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Long Island Mearing 8 Speech society NC To Jennyan- the WHITE HOUSE WASHINGTON Pls. respond lov me 9 May 1994 MEMORANDUM FOR THE FIRST LADY FROM: HAROLD ICKES SUBJECT: Long Island Hearing and Speech Society, Inc. Attached is a copy of a 24 February 1994 letter to you from Jonathan W. Leigh, of the Long Island Hearing and Speech Society, Inc. raising a very serious concern that apparently "hearing aids" are not included in overall coverage under S. 1757. I've asked Ira and Greg Lawler to look into this. CC: Jonathan W. Leigh Long Island Hearing and Speech Society, Inc. 430 Lakeville Road New Hyde Park, New York 11040 Janice - Kevin Thurm will send Harold and HRC copies of his response. Jen Associated with LIJ Long Island Jewish Medical Center, The Long Island Campus for the Albert Einstein College of Medicine Long Island Hearing and Speech Society, Inc. February 24, 1994 430 Lakeville Road New Hyde Park, NY 11040 Mrs. Hillary Rodham Clinton Telephone (516) 437-8822 The White House Washington, D.C Officers Dear Mrs. Clinton, Jonathan W. Leigh President The Health Security Act as it now stands will be an S. Lawrence Hornstein enormous disappointment to 28 million hearing-impaired Executive Vice President Americans. We ask for your compassion and help. The David S. Lesser, DDS exclusion of hearing aids in S.1757 has never been Vice Pres. Govt. Affairs explained. It will be particularly harmful to infants Erwin Coyner and children whose parents cannot afford them. Treasurer Nancy Stone The first six years of age are critical for learning Secretary language. Babies can now be screened at birth to identify hearing problems. Aids can be fitted at two Administrative Assistant months, enabling language development, socialization Gloria Boyd and the possibility of being mainstreamed in school - a great saving in public education expense. Medical Director Merrill Goodman, MD Particularly distressing is the granting of coverage for eyeglasses to children under 18, while denying Board of Directors assistance to children who can't hear. Allan L. Abramson, MD Julian Barnett More than one in three Americans over the age of 65 are Sue H. Barnett hearing-impaired. The Act provides them with "durable Stephen Berliner medical equipment and prosthetic and orthotic devices," Joel Glick Mark Goldstein, MD but not hearing aids. Prescription drugs are covered. Jeffrey Kerner, MD Is the prescription of a hearing aid, which lasts for Joan Levy years, less important? Certainly not to the patient. Sol Lipper David E. Mazure Our position, shared with many other professional Steve Rosenbaum, EdD Edwin Schmierer, PhD organizations, is that a national-health plan must Dora Seidler include universal screening of infants, auditory Lynn G. Spivak, PhD prostheses, aural training, and rehabilitation for George Turin children. Honorary Board Members For adults, we believe there should be a co-payment Stephanie Berkowitz-Delin provision for auditory prostheses and aural Hillary Light Fuhrman rehabilitation programs. Harold Greenberg Susan Kane We urge you to modify the exclusion of hearing aids now Paul Oberkotter Diane Smith included in S. 1757. Member Agencies Sincerely yours, Health 8 Welfare Council of Nassau County, Inc. Long Island's United Way Joneth Jonathan W. Leigh feest THE WHITE house WASHINGTON 9 May 1994 MEMORANDUM FOR THE FIRST LADY FROM: HAROLD ICKES SUBJECT: Long Island Hearing and Speech Society, Inc. Attached is a copy of a 24 February 1994 letter to you from Jonathan W. Leigh, of the Long Island Hearing and Speech Society, Inc. raising a very serious concern that apparently "hearing aids" are not included in overall coverage under S. 1757. I've asked Ira and Greg Lawler to look into this. cc: Jonathan W. Leigh Long Island Hearing and Speech Society, Inc. 430 Lakeville Road New Hyde Park, New York 11040 65680 Associated with LIJ Long Island Jewish Medical Center, The Long Island Campus for the Albert Einstein College of Medicine Long Island Hearing and Speech Society, Inc. February 24, 1994 430 Lakeville Road New Hyde Park, NY 11040 Mrs. Hillary Rodham Clinton Telephone (516) 437-8822 The White House Washington, D.C Officers Dear Mrs. Clinton, Jonathan W. Leigh President The Health Security Act as it now stands will be an S. Lawrence Hornstein enormous disappointment to 28 million hearing-impaired Executive Vice President Americans. We ask for your compassion and help. The David S. Lesser, DDS exclusion of hearing aids in S.1757 has never been Vice Pres. Govt. Affairs explained. It will be particularly harmful to infants Erwin Coyner and children whose parents cannot afford them. Treasurer Nancy Stone The first six years of age are critical for learning Secretary language. Babies can now be screened at birth to identify hearing problems. Aids can be fitted at two Administrative Assistant months, enabling language development, socialization Gloria Boyd and the possibility of being mainstreamed in school - a great saving in public education expense. Medical Director Merrill Goodman, MD Particularly distressing is the granting of coverage for eyeglasses to children under 18, while denying Board of Directors assistance to children who can't hear. Allan L. Abramson, MD Julian Barnett More than one in three Americans over the age of 65 are Sue H. Barnett hearing-impaired. The Act provides them with "durable Stephen Berliner Joel Glick medical equipment and prosthetic and orthotic devices," Mark Goldstein, MD but not hearing aids. Prescription drugs are covered. Jeffrey Kerner, MD Is the prescription of a hearing aid, which lasts for Joan Levy years, less important? Certainly not to the patient. Sol Lipper David E. Mazure Steve Rosenbaum, EdD Our position, shared with many other professional Edwin Schmierer, PhD organizations, is that a national-health plan must Dora Seidler include universal screening of infants, auditory Lynn G. Spivak, PhD prostheses, aural training, and rehabilitation for George Turin children. Honorary Board Members For adults, we believe there should be a co-payment Stephanie Berkowitz-Delin provision for auditory prostheses and aural Hillary Light Fuhrman rehabilitation programs. Harold Greenberg Susan Kane Paul Oberkotter We urge you to modify the exclusion of hearing aids now Diane Smith included in S. 1757. Member Agencies Sincerely yours, Health 8 Welfare Council of Nassau County, Inc. Long Island's United Way Jonath Jonathan W. Leigh fest THE WHITE HOUSE WASHINGTON 9 May 1994 MEMORANDUM FOR IRA MAGAZINER GREG LAWLER FROM: HAROLD ICKES SUBJECT: Long Island Hearing and Speech Society, Inc. Attached are self-explanatory 6 May and 24 February 1994 letters to me from Jonathan W. Leigh of the Long Island Hearing and Speech Society, Inc. raising a very serious concern that "hearing aids" are specifically excluded from coverage under S. 1757. I would appreciate your either letting me know or communicating directly with Mr. Leigh as to our position regarding the inclusion of hearing aids as part of overall coverage. CC: Jonathan W. Leigh Long Island Hearing and Speech Society, Inc. 430 Lakeville Road New Hyde Park, New York 11040 Associated with LIJ Long Island Jewish Medical Center, The Long Island Campus for the Albert Einstein College of Medicine Long Island Hearing and Speech Society, Inc. 430 Lakeville Road May 6, 1994 New Hyde Park, NY 11040 Telephone (516) 437-8822 Mr. Harold Ickes The White House Washington, D.C. Officers Jonathan W. Leigh Dear Harold, President S. Lawrence Hornstein Sarah Kovner said she would speak to you this week about Executive Vice President our concern for hearing aid coverage in the health bill. David S. Lesser, DDS I hope she was able to. Vice Pres. Govt. Affairs Erwin Coyner Since I imagine you never received my letter of February Treasurer 22nd (copy attached), I am sending this one to your home. Nancy Stone Secretary I now spend most of my time working for the hearing impaired. Both my brother, sister-in-law and nephew are Administrative Assistant deaf and I too must now often wear an aid. Our Hearing Gloria Boyd and Speech Center at Long Island Jewish Hospital is one of the largest in the New York area and I've included a Medical Director brochure just to give you some personal background. Merrill Goodman, MD On Monday, May 2nd, The President met with advocates for Board of Directors people with disabilities and "argued that his health care Allan L. Abramson, MD plan would empower the disabled by providing an array of Julian Barnett new assistance to help them work and live at home". (N.Y. Sue H. Barnett Times May 3). We applaud that statement. Stephen Berliner Joel Glick Mark Goldstein, MD The deaf and hearing impaired are some of our most Jeffrey Kerner, MD severely disabled. Joan Levy Sol Lipper BUT, on page 91, line 21 of S.1757, hearing aids are David E. Mazure specifically excluded from coverage for anyone of any Steve Rosenbaum, EdD Edwin Schmierer, PhD age. Dora Seidler Lynn G. Spivak, PhD The basic inconsistency of this exclusion with the George Turin President's stated position should be corrected. I write in the hope that you are able and willing to see if this Honorary Board Members can be changed. Stephanie Berkowitz-Delin Hillary Light Fuhrman To pass any version of the Health Bill that specifically Harold Greenberg excludes 28 million hearing disabled Americans would be Susan Kane Paul Oberkotter nothing short of a crime. Diane Smith We ask that the exemption be removed from the language of Member Agencies any final version of the health bill. Hearing aids should Health 8 Welfare Council be treated exactly like eye glasses or any other of Nassau County, Inc. prosthetic and orthotic device. Equal and fair treatment Long Island's United Way is all we ask. I have been talking to Sarah about this, but she says you are really the one who can do something. None of us can understand why hearing aids were excluded in the first place. I understand that the President will address the graduating class at Gallaudet. What a wonderful forum at which to correct what seems an obvious mistake. With best personal regards. Sincerely yours, Jointon Jonathan W. Leigh Associated with LIJ Long Island Jewish Medical Center, The Long Island Campus for the Albert Einstein College of Medicine Long Island Hearing and Speech Society, Inc. 430 Lakeville Road February 24, 1994 New Hyde Park, NY 11040 Telephone (516) 437-8822 Mr. Harold Ickes The White House Washington, D.C. Officers Jonathan W. Leigh Dear Harold, President S. Lawrence Hornstein I hope you won't object to my calling on our Saltaire Executive Vice President connection. At the Pogrebin's recent wedding David S. Lesser, DDS celebration, Sarah Kovner suggested that I write you Vice Pres. Govt. Affairs about the problem we have with hearing aid coverage in Erwin Coyner the Health Security Act. Treasurer Nancy Stone Would it be possible for you to see that the enclosed Secretary letter receives the attention of Mrs. Clinton? Administrative Assistant I believe that this issue has not yet been recognized Gloria Boyd by the vast number of people who will be affected. With your new responsibility in coming elections, I assume Medical Director that an issue of concern to 28 million Americans will Merrill Goodman, MD have a high priority. Board of Directors I know from personal experience that dramatic results Allan L. Abramson, MD can be achieved by the early fitting of hearing aids to Julian Barnett infants and children. The tragedy of withholding these Sue H. Barnett devices from those whose parents are unable to afford Stephen Berliner Joel Glick them is truly heart rending. Mark Goldstein, MD Jeffrey Kerner, MD One in three adults over 65 have hearing problems. As Joan Levy they recognize that their needs have been left out of Sol Lipper the Health Security Act, I think there will be deep David E. Mazure resentment. Few things are more important to these Steve Rosenbaum, EdD Edwin Schmierer, PhD millions. Dora Seidler Lynn G. Spivak, PhD The entire hearing-impaired community will appreciate George Turin any help you can give us. Honorary Board Members With best wishes for success in all your many Stephanie Berkowitz-Delin responsibilities. Their scope is truly awe inspiring. Hillary Light Fuhrman Harold Greenberg Susan Kane Sincerely yours, Paul Oberkotter Diane Smith Member Agencies Health 8 Welfare Council Jonathan W. Leigh of Nassau County, Inc. Long Island's United Way