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FOIA Number: 2007-0143-F
FOIA
MARKER
This is not a textual record. This is used as an
administrative marker by the William J. Clinton
Presidential Library Staff.
Collection/Record Group:
Clinton Presidential Records
Subgroup/Office of Origin:
Public Liaison
Series/Staff Member:
William White, Jr.
Subseries:
OA/ID Number:
14204
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Folder Title:
National Disability Policy Review
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31
2
9
3
National Disability Policy Review
Meeting of Work Group Convenors
May 9, 1995
3:30 - 5:00 p.m.
AGENDA
I.
Overview of Meeting Agenda (3:30-3:40)
Diana will outline the plan for next full team meeting on
May 31:
O
Presentations of findings by work groups on Adult
Employment and School-to-Work Transition
5 minutes of best practices at beginning and end of
meeting; goal is to promote interagency collaboration
II. Reports from work groups:
Each convenor will give a 5-minute overview of their
work group's progress to date, including a statement
about when findings and recommendations will be ready
to present to the full team
O
5 minutes of discussion by convenors as to whether work
group is going in the right direction
A.
Children: Judy Feder
Decision: Do we agree that working to coordinate services
better is where the groups should focus? (3:40-3:50)
We will interrupt the agenda around this time because Elaine
Kamarck will stop by the meeting. We will briefly discuss the
impact of NPR/Rego2 on disability issues, and the relationship of
the NPR review to the disability policy review. (3:50 - 4:00)
B.
School to Work: Judy Heumann (4:00-4:10)
C.
Accommodations: Liz Savage (4:10-4:20)
D.
Adult Employment: Susan Daniels
Decision: Are the group's emerging "New Covenant" options
heading in the right direction? What steps must we take to
ensure a good outcome? (4:20-4:40)
III. Short-term issues (including children's SSI, changes to
vocational rehabilitation, reauthorization of IDEA, response
on ADA backlash)
IV.
Next Steps
Filion
WHITE HOUSE DISABILITY POLICY REVIEW
CHILDREN'S WORK GROUP
Proposed Outline for Report on Integrated Services
Background
The Children's Work Group met weekly from approximately January through March. In
April, we started meeting on alternate weeks; on the weeks in between, a "Steering
Committee" met to explore ways to guide the group to some purposeful consensus.
Early on, the larger group divided into three subgroups -- Income Supports (mostly SSI, also
AFDC), Education (mostly Parts B and H of IDEA), and Health (Medicaid and PHS
programs).
In the larger group, we've met with advocates and shared information with each other on our
areas of expertise. The information sharing has been accomplished through briefings by group
members, or by other experts from the agencies represented. For example, Rachel Block of
the HCFA Medicaid Bureau briefed the group on Medicaid waivers, Judy Wertzel of OSERS
discussed the IDEA reauthorization, and Judy Chesser presented on SSI reform.
Through periodic subgroup meetings and the ongoing discussions of the larger group and the
steering committee, we have arrived at a crossroads. We've made some tentative decisions.
1.
"We do the same thing! How can we simplify this so families don't have to go
through it twice, states don't have to set up two systems, and the federal government
doesn't have to pay for the same service provided by two different systems?"
The natural focus of most of our discussions is on how to coordinate programs,
eliminate duplication, make services and programs as family-friendly as possible --
especially involving families in decision making and service delivery, and streamline
systems and eliminate bureaucratic red tape. We seem to have arrived at a decision
to recommend some short and long-term activities aimed at coordinating services.
2.
It's time for the Children's Group to synthesize all the input, discussions,
presentations and analytical thinking and make some long and short range
recommendations.
While we would support the continuation of the group as an information sharing,
networking entity, group members are moving toward a need for some synthesis and
recommendations. Furthermore, representatives of the advocacy and consumer groups
are beginning to ask for some analysis and ideas. Our proposed solution is to
develop a synthesis report for the White House Disability Policy Review on
2
coordinated services. The report will include recommendations -- all within the
context of coordinating services and making them more family friendly. The
recommendations will range from "tinkering" with individual programs to establishing
a major demonstration program. Ideally, this report will represent our combined
federal thinking on statutory and regulatory and agency guidance reforms to make
government policy related to disabilities smarter and more smoothly coordinated. We
envision this report serving as a blueprint, or a template, against which to hold future
proposed reforms in programs that affect children with disabilities.
The steering committee developed the following outline for the paper. It will be
discussed by the full group on Monday, May 15.
3
Outline for Coordinated Services Report
I.
Background on Federal Programs Serving Children with Disabilities
A.
Introduction
1.
Multiple targeted programs supported by federal government.
2.
Also multiple "generic" programs that serve all kids, including those
with disabilities.
3.
Historical perspective: how and why programs developed.
a.
fragmentation today because existing programs were "tweaked"
to accommodate social change; no specific principles or policies
regarding children with disabilities to guide and coordinate
program evolution.
b.
lack of coordination across programs; in some cases,
contradictory policies and rules.
c.
program changes were and are made in discrete "spheres."
d.
we are now living in a more mature environment with different
constraints and demands.
e.
family policy and disability policy is not static.
f.
we need to make best use of limited and shrinking resources.
g.
need to make best use of families, without exhausting them.
B.
Education Programs
1.
IDEA
a.
Part B
i.
describe program
ii.
historical development
4
iii.
spending and utilization
b.
Part H
2.
Chapter 1 (same outline for all background sections)
3.
Others?
C.
Health Programs
1.
Medicaid
a.
State Plan Services
b.
EPSDT
c.
Waivers (1915(b) and (c))
d.
1115 waivers
2.
Public Health Service
a.
MCH
3.
Others
D.
Income Supports
1.
SSI
2.
AFDC
3.
Others?
II.
Coordination of Programs
A.
What we mean by coordination.
B.
Goals of coordination
C.
Is it possible?
5
III.
Case Studies of Coordination (try to include examples of state, local, urban, rural,
school based, Medicaid centered, private insurance?, income and family support)
A.
Coordination is not a "blue sky" unworkable idea -- it is done in some places.
B.
Many of the pieces are available under existing federal authorities. This section
offers some examples of how the pieces can be creatively put together to create
a coordinated system.
C.
School system that uses Medicaid (Baltimore County or Oklahoma)
D.
Medicaid Waiver program that pulls it together
1.
Wisconsin COP
2.
DC proposed 1115
E.
San Diego schools
F.
Model family support programs
G.
A Part H example?
IV.
Characteristics of Successful Collaborative Systems
A.
B.
C.
V.
Barriers: Why it doesn't happen more often
A.
Program specific barriers
1.
Education
2.
Health
3.
Income Support
B.
Program Interaction Issues
6
1.
Payor of last resort
2.
Philosophical differences between systems
3.
Flexibility VS. federal prescription
4.
increased poverty and disability leading to shrinking resources
5.
lack of support services ("glue money")
VI.
Federal Policies to Encourage Collaboration (Long and Short Range Recommendations)
Note: this is the least fleshed out section so far, since the group felt some need to: (1)
get a go ahead from agency heads and the White House; and (2) begin writing the
previous sections.
A.
Principles for all long and short range recommendations
B.
We are not proposing block grants; we are proposing recommendations that
simplify and encourage imagination and creativity.
C.
Individual program reforms
D.
Ideas for encouraging coordination
1.
1115 demonstrations on multiple systems
2.
other large and small demonstrations
3.
tinkering with cross cutting pieces
a.
uniform assessment for multiple programs
b.
coordinating case management
c.
?
AGENDA
Meeting of Work Group Convenors
National Disability Policy Review
March 30, 1995
1.
Finish Guiding Principles
2.
Notice of meeting with Doug Ross
3.
Discussion of where the policy review is heading
4.
Timing
5.
How to use the time of the full group in the next 2-3 months
3-30-95
As President Clinton has stated, "Having a disability does not
diminish one's right to participate in all aspects of mainstream
society." In the United States, it is estimated that:
One in five Americans (43 million) experiences a disability;
One in ten Americans (25 million) is temporarily disabled at any
given time;
Nearly one in three Americans over age 65 (11.2 Million) has
disability; and,
Asian a
African Americans, Hispanic Americans, Native Americans and low
income Americans are more likely to have a disability.
Everyday in our country persons with disabilities are exceeding
the expectations which our society has set for them. In doing
so, individuals with disabilities are redefining what it means to
be a fully participating member of the American community.
Indeed, Americans with disabilities and their families often are
in the vanguard of those calling for a New Covenant with their
government. They no longer want to be taken care of by anyone,
least of all government. Instead, they expect government at
every level to work alongside them to strengthen policies and
programs which increase their personal and economic independence
while removing barriers which continue to infringe upon their
rights and abilities to lead responsible, productive lives.
Accordingly, President Clinton has directed his Administration to
take the lead in "craft (ing) policies of inclusion, independence
and empowerment that will inspire positive changes in this
country and in nations around the world". The purpose of this
comprehensive Policy Review, therefore, is to carry out the
President's charge by:
o Analyzing how Federal policies and programs currently affect
Americans with disabilities and their families; and,
O Recommending ways to craft a more coherent and consistent set
of policies which will result in the greater inclusion,
independence and empowerment of all people with disabilities in
our nation.
The principles that guide this analysis and inform its
recommendations must be rooted in the same ideals that underpin
the rights and responsibilities of all Americans. We, therefore,
believe it is in the National interest that federal policies,
programs, benefits and activities affecting individuals with
disabilities be designed and implemented to:
O End discrimination against Americans with disabilities of all
ages, genders, ethnic backgrounds and income levels in education,
employment, housing, public accommodations, transportation,
communication, recreation, institutionalization, health services,
voting, access to public services and other areas through the
full enforcement of all civil rights laws and the Constitution.
O Foster equal opportunity, independence and the full
participation and economic self-sufficiency of every member of
the public, including persons with disabilities, in all programs
and activities of the Federal Government.
o Take effective steps to remedy the links and inequities based
upon disability, minority status, and poverty in our country.
O Create universal access to the National Information
Infrastructure and other vital emerging technologies.
o Affirm and support the efforts of families with children with
disabilities to raise their sons and daughters at home and to
include them in every facet of family and community life.
o Maximize the ability and opportunity of all individuals,
regardless of the level of their disability or age, to live in
the community as full, participating members of their families.
O Assure that assistance or services provided to people with
disabilities is carried out in a manner consistent with their
strengths, resources, priorities, concerns, and abilities.
o Afford States and local governments flexibility in delivering
community services, provided that people with disabilities and
their families have a lead role in designing, overseeing and
evaluating those services which affects them most.
O Stimulate public-private partnerships which demonstrate and
disseminate new ideas, knowledge and practices that promote the
inclusion of all people with disabilities in their homes, in
public schools, in the workplace and in all aspects of community
life.
o Make it pay for such individuals to work by creating incentives
rather than disincentives to work and to pursue careers.
Our Nation's greatness rests with its people's potential to make
the most of their lives and thereby shape the future of our
country. Americans with disabilities represent an enormous
reservoir of such potential. To tap this potential and power, we
must heed the President's urgent call to action:
"We must not rest until America has a national disability
policy based on three simple creeds: inclusion, not
exclusion; independence, not dependence; and empowerment,
not paternalism." Bill Clinton, 1992
THE WHITE HOUSE
WASHINGTON
MEMORANDUM FROM THE WHITE HOUSE DOMESTIC POLICY COUNCIL
Distribution:
Susan Harris
Nancy Bloch
Bob Bohlman
Judi Chamberlin
Al Guida
Dr. I. King Jordan
Katy Neas
Donna Sorkin
Peter Thomas, Esquire
Gordan Mansfield
Paul Marchand
Pat Wright
Patty McGill Smith
Chris Metzler
Arthur Wilson
Tony Young
TOTAL NUMBER OF PAGES INCLUDING COVER SHEET: 3
Please call 456-5571 if this document needs to be re-sent
letters will to accept, DRIVE ? WID $ 3 .
goot on 2/15
thanks For your help,
thought a you might want
record me of this
1
THE WHITE HOUSE
WASHINGTON
February 14, 1995
Dear Colleague:
You are cordially invited to attend a meeting with work group
leaders of the National Disability Policy Review. The meeting
will be held on Thursday, February 16, 1995, 12:30-2:00 p.m. in
room 248 of the Old Executive Office Building.
Last fall, the Administration convened a team of Federal
officials to conduct a National Disability Policy Review of
Federal programs serving people with disabilities. This Review
is headed by Carol H. Rasco, Assistant to the President for
Domestic Policy, and Alice Rivlin, Director, Office of Management
and Budget.
The Review Team established five work groups: Guiding Principles,
Accommodations, Children's Issues, School-to-Work Transitions,
and Employment of Working-Age Adults. These groups have been
meeting to determine the direction of, and next steps for,
national disability policy.
We would appreciate the opportunity to update you on the progress
of the Review's work to date and receive your suggestions. In
particular, we would like your input on the attached draft of the
Guiding Principles statement that will serve as a framework for
the direction of the Review's work.
Your ideas, concerns, and solutions will be critical to the over-
all process of this review and we look forward to working with
you.
Please contact Elisabeth Cohen (phone: 456-5571) to provide
clearance information (date of birth). Also, feel free to
forward this invitation to the appropriate representative at your
organization if necessary. We apologize for the short notice and
hope you will be able to attend.
Thank you.
Sincerely,
WianSvtz Diana Fortuna
Senior Policy Analyst
Senior Policy Analyst
Domestic Policy Council
Domestic Policy Council
THE WHITE HOUSE
WASHINGTON
MEMORANDUM FROM THE WHITE HOUSE DOMESTIC POLICY COUNCIL
Distribution:
Susan Ames-Zierman
Aimee Berenson
Justin Dart
Sylvia Walker
Curt Decker
Steve Eidelman
Jim Gashel
Anne-Marie Hughey
Joe Manes
Scott Marshall
Oral Miller
Michael Morris
Becky Ogle
Janet O'Keeffe
Joseph Rogers
TOTAL NUMBER OF PAGES INCLUDING COVER SHEET: 3
Please call 456-5571 if this document needs to be re-sent
THE WHITE HOUSE
WASHINGTON
February 14, 1995
Dear Colleague:
You are cordially invited to attend a meeting with work group
leaders of the National Disability Policy Review. The meeting
will be held on Tuesday, February 21, 1995, 11:00-12:30 p.m. in
room 248 of the Old Executive Office Building.
Last fall, the Administration convened a team of Federal
officials to conduct a National Disability Policy Review of
Federal programs serving people with disabilities. This Review
is headed by Carol H. Rasco, Assistant to the President for
Domestic Policy, and Alice Rivlin, Director, Office of Management
and Budget.
The Review Team established five work groups: Guiding Principles,
Accommodations, Children's Issues, School-to-Work Transitions,
and Employment of Working-Age Adults. These groups have been
meeting to determine the direction of, and next steps for,
national disability policy.
We would appreciate the opportunity to update you on the progress
of the Review's work to date and receive your suggestions. In
particular, we would like your input on the attached draft of the
Guiding Principles statement that will serve as a framework for
the direction of the Review's work.
Your ideas, concerns, and solutions will be critical to the over-
all process of this review and we look forward to working with
you.
Please contact Elisabeth Cohen (phone: 456-5571) to provide
clearance information (date of birth). Also, feel free to
forward this invitation to the appropriate representative at your
organization if necessary. We apologize for the short notice and
hope you will be able to attend.
Thank you.
Sincerely,
Senior Lynn
Diana Fortuna
Senior Policy Analyst
Domestic Policy Council
Domestic Policy Council
National Disability Policy Review
Guiding Principles
DRAFT
The fundamental role of governments in respect to individuals
with disabilities should be to assure the right of such persons
to enjoy full inclusion and integration in the educational,
economic, political, social, and cultural mainstream of American
society. In practical terms, therefore, governments must assure
that people with disabilities of all ages, ethnic backgrounds,
and income levels have the equal opportunity to exercise their
full rights and responsibilities to live as independently as
possible; to enjoy self-determination; to make choices; and, to
be productive throughout their lives. It is, therefore, in the
nation's interest that public policies, programs, benefits, and
activities affecting such individuals be designed and implemented
to:
O
End discrimination against Americans with disabilities and
strengthen our nation's communities and economy by providing
strong, effective, and fair enforcement of the Americans
with Disabilities Act, Title V of the Rehabilitation Act,
the Fair Housing Act Amendments, and the Individuals with
Disabilities Education Act.
Strengthen the capacities of such persons and assure that
needed services and supports are provided in a coordinated
fashion which maximizes their control over their own lives
and futures in the mainstream of American life.
Assure that any assistance provided to such a person is
carried out in an individualized manner, consistent with the
unique strengths, resources, priorities, concerns, choices,
abilities, and capabilities of that individual.
Support the efforts of families with children with
disabilities to raise their sons and daughters at home and
to include them in every facet of family and community life.
Assist individuals with disabilities of all ages, including
those 65 and older, to play valued roles as participating
members of their families and communities.
Expand the ability and flexibility of states and local
governments to work directly with people with disabilities
and their families to fashion more effective and responsive
solutions to the challenges we face as a nation.
Improve access to the assistance, technology, and supports
that enable these individuals to have greater control over
their lives and contribute more fully to their home, family,
school, work, and community life.
Assure that all current and future programs and activities
are designed and implemented to meet the needs of those
eligible members of the public who have disabilities.
Make it pay for such citizens to work by creating incentives
rather than disincentives to work and to pursue careers.
THE WHITE HOUSE
WASHINGTON
NATIONAL DISABILITY POLICY REVIEW
Meeting of the Review Team
February 22, 1995
Room 248, Old Executive Office Building
AGENDA
Welcome and Introduction
Carol H. Rasco and Alice Rivlin
Review of Guiding Principles Bob Williams, Diana Fortuna and
Draft and Advocacy Groups'
Lynn Margherio
Comments
Update on Work Group Efforts:
O
Adult Employment
Susan Daniels
O
School-to-Work
Judy Heumann
O
Accommodations
Liz Savage
O
Childhood
Judy Feder/ Ruth Katz
Status of Program Inventory Lisa Fairhall and Richard Green
National Disability Policy Review
Guiding Principles
DRAFT
The fundamental role of governments in respect to individuals
with disabilities should be to assure the right of such persons
to enjoy full inclusion and integration in the educational,
economic, political, social, and cultural mainstream of American
society. In practical terms, therefore, governments must assure
that people with disabilities of all ages, ethnic backgrounds,
and income levels have the equal opportunity to exercise their
full rights and responsibilities to live as independently as
possible; to enjoy self-determination; to make choices; and, to
be productive throughout their lives. It is, therefore, in the
nation's interest that public policies, programs, benefits, and
activities affecting such individuals be designed and implemented
to:
End discrimination against Americans with disabilities and
strengthen our nation's communities and economy by providing
strong, effective, and fair enforcement of the Americans
with Disabilities Act, Title V of the Rehabilitation Act,
the Fair Housing Act Amendments, and the Individuals with
Disabilities Education Act.
Strengthen the capacities of such persons and assure that
needed services and supports are provided in a coordinated
fashion which maximizes their control over their own lives
and futures in the mainstream of American life.
Assure that any assistance provided to such a person is
carried out in an individualized manner, consistent with the
unique strengths, resources, priorities, concerns, choices,
abilities, and capabilities of that individual.
Support the efforts of families with children with
disabilities to raise their sons and daughters at home and
to include them in every facet of family and community life.
Assist individuals with disabilities of all ages, including
those 65 and older, to play valued roles as participating
members of their families and communities.
Expand the ability and flexibility of states and local
governments to work directly with people with disabilities
and their families to fashion more effective and responsive
solutions to the challenges we face as a nation.
Improve access to the assistance, technology, and supports
that enable these individuals to have greater control over
their lives and contribute more fully to their home, family,
school, work, and community life.
Assure that all current and future programs and activities
are designed and implemented to meet the needs of those
eligible members of the public who have disabilities.
Make it pay for such citizens to work by creating incentives
rather than disincentives to work and to pursue careers.
ATTENDANCE LIST FOR NATIONAL DISABILITY POLICY REVIEW MEETINGS
WITH ADVOCACY GROUPS TO DISCUSS THE GUIDING PRINCIPLES DRAFT
Thursday, February 16, 1995
PATRISHA WRIGHT, DISABILITY RIGHTS EDUCATION & DEFENSE FUND
PAUL MARCHAND, THE ARC
KATHERINE NEAS, NATIONAL EASTER SEALS SOCIETY
PATRICIA SMITH, NATIONAL PARENT NETWORK ON DISABILITIES
DR. SYLVIA WALKER, SOCIO-ECONOMIC POLICY STUDIES, HOWARD UNIV.
KIMBERLEY A. TURNER, SOCIO-ECONOMIC POLICY STUDIES, HOWARD UNIV.
CHRISTINA METZLER, AMERICAN OCCUPATIONAL THERAPY ASSOC.
PETER W. THOMAS, AAPMR, ASIA, ACRM, ASOTAPA, ACA, NARRTC, NOD
RONALD DRACH, DISABLED AMERICAN VETERANS
TONY YOUNG, AMERICAN REHABILITATION ASSOCIATION
DAVID FIELDS, AMERICAN REHABILITATION ASSOCIATION
BRENDA BATTAT, SELF-HELP FOR HARD OF HEARING PEOPLE
MAUREEN MCCLOSKEY, PARALYZED VETERANS OF AMERICA
SUSAN HARRIS, NATIONAL MULTIPLE SCLEROSIS SOCIETY
Tuesday, February 21, 1995
JANET O'KEEFFE, AMERICAN PSYCHOLOGICAL ASSOCIATION
JOSEPH ROGERS, NATIONAL MENTAL HEALTH CONSUMER SELF-HELP CLEARING
HOUSE
BOB BOHLMAN, NAMI
STEPHANIE THOMAS, ADAPT
JUDI CHAMBERLIN, CENTER FOR PSYCH REHAB
JULIA BELL, NATIONAL ASSOCIATION OF DEVELOPMENTAL DISABILITIES
COUNCILS
ALAN DINSMORE, AMERICAN FOUNDATION FOR BLIND
CHRISTOPHER BUTTON, UNITED CEREBRAL PALSY ASSOCIATIONS
JIM GASHEL, NATIONAL FEDERATION OF THE BLIND
ORAL MILLER, AMERICAN COUNCIL OF THE BLIND
WILLIAM WANAMAKER, PROJECT ACCESSABILITY
JUSTIN DART, JUSTICE FOR ALL
STEVEN M. EIDELMAN, KENNEDY FOUNDATION
JOSEPH MANES, BAZELON CENTER FOR MENTAL HEALTH LAW
DR. FRED FAY, DISABILITY RIGHTS VOTER EDUCATION (SPEAKER PHONE)
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Advoccacy
National Disability Policy Review
Guiding Principles
Federal role
DRAFT above overlid monting
The fundamental role of governments in respect to individuals
with disabilities should be to assure the right of such persons
to enjoy full inclusion and integration in the educational,
economic, political, social, and cultural mainstream of American
society. In practical terms, therefore, governments must assure
that people with disabilities of all ages, ethnic backgrounds,
and income levels have the equal opportunity to exercise their
full rights and responsibilities to live as independently as
possible; to enjoy self-determination; to make choices; and, to
be productive throughout their lives. It is, therefore, in the
nation's interest that public policies, programs, benefits, and
activities affecting such individuals be designed and implemented
to:
End discrimination against Americans with disabilities and
strengthen our nation's communities and economy by providing
strong, effective, and fair enforcement of the Americans
with Disabilities Act, Title V of the Rehabilitation Act,
the Fair Housing Act Amendments, and the Individuals with
Disabilities Education Act.
Strengthen the capacities of such persons and assure that
needed services and supports are provided in a coordinated
fashion which maximizes their control over their own lives
and futures in the mainstream of American life.
Assure that any assistance provided to such a person is
carried out in an individualized manner, consistent with the
unique strengths, resources, priorities, concerns, choices,
abilities, and capabilities of that individual.
Support the efforts of families with children with
disabilities to raise their sons and daughters at home and
to include them in every facet of family and community life.
Assist individuals with disabilities of all ages, including
those 65 and older, to play valued roles as participating
members of their families and communities.
Expand the ability and flexibility of states and local
governments to work directly with people with disabilities
and their families to fashion more effective and responsive
solutions to the challenges we face as a nation
Improve access to the assistance, technology, and supports
that enable these individuals to have greater control over
their lives and contribute more fully to their home, family,
school, work, and community life.
Assure that all current and future programs and activities
are designed and implemented to meet the needs of those
eligible members of the public who have disabilities.
Make it pay for such citizens to work by creating incentives
rather than disincentives to work and to pursue careers.
Integration
-
histon
existing
National Disability Policy Review
Guiding Principles
DRAFT
The fundamental role of governments in respect to individuals
with disabilities should be to assure the right of such persons
to enjoy full inclusion and integration in the educational,
economic, political, social, and cultural mainstream of American
society. In practical terms, therefore, governments must assure
that people with disabilities of all ages, ethnic backgrounds,
and income levels have the equal opportunity to exercise their
full rights and responsibilities to live as independently as
possible; to enjoy self-determination; to make choices; and, to
be productive throughout their lives. It is, therefore, in the
nation's interest that public policies, programs, benefits, and
activities affecting such individuals be designed and implemented
to:
End discrimination against Americans with disabilities and
strengthen our nation's communities and economy by providing
strong effective, and fair enforcement of the Americans
with Disabilities Act, Title V of the Rehabilitation Act,
the Fair Housing Act Amendments, and the Individuals with
Disabilities Education Act.
Strengthen the capacities of such persons and assure that
needed services and supports are provided in a coordinated
fashion which maximizes their control over their own lives
and futures in the mainstream of American life.
Assure that any assistance provided to such a person is
carried out in an individualized manner, consistent with the
unique strengths, resources, priorities, concerns, choices,
abilities, and capabilities of that individual.
Support the efforts of families with children with
disabilities to raise their sons and daughters at home and
to include them in every facet of family and community life.
Assist individuals with disabilities of all ages, including
those 65 and older, to play valued roles as participating
members of their families and communities.
Expand the ability and flexibility of states and local
governments to work directly with people with disabilities
and their families to fashion more effective and responsive
solutions to the challenges we face as a nation.
Improve access to the assistance, technology, and supports
that enable these individuals to have greater control over
their lives and contribute more fully to their home, family,
school work, and community life.
Assure that all current and future programs and activities
are designed and implemented to meet the needs of those
eligible members of the public who have disabilities.
Make it pay for such citizens to work by creating incentives
rather than disincentives to work and to pursue careers.
National Disability Policy Review
Guiding Principles
DRAFT
The fundamental role of governments in respect to individuals
with disabilities should be to assure the right of such persons
to enjoy full inclusion and integration in the educational,
economic, political, social, and cultural mainstream of American
society. In practical terms, therefore, governments must assure
that people with disabilities of all ages, ethnic backgrounds,
and income levels have the equal opportunity to exercise their
full rights and responsibilities to live as independently as
possible; to enjoy self-determination; to make choices; and, to
be productive throughout their lives. It is, therefore, in the
nation's interest that public policies, programs, benefits, and
activities affecting such individuals be designed and implemented
to:
End discrimination against Americans with disabilities and
strengthen our nation's communities and economy by providing
strong, effective, and fair enforcement of the Americans
with Disabilities Act, Title V of the Rehabilitation Act,
the Fair Housing Act Amendments, and the Individuals with
Disabilities Education Act.
Strengthen the capacities of such persons and assure that
needed services and supports are provided in a coordinated
fashion which maximizes their control over their own lives
and futures in the mainstream of American life.
Assure that any assistance provided to such a person is
carried out in an individualized manner, consistent with the
unique strengths, resources, priorities, concerns, choices,
abilities, and capabilities of that individual.
Support the efforts of families with children with
disabilities to raise their sons and daughters at home and
to include them in every facet of family and community life.
Assist individuals with disabilities of all ages, including
those 65 and older, to play valued roles as participating
members of their families and communities.
Expand the ability and flexibility of states and local
governments to work directly with people with disabilities
and their families to fashion more effective and responsive
solutions to the challenges we face as a nation.
Improve access to the assistance, technology, and supports
that enable these individuals to have greater control over
their lives and contribute more fully to their home, family,
school, work, and community life.
Assure that all current and future programs and activities
are designed and implemented to meet the needs of those
eligible members of the public who have disabilities.
Make it pay for such citizens to work by creating incentives
rather than disincentives to work and to pursue careers.
Tred Fay
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THE WHITE HOUSE
WASHINGTON
FAX TO MEMBERS OF THE NATIONAL DISABILITY POLICY REVIEW
Attached please find the agenda for the upcoming meeting of the
National Disability Policy Review Team. As you know, the meeting
will be held this Wednesday, February 22 in Room 248 of the Old
Executive Office Building from 2:00 to 3:30 pm If you would
like to attend and have not contacted us, please call Elisabeth
Cohen at 202-456-5571 to provide clearance information (date of
birth).
Thank you.
Distribution:
Roberta Achtenberg
Gary Blumenthal
Carolyn Colvin & Susan Daniels
Speed Davis
Dennis Duffy
Eddie Espinosa
Judy Feder & Bob Williams
Patsy Fleming
W. Scott Gould
Michael A. Grant
Judith Heumann
Frank Kruesi
Joe Meade
Paul S. Miller
Josephine Nieves
Fred Pang
Larry Parks
Deval Patrick
TOTAL NUMBER OF PAGES INCLUDING COVER: 2
CC: Ken Apfel, Lisa Fairhall, Debbie Fine, Diana Fortuna,
Richard Green, Lynn Margherio, Lorraine Miller, Jen O'Conner,
Joe Stiglitz, Tracey Thornton
THE WHITE HOUSE
WASHINGTON
NATIONAL DISABILITY POLICY REVIEW
Meeting of the Review Team
February 22, 1995
Room 248, Old Executive Office Building
AGENDA
Welcome and Introduction
Carol H. Rasco and Alice Rivlin
Review of Guiding Principles
Bob Williams, Diana Fortuna and
Draft and Advocacy Groups'
Lynn Margherio
Comments
Update on Work Group Efforts:
Adult Employment
Susan Daniels
School-to-Work
Judy Heumann
Accommodations
Liz Savage
Childhood
Judy Feder
Status of Program Inventory
Lisa Fairhall and Richard Green
THE WHITE HOUSE
WASHINGTON
FAX TO MEMBERS OF THE NATIONAL DISABILITY POLICY REVIEW
Distribution:
Roberta Achtenberg
Gary Blumenthal
Carolyn Colvin & Susan Daniels
Speed Davis
Dennis Duffy
Eddie Espinosa
Judy Feder & Bob Williams
Patsy Fleming
W. Scott Gould
Michael A. Grant
Judith Heumann
James R. Lyons
Frank Kruesi
Paul S. Miller
Josephine Nieves
Fred Pang
Larry Parks
Deval Patrick
TOTAL NUMBER OF PAGES INCLUDING COVER:
3
CC: Ken Apfel, Lisa Fairhall, Debbie Fine, Diana Fortuna,
Richard Green, Lynn Margherio, Lorraine Miller, Jen O'Conner,
Joe Stiglitz, Tracey Thornton
THE WHITE HOUSE
WASHINGTON
February 14, 1995
MEMORANDUM TO MEMBERS OF THE NATIONAL DISABILITY POLICY REVIEW
TEAM
FROM:
Carol H. Rasco CHR
Assistant to the President for Domestic Policy
Alice Rivlin
AM
Director, Office of Management and Budget
SUBJECT: Meeting Reminder, Guiding Principles and Request for
Agency Program Information
The next meeting of the full Review team will be held next
Wednesday, February 22 from 2:00-3:30 p.m. in Room 248, Old
Executive Office Building. At this time, we will discuss any
final comments on the attached draft of the Guiding Principles
and review the next steps for each work group.
The work group convenors are currently in the process of meeting
with representatives of the advocacy community to discuss the
Guiding Principles draft and to provide them with an update on
Review progress to date. The comments we gather at these
sessions will also be an important part of our discussion during
next week's meeting.
As you know, we have requested that each agency provide program
information on federal programs for people with disabilities in
advance of the February 22 meeting. At that time, a package of
material submitted will be distributed to the members of the
Review. If you have not submitted this information and/or have
questions, please contact Lisa Fairhall (phone: 395-7766) or
Richard Green (phone: 395-7398). As we discussed at our last
meeting, this inventory will provide a critical baseline of
information for the ongoing work of the Review and should be
completed as soon as possible.
Please contact Elisabeth Cohen (phone: 456-5571) to provide
clearance information for the meeting next Wednesday.
Thank you.
Group 1
AIDS Action Council
American Council of the Blind
American Foundation for the Blind
American Psychiatric Association
(addition)
American Psychological Association
American Rehabilitation Association
16/16
Bazelon Center for Mental Health Law
Center for
(Sylvia Walker)
(addition)
Justice for All (Justin Dart)
(name change)
Kennedy Foundation
National Association of Developmental Disabilities Councils
NAPAS
National Council on Independent Living
National Federation of the Blind
Project Accessability
UCPA
National Mental Helath Consumer Self Help Clearing House
Group 2
The Arc
DREDF
(Pat Wright - DC office)
DAV
PVA
Gallaudet University
National Association of the Deaf
National Alliance for the Mentally Ill
Self-Help for Hard of Hearing People
AOTA
National Mental Health Association
Peter Thomas
National Parent Network on Disabilities
Easter Seals (name change from AAUAP)
Center for Psychiatric Rehabilitation
Usi Mulhpu Silenosis
Groups that should be consulted but won't come
ADAPT
Disability Rights and Voter Education (Fred Faye)
WID
sign language interpreter?
braille?
call Elizabeth
02/07/95 18:33
001
Post-It brand fax transmittal memo 7671
# of pages
RD
To Co. Dibbie Fine
From
Co. Lynn
Dept.
Phone #
Fax #
62983
Fax #
Meeting of the Work Group Convenors
National Disability Policy Review
February 8, 1995
Room 211, old Executive Office Building
Agenda
Welcome and Introduction
Carol H. Rasco
Next Steps:
,Susan
Adult Employment
judy't
Each Convenor will
School-to-Work
be asked to make
Accommodations
brief remarks
Childhood
Guiding Principles
Bob Williams to lead
discussion of substance,
process and time-line
Inventory of Agency Program
Lisa Fairhall, Richard
Information
Green & Lynn Margherio
Advocacy Groups
Diana Fortuna & Lynn
Margherio
02/07/95
18:33
002
FEB-07-1995 17:20 FROM ADD
TO
94567028 P.02
To:
fax[Judy Heumann-OSERS, 9-205-9252]
internet[[email protected]]
fax [Liz Savage, 9-514-0293]
fax [Paul Miller-EEOC, 9-663-7101]
fax (Susan Daniels, 9-1-410-965-65031
[Speed Davis-Nat.Coun.Disab., 9-272-2022]
Kate [email protected]@ACF.WDC
Cc:
Judith [email protected]@OS.DC
Bcc:
From:
Bob [email protected]@ACF.WDC
Subject:
DPC Disability Policy Principles
Date:
Tuesday, February 7, 1995 16:59:29 EST
Attach:
Certify:
N
Forwarded by:
Note: Changes and additions made below are based on a
conversation with Dianna Fortuna and other DPC staff and are in
bold.
The fundamental role of governments in respect to individuals
with disabilities should be to assure the right of such persons
(citizens?) to enjoy full inclusion and integration in the
educational, economic, political, social and cultural mainstream
of American society. In practical terms, therefore, governments
must assure that people with disabilities have an equal
opportunity to exercise their full rights and responsibilities to
live as independently as possible; enjoy self-determination; make
choices; and, to be be productive throughout their lives. It is,
therefore, in the Nation's interest that public policies,
programs, benefits and activities affecting such individuals be
designed and implemented to:
o Provide strong, effective and fair enforcement of the
Americans with Disabilities Act, Title V of the Re-
habilitation Act, the Fair Housing Act Amendments, and the
Individuals with Disabilities Education Act to help end
discrimination against Americans with disabilities and
strengthen our Nation's communities and economy.
o Strengthen the capacities of such persons and assure that
needed services and supports are provided in a coordinated
fashion which maximizes their control over their own lives
and futures in the mainstream of American life.
0 Assure that any assistance provided to such a person is
carried out in an individualized manner, consistent with the
unique strengths, resources, priorities, concerns, choices,
abilities and capabilities of that individual.
o Support the efforts of families with children with
disabilities to raise their sons and daughters at home and
to include them in every facet of family and community life.
o Expand the ability and flexibility of States and local
governments to work directly with people with disabilities
and their families to fashion more effective and responsive
solutions to the challenges we face as a Nation.
02/07/95 18:34
003
FEB-07-1995 17:21 FROM ADD
TO
94567026 P.03
0 Improve access to the assistance, technology and supports
which enable these individuals to have greater control over
their lives and contribute more fully to their home, family,
school, work and community life.
o Design all programs and activities to be meet the needs of
the public and disability related needs of individuals with
disabilities.
o Make it pays for such citizens to work by creating
incentives rather than disincentives to work and to pursue
careers.
ID:
SEP 12494
22:02 No 002 P.02
DRAFT
MEMORANDUM FOR CAROL RASCO AND ALICE RIVLIN
FROM
Lisa Fairhall and Richard Green
Jeremy Ben-Ami and Stan Herr
SUBJECT
Draft Proposal for DPC/OMB Disability Task Force
Background
You have agreed to establish a joint DPC/OMB task force to examine issues
surrounding Federal and national responsibilities for providing assistance to and protecting the
rights of individuals with disabilities.
Below, we propose: a task force agenda, task force and support team composition, a
time frame for task force activities, and some first organizational steps. The questions we
have proposed to form the agenda for this Task Force are provisional; our initial
conversations with key individuals will seek to validate their inclusion in the agenda, to
determine what other issues must be addressed, and to set priorities for the Task Force.
1. PROPOSED TASK FORCE:AGENDA
The Task Force should be guided by the President's credo of supporting public and
private initiatives to enhance the independence and productivity of persons with disabilities.
The Task Force should answer, to the extent possible, the following questions, in order to
articulate and refine the Administration's overall disability policy:
National Disability Policy:
--
Can we articulate a national disability policy to animate or guide Federal law and
regulations?
--
What is the Federal role in a national disability policy? What is the rationale for each
specific Federal responsibility (e.g., constitutional right, insurance, indemnity, need)?
Do the scope and nature of the responsibilities differ based on age (children vs. adults)
or severity of disability?
What are the policies and realities in other countries (e.g., Sweden, Canada, Germany)
that may offer insight and direction to our policies and programs?
Federal Disability Programs:
ID:
SEP:
12:94
22:03 No.002 P.03
How are we meeting current responsibilities? What is the current array of programs?
What services/benefits are they providing? What values do they promote? How
delivered? To whom? What are the gaps and overlaps? How are the Federal
programs/services integrated with State and local government programs? Are there
exemplary State and local government programs? How can good practices be
disseminated/encouraged?
What do we know about the effect of each program and policy on recipients? What
data are we currently collecting in each area? What do we need to answer the impact
questions better?
Identifying and Implementing Change:
--
What changes are needed to program purposes and program structure to better meet
current Federal responsibilities? Are we currently identifying and reaching those
individuals in need of services? Are we providing the most effective array of services
and benefits for the costs incurred by each level of government, the individual, and the
private sector?
--
For those responsibilities identified but not addressed, what should be done, and by
whom?
--
Should we revise statutes and regulations to align definitions of disability across
programs? What specific impact would such revisions have on eligibility and
services? How can we make sense of eligibility criteria for various programs, to
minimize overlap and duplication of services and benefits, and ease administration and
assessment of program performance and move each program's focus towards
participant outcomes (e.g., enhanced independence, community integration, self-
sufficiency, greater productivity)?
--
Should we develop a legislative strategy to integrate cash benefit programs with
service programs to promote beneficiary independence and self sufficiency and reduce
the need for benefits? To what extent can we test new approaches through pilot or
demonstration programs before moving to national implementation?
Federal Government as a Model:
How well does the Federal Government serve as a model, in both employment policies
and practices, and customer service? How can this be improved for the benefit of job
applicants, employees, customers, and members of the general public with disabilities?
Program/Issue Areas:
Program areas to be reviewed would include (but need not be limited to):
ID
SEP 12'94 22:03 No.002.P.04
services to infants and toddlers
education programs
cash benefit programs (insurance, income assistance, and retirement)
medical and other health programs
social services and family supports
school-to-work transitional services
rehabilitation services and training
employment services
transportation services
housing
advocacy services, information and referral
personal assistance
civil rights enforcement
services for older persons
technology-related assistance
prevention programs
The work product should take the form of a report outlining the Task Force's answers
to these questions, and recommendations for further action, including actions the
Administration can take through changes to regulation or funding priorities, grants and
contracts, administration of the Federal Government's own internal activities (e.g.,
employment and customer service practices), or legislative proposals.
П. TASK FORCE COMPOSITION
We recommend the following structure for the task force:
-
The Task Force would be jointly directed by the White House and OMB, but would
rely heavily on agency participation.
-
The Task Force would be headed by the two of you, as "co-chairs."
--
Each of the key agencies with an interest in disability issues (which would include at
least ED, HHS, SSA, DOD, VA, OPM, DOL, HUD, and the Treasury) would be
invited to participate at the policy level through designees of the agency heads,
presumably Assistant Secretaries responsible for key program and policy areas. Where
appropriate, more than one Assistant Secretary could be designated for an agency.
We recommend the following structure for the support team:
-
Designate "co-team leaders" from OPD/DPC and OMB staff - these are the people
who would be responsible for making the task force happen. The Co-team leaders
would be responsible for organizing Task Force meetings and for directing the work of
the support team.
ID:
SEP 12'94 22:04 No 002 P.05
-- Designate as additional support team members OPD/DPC and OMB staff who are
currently involved in the disability area. For OMB, PADs would designate the
examiners responsible for accounts funding key disability programs to be members of
the support team. The Administrator of OIRA should also designate one or more staff
to join the team.
-
The agencies would be asked to designate staff to participate as members of the
support team. We would expect each policy official to designate two or three people
from their areas to be members of the team.
--
Even though this could result in a fairly large number of staff, we envision the support
team dividing into small subgroups, each tasked with researching specific areas along
the lines of the proposed agenda.
We recommend that the Task Force utilize the following for advice:
-
Draw on the expertise of the three Presidential advisory councils -- the President's
Committee on Employment of People with Disabilities, the National Council on
Disability, and the President's Committee on Mental Retardation - in the design of the
agenda and how it will be carried out. These councils could also provide the forum
(formally or informally) to tap disability community sentiments.
!
Invite the Architectural and Transportation Barriers Compliance Board, the Equal
Employment Opportunity Commission, and the Federal Communications Commission
to participate as appropriate.
--
Individuals with disabilities, members of their families, and their advocates should be
consulted regularly (formally and informally).
III. TIME FRAME FOR ACTION
We recommend that the Task Force be constituted, the support team named, and the
agenda (see above) agreed on by the end of October. The Task Force could be initiated at a
meeting of the DPC, co-chaired by the two of you, with other appropriate department or
agency heads invited. We recommend that the timeframe for this Review be lengthy enough
to ensure a comprehensive and thoughtful deliberative process, and to analyze and synthesize
the findings of the Task Force and support group and develop recommendations. The
specific dates for interim and final reports should be determined by the Task Force. The Task
Force itself would meet at least once every three months.
III. NEXT STEPS
ID:
SEP 12'94 22:04 No.002 P.06
This National Disability Policy Review is a significant undertaking. of tremendous
importance to the disability community, and no doubt will be subject to a great deal of
comment and scrutiny both in and out of the Administration. To get the review off on the
right foot, we propose devoting time in September and early October to laying the
groundwork internally and externally through a series of meetings outlined below, before the
Task Force Team begins its work. This outreach and initial leg-work will improve our design
and create good will by informing and involving people on the front end and ensuring
avenues for communication and input throughout the process. We will take care to make
very clear that the suggestions received from this outreach process will be considered in the
development of the agenda, but that we do not expect every recommendation to be included.
Pending your review and approval, we would propose the following steps and
schedule:
Mid-late September: We (working as a kind of DPC/OMB staff "advance team")
would hold preliminary meetings with administration officials at key agencies to explore the
idea of a Review, brainstorm about its structure, work plan, and agenda. With help from
Mike Lux in the Office of Public Liaison and from the Office of Legislative Affairs, we
would identify and meet with key advocates and Hill staff to give them advance notice and
discuss avenues for their input and consultation throughout the Review.
We would also meet with the three existing Federal advisory groups whose mandate is
to provide advice to the President in this area: the President's Committee on Employment of
People with Disabilities, the National Council on Disability, and the President's Committee on
Mental Retardation.
We believe it is vital to the success of the Review to ensure that there is strong
ongoing communication concerning the Review with members of Congress and their staff,
advocates, and persons with disabilities. The three national commissions mentioned provide a
logical starting point for such communication. Based on meetings with those commissions
and their staffs, the Task Force will include in its October recommendations a plan for
outreach and communication regarding the Review.
Early October: The two of you present the idea for a National Disability Policy
Review to a special meeting of the Domestic Policy Council, also attended by other
appropriate department and agency heads (e.g., Treasury, Defense), perhaps prefaced by an
abridged presentation of material and questions from the OMB Disability Review prepared
this summer. You ask Secretaries to designate members of the Task Force at the Assistant or
Deputy Assistant Secretary level, as well as staff level support team who will be able to
devote some time to this effort. The Task Force will also be charged with providing periodic
updates and interim reports to both the DPC and OMB.
Late October: Convene the first meeting of the Task Force, chaired by the two of
you, where you provide the charge to the group, and present it with a proposed agenda and
workplan, built on the groundwork laid at the individual agency meetings in September. You
ID:
SEP 12'94
22:05 No.002 P.07
will ask the members to react to the proposed work plan and agenda by the middle of the
month.
Early November: Convene the staff level support team, to discuss and synthesize Task
Force members' comments on the proposed agenda and work plan, and to prepare for Task
Force meeting in late October.
At this point, the two of you may wish to review the proposed agenda, and adjust the
list of issues presented so as not to risk committing the Review to more than you think it can
achieve. This would help to keep expectations of what the Review will accomplish within
manageable bounds.
Late November: The Task Force meets to discuss and finalize agenda, workplan, and
staff structure of the Review.
THE WHITE HOUSE
WASHINGTON
Meeting of National Disability Policy Review Team
November 30, 1994, 2:00 - 3:30
Room 248 OEOB
Agenda
Welcome and Introductions
Carol H. Rasco
The White House
Framework for the Review
Carol H. Rasco
Alternative Policy Tracks
Full Group
Formation of Issue Groups
Full Group
Consultation Tracks
Full Group
Next Steps and Closing
Carol H. Rasco
National Disability Policy Review
Work Group Assignments
November 30, 1994
WORK GROUP TITLE:
SIGN- IN -
MEMBERS:
NAME/ AGENCY
PHONE
1.
JEREMY BEN-Am
456-5584
2.
Wendy Taylor / OMB
395-7316
3.
Laurel Illstrn/ omB
395-7809
4.
Naney Ebersole /DOT
366-4864
5. IRA LASTER JR/DOT
366-4855
6.
FRANK KRESi DOT
366-4544
7.
DAVID ELLWOOD HHS
690-7858
8.
Jeffrey Levi
ONAP
632-1090
9.
Roberta Achtenberg HVD
708-4252
10.
CARdyn W. Colvin
SSA
965-4512
11. Ron GLASER TREASURY
622-1160
12. BERNMO Andersa LABOR
219-6191
13. DENN. DUFFY
VA
212-8125
14. Deval Patrick
DOJ
514-2151
15. Isabel Sawhill
UMB
395-4844
16. Stan Hen
PPC
456-5570.
17. RICKGRAND
USDA
720-7173
18 Connie GARNER
Dept. of ED.
205-8124
19. Judy Heiman
Dep't of Ed
2055465
20, Insan Daniel
SSA
410-965-3424
21. michael GRANT
OPM
(202) 606-2086
22. 61256vala
DUJ
514 4274
23. PAUL STEVEN MILLER / EEOC
663-4036
24, Debbie Fine I wH OPL
456-2972
25. RICHARD GREEN /oms
395-7398
26. LISA FAIRIAL /OMB
395-7766
27. Carolyn GUNNEY/Commerce
482-2779
28 Rob,n Stone / DWHS
690-6443
29. Ken McGILL / SSA
410-965-3988
30 Claiborne HAUGHTON
For FRED PANG, DEPARTMENT
(703) 695-0105
DEFENSE
6906904
31. Bobwilliams/AHs
MEMORANDUM FROM JEREMY BEN-AMI AND STANLEY S. HERR
TO: DESIGNEES TO THE NATIONAL DISABILITY POLICY REVIEW
DATE: November 22, 1994
PRELIMINARY WORK PLAN
Discussion Draft Only
National Disability Policy Review
December 1994 - February 1995
Background
In response to initial memoranda suggesting a National
Disability Policy Review, the Domestic Policy Council received
comments and input on the Review's proposed agenda and work plan.
We have met or will soon be meeting with all the Departmental
designees. We have consulted key advocates in the disability
community, Congressional staffers, the heads of three
presidential advisory committees in the disability field, and
other experts. In addition, we have made a presentation on the
Review to the full membership of the President's Committee on
Mental Retardation, reached out to the Administration's
appointees with disabilities, and begun to obtain background
policy papers.
Oral and written responses have emphasized that such a
review is important, overdue, and should involve significant
input from individuals with disabilities and their advocates.
The comments also stressed the need to be realistic in setting
goals and to focus on some shorter-term achievable goals while
simultaneously engaging in a long-term policy process.
Based on these comments, we have outlined in the following
pages key options and questions to be discussed by the Review
Team on November 30th as it develops a proposed work plan for the
first three months of the Review. We received a great deal of
feedback that we should conduct our work in phases, focusing
initially on some things and later on others. Although this
discussion draft suggests possible ways of phasing the work, the
key decisions of whether and how to stagger the work of the Team
are left open for discussion on the 30th. We do hope that at
that meeting or soon thereafter issue groups will be formed,
members will volunteer for those groups, and concrete assignments
with deadlines will be made.
Please review the attached material in advance of the
meeting, prepare your concrete suggestions, and be ready to
identify those tasks in which you and your staff will be able to
participate. Thank you for your constructive engagement in this
process so far.
1
Work Plan
This draft Work Plan proposes proceeding on two parallel
tracks for the next three months. On the "Policy" track, the
Team will break into a series of issue groups to address areas
agreed to on the 30th. On the "Consultation" track, we propose
outreach and coordination with the advocacy community,
Congressional staff, and the Presidential committees. These two
tracks are outlined in more detail below, and a timetable
follows.
I. POLICY TRACK
Two possible approaches to the work of the Review have been
proposed. At the meeting on the 30th, we would like to focus
discussion on the potential frameworks described below, and any
additional ones that Review Team members would like to suggest.
Within each framework, there is the further question of whether
and how to phase the work - i.e., do we start all of the sub-
groups working at once or do we begin some sooner than others.
A. Framework A: The "Life Cycle" Approach
One approach to the Review is to set up a series of
interagency subgroups oriented around the different phases in
people's lives - so that the full range of policies, programs and
issues affecting people of different age groups can be looked at
holistically. There are at a minimum, three clear subgroups that
could be set up, but there might be more:
1. Childhood --- This subgroup would look at the range of
educational, income benefit, and service programs available
for children, from birth to age 18. This group would be
particularly timely given the creation of the Childhood
Disability Commission to look at the SSI program and the
need to develop an administration policy that anticipates or
responds to the findings of the Commission. Also, the
Individuals with Disabilities Education Act (IDEA) is up for
reauthorization this year and will certainly raise important
policy issues.
2. Transition to Adulthood -- This subgroup would explore a
range of issues related to the transition to adulthood from
education programs that serve people until they are 18 (but
sometimes 21). "Transitions" planning involves helping
people to find employment, further schooling, independent or
assisted living arrangements, and other activities that
maximize their potential. There is a small group that has
already begun meeting on this issue, and it might make sense
to fold its work into the Review.
3. Adulthood -- This subgroup would focus on policies affecting
2
adults. A work group in this area would almost certainly
focus on the problems associated with the chronic
unemployment and underemployment of persons with
disabilities and review policy options for helping people
enter -- and remain -- in the workforce.
In addition, it might make sense to break into some narrower
groups, for instance, having a group on infants and toddlers, and
one on aging and the elderly.
B. Framework B: The Issue Cluster Approach
An alternative framework for the Review is to break into
issue-based subgroups that would look at such areas as:
work and employment policies
housing
technology
transportation
childhood issues
administrative coordination of, for instance, applications
for services, eligibility, services, and consumer
information
A more complete list of potential issue clusters appears on
pages 2 and 3 of the September 30th memorandum. The selection of
issue clusters for the Review would be made by the Team on
November 30th. Each subgroup would still be an interagency
effort looking across departmental and program lines but might
have a narrower substantive and strategic focus.
The Team might choose to adopt some of Framework A and some
of Framework B and form some "Life Cycle" groups and some issue-
based groups.
C. Discussion on November 30th
The key issues for discussion and decision on November 30th
will be:
What general framework does the Team want to adopt to guide
its work? Does the life-cycle or the issue-based approach,
or some combination, make sense?
Given the general framework adopted, what is the best way to
break into subgroups?
Do we want to form all the subgroups at this point, and if
so, should they all begin work now, or should we phase them
in over the coming months?
3
We hope that the end result of the meeting on the 30th will
be that the Review Team forms several interagency groups, each
chaired by a member of the Review Team, which any Review Team
member may join. Decisions about groups can be revisited
throughout the Review, as appropriate. A decision not to include
an issue in the first phase should not be taken as a reflection
of its importance as an issue.
D. Other Subgroups
In addition to the groups addressing policy areas as
discussed above, two other suggestions have been made for
potential subgroups for the Review:
1. Guiding Principles -- There was significant agreement that
the Review would benefit from the early development of a set
of principles articulating the values guiding the Review.
This statement of principles would not predetermine the
policies to be developed through the Review, but instead
would guide Review Team members and staff in their work. It
might eventually be the preamble to the Review's final
report, but it might also be significantly modified along
the way.
These guiding principles would draw not only on
Administration policy and statements, speeches and comments
by the President, but on policies incorporated in recent
legislation in this area.
We propose forming a group on the 30th, charged with
producing a short document not a lengthy discourse in
consultation with all Review Team members and broadly with
consumers and advocates. In addition to producing a draft
for comment by the Review Team, the group would also propose
a mechanism for obtaining broad public comment and a
timetable for its public dissemination.
2. Federal Disability Accommodations Working Group -- In
August, the DPC formed a Federal Disability Accommodations
Working Group, which has just started to examine how the
federal government can be a model of making reasonable
accommodations that will benefit its customers, job
applicants, employees, and the general public.
The work of this group could lead to short-term achievable
administrative recommendations that would help demonstrate
the Administration's commitment in this area.
II. CONSULTATION TRACK
4
We would like to proceed on several fronts externally as the
policy groups are formed to begin their work.
A. Presidential Committees
We will continue to work closely with the Presidential
committees to provide them the opportunity to be integrally
involved in the Review. We hope the Committees will be
interested in exploring the same policy areas as the Review Team
and in meeting with the Review Team members and gathering public
input on these policy questions.
B. Advocacy Organizations
The policy groups should each meet with a wide range of
organizations representing the interests of people with
disabilities to give them the opportunity to provide information
and input into their work.
C. Legislative
We will also meet with legislative staff from both Houses
and both parties to keep them fully apprised of the work of the
Review.
TIMETABLE
A possible timetable would be as follows:
November 30
Issue groups formed
Early January
Initial work products available for
review
12/19
Guiding Principles: Draft statement and
Children t
plan for public comment
Other Subgroups: Draft scope of work and
all
timetable for each subgroup
Second week January
Second meeting of the Review Team to
review progress of issue groups and
discuss draft of Guiding Principles.
5
Overall scope of work and timetable for
the entire Review to be discussed.
Early February
Initial background papers completed.
Key policy questions identified.
Review Team meets to determine what
policy options each subgroup should
pursue and how.
5
67028
Groups
AIDS Action Council
American Council of the Blind
American Foundation for the Blind
AOTA
American Psychiatric Association
(addition)
American Psychological Association
American Rehabilitation Association
The Arc
Bazelon Center for Mental Health Law
Center for
(Sylvia Walker)
(addition)
DAV
DREDF
(Pat Wright - DC office)
Easter Seals
(name change from AAUAP)
Gallaudet University
Justice for AIT (Justin Dart)
(name change)
Kennedy Foundation
National Association of Developmental Disabilities Councils
National Association of the Deaf
National Alliance for the Mentally Ill
NAPAS
National Council on Independent Living
National Federation of the Blind
National Head Injury Foundation
RM
National Mental Health Association
National Parent Network on Disabilities
Project Accessability
PVA
Peter Thomas
Self-Help for Hard of Hearing People
UCPA
will
Groups that should be consulted but won't come
ADAPT Bebkolia
Center for Psychiatric Rehabilitation
Disability Rights and Voter Education (Fred Faye)
7)or
National Mental Helath Consumer Self Help Clearing House
WID
dec des
provider
medital were
NASW?
02/13/95 17:22
006/006
Arthur Wilson
Executive Director
Disabled American Veterans
807 Maine Avenue, SW
Washington, D.C. 20024
p-554-3501 f-554-3581
Tony Young or
Pat Morrisey,
Vice President, Government Relations for Comm. Programs
American Rehabilitation Association (Amer. Rehab.)
1350 Eye Street, NW, #670
Washington, D.C. 20005
p-789-5700
Dr. George Zitnay
President
National Head Injury Foundation
1776 Massachusetts Avenue, NW
Suite 100
Washington, D.C. 20036
p-202/296-6443 f-202/296-8850
1/4/95
02/13/95
17:21
O
002/006
Amer Bychalvic Assu
Jay Culler
*
Sylva Walker
Howard On
Susan Ames-Zierman
Executive Director
National Association of Developmental Disabilities Councils
1234 Massachusetts Avenue, NW
Suite 103
Washington, D.C. 20005
p-347-1234 f-347-4023
Mike Auberger
Co-Director
ADAPT
201 S. Cherokee
woncere
Denver, Colorado 80223
p-303/733-9324 TDD-303/733-0047
f-303/733-6211
3 3) 3
Nancy Bloch
Executive Director
National Association of the Deaf
NAPAS?
814 Thayer Avenue
Silver Spring, Maryland 20910
p-301/587-1788 TDD-301/588-9551
f-301/587-1791
Bob Bchlman
National Alliance for the Mentally Ill (NAMI)
2101 Wilson Boulevard
Suite 302
Arlington, Virginia 22201
p-703/524-7600
f-703/524-9094
Bon serving agail
Dan Bross, Executive Director OR
Aimee Berenson, Legislative Counsel
AIDS Action Council
Suite 700
Judy
1875 Connecticut Avenue, NW
Washington, D.C. 20009
p-986-1300 x.11 f-986-
DF
Judi Chamberlin
Center for Psych Rehab
wind
Eliz Cohen
Boston University
came
4565571
730 Commonwealth Avenue
Boston, Massachusetts 02215
&
p-617/353-3549 f-617/353-7700
Real Justin Health Dart Care for All Jusice for All
907 6th Street, SW
Apt. 516C
Washington, D.C. 20024
p-202/488-7684 TDD-202/484-1370
02/13/95 17:21
003/006
Curt Decker
National Association of Protection & Advocacy Systems (NAPAS)
900 2nd Street, NE, #211
Washington, D.C. 20002
p-408-9514
Steve Eidelman
Kennedy Foundation
1325 G Street, N.W.
Washington, D.C. 20005-4709
p-824-0214 f-824-0200
Frederick Fay
President
won we
Disability Rights and Voter Education
able be cause
2054 Main Street
Concord, Massachusetts 01742
p-508/371-0992 f-508/369-5544
Jim Gashel
Government Affairs Director
National Federation of the Blind
1800 Johnson Street
Baltimore, Maryland 21230
p-410/659-9314 f-410/685-5653
Al Guida, Executive Director OR
Elizabeth Burrows
National Mental Health Association
1021 Prince Street
Alexandria, Virginia 22314-2971
Anne-Marie Hughey
Executive Director
National Council on Independent Living
2111 Wilson Boulevard
Suite 405
Arlington, Virginia 22201
p-703/525-3406 f-703/525-3409
Dr. II. King Jordan
President
President's Office
Gallaudet University
800 Florida Avenue, NE
Washington, DC 20002-3695
p-651-5005 f-651-5508
Joe Manes
Bazelon Center for Mental Health Law
1101 15th Street, NW
Suite 1212
Washington, D.C. 20005
p-467-5730 TDD-898-1670 '-223-0409
02/13/95 17:22
004/006
Gordan Mansfield
Executive Director/ Director of Advocacy
Paralyzed Veterans of America
801 18th Street, NW
Washington, D.C. 20006
p-872-1300 f-785-4452
Paul Marchand
Director, Government Relations
The Arc
1522 K Street, NW
Suite 516
Washington, D.C. 20005
p-785-3388 f-467-4179
Scott Marshall
Director, Governmental Relations OR
Denise Rozell, Government Relations Representative
American Foundation for the Blind
1615 M Street, NW
Washington, D.C. 20036
p-457-1487 f-457-1492
Arlene Mayerson
Put
Legal Director
DREDF (Disability Rights Education and Defense)
2212 5th Street
Berkeley, California 94710
p-510/644-2225 f-510/841-8645
Patty McGill Smith
Executive Director
National Parent Network on Disabilities
1600 Prince Street
Suite 115
Alexandria, Virginia 22314
p-703/684-6763 f-703/836-1232
Chris Metzler
Senior Legislative Representative
American Occupational Therapy Association (AOTA)
1383 Piccard Drive
Rockville, Maryland 20849
p-301/948-9626
Oral Miller
Executive Director
American Council of the Blinc
1155 15th Street, NW
Suite 720
Washington, D.C. 20005
form
p-467-5081 f-467-5085
02/13/95 17:22
2005/006
Michael Morris
United Cerebral Palsy Associations
1522 F. Street, NW
Suite 1112
Washington, D.C. 20005
p-842-1266 f-842-3519
Katy Neas
Gater seal
American Association of University Affiliated Programs (AAUAP)
8630 Fenton Street, #410
Silver Spring, Maryland 20910
p-301/588-8252
Becky Ogle
Project: AccessAbility
625 Sisters Lane, Suite 200
Alexandria, Virginia 22314-1171
p-703/836-6263 f-703/836-6730
Janet O'Keeffe
Public Policy Office
American Psychological Association (APA)
750 First Street, NE
Washington, D.C. 20002
p-336-5934
Ed Roberts
President
World Institute on Disability
510 16th Street
Oakland, California 94612
p-510/763-4100 (V/TDD) f-510/763-4109
Joseph Rogers
Director
wan't
National Mental Health Consumer Self Help Clearing House
can
311 South Juniper Street
Room 902
Philadelphia, PA 19107
p-215/735-2465, 6082 x.312 f-215/735-0275
Donna Sorkin
Executive Director
Self-Help for Hard of Hearing People
7800 Wisconsin Avenue
Bethesda, Maryland 20814
p-301/657-2248 f-301/913-9413
Peter Thomas, Esquire
AAPMR, ASIA, ACRM, ASOTAPA, ACA, NARRTC, NOD
1275 Pennsylvania Avenue, NW
3rd Floor
Washington, D.C. 20004
p-466-6550
THE WHITE HOUSE
WASHINGTON
December 16, 1994
To all participants in the 11/2/94 meeting:
Thank you for attending the meeting held last month to discuss
the National Disability Policy Review. We have now launched that
Review, and we plan to schedule a second meeting with you in the
near future.
Following our November meeting and the first meeting of the
Review Team, the Team reached an agreement to initially divide
into the following five working groups: Accommodations,
Children's Issues, Employment of Working-Age Adults, Guiding
Principles, and School-to-Work Transition. While we are
beginning the work in these five broad areas, we are interested
to know your thoughts and are open to further suggestions.
As we discussed, we want to expand our outreach in an effort to
involve a larger number of groups in the Review process. We have
enclosed what we hope is a more thorough and inclusive list of
key organizations to contact regarding future meetings and
briefings. It includes the original ten groups that participated
in November's meeting and has been expanded with the assistance
of some of the participants in that meeting. Please contact
Elisabeth Cohen (202-456-2846) if you have any additions or
comments.
At our next meeting, representatives of the five work groups
listed above will give presentations to familiarize you with our
initial proceedings and discuss progress to date. Thanks again
for attending the first meeting, and we look forward to working
with you.
Sincerely,
And Ben-Ami
Stan
Stanley S. Herr
Chief of Staff
Kennedy Public Policy Fellow
Domestic Policy Council
Domestic Policy Council
Susan Ames-Zierman
Executive Director
National Association of Developmental Disabilities Councils
1234 Massachusetts Avenue, NW
Suite 103
Washington, D.C. 20005
p-347-1234 f-347-4023
Mike Auberger
Co-Director
ADAPT
201 S. Cherokee
Denver, Colorado 80223
p-303/733-9324 TDD-303/733-0047
f-303/733-6211
Nancy Bloch
Executive Director
National Association of the Deaf
814 Thayer Avenue
Silver Spring, Maryland 20910
p-301/587-1788 TDD-301/588-9551
f-301/587-1791
Dan Bross, Executive Director OR
Aimee Berenson, Legislative Counsel
AIDS Action Council
Suite 700
1875 Connecticut Avenue, NW
Washington, D.C. 20009
p-986-1300 x.11 f-986-
Judi Chamberlin
Center for Psych Rehab
Boston University
730 Commonwealth Avenue
Boston, Massachusetts 02215
p-617/353-3549 f-617/353-7700
Justin Dart
Real Health Care for All
907 6th Street, SW
Apt. 516C
Washington, D.C. 20024
p-202/488-7684 TDD-202/484-1370
Curt Decker
National Association of Protection & Advocacy Systems (NAPAS)
900 2nd Street, NE, #211
Washington, D.C. 20002
p-408-9514
Steve Eidelman
Kennedy Foundation
1325 G Street, N.W.
Washington, D.C. 20005-4709
p-824-0214 f-824-0200
Frederick Fay
President
Disability Rights and Voter Education
2054 Main Street
Concord, Massachusetts 01742
p-508/371-0992 f-508/369-5544
Jim Gashel
Government Affairs Director
National Federation of the Blind
1800 Johnson Street
Baltimore, Maryland 21230
p-410/659-9314 f-410/685-5653
Al Guida, Executive Director OR
Elizabeth Burrows
National Mental Health Association
1021 Prince Street
Alexandria, Virginia 22314-2971
Anne-Marie Hughey
Executive Director
National Council on Independent Living Center
2111 Wilson Boulevard
Suite 405
Arlington, Virginia 22201
p-703/525-3406 f-703/525-3409
Dr. I. King Jordan
President
President's Office
Gallaudet University
800 Florida Avenue, NE
Washington, DC 20002-3695
p-651-5005 f-651-5508
Joe Manes
Bazelon Center for Mental Health Law
1101 15th Street, NW
Suite 1212
Washington, D.C. 20005
p-467-5730 TDD-898-1670
f-223-0409
Gordan Mansfield
Executive Director/ Director of Advocacy
Paralyzed Veterans of America
801 18th Street, NW
Washington, D.C. 20006
p-872-1300 f-785-4452
Paul Marchand
Director, Government Relations
The Arc
1522 K Street, NW
Suite 516
Washington, D.C. 20005
p-785-3388 f-467-4179
Scott Marshall
Director, Governmental Relations OR
Denise Rozell, Government Relations Representative
American Foundation for the Blind
1615 M Street, NW
Washington, D.C. 20036
p-457-1487 f-457-1492
Arlene Mayerson
Legal Director
DREDF (Disability Rights Education and Defense)
2212 6th Street
Berkeley, California 94710
p-510/644-2225 f-510/841-8645
Patty McGill Smith
Executive Director
National Parent Network on Disabilities
1600 Prince Street
Suite 115
Alexandria, Virginia 22314
p-703/684-6763 f-703/836-1232
Chris Metzler
Senior Legislative Representative
American Occupational Therapy Association (AOTA)
1383 Piccard Drive
Rockville, Maryland 20849
p-301/948-9626
Oral Miller
Executive Director
American Council of the Blind
1155 15th Street, NW
Suite 720
Washington, D.C. 20005
p-467-5081 f-467-5085
Michael Morris
United Cerebral Palsy Associations
1522 K Street, NW
Suite 1112
Washington, D.C. 20005
p-842-1266 f-842-3519
Katy Neas
American Association of University Affiliated Programs (AAUAP)
8630 Fenton Street, #410
Silver Spring, Maryland 20910
p-301/588-8252
Becky Ogle
Project: AccessAbility
625 Sisters Lane
Suite 200
Alexandria, Virginia 22314-1171
p-703/836-6263 f-703/836-6730
Janet O'Keeffe
Public Policy Office
American Psychological Association (APA)
750 First Street, NE
Washington, D.C. 20002
p-336-5934
Ed Roberts
President
World Institute on Disability
510 16th Street
Oakland, California 94612
p-510/763-4100 (V/TDD) f-510/763-4109
Joseph Rogers
Director
National Mental Health Consumer Self Help Clearing House
311 South Juniper Street
Room 902
Philadelphia, PA 19107
p-215/735-2465, 6082 x.312 f-215/735-0275
Donna Sorkin
Executive Director
Self-Help for Hard of Hearing People
7800 Wisconsin Avenue
Bethesda, Maryland 20814
p-301/657-2248 f-301/913-9413
Peter Thomas, Esquire
AAPMR, ASIA, ACRM, ASOTAPA, ACA, NARRTC, NOD
1275 Pennsylvania Avenue, NW
3rd Floor
Washington, D.C. 20004
p-466-6550
Arthur Wilson
Executive Director
Disabled American Veterans
807 Maine Avenue, SW
Washington, D.C. 20024
p-554-3501 f-554-3581
Tony Young or
Pat Morrisey,
Vice President, Government Relations for Comm. Programs
American Rehabilitation Association (Amer. Rehab.)
1350 Eye Street, NW, #670
Washington, D.C. 20005
p-789-5700
Dr. George Zitnay
President
National Head Injury Foundation
1776 Massachusetts Avenue, NW
Suite 100
Washington, D.C. 20036
p-202/296-6443 f-202/296-8850
12/16/94
The following represents the collective thoughts and creative
energies of Judy Heumann, Howard Moses, Susan Daniels, Liz
Savage, Paul Miller, Andy Imp
Speed Davis, Kate Warren and
myself. It is meant to be a point of departure rather than a
final product. Thank you! Bob Williams
The fundamental role of governments in respect to individuals
with disabilities should be to assure the right of such persons
eitizens? to enjoy full inclusion and integration in the
educational, economic, political, social and cultural mainstream
of American society. In practical terms, therefore, governments
must assure that people with disabilities have an equal
opportunity to live as independently as possible; enjoy self-
determination; make choices; and, to be be productive throughout
their lives. It is, therefore, in the Nation's interest that
public policies, programs, benefits and activities affecting such
individuals be designed and implemented to:
Provide strong, effective and fair enforcement of the
Americans with Disabilities Act, Title V of the Re-
habilitation Act, the Fair Housing Act Amendments, and the
Individuals with Disabilities Education Act to help end
discrimination against Americans with disabilities and
strengthen our Nation's communities and economy.
O Strengthen the capacities of such persons and assure that
needed services and supports are provided in a coordinated
fashion which maximizes their control over their own lives
and futures in the mainstream of American life.
O Assure that any assistance provided to such a person is
carried out in an individualized manner, consistent with the
unique strengths, resources, priorities, concerns, choices,
abilities and capabilities of that individual.
?
O Support the efforts of families with children with
disabilities to raise their sons and daughters at home and
to include them in every facet of family and community life.
Add bullet 20', all
O Improve access to the assistance, technology and supports
hearoes
which enable these individuals to have greater control over
their lives and contribute more fully to their home, family,
school, work and community life.
O Assure that qualified individuals with disabilities have
the opportunity to achieve equally effective results in all
programs and activities by insuring such support is
universally designed to meet the needs of the public and
disability related needs as well.
O Make it pays for such citizens to work by creating
incentives rather than disincentives to work and to pursue
careers.
THE WHITE HOUSE
WASHINGTON
FAX TO MEMBERS OF THE NATIONAL DISABILITY POLICY REVIEW
Distribution:
Roberta Achtenberg
Bernard E. Anderson
Gary Blumenthal
Carolyn Colvin & Susan Daniels
Speed Davis
Dennis Duffy
David T. Ellwood & Bob Williams
Patsy Fleming
W. Scott Gould
Michael A. Grant
Judith Heumann
James R. Lyons
Frank Kruesi
Paul S. Miller
Fred Pang
Larry Parks
Deval Patrick
TOTAL NUMBER OF PAGES INCLUDING COVER: 9
CC: Lisa Fairhall, Richard Green, Diana Fortuna, Lynn Margherio,
Joe Stiglitz, Debbie Fine
THE WHITE HOUSE
WASHINGTON
January 18, 1995
MEMORANDUM TO: Members of the National Disability Policy Review
Team
FROM:
Carol Rasco CHR
Assistant to the President for
Domestic Policy
Alice Rivlin
Director
Office of Management and Budget
SUBJECT:
Next Steps for the Review
We are writing to update you on the progress of the National
Disability Policy Review.
At the end of November, the Review Team formed five work groups:
Guiding Principles, Accommodations, Children's Issues, Employment
of Working-age Adults and School-to-Work Transitions. Each of
these groups has been meeting to begin to set goals and to
identify short and longer-term policy objectives.
Based on your comments, we have revised the workplan which you
will find attached. You will also find attached a request for
agency program information on federal programs for people with
disabilities. This will provide a critical baseline of
information for the ongoing work of the Review. Please send a
completed response to Lisa Fairhall (phone: 395-7766/fax: 395-
4875) or Richard Green (phone: 395-7398/fax: 395-1596) at the
Office of Management and Budget no later than January 27. Please
contact either of them if you have any questions about content or
format. OMB will compile the information and make it available
to the Review Team in early February.
The next full Review team meeting will be held on February 22
from 2:00 - 3:30 pm in Room 248 Old Executive Office Building to
review the final draft of the guiding principles.
Finally, you should be aware that Stan Herr has returned to the
University of Maryland. The two DPC staff members who will be
coordinating the staff work of the Review with Lisa and Richard
are Lynn Margherio (456-5561) and Diana Fortuna (456-5570). You
should feel free to contact either of them with any questions you
may have.
PRELIMINARY WORK PLAN
Discussion Draft Only
National Disability Policy Review
January 18, 1995 -- Draft # 3
Background
In response to initial memoranda suggesting a National
Disability Policy Review, the Domestic Policy Council received
comments and input on the Review's proposed agenda and work plan.
We have met with all the Departmental designees, first in small
groups and twice as a full team. We have consulted key advocates
in the disability community, Congressional staffers, the heads of
three presidential advisory committees in the disability field,
and other experts. In addition, we have made a presentation on
the Review to the full membership of the President's Committee on
Mental Retardation, reached out to the Administration's
appointees with disabilities, and begun to obtain background
policy papers.
Oral and written responses have emphasized that such a
review is important, overdue, and should involve significant
input from individuals with disabilities and their advocates.
The comments also stressed the need to be realistic in setting
goals and to focus on some shorter-term achievable objectives
while simultaneously engaging in a long-term policy process.
On November 30th, the Review Team met to develop a proposed
work plan for the first three months of the Review. On December
21, the Team met to discuss a set of Guiding Principles and
additional progress to date. Based on the agreements reached at
this meeting, we have revised our original draft of the work
plan. The following pages outline a rewritten version
highlighting the conclusions of both meetings and laying out the
issue groups formed and specific assignments.
1
Work Plan
This draft Work Plan proposes two parallel tracks for work
during the next three months. On the "Policy Track, work groups
will meet and address the issues outlined below. At the same
time, the "Consultation Track" will engage in outreach and
coordination with the advocacy community, Congressional staff,
and the Presidential advisory committees.
I. POLICY TRACK
A thorough review of all aspects of disability policy is an
ambitious undertaking. Review Team members and those commenting
from outside the Review have agreed that it is sensible to
conduct the work in phases, initially focusing on a few discrete
issues to make the work more manageable. To this end, the Review
Team, at its November 30 meeting, formed five work groups:
1) Guiding Principles, 2) Accommodations, 3) Children's Issues,
4) Employment of Working-Age Adults and 5) School-to-Work
Transitions.
1. Guiding Principles -- There was significant agreement that
the Review would benefit from the early development of a set
of principles articulating the values guiding the Review.
This statement of principles will not predetermine the
policies to be developed through the Review, but instead
guide Review Team members and staff in their work. It might
eventually become the preamble to the Review's final report,
subject to continual modification along the way.
This work group has convened in December to draft an
initial statement. The principles it develops should
draw not only on Administration policy and statements
and Presidential speeches, but on policies incorporated
in recent legislation in this area. When the full
Review Team met on December 21, a draft of this
statement was discussed and reviewed. This work group
is now in the process of revising the original draft in
response to the input received on December 21 and in
subsequent discussions.
Convenor: Bob Williams, Commissioner, Administration on
Developmental Disabilities, Department of Health and
Human Services.
2. Accommodations -- This work group will draw on the review
process already in place through the Federal Disability
Accommodations Working Group. Formed in August 1994 by the
Domestic Policy Council, this group has begun to examine how
the federal government can be a model of making reasonable
accommodations that will benefit its customers, job
applicants, employees, and the general public.
2
The work of this group should lead to short-term achievable
administrative recommendations that help demonstrate the
Administration's commitment in this area.
Convenor: Deval Patrick, Assistant Attorney General, Civil
Rights Division, Department of Justice
3. Childhood -- This work group will examine educational,
income benefit, and service programs available for children,
from birth to age 18. Their work is particularly timely
given the formation of the Childhood Disability Commission
that will look at the SSI children's program. The group
will focus on developing an administration policy that will
anticipate and respond to the findings of the Commission and
other actors. In addition, the Individuals with
Disabilities Education Act (IDEA) is up for reauthorization
this year and will certainly raise important policy issues.
Convenor: Judy Feder, Principal Deputy Assistant Secretary
for Planning and Evaluation, Department of Health and Human
Services.
4. School-to-Work Transition -- This work group will explore
issues related to the transition to adulthood from education
programs that serve people until they are 18 to 21 years of
age. "Transitions" planning involves helping people to find
employment, further schooling, independent or assisted
living arrangements, and other activities that maximize
their independence and potential.
Convenor: Judy Heumann, Assistant Secretary, Office of
Special Education and Rehabilitative Services,
Department of Education.
5. Employment of Working Age Adults -- All participants in
this process have consistently agreed that employment must
be a centerpiece of the Review. This work group will focus
on the problems associated with the chronic unemployment and
underemployment of persons with disabilities and review
policy options for helping people enter -- and remain -- in
the workforce.
Convenor: Susan Daniels, Associate Commissioner for the
Office of Disability, Social Security Administration.
These groups are currently meeting and will eventually
develop action steps in concert with the values and commitments
identified in the Guiding Principles document. Additional work
groups will be formed as appropriate throughout the process based
on the findings of these initial working groups.
3
II. CONSULTATION TRACK
We will proceed on several fronts externally as the policy
groups begin their work.
A. Presidential Committees
Each Presidential committee has designated or will soon
designate a representative to participate on the Review Team, and
we anticipate these committees will be integrally involved in the
Review. We look forward to working with the Committees on shared
policy concerns. In particular, we expect to coordinate with
them in gathering public input on these policy questions, holding
public hearings and conducting ongoing outreach efforts.
B. Advocacy Organizations
Each of the five groups referred to in the Policy Track
discussion should meet with a wide range of organizations
representing the interests of people with disabilities to give
them the opportunity to provide information and input into their
work. Each work group convenor will host a meeting with the
advocacy community in order to update interested groups on the
substance of the Review as it relates to that particular issue.
C. Legislative Bodies
We will also meet with legislative staff from both chambers
and both parties to keep them apprised of the work of the Review.
III. AN ON-GOING PROCESS
This document is a working draft that we anticipate will
undergo periodic change throughout the Review. It is an on-going
process which will be modified in response to the findings of
various work groups and input received from interested parties.
TIMETABLE
A timetable would be as follows:
November 30
Issue groups formed.
December 21
Guiding Principles: Draft discussed
with full Review Team.
January 27
Agencies to submit program descriptions
in response to request
for agency program information.
4
Early February
Initial background papers completed.
Key policy questions identified.
Meeting with advocacy groups and the
five work group convenors.
Guiding Principles: Discuss draft
statement and options for obtaining
public input.
February 22
Third meeting of the Review Team to
review progress of issue groups and
discuss final draft of Guiding
Principles. Overall scope of work and
timetable for the entire Review to be
discussed.
March
Review Team meets to begin to outline
options for reforming disability policy
and identify next steps for each work
group.
file copy saved as a:/126wrkpl.
5
Attachment A
Agencies are requested to do the following:
1. A) Identify each program administered by the agency serving individuals with disabilities.
Include all programs that:
provide direct Federal administered services or benefits to individuals with disabilities.
These programs can either be targeted specifically for people with disabilities or they
can serve larger populations, but provide benefits to persons with disabilities,
fund State, local, non-profit or private activities serving or benefitting individuals with
disabilities,
mandate or regulate (without necessarily providing Federal funds for) State, local,
non-profit or private behavior with regard to individuals with disabilities.
B.) On a separate list, identify all programs in for which there is an authorization of
appropriations, but for which no funding was received in FY 1995, and where the program is
not currently operated by the agency.
2) For each program identified in 1.A), provide the following information :
Agency, Bureau, Account, and Program Title
A short description of the program. Include program goals, funding mechanisms,
authorized activities, eligibility criteria (including existence of and/or extent of
disability, age, income), and any definitions of disability or other relevant terms (such
as "impairment") established in law or regulations. Identify performance measures, if
available. Provide title and citations of authorizing statute, and citations for
implementing regulations.
Type of service or benefit provided:
a. cash,
b. medical,
C. vocational rehabilitation,
d. education or training,
e. research,
f. transportation,
g. housing
h. long term care
i. tax incentives
j. other (specify)
Number and demographics (e.g., age, socioeconomic status) of individuals with
disabilities served, broken down by type of disability (e.g. using categories established
by the program, for example physically disabled, chronically mentally ill), if available.
If participation of individuals with disabilities is incidental (e.g. health-related
research), but significant, provide the proportion of individuals with disabilities served
relative to the total population served, if known. (If agency cannot estimate the
proportion of individuals with disabilities served, so indicate.) Briefly describe any
trends or changes in demographics of populations served, and explain.
Budget authority and Outlays for FY 1994, and FY 1995 (estimated), relative to
individuals with disabilities served. (If agency cannot estimate the proportion relative
to the number of individuals with disabilities served, so indicate, and provide program
totals, or best estimate, with assumptions stated.)
Funding provided by non-Federal sources. (Provide break-out by entity.)
Nature and periodicity of data collected on services/benefits provided and populations
served.
Roles of Federal and non-Federal entities in administering the program.
Major administrative and/or programmatic issues currently confronting the program.
Any other information about the program that would be important for policy decisions.
(E.g., key advocacy groups, major Congressional supporters.)
Name, position, and telephone number of contact person for responsible for program
information.
3) Program descriptions, and list of all identified programs, should be provided in hard copy
and in Wordperfect format on a diskette. Please keep materials as brief as possible (no more
than 4 pages per program), while responding in all categories.
02/13/95 17:21
002/006
66298
Susan Ames-Zierman
Executive Director
National Association of Developmental Disabilities Councils
1234 Massachusetts Avenue, NW
Suite 103
Washington, D.C. 20005
p-347-1234 f-347-4023
Mike Auberger
Co-Director
ADAPT
201 S. Cherokee
Denver, Colorado 80223
p-303/733-9324 TDD-303/733-0047
f-303/733-6211
Nancy Bloch
Executive Director
National Association of the Deaf
DAPAIS
814 Thayer Avenue
Silver Spring, Maryland 20910
p-301/587-1788 TDD-301/588-9551
f-301/587-1791
Bob Echlman
National Alliance for the Mentally Ill (NAMI)
2101 Wilson Boulevard
Suite 302
severy
Arlington, Virginia 22201
p-703/524-7600
&
f-703/524-9094
Dan Bross, Executive Director OR
Aimee Berenson, Legislative Counsel
AIDS Action Council
Suite 700
1875 Connecticut Avenue, NW
Washington, D.C. 20009
p-986-1300 x.11 f-986-
Judi Chamberlin
Center for Psych Rehab
Boston University
730 Commonwealth Avenue
Boston, Massachusetts 02215
p-617/353-3549 f-617/353-7700
Justin Dart
Real Health Care for All
907 6th Street, SW
Apt. 516C
Washington, D.C. 20024
p-202/488-7684 TDD-202/484-1370
02/13/95 17:21
003/006
Curt Decker
National Association of Protection & Advocacy Systems (NAPAS)
900 2nd Street, NE, #211
Washington, D.C. 20002
p-408-9514
Steve Eidelman
Kennedy Foundation
1325 G Street, N.W.
Washington, D.C. 20005-4709
p-824-0214 f-824-0200
Frederick Fay
President
Disability Rights and Voter Education
won able came
2054 Main Street
Concord, Massachusetts 01742
p-506/371-0992 f-508/369-5544
Jim Gashel
Government Affairs Director
National Federation of the Blind
1800 Johnson Street
Baltimore, Maryland 21230
p-410/659-9314 f-410/685-5653
Al Guida, Executive Director OR
Elizabeth Burrows
National Mental Health Association
1021 Prince Street
Alexandria, Virginia 22314-2971
Anne-Marie Hughey
Executive Director
National Council on Independent Living
2111 Wilson Boulevard
Suite 405
Arlington, Virginia 22201
p-703/525-3406 f-703/525-3409
Dr. II. King Jordan
President
President's Office
Gallaudet University
800 Florida Avenue, NE
Washington, DC 20002-3695
p-651-5005 f-651-5508
Joe Manes
Bazelon Center for Mental Health Law
1101 15th Street, NW
Suite 1212
Washington, D.C. 20005
p-467-5730 TDD-898-1670
-223-0409
02/13/95 17:22
004/006
Gordan Mansfield
Executive Director/ Director of Advocacy
Paralyzed Veterans of America
801 18th Street, NW
Washington, D.C. 20006
p-872-1300 f-785-4452
Paul Marchand
Director, Government Relations
The Arc
1522 K Street, NW
Suite 5.16
Washington, D.C. 20005
p-785-3388 f-467-4179
Scott Marshall
Director, Governmental Relations OR
Denise Rozell, Government Relations Representative
American Foundation for the Blind
1615 M Street, NW
Washington, D.C. 20036
p-457-1487 f-457-1492
Arlene Mayerson
Poot
Legal Director
DREDF (Disability Rights Education and Defense)
2212 5th Street
Berkeley, California 94710
p-510/644-2225 f-510/841-8645
Patty McGill Smith
Executive Director
National Parent Network on Disabilities
1600 Prince Street
Suite 115
Alexandria, Virginia 22314
p-703/684-6763 f-703/836-1232
Chris Metzler
Senior Legislative Representative
American Occupational Therapy Association (AOTA)
1383 Piccard Drive
Rockville, Maryland 20849
p-301/948-9626
Oral Miller
Executive Director
American Council of the Blinc
1155 15th street, NW
Suite 720
Washington, D.C. 20005
p-467-5081 f-467-5085
02/13/95 17:22
2005/006
Michael Morris
United Cerebral Palsy Associations
1522 F. Street, NW
Suite 1112
Washington, D.C. 20005
p-842-1266 f-842-3519
Fasher
Katy Neas
American Association of University Affiliated Programs (AAUAP)
8630 Penton Street, #410
Silver Spring, Maryland 20910
p-301/588-8252
Becky Ogle
Project: AccessAbility
625 Sisters Lane, Suite 200
Alexandria, Virginia 22314-1171
p-703/836-6263 f-703/836-6730
Janet O'Keeffe
Public Policy Office
American Psychological Association (APA)
750 First Street, NE
Washington, D.C. 20002
p-336-5934
Ed Roberts
President
won'tome New
World Institute on Disability
510 16th Street
Oakland, California 94612
p-510/763-4100 (V/TDD) f-510/763-4109
Joseph Rogers
Director
National Mental Health Consumer Self Help Clearing House
311 South Juniper Street
Room 902
Philadelphia, PA 19107
p-215/735-2465, 6082 x.312 f-215/735-0275
Donna Sorkin
Executive Director
Self-Help for Hard of Hearing People
7800 Wisconsin Avenue
Bethesda, Maryland 20814
p-301/657-2248 f-301/913-9413
Peter Thomas, Esquire
AAPMR, ASIA, ACRM, ASOTAPA, ACA, NARRTC, NOD
1275 Pennsylvania Avenue, NW
3rd Floor
Washington, D.C. 20004
p-466-6550
02/13/95 17:22
006/006
Arthur Wilson
Executive Director
Disabled American Veterans
807 Maine Avenue, SW
Washington, D.C. 20024
p-554-3501 f-554-3581
Tony Young or
Pat Morrisey,
Vice President, Government Relations for Comm. Programs
American Rehabilitation Association (Amer. Rehab.)
1350 Eye Street, NW, #670
Washington, D.C. 20005
p-789-5700
Dr. George Zitnay
President
National Head Injury Foundation
1776 Massachusetts Avenue, NW
Suite 100
Washington, D.C. 20036
p-202/296-6443 f-202/296-8850
1/4/95