiums, and the lack of a legal framework for the private provision of health care despite survey findings indicating that upwards of 40% of health expenditures are out-of-pocket. The work of medical providers suffers from a lack of evidence-based medicine and quality improvement in all aspects of healthcare, especially diagnosis and treatment protocols. Nonetheless, successful dialog between U.S. and Russian health experts through the bi-lateral commission initiated by Vice President Gore, and effective use of USAID foreign assistance contributions are evident. Since 1992, the U.S. has provided over $95 million to address a broad range of health issues important to Russia such as immunization, women's reproductive health, pharmaceutical investment and quality control, environmental health, and health information and response activities. Approaches involving partnerships between U.S. and Russian organizations have been successful at the local level and, in one program's case, has led to U.S. private contributions of time and equipment estimated at $45 million over the last four years. Attempts at strengthening the role of non-governmental organizations in the delivery of public health information and services health field requires more attention. Tangible results are evident from the U.S.-Russian cooperation. For example, an estimated three million Russian couples now have access to safe and effective family planning services, and U.S. assistance has been credited with bringing down abortion rates. Yet, controversy about family planning has increased from the political right and from some religious groups. The Yeltsin administration wants to continue U.S.-Russian cooperating on reproductive health programs, and expand into improvements in maternal and neo-natal health. Russia is also working with the U.S. on a national initiative to improve the quality and access to health services, and a multi-year strategy aimed at STD/HIV prevention and control. A design effort for USG assistance in TB control is scheduled for Fall 1998. More Deadly Than AIDS Howard Hiatt Washington Post August 14, 1998 Many Americans think that with the discovery of streptomycin more than 50 years ago, the tuberculosis problem was solved. But a little-noticed (in the United States) TB epidemic now kills 3 million adults a year worldwide, more than AIDS or malaria. Even more threatening is the increasing appearance around the globe of forms of TB that are resistant to streptomycin and many other drugs that have been used to treat the disease. Almost every person with the common variety of TB can be cured with two to four medications daily for at least six months at a total cost of about $100. In recent years the World Health Organization, with support from the World Bank, has treated drug-sensitive TB in many countries with a very effective strategy that involves supervised administration of the drug over the prescribed period. But when TB sufferers are treated inadequately, that is, when they don't have all the required drugs or don't take them long enough, mutant TB bacteria that are more resistant to the drugs grow. Patients may feel better temporarily, but what was a curable condition can become a death sentence. And their now multidrug-resistant (MDR) TB bacteria infect others. MDR TB can often be cured, but at a cost eight to 80 times higher than that of treating ordinary TB. Until a few months ago that cost led to the view that treatment of MDR TB in resource-poor countries was not "cost-effective." But Paul Farmer and Jim Kim, two physician- anthropologists who divide their time between work at Harvard Medical School and Brigham and Women's Hospital, on the one hand, and the poorest areas of Haiti, Peru and Mexico, on the other, have changed that. In the barrios of Lima, where they have been involved in community-building for five years, they recognized that treating only patients with drug-sensitive TB, the most prevalent kind, could encourage the spread of MDR TB. Even more important, they regard treatment for MDR TB as the right of all its victims. Finally, they know well that infectious diseases respect no border and that their spread to the rest of the world is more than a threat. In fact, an American priest who recently died of MDR TB in Boston had come there from service in the barrios of Lima. Therefore, they began treating almost 100 of the many desperately ill patients with MDR TB in Lima with five or more drugs daily over a period of two or more years. More than 85 percent appear to have been cured. Farmer and Kim ascribe a large part of their success to their partnership with community members whom they have trained to ensure that every patient takes every dose of every medication every day. The cost has been great (although 1 much, much less than the cost in a U.S. hospital), but they have thus far succeeded in obtaining the needed drugs, partly by going into debt. Earlier this year tuberculosis specialists from around the world gathered at the American Academy of Arts and Sciences and examined and then endorsed the preliminary Lima evidence. Subsequently, the World Health Organization decided to replicate the Lima experiment in a few other sites around the world that it has designated MDR TB "hot zones." Thanks to the generosity of George Soros, the first such sites will be in Russia and Latvia, where MDR TB is prevalent and spreading rapidly. The Soros foundations have committed to pay for programs there. But if the worldwide epidemics are to be contained, many more groups must be mobilized. The World Bank, national governments -- particularly those of industrialized nations -- the pharmaceutical industry, other business leaders concerned with international trade, scientists and others all can play crucial roles in a program to wipe out all forms of TB. The AIDS pandemic has appropriately aroused the concerns of people around the world. The tuberculosis pandemic requires no less. Because it is spread much more readily than AIDS -- through the air that everybody may breathe -- it represents an even greater threat. The writer, a professor of medicine at Harvard, is director of the Initiatives for Children Program of the American Academy of Arts and Sciences. c Copyright 1998 The Washington Post Company 2 AID U.S. AGENCY FOR INTERNATIONAL DEVELOPMENT MEMORANDUM TO: WH/OFL, Melanne Verveer FROM: Acting AA/ENI, Donald L. Pressley Don SUBJECT: Tuberculosis in the ENI Region In response to my conversations with Mrs. Clinton during our recent trip to Eastern Europe, please find below a summary of USAID's tuberculosis activities in Europe and the New Independent States (ENT). Following a general decline in the incidence of tuberculosis (TB) prior to 1991, rates have risen dramatically since then. With a continuing breakdown of the health systems in the troubled economies of the NIS, most countries continue to follow a very cost-inefficient TB control strategy involving active case-finding, regular chest X-rays, excessive skin testing and immunizations, and a well-entrenched, costly sanitoria network. USAID is assisting in reorienting the TB control effort in the region through: pilot efforts on the WHO recommended directly observed therapy, short course (DOTS); strengthening epidemiological monitoring and surveillance; more rational pharmaceutical management, including appropriate prescribing practices and pharmaceutical procurement; and strengthening health care delivery systems. In addition, USAID awarded a first tranche of funding to the Department of Health and Human Services (DHHS) to create an ENI regional TB working group to include expertise from WHO, SOROS and other entities to address TB in the region. The working group will help define the barriers to acceptance and adoption of DOTS in the NIS and will recommend activities necessary to overcome the barriers. A. TUBERCULOSIS IN RUSSIA As you know, since the collapse of the ruble and the banking system in Russia, the State Department (S/NIS/C) and the NSC have been closely tracking the TB and pharmaceutical situation in Russia, and have discussed the possibility of humanitarian assistance to respond to particular needs. TB in Russia, however, is not responsive to short-term humanitarian assistance. The number of notifiable cases of TB in Russia has more than doubled over the past six years, from approximately 35/100,000 population in 1992 to approximately 1300 PENNSYLVANIA AVENUE, N.W. WASHINGTON, D.C. 20523 20'd 3973 647 202 DIASN 16:55 2 75/100,000 population in 1998, according to the Ministry of Health (MOH) and WHO. Russia's TB rates are among the highest in Europe. Rampant TB rates in prisons continue to serve as a source of infection for the civilian population and multi-drug resistant forms of the disease are on the increase. These two factors have emerged as major threats to successful control of the epidemic. Mortality due to TB in the general population is about 17 per 100,000 population, while in the prison population it is estimated to be as high as 484 per 100,000 population. Russia continues to follow outdated diagnostic and treatment practices. Efforts by the USG, Soros and other donors to modify those practices, are showing some positive results. But TB in Russia is a complex problem, for which there is no clear or short term fix. Progress towards adoption of modern methods is constrained by a range of difficult economic, political, institutional, psychological, ethical, social and logistical impediments. In an effort to position itself to respond to the growing crisis, USAID/Moscow commissioned a study to examine the availability of and procurement methods for first-line TB drugs in Russia. The September 1998 report indicates that: a) the first-line anti-tuberculosis (TB) drugs are all available on the Russian market; b) that Russian drug manufacturers increased production of first-line TB drugs by 50% during 1997 and now claim to have sufficient production capacity to satisfy 100% of the country's need for these first-line TB drugs for 1998; but c) chronic shortages nevertheless exist due to perpetual problems with raw materials, procurement, distribution, affordability, and stock management. An emergency drop of TB pharmaceuticals is not needed now and would complicate or even worsen the situation, since the system is not prepared to properly handle a DOTS program. Nonetheless, USAID/Moscow will continue to monitor the situation. Programs Underway Because of the risk of promoting multi-drug resistant TB, there is a growing recognition that "doing DOTS badly is worse than doing nothing at all." It is absolutely critical that Russia have in place a sensible and comprehensive plan and adequate implementation capacity to support a DOTS program before drugs are distributed and treatment activities are initiated. USAID and the Centers for Disease Control (CDC) are moving quickly and responsibly to develop a plan to deal with the current crisis. With S/NIS assistance, USAID set aside in FY98 $1.5 million of Freedom Support Act (FSA) funding for TB efforts in Russia. In November, USAID and CDC will begin a TB assessment and design effort to identify likely sites for a multi-year TB program. It is envisioned that the USAID/CDC program will support pilot, community-based activities which complement and build on the work supported by the Soros Foundation and other bilateral donors. Because of statutory limitations, USAID and CDC expects to focus on civilian (not prison) populations. The programs will P.04 EL66 647 202 DIASN ES:9T 3 institute a "DOTS-Plus" strategy (including food supplements and other inputs besides TB drugs) while tracking the prevalence of multi-drug resistant TB.¹ A one year hospital partnership (funded by USAID) between the University of Arkansas, School of Medical Sciences and the Volgograd State Medical Academy is initiating modern standards for tuberculosis diagnosis, treatment, and case management in a very limited way. All new health partnerships under the American International Health Alliance (AIHA) will explicitly include TB in the initial needs assessment. The American College of Physicians in collaboration with DHHS is working on a pilot effort to integrate TB into other quality and primary care initiatives.. For other donors working on TB programs in Russia, please see attached matrix, "Summary of Donors' Tuberculosis Programs in the Russian Federation as of October 1998. B. TUBERCULOSIS IN CENTRAL ASIAN REPUBLICS (CAR) Central Asia has seen a three to four fold increase in tuberculosis since the early 1990's. Although a number of other countries have TB rates higher than those found in CAR, the situation is still grave because of the often incurable form of the disease multi-drug resistant TB. USAID, Chevron and other donors, in a unique public-private partnership, are funding a TB initiative in CAR, and the results are just beginning to surface. Programs Underway Chevron Munaigas funded Project HOPE to introduce DOTS at pilot sites in Kazakhstan in 1994. Chevron also delivered a TB mobile clinic to Almaty Oblast, with transportation costs covered by the Department of State. In 1997, USAID/CAR started its "TB Initiative", in collaboration with Chevron, building upon on-going health reform efforts. The implementing team includes Abt Associates, Project HOPE, and CDC -- a collaborative public-private partnership which has worked extremely well in the region. Broad objectives have been to update the existing TB diagnostic, treatment and control practices in the region through demonstration pilot sites in Kazakhstan and Kyrgyzstan. Activities include: developing national TB education campaigns; training health care professionals; supporting and monitoring DOTS pilot projects in Almaty (81 patients) as a model for national expansion; strengthening TB epidemiology and surveillance; and analyzing the cost-effectiveness of DOTS. 1 It should be noted, however, that Russian-Iran legislative directives, if enacted, will dramatically constrain the flexibility and scope of this program both at the federal and community levels. S0'd 202 647 9973 USAID ES:9T 01-22-1998 TOTAL P.06 4 Because of USAID's TB initiative, in May 1998, the President of Kazakhstan, Mr. Nazarbaev, signed a decree to implement DOTS nationwide. Some funding has been allocated and momentum is apparent in the MOH. Supported by all the donors in the region , a development plan for the National TB Control Program has been finalized to implement DOTS at limited pilot sites which will act as centers for training for the rest of the country. Thus far, USAID has committed $1,980,000 of FSA funding for the program. Through collaboration with the World Bank, TB activities will be expanded to additional oblasts in Kazakhstan and Kyrgyzstan over the next few years. In 1999, subject to availability of funding, elements of the program will be expanded to Tajikistan, Turkmenistan and Uzbekistan. Other organizations involved in or exploring TB-related activities in Central Asia include AMOCO, Lutheran Ministries, Medecins sans Frontiers-Luxenburg, Philip Morris, SOROS and the University of Wisconsin. Although too early to measure impact, TB initiatives accomplishments in CAR to date include: training of 385 physicians and other health workers in DOTS therapy, laboratory methods, drug supply and logistics, and health surveillance; provision of modern laboratory equipment and supplies for smear microscopy to three demonstration sites; initiating an information campaign including two press conferences on TB in Kazakhstan and two TV videos which are shown on national and Almaty TV; and ongoing policy dialogue on costs and laws concerning TB prevention, diagnosis and treatment. C. TUBERCULOSIS IN OTHER AREAS OF THE ENI Caucasus: The Mission is currently revising their health strategy and will explore possible TB initiatives. Ukraine: During the period 1990-1996, the TB rate in Ukraine increased by 45 percent and the MOH states that the country now has 45.8 people per 100,000 infected with TB. The Mission in Ukraine is exploring TB initiatives in conjunction with a future primary health care strategy. Kosovo: USAID's Office of Disaster Assistance (OFDA) has provided about $696,000 to Doctors of the World to provide food and hygiene parcels for TB patients and their families as incentives to increase treatment compliance in collaboration with a Swedish and multi-donor funded screening and treatment program in Kosovo. Over 4,000 TB patients have benefitted from this program. Initial results show a significant increase in the patient compliance rate. As peace plans begin to take effect, USAID will continue to review the status of TB in Kosovo especially when developments programs become more regular. 90'd 91.66 100 7.07 MIHSN DC:91 8661-97-100 LOS ANGELES TIMES MONDAY, FEBRUARY 16, 1998 B5 An Ancient Marauder Looms Again Tuberculosis: The fight control programs misuse antibiotics and which the U.S. contributes only about ineffectively treat patients, practices that $500,000. WHO estimates that, in addition against it must be global as foster drug-resistant strains. These MDR- to commitments from developing countries, drug-resistant strains spread. TB "hot-zones" pose a grave threat to glo- $100 million more is needed annually to bal health, as international travel and control the epidemic and prevent the migration put all areas of the world in close spread of MDR-TB. Surely, Americans By RALPH NADER contact. would be willing to foot some portion of that and R. GORDON DOUGLAS Few people recognize the danger that bill to prevent a disease that WHO's Rich- MDR-TB poses to Americans. It is very ard Bumgarner called "Ebola with wings" For the first time since the introduction difficult and expensive to contain, and the from descending on our shores. of anti-tuberculosis drugs in the 1950s, the industrialized world is by no means Congress has approved additional money world faces the threat of incurable TB, a immune. Since 1991, when these strains for the Agency for International Develop- disease that destroys the lungs, dooming its were found in only 13 states, MDR-TB has ment, which channels funds to WHO, to victims to drown in their own blood. This spread to 42 states and the District of combat infectious diseases worldwide. If deadly infection is airborne; it spreads like Columbia. In September, a new strain of only the Clinton administration would fol- the common cold. Worst of all, highly highly contagious TB that multiplies at low through more comprehensively. Some resistant strains have been discovered in 34 1,000 times the normal rate was identified of the proposed new funding for biomedical countries by the Global Project on Anti-TB along the Tennessee-Kentucky border. research and for the National Institutes of Drug Resistance. Transmission of tuberculosis can occur Health also should be channeled into TB If tuberculosis were a newly emerging anywhere, from planes to schools to neigh- research. Furthermore, the U.S. must pay disease rather than an ancient marauder, it borhood bars. In 1994, a South Korean its dues to the United Nations if WHO is to would be making headlines almost daily. woman with MDR-TB infected four Amer- be effective in fighting TB and other such However, in the four years since the World icans on a plane. deadly diseases. Unless this funding is sus- Health Organization declared TB a global The importation of TB across interna- tained over the long term, TB programs will emergency, there has been little interna- tional borders is very common. In this be ineffective, treatment of patients will be tional alarm. Inexpensive, generic medica- country, 37% of TB patients are foreign- incomplete and our temporary good inten- tions have long existed to cure tuberculosis, born, 25% of them from one of four "hot tions will only fuel the spread of drug- yet 3 million people die each year, making zones": India, Korea, Vietnam and the resistant strains. TB the greatest infectious killer world- Dominican Republic. In the Dominican wide, responsible for one-fourth of the Republic, where 9% of TB cases are MDR, The only way to protect Americans world's preventable deaths. one out of every seven residents has against multi-drug-resistant tuberculosis is In October, an unprecedented report obtained a visa for travel to the U.S. to support effective treatment and control released by top U.S. and international The U.S. learned a harsh lesson when the programs that prevent MDR-TB from health agencies issued the ultimate warn- dismantling of TB control infrastructure in developing. It is a war that must be fought ing: Multi-drug-resistant strains of tuber- the 1980s led to sharp increases in tubercu- internationally, before this country culosis (MDR-TB), which can be virtually losis. According to New York City's director becomes a primary TB battleground. untreatable, have emerged worldwide and of TB control, the explosion of MDR-TB threaten to overwhelm the public health required more than $700 million between Ralph Nader and Dr. R. Gordon Douglas systems of India, Russia, Latvia, Estonia, 1992 and 1996 to quell the outbreak. are on the steering committee of the Prince- Argentina, Ivory Coast and the Dominican The World Health Organization spends ton Project 55 Tuberculosis Initiative of Republic. In these countries, poor TB $11 million annually on TB control, of Princeton University's Class of 1955. 21/oct/98 Health IV TUBERCULOSIS Summary of Situation In Russia, as in much of the former Soviet Union, tuberculosis (TB) cases have increased dramatically in recent years. In addition, multi-drug resistant (MDR) TB which does not respond to conventional treatment has emerged. MDR-TB has spread in environments such as prisons and hospitals, and threatens TB control efforts since the costs for treating MDR-TB are 100 fold-higher than for treating non-resistant TB ($3000/case versus $30/case). The problems have emerged because of unstable drug supplies and reluctance of the medical establishment to use the simple, effective strategy known as DOTS that consists of five elements that include government commitment, appropriate methods of TB diagnosis, an adequate supply of quality drugs, supervised administration of these drugs, and careful monitoring of treatment outcomes. This approach is used in the U.S. as well in more than 100 other countries. Unless the TB problem in Russia is dealt with immediately, drug resistance due to poor treatment practices will continue to develop and spread in the community, making TB virtually untreatable. U.S. Activities to Date TB has been considered as an important disease by the Health Committee of the Gore- Primakov Commission. At the request of the Department of Health and Human Services, CDC has participated in the committee's TB activities, which until now have been limited because of availability of resources and resistance at the national level in Russia to institute meaningful changes in national TB policies. CDC activities to date have included a series of visits to Russia in which meetings were held with national counterparts for the purpose of discussing possible collaboration. In addition, CDC planned and hosted a U.S. study tour of TB experts from the leading TB institute in Russia in February 1997 to see the U.S. TB strategy in action in a variety of settings. Although CDC has been involved in a number of TB projects in the Central Asian Republics and the Baltics, direct involvement in Russia has been limited. Recently, however, USAID in Moscow has recognized the importance of the problem and is planning on providing mission funds for a three year period to CDC for the development of one or more pilot projects. PHRI/Soros Activities In September 1998 CDC staff conducted a joint visit with members of the Public Health Research Institute/Soros Steering Committee to examine their activities in the civilian and prison populations in the Tomsk Oblast and a TB prison in the Kemerovo Oblast. Public Health Research Institute (PHRI) of New York City has received a $12 million grant from the Soros Foundation (Open Society Institute, OSI) to undertake projects aimed at reform of tuberculosis control in the Russian Federation (RF). Dr Alex Goldfarb, 9 a senior scientist in PHRI, serves as the director of the project. After one year of operation, PHRI has joined DOTS demonstration projects in the civilian sectors in Ivonova (initially supported by WHO) and Tomsk (supported by the British NGO, MERLIN), strengthening laboratory capacity and entering into contracts with local authorities to achieve cost savings by reducing the number of TB hospital beds and of unproductive TB screening activities. For assistance in training, project monitoring, and surveillance/reporting, PHRI is working with the Central TB Research Institute (Prof Alexander Khomenko) in Moscow. PHRI is also supporting a DOTS project initiated by MSF/Belgium in a TB prison in Mariinsk (Kemerovo) and has begun DOTS projects in four other prisons (Tomsk, Ivonova, Mari-El, Vladimir and Nidzy-Novgograd). Based on information available to CDC, it appears that the DOTS projects in the civilian sectors, where rates of initial MDR-TB appear to be relatively low, are succeeding. However, failure rates has high as 40% have been found in the Mariinsk prison, likely because of an equivalent rate of MDR-TB in new patients beginning treatment. Clearly, in such a setting a DOTS-alone approach may be inadequate. As a next step, PHRI intends to implement a DOTS-plus project in Tomsk (both the civilian and prison sectors). With project funds now fully committed, PHRI is looking for other partners and funding sources to expand DOTS-plus programs in regions where it is working and extend DOTS implementation to other regions in RF. U.S. Planned Activities Beginning November 15, CDC will detail a public health advisor to Moscow for a 4 to 5 week period to assist the USAID Mission in the development of a TB in Russia Background/Strategy Document. In late November, a joint CDC-AID team will visit Russia to perform an assessment of three areas to determine which area would be most suitable to serve as a demonstration site for CDC-guided TB control project activities. This multi-disciplinary team will consist of a senior epidemiologist, a TB laboratory specialist, a senior public health advisor and an experienced program management officer. One of the sites to be visited, the Kemerovo Oblast in Siberia, has expressed a strong interest in introducing the basic DOTS strategy in the civilian population (Medecins Sans Frontieres, Belgium is already working successfully in the main prison). The second site, the Ivanovo Oblast near Moscow has been used as a pilot area by the World Health Organization and has one of the two most developed DOTS programs in Russia. In this oblast, the U.S. contribution would be the development of a strategy to identify and cure the MDR-TB patients who are not cured by the routine DOTS approach. The third area under consideration is the Novgorod Oblast which is said to have a progressive governor and chief TB doctor, and has allegedly indicated it's willingness to provide an adequate supply of required TB drugs. If successful, a demonstration project would serve as model for other oblasts in the country. It is hoped that if success is demonstrated in various oblasts, the other oblasts 10 which are still expressing considerable reluctance to abandon old treatment strategies will be willing to change to the DOTS approach. Major Obstacles 1. The amount of money that is being made available at the USAID mission is inadequate to fully support the proposed activities. 2. Current U.S. government restrictions on the ways in which money can be spent in Russia may limit the usefulness of available monies. At least part of the potentially available mission funds cannot be spent on activities benefitting the national, oblast, or local governments or on salary support for Russian nationals). 3. For these projects to be conducted successfully, USAID money must be spent (or other sources must be located) to pay for drugs. Although the need for the expensive MDR TB drugs may diminish over time if the program is successful, the need for basic TB drugs will remain, and it appears unlikely that the oblast or national governments will be able to bear these costs in the next several years. 4. Sustainability of efforts beyond the duration of the project may be difficult unless the financial situation of the country undergoes dramatic improvement. Coordination Meeting on TB in Russia, 15 October, 1998 At a meeting convened last week (15 October, 1998) by the Office of the Coordinator for NIS Assistance, the group, including Drs. Hamburg and Eisenberg, explored several ideas that were later discussed with Dr. Helene Gayle at CDC. The demonstration projects described above will be most effective in the long run, if they are combined with the following initiatives: 1. The setting of a national framework and establishment of an environment for broader adoption of improved care patterns (especially if the demonstrations can show the effectiveness of "best practices"). This would likely be done with Russian TB leaders, oblast leaders, medical education and professional leaders, and political leaders. This should be linked with the American International Health Alliance (AIHA) and American College of Physicians (ACP) projects, and integrated with the Health Committee's quality and primary care initiatives. 2. The building of capacity to care for patients with TB outside sanitoria and prisons. This means upgrading the ability of hospitals and polyclinics to care for TB patients, especially once they have been successfully started on treatment and can be sent into community-based DOTS programs (more difficult, obviously, with 11 MDR-TB).. This can be done in conjunction with the ACP project, perhaps with other Health Committee efforts to help upgrade primary care and polyclinics. 3. The building of capacity in laboratories for testing TB sensitivities and for assisting clinicians in the selection of appropriate treatment, combined with laboratory support for a more extensive surveillance system to identify the disease burden and to characterize the epidemic better. Dr. Hamburg emphasized this as having been very important in New York City's success in reducing MDR-TB. 4. The identification of the Russian drug availability situation. Funds should be considered to assist the broader distribution and delivery of drugs, some of which are already in Russia but are not being used. A combination of the lack of money to buy pharmaceuticals, poor health sector organization for their distribution to the areas most in need, and the lack of knowledge or commitment to use the drugs appropriately, as well as other factors, contribute to this problem. These efforts will be very expensive, but the Health Committee should take advantage of the attention this is getting to emphasize that one can't do demonstration projects without building reform of TB care into the public health infrastructure, improving the community-based care, and paying attention to quality of care. Depending on the intervention, these could be done either in the demonstration regions, in the nation as a whole, or as part of other donor and collaborative programs (eg, the Access to Quality Care Initiative, AIHA). It should also be linked with the Soros initiative, of course. The challenge is how to do the demonstrations with the little money available to the Health Committee, and to have concrete and near-term products and achievements, yet offer a broader scope of ideas that focuses those who may direct more funds toward the program on the full spectrum of components of the initiative if it is to be long lasting. V MATERNAL CHILD HEALTH The USAID Women's Reproductive Health Project This project has continued its roll-out and institutionalization activities. A team recently left Russia after developing a strategy for the next 3-4 years which will expand current work in the area of women's reproductive health to Women's and Children's Health. New efforts will include work in policy development, NGO development; research; and information, education, and communication activities. 1. To date, six of the eight roll-out sites have received contraceptive technology update trainings and four have received contraceptive shipments. Training in the 12 cc Melame OPEN SOCIETY INSTITUTE S I GEORGE SOROS Chairman 20th August 1998 ARYEH NEIER President Mrs. Hillary Rodham Clinton The White House Washington D.C. 20500-2000 Dear Hillary, You told me at our last meeting of your interest in the problem of tuberculosis in Russia. As you noted, explosive prison epidemics in Russia are fueling the larger national epidemic; these outbreaks are, of course, not contained by national boundaries. I am very pleased that Dr. Gro Brundtland of the World Health Organization has underlined the importance of U.S. leadership in addressing this global emergency. We have started a program to address TB in Russia through the WHO-endorsed control strategy of directly observed therapy or "DOTS" which cures sensitive TB and prevents new multiple drug-resistant TB from developing. We have received requests to support programs from our foundations in such countries as Kazakhstan, Kyrgyzstan, and Azerbaijan which are currently under consideration. Since we initiated this work a year ago, we have discovered that the problem is considerably worse and more difficult than we imagined. My concerns fall into two main areas: MDR-TB, and other impediments to the adoption of the DOTS approach. First, the situation is greatly complicated by the multidrug-resistant strains of TB which are not effectively treated through the DOTS approach. The World Health Organization last month endorsed a "DOTS-Plus" strategy which addresses drug resistant treatment in circumstances such as those found in Russia. Since we met, I have directed our TB team to adopt this expanded approach in order to save lives and halt epidemics already underway. This enhanced approach is significantly more costly than the simpler "DOTS" approach. This expansion will require additional funding, though far less than the cost of ignoring these drug- resistant strains. While I am prepared to commit some additional funds to TB, I have become convinced that the problem can be addressed only with the coordinated and solid financial commitment of a wide range of international, bilateral and private donors. Second, as our programs develop in Russia, we have encountered a range of economic, political, social, and logistical impediments to the adoption of the WHO/DOTS strategy. Similar impediments exist in other countries as well. We appreciate that failure to overcome these issues could jeopardize our investments in TB control, but simple solutions are not readily available. This is an issue you may want to raise in connection with your visit to Russia in September. 400 West 59th Street, New York, New York 10019 Phone: 212. 548. 0600 Fax: 212. 548. 4679 Website: http://www.soros.org Hillary Rodham Clinton 20th August 1998 Page 2 I understand that the WHO is currently considering undertaking a global TB program. I have written Dr. Brundtland a similar letter, and would like to find ways to work with them. A handful of key players--yourself, Dr. Brundtland, Jim Wolfenson of the World Bank, for example--could make all the difference if we act promptly. It is my hope that we can join together in calling for the sustained international attention and funding that could contain outbreaks in the former Soviet Union and elsewhere. The United States has a critical and new role to play in confronting public health threats outside of its borders. I look forward to hearing from you on this important issue. Yours ferguar Fax :212-2627580 Sep 23 '98 15:08 P. 03/14 OPEN SOCIETY INSTITUTE 0 S I GEORGE SOROS 20th August 1998 Chairman ARYEH NEIER President Dr. Gro Brundtland World Health Organization Geneva, Switzerland Dear Dr. Brundtland: I understand that the WHO is currently considering undertaking a global program to address the problem of tuberculosis. As you may know, my foundations have started a program to address TB in Russia through a DOTS based approach. We have received requests to support programs from our foundations in such countries as Kazakhstan, Kyrgyzstan, and Azerbaijan which are currently under consideration. Since we initiated this work a year ago, we have discovered that the problem is considerably worse and more difficult than we imagined. My concerns fall into two main areas: MDR-TB, and other impediments to the adoption of the DOTS approach. First, as you are well aware, the situation is greatly complicated by the multidrug-resistant strains of TB. We were very pleased to learn that the WHO last month endorsed a "DOTS-Plus" strategy addressing drug resistant treatment in circumstances such as those found in Russia. I have since directed our TB team to adopt this expanded approach in order to save lives and halt epidemics already underway. Unfortunately, we realize that this enhanced approach is significantly more costly than the simpler "DOTS" approach, and will require additional funding, though far less than the cost of ignoring these drug-resistant strains. While I am prepared to commit some additional funds to TB, I have become convinced that the problem can be addressed only with the coordinated and solid financial commitment of a wide range of international, bilateral and private donors. Second, as our programs develop in Russia, we have encountered a range of economic, political, ethical, and logistical impediments to the adoption of the DOTS strategy. Similar impediments exist in other countries as well. We appreciate that failure to overcome these issues could jeopardize our investments in TB control, but simple solutions are not readily available. I am hopeful that the WHO will decide to undertake a global plan to control TB. 1 would like to find ways to work together in addressing this public health emergency. I have spoken with Hillary Clinton about this problem, and have written her a similar letter. A handful of key players-- yourself, Hillary Clinton, Jim Wollenson of the World Bank, for example--could make all the difference if WC act promptly. I look forward to discussing this important matter with you in the near future. Yours sincerely, Corge Soros 400 West 50th Street, Ngw York. New York 10019 Phone 211. 548. 0600 Tax 211 548 44/9 Within hilp //wwww Fax 212-2627580 Sep 23 '98 15:09 P. 04/14 OSI-LED INITIATIVE TO ERADICATE TB AUGUST 1998 "The two largest TB NGOs, KNCV in The Netherlands, and the International Union Against TB and Lung Disease, have a combined budget for fighting TB of just over $10 million. Last year, the Wellcome Trust announced it could provide over $2 million to determine the complete sequence of the genome of the tubercle bacillus. Unfortunately, most of the largest foundations, such as Ford, Rockefeller, Kellogg and Pew, and the largest health and development NGOs, such as CARE, Save the Children and Oxfam, remain conspicuously absent in the battle against TB." BASIC TENETS OF THE OSI-TB INITIATIVE Tuberculosis remains the single largest infectious contributor to adult mortality in the world today. Increasing globalization of economies demands a global response to the TB pandemic. An effective and concerted response demands not only the leadership of the medical and scientific communities, but also the full participation of the private sector, including international trade and finance. JUSTIFICATION FOR OSI INVOLVEMENT IN GLOBAL TB CONTROL George Soros is the single largest individual donor to. TB control in the world today. The regions in which the Network of Foundations is established- from the former Soviet Union to South Africa- are those in which TB is endemic or recrudescent; these regions are particularly hit hard by drug-resistant TB. The OSI brings two critical and previously missing components to TB control: a human-rights approach and new leadership from the business OSI-TB INITIATIVE 1 Fax :212-2627580 Sep 23 '98 15:09 P.05/14 sector, previously a minor player in the TB community. Furthermore, the geographical reach of the Network of Foundations is unparalleled and the OSI would bring significant experience to the containment of prison-related outbreaks. OSI-TB INITIATIVE 2 Fax 212-2627580 Sep 23 '98 15:10 P. 06/14 JUSTIFICATION FOR CHOICE OF PARTNERING INSTITUTIONS AND COMPOSITION OF ADVISORY BOARD The organizations identified as potential partners in an OSI-led TB eradication effort are the major participants in global TB control. The Advisory Board would bring together the leaders of these organizations, as well as key players in international public health. Others will no doubt be identified. PROPOSED ORGANIZATIONS PROPOSED ADVISORY BOARD REPRESENTATIVE AMERICAN ACADEMY OF ARTS AND SCIENCES HOWARD HIATT CARTER CENTER WILLIAM FOEGE CENTERS FOR DISEASE CONTROL AND PREVENTION HELENE GAYLE HARVARD MEDICAL SCHOOL PAUL FARMER INTERNATIONAL UNION AGAINST TUBERCULOSIS NILS BILLO AND LUNG DISEASE KNCV, HOLLAND KITTY LAMBRECHT LONDON SCHOOL OF HYGIENE AND TROPICAL JOHN PORTER MEDICINE, UK MEDICAL RESEARCH COUNCIL, SOUTH AFRICA BERNARD FOURIE NATIONAL JEWISH MEDICAL AND RESEARCH MICHAEL ISEMAN CENTER NATIONAL TUBERCULOSIS CENTER & LEE REICHMAN PUBLIC HEALTH RESEARCH INITIATIVE RESEARCH INSTITUTE OF TUBERCULOSIS, AMAN ZHANGIREEV KAZAKSTAN OSI-TB INITIATIVE 3 Fax 212-2627580 Sep 23 '98 15:10 P.07/14 PARTNERS IN HEALTH JIM YONG KIM ROCKEFELLER FOUNDATION AND THE LINCOLN CHEN HARVARD SCHOOL OF PUBLIC HEALTH UNIVERSITY OF ALABAMA MICHAEL KIMERLING WORLD HEALTH ORGANIZATION ARATA KOCHI 0 OSI-TB INITIATIVE 4 Fax 212-2627580 Sep 23 '98 15:10 P.08/14 WHAT ARE THE GOALS OF OSI-TB? OSI-TB would not seek to replicate existing TB-control structures, nor would it seek to act alone in inaugurating new TB treatment and control efforts. Rather, OSI-TB would seek to fill in gaps: Leadership gaps must be filled if truly global efforts are to progress. OSI-TB would have a special focus on leadership from business sectors, including international finance, the pharmaceutical industry, and philanthropies; the human-rights community would also be engaged. Gaps in political will must be filled if government support for national DOTS-based programs, including "DOTS-Plus," are to have real impact on the global TB pandemic. Gaps internal to the TB community have neglected critical developments- MDRTB and prison-centered outbreaks of TB- that threaten the hard-won gains of global TB control. Funding gaps will be filled not through direct OSI contributions, but rather through coalition building to channel new resources into priority TB- control efforts. How WOULD OSI-TB WORK? OSI-TB can make have an enduring impact on global TB control through a four-step process: 1. Forge a powerful consortium of actors and institutions, led by an expert Advisory Board. 2. Convene a meeting of Dr. Gro Brundtland (WHO), Jim Wolfensen (World Bank) George Soros, the U.S. Surgeon-General Satcher, and leaders of the global TB community to launch a worldwide campaign to bring new resources to TB control. 3. This campaign will have as its centerpiece a drive to secure an unprecedented commitment of public and private resources- the Global Trust for TB Control- targeted to Board-approved projects. OSI-TB INITIATIVE 5 Fax 212-2627580 Sep 23 '98 15:11 P.09/14 4. Identify TB "hot zones" where new public-private partnerships, funded through the Trust, can contain deadly epidemics and promote the primary goals of modern TB control. OSI-TB INITIATIVE 6 Fax:212-2627580 Sep 23 '98 15:11 P.10/14 LILLY PHRI OTHER PARTNERS HMS/HU OSI CDC PIH KNCV ROCKEFELLER WHO IUATLD OSI-TB ADVISORY BOARD PROJECTS OSI-TB INITIATIVE 7 Fax :212-2627580 Sep 23 '98 15:11 P. 12/14 PROGRAM IN INFECTIOUS DISEASE AND SOCIAL CHANGE DEPARTMENT OF SOCIAL MEDICINE, HARVARD MEDICAL SCHOOL 641 HUNTINGTON AVENUE, BOSTON, MA 02115 PH. (617)432-3715, FAX: (617)432-2565 PAUL FARMER AND JIM YONG KIM. DIRECTORS To: ARYEH NEIER & GEORGE SOROS OPEN SOCIETY INSTITUTE FAX: 212-548-4608 FROM: PAUL FARMER, M.D., PH. D. DATE: 17 SEPTEMBER 1998 During the week of 6-11 September, I traveled with a fact-finding mission to investigate the state of tuberculosis (TB) control in Russia, with a particular interest in assessing the problem of TB in prisons. We also evaluated the OSI-funded TB control initiative conducted by the Public Health Research Institute (PHRI). Our team included representatives of the World Health Organization (WHO) and U.S. Centers for Disease Control, as well as clinical and research specialists in tuberculosis control. This group, which serves as the advisory committee to the PHRI projects, counts decades of experience in TB control and research. I myself acted as special consultant on TB epidemiology and treatment to the OSI. For a number of reasons, we expected the TB situation in Russia to be grim. Several of us had previously visited regional TB facilities; all of us were familiar with reports, in the Russian and foreign popular press, describing large outbreaks of TB and high case-fatality rates. These outbreaks, in tandem with the dismantling of the public-health infrastructure, have led to a rapid rise in national case rates. In 1990, TB incidence in Moscow was estimated at 27 per 100,000 population; by 1993, it had almost doubled, to 50 per 100,000. The situation is significantly worse in Siberia, where incidence went from 43 to 94 per 100,000 during the same period. By March 24th, 1998, it was possible for the WHO to announce that TB incidence in Russia had risen another 50% between 1994 and 1996. About a quarter of a million new cases were detected in 1996 alone. We were also concerned about multidrug-resistant tuberculosis (MDRTB). Most members of the committee had read the recent WHO/IUATLD report, which suggested decreased cure rates and significant levels of resistance to first-line antituberculous drugs in the region surveyed. Finally, we knew that the epidemic was particularly affecting, and amplified within, the prison system. In the space of the last few years, TB has become the leading cause of mortality among Russian prisoners and detainees, accounting for 40-80% of all prison deaths in some facilities. National TB mortality among Russian prisoners was recently pegged at 484 per 100,000- among the highest in the world. P. FARMER/REPORT TO OSI, 17 SEPTEMBER 1998 1 :212-2627580 Sep 23 '98 15:12 P. 13/14 In the light of these unwelcome trends, the OSI-funded initiatives were deemed particularly welcome both by many Russian officials and by the broader, global TB community. The PHRI has initiated work in both the civilian and prison populations of Tomsk, and has recently expanded its support of key reforms to the neighboring oblast, Kemerovo. Similar efforts are also underway in Vladimir, closer to Moscow. I have visited all of these regions. On this most recent trip, however, the mission visited Siberian facilities only. What we found disturbed us greatly. A PHRI-led public-private coalition- linking foreign NGOs, including Médecins Sans Frontières (MSF) and MERLIN UK, with both prison and civilian health authorities- has already led to substantial improvements in aspects of TB control ranging from case detection to the standardization of record-keeping and program evaluation. Furthermore, this coalition has been able to substantially reduce improper TB-control practices, which are the root cause of increased rates of treatment failure and increased rates of acquired resistance to the best and least expensive drugs. The committee was unanimous in deeming these reforms central to any effort designed to avert further disaster. These reforms, however, come late. When the OSI-funded initiative was planned and funded, the contribution of drug resistance to low cure rates was unknown, but MDRTB was estimated to represent no more than 5% of incident cases. What we found, however, was a rate of MDRTB many times in excess of this estimate, and we suspect that drug resistance helps to explain the very low cure rates seen inside a number of the institutions in which standard TB-control practices have been implemented. The case of Penal Colony 33, in Mariinsk, Kemerovo, gives an idea of both the gravity and extent of the problem. For the last few years, the Belgian branch of MSF has worked inside the Colony with close cooperation, obviously, from prison officials. Treatment has been standardized, and case detection, treatment protocols, and record-keeping are now in keeping with WHO-endorsed TB-control practices. And yet, preliminary cohort studies have revealed cure rates of less than 60% even though the standardized regimen has been bolstered by a fifth drug, and all doses are directly observed. Although complete drug-susceptibility data are not available, preliminary testing in Belgium suggests that a majority of treatment failures are due to drug resistance. Patients who fail therapy now constitute an increasingly large proportion of those detained in Colony 33; they are eventually isolated from other prisoners. Since Russian law does not permit indefinite detention, however, these prisoners, still infectious, are simply released into the community at the end of their term. A majority of the group- 80% by some estimates-are lost to follow up after release, underscoring the need for close coordination of prison and civilian TB control. Rapidly rising TB case rates elsewhere in Kemerovo Oblast are further proof of the relationship between prisons and the surrounding community, as is the fact that fully a third of all civilian TB diagnoses are made in those with a history of imprisonment. Finally, the highest extramural rates are registered among prison guards and others working in close association with TB-affected prisoners. Equally disturbing, and again suggestive of the increasing contribution of drug resistance to poor outcomes, are data showing that, between 1987 and 1997, as rates of TB skyrocketed, cure rates went from an already-low 67% to a sobering 44 %. (See Figure 1). Death rates among those treated also increased, from 9% to 30%. Note that rates of abandonment and death due to other causes during treatment remained constant. P. FARMER/REPORT TO OSI, 17 SEPTEMBER 1998 2 Fax 212-2627580 Sep 23 '98 15:13 P. 14/14 Figure 1. Trends in TB treatment outcomes, 1987 and 1997 Kemerovo Oblast, civilian population 1987 16% cure 8% TB deaths during treatment deaths from other causes during 9% TB treatment 67% transferred out 1997 16% 10% 44% 30% After meeting with both civilian and prison officials from Kemerovo, the fact-finding mission met with the state governor and leading health officials. We urged the governor to declare tuberculosis an "emergency," and he assured us of his strong and unconditional support for the institution of P. FARMER/REPORT TO OSI, 17 SEPTEMBER 1998 3 WHO NSC INIL HEALTH 03/03/010 10/23/98 11:43 5202 331 9097 NU. I WHO's Response to the Global Tuberculosis Emergency 1. In 1993, the World Health Organization declared TB a global emergency. It took this imprecedented step as TB was claiming the lives of 2-3 million people each year, making it the eading infectious killer of youth and adults. Increasingly, the disease was becoming resistant to currently available medicines because of careless TB treatment practices. (Drug resistance can levelop when patients get the wrong drugs, drug supply is irregular or patients stop taking their nedicines too soon because they feel better). And yet, in spite of these dangers, the world's esponse to the epidemic was minimal WHO defined the enormous size of the global TB problem through expanded monitoring and surveillance. For example, it determined that TB had become the leading cause of death among HIV positive people. The disease also orphans hundreds of thousands of children each year and is the single biggest killer of young women. 3. WHO also determined that TB is a major contributor to poverty. Eighty per cent of TB patients are in the most economically productive years of their lives. TB sends many self-sustaining funilies into poverty. If the breadwinner of a family is not properly diagnosed or treated, he or she will lose, on average, a full year of work. 4. WHO developed an effective TB control strategy known as DOTS. DOTS is the most effective rategy available for detecting and curing TB. It was developed from two decades of testing and best practices. DOTS requires direct observation of treatment to ensure that patients take the 12 edicines; and it also requires government commitment, microscopy services, reliable drug supply and monitoring systems. DOTS can help any country- rich or poor to achieve high cure rates. COTS achieves cure rates as high as 95 per cent even in economically devastated or war-tom areas. Besides achieving high cure rates, DOTS has a number of important advantages: The strategy can be integrated successfully within general health services to achieve widespread coverage. DOTS does not require hospitalization or isolation. Parients can remain at home and return to work in a few short weeks. DOTS is as effective in curing TB in both HIV-positive and HIV-negative people, and is one of the most affordable ways of extending the life of a HIV-positive person. 5. WHO and the World Bank determined the cost effectiveness of DOTS. DOTS helps prevent In ultidrug resistance; which is often fatal and up to 100 times more expensive to treat. The World Bank considers DOTS as one of the most cost-effective health strategies available. A six-month course of drugs for DOTS costs between $10 to $20 per patient in most developing countries. DOTS is a sound economic investment for any government. For example proper use of DOTS in TI riland could save the country $2.3 billion over 20 years. 6. Ite Organization promoted the global implementation of DOTS. WHO developed the DC essary tools, guidelines, training materials and policies to promote the implementation of DOTS. P.T the same time, WHO embarked on major advocacy and intensified technical assistance to over 50 countries, focusing on big countries with largest TB burdens. These efforts have made DOTS Dae of the fastest expanding health interventions of this decade. Today, nearly 2 million people are being cured with DOTS. Inc icator 1990 1998 Number of countries using DOTS 10 110 cent of TB patients being treated by DOTS Under 1 percent 15 percent Drug costs per patient $40-60 $10-20 E-- email donor aid to TB control $16 million $70 million 10/23/98 11:44 202 331 9097 WHO NSC INTL HEALTH 04/010 WHO's Challenge Ahead 1. WHO has identified the main constraints that are preventing further progress against the TB epidemic. These are 1) lack of political commitment; 2) lack of human and financial resources; 3) unavailability of affordable and secure supplies of anti-TB drugs; 4) increased multiple-drug resistant TB (MDR-TB); and 5) the HIV epidemic, which is partly fueling the global TB epidemic. $ global strategy is needed to address these constraints, particularly in high-burden countries. :- WHO's new Director General - Dr Gro Harlem Brundtland - has identified TB as a priority concern or the "renewed" WHO. 3. Groundwork must now be established among global partners for a major initiative on TB. The Stop TB Initiative will lay out and prioritize the steps needed to overcome current constraints to 2 ction and provide the basis for a significant expansion of global efforts against TB. 4. ] he Stop TB Initiative will serve to command increased attention and resources for further i uplementation of DOTS; swiftly establish solutions to sustained global access to anti-TB drugs; lentify cost effective options for addressing MDR-TB and frame a long term vision for a TB desearch and development agenda to include new tools - most importantly an effective vaccine. 10/23/98 11:44 202 331 9097 WHO NSC INTL HEALTH 005/010 THE GLOBAL TUBERCULOSIS EPIDEMIC Burden of disease - There were an estimated 8 million new cases of TB in 1997, including 3.6 million cases of infectious pulmonary disease, and 16.1 million existing cases of disease. - An estimated 2.0 million people died of TB that year, about 1 in 4 cases. TB causes more deaths than any other single infectious agent. - Roughly 1 in 3 people carry the M. tuberculosis bacterium (MTB), i.e. 1.8 billion people. - Countries in South East Asia had the largest number of new cases (3.0 million) in 1997), but the rate per head was highest in sub-Saharan Africa (257/10⁵ persons). - 22 countries had 80% of all incident cases. The leading five together accounted for over half the global total. They were all in Asia: India (1.9 million), China (1.4 million), Indonesia (583,000), Bangladesh (292,000) and Pakistan (261,000). - 1 in every 500 people was infected with both TB and HIV. Three-quarters of a million TB cases (8%) were infected with HIV. The highest rates of co-infection (over 1 in 50 people) were in southern Africa, but India had the largest number of co-infected individuals (1.9 million) and the largest number of HIV-infected TB cases (190,000). - Surveys suggest that about 1 in 10 TB cases is resistant to at least one drug; about 1 in 50 cases is multi-drug resistant (to at least isoniazid and rifampin) - The huge scale of the problem is explained mainly by poor control and population growth in south Asia and sub-Saharan Africa, and high rates of MTB/HIV CO- infection in some African countries. Trends - Without greater control effort, annual TB incidence is expected to increase from about 8 million cases/year in 1997 to 11 million cases/year by 2020. - Reaching WHO targets of 70% case detection and 85% cure by year 2010 could save about 1 in 4 cases (approx. 50 million) over the next two decades. - The incidence of disease is increasing most quickly in African countries that have high levels of HIV (e.g. Malawi, Kenya, Tanzania). It is also increasing quickly in countries where control programmes have broken down (e.g. Russian Federation). 10/23/98 11:45 202 331 9097 WHO NSC INTL HEALTH 006/010 Control - Only about half of infectious cases are treated and cured. The cure rate in DOTS Programmes is much higher than average, typically about 80%. - Approximately half of all countries have now adopted the WHO DOTS strategy. Twenty-one of the 22 highest-burden countries have DOTS Programmes, but most with low rates of case finding and cure. - At present, about 1 in 10 infectious TB cases is cured in DOTS programmes - Among high-incidence countries, the best control programmes are in Peru, Tanzania and Viet Nam, though programmes in Bangladesh and China have expanded rapidly during the 1990s. - Progress in TB control is very slow in the majority of high-burden countries, notably India, Indonesia, Nigeria, Pakistan, Philippines and Russia. NSC INTL HEALTH 007/010 11:45 202 331 9097 WHO 10/23/98 No. 2 Briefing Points for the Director-General's 28 October meeting at the White House With Mrs H Clinton, Mr J Wolfensohn and Mr G Soros The Tuberculosis Problem Each year there are about 8 million new TB cases, with about 2 million deaths. Multidrug-resistant TB (MDR-TB) has emerged as a major threat to TB control in some countries, including Russia and the Baltic States. In 1997 an estimated 8% of TB cases were attributable to HIV, the burden falling mainly on sub-Saharan Africa and increasing in other regions, especially the Indian sub- continent. 11 TB is the biggest single killer of women aged 15-44 world-wide, is the major cause of death among the HIV infected, and is a significant brake on socio-economic development in poor countries as it affects mostly young adults. 4: The global response to TB has thus far been inadequate: many poor countries are failing to control it; rich countries are not doing enough to support TB control in the poor countries and, as a result, the prevalence of TB globally remains unacceptably high, and MDR TB is being created and spread internationally. The Current Solution to the TB Problem The DOTS strategy has been shown by the WHO in collaboration with the World Bank to be one of the most cost effective health interventions. Proper case detection and cure of infectious cases are the comerstone of the TB control strategy. Successful implementation of such strategy achieves high cure rates (e.g., 95% cure among a quarter of a million TB patients annually in China). xisting Constraints to the Solution @ The DOTS strategy is labour intensive, requires direct observation of treatment and strict patient monitoring. Where the prevalence of MDR-TB is high or where HIV infection is widespread, control measures in addition to the DOTS strategy are necessary. " Although 97 countries have adopted the DOTS strategy, only 15% of TB patients globally are treated under DOTS because only few countries have achieved full coverage. " Governments of high prevalence countries have shown insufficient political will and leadership, and have not allocated adequate financial resources. is There is a lack of trained human resources and of secure, quality controlled drugs. 41 Inefficient drug procurement systems in most countries result in an increase in the cost of drugs and produce shortages of stocks. BCG vaccine is ineffective to prevent infectious forms of TB, thus it cannot interrupt TB transmission. 10/23/98 11:46 202 331 9097 WHO NSC INTL HEALTH 008/010 Recommended Actions The current global TB control situation is similar to that of vaccine preventable diseases in the mid 1980s. EPI has successfully progressed to achieve the global targets in the early 1990s through global coalition building and country specific social mobilization. Even hough TB control and the implementation of DOTS may be more complicated than EPI operations, through global coalition and country specific social mobilization, DOTS coverage can be expanded to allow achievement of the global targets of 70% case detection and 85% were rate by 2010. Therefore, We recommend the following: WHO, the World Bank and various US agencies and private charitable interests such as the Open Society Institute commit themselves to work together and combine efforts to analyse constraints, prepare, appraise and finance projects that provide solutions and assist countries with high quality technical implementation of TB control. 2. WHO, in partnership with the World Bank, various agencies throughout the world, and other private and public interests will establish a Stop TB Initiative which has the following four components: A global charter for advocacy and commitment to TB control and elimination of MDR- TB. A global action plan to coordinate interaction among international partners to ensure effective TB control A mechanism to swiftly establish global access to anti-TB drugs. A global research agenda balancing short and long-term vision. successful Initiative will ensure the following: IT TB activities at WHO and worldwide are facilitated Expanded effective TB control in high burden priority countries. Expanded global surveillance of drug resistance and new interventions to treat MDR-TB focusing on Russia and other high MDR-TB burden countries. A global drug facility or direct drug funding to countries in need to ensure the sustained supply of quality, fixed-dose, combination TB drugs. Coordinated approaches to the care and prevention of TB and HIV, especially in Sub- Saharan Africa Improved tools to deliver effective TB control services as an integral part of primary health care. Development of new tools, such as rapid diagnostic tests, drugs and vaccines. The World Bank's Current Activities in Tuberculosis Control The World Bank is fully committed to fighting the global tuberculosis epidemic. The World Bank's contribution is twofold: through the policy advice it provides to countries, and through country-specific lending. In pursuing TB control activities, the Bank collaborates closely with WHO, NGOs, bilateral and technical agencies. For example, a current Bank project in Latvia will be financing improved TB treatment and surveillance, with technical assistance provided by the U.S. Centers for Disease Control. The Bank is also working closely with partners regarding potential interventions for improved TB control in Russia. The Bank has provided nearly US$ 300 million in financing for tuberculosis control programs since 1989, making it the largest single source of external funding for tuberculosis control in developing countries. About twenty countries are using World Bank financing to implement the WHO- recommended TB control strategy (DOTS). Several new projects are under preparation. Some projects are tuberculosis-specific, but a majority address TB control within broad health sector development and health sector reform projects. The two largest Bank-supported TB control projects are in China and India. These countries are home to more than one third of the world's estimated 8 million new TB cases each year. The project in China was initiated in 1992 and has demonstrated dramatic results with the DOTS strategy: half of the country's population is now covered, and over one million infectious cases have been cured to date. The challenge now is to expand this success to the rest of China and to achieve financial sustainability. In India, the TB control project, which began in 1997, has also achieved excellent results with DOTS in several pilot regions. It has established the foundation for the Revised National TB Control Program, and is providing the impetus for an 8-12 year process of extending the approach nationwide. Political commitment, assured drug supply, health worker training and supervision, patient education and motivation, and operational research are critical to the progress of these projects. The Bank is supporting implementation of the DOTS strategy in countries as diverse as Bangladesh, Cambodia, Cote d'Ivoire, Egypt, Haiti, Krygyzstan, Morocco, Niger, Philippines, Romania, and Vietnam. In some countries, tuberculosis control is intimately linked to prevention and control of HIV/AIDS, and the strengthening of collaborative interventions, education, and referral is critical. (MON) 10. 26' 98 11:03/ST. 11:02/NO. 3561964223 P 2 FROM WB EXC 7142 ALFONSE D'AMATO, NEW YORK, CHAIRMAN COMMISSION ON CHRISTOPHER H. SMITH, NEW JERSEY, Co-CHAIRMAN SECURITY AND COOPERATION IN Ben Nighthorse Campbell, Colorado John Edward Porter, Illinois EUROPE Spencar Abraham. Michigan Frank R. Wolf, Virginia 234 FORD HOUSE OFFICE BUILDING Conrad Burns, Montana Matt Salmon, Arizona WASHINGTON, DC 20515-6460 Olympia J. Snowe, Maine Jon Christensen, Nebraska (202) 225-1901 Frank R. Lautenberg, New Jersey Steny H. Hoyer, Maryland Harry Reid, Nevada Edward J. Markey, Massachusetts FAX: (202) 226-4199 Bob Graham, Florida Benjamin L Cardin. Maryland E-MAIL: [email protected] Russell P. Feingold, Wisconsin Louise Mcintosh Staughter, New York EXECUTIVE BRANCH COMMISSIONERS JOHN SHATTUCK DEPARTMENT OF STATE (Vacant). DEPARTMENT OF DEFENSE (Vacant), DEPARTMENT OF COMMERCE October 9, 1998 - MICHAEL R. HATHAWAY, CHIEF OF STAFF DOROTHY D. TAFT, DEPUTY CHIEF OF STAFF To: K.BERNAI The Honorable Madeleine Albright Secretary of State FYI. Department of State 2201 C Street, NW Washington, DC 20520 Dear Madame Secretary: We are writing to focus your attention on the growing threat of Multiple Drug Resistant Tuberculosis (MDRTB) in the Russian Federation, as outlined in the attached information. We would appreciate learning what initiatives have been undertaken by the United States to help contain and defeat this biological threat. Like the Y2K problem, the MDTRE problem can become a crisis if not addressed in a timely and effective manner. With easy international travel and limited means of protecting people from an airborne pathogen, the incubation and spread of MDRTB in Russia also poses a threat to the health of the U.S. population. Moreover, as the world has seen before in this century, the spread of disease, whether influenza after World War I or AIDS in Africa, can threaten and even upset social, political, and economic structures necessary for peace and security. This medical threat must be addressed now, while it may still be possible to limit the consequences. Given Russia's economic troubles and political uncertainty, a concerted international effort to help the Russian authorities contain the spread of this disease and treat its victims appears to be urgently necessary. Currently, the Open Society Institute of the Soros Foundations is funding a $12 million program to combat TB and MDRTB in Russia. Other NGOs, such as Doctors Without Borders, Medical Emergency Relief International, and the New York Health Research Institute, have already begun studying the issue and have raised the alarm. But the problem is genuinely global in scope and will require assistance from governments. We understand that George Soros is planning in the near future to discuss this troubling matter with Mrs. Hillary Rodham Clinton and World Bank President James Wolfensohn, and to emphasize the necessity of governmental involvement. The United States should certainly take the lead in coordinating the activity of medical experts, foreign capitals, international organizations and NGOs to assess the risk and Secretary Albright October 8, 1998 Page 2 work out a plan of action. Perhaps the State Department could convene a conference, along with NIH or CDC, to look at this problem from both the Russian and U.S. ends, i.e., the potential public health mpact on the United States, as well as the economic and political impact on the Russian Federation. Perhaps such a conference can identify what exactly the United States can do to help combat this disease. We are sure you share our concern about this global threat, and we in Congress would like to work with you in averting a crisis. We look forward to hearing from you at your earliest convenience and learning what the Department is doing to address this important issue. Sincerely, aljonse Dames CHRISTOPHER H. SMITH, M.C. ALFONSE D'AMATO, U.S.S. Co-Chairman Chairman cc: Mr. Samuel R. Berger Asst. to the Pres. For Nat'l. Sec. Aff. Enclosure TB Meeting fir TB October 28, 1998 List of Participants World Health Organization Project 55 TB Initiative (Ralph Nader grp.) Dr. Gro Brundtland Christoph Lee Dr. David Heymann AID Executive Director for Communicable Administrator Brian Atwood Diseases Duff Gillespie Ambassador Jonas Store Deputy Assistant Administrator for Executive Director Population, Health and Nutrition Ambassador Thomas Loftus HHS Secretary Donna Shalala World Bank Dr. James Wolfensohn Peggy Hamburg President Asst. Secretary for Planning and Evaluation Jan Piercy State U.S. Executive Director Frank Loy Undersecretary of State for Global Affairs Dr. David de Ferranti Vice President, Human Development Melinda Kimble Network Douglas Wake Chris Lovelace Office of Assistance to the NIS Director, Human Development Sector WH/NSC Open Society Institute Melanne Verveer George Soros Marsha Berry Dr. Paul Edward Farmer Ken Bernard Dr. Alexander Goldfarb Andrew Weiss Dr. Srdan Matic Leon Furth