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Endependence Center of VA (Minutes) [January - April 1986]
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Endependence Center of VA (Minutes) [January - April 1986]
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Endependence Center of VA (Minutes) [January - April 1986]
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DRAFT
Minutes of the ECNV Executive Committee Meeting
April 16, 1986
The meeting commenced at 6:20 pm.
Board members present: John Collins, Joyce Frieden, Ruth Phillips, Larry Allison,
Gretchen Menn, Robert Gorski; Tom Deniston arrived during discussion of item #4.
Staff members present: Sharon Mistler, Barbara Gilley, Monica Hall.
1. The Committee approved the agenda proposed by John Collins after switching
items #E and #F. (see attachment #1)
2. The Committee approved the minutes of the March 19 Board meeting.
3. The Committee agreed to take up "review of Board files" under agenda item
"executive committee procedures and operation."
4. Committee Reports
* MEMBERSHIP Joyce Frieden distributed copies of Membership Committee
organizing documents (see attachment #2) and reported that Membership would
meet in April. Frieden wants to include a deaf person on the committee and
to avoid a preponderance of Board members sitting on the Membership Committee.
One goal Frieden proposes for the committee is to encourage ECNV members to
eventually to be on the Board and to assume other positions of responsibility.
Frieden would also like to structure membership fee schedule SO that a reduced
rate is available for youth members
* FINANCE Ruth Phillips reported that Tom Deniston agreed to be on the
Committee and they both agreed that the Finance Committee should be a small
committee that adds people when specific skills are needed. Besides those
activities for Finance suggested by John Collins, Phillips felt that long-
range fund raising should also be part of the Committee's responsibility.
Sharon Mistler suggested Jerry Whiting (currently a member of the advisory
council) for the Finance Committee. John Collins observed that Finance
should be careful not to intrude on day-to-day fund raising.
* PERSONNEL Gretchen Menn reported that Personnel would meet on April 20
and would focus initially on reviewing personnel policies and procedures.
Staff input would be sought. After completing the review, Menn felt that
the Committee need only become active as necessary to work with emergent
matters. Robert Gorski suggested that Personnel could also identify appro-
priate resources that would strengthen morale, motivation, and cooperation of
Board and staff members. John Collins suggested that Personnel consider
including interagency issues in its area of responsibility. John Collins
and Sharon Mistler are ex officio members of Personnel; Ruth Phillips is
a
temporary member of the committee because of her previous work on the
personnel policy. Larry Allison is also a member of the committee.
DRAFT
Executive Committee Minutes
page 2
April 19, 1986
item #4 continued:
* DEVELOPMENT Robert Gorski reported that two Board members - Doris Ray
and Gwyneth Rochlin - were interested in being members of the committee.
Gorski had contacted Robert Ruffner (an advisory council member) about
membership, Ruffner expressed willingness to assist the committee, but declined
to be a formal member of the committee. Sharon Mistler emphasized that
Committees make use of the staff members assigned to each Committee. Mistler
also raised the issue of having a separate committee for fund raising because
she and the staff need help in this area. Ruth Phillips suggested that
Finance and Development arrange some type of joint meeting to explore fund
raising and how best to determine each committee's area of responsibility.
Gretchen Menn suggested that at the next meeting of the Advisory Council,
the agenda should include a chance for the Council to discuss what it could
do to support or create a fund raising committee.
* LEGISLATION John Collins reported that no organizing activity had
occurred and that he has no expectation for any in the immediate future.
When the Committee does become active, he will encourage it to take a narrow
focus on legislative matters, limiting its area of activity to those legisla-
tive matters that directly impact the operation of independent living
programs.
The Executive Committee approved all Committee reports.
5. Center Report
Sharon Mistler reported that presently the number one issue with the
Center is burnout. The staff are being overworked because they are dedi-
cated people and facing exponentially growing demands from participants, the
community, other agencies, and fellow staff members. Moreover, staff con-
tinues to struggle with many participants who are extrememly difficult and
deprived situations, for example, homelessness. The press of demands is
causing staff to work after hours at the Center and even to work after hours
at home Barbara Gilley is resigning to take a position at the Architectural
and Transportation Barriers Board and burnout was a major motivation for her
job change. All other staff are experiencing burnout, including Mistler
herself.
Barbara Gilley reported on the demands of her position at ECNV. She
emphsized mushrooming participant demands - for example, five new housing
demands in one week. Because people can often only be contacted at night
and on weekends, she has been doing Center work after hours at her home.
The National Rehabilitation Hospital generates SO much business that Gilley
has on occasion created an "ad hoc" office for herself in the hospital
lounge. Gilley reported that her patience and her ability to cope with job
stress have worn thin.
DRAFT
page 3
Executive Committee Minutes
April 19, 1986
(item #5, continued):
Mistler and the other staff present made additional comments about
work-related stress: In the last 1 1/2 years, there have been three suicides
among participants. The independence model is suffering at the Center
because it is easier for staff to make decisions for participants. Often,
ECNV is serving disabled persons given up on by other service agencies.
Case loads are too high for ECNV services - which are still in the develop-
ment stage. Some staff are overworking to the detriment of their health.
It is expected that Virginia's DRS will try to pass Gramm-Rudman cuts along
to ILPs, despite the impropriety of such action. Staff uncertainty con-
tinues over the appropriate response to make when Board members suggest
specific actions be done and when they request assistance from staff members.
Since the Center has received only one request for basic independent living
training, this project will be de-emphasized. Demand for community education
programs is high. Barbara Gilley's position will be taken over by Marie Lynch.
Gretchen Menn asked if burnout could have been prevented. Robert
Gorski moved that the Board (1) permit the staff to experiment with measures
to reduce stress, and (2) direct the Executive Director to report at the May
Board meeting on the measures taken up to that time, as well as the staff's
recommendations for long-term policies to prevent burnout. Motion passed.
Ruth Phillips moved that when a Board member requests some action be taken
by a staff member, the request should be first submitted to Sharon Mistler
in writing. The motion passed.
The meeting adjourned at 8:20 pm.
Attachment
ENDEPENDENCE CENTER OF NORTHERN VIRGINIA
Sharon Mistler
Executive Director
April 11, 1986
To: All Board Members and Sharon Mistler
From: John Collins
Subject: Executive Committee Meeting
On April 16 at 6:00 pm, the Executive Committee of the ECNV Board will
meet at the Endependence Center. All Board members who are not members of
the Executive Committee are invited to attend and participate in discussion.
In preparation for the Executive Committee meeting, I have drafte the
following as a proposed agenda:
A. approve the agenda
B. approve minutes of March 19 Board meeting
C. review of Board files maintained at the Center
D. committee reports
1. Membership
2. Finance
3. Personnel
4. Development
5. Legislative
E. discuss executive committee procedures and operation
F. Center report
G. other business
4214 9th St. N., Arlington, VA 22203
(703) 525-3268 Voice/TDD
Attach ment#2
PROPOSED
MEMBERSHIP COMMITTEE MEMBERS
CHAIRPERSON - Joyce Frieden
370-1111
504 W. Taylor Run Pkwy
Alexandria, Va 22314
Sharon Wilken
634-7833
10006 Murname St.
Vienna, Va 22180
Gwyneth Rochlin 525-5692
4622 Fourth Rd.
Arlinton, Va 22203
Etsuko Mashino 488-7684
907 6th St, S.W., Apt.516
Washington, D. C. 20024
Missy Cassel
370-1111
504 W. Taylor Run Pkwy
Alexandria, Va 22314
Doris Ray
893-8814
1269 beverly Rd.
McLean, Va. 22101
MEMBERSHIP COMMITTEE GUIDELINES
I. Composition:
A. The Chairperson of the committee is appointed by the
President and approved by the Board.
B. Three Vice-chairpersons are appointed by the Chairperson
and approved by the Board. Each Vice-chair is responsible
for one special area.
1. New recruitment
2. Renewals
3. Technical operations
C. Members at-large are appointed by the Chair and approved
by the board.
II. Terms:
A. All terms of service shall be for one year.
B. The position of Chairperson shall not be held more than
two consecutive terms.
C. The positions of Vice-chairperson shall not be held more
than four consecutive terms.
D. The maximum length of time any individual may serve on the
membership committee is six consecutive years.
E. Terms of the membership committee shall begin in December
and end in November of the following year.
III Meetings:
A. Committee meetings are held on even numbered months, or as
called by the Chairperson.
B. A majority of the current committee membership constitutes
a quorum.
C. Three consecutive absences may be considered grounds for
termination as a committee member at the discretion of the
Chairperson.
IV Responsibilities:
A. Subcommittee responsibilities -
1. New recruitment subcommittee shall be reponsible for
creating a packet of information to educate and involve
prospective new members, and planning campaigns to
encourage membership.
2. Renewals subcommittee shall be responsible for alerting
present members of up coming renewal dates, and
establish and maintain internal and external awards
ceremonies.
3. Technical operations subcommittee shall be responsible
for up dating computerized membership lists, creating
lists of members interested in committee work,
producing mailing labels , and copying and
distributing membership materials as requested by
other subcomittees and the full committee.
B. Full committee responsibilities-
1. The full committee shall recommend membership fee
structure for approval by the full board.
2. The full committee shall establish and maintain lists
of interested board and committee members.
3. All materials and plans by the sub committees shall be
approved by the full committee before being sent to the
Board for approval.
MEMBERSHIP COMMITTEE CHAIRPERSON
JOB DESCRIPTION
I. BUILD AMD MAINTAIN A REASONABLE NUMBER OF COMMITTEE MEMBERS
(5 MINIMUM)
A. RECRUIT VICE-CHAIRPERSON(S
B. RECRUIT APPROPRIATE EXPERTS AS COMMITTEE MEMBERS OR
ADVISORS
C. RECRUIT MEMBERS FROM UNDER-REPRESENTED POPULATIONS
II. HOLD ACCESSIBLE MEETINGS REGULARLY (MINIMUM 4 PER YEAR)
A. RESPONSIBLE FOR HAVING PRINTED MATERIAL READ AT MEETINGS
FOR SIGHT IMPAIRED MEMBERS
B.
RESPONSIBLE FOR HAVING INTERPRETER PRESENT AT MEETINGS
FOR HEARING IMPAIRED MEMBERS
C. RESPONSIBLE FOR HAVING MEETINGS HELD IN PHYSICALLY
ACCESSIBLE BUILDINGS FOR MOBILITY IMPAIRED MEMBERS
III. REPORT ACTIVITIES
A. KEEP MINUTES OF ALL MEETINGS
B. GIVE VERBAL REPORTS OF BOARD ACTIVITY TO COMMITTEE
C. GIVE WRITTEN REPORTS OF COMMITTEE ACTIVITIES TO BOARD
IV. ADHERE TO GUIDELINES OF COMMITTEE
A. DISTRIBUTE BOARD APPROVED GUIDELINES TO EACH COMMITTEE
MEMBER
B. RESPOND TO SUGGESTIONS FOR CHANGES TO GUIDELINES
C. SUBMIT ANY CHANGES TO GUIDELINES TO THE BOARD FOR
APPROVAL
JF-3/86
ENDEPENDENCE CENTER OF NORTHERN VIRGINIA
Sharon Mistler
May 12, 1986
Executive Director
To: Members of the Board
From: John Collins
Subject: Materials for next meeting of the Board
On Wednesday, May 21, a meeting of the Board of ECNV will be held at the Center
and starting at 6:00 pm. Enclosed with this memo are minutes of the April
meeting of the Executive Committee and a report that the Development Committee
will make at the Board meeting next week.
The major topic of the Center Reprot given at the April meeting of the
Executive Committee was the high degree of stress that working at the
Center was causing staff to experience. Sharon Mistler has reported to
me recently that feelings of stress have lessened appreciably in the
last few weeks. Among the developments at the Center which have contributed
to this improved situation are: Mistler is making staff take reasonable
time off; she is counseling them to embark on new tasks and duties cautiously;
the grant proposal to the state is finished a week early; Brenda Plum has
decided to take a month of administrative leave and then explore opportunities
to work part-time at ECNV.
I have no breakthroughs to report about a new facility. One positive develop-
ment involves the Arlington County relocation office, which has started to
provide the Center with leads to office spaces on the market.
Virginia's new governor - Bailies - plans to spend several days in Northern
Virginia in July. The Journal newspaper has asked the community to submit
suggestions of places where the governor should spend time while in this
part of the state, and I have submitted ECNV's name and a description of
what we do in hopes of getting the governor to visit the Center.
My proposed agenda for the May Board meeting is as follows:
A. approve the agenda MARCH
Board
B. approve minutes of April Executive Committee meeting
C. Committee reports
11. Membership
2. Finance
help
8. Personnel
4. Development
5. Legislative
D. Center report
E. Executive Committee procedures and operations
F. Other business
Sports
exer
4214 9th St. N., Arlington, VA 22203
(703) 525-3268 Voice/TDD
laws
to tee
81
Proposed Agenda for ECNV, Inc. Directors Meeting
Endependence Center of Northern Virginia
And
L
4214 Ninth Street, North
Galling
March 19, 1986
A. Approve Agenda
B. Approve Minutes of February 19, 1986 meeting
C. Report on Training
1. Spring Training Calendar MArie
HIPPS development etc
HP
2. Transition to Independence Training Debie IILP's Fed
D. Review Committees Statement & Goals of ECNV
E. Report on Status of the Facility and the Spring Move
F.
Center Report
6. Other Business
H. Adjourn
free
Dates on the ECNV calendar:
April 3, noon, Thursday, ECNV Advisory Council Quarterly Meeting
April 12, 10:00am - 3:00pm, Saturday, EQUIP-DEMO DAY 86
Kemi's for food
-legislation
State coal insurance benifit
ENDEPENDENCE CENTER OF NORTHERN VIRGINIA
Robert Gorski
Sharon Mistler
President
Executive Director
Board of Directors
April 11, 1986
To: All Board Members and Sharon Mistler
From: John Collins
Subject: Executive Committee Meeting
On April 16 at 6:00 pm, the Executive Committee of the ECNV Board will
meet at the Endependence Center. All Board members who are not members of
the Executive Committee are invited to attend and participate in discussion.
In preparation for the Executive Committee meeting, I have drafte the
following as a proposed agenda:
A.
approve the agenda
B.
approve minutes of March 19 Board meeting
C.
review of Board files maintained at the Center
D. committee reports
1. Membership
2. Finance
3. Personnel
4. Development
5. Legislative
E. discuss executive committee procedures and operation
F.
Center report
G.
other business
4214 9th St. N., Arlington, VA 22203
(703) 525-3268 Voice/TDD
DRAFT ECNV Board Meetings
March 19, 1986
The meeting commenced at 6:15 pm.
Present were Board members: John Collins, Dale Brown, Joyce Frieden, Gwyneth
Rochlin, Robert Gorski, and Gretchen Menn. Doris Ray arrived during discussion
of agenda item #4; Larry Allison arrived during discussion of item #5. Staff
members present were Brenda Plum, Michael Frisenger, and Sharon Mistler. A
visitor, Myla Riggs, arrived during discussion of item #4.
1. The agenda submitted by John Collins was approved.
2. The minutes of the previous Board meeting were approved.
3. Sharon Mistler briefly described the contents of the report packet, a copy
of which had been provided to each Board member. In greater detail, she
described progress with developing a calendar of training activities for
participants. A tentative calendar - the content of which comes from
in-house discussions and from participant feedback - will be formulated
and mailed out in order to solicit sign-ups. The number of positive
responses will determine the final calendar. Marie Lynch is coordinating
this program - which is separate and different from the training program
coordinated by Debbie Eshelmanm, which is a more formal training program
with highly structured activities and for which participants will
all
have IILP's drafted. Mistler asked Board members for suggested resource
people for spring training programs.
Mistler also reported that the Center is receiving calls from disabled
professionals who report experiencing stress related to possible discrimina-
tion at their places of work. The callers are typically unaware of Virginia's
new state law and the possibilities for redress.
One objective for the Center next year, according to Mistler, will be
to establish a fee for service schedule.
The Alexandria Housing brochure will likely be completely drafted by
mid-May.
The Center has had an outstanding record of assisting disabled persons
locate personal care attendants. One month ago, 30 disabled persons were
on a waiting list; now the Center has 3 personal care attendant applicants
who are looking for placement. Coordination with Woodrow Wilson is improving,
as evidenced by that institution referreing patients to the Center prior to
discharge.
Mistler asked the Board for its opinion about ECNV participating in a
possible state council of independent living programs. Some interest for such
a council has been long standing in the state, and it has been intensified
by the confused input to the legislature earlier this year.
The National Council on Independent Living has declinded to reconsider
its new dues schedule and so the Center has paid the Council $400 for the
present year. Mistler reported that only 2 of the 6 ILPs in Virginia have
renewed membership in the national organization.
Future fund raising possibilities include researching contacts at
Democratic National Committee for funding sources interested in Asian
causes, and another attempt to apply to the National Institute on
Handicapped Research for funds to develop the simulation game Jericho.
June's information packet will include one-page write-ups on each
service area.
DRAFT Minutes
ECNV Board
March 19, 1986
4. John Collins reported on how the Center contributed to an effort to improve
the regulations governing the Housing Assistance program in Alexandria. The
Regional Housing Authority has been using a definition of disability based
on the receipt of disability benefits. Consequently, many disabled persons
have been denied housing assistance. Center staff had discussions with
Housing Authority staff at the same time that the Authority was receiving
word that the federal HUD was contemplating a law suit. As a result, the
Authority now uses the HUD definition of disability and will change the
wording on the application form. Other housing authorities in the state
may replicate the reforms at the Alexandria Regional Housing Authority.
5. On the matter on Board committees, John Collins reported that four Board
members had, since the February meeting, expressed interest in serving on
a committee: Joyce Frieden on Membership; Ruth Phillips on Finance; Robert
Gorski on Development; Gretchen Menn on Personnel. Collins hopes that the
Legislation Committee will be limited in scope to independent living
issues and developing ECNV positions, as distinct from monitoring the
legislative process.
Gretchen Menn moved that the four individuals who expressed interest
in serving on Board committees be designated the chairs of the committees
for which they expressed interest; that the chairs appoint additional
members to their committees by the April executive committee meeting; and
that the committees present their objectives at the May Board meeting.
During discussion the Board agreed that the committees should plan
to have long standing goals and objectives that will change over time;
will have the ability to establish subcomittees; can include non-Board
members as committee members, except for the Personnel Committee; and
that the Board approves committee membership.
Collins suggested that his memo on Board Committees (see Attachment
#1) be considered a first step toward defining committee goals and objectives.
He also recommended that only initially should the Finance Committee be
chaired by the Board Treasurer.
The Board approved the motion designat the chairs of the four committees.
Robert Gorski moved that committee members must also be members of the
Endependence Center of Northern Virginia. The motion passed with one vote
opposed.
6. No positive developments have occurred in the search for a new facility for
the Center. Locating at Randolph Towers is no longer a serious possibility.
7. Sharon Mistler confirmed that the Center has been and will continue mailing
monthly Board packets to Board members absent from Board and executive
committee meetings. Also, she agreed to analyze the possibility of pro-
ducing Board mailings in large print, in order to qualify for free mailing.
The meeting adjourned at approximately 8:00 pm.
Attachment #1
TO:
ECNV, Inc. BOARD of DIRECTORS
FROM:
John Collins JIII, President
DATE:
March 2, 1986
SUBJECT:
Sketches of Board Committee Missions Outlined
The Board voted on February 19th to establish four committees
on
membership, finance, program, and personnel. These committees of the
Board will be formalized in March with membership set and staff
support arranged.
Please review the following rough thoughts, add to them, and make
your comments for inclusion and your participation interest known to
me, before the Wednesday, March 19th Board meeting.
Draft notes about the new committees include:
MEMBERSHIP --
Responsible for planning membership structure & campaigns
including setting pace and designing materials for March-December 1986
Bring aboard volunteers to support ECNV in 1986 and beyond
Recommend action on membership policies and actions to Board
Develop approaches to serving less-urban NoVa constituencies
o FINANCE
Build a sound fiscal team of financial advisors around ECNV
Uphold financial practices
Assist in lease and other ECNV move negotiations
DEVELOPMENT
Develop short and long-term goals for Board planning cycles
Monitor ECNV development services for Board
Coordinate with Advisory Council and DD grant advisors
PERSONNEL
(for the short-run the Executive Committee serves as)
Coordinate personnel policies as set by Board & Policy Manual
Work towards cooperation with other IL Organizations
Bring all participants, volunteers, and employees towards
acceptance of ECNV goals and policies
Official conduit for any grievances brought to ECNV
Director's Report
Enclosed in your packet you will find copies of the monthly
fiscal report and the monthly statistical reports submitted to
DRS. Program area reports include reports from the Transition to
Independence training program, the regular training program, and
information and referral, you will also find a copy of the latest
newsletter.
Spring has brought a high activity level to the ECNV staff.
A draft of the Alexandria Housing brochure is being completed. We
have a roster of PCA's needing work. All of our participants
requesting PCA's have located and hired them. Our housing survey
is in for reprinting and we plan on wider disemination through
newsletters of other groups. A potential offering of training
classes and workshops have been listed in the newsletter. Thirty
days is being allocated for response and then the training
classes will be formally announced. Individual training is
ongoing. We are involved in several advocacy issues in addition
to our usual. A group home has been opened that is not accessible
to all of its occupants and ECNV is providing T/A to the home on
modifications. Several participants have requested that an
advocate be present at their IDT meetings. The Deaf Oriental
Support Group is starting this week. The Information packet is
being drafted and discussions are ongoing with the printer. An
advisory committee meeting is called for noon on April 3.
the
center
In the state, the HUVA executive committee hired Ted Ferrer
to be Executive Director. Letters have been submitted from
various chapters asking for a special board meeting to vote on
the hire. We have been contacted by John Chappel and Tony Young
requesting support for the hire. I have responded that ECNV is
not a member and we therefore have no right to take a stand. I
have referred calls to Robert Gorski as a contact for HUNVA.
There is growing interest throughout the state to form a
state counil of independent living centers. There is a meeting
Friday of all CIL directors and part of the agenda includes
discussion time on the issue of a council. I would appreciate it
if any board members with specific concerns regarding this
council could contact me before Friday.
know resources
Report from Marie Lynch, Training Specialist
will
:
The following is a list of potential I.L.S. classes that may be
given on a one-to-one basis or a small group situation:
Cooking; basic and advanced
Transportation
Money Management
Time Management
Personal Care
Social Skills
We would like to offer a host of community education workshops.
The following is a list of those ideas, which are subject to
change or expand based on interest. Any thoughts or suggestions
on these workshops are welcome:
Current Legislation/Present Issues
Stress Management
Nutrition
Physical Fitness
Sexuality
Self-advocacy
Self-assertiveness
Knowing your rights
Disabled professionals: satisfaction/dissatisfaction of
jobs, etc.
(
Transition to Independence Program
The Transition to Independence Program is now in full swing.
The first training class was held on Monday, March 17 at the
Center. Fourteen of the fifteen participants who were invited
into the program were in attendance. The group is comprised of 9
male and 5 females and the age range is 18 to 37 years old. The
two trainers, Marie Lynch and Donald Sellers led the class with
the assistance of 2 volunteers. On the same evening the parents
of the participants met in the Development Team conference room
and were given the class schedule and encouraged to reinforce in
the home what we are teaching in the classes. The parents decided
they would like to have a support group so they will meet two
more times during the session in order to be updated on the
program and share information and resources related to the
participants living more independently. An advisory committee for
the program has also been established. The first meeting of the
adivisory committee was held March 12. The committee gave
valuable input on the proposed curriculum as well as the
instructional resources that relate to teaching independent
living skills to the LD and MMR population. The committee will
meethagain after the completion of Session I.
Recent Additions to I&R
March 18, 1986
*
Acquistion of the latest Social Security pamphlets,
Medicaid/Medicare.
* Pamphlets (revised editions) on the three special transit
systems (DOT, Fastran, & Farewheels)
* 504/Disablity Rights Pamphlets
Recent entries to the Resource Center:
Handbook on the Latest Effects of Poliomyletis
Proceedings of Rehabilitation Gazette's International
Post-Polio Conference
Handbook for the Disabled: Ideas/Inventions
The Job Search Companion
Within Reach: Providing Family Planning to Physically
Disabled Women
Toward Intimacy: Family Planning & Sexuality Concerns of
the Physically Disabled Woman
A Transportation Special Report
Fitness is Free: A Physical Fitness Program for Spinal
Cord Injured Persons
Interpersonal Skills Training (Set of 6)
Almanac of Virginia Politics
Complete Guide to Prescription and Non-Prescription Drugs