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Originally Processed With FOIA(s): FOIA Number: S S FOIA MARKER This is not a textual record. This is used as an administrative marker by the George Bush Presidential Library Staff. Record Group/Collection: Donated Historical Materials Collection/Office of Origin: Frieden, Lex, Collection Series: Printed Materials Subseries: Manuals OA/ID Number: 52096 Folder ID Number: 52096-001 Folder Title: "1976 Resource Directory: Guide to Services for Spinal Cord Injured Persons" Stack: Row: Section: Shelf: Position: 1976 RESOURCE DIRECTORY A Guíde to Servíces for Spinal Cord Injured Persons New England Spínal Cord Injury Foundatíon RESOURCE DIRECTORY a guide to services in new england for spinal cord injured persons April 1976 Published by the NEW ENGLAND SPINAL CORD INJURY FOUNDATION, INC. through a grant provided by the Tri-State Regional Medical Program NEW ENGLAND SPINAL CORD INJURY FOUNDATION BOARD OF DIRECTORS Elmer C. Bartels, President Cairbre McCann, M.D. Senior Manager, C.P.L. Development Director of Rehabilitation Medicine Department Rhode Island Hospital Honeywell Corporation Providence, Rhode Island Billerica, Massachusetts Elizabeth Meikle, R.N. William Baird, M.D. Univ. of Vermont College of Medicine Consultant in Rehabilitation Medicine Department of Rehabilitation Medicine Easter Seal Society Burlington, Vermont Bridgeport, Connecticut William Messore Evarists Berzins Supervisor Department of Epidemiology and Department of Vocational Rehabilita- Public Health tion Yale University Providence, Rhode Island New Haven, Connecticut Raymond L. Milhous, M.D. Charles Burke Univ. of Vermont College of Medicine Stockbroker Department of Rehabilitation Mosely, Hallgarten and Estabrook Burlington, Vermont Newton, Massachusetts Gerald Rosen Marcel Durot Attorney at Law President, Personal Care Division Richman, Rosen and Kagan The Gillette Company Boston, Massachusetts Boston, Massachusetts Robert W. Samuels J. Robert Galvin, M.D. President, Polyfibron Division Department of Family Medicine W.R. Grace & Company Hartford Hospital Lexington, Massachusetts Hartford, Connecticut Anne Spencer Allen F. Gear Chief O.T.R. Attorney at Law Eastern Maine Medical Center Gear and Kittell Bangor, Maine Burlington, Vermont Helen Stevens, R.N. Otto Goldcamp, M.D. Crotched Mountain Rehabilitation Director of Rehabilitation Medicine Center Mary Hitchcock Hospital Greenfield, New Hampshire Hanover, New Hampshire Herbert S. Talbot, M.D. Robert Lawton Immediate Past President Executive Vice President New England Spinal Injury Founda- R.I. Health Science Education Council tion Cranston, Rhode Island Needham, Massachusetts i NEW ENGLAND SPINAL CORD INJURY FOUNDATION BOARD OF DIRECTORS (Continued) Terry D. Mayo Andrew C. Walsh, M.D. Estate Planner Department of Rehabilitation Medicine Amherst, New Hampshire Mercy Hospital Portland, Maine L. Anthony Magliozzi Director of Rehabilitation Robert Heist, Treasurer (ex officio) Liberty Mutual Insurance Company Systems Technician Boston, Massachusetts John Hancock Insurance Company Boston, Massachusetts STAFF Executive Director: Bruce E. Marquis Resource Coordinators: Director of Field Services: Peter J. Myette Karen M. Jasper (Massachusetts) Librarian: Kristine E. Harnisch Jill C. Sharpe (Rhode Island) ii DEDICATION "If one advances confidently in the direction of his dreams, and endeavors to live the life which he has imagined, he will meet with success unexpected in common hours " "It is good to build castles in the sky, now put a foundation under them." Henry David Thoreau The New England Spinal Cord Injury Foundation dedicates this directory to: You Your Dreams and Your Determination We wish to acknowledge especially the contributions of Lois E. McCarthy, former Resource Coordinator in Maine, Karen M. Jasper, current Resource Co- ordinator for Massachusetts, and the support of the State of Maine, the North- ern New England Regional Medical Program, and the State of New Hampshire. Credit is graciously given to the Massachusetts Association of Paraplegics' "Resource Directory" and the Easter Seal Society's "Rights Handbook", as well as many other resource publications by a variety of public and private agencies. The mention of companies, equipment or people in this directory does not con- stitute endorsement, but is provided for reference purposes. Information of this type should be used only as a guide since changes and revisions are constantly being made. We hope that this publication will serve as a beginning tool that will encourage spinal cord injured persons to continue seeking additional information that will enhance their lives. Additions and recommendations are most welcome. iii Island TRI-STATE / TRI-STATE REGIONAL MEDICAL PROGRAM Medical Care and Education Foundation, Inc. One Boston Place, Boston, Massachusetts 02108, (617) 742-7280 Rhude New Humpshire FOREWORD In the original plans of the New England Spinal Cord Injury Program, a major thrust was to reduce the barriers to appropriate services for the spinal cord injured. One such barrier is the ignorance of the patient, family and provid- er of available resources to aid the spinal cord injured in achieving their maxi- mum potential to live with dignity in this society. The Tri-State Regional Medical Program in funding their program fervently hopes that this resource directory will be a tool to aid all concerned who are seeking appropriate services for the spinal cord injured. Sincerely, Robert W. murply Robert W. Murphy Executive Director iv INTRODUCTION Information about important resources for people who have experienced spinal cord injuries is often not available. At other times information about these programs and services is conflicting in nature. This resource directory, the first of its kind in terms of a region-wide scope, has two objectives: 1. To provide information about important resources to spinal cord injured people, their families, and their friends. 2. To identify resources at state and local levels which should be developed in New England states where they do not exist. This directory serves as one of many building blocks in the Spinal Injury Foun- dation's effort to develop a comprehensive system of quality care for spinal cord injured persons in New England. It will, with your assistance, help to util- ize existing resources in the most effective way and to develop new resources as needed. Hopefully, it will also serve as a catalyst for improving the delivery of care, treatment, rehabilitation, and follow-up services. Sincere thanks are due to the members of the Resource Directory Task Force who served with me in this endeavor. They are: Raymond Carroll Peter Connell Patricia Cooper Mary Duvally Robert Lawton John Pompei A special thanks goes to the Foundation staff and especially Goldie Libon and Peter Myette who worked with the Task Force. Sincerely, William a. Messore William A. Messore Supervisor Vocational Rehabilitation Division State of Rhode Island V TABLE OF CONTENTS Foreword iv Introduction V Resources A. Medical, Rehabilitative And Self-Care 1 1. Emergency Medical Services 1 2. How To Know If You Are Getting The Best Care 2 3. Physician Specialties 3 4. Comprehensive Care Facilities 4 5. Intermediate Care Facilities 5 6. Rehabilitation Facilities 6 7. Going Home 8 8. Self-Care 9 9. Home Health Agencies 10 10. Dental Clinics 22 B. Psychological Supports And Services 23 1. Psychiatrists/Psychologists 23 2. Clinical Social Workers 23 3. Rehabilitation Counselors 23 4. Clergy 24 5. Mental Health Clinics 24 6. Groups 24 7. Caring Persons 24 C. Legal Rights And Assistance 25 1. Federal Legislation 25 2. State Legislation 26 3. Legal Assistance 30 D. Taxes 33 1. Federal Income Tax 33 2. State Income Tax 33 3. Other Taxes 34 E. Financial Assistance 36 1. Federal Programs. 36 a. Social Security Administration. 36 b. Veteran's Administration and Services 38 2. State Programs 39 a. Medicaid 39 b. Food Stamps 39 C. Aid To Families With Dependent Children 39 d. State Office Locations 39 e. Catastrophic Illness 44 f. Workman's Compensation 44 3. Private Insurers 45 F. Assistive Organizations 46 1. International 46 2. National 46 3. Regional 48 4. State 49 G. Equipment 55 1. General Equipment 55 2. Special Equipment. 59 3. Adaptive Clothing 61 4. Special Aids 61 H. Accessibility And Architectural Barriers. 63 1. Federal Legislation 63 2. State Legislation 63 3. Bibliography 67 I. Employment 69 1. Federal 69 2. State 74 3. Helping Organizations 80 4. Special Resources 82 J. Housing 85 1. Guidelines For Selecting A House Or Apartment 85 2. Public Housing Units 86 3. Private Apartments 95 4. Houses 97 5. Housing Modifications And Accessibility 97 6. Trailers 98 7. Communal/Transitional Housing 98 8. Nursing Homes 101 9. Miscellaneous 101 K. Transportation 102 1. Motor Vehicle Operation 102 2. Public Transportation Services 107 3. Private Transportation Services 107 4. Buses 110 5. Air Travel 110 6. Other Transportation Sources 110 7. Bibliography 111 L. Education 112 1. Public Schools 112 2. G.E.D. Examinations 112 3. Colleges And Universities 113 4. Vocational-Technical Schools 117 5. Continuing Education 120 6. Other Training Programs 120 7. Funding. 121 M. Sexual Functioning 122 N. Recreation 126 1. Travel 126 2. Sports And Recreation 127 3. Recreational Organizations 130 4. Theaters, Restaurants And Special Events 131 O. Publications 132 1. New England Spinal Cord Injury Foundation Library 132 2. Subscription Publications 132 3. Resource Publications 134 4. Books Of General Interest 135 5. Library Services For Physically Handicapped 136 6. Films 137 7. Bibliographic Reference To Other Chapters 138 Glossary 139 Index 143 A. MEDICAL, REHABILITATIVE AND SELF-CARE The most important need of the spinal cord injured is quality medical services from the moment of injury, continuing through hospitalization, rehabilitation, and return to the community. Primary acute treatment is usually directed to- ward stabilization of the fracture which often has caused the injury. In both the acute and rehabilitative stages, special attention is given to the care of the skin as well as bowel and bladder functions, and the maintenance of joint range and muscle strength. In addition, regard to the economic and psychological impact of the injury is vital during this period. This chapter provides essential informa- tion about comprehensive medical facilities, rehabilitation centers, and self care concerns. For more definitive information, contact your local medical society, your state hospital association, or the New England Spinal Cord Injury Founda- tion. 1. EMERGENCY MEDICAL SERVICES 1 An adequate program for spinal cord injuries must start with an efficient and safe way of transporting the patient to a facility providing the proper medical- surgical care. Many hospitals are able to handle spinal cord injuries once the pa- tient is brought in, but improper transportation of injured persons often adds to the injury of the spinal cord. A key element in limiting the degree of damage to a person who has suffered a spinal cord injury is the quality of the emergency medical care he receives. In some cases proper emergency care will avoid paraplegia. Basically there are three components of emergency medical services. They are first responders, ambulance personnel and transportation, and hospital emergency rooms. First Responders - Firefighters, police officers and the general public who may reach the scene of an accident and will attempt to, or be required to, render care must be oriented to the possibility of spinal cord injury. This orientation centers around the mechanisms which will prevent spinal cord injury; the rendering of immediate life saving care, e.g. airway maintenance, artificial ventilation, artifi- cial circulation, control of hemorrhage and the removal of the victim to avoid further danger to the person's life. Ambulance Personnel - All ambulance personnel must be trained to recognize the mechanics which might produce injuries involving the spinal cord and to exercise the appropriate skills for the handling of such patients. These skills include: (a) primary and secondary survey of the patient; (2) immobiliza- tion; (3) removal and (4) transportation. Hospital Emergency Services - Ideally, transportation should be to a hospital capable of providing continuity of care including emergency, acute, rehabilita- tion, reintegration into the community, and maintenance. In many cases, how- ever, persons who have sustained a spinal cord injury are delivered to a more limited facility. An initial treatment facility for emergency care must provide the following: 24-hour emergency service with 24-hour on-site physician coverage Capability of providing immediate life support and resuscitation Diagnostic capability for simple examination including routine laboratory and radiographic examination Application of appropriate traction as indicated Once the injured person's general condition is satisfactory, a decision must be made whether to admit to the initial facility or transfer to a facility for compre- hensive care. A maximum of two hours between the time of injury and recep- tion into an institution providing comprehensive care is essential for optimal results. For further information on hospital emergency services contact your state Em- ergency Medical Service (E.M.S.) office or the New England Spinal Cord Injury Foundation. Also, for more definitive standards of care, see "Standards and Cri- teria of Care" published by the Spinal Injury Foundation. There is a great variety of sophistication among ambulance services and within the New England states. Listed below are the E.M.S. components of the state governments: Hartford, Connecticut 06106 2 61 So. Spring Street 566-5489 Concord, New Hampshire 03301 271-3187 295 Water Street Augusta, Maine 04330 Davis Street 622-4676 Providence, Rhode Island 02904 277-2401 600 Washington Street Boston, Massachusetts 02116 115 Colchester Avenue 542-8784 Burlington, Vermont 05401 656-3511 or 862-5701 2. HOW TO KNOW IF YOU ARE GETTING THE BEST CARE (Reprinted from MAP Resource Directory, March, 1975.) The following is taken from the National Paraplegia Foundation booklet called "How to Get Help If You are Paralyzed." It is by no means an exhaustive out- line. However, the points made are extremely important and worthy of inclusion here. Are you in the best hospital for you? The hospital where you are is probably a good one, but they may not have all of the experience, staff and equipment you need for fast recovery. Ask some questions to find out. How many paraplegics or quadriplegics do they have now or have they had recently? Is there a special ward for them? If paras and quads come here from other places, the hospital must have the needed care and the staff knows about caring for this disability. Is the hospital connected with a medical school? If it is, chances are doctors and staff have more opportunities to keep up with the latest in many areas of medicine. Does your doctor feel you would have better special care for your disability at another hospital? Take his advice even if the other hospital is far away or expensive. Has anyone on the staff mentioned lack of equipment needed for your treat- ment? Special equipment for rehabilitation is expensive and hospitals speci- alizing in treating disabilities buy it while smaller hospitals can't afford it. Are you receiving the best care for your disability? Care at your hospital is probably the best the staff can give, but there are some types of care for the newly disabled that are very important for your future health. Are you getting the following care? Does the staff have you drink lots of water? Your kidneys and bladder need the flushing action of a lot of water passing through. Is the staff watching bowel function closely? Bowel function needs help, such as enemas, for awhile. A tube called a catheter is also needed, at least for a while, to help with bladder function. Does the staff check your heels, ankles, hips and other bone areas for redness at least once a day? With the changes that have happened in circulation and skin, pressure sores develop very quickly. It may take months to heal a sore that happened in a few hours. The hospital staff should be taking precautions that no area of your body has continual pressure on it. 3 Does the hospital have an O.T. and a P.T.? Do the nurses or other staff move your arms, legs and other paralyzed parts of the body at least 45 minutes a day to keep them limber? Paralyzed muscles will beçome very tight and joints will become stiff if not moved frequently. They may give many prob- lems in the future. Ask your doctor if he knows about a hospital that specializes in treatment of those with paralysis or if he can find out from groups to which he belongs. Ask your social worker, therapist, clergyman or other person to help you find out about specialized centers. Find out what qualifications are needed for admission to a center specializing in treatment of disabilities. There will most likely be papers for the doctor to sign. Start planning as early as possible. There may be a waiting period. Don't be afraid to pester doctors, social workers and administrators for help. 3. PHYSICIAN SPECIALTIES The most common physician specialities a spinal cord injured person will need are: Neurosurgeon - A physician who specializes in management and surgery of the nervous system. Orthopedist (Orthopedic surgeon) - A physician who specializes in the pre- servation and restoration of the function of the skeletal system (i.e. bones, joints and associated structures). The orthopedic surgeon also undertakes many non-surgical tasks such as the prescribing of corrective devices (e.g. braces), and working with a physiatrist in the formulation of a rehabilitation plan. Physiatrist (Physical medicine) - A physician who specializes in the medical management of physical disability, by using physical energies or means to diagnose and treat diseases involving muscles, the nerves which activate them, ligaments, tendons, and joints. Physical treatment can include heat, cold, light, electricity, water, ultrasound, manipulation, massage, exercise, and mechanical devices. The physiatrist is ordinarily the key member of the rehabilitation team. Plastic Surgeon - A physician who specializes in restoration or reconstruction of body structures (e.g. soft tissues) that are defective or damaged by injury or disease (chiefly skin problems for spinal cord injured patients). Urologist - A physician who specializes in medical and surgical management of the urinary system (kidneys and bladder) and related organs and struc- tures. To locate a physician in your area, you can contact your State Medical Society: Connecticut - 160 St. Ronan Street, New Haven - Telephone: 865-0587 Maine - Box 250, Brunswick 04011 - Telephone: 725-6414 Massachusetts - 22 The Fenway, Boston 02115 - Telephone: 536-8812 New Hampshire - 4 Park Street, Concord 03301 - Telephone: 224-1909 Rhode Island - 106 Francis Street, Providence 02904 - Telephone: 331-3207 4 Vermont - 128 Merchants Row, Rutland 05701 - Telephone: 773-2933 4. COMPREHENSIVE CARE FACILITIES Few hospitals in the New England region provide the complete range of medical and rehabilitative care necessary for the spinal cord injured person, which be- gins at the moment of injury and lasts throughout his or her lifespan. Necessary services for a comprehensive care facility are: 24-hour emergency service with 24-hour on-site physician coverage Provision of immediate life support and resuscitation Neurosurgery Orthopedics Physical Medicine Urology Medical and surgical consultation Plastic surgery X-ray Department including specialized neuroradiologic capabilities Nursing and medical support services Full medical, surgical and laboratory services Trained staff to manage patients with unstable spines in special beds Trained staff in all phases of care such as bladder and bowel management (including technique of intermittent catheterization), skin care and posi- tioning, joint range maintenance, and muscle strengthening. Orthotic/prosthetic facilities capable of providing and, fitting all necessary adaptive and supportive devices such as special beds, wheelchairs, traction equipment, braces, corsets, splints, adaptive eating utensils, etc. Social work, psychology, and vocational rehabilitation services necessary to return a person to the community, including appropriate schooling and voca- tional placement. A program of patient, staff, and family education in spinal cord injury. A program of lifetime follow-up care, maintenance of appropriate records, and reporting. For additional information, see "Standards and Criteria of Care" published by the Spinal Injury Foundation. The following facilities are identified as being able to provide this comprehen- sive care: MAINE Eastern Maine Medical Center Maine Medical Center 49 State Street 22 Bramhall Street Bangor 04401 Portland 04102 Philip Mossman, M.D. John Lorentz, M.D. (207) 947-3711 (207) 871-0111 52 beds 40 beds MASSACHUSETTS Massachusetts General Hospital New England Regional Spinal Cord In- Fruit Street jury Center Boston 02114 University Hospital Robert Leffert, M.D. 75 East Newton Street 726-2000 Boston 02118 36 beds Murray Freed, M.D. 262-4200 New England Medical Center 16 beds (September 1, 1976 - 24 beds) 5 Rehabilitation Unit 185 Harrison Avenue West Roxbury Veterans Administration Hospital Boston 02011 1400 VFW Parkway Carl Granger, M.D. West Roxbury 02132 956-5120 Alain Rossier, M.D. 25 beds 323-7700 110 beds VERMONT Medical Center Hospital of Vermont DeGoesbriand Unit 417 Pearl Street Burlington 05401 Raymond L. Milhous, M.D. (802) 656-2345 16 beds 5. INTERMEDIATE CARE FACILITIES Many hospitals can provide emergency lifesaving procedures, a full range of med- cal care in the acute phase, and quality maintenance care, but cannot provide total rehabilitation and follow-up services. Once stabilization has occurred, transfer should then be made to either a comprehensive care or rehabilitation facility. Also, some hospitals have rehabilitation programs, but do not provide pecialized acute care for spinal cord injured persons. For further information, contact your state hospital association listed below or he New England Spinal Cord Injury Foundation. STATE HOSPITAL ASSOCIATIONS 5 Lewis Street 5 Executive Park Hartford, Connecticut 06106 Burlington, Massachusetts 01803 203) 249-6251 (617) 272-8000 33 Western Avenue 12 London Road Augusta, Maine 04330 Concord, New Hampshire 03001 207) 622-4794 (603) 224-2931 Hospital Association of Rhode Island Shelburne Inn 56 Pine Street Shelburne, Vermont 05482 Providence, Rhode Island 02904 (802) 985-2585 (401) 351-4450 6. REHABILITATION FACILITIES Rehabilitation is a learning process which helps to reshape a person's skills to achieve maximum independence. The success or failure of this training depends on the individual being ready, able, and willing to absorb this training, the quali- ty of care during the first few weeks following injury, the prevention of unneces sary complications, and the overall competency of the rehabilitation team. a. Inpatient Facilities In addition to the comprehensive facilities already noted, other major facilities in New England offering rehabilitation services and follow-up care once medical 6 stabilization has occurred are: Connecticut Gaylord Hospital, Gaylord Farm Road, Box 400, Wallingford 06492 Tel. (203) 269-3344 - Dr. Philip Arnold, Director 98-bed hospital with a 12-bed spinal cord injury unit. Offers in and out patient services, in P.T., O.T., recreational therapy, social and psychiatric services and has five physiatrists. Hartford Hospital, 80 Seymour Street, Hartford - Tel. (203) 524-2948 - James Hardy, M.D., Director Offers in and out-patient services in P.T., O.T., recreational therapy and has one physiatrist on its staff. St. Francis Hospital, 114 Woodland Street, Hartford - Tel. (203) 548-4000 Dr. E. Cecil Eagan, Director A 600-bed hospital which offers rehabilitative services in O.T. and P.T. has one physiatrist on staff. Massachusetts Berkshire Rehabilitation Center, 741 North Street, Pittsfield This non-profit, private rehabilitation center operates jointly with the Berkshire Medical Center (Pittsfield), Mercy Hospital Rehabilitation Uni (Springfield) and Putnam Memorial Hospital (Bennington, Vermont) in providing O.T., P.T. and physiatry services to these rehabilitation units Berkshire Medical Center, Pittsfield Has an 18-bed rehabilitation unit comprised of all kinds of disabilitie (spinal cord injury, stroke, etc.). Has P.T., O.T. and part-time physiatrist Braintree Hospital, 250 Pond Street, Braintree 160-bed facility for chronic illnesses and injury for persons with rehabilita tion potential. Presently has some spinal cord injured persons undergoing re habilitation. Has P.T., O.T., full-time physiatry, dental services, social ser vices, and consultants in neurology, orthopedics, urology, and psychiatry Brockton Veteran's Administration Hospital, Spinal Cord Injury Unit, Brockto 60-bed spinal cord injury unit which provides housing, medical, and speci alized services for veterans who have completed their initial rehabilitation Services include a full-time physiatrist and social worker, part-time P.T and O.T., psychologist, and consultant services as needed. Central Massachusetts Rehabilitation Center, 299 Lincoln St., Worcester 01605 Outpatient and private rehabilitation center which offers P.T., O.T., speech therapy, social services, and driving instruction for physically dis- abled persons. It is connected with an adjoining nursing home which pro- vides inpatient medical services. Population is primarily elderly, although spinal cord injured persons do occasionally utilize outpatient P.T., O.T., and driving services. Physiatrist available part-time. Lakeville Hospital, Lakeville A chronic disease and rehabilitation facility with full-time P.T., O.T., social services, and physiatrist. Treats spinal cord injured persons for re- habilitation and follow-up, although spinal cord injured population at any one time is small. Massachusetts Rehabilitation Hospital, 125 Nashua Street, Boston 02114 - Tel. (617) 523-1818 283 beds with a capacity for 17 spinal cord injured patients. Full P.T., O.T., speech, recreational therapy, and psychological support. Treats 7 spinal cord injured persons infrequently. Mercy Hospital Rehabilitation Unit, Carew Street, Springfield Under the umbrella of the Berkshire Rehabilitation Center, this 18-bed re- habilitation unit is staffed with a full-time physiatrist, P.T. and O.T. Ad- mits spinal cord injured patients only occasionally. New England Rehabilitation Hospital, 1 Rehabilitation Way, Woburn 01801 - Tel. 935-5050 10-12-bed general rehabilitation unit with high percentage of spinal cord injury admissions per year (approximately 20). Has full-time physiatrist, P.T., O.T., social services and psychologist. Western Massachusetts Hospital, 91 East Mountain Road, Westfield A chronic disease and rehabilitation facility with limited P.T., O.T. and social services. Part-time physiatrist. Spinal cord injury population has been extremely small. New Hampshire Crotched Mountain Rehabilitation Center, Greenfield 03047 - Tel. 547-3311 Offers skilled and intermediate nursing care, residential school programs, residential vocational evaluations, limited vocational training, driver training. Outpatient Facilities Most of the facilities listed above also have outpatient clinics which provide fol- ow-up services as needed. Some facilities offering only outpatient and home care are: Connecticut Easter Seal Rehabilitation Center of Eastern Fairfield County 226 Mill Hill Avenue, Bridgeport 06610 - Tel. 366-7551 Hartford Easter Seal Rehabilitation Center, Inc. 80 Coventry Street, Hartford 06112 Easter Seal Central Connecticut Rehabilitation Center, Inc. Meriden-Wallingford Hospital, 181 Cook Avenue, Meriden 06450 Easter Seal Goodwill Industries Rehabilitation Center, Inc. 20 Brookside Avenue, New Haven 06515 - Tel. (203) 389-4561 Easter Seal Rehabilitation Center of Southwestern Connecticut, Inc. 26 Palmer's Hill Road, Stamford 06902 - Tel. (203) 325-1544 Easter Seal Rehabilitation Center of Southeastern Connecticut, Inc. 216 Norwich-New London Turnpike, Uncasville 06382 - Tel. (203) 848-9264 Easter Seal Rehabilitation Center of Greater Waterbury, Inc. 22 Tompkins Street, Waterbury 06795 - Tel. (203) 754-5141 Maine Central Maine General Hospital 300 Main Street, Lewiston - Tel. 795-0111 Mercy Hospital 8 144 State Street, Portland 04101 - Tel. 774-1461 Mid-Maine Medical Center North Street, Waterville 04901 - Tel. 873-0621 Massachusetts Rehabilitation Center of Worcester County 535 Lincoln Street, Worcester 01605 - Tel. (617) 852-1626 New Hampshire Easter Seal Rehabilitation Center for Crippled Children and Adults 80 Tarrytown Road, Manchester 03103 - Tel. 622-6438 The Portsmouth Rehabilitation Center Interstate By Pass, Portsmouth 03801 - Tel. 436-5716 7. GOING HOME The following issues should be explored before being discharged from a rehabil tation facility and/or hospital setting: Are you learning about your body and what you must know to take care of it You must be able to explain your needs to other people and be able to teac them what they can do to help you manage your needs. Skin Care - What must you do to prevent pressure sores? Urinary function How much liquid should you drink each day? Why? Bowel training and control - What is needed to insure accident-free bowe function? What kinds of foods should you eat and why? How can you control you weight? What is needed for the care and cleaning of: Urinary supplies Elastic stockings and corsets Braces and splints Wheelchairs Wheelchair cushions Mobility - Can you change position in bed, transfer from wheelchair to car, onto toilet, in and out of bath or shower, get on and off the floor? Can you get where you want in your wheelchair? Can you drive a car? Activities of daily living - Can you feed yourself, dress yourself, bathe, brush your teeth, answer the telephone, get a drink from the refrigerator, make a sand- wich, and so on? What should be done for: A cold or cough? Swelling of feet or legs? Range of motion and exercise? Medication? Spasms? Autonomic dysreflexia? Going to see the doctor: 9 How will arrangements be made for routine check-ups at a spinal cord injury center? Why do you need a family doctor? 8. SELF-CARE Worrying about daily inconveniences such as bathroom care and general groom- ing is counterproductive to an independent life. Leaking catheters, overflowing bags, or "accidents" in general are indeed annoying and, if not controlled, can needlessly occupy a great deal of one's time and delay one's rehabilitation. Bladder and bowel care can be controlled if a routine is established. Whether one has an indwelling catheter, external catheter, ileal diversion or self-catheterizes, "regularity" must apply. Catheters and bags must be changed at definite inter- vals to maintain cleanliness and to reduce the chance of bacteria and infection (check with physician on what to do). Catheters must be cleaned with an ap- propriate solution frequently. Set aside definite times of the day for these simple tasks. Note color of urine and normal appearance of urine for you, so that a noted change will be detected. Again, if you have a routine you will constantly be aware of irregularities and can notify your physician if a correction is needed. A bowel regime should also be established. Attempt to take care of this at a scheduled time, for example, every day at 5:00 p.m. or whatever time is suit- able. When a program has been established and with proper diet, you can help eliminate the problems of bowel control. Establishing routines cannot be over- emphasized, and tasks accomplished routinely are more easily remembered and become second nature. Bathing frequently is desirable and drying oneself adequately is important in re- ducing excessive moisture on skin, which increases friction when in contact with another surface, i.e. can lead to pressure sores. Use powder as a drying agent. Bedding is individualistic, and what is correct for one person may be inadequate for another. Lying in bed can lead to pressure sores if one does not turn periodi- cally from side to side. For some, sleeping on one's stomach is optimal. Clothing, too, is up to the individual, but special attention should be given to clothing weight. Naturally, heavier clothing is worn in winter than in summer thus winter months or cool months are important as proper attire is essential in maintaining body temperature. The most susceptible areas to cold are feet and hands, although legs, thighs, and chest areas are not to be minimized. In cold weather it is advisable to wear appropriate footwear such as heavy socks and in sulated boots. For the lower extremities, long underwear or thermal underwear is recommended (note that underwear should be smooth in texture, as any ridges can cause pressure and irritation to skin). Over this should be worn corduroy material or wool. The same can apply for upper extremities, wearing a WOO shirt or ski parka over the underwear. With muscle atrophy there is a decrease in circulation of blood which is primar ily responsible for the maintenance of normal body temperature. Any coldness in contact with the body decreases blood flow and lowers body temperature therefore, frostbite in cold areas for people with poor circulation is far more likely. Cold weather is bad for anyone but with muscle atrophy, the cold sets in 10 rapidly. To enjoy winter, dress appropriately; it is both easy and vital. Again) dressing is individualistic and speed can come only with practice, whether assis- tance is needed or not. Transferring from an object to wheelchair and back requires care in order to re- duce the chance of skin irritation on the buttocks. Proper cushioning material should be utilized in automobiles, chairs and wheelchairs to assure comfort and protection against pressure sores. The person using the wheelchair cushion should be sure that it functions properly. Whenever you leave your wheelchair to lie down, check the buttocks for red or pinkish areas, particularly around the bony prominences. Do this daily! Shifting one's position frequently in the wheelchair gives the seated area a chance to "breathe" and allows increased blood flow to the tissues to maintain a healthy level, thus decreasing chances of pressure sores. If you shift frequently, avoid unnecessary friction while transferring, maintain proper skin hygiene, and relieve pressure completely (at bedtime), then pressure sores should be non-existent. Urinary and bowel supplies in general include catheters and urine bags, ileal diversion bags, suppositories, and antiseptic and cleansing solutions. You and your physician can determine what best serves your needs. For additional infor- mation on supplies, see the chapter on Equipment. 9. HOME HEALTH AGENCIES Health care services in the home are provided throughout New England by certi- fied home health agencies, some of which are visiting nurse associations, and in some cases, public health nursing programs. Not all of the services listed below are available in every home health agency. Services are provided under the orders of an attending physician and are most often covered by Medicare, Medicaid, and/or private insurers. Those individuals not covered by insurance usually pay on a fee-per-visit basis. Services provided may include: Skilled part-time nursing. care Teaching others (e.g. a family member) care of the sick or handicapped at home Evaluations and referrals to other services as needed Medical social services Physical therapy Occupational therapy Speech therapy Home health aides* Nutritional guidance Home evaluations for architectural barriers Homemaker services' *Home health aides services, under the supervision of a Registered Nurse (R.N.), provide personal care assistance in dressing, ambulating, and transferring. **Homemaker services provide simple meal preparation, light laundry and ironing, light housework, child care, grocery shopping, errand running, and other related activities. Connecticut Andover Columbia-Hebron-Andover Health Service 228-9428 Homemaker-Home Health Aide Service 423-6331 Ansonia Public Health Nursing & Homemaker Service 735-7468 Ashford Public Health Nursing Assn. 974-1564 11 Homemaker-Home Health Aide Service 423-6331 Avon Public Health Nursing Assn. 678-1505 The Valley Homemaker Service 658-4174 Barkhamsted Regional Health Services, Inc. 379-8561 Homemaker-Home Health Aide Service 379-0636 Beacon Falls Waterbury Visiting Nurses Assn. 753-9273 Berlin Berlin Public Health Nursing Service 828-3501 Community Health Services 229-3759 Bethany Regional Visiting Nurse Agency 288-6471 Homemaker Services Bureau 777-4736 Bethel Bethel Visiting Nurse Assn. 743-9231 Bethlehem W. Bradford Walker Community Health Assn. 672-6053 Bloomfield Visiting Nurse Assn. of Hartford 243-2511 Family Service Society 278-9374 Bolton Rockville Public Health Nursing Assn. 872-9163 Manchester Homemaker Service 643-9511 Bozrah Public Health Nursing Service 889-2375 Branford Branford Visiting Nurse Assn. 488-1609 Homemaker-Home Health Aide Service 488-9800 Bridgeport Visiting Nurse Assn. 366-3821 Homemaker-Home Health Aide Dept. 368-4291 Bridgewater Visiting Nurse Assn. 354-2216 Bristol Bristol Visiting Nurse Assn. 583-1644 Homemaker Service of Bristol Area 589-2262 Brookfield Danbury Visiting Nurse Assn. 792-4120 Brooklyn Nursing & Health Service 774-8767 Quinebaug Valley Homemaker-Home Health 928-5940 Burlington Bristol Visiting Nurse Assn. 583-1644 Homemaker Service of Bristol Area 589-2262 Canaan W. Bradford Walker Community Health Assn. 672-6053 Housatonic Homemaker-Health Aide Service 672-6816 Canterbury Quinebaug Valley Homemaker-Home Health 928-5940 Canton Canton Public Health Nursing Assn. 693-8502 Valley Homemaker Service 658-4174 Chaplin Public Health Nursing Agency 455-9676 Homemaker-Home Health Aide Service 423-6331 Cheshire Cheshire Public Health Nursing Service 272-5627 Chester Chester Public Health Nursing Service 526-9298 Clinton Clinton Public Health Nursing Service 669-2556 Hammonasset Homemaker Assn. 245-1403 Colchester Colchester Public Health Nurse Agency 537-3080 Public Health Nursing Services 889-2375 Colebrook Regional Health Services 379-8561 Winchester Area Homemaker-Home Health Aide 379-0636 Columbia Community Health Service 228-9428 Homemaker-Home Health Aide Service 423-6331 Cornwall W. Bradford Walker Community Health Assn. 672-6053 Housatonic Homemaker-Health Aide Service 672-6816 Coventry Public Health Nursing Assn. 742-7312 Homemaker-Home Health Aide Service 423-6331 Cromwell Cromwell Public Health Nursing Service 346-2921 Greater Middletown Homemaker Service 344-0366 Danbury Danbury Visiting Nurse Assn. 792-4120 Darien Public Health Nursing Assn. 655-1742 12 Stamford-Darien Homemaker Service 327-1860 Deep River Deep River Public Health Nursing Service 526-5432 Derby Public Health Nursing & Homemaker Services 735-7468 Durham District Nurse Assn. of Middletown 346-9621 Greater Middletown Homemaker Service 344-0366 East Granby Visiting Nurse Assn. 688-3675 East Haddam East Haddam Public Health Nursing Service 873-9029 E. Hampton District Nurse Assn. 346-9621 Greater Middletown Homemaker Service 344-0366 E. Hartford Public Health Nursing Service 289-2781 Family Service Society 278-9374 East Haven Visiting Nurse Assn. 777-5521 Homemaker Services Bureau 777-4736 East Lyme East Lyme Nursing Assn. 739-8698 Homemakers Service of New London 443-1976 E. Windsor East Windsor Visiting Nurse Assn. 623-2304 Eastford Public Health Nursing Assn. 974-1564 Quinebaug, Valley Homemaker-Home Health Aide 928-5940 Easton Public Health Nursing Assn. 268-6291 Homemaker-Home Health Aide Dept. 368-4291 Ellington Rockville Public Health Nursing Assn. 872-9163 Manchester Homemaker Service 643-9511 Enfield Enfield Visiting Nurse Assn. 745-1457 Homemaker Service of Enfield 745-0371 Essex Essex Public Health Assn. 767-0186 Fairfield Public Health Nursing Service 259-5295 Homemaker-Home Health Aide Dept. 368-4291 Farmington Farmington Visiting Nurse Assn. 673-3271 Valley Homemaker Service 658-4174 Franklin Public Health Nursing Service 889-2375 Glastonbury Glastonbury Visiting Nurse Assn. 633-2011 Family Service Society 278-9374 Goshen Walker Community Health Assn. 672-6053 Housatonic Homemaker-Health Aide Serv. 672-6816 Granby Granby Public Health Nursing Assn. 653-2906 Valley Homemaker Service 658-4174 Greenwich: Greenwich Health Dept.-Public Health Nurs. 869-8800 Greenwich Hospital-Home Care Dept. 869-7000 Greenwich Homemaker Service 869-8800 Griswold Griswold Public Health Nursing Service 376-9835 Public Health Nursing Service 889-2375 Groton Groton Public Health Nursing Service 445-7455 Homemakers Service of New London 443-1976 Guilford Guilford Public Health Nurse Assn. 453-2763 Homemaker-Home Health Aide Service 453-2763 Haddam Haddam Public Health Nursing Assn. 345-4621 Greater Middletown Homemaker Service 344-0366 Hamden Regional Visiting Nurse Agency 288-6471 Homemaker Services Bureau 777-4736 Hamden Dept. of Health 288-5641 Hampton Public Health Nursing Agency 455-9676 Homemaker-Home Health Aide Service 423-6331 Hartford Visiting Nurse Assn. 243-2511 Family Service Society 278-9374 Hartford Health Dept. 566-6330 13 Hartland Granby Public Health Nursing Assn. 653-2906 Harwinton Brooker Health Center Visiting Nurse Serv. 482-6518 Hebron Community Health Service 228-9428 Homemaker-Home Health Aide Service 423-6331 Kent New Milford Visiting Nurse Assn. 354-2216 Housatonic Homemaker-Heaith Aide Service 672-6816 Killingly Nursing and Health Service 774-8767 Quinebaug Valley Homemaker-Health Aides 928-5940 Killingworth Clinton Public Health Nursing 669-2556- Hammonasset Homemaker Assn. 245-1403 Lebanon Community Health Service 228-9428 Homemaker-Home Health Aide Service 423-6331 Ledyard Ledyard Public Health Nursing Service 464-7253 Homemakers Service of New London 443-1976 Lisbon Griswold Public Health Nursing Service 376-9835 Public Health Nursing Service 889-2375 Litchfield Brooker Memorial Health Center Visiting Nurse 482-6518 Lyme East Lyme Nursing Assn. 739-8698 Homemakers Service of New London 443-1976 Madison Madison Public Health Nursing Assn. 245-2333 Hammonasset Homemaker Assn. 245-1403 Manchester Manchester Public Health Nursing Assn. 649-5389 Manchester Homemaker Service 643-9511 Mansfield Public Health Nursing Assn. 423-8849 Homemaker-Home Health Aide Service 423-6331 Marlborough Community Health Service 228-9428 Homemaker-Home Health Aide Service 423-6331 Meriden Meriden Public Health & Visiting Nurse Assn. 235-5714 Family Service Assn. 235-0511 Middlefield District Nurse Assn. 346-9621 Greater Middletown Homemaker Service 344-0366 Middletown District Nurse Assn. 346-9621 Greater Middletown Homemaker Service 344-0366 Milford Visiting Nurse Assn. 878-5967 Milford Health Dept. 878-1731 Milford Homemaker Service 878-5060 Monroe Public Health Nursing Service 268-9601 Homemaker-Home Health Aide Dept. 368-4291 Montville Montville Visiting Nurse Assn. 848-9541 Homemakers Service of New London 443-1976 Morris Walker community Health Assn. 672-6053 Naugatuck Naugatuck Public Health Nursing Service 729-4571 Waterbury Visinting Nurses Assn. 753-9273 Homemaker Services 753-3187 New Britain Community Health Services 229-3759 New Canaan Visiting Nurse Assn. 966-9591 New Fairfield Family and Child Aid 748-5689 New Hartford Regional Health Services 379-8561 Homemaker-Home Health Aide Service 379-0636 New Haven Visiting Nurse Assn. 777-5521 Yale-New Haven Hospital-Home Care Dept. 436-1914 Homemaker Services Bureau 777-4736 New London Visiting Nurse Assn. 442-4329 Homemakers Service 443-1976 14 Department of Health 442-9034 New Milford Visiting Nurse Assn. 354-2216 Family and Child Aid 748-5689 New Preston Visiting Nurse Assn. 868-7425 Newington Visiting Nurse Assn. 243-2511 Family Service Society 278-9374 Newtown Danbury Visiting Nurse Assn. 792-4120 Family and Child Aid, Inc.. 748-5689 Norfolk Homemaker-Home Health Aide Service 379-0636 No. Blanford Public Health Nursing Assn. 484-9655 Homemaker-Home Health Aide Service 488-9800 No. Canaan Visiting Nurse Assn. 824-5801 Housatonic Homemaker-Health Aide Service 672-6816 No. Haven Regional Visiting Nurse Agency 288-6471 Homemaker Services Bureau 777-4736 No. Stonington Public Health Nursing Service 535-2850 Homemakers Service of New London 443-1976 Norwalk Department of Health 838-7531 Family and Children's Aid, Inc. 847-3801 Norwich Public Health Nursing Service 889-2375 Norwich Health Department 887-2430 Old Lyme East Lyme Nursing Assn. 739-8696 Homemakers Service of New London 443-1976 Old Saybrook Public Health Nursing Service 388-3067 Hammonasset Homemaker Assn. 245-1403 Orange Public Health Nursing Service 799-2118 Homemaker Services Bureau 777-4736 Oxford Public Health Nursing & Homemaker Services 735-7468 Plainfield Public Health Nursing Assn. 564-7203 Quinebaug Valley Homemaker-Health Aide Serv. 928-5940 Plainville Community Health Services 229-3759 Plymouth Public Health Service 589-8083 Pomfret Public Health Assn. 928-5008 Quinebaug Homemaker-Health Aide Service 928-5940 Portland District Nurse Assn. 342-3300 Middletown Homemaker Service 344-0366 Preston Public Health Nursing Service 889-2375 Prospect Waterbury Visiting Nurses Assn. 753-9273 Putnam Visiting Nurse Assn. 928-5470 Redding Danburry Visiting Nurse Assn. 792-4120 Family and Child Aid, Inc. 748-5689 Ridgefield District Nursing Assn. 438-8214 Rockville Public Health Nursing Assn. 872-9163 Manchester Homemaker Service 643-9511 Rocky Hill Visiting Nurse Assn. 243-2511 Family Service Society 278-9374 Roxbury Visiting Nurse Assn. 264-5065 Family and Child Aid, Inc. 748-5689 Salem Public Health Nursing Service 889-2375 Salisbury Public Health Nursing Assn. 435-9517 Housatonic Homemaker-Health Aide Service 672-6816 Scotland Public Health Nursing Agency 455-9676 Homemaker-Home Health Aide Service 423-6331 Seymour Public Health Nursing & Homemaker Service 735-7468 Sharon Walker Community Health Assn. 672-6053 Housatonic Homemaker-Health Aide Service 672-6816 15 Shelton Public Health Nursing & Homemaker Service 735-7468 Sherman New Milford Visiting Nurse Assn. 354-2216 Family and Child Aid, Inc. 748-5689 Simsbury Visiting Nurse Assn. 658-5215 Valley Homemaker Service 658-4174 Somers Rockville Public Health Nursing Assn. 872-9163 Manchester Homemaker Service 643-9511 So. Windsor Public Health Nursing Assn. 644-2511 Manchester Homemaker Service 643-9511 Southbury Visiting Nurse Assn. 264-5065 Homemaker Services 753-3187 Southington Public Health Assn. 621-3661 Family Service Assn. 235-0511 Sprague Public Health Nurse Assn. 822-8191 Public Health Nursing Service 889-2375 Stafford Public Health Nursing Assn. 684-2592 Stamford Visiting Nurse Assn. 324-4112 Stamford-Darien Homemaker Service 327-1860 Sterling Public Health Nursing Assn. 564-7203 Quinebaug Homemaker-Health Aide Service 928-5940 Stonington Visiting Nurse Assn. 535-0685 Homemakers Service of New London 443-1976 Stratford Visiting Nurse Assn. 375-1057 Homemaker-Home Health Aide Dept. 368-4291 Suffield Emergency Aid Assn. 668-2522 Thomaston Visiting Nurse Assn. 283-4887 Waterbury Visiting Nurse Assn. 753-9273 Thompson Public Health Assn. 923-9350 Quinebaug Homemaker-Health Aide Service 928-5940 Tolland Rockville Public Health Nursing Assn. 872-9163 Manchester Homemaker Service 643-9511 Torrington Brooker Health Ctr. Visiting Nurse Service 482-6518 Trumbull Public Health Nursing Service 268-9601 Homemaker-Home Health Aide Dept. 368-4291 Union Public Health Nursing Assn. 974-1564 Vernon Rockville Public Health Nursing Assn. 872-9163 Manchester Homemaker Service 643-9511 Voluntown Griswold Public Health Nursing Service 376-9835 Wallingford Visiting Nurse Assn. 269-1475 Family Service Assn. 235-0511 Warren New Preston Visiting Nurse Assn. 868-7425 Washington Visiting Nursing Assn. 868-2046 Waterbury Visiting Nurses Assn. 753-9273 Waterford Public Health Nursing Service 443-2304 Homemakers Service of New London 443-1976 Watertown Public Health Nursing Assn. 274-1086 Homemaker - Home Health Aide Services 753-3187 W. Hartford Visiting Nurse Assn. 521-1571 Family Service Society 278-9374 West Haven Visiting Nurse Assn. 777-5521 Homemaker Services Bureau 777-4736 Westbrook Public Health Nursing Service 399-7066 Hammonasset Homemaker Assn. 245-1403 16 Weston Public Health Nursing Service 227-4636 Visiting Homemaker Service 227-3969 Westport Public Health Nursing Service 227-4636 Visiting Homemaker Service 227-3969 Wethersfield Visiting Nurse Assn. 243-2511 Family Service Society 278-9374 Willington Public Health Nursing Assn. 974-1564 Homemaker-Home Health Aide Service 423-6331 Wilton Public Health Nursing Assn. 762-8958 Family and Children's Aid, Inc. 847-3801 Winchester Regional Health Services 379-8561 Homemaker-Home Health Aide Service 379-0636 Windham Visiting Nurse Assn. 423-2488 Homemaker-Home Health Aide Service 423-6331 Windsor Visiting Nurse Assn. 688-3675 Family Service Society 278-9374 Windsor Locks Public Health Nursing Assn. 623-4082 Wolcott Waterbury Visiting Nurses Assn. 753-9273 Homemaker Services 753-3187 Woodbridge Regional Visiting Nurse Agency 288-6471 Homemaker Services Bureau 777-4736 Woodbury Waterbury Visiting Nurses Assn. 753-9273 Homemaker Services 753-3187 Woodstock Public Health Assn. 928-5008 Quinebaug Homemaker-Health Aide Services 928-5940 Maine Auburn Androscoggin Home Health Services 784-9307 Bangor The Counseling Center 947-0366 Bangor District Nursing Assn. 942-6262 Caribou Aroostook Home Care Agency 498-2570 Bar Harbor Bar Harbor Public Health Nursing Assn. 288-5584 Bath Bath-Brunswick Regional Health Agency 443-4351 Biddeford United Community Health Services 284-6622 Blue Hill Four Town Nursing Service 374-5510 Kennebunk Kennebunk Public Health Nursing Assn. 985-3092 Kittery Kittery Public Health Nursing Assn. 439-0776 Portland Coordinated Home Health Service 774-1461 Community Health Services 774-5844 Rockland Mid-Coast Home Health Agency 594-5195 Sanford Community Health Assn. 324-3662 Portland So. Portland Public Health Nursing Assn. 799-7511 aterville Community Health Services 873-1127 Town of Wells Home Health Agency 646-2771 ork York Hospital Home Health Agency 363-4321 of Maine - Division of Public Health Nursing ublic Health Nurses employed by the Division are professional nurses with aining in public health. They provide the following services: Nursing services to people where these services are not offered by local or re- gional nursing or home health agencies - Northern Aroostook (Van Buren north) and York County with the exception of Sanford and coastal towns. Consultation to local nursing agencies, home health agencies, and school nurses to assist them in carrying out restorative health services programs spon- sored or administered by the Bureau of Health. Training and education to family members in home care and health mainten- 17 ance after discharge from an in-patient facility. Public Health Nurses can put you in touch with the nearest Home Health Agency. ublic Health Nurses are located in regional Health & Welfare offices. Telephone umbers are listed under "Maine, State of, Public Health Nursing". omemaker services may be requested by contacting the Homemaker services gency in your community. They are: uburn Androscoggin Home Health Services 784-9307 angor Visiting Homemaker Services 947-0366 iddeford York County Homemaker Services 282-3373 alais Washington County Homemaker Services 454-2382 aribou Diocesan Human Relations Services 498-2577 ortland Holy Innocents Child Home Care Center 773-2977 lockland Homemaker Services (800) 432-7802 /aterville Kennebec-Somerset Home Aid Services 873-1146 Massachusetts he Visiting Nurse Association (V.N.A.) provides the following within the home etting: Skilled nursing services Physical therapy Occupational therapy Home health aide homemaker services individual may refer him/herself to the V.N.A. with a written treatment rder from an M.D. Services are available seven (7) days a week as needed. The 22.00 per visit cost is generally assumed by Medicaid/Medicare or by private surance companies. It is important to note that a person receiving V.N.A. ervices through Medicaid/Medicare must continue to make progress in order to arrant continued financial support of these services. Offices Tel. No. Offices Tel. No. bington 878-1141 Boston 742-0900 Andover 475-1821 Braintree 843-0947 everly 927-2615 Bridgewater 697-4368 Offices Tel. No. Offices Tel. No. Brockton 587-2121 Medford 395-4685 Cambridge 547-2620 Milford 473-0862 Chatham 945-2869 Milton 698-4888 Chicopee 594-4702 Monson 267-9731 Danvers 774-1042 Natick 653-3081 Dedham 326-0381 Needham 444-0850 Easthampton 527-4303 Newton-Wellesley 244-4880 Fitchburg 342-4632 North Adams 663-9630 Gardner 632-1230 Northampton 584-1060 Greenfield 772-6969 Norwell 659-2342 Great Barrington 528-0130 Norwood 762-1240 Hamilton & Wenham 468-3123 Palmer 283-6881 Hanover 826-4971 Peabody 532-1780 Hanson 293-6341 Pittsfield 445-4594 18 Hatfield 247-5916 Quincy 472-2828 Haverhill 374-7473 Reading, Stoneham, Holbrook 767-3030 Wakefield & Woburn 944-7550 Holyoke 532-9461 Rockland 878-0095 Hyannis 771-3606 Somerville 623-3480 Lee 243-2100 Springfield 732-4145 Lenox 637-0183 Taunton 822-1447 Leominster 537-2322 Walpole 668-1066 Lowell 459-9343 Waltham 893-1405 Lynn 598-2454 Weston 899-2964 Marblehead 631-1200 Weymouth 335-6428 Marion 748-1020 Whitman 447-4742 Marlboro 485-8200 Williamsburg 268-7602 Medfield (Dover, Williamstown 458-8042 Medfield & Norfolk) 359-8505 Worcester 756-7176 Further information may be obtained from: Visiting Nurse Association Central Office 14 Somerset Street Boston, Massachusetts Tel. 742-0900 Home Health Aide & Homemaker Services 55 agencies throughout Massachusetts provide home health aide and/or home maker services within the home setting. The average cost of $4.00/hour plu transportation costs is generally assumed by Medicaid/Medicare or by private in surance companies. Because of the working characteristics of homemaker-hom health aide services, blocks of 4 hours or more on a given day are expected. Ex ceptions can, however, be considered on an individual basis. Services are avail able from 8:00-4:00 P.M. Beverly North Shore Community Action Program 922-5800 Boston Family Services Assn. of Greater Boston 523-6400 Jewish Family and Children's Homemaker Serv. 227-6641 Women's Educational & Industrial Homemaker Department 536-8210 Urban Homemaker-Home Health Aide Service 427-4470 Visiting Nurse Association of Boston 742-0900 Laboure Center 268-9670 Medical Personnel Pool 742-7490 Ralph M. Peace Associates 727-1420 rockton Greater Brockton Homemaker Service 588-6070 rookline Suburban Homemaker & Maternity Agency 232-7650 ambridge Homemakers, Inc. 661-1910 oncord Concord Family Service Society 369-4090 Homemaker-Home Health Aide Service 259-8556 all River Homemaker-Home Health Aide Service 672-9841 itchburg Homemaker-Home Health Aide Service 345-0361 ramingham Suburban Homemaking & Maternity Agency, Inc. 879-1516 ardner Catholic Social Service 632-3988 loucester Homemaker-Home Health Agency of Greater Cape Ann 283-7874 averhill Homemaker-Home Health Aide Service of Greater Haverhill 373-1141 lolyoke Holyoke Visiting Nurse Association 533-2733 19 yannis Cape Cod Homemaker-Home Health Aide Service 775-8181 Home Care Services 771-5431 Greenfield Franklin County Home Health Care, Inc. 774-2841 Lawrence Lawrence General Hospital (Ext. 241) 682-7442 Home Care Services 683-3137 "lymouth Greater Brockton Homemaker Service 746-1884 Lowell Family Service of Greater Lowell 459-9326 Malden Intercity Homemaker Service 332-4256 New Bedford St. Luke's Hospital 997-1515 Newton Intercommunity Homemaker Service 332-5970 North Adams North Adams Regional Hospital (Ext. 240) 663-3701 Northampton Homemaker-Home Health Aide Service of Hampshire County 586-3886 ittsfield Independent Home Services 443-2348 Quincy Homemaker Services for South Shore 773-1180 Southbridge Catholic Charities 765-5936 Harrington Hospital Home Care Dept. (Ext. 201) 764-2511 Springfield Springfield Visiting Nurse 732-4145 Child & Family Service of Springfield 737-1426 Springfield Community Service Center 781-4350 Homemakers, Inc. (Upjohn) 739-9654 Home Care Services 737-5307 Swampscott Homemaker-Home Health Aide Service of North Shore 599-1661 Taunton Taunton Visiting Nurse Association 823-0722 Vineyard Haven Martha's Vineyard Visiting Nurse Homemaker Service 693-1481 Walpole Norfolk-Bristol Homemaker-Home Health Service 668-4680 Watertown Home Care Services 926-2770 Winchester North Metropolitan Homemaker Services 729-0505 Worcester Catholic Charities Diocese of Worcester 791-7171 Worcester Community Service Center (Ext. 283) 791-3621 Family Service of Worcester 756-4646 Jewish Family Service of Worcester 755-3101 Home Care Services 735-2911 Homemakers Upjohn 791-2323 Further information may be obtained from: Mass. Council of Homemakers Home Health Aide Services 34½ Beacon Street, Boston, Massachusetts New Hampshire Berlin Berlin City Health Department 752-1272 Bristol Newfound Area Nursing Assn. 744-273 Charlestown Fall Mountain Visiting Nurse Assn. 862-3321 Claremont Claremont Visiting Nurse Assn. 543-3791 Chesterfield Chesterfield Home Health Agency 363-433 Colebrook Northern Coos Community Health Assn. 237-8081 Concord Concord Regional Visiting Nurse Assn. 224-4093 Conway Home Health Agency of N. H. 356-332 Vaughn Community Health Service 356-597! Derry Derry Visiting Nurse Assn. 432-777 Dover Dover District Nursing Assn. 742-792 Durham Oyster River Home Health Agency 868-5055 Enfield Mascoma Area Health Agency 632-723 Exeter Exeter Area Visiting Nurse Assn. 772-298 20 Farmington Rural District Health Council 755-298 Franklin Franklin Visiting Nurse Assn. 934-345 Gilsum North Cheshire County Home Health Service 357-0969 Gorham Gorham District Nurse Assn. 466-3334 Groveton Groveton Public Health Nursing Service 636-1124 Hampton Seacoast Visiting Nurse Assn. 926-206 Hanover Hanover Visiting Nurse Service 643-4123 Hillsboro Hillsboro Town Nurse 464-542 Hinsdale Hinsdale Public Health Nursing Assn. 336-569 Hopkinton Hopkinton Public Health Nurse Assn. 746-3213 Keene Keene Visiting Nurse Assn. 352-4309 Laconia Lakes Region Community Health Agency 524-8444 Lancaster Public Health Nursing Assn. 788-2366 Lebanon Lebanon Dept. of Public Health Nursing 448-1451 Littleton North Country Home Health Agency 444-5311 Lyme Lyme Home Health Agency 795-2661 Manchester Manchester Visiting Nurse Assn. 622-3781 City of Manchester Health Department 625-6429 Marlborough Marlborough Community Visiting Nurse Assn. 876-401 Meredith Meredith Public Health Nursing Assn. 279-661 Merrimack Merrimack Valley Home Health Care Assn. 424-3822 Milan Milan Home Nursing Center 449-3461 Milford Souhegan Valley Community Nursing Assn. 673-3460 Moultonborough Moultonborough Visiting Nurse Assn. Service 476-2350 Nashua Good Cheer Society-Visiting Nurse Service 882-2941 Nashua Health Department 883-0921 New London Kearsarge Visiting Nurse Assn. 526-4077 Newport Newport Area Home Health Assn. 863-1419 Orford Orford Community Health Service 353-4853 Ossipee Ossipee Nursing Service 539-4303 Peterborough Monadnock Community Visiting Nurse Assn. 924-3721 Plymouth Pemi-Baker Home Health Agency 536-2232 Portsmouth Portsmouth Community Health Services 436-0815 Rochester Rochester Visiting Nurse Assn. 332-1133 Salem Salem District Nursing Assn. 898-4731 Somersworth Tri-Area Visiting Nurse Assn. 692-2112 Sunapee Lake Sunapee Nursing Assn. 763-5778 Tamworth Tamworth Community Nurse Assn. 323-8511 Tilton-Northfield Tilton-Northfield Nursing Assn. 286-4241 Troy Troy Visiting Nurse Assn. 242-3094 Walpole Walpole Visiting Nurse Assn. 756-9886 Weare Weare Visiting Nurse Assn. 529-2641 Winchester Winchester District Nursing Assn. 239-4352 Wolfeboro P.H.N. Assn. of Wolfboro 569-2729 New Hampshire Homemaker Services Carroll County Carroll County Home & Health Care Services 356-3750 Strafford County Strafford County Homemaker-Home Health 742-6257 Sullivan County Sullivan County Homemaker Services 542-6422 Portsmouth Area Homemaker-Home Health Aide Service 436-9059 Rhode Island Home Care Association of Greater Providence has working relationships with six hospitals and serves 13 communities. 21 Little Compton Little Compton Public Health Nursing Assn. 635-2381 Pascoag Northwest Community Nursing & Health Serv. 568-6296 Pawtucket Visiting Nurse Service 723-1528 Providence Home Care Assn. of Greater Providence 521-2633 Homemaker-Home Health Aide Services 781-8520 Metropolitan Nursing & Health Services 331-8842 Visiting Nursing Sisters 861-9617 Newport Visiting Nurse Service of Newport 849-2100 Wakefield Community Homemaker Service 789-6265 Washington County Public Health Nursing 789-0232 Warren East Shore District Nursing Assn. 245-1500 Warwick Home Health Agencies of R. I. 738-8280 West Warwick Kent County Visiting Nurse Assn. 821-6900 Woonsocket Visiting Nurse Service 769-5670 Vermont Barre Central Vermont Home Health Agency 476-3292 Bennington Bennington Area Home Health Agency 442-5502 Brattleboro Brattleboro Public Health Nursing Service 254-4628 Burlington Visiting Nurse Assn. 658-1900 Chester Ellsworth Nursing Service 875-3020 Dorset Dorset Nursing Assn. 867-4409 Manchester Ctr. Manchester Health Services 362-2126 Middlebury Addison County Home Health Care Agency 388-7259 Morrisville Lamoille Home Health Agency 888-4651 Newport Orleans, Northern Essex Home Health Agency 334-7897 Randolph Community Human Services Agency 728-5059 Rutland Rutland Area Visiting Nurse Assn. 775-0568 Springfield Springfield Reg. Visiting Nurse Assn. 885-3318 St. Albans Franklin County Home Health Agency 524-6835 St. Johnsbury Caledonia Home Health Care Agency 748-8116 Waterbury Waterbury Public Health Assn. 244-7312 White River Junction Community Health Services 295-7516 Woodstock Woodstock Visiting Nurse & Public Health 457-1117 10. DENTAL CLINICS The Academy of Dentistry for the Handicapped operates a referral system which provides names, when available, of local dentists who are willing and able to treat handicapped individuals. Information can be obtained by writing to: Academy of Dentistry for the Handicapped 1240 East Main Street Springfield, Ohio (513) 323-0941 Maine Bangor St. Joseph's Hospital Dental Clinic 942-7993 All dental services are provided through this clinic. Fees are based on a slid- ing scale depending on income with a $2.00 basic fee. There is a waiting per- 22 iod of up to a year with the exception of emergency dental care. Portland Maine Medical Center Dental Clinic 871-2284 All dental services are provided through this clinic. Fees are based on a slid- ing scale depending on income. There may be a waiting period of a few months for an appointment. Vermont Burlington Burlington Dental Clinic 862-7954 Services include cleaning, bridge work, dentures, fillings, and fluoride treat- ment for Burlington residents who are on welfare. Out of town patients are accepted on a fee basis. Burlington Dental Hygiene Clinic 656-2587 Services: Oral examination, scaling and polishing of teeth, oral x-rays, dental health education. Anyone may use this clinic by appointment only. Fee $5.00. B. PSYCHOLOGICAL SUPPORTS AND SERVICES Spinal cord injury, in addition to its obvious physical ramifications, can result in the most catastrophic coping situation of an individual's life. Depression, anger, confusion, self-doubt, anxiety and many other emotions may surface throughout the period of adjustment to a cord injury, and if left unresolved, may continue over a period of years. In general, adequate psychological support for the spinal cord injured person is often not available. This lack of emotional support is perhaps due to many fac- tors: (1) physical and environmental needs often overshadow psychological needs; (2) the disability can be so overwhelming that its corresponding feelings are not allowed to surface; and (3) many persons involved with spinal cord injury are uncomfortable, unwilling, and/or afraid to discuss openly what the in- jury means to them on a personal level. 23 To follow are some general sources of counseling help available to all those who are affected by the impact of a spinal cord injury. Because the quality and avail- ability of these helping sources can and do vary considerably, a prior word of caution is needed. Explore, demand, persist in finding this help. Unresolved em- otional issues often resurface at later times and are manifested in counter-pro- ductive ways. Counseling provides a supportive, safe environment in which to remove masks, take risks, explore and test alternatives, and obtain objective feedback from another person-without the personal vulnerability and conse- quences of the outside "real" world. 1. Psychiatrists/Psychologists With the exception of the Veterans Administration system, few psychiatrists and psychologists are available for continuing counseling support through channels like rehabilitation programs. They can, however, be obtained privately on a fee- for-service basis, with the cost usually ranging in the area of $25-35 per one-hour session. If psychotherapy/counseling is needed as part of an individual's voca- tional rehabilitation program, the division of vocational rehabilitation will some- times sponsor this service. If this is not possible, arrangements can sometimes be made with an individual therapist for graduated, extended payments. For refer- ral information on psychiatrists and psychologists available in your area, contact your social worker, vocational rehabilitation counselor, family physician, or the appropriate Resource Coordinator of New England Spinal Cord Injury Founda- tion. 2. Clinical Social Workers In addition to providing overall support in the areas of discharge planning, finan- cial assistance, and community resources, many social workers, especially those in rehabilitation facilities, are willing and able to provide regular counseling sup- port to spinal cord injured persons and, in some cases, to their families. Also, social workers sometimes work out of private or public mental health centers and are available for private, fee-for-service counseling. 3. Rehabilitation Counselors Depending on individual skill levels, counselors. from rehabilitation facilities, div- isions of vocational rehabilitation, and colleges, can provide individual coun- seling support. 4. Clergy Local priests, ministers and rabbis can provide the opportunity for individuals and family members to discuss issues of concern. Most will willingly visit persons in the hospital or at home. 5. Mental Health Clinics Mental health clinics exist on both a public and private level and often have slid- ing scale fees based on one's ability (or inability) to pay. For information on these services in your area, call the State Department of Mental Health which can refer you to local clinics. 6. Groups Counseling groups are run by many sources, including private, non-profit organ- izations, and generally focus upon the ability of group members to assist each other in working through personal issues. An example of this option is Green- house, 12 Essex Street, Cambridge, Massachusetts 02139, (Telephone: 492- 24 0050) which periodically sponsors an intensive group experience on living with a physical handicap. 7. Caring Persons Among all the previous sources, the presence of a caring person, skilled or not, can be the strongest, most effective support available in helping an individual realize and work out his feelings about his injury and himself. To utilize this re- source, the following conditions must be present: (1) a willingness on both sides to explore and risk together; (2) an unconditional acceptance and understanding of one another; and (3) an ability to listen, reflect, feed back, and share what is communicated. A final word about psychological resources - to any person who, because of a difficult and catastrophic set of circumstances, is hurting on a gut level: search for and find a source of help and support. Despite its ambiguity, pain, or poten- tial risk, don't ignore a strong inner message to seek help. If a hundred phone- calls and contacts are required to overcome a hundred obstacles, persist. In the end, you need find only one caring, competent, and committed person with whom to share your feelings and to re-establish the process of feeling "O.K." and comfortable about who you are. C. LEGAL RIGHTS AND ASSISTANCE Spinal cord injured persons are entitled to the same constitutional rights as all other citizens of the United States. In addition, many Federal statutes support the legal rights of the physically disabled in areas of vocational rehabilitation, education, transportation, accessibility, medical services, tax exemptions, and social security benefits. Each state also has its own statutory extension of legal rights of the physically handicapped through a variety of laws. This chapter broadly identifies some of the major laws and rights which affect handicapped persons, as well as explores available sources of legal assistance. 1. FEDERAL LEGISLATION 25 The United States Constitution guarantees the individual rights of speech, assem- bly, and equal protection under the law. This guarantee applies to handicapped and able-bodied persons alike and makes illegal discriminatory treatment based on a disabling condition. It is this principle that governs the legal protection you should expect and, when necessary, pursue if you are handicapped. Because the majority of federal acts are outlined elsewhere in this directory, usually under the major category they apply to, they will not be repeated here. To assist in locating this information, however, the following is provided: Medicare: See Chapter on Financial Assistance Supplemental Security Income and Social Security Disability Insurance: See Chapter on Financial Assistance Tax exclusions and deductions: See Chapter on Taxes Education: See Chapter on Education Basic Education Opportunity Grants: See Chapter on Education Rehabilitation Act of 1973: See this Chapter, as well as chapters on Employ- ment and Architectural Barriers Employment-Vocational Rehabilitation The Rehabilitation Act of 1973 reflects a federal position of support for the rights and needs of severely disabled persons. It mandates that persons deemed severely disabled be assigned top priority status in the provision of vocational rehabilitation services. It also mandates that large employers develop an active program of recruiting qualified handicapped persons and attempting to architec- turally accommodate their needs. Persons wishing to obtain a copy of The Re- habilitation Act of 1973 may do so by contacting the Rehabilitation Services Administration (RSA) in Boston, Massachusetts (617) 223-6820. Although it is somewhat technical, it outlines several major areas of direct benefit to severely disabled people. National Health Insurance When legislated, a National Health Insurance plan will protect all Americans, in- cluding the severely disabled, against the staggering medical costs of a cata- strophic illness or injury. 2. STATE LEGISLATION Maine Human Rights In 1974, "physical handicap" was included as one of the conditions of life against which a person could not discriminate in housing, employment, or public accommodations. Accessibility of Public Buildings In 1967, the Maine Revised Statutes, Title 25, Part 7, Chapter 331, were amended to require that buildings constructed, in whole or in part with state funds, be accessible to physically handicapped persons. Further amendments in 1975 applied the construction standards to any structure specifically in tended as a place where five persons or more will be employed or for public 26 housing. Public housing was defined as "a minimum of 20 family units.' The standards also apply to any reconstructed public buildings, if the cost of the reconstruction or remodeling exceeds $100,000, and the reconstruction applies to the public sections of the building. As of July 1, 1976, all new and replaced curbs throughout the state must be ramped at the pedestrian crosswalks to provide access for all handicapped persons, including those in wheelchairs. Transportation Physically handicapped persons may apply to the Secretary of State, State House, Augusta, for a special license plate bearing the International Symbol of Accessibility. The physically handicapped person must be the registered owner of the vehicle, but it need not be a specially equipped vehicle. The special license plate will permit the person to park, free of charge, in public parking lots and at parking meters. It will also permit the handicapped person twice the amount of time in time-limited parking areas. In order to obtain the plate, a person must provide proof of disability from a licensed physician. This proof will remain on permanent file with the Secre- tary of State, and will not need resubmission for future registration. Voting Each voting district must provide one accessible polling place for elderly and handicapped voters. In multi-district municipalities, this polling place must accommodate all elderly and handicapped voters, even though they might not reside in the district. Persons can also vote by absentee ballot. In single poll- ing place towns, the alternate polling place is established by the town clerk. This could be in someone's home or garage; it could be in a store; but it must be accessible to all elderly and handicapped persons. In either instance, the Clerk of Elections or the town clerk must be informed ten (10) days prior to the date of the election. The law applies to all elections: local, state, and federal. Massachusetts Rights Handbook Published in April 1974, the "Rights Handbook" provides information on educational and medical affairs, vocational training, income taxes, automo bile taxes, and other special services. It is available free of charge from: Child Advocacy Project Easter Seal Society of Massachusetts 14 Somerset Street, Boston, Mass. 02108 Voter Registration Physically handicapped persons may vote in any election by absentee ballot, which must be notarized. Contact the Elections Commission of the town for procedures and deadlines, The League of Women Voters in many areas can usually assist with this process. Nondiscrimination Massachusetts law (Massachusetts General Laws Annotated Chapter 149, Section 24K) makes it illegal for an employer to refuse to hire or to fire any handicapped person solely because of his handicap. Any employer who dis- criminates in this way against any handicapped person is punishable by fine. If you feel you have been discriminated against, contact the Massachusetts 27 Department of Labor and Industry, 100 Cambridge Street, Boston, Massa- chusetts 02202, (617) 727-3461, your state bar association or a local legal assistance center. Access to Hospital Records Under Chapter III, Section 70 of the Massachusetts General Laws, all hos- pitals or clinics licensed by the Department of Public Health or supported in whole or in part by the Commonwealth must keep records of the treatment and medical history of the patients under their care. These records may be in- spected by the patient or his attorney as a matter of right. A copy of the re- cords must be provided upon payment of a reasonable fee. A patient's records must be kept for 30 years after discharge or final treatment. Accessibility and Use of Public Buildings All physically handicapped persons have a right to enter and use, with a guar- antee of safety, any building constructed by the Commonwealth of Massa- chusetts or by a state political organization. This applies to all buildings con- structed with public funds that are open to the public, and pertains to build- ings which were constructed, reconstructed, altered, or remodeled after Feb- ruary 6, 1968. Included are buildings of the Public Housing Authority, the Port Authority, the Parking Authority, the Massachusetts Turnpike Author- ity, building authorities of any public educational institutions. All physically handicapped people have the above rights regarding privately financed build- ings which are open to and used by the public, and includes transportation terminals, institutional buildings, commercial buildings more than two stories in height or employing more than forty people, buildings with places of as- sembly for more than 150 people, public areas and funeral homes, rest rooms in shopping centers, hotels, motels and dormitories which are con- structed, reconstructed, altered or remodeled after January 1, 1972. Housing No one can discriminate against or segregate a physically handicapped person with regard to state-aided, low-rent housing projects (Mass. Gen Laws Ann. Ch. 667 of the Acts of 1967, as amended by Chapter 812 of the Acts of 1970). The Department of Community Affairs has the responsibility of promulgating regulations for providing accessible housing. They are also responsible for the development of guidelines regarding the selection criteria in state-aided elderly/handicapped housing. Handicapped persons and their families have the right to "priority in placement in no less than five percent of all dwelling units of projects or parts of projects constructed for elderly persons of low income, provided the construction of such a project is initiat- ed after January 1, 1971." Education Persons eligible for a public school education may receive special transporta- tion services when needed to insure attendance in school. This applies to both public and private school settings. If the student is under age 22, he is entitled to complete his public school education (if he has not already done so) in a regular classroom of a neighborhood school. Contact the local school commit- tee or school department for specific information. (Chapter 766 of the Acts of 1972.) 28 Recreation Under Massachusetts General Laws Annotated Chapter 902 of the Acts of 1971, a handicapped person is permitted to enter a State Park in Massachu- setts without paying a car fee. This person must be travelling in a car bearing HP plates. This permission only applies to the use of State Parks during the day and will not be granted for a person using the parks overnight. Present- Iy, there are no other programs provided by the Division of Parks and Recrea- tion in the Department of Natural Resources. Their number is 727-3180. Automobile Plates Handicapped people are exempt from parking time limits and parking meter fees if their cars have a special handicapped person's (HP) license plate. Handicapped persons with HP plates may also park their cars without penalty or fine anywhere along the streets of the Commonwealth. The only excep- tions to this rule are double parking and parking in the wrong areas during snow removal. To be eligible for handicapped persons' plates, a person must: be the registered owner of the automobile to which the special plates are is- sued (The parent or guardian of a handicapped child may be entitled to handicapped plates if the car is registered in the name of the child.); and must be certified by a doctor that he or she has suffered the loss or perman- ent use of one or both feet, or one or both hands. To obtain HP plates, con- tact the office of the Registry of Motor Vehicles closest to your home. They will provide you with the proper forms. The annual fee for these special plates is $6.00. Vermont Voting Section 2 of Act No. 67 17 V.S.A. Section No. 148 PERMANENTLY DISABLED VOTES A person who is permanently disabled, so that he is unable to utilize his as- signed polling place without substantial difficulty; has similar difficulty in getting to a notary public as required by the absentee voter ballot provisions; and may be absent from his residence at such times as the justices of the peace might come to him; may file with the town clerk at least four days pri- or to first use, a statement signed and attested to by a medical doctor outlin- ing the nature of the permanent. disability. A voter who files this statement shall then be mailed an absentee voter ballot and an official return envelope. by the town clerk and must return this ballot and envelope to the town clerk before the polls are closed. Effective: April 13, 1973. Accessibility Act 253 - Section 1. 18 V.S.A. 1305 as amended: A person shall not construct or permit construction of a building to be used by the public if the state, county, or municipality is paying any part of the cost of its construction unless the building construction specifications at the time of construction are equal to the American Standards Association specifi- cations A117.1-1961, entitled "Making Buildings and Facilities Accessible to, And Usable by, The Physically Handicapped". The state board of education shall enforce this section when school funds are used; the department of labor and industry when other public funds are used. However, if the state build- ings director, after prior consultation with the Vermont governor's commit- tee on employment of the handicapped, determines that any such building would not normally be used by handicapped persons, or that a specific stand- 29 ard would be prohibitively costly to implement, he may exempt a building, or portions of it from the requirements of this section. Effective: 7/1/73, 7/1/74. Transportation Parking and License Plates 18 V.S.A. 1305a Any parking lot on the premises of a public building as described in this sec- tion shall contain a reasonable number of free, designated parking spaces in an accessible location for use by physically handicapped people patronizing the building. A person who has permanently lost the use of one or both legs or because of a physical disability is unable to move without the aid of a mechanical device shall be allowed to park without fee for an unlimited peri- od of time. This section shall not apply to zones in which the stopping, park- ing, or standing of all vehicles is prohibited or which are reserved for special types of vehicles. As a condition to this privilege, the vehicle shall display on the registration plate a distinguishing decal or metal tag which shall be issued for a vehicle registered to the disabled person, without additional fees, by the department of motor vehicles. Application is made to the department of motor vehicles by the town or city government within the state of Vermont where the disabled individual resides. The town or city clerk shall be responsi- ble for determining whether or not the individual meets the disability criteria. Employment Section 1, 21 V.S.A. 498 It shall be an unlawful employment practice for any employer, employment agency or labor organization to unreasonably discriminate against any physi- cally handicapped person with respect to any matter directly or indirectly re- lated to his employment or labor organization membership. A physically handicapped person who has been unreasonably discriminated against, may at his election, bring a civil action for damages, or apply for such equitable re- lief as may be just and proper under the circumstances or both. Recreation Hunting from Cars: If a licensed hunter who is a paraplegic, or unable to walk without the assistance of a wheelchair or similar device, obtains a permit as provided by law and provides satisfactory medical proof of his disability, he may take game from a vehicle or boat, but only if it is stationary and off a public highway. The permit remains in effect until twelve o'clock midnight on December 31 following the date of issuance. The holder of the permit shall carry it at all times while hunting, and shall produce it on demand for inspection by any game warden or other law enforcement officer authorized to make arrests. 3. LEGAL ASSISTANCE For general legal assistance or referral to legal representation, contact the state bar associations and/or one of the legal assistance services listed below. State Bar Associations Connecticut 15 Lewis Street, Hartford (203) 249-9141 30 Maine 154 State Street, Augusta (207) 622-7523 Massachusetts 1 Center Plaza, Boston (800) 392-6164 New Hampshire 77 Market Street, Manchester (603) 669-4869 Rhode Island 17 Exchange Street, Providence (401) 421-5740 Vermont Tavern Towers, Montpelier (801) 223-2020 Legal Assistance Services Connecticut Bridgeport Legal Aid, 815 Main Street 334-9454 Danbury Legal Service, Inc., 177 Main Street 743-2374 Hartford Legal Aid Society, 550 Main Street 566-6360 New Haven Legal Aid Bureau, 169 Church Street 562-0151 Legal Assistance Assn., 169 Church Street 772-3340 Legal Assistance Assn., 265 Church Street 777-7601 Neighborhood Law Office, 413 Howard Avenue 787-2153 Neighborhood Law Office, 184 Dixwell Avenue 772-1873 Stamford Legal Services, Inc., 342 Atlantic 348-9216 Waterbury Waterbury Legal Aid, 61 Field Street 756-8074 Maine Pine Tree Legal Assistance provides legal services and advice for civil cases which are not fee-generating (e.g. problems with welfare, housing problems, and problems related to the purchase of goods or services). Eligibility: Maine residents involved with a civil case and who meet income guidelines. Fee: Based on individual's ability to pay. Offices: 154 State Street, Presque Isle, Maine 61 Main Street, Bangor, Maine 173 Main Street, Calais, Maine 178 Middle St., Portland, Maine Oxford Street, Augusta, Maine 163 Lisbon St., Lewiston, Maine Massachusetts oston Legal Assistance Project, 84 State St., Boston 02109 (617) 742-8930 Cambridge & Somerville Legal Services Cambridge Legal Services, 380 Green St., Cambridge 02139 (617) 492-5520 omerville Office, 188 Broadway, Somerville 02145 (617) 766-6704 fitchburg, Leominster, Gardner, Athol, Winchendon, Vestminster, Templeton, Royalston, Phillipston, Lunenberg, Ashburnham Northern Worcester County Legal Aid Society, 55 Main St., Fitchburg 01420 (617) 345-1946 Lowell, Billerica, Chelmsford, Dracut, Tewksbury, Dunstable, Tyngsboro Greater Lowell Legal Services, Inc., 45 Merrimack St., Lowell 01852 (617) 458-1465 Lynn 31 Neighborhood Legal Services, Inc., 31 Exchange St., Lynn 01852 (617) 599-7703 New Bedford, Dartmouth, Fairhaven, Acushnet Onboard Legal Services, Inc., 18 South Water St., New Bedford 02740 (617) 999-8576 Revere and Chelsea North Suffolk Legal Assistance Association, 317 Broadway, Revere 02151 (617) 289-4427 Hampshire, Hampden, Franklin & Berkshire County Western Massachusetts Legal Services, Inc. Springfield Office, 11 Eastern Ave., Springfield 01109 (413) 781-7814 Pittsfield Office, 33 Pearl St., Pittsfield 01201 (413) 499-1950 Holyoke Office, 193 Main St., Holyoke 01040 (413) 536-2420 Greenfield Office, 3 Osgood St., Greenfield 01301 (413) 774-3747 Worcester Worcester County Legal Services, 306 Main St., Worcester 01608 (617) 752-3718 New Hampshire American Civil Liberties Union, 3 Pleasant Street, Concord 03301 225-3080 New Hampshire Legal Assistance, 88 Andover Street, Manchester 668-2400 Rhode Island Legal Aid Society of Rhode Island, 76 Dorrance St., Providence 02903 331-4665 344 Broadway, Newport 02840 847-1862 Rhode Island Legal Services, Inc., 56 Pine St., Providence 02903 274-2652 24 School St., Newport 02840 846-2264 32 Goff Ave., Pawtucket 02860 724-7800 239 Main St., Woonsocket 02895 767-3850 Vermont Vermont Legal Aid, Inc., Administrative Office, 150 Cherry St., P.O. Box 562, Burlington 05401 863-2871 Burlington District Office, 150 Cherry St., P.O. Box 562, Burlington 05401 863-2871 Waterbury District Office, P.O. Box 17, Waterbury 05676 244-8133 Montpelier District Office, 43 State Street-Box 658, Montpelier 05602 223-6377 229-0455 Rutland District Office, 51 1/2 Merchants Row, P.O. Box 642, Rutland 05701 775-0021 775-1122 St. Albans District Office, 56 North Main St., Box 589, St. Albans 05478 524-6707 St. Johnsbury District Office, 56 Railroad St., St. Johnsbury 05819 748-8721 Spring District Office, 3 Summer St., Springfield 05156 885-5181 32 National Legal Assistance Organizations A. Milton Miller Memorial Found., Inc., 849 South Broadway, Eastern Columbia Bldg., Suite 208, Los Angeles, California 90014 National Center on Law and the Handicapped, 1235 North Eddy Street, South Bend, Indiana 46617 Western Disabled Law Resources Center, Room 182, Boalt Hall Law School, Berkeley, California 94704 Public Interest Law Center for the Philadelphia Bar Assoc., 1315 Walnut Street, 16 Floor, Philadelphia, Penn. 19107 D. TAXES All employed Americans pay Federal Income Taxes unless their salaries fall be- low very minimal levels. Also, most states have their own income taxes. By pro- perly analyzing financial resources and planning for all proper exclusions and de- ductions, spinal cord injured persons can maximize their spendable income. For more specific information, see Chapter 5 of the "Rights Handbook" published by the Massachusetts Easter Seal Society and/or contact an accountant, at- torney or tax consultant. 1. FEDERAL INCOME TAX Virtually any expense that helps a spinal cord injured person function better should qualify as a medical deduction. Payments should be claimed in the year 33 that they were made, no matter when the bill was received. Deductions are also allowed for attendant persons and for attendant care services in certain cases. When filling out the forms, the handicapped person should: Keep records of deductible expenses and exemptions throughout the year in one place. Seek qualified help if unsure about any particular item. Contact the Internal Revenue Service, Taxpayer Assistance and Information Department. They provide both telephone and walk-in services for individuals requesting assistance. 2. STATE INCOME TAXES Connecticut Connecticut has no state income tax but does have a capital gains tax. This must be filed by all persons who have more than $100.00 income. This tax is com- puted at 7% of the Federal income return. Capital Gains Tax 92 Farmington Avenue Hartford Tel. 566-5936 Maine Maine state income tax is computed on a graduated scale of 1-6% based on the individual's Federal adjusted gross income. A spinal cord injured person has the same exemptions as he does on his Federal return. Maine Income Tax Division Augusta Tel. 289-3695 Massachusetts The tax deductions available to handicapped people are related to the type of income that is taxed at 5% (wages, salaries, tips, certain pensions and annuities, interest over $100 per taxpayer, profits from a business or profession, etc.). The individual should be sure to follow instructions that accompany the tax forms, as they may differ from the Federal Income Tax. He can claim deduc- tions on his Federal return. The Income Tax Division offers year-round free ad- vice in the Saltonstall State Office Building in Boston (727-4545) and in other regional offices. New Hampshire No state income tax. Rhode Island Income Tax Division 289 Prominade Street Providence Tel. 277-2905 Rhode Island residents pay 17% of Federal liability. Vermont 34 Income Tax Division Pavillion Building Montpelier Tel. 828-2509 A Vermont resident pays 27½% of Federal income tax. 3. OTHER TAXES Veterans A 100% disabled veteran may receive a free driver's license as long as he remains disabled. He may also be exempt from motor vehicle registration fees. An indi- vidual requiring hand controls or a specially equipped vehicle is generally en- titled to sales and excise tax exemptions. Contact the Motor Vehicle Department or local city or town hall for specific information. Maine property tax exemption The State of Maine allows a property tax exemption for 100% disabled Veter- ans. The actual amount of exemption will vary depending on the ratio of taxa- tion applied by the municipality in which you live. Check with your local town office to determine the amount of exemption in the town where your property is located. The individual must apply for property tax exemption before the first of April of the year in which taxes are due. Automobile excise and sales tax exemptions Massachusetts Automobile excise tax Handicapped persons are entitled to full rebate of the Massachusetts auto- mobile excise tax. Pay the tax when the bill comes. Get the rebate form from the Assessment Office in your town. The first time a rebate request is filed, a doctor's certification is required; i.e., a letter stating the person's need for a special HP plate. After the first filing, the doctor's certification is no longer needed until the handicapped person moves to, and registers his car in, a different town. Automobile sales tax Any person who has lost or will never be able to use both legs or both arms or one leg and one arm does not have to pay automobile sales tax. For further information, call your closest Office of the Massachusetts Registry of Motor Vehicles. Rhode Island Motor Vehicle Department State Office Building Providence Tel. 277-2206 Physically disabled persons are exempt from sales tax when purchasing an automobile. Medical certification of disability is required. 35 Connecticut, Maine, Vermont Only disabled veterans (in some cases, only under specific circumstances) are exempt from both sales and excise tax payment. Further information can be obtained by contacting the Department of Motor Vehicles or the appropriate state taxation department. E. FINANCIAL ASSISTANCE 1. FEDERAL PROGRAMS The Federal Government now administers most major financial assistance pro- grams. Social Security Administration The federally operated Social Security Administration is responsible for the pro- grams of Social Security Disability Insurance (SSDI), Supplemental Security In- come (SSI) and Medicare. Social Security Disability Insurance (SSDI) is an insurance program for per- 36 sons who have worked a specified number of quarters and, in doing so, have contributed to the social security fund. In order to qualify for SSDI, an in- dividual must have a substantial disability which interferes with his or her capacity to work and which will extend over a period of twelve months or more. The monthly payment is determined by past work earnings and in- cludes a payment allowance for each dependent. Supplemental Security Income (SSI) is an income program based on need. Disabled persons of any age may qualify for SSI, provided their disability is found through medical evidence to be substantial. Monthly payment amount is determined by a standard formula which takes into account an individual's marital status, living situation, income from other sources, and so on. There are financial limitations established which can restrict SSI payment: for ex- ample, a person living alone may not have more than $1500 in savings in or- der to receive monthly SSI support. In general, SSI recipients are auto- matically eligible for medical assistance under Medicaid. Application Procedure - Application for SSI and/or SSDI may be initiated at any local social security office and will include the processing of a basic application form, a disability information form, and an itemized list of per- sonal resources. SSI eligibility determination is usually completed within 6-8 weeks. SSDI eligibility, on the other hand, takes a much longer period, averaging between 6-12 months. To insure that the claim is being adequately processed, applicants of SSI/SSDI should check with their local social secur- ity office every few weeks. Further information on SSI and SSDI can be obtained from: SSI Information Center 2 Park Square Boston, Massachusetts 02116 Tel. 482-2307 Toll-free 1-800-882-2019 Medicare - This broad medical program is available to SSDI recipients who have been disabled and have received SSDI payments for two years or more. Detailed information on the scope of its coverage can be obtained through the Social Security Administration. Social Security Administration - District and Branch Offices Connecticut Ansonia 06401 Meriden 06450 Norwich 06360 307 Main Street 71 Catlin Street 1 Thames Plaza 735-8674 235-9208 886-1991 Bridgeport 06503 Middletown 06457 Stamford 915 Lafayette Blvd. 100 Riverview Center 26 Sixth Street 366-7851 347-8561 359-3190 Bristol 06010 New Britain 06051 59 No. Main Street 100 Arch Street Torrington 06790 584-2716 229-4843 147 Litchfield St. New Haven 06510 482-8541 Danbury 06810 8 West Street 135 College Street 37 748-3568 432-2160 Waterbury 14 Cottage Place East Hartford New London 06320 756-7475 Union Plaza 244-3717 443-8454 Willimantic 06226 Hartford 06118 Norwalk 06854 54 North Street 450 Main Street 20 N. Main Street 423-6384 244-3180 853-2511 Maine Augusta 04330 Lewiston 04240 Rockland 04841 40 Western Avenue 536 Lisbon Street 239 Park Street 622-6171 783-2288 596-6633 Bangor 04401 Portland 04101 Rumford 04276 Federal Building 151 Forrest Avenue 32 Congress Street Harlow Street 775-3131 364-3731 942-8271 Presque Isle 04769 Waterville 04901 Biddeford 04005 56 Alfred Street 364 Main Street 15A College Ave. 282-5955 764-3771 872-2723 Massachusetts Attleboro 02703 Chelsea 02150 Haverhill 01830 7 North Main Street 297 Broadway 367 Main Street 222-0273 884-2480 375-5619 Boston 02116 Fall River 02720 Holyoke 01040 31 St. James Ave. 400 North Main St. 330 Appleton St. Park Square Bldg. 676-1981 534-7361 223-7373 Brockton 02401 Fitchburg 01420 Greenfield 01301 154 Main Street 277 Main Street 365 Westgate Drive 345-4183 773-7327 588-7835 Cambridge 02138 Framingham 01701 Lawrence 01840 625 Mt. Auburn St. 49 Park Street 488 Essex Street 491-0700 875-6191 686-6171 Lowell 01852 Pittsfield 01201 Salem 01970 21 Palmer Street 20 Elm Street 84 Highland Ave. 454-9151 445-4582 744-2366 Lynn 01901 Quincy 02169 Springfield 01103 140 Union Street 1431 Hancock St. 145 State Street 592-1606 471-3507 781-2420 Malden 02148 Roxbury 02119 Taunton 02780 24 Exchange St. 2414 Washington St. 19 Court Street 321-2408 442-8166 823-5116 New Bedford 02740 749 Purchase St. Dorchester 02122 Waltham 02154 999-3101 1305 Dorchester Ave. 24 Crescent St. 288-3900 894-4320 Hyannis 02601 139 Falmouth Road Roslindale 02131 Worcester 01608 38 775-7501 1 Belgrade Avenue 340 Main Street 323-0850 791-2251 Norwood 11052 17 Cottage Street 762-8510 New Hampshire Concord 03301 Littleton 03561 Nashua 03060 55 Pleasant Street 194 Main Street P.O. Box 329 224-1938 444-2945 889-1171 Keene 03431 Manchester 03104 Portsmouth 03801 88 Dunbar Street 149 Hanover Street 80 Daniels Street 352-3487 669-7011 463-7720 Rhode Island Newport 02840 Providence 02903 Woonsocket 02895 Travers Building 200 Dyer Street Stadium Building 849-3487 528-4501 767-2100 Pawtucket 02860 Warwick 02886 55 Broad Street 2500 Post Road 724-9610 739-8410 Vermont Burlington 05401 Montpelier 05602 Rutland 05701 58 Pearl Street School Street 24 Evelyn Street P.O. Box 592 Box 338 775-0893 864-0304 223-3476 Veteran's Administration and Veteran's Services Disabled persons who are veterans may be eligible for benefits including hospi talization, medical treatment and drugs, educational programs, pensions, and other federal programs. In addition, a Veteran's Services Office is located in each city or town (usually in the City Hall) and, under extreme circumstances, is able to provide emergency financial assistance. Veteran's Administration offices car be contacted for information and application. Veteran's Administration Services Offices onnecticut Massachusetts Rhode Island 450 Main Street 100 Cambridge St. Federal Building Hartford 06118 Boston 02202 Providence 02903 244-3740 727-3578 528-4431 aine New Hampshire Vermont Portland 06118 497 Silver Street White River Junc- 775-6391 Manchester 03103 tion 05001 Togus 04330 624-4366 (800) 622-4134 623-8411 STATE PROGRAMS /ith federal support, each New England state administers its own medical 39 nd financial assistance programs. to eligible persons in need. Those which irectly benefit disabled persons are: Medicaid provides medical payment coverage for hospitalization, treatment (e.g. doctor's visits, physical therapy, occupational therapy, drugs), home- maker-home health aide and visiting nurse services, transportation related to medical needs, and equipment (e.g. wheelchairs). Medicaid eligibility is gener- ally available to disabled and/or low income persons. Food Stamps are sold to individuals and families of limited income and pro- vide financial assistance in purchasing food. Stamps are purchased in cash amounts less than their food-buying value (e.g. $30 of stamps buys $50 of food), and are sometimes given free to persons with no significant income. Aid to Families with Dependent Children (AFDC) provides financial assist- ance to families when the child(ren) is deprived of a parent's support through disability or absence. To qualify for AFDC, a family must meet certain in- come and asset limitations. State Office Locations - Application for any of these state assistance pro- grams can be initiated by contacting: Connecticut Social Services Department ridgeport 06603 New Haven 06511 Stamford 06905 434 State Street 194 Bassett Street 1642 Bedford St. 384-1761 787-6181 348-9245 Hartford 06106 Norwich 06360 Waterbury 06702 110 Bartholomew Ave. 279-Main Street 79 Linden Street 566-2530 889-2351 573-1211 liddletown 06457 Main Street Ext. 347-4411 Maine Human Services Augusta 04330 Ellsworth 04605 Portland 04101 Vickery Hill Bldg. 415 Water Street 509 Forest Avenu 11 Weston Street (800) 432-7823 774-4581 289-2851 Fort Kent 04743 Rockland 04841 Bangor 04401 38 Pleasant St. 1 Park Drive 117 Broadway Street 834-3934 594-8474 P.O. Box 762 942-6301 Houlton 04730 Rumford 04276 Bath 04530 5 Mechanic Street 104 Congress St. 55 Front Street (800) 432-7338 364-7884 443-5518 Lewiston 04240 Calais 04619 Skowhegan 04976 179 Lisbon Street 78 Madison Ave. 87 Main Street 40 783-9151 474-5551 454-2131 Caribout 04736 Machias 04654 371 Main Street 26 Main Street 493-3361 255-3366 Massachusetts Welfare Service Offices Adams 01220 Boston Boston (cont.) 38 Hoosac Street Back Bay Inner Jamaica Plain, 743-5300 20 Church St. 406 So. Hunting- Amesbury 01913 542-4850 ton Ave. 194 Main Street 522-2010 Back Bay Outer 388-2863 1491 Tremont St. 123 Morton St. 524-1400 Arlington 02174 442-8506 670 Mass. Avenue Brighton-Allston Mattapan 646-7240 1491 Tremont St. 1231 Adams St. Dorchester Athol 01331 442-8506 296-6600 Memorial Building Charlestown Room 22 North End West 249-3567 73 High Street End 242-2150 154 Maverick St. Attleboro 02703 Columbia Point 567-6140 15 Railroad Ave. 320 Mt. Vernon St. 226-0293 Roslindale Dorchester Barnstable 288-1612 26 Cummins High 325-4100 269 Barnstable Rd. Dorchester P.O. Box 57, Hyannis 1231 Adams Street Roxbury 771-1201 515 Blue Hill Ave. 298-5691 442-1811 Beverly 01915 East Boston 1491 Tremont St. 303 Cabot Street 154 Maverick St. 442-8506 927-6616 567-6140 304 Martin Luther Billerica 01862 Hyde Park King Jr. Blvd. 67 High Street 445-7840 No. Billerica 01862 26 Cummins Highway 325-4100 2996 Washington : 663-2117 445-5710 South Boston Everett 02149 Hopedale 198 D. Street, Boston City Hall, Rm. 1 Temporarily in 268-8740 389-6931 Milford 20 West Howell St. Fairhaven 02719 473-7220 282-0010 121 Sconticut Neck Rd. Hudson 01749 South End 997-7801 34A Pope Street 20 Church Street, Fall River 02721 562-2842 Boston 542-4850 66 Troy Street Lawrence 01840 679-1981 301 Essex Street Bourne 02532 Falmouth 02540 686-9441 Town Hall 344 Gifford Street Buzzards Bay Leicester 01524 548-8222 759-7596 3 Warren Avenue Boylston Fitchburg 01420 895-5011 76 Summer Street Municipal Bldg. Leominster 01453 345-2181 41 Main Street 29 Main Street Morningdale Framingham 01701 537-4712 869-2841 354A Waverly St. Lowell 01852 Suite 1 Brockton 02401 100 Merrimack St. 879-4200 75 Commercial St. 454-8061 588-3902 Gardner 01440 Lynn 01902 82 Main Street Brookline 02146 1 Washington Square 632-0358 320 Washington St. 599-0700 731-1500 Georgetown 01830 Malden 02148 48 Central Street Cambridge 02139 104-132 Exchange 352-2832 57 Inman Street St. 661-9390 Gloucester 01930 321-3800 Chelmsford 01824 City Hall Marlboro 01752 283-2268 Town Hall, Rm. 21 City Hall, Rm. 1 256-2731 Grafton 01519 481-4726 Chelsea 02150 Central Square Marshfield 02050 P.O. Box 92 300 Broadway 937 Webster Street 839-4761 884-7300 837-5161 Chicopee 01014 Great Barrington 01230 Medford 02155 5 Meadow Street Maple Avenue 64 Salem Street 528-2200 536-7820 391-5750 Greenfield 01301 Clinton 01510 Medway 02053 31 Federal Street 145 Church Street 89 Main Street 774-2721 365-7316 533-6647 Haverhill 01830 Concord 01742 Melrose 02176 42 Primrose Street 747 Main Street 505 Main Street 373-1935 369-1290 665-8950 Dedham 02026 Hingham 02043 Methuen 01844 Town Office Bldg. Town Office Bldg. 105 Haverhill St. 7 East Street Bryant Street 686-3883 329-1030 749-2280 Nantucket 02554 Dracut 01826 Holyoke 01040 Brush Road 482 Aiken Street 383 Dwight Street 228-0470 458-8739 536-2550 Natick 01760 Pittsfield 01201 Taunton 02780 Clark's Block, Rm. 4 46 Summer Street 51 Broadway Main St. at Central 499-3250 823-2571 653-9272 Plymouth 02363 Templeton 01468 New Bedford 02740 88 Sandwich St. P.O. Box 297 533 Mill Street 746-5180 939-8975 997-1561 Quincy 02169 Tewksbury 01876 Newburyport 01950 23-25 School St. Town Hall City Hall 479-6868 851-2382 462-6639 1381 Hancock St. Wakefield 01880 472-2657 Newton 7 Lincoln Street 26 High School Ave. 320 Washington St. 245-2603 479-2083 Brookline 02146 Waltham 02154 731-1500 Randolph 02368 22 Church Street 42 1 Turner Lane North Andover 01845 893-0146 963-8210 168 Pleasant St. Wareham 02571 682-8237 Reading 01867 2510 Cranberry Hw 52 Sanborn Street No. Brookfield 01535 295-0138 944-7050 Town Hall Watertown 02172 185 Main Street Revere 02151 Administration Bld 867-6727 85 Broadway 926-9620 289-4400 Northampton 01060 West Brookfield 355 Bridge Street Rockland 02370 01585 586-3600 346 Market St. Rear 11 No. Main St. 878-1899 Northbridge 867-6424 13 Douglas Street Rutland 01543 West Springfield Whitinsville 01588 425 Main Street 01089 234-8756 886-4353 115 Elm Street Norwood 02062 Salem 01970 788-4588 10 Cottage Street 209 Essex St. Westfield 01085 762-6300 745-8350 55 Broad Street Oak Bluffs 02557 Shrewsbury 01545 568-8915 Douglas Way 100 Maple Avenue Westford 01886 693-0210 845-5891 Town Hall, Orleans 02653 Somerville 02144 Main St. Hilltop Plaza, 1 Davis Square P.O. Box 21 Box 1045 666-4910 692-2937 Route 6-A Southbridge 01550 Weymouth 02189 255-4403 399 Main Street 1431 Pleasant St. Palmer 01069 764-4351 E. Weymouth 512-518 No. Main St. 335-6000 Spencer 01562 283-9757 Main St. Wilmington 01887 Toll free from P.O. Box 186 221 Lowell St. Springfield 885-4818 658-2211 (800) 566-8081 Springfield 01109 Winthrop 02152 Peabody 01960 834 State Street Town Hall City Hall Annex 781-7670 846-3060 531-3280 Woburn 01801 Worcester 01608 4 Federal St. 9 Norwich Street 935-5065 791-3621 New Hampshire Department of Health and Welfare District Offices Belknap County - 51 Church Street, Laconia 03246 524-4485 Carroll County Route 16, No. Conway 03860 356-5401 Cheshire County - 114 Main Street, Keene 03431 357-3510 Coos County - 227 Main Street, Berlin 03570 752-7800 Grafton County 45 Central Street, Woodsville 03785 747-3680 Hillsborough County- - 66 Lake Avenue, Manchester 03101 668-2330 for Nashua area - 223 Main Street, rear, Nashua 03060 883-7726 Merrimack County - 10 Pleasant St. Ext., Concord 03301 224-9971 Rockingham County - 600 State Street, Portsmouth 03801 431-6180 43 Strafford County - 4 Plaza Drive, Dover 03820 749-2210 Sullivan County - 137 Broad Street, Claremont 03743 542-9544 Rhode Island Public Services Department Barrington 02806 Exeter 02822 Narragansett 02882 Town Hall Victory Highway 25 Fifth Avenue 245-3103 294-2433 783-2538 Bristol 02809 Foster 02825 Newport 02840 400 Hope Street Plainfield Pike Elm Street 253-3970 397-5457 849-6000 Central Falls 02863 Glocester No. Providence 02911 580 Broad Street 568-2400 2226 Mineral 728-2500 Springs Ave. Charlestown 02813 Hopkinton 02833 231-2600 Hoxie Ave. Brook Drive, Pawtucket 02860 RFD, Bradford Hope Valley 1 Summer Street 322-7272 539-7537 728-2000 Coventry 02816 Jamestown 02835 Providence 02919 624 Washington St. Calvert Place 111 Fountain St. 828-2440 423-1531 272-2000 Cranston Johnston 02919 Scituate 804 Dyer Ave. 1385 Hartford Ave. Rockland Avenue 943-3000 861-6180 No. Scituate Lincoln 02865 647-3706 Cumberland 02864 Town Hall Smithfield 6 Davis Street 728-7000 Ext. 15 64 Farnum Pike 722-2880 Little Compton 02837 Esmond E. Greenwich 02818 635-8961 231-6603 56 Church St. Middletown 02840 So. Kingston 884-7250 Town Hall 66 High St. E. Providence 02914 847-0009 Wakefield 75 James Street 783-7033 434-3030 Warren 02885 Westerly 02891 W. Warwick 28 Market St. Union Street 152 Washington St 245-7387 596-2081 828-0500 Warwick 02889 W. Greenwick Woonsocket 02895 1515 West Shore Rd. Mishnock Rd., RFD 3 171 Front Street 739-9530 397-7213 769-3500 Vermont Department of Social Welfare Offices Barre 05641 Morrisville 05661 St. Johnsbury 05819 107 No. Main St. Harrell Street 42 Eastern Ave. 479-2581 Health Ctr. Bldg. 748-3148 888-4206 Bennington 05201 Springfield 05156 203 North Street Newport 05855 197 Union Street 442-8541 20 Main Street 885-5791 44 334-6504 Brattleboro 05301 Vergennes 05491 4 Park Place Rutland 05701 97 MacDonough [] 254-8751 9 Merchants Road 388-4011 775-5594 Burlington 05401 White River Junc- 39-43 Pearl Street St. Albans 05478 tion 05001 864-0251 30 Lower Welden St. Holiday Drive 524-9531 295-3063 Montpelier 05602 87 Main Street 828-3421 Catastrophic Illness (Maine and Rhode Island only) medically covers and pro- tects state residents against the staggering medical costs of a catastrophic illness or accident. Eligibility requirements and specific coverage information are avail- able from: Maine refer to Human Services Offices Rhode Island Catastrophic Health Insurance Program (CHIP) 40 Fountain Street Providence, R.I. (401) 272-2447 Workman's Compensation, another state regulated program, provides to em- ployees injured on the job health care, weekly income payments, and rehabilita: tion services. Financial support and coverage by workman's compensation is ir conjunction with insurance company support and coverage and is ordinarily much more substantial than are other state supported financial programs. Td be eligible, an employee must work for an organization with workman's compen saton coverage - each company contracts with its own insurance company and as a result individual benefits can vary. Further information may be obtained through: Connecticut Workman's Compensation Commission, 99 Pratt St., Hartford 522-3758 Maine Industrial Accident Commission, Capitol Shopping Center, Augusta 289-3751 Massachusetts Industrial Accident Board Information, 100 Cambridge St., Boston 727-3407 New Hampshire Workman's Compensation Commission, 1 Pillsbury St., Concord 271-3174 Rhode Island Workman's Compensation Commission, 25 Canal St., Providence 421-9715 45 Vermont Workman's Compensation, Montpelier 05602 828-2286 3. PRIVATE INSURERS For those persons covered through private insurance companies (e.g. Blue Cross/Blue Shield, Liberty Mutual, Aetna, etc.), most medical expenses are paid for with coverage not affected by personal income. F. ASSISTIVE ORGANIZATIONS The following assistive organizations encompass a wide range of goals, objectives, programs, services, and interests concerned with spinal cord injury. These organ- izations range from those of an international nature to local agencies which serve a small number of disabled persons. 1. INTERNATIONAL ICTA Information Center FACK S-161 03 Bromma No. 3 Sweden ICTA is an international committee (Committee on Technical Aids, Housing and 46 Transportation), the task of which is to collect information on technical aids and environmental problems for disabled persons and then to inform them about their findings. The aim of ICTA is to improve the technical information services and to make aware, both to professional workers and to laymen, the needs 01 the disabled. Looseleaf guides, periodically printed in English, French, German and Spanish are distributed annually. The information sheets are organized into sections or Activities of Daily Living, tools, home and community planning, locomotion and therapeutic aids. The yearly subscription cost to ICTA is $5.00. International Medical Society of Paraplegia National Spinal Injuries Centre Stoke Mandeville Hospital Aylesbury, Bucks, England The International Medical Society of Paraplegia publishes a quarterly journal en titled Paraplegia and conducts annual scientific programs. 2. NATIONAL American Coalition of Citizens with Disabilities 1224 Dupont Circle Building Washington, D.C. 20036 (202) 833-3320 or (301) 261-6344 This is a private, non-profit corporation whose purpose is to promote the socia well-being of and to assure the full exercise of the constitutional rights of citi zens with disabilities. Active members are non-profit consumer organizations The National Paraplegia Foundation (NPF) 333 North Michigan Avenue Chicago, Illinois 60601 (312) 346-4779 The National Paraplegia Foundation was organized in 1948 for the benefit of al Americans who have become paraplegic or quadriplegic from injury or disease 0 the spinal cord. The Foundation has three basic goals: To bring about the best possible medical care and treatment for paraplegics To stimulate relevant research, especially basic medical research, toward a cure for paraplegia, To help individuals who are paraplegics achieve their own goals. NPF is actively involved at the local, state, and national level through such ac- tivities as chapter meetings, professional conferences, publication and distribu- tion of literature, information and referral, promotion of government programs, and an annual national conference. All interested persons are urged to join NPF and receive its monthly newsletter "Paraplegia Life". National Rehabilitation Association 1522 K Street, N.W. Washington, D.C. 20005 (202) 659-2430 The National Rehabilitation Association is an organization of professional and ay persons dedicated to the rehabilitation of all physically and mentally handi- 47 capped persons. Founded in 1925, the Association strives to increase opportuni- ties for handicapped persons to become self-sufficient, self-supporting, and con- tributing members of the community. National Rehabilitation Counseling Association 1522 K Street, N.W. Washington, D.C. 20005 (202) 296-6080 The National Rehabilitation Counseling Association is a private organization founded in 1958 with the objectives of (1) developing professional standards for rehabilitation counseling, (2) promoting professional training for rehabilitation counseling, (3) supporting rehabilitation counseling as it contributes to the in- terdisciplinary approach to the solution of problems in rehabilitation, and (4) fostering research to advance knowledge and skill in rehabilitation counseling. National Wheelchair Athletic Association 40-24 62nd Street Woodside, New York 11377 (212) 424-2929 The National Wheelchair Athletic Association is an association administered by and under the jurisdiction of the National Wheelchair Athletic Committee. Mem- berhsip is open to any competitor, supporter, and/or organizer in wheelchair sports. The purposes of the association are to: (1) Formulate and maintain rules governing wheelchair athletics. (2) Record and publish all rule changes. (3) Re- cord and maintain wheelchair athletic records and rules on claims for new re- cords. (4) Be responsible for the selection of sites for National Championship meets. (5) Sanction official regional meets. The President's Committee on Employment of the Handicapped Washington, D.C. 20210 (202) 961-3401 This committee conducts national education and information programs designed to eliminate physical and psychological barriers, further educational training, re- habilitation and employment opportunities, and to create community accept- ance of the disabled. It also provides leadership and technical support to volun- teer Governors' Committees on Employment of the Handicapped in all states. Paralyzed Veterans of America, Inc. (PVA) 7315 Wisconsin Avenue Washington, D.C. 20014 (202) 652-3464 The Paralyzed Veterans of America, chartered by United States Congress, is an organization of veterans who have served honorably in the armed forces and who have, through service or non-service connected causes incurred a spinal cord in- jury or disease. The organization is non-profit, non-sectarian, and interracial. It is concerned with the welfare of non-veteran paraplegics as well as veterans. 3. REGIONAL New England Chapter of the Paralyzed Veterans of America (NEPVA) 48 West Roxbury Veterans Administration Hospital VFW Parkway West Roxbury, Massachusetts 02132 The NEPVA is one of about 30 chapters of the Paralyzed Veterans of America serving the New England area. The NEPVA, as part of the PVA, serves its mem- bers by: (1) assisting members in obtaining full V.A. benefits, (2) promoting pro- grams within the V.A., especially the Spinal Cord Injury Service at the V.A. Hospital in West Roxbury, Massachusetts; (3) promoting legislation at both the national and local levels which will be of importance to the paraplegic veteran and civilian alike. New England Spinal Cord Injury Foundation (Spinal Injury Foundation) 369 Elliot Street Newton Upper Falls, Massachusetts 02164 (617) 964-0521 The Spinal Injury Foundation is a non-profit, voluntary health agency with a central goal of developing a comprehensive system of quality care for spinal cord injured persons in New England. This effort is based on the principle of utilizing and improving resources in the most effective manner possible. Based upon the goal of developing a comprehensive system of quality care, treat- ment, and rehabilitation, the Spinal Injury Foundation's program activities are: Maintaining and utilizing a Registry of the incidence and prevalence of trau- matic spinal cord injury in New England. Documenting existing resources and periodic publications of comprehensive directories. Developing, distributing and up-dating of standards and criteria of care for persons with traumatic spinal cord injury. Providing information and referral services to spinal cord injured persons and their families, as well as to professionals, by maintaining a library and clear- ing house operation. Producing professional education programs that are designed to improve the care, treatment and rehabilitation of persons with spinal cord injury. Preventing traumatic spinal cord injury by keying publication information programs to the means of avoiding these crippling injuries. Monitoring the development of a comprehensive system of quality care. Coordinating efforts at improved services at the local level by employing re- source coordinators in each state who have the mobility, skill and visibility to match resources with persons in need. Offices are located in Maine, Massachusetts, New Hampshire and Vermont. STATE Connecticut The Easter Seal Society for Crippled Children and Adults The purpose of this organization is to develop programs throughout the state to meet the medical, social, educational and vocational needs of the handi- capped where these services are not otherwise available. Its services include seven local chapter rehabilitation centers. The Society is the.parent organiza- tion of these affiliated and independently incorporated chapters which oper- ate out-patient rehabilitation centers. These facilities provide occupational, physical and speech therapy, pre-vocational evaluations, and sheltered work- shop training and employment. Since all centers do not provide all of these 49 services, information regarding the specific services available may be obtained from the Society itself. State headquarters services include year-round state- wide recreation programs for the handicapped as well as equipment loan services. Local Chapters; The Hartford Easter Seal Rehabilitation Center, Inc. 80 Coventry Street, Hartford 06112 243-2511 The Rehabilitation Center of Eastern Fairfield County; Inc. 226 Mill Hill Avenue, Bridgeport 06610 366-7551 The Easter Seal-Goodwill Industries Rehabilitation Center, Inc. 20 Brookside Avenue, New Haven 06515 389-4561 The Central Connecticut Easter Seal Rehabilitation Center, Inc. 181 Cook Avenue, Meriden 06450 237-7835 The Easter Seal Rehabilitation Center of Southeastern Connecticut, Inc. 216 Norwich-New London Turnpike, Uncasville 06382 848-9264 The Easter Seal Rehabilitation Center of Southwestern Connecticut, Inc. 26 Palmer's Hill Road, Stamford 06902 325-1544 The Easter Seal Rehabilitation Center of Greater Waterbury, Inc. 22 Tompkins Street, Waterbury 06708 754-5141 Maine Maine Paraplegia Association and Wheelchair Confined, Inc. 56 Pennell Street Westbrook 04092 The Maine Paraplegia Association meets every two months in the Central Maine area. This organization provides information about services, activities, and available resources to the paraplegic; promotes public concern regarding the needs of the wheelchair confined; and provides an atmosphere for friend- ship and social activities for members. Maine Rehabilitation Association Architectural Barriers Committee c/o Patricia Curran Box 86 Orrington 04474 This committee meets quarterly in the Bangor or Augusta area. Its purpose is to acquaint members with existing laws and proposed legislation dealing with access to public buildings and facilities; to promote public awareness of exist- ing architectural barriers; and to advocate for individuals facing employment, recreation, transportation, housing or shopping difficulties because of archi- tectural barriers. New England Spinal Cord Injury Foundation c/o Bureau of Rehabilitation 50 509 Forest Avenue Portland 04101 (207) 775-6507 For further information, see New England Spinal Cord Injury Foundation listed under Assistive Organizations, Regional, New England. Pine Tree Society for Crippled Children and Adults 84 Front Street Bath 04530 443-3341 Services include: information and referral services; summer camping for orthopedically disabled children; post stroke resocialization (Portland and Bangor area); and speech and hearing centers. Southern Maine Association for Handicapped Persons c/o Mr. Herb Merrill 44 Buckman Road Falmouth 04108 The Southern Maine Association meets in the Portland area and its member- ship consists of handicapped and non-handicapped individuals. The Associa- tion works with Federal, State, and local agencies, legislators, businessmen and civic and religious organizations toward removing barriers which prevent handicapped individuals from using public buildings, transportation, housing, vocational and educational services. This organization meets the 3rd Thursday of every month. A monthly newsletter is published and mailed to members. Dues are $2.00 per year. Massachusetts Easter Seal Society for Crippled Children and Adults State Headquarters 37 Harvard Street Worcester 01608 757-2756 Utilizing a philosophy of "Pioneer and Demonstration", the Society has been and continues to be involved in programs designed to meet the needs of the physically disabled. Areas of concern are recreation, accessibility, legal rights, transportation, and housing. Regional Offices 14 Somerset Street, Boston 02108 Tel. 227-9605 26 Chestnut Street, Andover 01810 Tel. 475-1477 856 Church Street, New Bedford 02745 Tel. 998-3536 145 State Street, Springfield 01103 Tel. 732-2548 30 Highland Street, Worcester 01608 Tel. 757-2891 Speakers bureau and information and referral services are available at each regional office. Massachusetts Association of Paraplegics (MAP) P.O. Box 48 Bedford 01730 This association was formed in 1964 by a group of paraplegics who were con- cerned about the needs of spinal cord injured persons in Massachusetts. The organization has grown to a membership of over 600 disabled and 200 non- 51 disabled, and now represents all types of physical disabilities. Much of the work of MAP is done by committees concerned with areas such as architectural barriers, housing, employment, education, and legislation. In addition, MAP sponsors the annual Bay State Wheelchair Games and pub- lishes a monthly newsletter sent to all members. Meetings are held monthly in various regions of the state including Boston, Cape Cod, Southeastern Massachusetts, Springfield, and Worcester. Further information on Chapter meetings and membership is available from MAP, Inc., P.O. Box 48, Bedford, Massachusetts 01730. Massachusetts Council of Organizations of the Handicapped c/o Maureen Winn 10 West Chardon Road Winchester 01890 This organization has the objective of bringing under one umbrella the many and varied activities of organizations of the handicapped in Massachusetts. The council serves as a clearinghouse for activities and priority programs of the member organizations. The Council also coordinates the programs of each organization in order to more effectively serve all disability groups in Massa- chusetts. Available publications are: "A Consumer's Guide to Organizing the Handicapped" ($3.00). Directory of Organizations of the Handicapped in the U.S. ($8.00). Directory of self-help groups that are members of MCOH (including Mass- achusetts Association of Paraplegics, Paralyzed Veterans of America, Spina Bifida, etc.). New England Spinal Cord Injury Foundation 369 Elliot Street Newton Upper Falls 02164 (617) 964-0521 For further infor.nation, see New England Spinal Cord Injury Foundation listed under Assistive Organizations, Regional, New England. United Community Planning Corporation 14 Somerset Street Boston, 02108 742-2000 This corporation operates an information and referral service. New Hampshire Easter Seal Society for Crippled Children and Adults 870 Hayward Street Manchester 03103 623-8863 Specialized programs include prevocational screening, infant hearing screen- ing clinic, respiratory disabilities clinic, speech reading course, learning dis- abilities evaluations, public health information and referral, transportation for the handicapped, self-care evaluations of nursing home patients, training and consultation of nursing home staff, loan of therapeutic equipment, 52 speech therapy at nursing homes, child evaluation clinic, electromyographics, nerve conduction studies, pre-school program for physically handicapped children, and recreation and residential camping. Also maintained is a skill training center to assist the disabled in entering or returning to competitive employment. Easter Seal Rehabilitation Centers 80 Tarrytown Road, Manchester 03103 623-8863 Route 1 By-Pass, Box 901, Portsmouth 03801 436-5716 Services include occupational, physical, and speech therapy, as well as audi- ology, psychological and social services, and information and referral to other agencies. Also, consultation services are provided in hospitals, nursing homes, and schools. Gate City Chapter, National Association of Physically Handicapped Persons c/o Greenbriar Nursing Home 55 Harris Road Nashua 03102 888-1573 This is a consumer group of physically disabled persons concerned with soc- ial, informational, and problem-solving issues. Meetings are held at 7:30 p.m. on the first Wednesday of each month. New England Spinal Cord Injury Foundation Box 63 Newbury 03255 668-2640 For further information, see New England Spinal Cord Injury Foundation listed under Assistive Organizations, Regional, New England. Info-Line 1-800-562-1122 This is an information and referral program to and about Human Service Pro- grams in New Hampshire. Rhode Island Easter Seal Society for Crippled Children and Adults 667 Waterman Avenue East Providence 02940 521-6800 Purpose: To develop and implement special educational/therapeutic programs to meet needs of the handicapped in Rhode Island; to provide public and professional education programs which enhance understanding and promote greater acceptance of handicapped persons; and to investigate through organ- ized study the methodology and techniques used to support and service handicapped children. Paraplegia Association of Rhode Island, Inc. (PARI) P.O. Box 6906 Providence 02940 53 P.A.R.I. focuses on improving services in the community to benefit all per- sons who have suffered disease or injury to the spinal cord or are otherwise physically handicapped. This is accomplished through educational programs for members and the public, and by supporting research and programs of ath- letic and recreational endeavors for all physically handicapped individuals. Summit Club of Rhode Island P.O. Box 4711 Rumford 02916 421-7005 Ext. 57 Services attempt to meet the social needs of handicapped adolescents and adults for whom no other programs exist. The club offers a program of bowling, swimming, crafts, and social activities. Council for Community Services, Inc. Council for Community Services, Inc. 229 Waterman Street Providence 02906 351-6500 Services: acts as an information and referral center for persons in greater Rhode Island; assists callers who have social, emotional, medical, or financial problems in securing appropriate and expedient agency resources; and col- lects data of significant community problems to present to the planning staff of the Council for Community Services, Inc. for action. Vermont Life, Independence, Victory, Equality, Esteem, Education (LIVE) c/o Ms. Carol Jacobs RFD No. 2, Box 417 Williston 05495 LIVE is an association of disabled and able-bodied people which meets in Burlington every other week with the following goals: To start a civic group to work on architectural and social barriers and to educate the public about the problems of the disabled. To have social gatherings. To act as a community of concerned people providing assistance to those in need. New England Spinal Cord Injury Foundation c/o Medical Center Hospital of Vermont DeGoesbriand Unit 417 Pearl Street Burlington 05401 Physically Disabled Association, Inc. 573 East Main Street Newport 05855 334-2373 54 The purpose of this group is: To facilitate social and economic betterment of physically disabled resi- dents of Vermont To encourage and assist new members To stimulate and advance friendly relationships with kindred organizations To arouse public interest for the physically disabled Squeaking Wheels c/o Vermont Achievement Center 88 Park Street Rutland 05701 775-2395 This is a group of young adults with various types of disabilities who meet approximately every two months. The main purpose of the group is recrea- tional but it also deals with common problems. G. EQUIPMENT "How do I get around if I can't walk?" "How can I eat and dress without full use of my arms and hands?" "How do I deal with steps and curbs?" For spinal cord injured persons, individually adapted equipment often makes the difference between dependence and independence. Many functional prob- lems can be minimized through the use of adaptive devices which assist with activities of daily living. Because equipment needs are highly individualized, it is strongly recommended that a physician, physical therapist, and/or occupation- al therapist be consulted before the purchase of most items listed below. 1. GENERAL EQUIPMENT Wheelchairs 55 Simply stated, wheelchairs provide mobility and transportation for persons un- able to walk. Selecting an appropriate wheelchair is a highly individual matter, as each user has special functions and requirements to consider. Wheelchair de- sign varies, and should always be selected with the help of a physician and/or physical therapist. To follow are brief descriptions of various types of wheel- chairs, reflecting differences in function and usage: Manually operated - a self propelled wheelchair designed for persons with adequate hand and arm strength. Electrically operated propelled by an electronic lever. Motorized wheel- chairs are prescribed for persons without sufficient upper extremity strength. Most levers are operated by hand but others are controlled by a chin or mouth lever. Breath operated - through a "puff" and "suck" breath movement, this wheelchair can be propelled in all directions. This kind of chair is required by persons with little or no movement below the neck. Wheelchair cushions - In spinal cord injury, it is essential to prevent the for- mation of pressure sores, particularly in the buttocks region, which can easily develop through prolonged sitting without changing body position. In response to this need, wheelchair cushions are prescribed. Again, consult with a physician or physical therapist. Maintenance and Repairs Preventive maintenance and small repairs will re- sult in a properly functioning chair. For information on maintenance and assistance, contact a local supplier of wheelchairs or a local bicycle repair shop. Ramps, Lifts, and Elevators Because of the difficulty inherent in overcoming barriers imposed by curbs, stairs, and upgraded areas; ramps, wheelchair lifts, and elevators are often necessary. They allow wheelchairs to maneuver curbs and sidewalks, and inside and outside steps. Unfortunately, the cost of this equipment is high. Braces The use of braces sometimes allows ambulation for spinal cord injured persons, and when appropriate is recommended by the attending physician or physical therapist. National Suppliers: Wheelchairs, ramps, lifts, braces. The following is a partial list of national and regional manufacturers and sup- pliers. Their listing here is in no way an endorsement of companies and/or products. Another source of this information is the Yellow Pages under "Hos- pital Equipment and Supplies" or under "Physicians and Surgeons Equipment and Supplies." Activeaid, Inc. Commodes 501 E. South Street Redwood Falls, Minnesota 56283 (507) 637-2951 Adaptive Therapeutic Systems Fabricates special chairs, lapboards and 36 Howe Street pulley systems for severely handicapped New Haven, Connecticut 06511 persons to be more self-sufficient 56 American Stair-Glide Corp. Outdoor and indoor wheelchair lifts 4001 East 138th Street Grandview, Missouri 64030 Automotive Conversion Corp. Ramps and hydraulic lifts for loading 2588 Industrial Row wheelchair into car or van Troy, Michigan 48084 (313) 549-7070 Bye Bye Decubiti Rubber-inflatable wheelchair pads Ken McRight Supplies, Inc. 7456 Oswego Tulsa, Oklahoma 74136 Chair-E-Yacht, Inc. Builds and distributes motorized vehicles Shoshoni for outdoor use by the paraplegic or quad- Wyoming 82649 riplegic. This vehicle transports the individ- ual while he remains in his own wheelchair. Also developing a product which will pull a wheelchair into the back seat of a car for the individual who is unable to do this for himself. Dunn Drive Controls Manually and electrically operated wheel- 1582 Kenmore Avenue chairs, lifters, ramps, and evaluation Buffalo, New York 14261 equipment. Econo Lift Outdoor and indoor wheelchair lifts 2513 Center Street Cedar Falls, Iowa 50613 (319) 266-8878 Everest & Jennings Manually and electrically operated wheel- 1803 Potious Avenue chairs and lifters Los Angeles, California 90025 G. E. Miller Manually and electrically operated wheel- 484 So. Broadway chairs, lifters, ramps and rehabilitation Yonkers, New York 10705 equipment Handi-Ramps, Inc. Ramps for loading wheelchairs in vans 1414 Armour Blvd. Mundelein, Illinois 60060 (312) 566-5861 Ted Hoyer and Company Lifters to transfer from wheelchair to car 222 Minnesota Street Oskosh, Wisconsin 54901 Institute of Rehabilitation Medicine Breath control operated wheelchairs 400 East 34th Street New York, New York 10016 Invacare (Rolls) Wheelchairs 443 Oberlin Road Elyria, Ohio 44035 57 (216) 365-9321 Jobst Hydro Float Floatation pads Jobst Institute Box 653 Toledo, Ohio 43601 Lance International Ltd. Wheelchair lifts and customized vans for 1391 Blue Hills Avenue wheelchair use Bloomfield, Connecticut (203) 242-6281 McLaughlin Elevator Co. Outdoor and indoor wheelchair lifts 120 Fulton Street Boston, Massachusetts 02109 (617) 227-3760 M. P. S. Corp. Porta-ramp for carrying a wheelchair on 2932 National Avenue the back bumper or for mounting curbs San Diego, California 92111 and other obstacles (714) 234-5657 J.A. Preston Corp. Manually and electrically operated wheel- Allen Quick Sales Dept. chairs, lifters, physical and occupational 71 Fifth Avenue therapy equipment New York, New York 10003 (212) 255-8484 Rehabilitation Equipment Inc. Mechanical and electrical wheelchairs of all 175 East 83rd Street types New York, New York 10028 (212) 737-7740 Veterans Administration Center Breath control operated wheelchairs 252 Seventh Avenue New York, New York 10011 White Engineering and Mfg. Co. Lifters for transfer from wheelchair to car P.O. Box 195 Tustin, California 92680 State and Local Distributors Maine Adco Surgical Supply Company, 586 Hummond Street, Bangor, Maine George C. Frye Company, 685 Congress Street, Portland, Maine Maine Surgical Supply Co., 52 Marginal Way, Portland, Maine Medical Supplies Inc., 146 Kennedy Memorial Drive, Waterville, Maine Respiratory Therapy Inc., Pine Tree Shopping Center, Portland, Maine Massachusetts Abbey Rents, 1244 Boylston St., Brookline (617) 731-8500 Denmark's Rental and Sales, 369 Barlow's Landing Road, Pocasset (617) 563-2318 58 First Medical Inc. (Alpha Medical), 1032 Commonwealth Ave., Boston (617) 731-2525 Leonard Medical Supply, 775 Huntington Ave., Boston (617) 731-8686 N & L Wheelchair Service, 72 West Wyoming Avenue, Melrose (617) 665-9352 Parent Surgical Inc., 170 Western Ave., Lynn (617) 594-3510 The Apothecary, Cape Cod Medical Center, Lewis Bay Road, Hyannis (617) 771-1030 E & J Services, Inc., 744 Washington St., Franklin (617) 528-0557 Hill-Rom Store, 332 Second Avenue, Waltham (617) 890-1280 Maloney Pharmacies, Post Office Square, Harwichport (617) 432-2219 North Shore Surgical Supplies, 26 City Hall Square, Lynn (617) 598-6922 PDC, Inc., 127 Braintree St., Boston (617) 787-5300 P. L. Rider Company Inc., 127 Piedmont St., Worcester New Hampshire Healthco Medical Supply, 494 Elm Street, Manchester New England Brace Co. Inc., 1107 Hooksett Rd., Manchester (603) 622-5453 Rhode Island A & B Surgical Supplies, 1559 Elmwood Ave., Cranston 941-8222 Eastern Scientific, 267 Plain St., Providence 421-4600 831-4100 Rhode Island Hospital, Orthopedic Appliance Shop, 10th floor APC Building, 593 Eddy St., Providence 277-5477 Carlow Orthopedic, 2905 Post Road, Warwick 738-6450 Orthopedic Appliance and Brace Center, 205 Broadway, Providence 331-5548 331-5543 Rhode Island Limb Co., Inc., 1599 Elmwood Ave., Cranston 941-6230 Vermont The Apothecary, 106 Allen Street, Rutland Merrium-Graves Corporation, 184 Woodstock Avenue, Rutland The Pharmacy Inc., 209 North, Bennington Roys Orthpedic Inc., 33 North Avenue, Burlington 863-4591 116 Ben Mont Ave., Bennington 442-3093 40 Strongs Avenue, Rutland 773-3637 Lamson Surgical Supply, Inc., South Barre 476-8737 New England Hospital Supply, 125 College Street, Burlington 864-4571 & M Surgical Appliance Inc., 175 Pearl St., Burlington 863-6154 2. SPECIAL EQUIPMENT Environmental Control Units Environmental Control Units electronically assist people who cannot use their 59 hands in controlling their environment. They are generally remote control de- vices which assist in turning on lights; using typewriters, telephones, and tele- visions; operating bed controls; opening doors; and any other closed circuit systems in a work or home environment. The power sources are generated by mouth, shoulder or eye control monitors. The following kinds of equipment are available: Comfort and Communication Control System: Fidelity Electronics, Ltd., 5245 West Diversey Ave., Chicago, Illinois 60639 Approximate cost: $800 English Model Environmental System: Possum Controls, LTD, 63 Manderville, Road Aylesburg, (BUCKS) England Approximate cost: $2,000 Environmental Control Unit: Prentke-Romich Company, R.D. 2, Box 191, Shreve, Ohio 44676 Veteran's Administration Prosthetic Center System R & D Engineering, P.O. Box 3584, Los Arrigos Station, Downey, California 90242 Approximate cost: $600 Nu-Life Environmental System: Scientific Systems International, 506B Oakwood Avenue, Huntsville, Alabama 35811 Approximate cost: $3000 Voice Command Environmental Control Unit: Scope Electronics, Inc., 1860 Michael Faraday Drive, Reston, Virginia 22090 Telephones The Telephone Company offers a number of adaptive devices for physically handicapped, blind and deaf individuals. Such devices as speaker phones, card dialers, and head sets, can enable a severely disabled individual to use the phone independently. The Telephone Company will send a staff member to evaluate the problems and suggest equipment. Because it is not allowed to sell any of this equipment, a monthly rental fee is added to the regular phone charge. Anyone interested in this equipment can contact the nearest telephone business office. The phone company also publishes a booklet on phone adaptations called "Services for Special Needs"; it is available on request. Other sources of Special Telephone Equipment are: Radio Shack (speaker phones) Sparr Telephone Arm Co., R.D. No. 1 - Box 439, Stroudsburg, Penn. 18360 Fred Sammons, Box 32, Brookfield, Illinois 60501 Prentke-Romich Company, R.D. 2, Box 191, Shreve, Ohio 44676 Typewriters Electric typewriters can be adapted to meet individual needs. Models are avail- able as listed below: 60 Telecommunications System developed by Cybernetics Research Institute, 2233 Wisconsin Avenue, S.W., Washington, D.C. can be purchased from: Scope Electronics Inc. 1860 Michael Faraday Drive, Reston, Virginia 22090 Possum Controls Typewriter System (electronically operated) Possum Controls Ltd. 63 Manderville Road, Aylesburg, (BUCKS) England For the C5-C7 quadriplegic, a good buy is the Smith Corona Sterling Elec- tric 12. It has accessible controls and an automatic carriage return and costs approximately $150.00. Locally, many office supply stores sell reconditioned typewriters at cost. They can also adapt many typewriters to meet specific needs and can add, at nominal costs, keyboard guides, paper roll holders and cutters, and arm rests as needed. Suppliers with these services are: IBM Office Products Division One Gateway Center Plaza, Newton Corner, Massachusetts (617) 969-0258 The Office Products Division of IBM sells trade-in typewriters at low cost to institutions or to handicapped persons. When financial hardship is declared, the company is willing to consider donating the equipment. Contact also: Underwood-Olivetti Service Department Cambridge, Massachusetts (617) 266-4976 Page Turners Automatically operated page turners are available from: W. T. Brusse, Inc. 2647 Todd Ave. N.W., Warren, Ohio 44485 Tufts Biomedical Engineering Project is able to provide technical assistance throughout New England to persons in need of electronic devices. The Project focuses on designing and/or recommending equipment to meet specific needs such as environmental control units at home or job adaptations at work. Any person interested in discussing potential or present needs is encouraged to phone: Tufts New England Medical Center Biomedical Engineering P.O. Box 1014, 171 Harrison Avenue Boston, Massachusetts 02111 Telephone: 956-5036 3. ADAPTIVE CLOTHING 61 The following sources provide adaptive clothing aids and information, as well as generate ideas for meeting individual clothing needs: Clothes for the Physically Handicapped Homemaker with Features Suitable for ALL Women Clarice L. Scott, Home Economics Research Report No. 12, Agricultural Research Service, U.S.D.A., Washington, D.C. Clothes to Fit Your Needs Jacquelyn Yep, lowa State University, Ames, lowa. Fashion-Able - Rocky Hill, N.J. A catalogue of clothing and aids for the handicapped person. It's Fun to Sew - Armo Company, New York Physically Handicapped-Aids to Self Help in Homemaking, Grooming and Clothing - North Carolina Agricultural Extension Service USDA Bulletin HE 137 Convenience Clothing Closures - This 20-page booklet has sections on cloth- ing selection, zipper adaptations, and accessories. Available free from Talon/ Velcro Consumer Education, 41 East 51st Street, New York, N.Y. 10022 4. SPECIAL AIDS A wide variety of special aid devices can be obtained through the following sources: Gilbert Frank Manufactures special devices, mostly for c/o Therafin the rehabilitation industry 513 North Street Crete, Illinois 60417 Cleo-Living Aids 3957 Mayfield Road Cleveland, Ohio 44121 Fred Sammons Inc. Mr. Sammons maintains a well illustrated Self Help Aids catalogue of self help items for the spinal P.O. Box 32 cord injured. The company is receptive to Brookfield, Illinois your feedback about equipment and can specially adapt devices to meet particular needs. One additional resource which provides an in-depth examination on special aids is: 62 Aids to Independent Living: Self-Help for the Handicapped. Edward Lowman, Judith Klinger, McGraw-Hill Book Co:, Order Services, Princeton-Hightstown Road, Hightstown, New Jersey 08520. The cost is $42.50, plus postage. This book can be obtained through: Massachusetts Institute of Technology (MIT) Humanities Library, 145-224 Interlibrary Loan Cambridge, Massachusetts 02139 (617) 253-5682 5. FUNDING Several sources exist to absorb the cost of needed equipment. Very often, a social worker is able to assist disabled persons in locating payment sources for this equipment. For sources of funds, see chapters on Financial Assistance, Assis- tive Organizations, and Employment (section on vocational rehabilitation), or call The New England Spinal Cord Injury Foundation for more specific direction. H. ACCESSIBILITY AND ARCHITECTURAL BARRIERS Accessibility at home, places of work, transportation sources, and recreational acilities is vital to independent living. But architectural and other physical bar- iers have prevented many spinal cord injured persons from fully rehabilitated ives. In the past few years, there has occurred an increasing awareness and hrust to overcome architectural barriers (i.e. curbs, stairs, narrow doorways and nusable bathrooms). The result of this movement has been recognizable pro- gress, at least initially, in the removal of many architectural barriers. FEDERAL LEGISLATION 63 The Transportation Barriers Compliance Board (TBCB) is designed to make ecommendations to Congress and the President, and to generate either legisla- ion or executive orders to eliminate barriers in housing, public transportation, public buildings, monuments, and parks. Under Federal law, the Board is al- owed to conduct investigations and hold public hearings. If it finds a violation of the Architectural Barriers Act of 1968, it can issue compliance orders. Unfor- unately, however, no real mechanism exists to enforce these orders on a federal evel. On the whole, federal legislation has been weak and ineffective. Although the aw requires that all federally-funded buildings be accessible and conform to stablished standards, there has been no meaningful enforcement of these stand- ards to date. There are indications, however, that the federal component in bar- ier-free design will be-increasing: H.R. 2424 - "Freedom of Access for the Elderly and Handicapped Act of 1975" - This bill, co-sponsored by Massachusetts Congressman Gerry Studds, proposes a tax incentive for businesses to renovate their sites to make them ac- cessible. If enacted, it would provide a strong impetus for private businesses and employers and would have great significance in the overall elimination of archi- tectural barriers. Information on the status and content of H.R. 2424 may be obtained by contacting Congressman Studds' office: 1143 Washington St., Hanover, Mass. 02339 Tel. 826-3866 or 1511 Longsworth House Office Building, Washington, D.C. 20515 Sections 503 and 504 of the Rehabilitation Act of 1973 state that architectural accessibility must be, to the extent possible "without undue hardship on the contractor's business," a part of an employer's Affirmative Action plan. Regula- tions on Section 503 are presently undergoing revision and when completed may further clarify the extent of employer responsibility for making job sites ac- cessible. 2. STATE LEGISLATION Maine Legislation Accessibility of Public Buildings: In 1967, a year before the Federal law re- garding accessibility was passed, the Maine Revised Statutes, Title 25, Part 7, Chapter 331, were amended to require that buildings constructed, in whole or in part with state funds, be accessible to physically handicapped persons. Specific standards of construction included grading, public walks, ramps, doors, floors, elevators, stairs, restrooms and bathrooms, drinking fountains, telephones, and warning signals. Further amendments in 1975 applied the construction standards to any structure "specifically intended as a placé, where five persons or more will be employed or for public housing." Public housing was defined as "a minimum of 20 family units". The standards also apply to any reconstructed public buildings if the cost of the reconstruction or remodeling exceeds $100,000, and the reconstruction applies to the pub- lic sections of the building. An important conformity chapter was added which should be quoted in full: "The state, county or municipal authority 64 charged with administering this chapter shall not approve any plan for con- structing a public building that does not conform to this chapter." The Pine Tree Society in Bath, Maine currently has funding to survey and monitor public buildings regarding architectural barriers. The emphasis of this program is on: Surveying of buildings that come under the prime law covering publicly funded buildings. Monitoring new construction of the type that would come under the Human Rights Law - hotels, motels, restaurants, etc. Providing cost estimates and plans for renovations to private buildings which are open to the general public, and to make such buildings ac- cessible. For more information call 443-3341 or write: Barrier Free Design Pine Tree Society for Cripped Children and Adults P.O. Box 518 Bath, Maine 04530 Massachusetts Legislation Massachusetts State legislation has provided strong and enforceable laws on architectural barriers: All state public buildings built or reconstructed after July 1, 1968 shall be made accessible to, function for, and safe for use by physically handi- capped persons (including local schools and town halls). The Architectural Barrier (AB) Board was created in 1968 to enforce the architectural barrier laws. The seven members (three of which must be handicapped persons) have the power to institute court proceedings to compel compliance and offer consultation and assistance in building projects. The AB Board can be contacted about violations of the law: Robert Lynch, Chairperson Frank Quinn, Administrative Assistant Department of Public Safety 1010 Commonwealth Ave., Boston, Mass. Tel. 727-6257 The Architectural Barrier law was amended to include public housing authorities, the Mass. Port Authority, the Mass. Parking Authority, the Mass. Turnpike Authority or any building authorities of any public educa- tional institutions effective as of October 29, 1971 (Chapter 584, Mass. Law 1971). The law was further amended to include private buildings that are "open to and used by the public, and shall include transportation terminals, in- stitutional buildings, commercial buildings exceeding two stories in height or employing more than 40 persons, buildings having places of assembly of more than 150 persons, public areas in funeral homes, restrooms in shop- ping centers, hotels, motels, and dormitories," as of January 1, 1972 (Chapter 827, Mass. Law 1972). The Curb Cut Law of 1973 requires that whenever a sidewalk is being newly constructed or replaced, the local department of public works must construct curb cutouts at intersections to increase accessibility. 65 As of January 1, 1975, the Massachusetts Building Code, Chapter 802, re- quires that building inspectors of each town inspect local building plans and facilities to insure implementation of AB Board regulations. Public Involvement and Advocacy Because the AB Board does not have sufficient manpower to comprehensive- ly implement and insure that architectural barriers laws are carried out, citi- zen involvement and action are needed. The following are resources in ac- complishing this on a local level: Violations of the law should be reported to the AB Board or to the De- partment of Public Safety. Businesses, construction companies, and community leaders and political representatives must be urged to make facilities accessible and should be contacted as specific documentations and situations arise. The Massachusetts Association of Paraplegics, P.O. Box 48, Bedford, Mass- achusetts 01730, has available for loan to local community groups a movie on architectural barriers entitled "Beating the Averages." Showing it will increase both attitudinal and structural efforts toward a barrier-free state. Rhode Island Legislation Chapter 37 of the Rhode Island laws outlines the rules which architects must follow for all buildings and facilities used by the public. Any building or con- struction, whether it is permanent, temporary or created for an emergency, must conform to these rules if it is constructed after January 1, 1971 and an exemption was not granted. (Exemptions were only to be granted if construc- tion was too far along to make major modifications impractical.) These rules are listed here as an example of what is needed to begin to break down physical and architectural barriers. The site must be graded to make access easy for handicapped individuals. Public walks must be at least 48 inches wide and should not be steep. The slope should not be higher than five degrees. You should be able to travel the sidewalks without having to climb any steps, large or small. At the top of a walk, there should be a level platform measuring five feet long and five feet deep (if the door opens toward you). If you have to push the door at the top of a walkway, the platform should be at least five feet long and three feet deep. The platform should extend one foot beyond each side of the doorway. Special parking lot spaces should be available to you if you have a physical disability. They should be clearly marked and wide enough for a person on crutches, braces, or in a wheelchair to get out of the car. The spaces, by law, should be twelve feet wide. However, the number of spaces set aside for the physically disabled will depend upon the number of handi- capped people using the lot. 66 If a ramp is used, it should not rise higher than one foot for every twelve feet in length (that's about a five degree slope). It should have at least one handrail 32 inches from the ground as measured from the base of the ramp. Each rail should also extend one foot beyond the top and bottom of the ramp. The ramp itself should have a non-slip surface with level platforms at 30 foot intervals or wherever it turns. At least one entrance to each building must be accessible by wheelchair and there must be an elevator at that level. You should be able to open all doors with a single effort and have a door opening no less than 32 inches wide. The floor on either side of the door- way should also have a level area, measuring five feet deep. Like the ramps, stairways should have handrails 32 inches high with at least one handrail extending 18 inches or more beyond the top and bot- tom steps. Each step itself can be no higher than seven inches. Floors should be made of non-slip material. In any building constructed with state funds, there should be a toilet you can get to and use no matter what your physical handicap is. Bathrooms should be large enough for wheelchairs, with at least one toilet stall three feet wide and almost five feet deep. The door to the stall should be at least 32 inches wide, with a seat 20 inches from the floor. Handrails, 32 inches high and parallel to the floor, one and a half inches in diameter and one and a half inches from the wall, should also be present. You should also be able to get to the sink and the towel dispenser. Shelves and mirrors can be no higher than 40 inches from the floor. Urinals must either have their bases on the floor or open no more than 19 inches from the ground. Water fountains must be accessible to the physically disabled. An adequate number of public telephones, with the dial and handset with- in easy reach by individuals confined to wheelchairs, should be available. There should also be at least one well-identified public phone equipped to assist those with hearing disabilities. Elevators must be available, with access to all levels normally used by the public. Control buttons should have identifying features for those who are blind. Switches and controls for light, heat, ventilation, windows, draperies, fire alarms, and any other type of control button the public often uses in a public building must be accessible to someone in a wheelchair. In addition, all important controls and areas of a building should be iden- tified with either raised letters or numbers so that blind people can be ad- vised on the use of facilities or warned of dangers. On doors, for example, the identification should be either on the right or left side and approxi- mately five feet from the floor. The international wheelchair symbol should be used as a directional sign to the entrances, routes, and facilities available to physically handicapped people. These rules apply to all facilities constructed after January 1, 1971 with the help of state or municipal funds, or with the money from any political sub- division of the state. As of 1975, newly built transportation terminals, institutional buildings, com- 67 mercial buildings more than two stories high or employing more than forty persons, buildings with rooms holding more than one hundred and fifty per- sons, public areas in funeral homes, rest rooms in shopping centers, hotels, motels and dormitories must all conform even if they were constructed with private funds. Apartment houses do not have to conform. 3. BIBLIOGRAPHY Barrier-Free Architecture: 'Yesterday's Special Design Becomes Tomorrow's Standard' Barrier-Free Design: Accessibility for the Handicapped. Phyllis L. Tica and Julius A. Shaw. 1974. $1.50. Institute for Research & Development in Occupational Education Center for Advanced Study in Education The Graduate School and University Center City University of New York 1411 Broadway New York, N.Y. 10018 Barrier-Free Design: A Selected Bibliography. Peter L. Lassen. 1973. Architectural Coordinator Paralyzed Veterans of America, Inc. 7315 Wisconsin Ave. N.W. Suite 301W Washington, D.C. 20014 Barrier-Free Site Design. Washington, D.C.: Superintendent of Documents, U.S. Government Printing Office. 1975. Free. Office of Policy Development and Research Room 8146 U.S. Department of Housing and Urban Development Washington, D.C. 20410 Construction Details - Planning for the Handicapped. Committee to Eliminate Architectural Barriers in Westchester County, 713 County Office Building, White Plains, N.Y. 10601 Designing for the Disabled. Selwyn Goldsmith. Second edition. 1967. McGraw Hill Book Co. Order Services Princeton-Hightstown Road Hightstown, N.J. 08520 The Elimination of Architectural Barriers to the Disabled. Canadian Rehabilita- tion Council for the Disabled, Suite 303, 165 Floor, Street E, Toronto, Ontario, Canada. An Illustrated Handbook of the Handicapped Section of the North Carolina State Building Code. Ronald L. Mace and Betsy Laslett. 1974. North Carolina Department of Insurance Attention: Ms. Minnie White 68 Wake County Courthouse P.O. Box 26387 Raleigh, N.C. 27611 Making Facilities Accessible to the Physically Handicapped. 1967. Unable to verify. May be available from the following source. New York State University Construction Fund 194 Washington Ave. Albany, N.Y. 12210 Newsletter of the Committee on Barrier Free Design. President's Committee on Employment of the Handicapped Washington, D.C. 20210 Rules and Regulations of the Architectural Barriers Board. (ABR-1). $.60 Division of Public Documents State House, Room No. 116 Boston, Mass. 02133 Tel. 727-2834 Services for Special Needs. Contact local Bell Telephone Business Office. Note: A special thanks to the Technical Education Research Center, Cam- bridge, Massachusetts for sharing the majority of this resource list with the New England Spinal Cord Injury Foundation. 1. EMPLOYMENT Employment is a very important part of the lives of most Americans. Although there are a great variety of occupations or "jobs", most people consider their work a significant aspect of their total personality. Also, employment provides for the financial support of the individual and, in some cases, for all or a part of the support of a family. It can assist a person in realizing a level of financial freedom as well as achieving a certain degree of self-satisfaction. For many spinal cord injured individuals, employment is more important than the norm, because of the psychological and financial adjustments that must be made. Employment is a reasonable goal for the majority of persons who have been paralyzed by a spinal cord injury. This chapter is a guide to meaningful employment resources. 69 1. FEDERAL Rehabilitation Act of 1973 It seems certain that the federally mandated implementation of Affirmative Action programs, first introduced in Section 503 of the Rehabilitation Act of 1973, will generate positive, concrete and far-reaching effects upon employment opportunities for physically disabled persons. Of major emphasis in this Act is the mandate that qualified handicapped applicants be actively recruited, consid- ered, and when determined qualified, employed without discrimination of any kind on the basis of a physical or mental handicap. Section 503 Section 503 of the Rehabilitation Act of 1973 mandates that any employer with federal contracts of $2,500 or more must not only hire and promote, but actively recruit disabled persons. Although this legislation does not have a strong impact on small businesses, it does succeed in requiring many larger in- dustrial firms to establish, support and implement Affirmative Action pro- grams. These programs must in writing present a concrete plan toward the re- cruitment and employment of a projected number of handicapped persons. Section 503 also requires employers, whenever possible and within reason, to attempt to make their job sites physically accessible. Section 504 Section 504, as yet unspecified in many areas, focuses on non-industrial agen- cies who receive federal grants. Included in this category are most education- al, medical and non-profit organizations. 504 states: "No otherwise qualified handicapped individual in the United States ... shall, solely by reason of his handicap, be excluded from the participation in, be denied the benefits of, or be subjected to discrimination under any program or activity receiving feder- al assistance." Although the government has not yet outlined how 504 is to be implemented, it is reasonable to expect that its thrust follow the direction of 503. If strongly supported, it is likely to significantly expand employment opportunities for disabled persons. Employment Discrimination Under the Rehabilitation Act of 1973, persons who feel that they have been dis- criminated against because of a handicap may file a documented and written complaint with the employer in question, and, if necessary, with the Department of Labor. Complaints may also be directed to: Office of Federal Contract Compliance Programs, John F. Kennedy Federal Building, Room 1612C, Boston, Mass. 02203, Tel. 223-4232 The Massachusetts Department of Labor and Industry, Division of Industrial Safety, 100 Cambridge Street, Boston, Mass. 02202, Tel. 727-3461 The Civil Liberties Union, 3 Joy Street, Boston, Mass., Tel. 227-9469 Federal Civil Service Commission Within the Civil Service Commission is a non-competitive appointment authority through which an interested federal agency can offer a job to a severely dis- 70 abled person who otherwise does not meet all the testing, education, and/or ex- perience requirements of Civil Service. The problem here, however, is that a willing Federal agency and appropriate job must first be located and developed. To follow is a listing of Federal Civil Service offices as well as a listing of Feder- al agencies throughout New England. Persons interested in Federal employment should contact specific agency personnel offices to arrange a meeting to discuss the applicant's background and skills as well as the agency's employment out- look. Civil Service Commission Offices Connecticut 450 Main Street, Hartford 244-3096 Maine - 40 Western Avenue, Augusta 622-6171 Massachusetts - 3 Center Plaza, Boston 02108 223-5038 New Hampshire 80 Daniels Street, Portsmouth 582-7220 Rhode Island - 310 Federal Building, Providence 528-4447 Vermont - Federal Building, Burlington 800-642-3120 Major Federal Agencies in New England This list includes only the larger government installations. For smaller installa- tions, more detailed addresses, and for offices of SOCIAL SECURITY AD- MINISTRATION and U.S. POSTAL SERVICE, consult your local telephone directory. Connecticut Danbury 06810 - Federal Correctional Institution 746-2444 E. Hartford 06108 - Naval Plant Representative Office, Pratt & Whitney Aircraft 565-6865 Groton 06340 - Supervisor of Shipbuilding, USN, Conversion and Repair 446-5587 Groton 06340 - U.S. Naval Submarine Base, New London, Box 20 449-3646 Hartford 06114 - Defense Contract Administration Services District, 90 Murphy Road 244-2730 Hartford 06101 - Internal Revenue Service, P.O. Box 959 244-2760 Hartford 06103 - Veterans Administration Regional Office, 450 Main Street 244-3409 Newington 06111 - Veterans Administration Hospital,' 555 Willard Ave. 666-4631 New London 06320 - U.S. Coast Guard Academy, Mohegan Ave. 443-8463 New London 06320 - U.S. Naval Underwater Systems Center 442-0771 Storrs 06268 - Soil Conservation Service, Mansfield Professional Park (for Conn. & R.I.) 429-9361 Stratford 06497 - Naval Plant Representative Office, Sikorsky Aircraft 378-6361 West Haven 06516 - Veterans Administration Hospital, West Spring Street 933-2561 Maine 71 Augusta 04330 - Internal Revenue Service, 68 Sewall Street 622-6171 Bath 04530 - Supervisor of Shipbuilding, 574 Washington Street 433-3311 Brunswick 04011 - U.S. Naval Air Station 921-2271 Cutler 04630 - U.S. Naval Radio Station, Cutler, East Machias 259-8215 Limestone 04751 - Loring Air Force Base 999-7154 Orono 04473 - Farmers Home Administration, USDA Office Bldg. 866-4928 Orono 04473 - Soil Conservation Service, USDA Office Bldg., University of Maine 866-2132 Portland 04112 - Customs Service, U.S. Customs House 775-3131 Portland 04112 - Immigration & Naturalization Service, P.O. Box 578, Downtown Sta. 775-5641 Togus 04330 - Veterans Administration Center 623-8411 Massachusetts Amherst 01002 - Soil Conservation Service, 29 Cottage Street 549-0650 Andover 01812 - Internal Revenue Service Center, 310 Lowell St. 475-8247 Ayer 01433 - Headquarters, Fort Devens, Department of Army 976-2333 Bedford 01731 - Electronic Systems Division, L.G. Hanscom Air Force Base, HDQRS. 3245 Air Base Group (Also includes Air Force Cambridge Research Laboratories) 861-4570 Bedford 01730 - Veterans Administration Hospital, 200 Springs Rd. 275-7500 Boston 02109 - ACTION (Peace Corps / Vista), 1405 J. W. McCormack Post Office & Courthouse 223-6366 Boston 02203 - Community Services Administration, JFK Federal Building 223-6298 Boston 02210 - Defense Contract Administration Services Region, 666 Summer Street 542-6000 Boston 02203 - Department of Health, Education and Welfare, JFK Federal Bldg. 223-4475 Boston 02203 - Department of Labor, JFK Federal Building, Room 1001 223-6731 Boston 02203 - Drug Enforcement Administration, Room G-64, JFK Federal Bldg. 223-2170 Boston 02203 - Environmental Protection Agency, JFK Federal Bldg., Room 2211-B. 223-7215 Boston 02114 - Equal Employment Opportunity Commission, 150 Causeway Street 223-4535 Boston 02203 - Federal Bureau of Investigation, JFK Fed. Bldg. 742-5533 Boston 02108 - Federal Deposit Insurance Corporation, 2 Center Plaza, Room 810 223-6420 Boston 02114 - Federal Energy Administration, 150 Causeway Street 223-3721 Boston 02114 - First U.S. Coast Guard District, 150 Causeway Street, 5th Floor 223-3620 Boston 02210 - First Naval District Headquarters, c/o DCASR 542-6000 Boston 02109 - Fish and Wildlife Service, J. W. McCormack Post Office and Courthouse 223-2967 Boston 02203 - General Accounting Office, JFK Federal Bldg., Room 1903 223-6536 72 Boston 02109 - General Services Administration, J. W. McCormack Post Office and Courthouse, 223-2624 Boston 02203 - Housing and Urban Development, JFK Federal Bldg. 223-4361 Boston 02203 - Internal Revenue Service, JFK Federal Bldg. 223-5542 Boston 02109 - Law Enforcement Assistance Administration, 147 Milk Street, Suite 800 223-4671 Boston 02110 - Milk Market Administrator, 230 Congress St., Room 403 542-8636 Boston 02203 - National Labor Relations Board, Bulfinch 223-3332 Bldg., 7th Floor, 15 New Chardon Street 223-3350 Boston 02114 - National Park Service, 150 Causeway St. 223-3774 Boston 02108 - Regional Administrator of National Banks, 3 Center Plaza, Suite P-400 223-2274 Boston 02114 - Selective Service System, 150 Causeway Street 223-6311 Boston 02114 - Small Business Administration, 150 Causeway St. 223-7776 Boston 02109 - U.S. Civil Service Commission, J.W. McCormack Post Office & Courthouse 223-2545 Boston 02203 - U.S. Customs Service, JFK Federal Building 223-7585 Boston 02129 - U.S. Naval Shipyard 242-1400 Boston 02130 - Veterans Administration Hospital, 150 South Huntington Ave. (Jamaica Plain) 232-9500 Boston 02132 - Veterans Administration Hospital, 1400 VFW Parkway (West Roxbury) 323-7700 Boston 02108 - Veterans Administration Outpatient Clinic, 17 Court Street 223-2027 Boston 02203 - Veterans Administration Regional Office, JFK Federal Building 223-3006 Brighton 02135 - Public Health Service Hospital, 77 Warren St. 782-3400 Brockton 02401 - Veterans Administration Hospital 583-4500 Burlington 01803 - Federal Aviation Administration, NE Region, 12 New England Executive Park 273-7215 Cambridge 02142 - Transportation Systems Center, Kendall Sq. 494-2479 Chicopee Falls 01022 - Westover Air Force Base, 439 Combat Support Group (DPC) 557-2921 Falmouth 02542 - Otis Air Force Base, 102nd FiW Base Detachment (DPC) 968-4994 Gloucester 01930 - National Marine Fisheries Service, Federal Building, 14 Elm Street 281-0640 Maynard 01754 - Defense Civil Preparedness Agency, Region 1, Federal Regional Center 223-6230 Natick 01760 - U.S. Army Natick Development Center, Kansas Street Recruitment & Placement Branch 653-1000 Northampton 01060 - Veterans Administration Hospital 584-4040 Pittsfield 01201 - Naval Plant Representative Office, 100 Plastics Ave. 494-1110 S. Weymouth 02190 - U.S. Naval Air Station 335-5600 Waltham 02154 - Defense Contract Audit Agency, 424 Trapelo Road 894-2400 Waltham 02154 - U.S. Army Engineer Division, 424 Trapelo Rd. 894-2400 Watertown 02172 - Army Materials and Mechanics Research Ctr. 923-3000 Wellfleet 02663 - Cape Cod National Seashore 349-3787 73 Woods Hole 02543 - Department of Commerce, NOAA, National Marine Fisheries Service 548-5123 New Hampshire Durham 03824 - Soil Conservation Service, Federal Bldg. 868-7581 Hanover 03755 - Army Cold Regions Research & Engineering Laboratory, Box 282 643-3200 Laconia 03246 - White Mountain National Forest, P.O. Box 638 524-6450 Manchester 03101 - Housing and Urban Development, 1230 Elm Street 669-7011 Manchester 03103 - U.S. Air Force, 6594th Instrumenta- tion Squadron, New Hampshire Satellite Tracking Station 472-3911 Manchester 03104 - Veterans Administration Hospital, 718 Smith Road 624-4366 Manchester 03103 - Veterans Administration Regional Office, 495 Silver Street 624-4366 Nashua 03060 - Federal Aviation Administration, Air Route Traffic Control Office, Northeastern Blvd. 889-1171 Portsmouth 03801 - Internal Revenue Service, P.O. Box 720 436-7720 Portsmouth 03801 - Pease Air Force Base, 509 Bomb Wing (CSG/DTC) 436-0100 Portsmouth 03801 - U.S. Naval Shipyard 439-1000 Rhode Island Davisville 02854 - U.S. Naval Construction Battalion Ctr. 267-2791 Narragansett 02882 - Department of Commerce, NOAA, National Marine Fisheries Service, Narragansett Lab., RR 7A Box 522-A, South Ferry Road 789-9326 Narragansett 02882 - Environmental Protection Agency, 789-0784 National Marine Water Quality Laboratory, South Ferry Rd. 789-1071 Newport 02840 - Naval Education and Training Center, Bldg. 11 841-2150 Newport 02840 - U.S. Naval Underwater Systems Center 841-3317 Providence 02940 - Internal Revenue Service, Box 6528 528-4852 Providence 02908 Veterans Administration Hospital, 700 Davis Park 521-1700 Providence 02903 Veterans Administration Hospital, Code 25, Federal Building, Kennedy Plaza 528-4479 West Warwick 02893 - Defense Mapping Agency, Topographic Center, Providence Office, Brookside Avenue 821-2500 Vermont Burlington 05401 - Immigration and Naturalization Service, Federal Building 862-6501 Burlington 05401 - Internal Revenue Service, 11 Elmwood Ave. 862-6501 Burlington 05401 - Soil Conservation Service, Suite 205, 1 Burlington Square 862-6501 Montpelier 05602 - Farmers Home Administration, Box 588 229-2371 74 Rutland 05701 - Green Mountain National Forest, P.O. Box 519 775-2579 St. Albans 05478 - U.S. Customs Service, P.O. Box 111 524-6527 White River Junction 05001 - Veterans Administration Center 295-9363 2. STATE Divisions of Vocational Rehabilitation (DVR) State divisions of vocational rehabilitation were established to assist persons with physical, emotional, and/or mental disabilities in reaching an individualized voca- tional goal. Services provided are directed toward this vocational goal, which is defined as realistic, appropriate employment consistent with a person's abilities and limitations. In line with this, then, is the principle that vocational growth and measurable progress are requirements in the provision of DVR services. De- pending upon individual abilities and limitations, employment can be in the competitive labor market, in a self-operated or owned business, at home, or in a homemaker function. Eligibility In the broadest of terms, DVR eligibility is based on: the presence of a physical, emotional, or mental disability which constitutes or results in a substantial handicap to employment, and a reasonable expectation that vocational rehabilitation services will be of benefit to the individual in terms of employability. Services In the rehabilitation process of working with an individual toward an appropri- ate vocational goal, Divisions of Vocational Rehabilitation can offer the follow- ing services, as deemed necessary: Medical, psychological, and vocational evaluations to learn the nature and de- gree of disability and to help evaluate the individual's work capacity. Counseling and guidance services toward achieving good vocational adjust- ment. Medical, surgical, psychiatric, and hospital care and related treatment to reduce or remove a disability. Psychotherapy and other mental restoration services. Wheelchairs, artificial limbs, prosthetic, orthotic, and other equipment de- vices needed to increase physical capacity. Training in a college, trade, or commercial school toward prevocational and/ or personal adjustment training, remedial education, or an occupation. On-the-job training. Services in comprehensive or specialized rehabilitation facilities, including sheltered workshops and adjustment centers. Maintenance and transportation when necessary so that the disabled person may get full benefit of other vocational rehabilitation services. Tools, equipment, and licenses for work on the job or in establishing a small business. Interpreter services for the deaf. Services to members of a handicapped individual's family when necessary in the adjustment or rehabilitation of the handicapped individual. Such other goods and services which can reasonably be expected to benefit a handicapped individual in terms of his employability. 75 Placement assistance in a job suited to the individual's highest physical and mental capacities. Placement follow-up to see that placement is satisfactory to both employee and employer. Office Listings: Connecticut Bridgeport District. Bridgeport Area Office, 1470 Barnum Ave., Bridgeport 06610 384-0094 Central High School, 1 Lincoln Blvd., Bridgeport 06606 333-8551, Ext. 385 Danbury Area Office, 95 Locust Ave., Danbury 06810 748-4154 Danbury High School, Clapboard Ridge Rd., Danbury 06810 792-1100 Stamford Area Office, 26 Palmer's Hill Rd., Stamford 06777 325-1544, Ext.21 PARS-PROJECT (Bridgeport), 434 State St., Bridgeport 06603 384-1761 Fairfield Hills Hospital, Box W., Newtown 06470 426-2531, Ext. 244 Harding High School, 1734 Central Ave., Bridgeport 06610 333-8551, Ext. 304 Norwalk Area Office, 61 East Ave., Norwalk 06851 853-9609 Hartford District Hartford Area Office, 122 Washington St., Hartford 06106 566-4100 Blue Hills Hospital, 51 Coventry St., Hartford 06112 566-3058 PARS-Project (Hartford), 2550 Main St., Hartford 06106 566-3833 Connecticut Correctional Institute-Somers, Somers 749-8391, Ext. 87 Manchester Area Office, 806 Main St., Manchester 06040 646-3232 PARS-Project (New Britain), 233 Main St., New Britain 06050 224-2601 New Britain Area Office, 100 Arch St., New Britain 06050 229-8522 New Haven District Ansonia-Derby-Seymour Schools, Derby High School, Derby 06418 735-2094 PARS-Project (New Haven), 194 Bassett Street, New Haven 06511 787-6187 Meriden Area Office, 71 Catlin St., Meriden 06451 235-6667 or 235-5264 New Haven Area Office, 1 State Street, New Haven 06510 787-1277 Norwich District PARS-Project (Norwich), 279 Main Street, Norwich 06360 889-2351 Mansfield State Training School, Mansfield Depot 06251 429-6451 *Public Assistance Rehabilitation Services New London Area Office, 302 State Street, Room 209, New London 06320 443-1719 Norwich Area Office, 257 Main Street, Norwich 06360 887-3546 Norwich Hospital, Norwich 06360 889-7361, Ext. 53 Putnam Area Office, 168 Main Street, Putnam 06260 928-6408 Seaside Regional Center, 36 Shore Road, Waterford 06385 447-0301 Waterbury District Bristol Area Office, 1001 Farmington Ave., Bristol 06010 584-2413 Connecticut Correctional Institute-Cheshire, Route 10, Cheshire 06410 272-5391, Ext. 84 PARS-Project (Waterbury), 70 Linden St., Waterbury 06702 756-7291 Torrington Area Office, 122 Water St., Torrington 06790 482-2495 Torrington Area Schools, 355 Migeon Ave., Torrington 06790 482-7441 Waterbury Area Office, 8 Prospect St., Waterbury 06702 757-1581 76 Maine Bangor 04401 - 117 Broadway (1-800-432-7825 toll free) 947-0511 Belfast 04915 - 83 High Street 338-2060 Ellsworth- - 41 Main Street 667-4581 Hallowell - 51 Water Street (1-800-452-4628 toll free) 289-2586 Lewiston - 179 Lisbon, Street (1-800-482-7517 toll free) 783-9151 Machias - 26 Main St., P.O. Box 277 (1-800-432-7846 toll free) 255-8511 Portland - 509 Forest Ave. (1-800-482-7520 toll free) 775-6507 Presque Isle - 555 Maine St., P.O. Box 748 764-0321 Rockland - 1 Park Drive (1-800-432-7802 toll free) 594-2521 Rumford - Portland Street (1-800-482-0702 toll free) 364-7884 Sanford - 1 High Street 324-5097 Van Buren - 194 Main Street 868-5055 York - Route 1, York Corner 363-5121 Administrative Office: Augusta 04330 - State Office of Bureau of Rehabilitation, 32 Winthrop Street 289-2266 Special Units for Vocational Rehabilitation: Augusta Mental Health Institute, Hospital Street 662-3751 Ext. 462 Bangor Mental Health Institute, State Street 947-6981 Ext. 446 Biddeford Regional Vocational Center, Maplewood Ave. 282-1501 Boys Training Center, 675 Westbrook St., So. Portland 773-3887 Eastern Maine Medical Center Rehabilitation Unit, 489 State Street, Bangor 942-4110 Governor Baxter State School for the Deaf, P.O. Box 799, Portland 791-3165 Maine Medical Center Rehabilitation Unit, 22 Bramhall Street, Portland 891-2725 Maine State Prison, Box A, Thomaston 354-2535 Men's Correctional Ctr., 119 Mallison St., So. Windham 892-6716 Massachusetts Boston - Government Center and Tufts, 141 Milk St. 357-8137 Brockton - 196 Main Street 583-1530 Brookline - 320 Washington Street 739-9080 Cambridge - 2464 Massachusetts Avenue 492-0360 Concord - 40 Stow St., Emerson School 369-1963 or 1987 Corrections - 80 Boylston St., Boston 426-8555 Fall River - 10 Purchase Street 678-9041 Fitchburg - 76 Summer Street 345-1713 Greenfield - 324 Main Street 774-2326 Holyoke - 560 Dwight Street 536-8200 Hyannis - 147 Falmouth Road 775-6131 Lawrence - 46 Amesbury Street 685-1731 Lowell - 97 Central Street 457-7544 Lynn - 36 Exchange Street 593-6604 Malden - 33 Dartmouth Street 324-7160 Mattapan - 591 Morton Street, Dorchester 288-4600 Milford - 3 Fayette Street 478-0700 Natick - 83 Speen Street 655-7500 77 New Bedford - 558 Pleasant Street 993-6256 Norwood - 511 Washington Street 769-5950 Pittsfield - 6 Clinton Avenue 499-2720 Plymouth - Human Services Center, Lakeville 947-7680 Quincy - 1431 Hancock Street 471-1600 Roxbury - 55 Dimock Street 442-5510 Southbridge - 922 West Main Street 765-5968 Springfield - 16 Fort Street 736-7296 Taunton - 30 Taunton Green 823-8141 Worcester City - 75B Grove Street 754-1757 Worcester Suburban - 110 Lancaster Street 791-6301 Massachusetts Rehabilitation Commission Publications and Resources: 1. "What Can the Commonwealth of Massachusetts Do For You if You are Disabled?" 2. "Clients Rights and Responsibilities" - information for new clients of MRC. 3. "Physical Disability Services" 4. "The Informer" - a quarterly publication by MRC to provide accurate infor- mation to handicapped individuals and groups concerning legislative and programmatic shifts and developments relevant to MRC. 5. "Employment Resources Newsletter" - projects labor market demands in Massachusetts. New Hampshire Regional Program Offices: Offices: Berlin 03571 227 Main Street 752-2271 Concord 03301 169 Loudon Road 271-2327 Keene 03431 40 Mechanic St. 357-0266 Manchester 03103 130 Silver St. 669-8733 Portsmouth 03801 147 Congress St. 436-8884 School Cooperative Programs: Concord 03301 - Concord Coop, Concord High School, Warren St. 225-9471 Franklin 03235 - Franklin Coop, 119 Central Street 934-3108 Keene 03431 - Monadnock Reg. High School, Swanzey Center 352-8835 Lebanon 03766 - Lebanon Sr. High School, 195 Hanover Street 448-2135 Littleton 03561 - White Mountains, 33 Main Street 444-3925 Rochester 03867 - Spaulding High School, Wakefield Street 332-6959 Penacook 03301 - Merrimack Valley, Center Street 753-4311 Claremont - Claremont Coop, Stevens High School, Broad Street 542-6507 Institutional Programs Laconia 03246 - Laconia State School, P.O. Box 370 524-5373 Ext. 339 Manchester 03104 - Youth Development Ctr., 1056 No. River Rd. 625-5471 Ext. 20 Concord 03301 - N.H. Hospital, 105 Pleasant St. 224-6531 Ext. 530 Concord 03301 - N.H. State Prison, 281 No. State Street 224-6554 Ext. 37 Special Programs: Concord 03301 - Workman's Compensation, 1 Pillsbury St. 271-3174 Concord 03301 - SSI/SSDI Program, 105 Loudon Road, Bldg. 3 271-3773 78 Rhode Island Providence 02903 - 40 Fountain Street 421-7005 Vermont Barre - 107 North Main. Street 828-3475 Montpelier - 81 River Street 828-3455 Newport - 20 Main Street 334-6794 Burlington - 59 Pearl Street 658-3364 Rutland - 98 Merchants Row 775-0119 Bennington - 203 North Main Street 442-8614 Springfield - 1 South Ridge Street 885-2275 St. Johnsbury (Answering Service) - 42 Eastern Avenue 748-8716 White River Junction - Gilman Building, Holiday Drive 295-7122 Rural and Farm Family Rehabilitation Burlington Morrill Hall, UVM 656-3013 St. Albans Federal Building, St. Albans 524-6717 St. Johnsbury 20 Main Street, Box 421 748-9649 Rutland Federal Building 775-1566 Division of Employment Security (DES) Although employment assistance services can greatly differ among DES offices, each office maintains daily listings of state-wide job openings. Many offices have an assigned job interviewer or counselor to assist handicapped job seekers. In addition, DES is sometimes able to sponsor and/or provide on-the-job train- ing programs, unpaid work experiences, specialized skill training programs, and job development and placement assistance. Persons wishing to utilize DES services should keep in mind that, to be effective, close contact must be main- tained, as job listings change daily. Because many DES offices are inaccessible, it is wise to phone ahead to discuss an appointment. Office Listings: Connecticut Ansonia - 555 Main St. 734-3367 New Britain - 100 Arch St. 224-2481 Bridgeport - 816 Fairfield New Haven - 634 Chapel St. 865-0131 Ave. 335-0112 New London - 166 Bank St. 443-2041 Bristol - 59 No. Main St. 582-7421 Norwalk - 731 West Ave. 838-0623 nbury - 64 West St. 743-3841 Norwich - 1 Railroad Ave. 887-3587 Danielson 14 School St. 774-8581 Putnam - 50 Canal St. 928-2749 Enfield - 110 High St. 745-3371 Stamford - 20 Summer St. 348-7505 Hartford - 2550 Main St. 566-3499 Manchester - 806 Main St. 649-4558 Torrington - 350 Main St. 482-5583 Meriden - 24 So. Grove St. 235-6374 Waterbury - 83 Prospect St. 754-6103 Middletown - 437 Main St. 346-8683 Westbrook - Brookside Ave. 399-9761 Milford - 625 Bridgeport Willimantic - 478 Valley St. 423-2521 Ave. 878-6645 79 Maine Bath - 180 Front St. 443-5536 Augusta (Job Bank) Belfast Custom Square 338-1755 20 Union Street 289-3113 Rockland 235 Park St. 596-6413 Farmington - Mount Blue 778-6321 Calais - 171 Main St. 454-7551 Rumford - 35 Congress St. 364-3716 Machias - 70 Court St. 255-8400 Bar Harbor - 93 Cottage 288-3139 Augusta - State House 289-2601 Ellsworth - 8 State 667-2554 Atlantic - Ferry Service 526-2400 Massachusetts Attleboro - 29 Park Street, Lawrence - 444 Canal St. 682-5217 P.O. Box 978 222-1950 Lowell - 291 Summer St. 457-7641 Boston - C.F. Hurley Bldg., Lowell CEP - 125 Perry St. 459-0311 Government Center 727-6320 Lynn - 8 Silsbee St. 593-7466 Brockton - 25 White Ave. 586-8100 Malden - 213 Main St. 322-8890 Cambridge - 806 Mass. Ave. 547-7757 Marlboro - 186 Main St. 485-2080 Chelsea - 339-401 Broadway 884-8767 Milford - 65 Congress St. 473-1985 Fall River - 446 No. Main 679-6421 New Bedford - 874 Purchase Fitchburg - 356 Broad St. 343-6461 St. 999-2361 Framingham - 206 Howard Newburyport - 15 Green St. 462-4494 St. 875-5238 Newton - 264 Centre St. 969-9470 Gardner - 175 Connors St. 632-5050 North Adams - 85 Main St. 663-3748 Gloucester - 18 Washington Northampton - 58 Pleasant St. 283-4772 St. 586-2621 Greenfield - 31 Federal St. 774-4361 Norwood - 50 Central St. 762-0354 Haverhill - 38 Kenoza Ave. 374-4753 Pittsfield - 46 Summer St. 499-1793 Holyoke - 227 South St. 536-1967 Plymouth - 19 Court St. 746-5910 Hyannis - 60 North St. 775-5800 Quincy - 1433 Hancock St. 471-2750 Hyde Park - Little City Hall, Roslindale - Little City Hall, 1179 River Street 364-3434 8 Cummins Highway 323-7465 Jamaica Plain - 3485 Wash- Salem - 118 Washington St. 745-1860 ington St. 522-4500 South End, Boston - 225A Huntington Ave. 727-7472 Massachusetts (cont.) Springfield - 1592 Main St. 785-1231 Ware - 23 W. Main St. 967-594 501 State St. 781-3134 Webster . 562 Main St. 943-124 Taunton - 72 School St. 824-5835 Woburn - 12 Walnut St. 935-4654 Waltham - 738 Main St. 899-9340 Worcester - 51 Myrtle St. 757-3811 Waltham Professional - 400 Totten Pond Rd. 890-7150 New Hampshire Berlin - 122 Pleasant St. 752-5500 Littleton - 16 Maple St. 444-297 Claremont - 140 Maple Ave. 543-3111 Manchester - 317 Lincoln Concord - 47 So. Main St. 225-5534 St. 627-7841 Dover - 110 Locust St. 742-3600 Nashua - 1 Main St. 882-5171 Keene - 216 Main St. 352-1904 Portsmouth - 600 State St. 436-3702 Laconia - 354 Main St. 524-3960 80 Rhode Island Bristol - Court House, Providence - 124 West High St. 253-7545 Exchange St. 861-6200 E. Providence - 877 Broad- Wakefield - Dale Carlia way 434-1914 Corner, Narragansett 789-9721 Newport - 268 Bellevue Ave. 847-2038 Warren - 851 Main St. 245-930 No. Kingstown - 6194 Post Warwick - 50 Occupass- Road 855-2250 tuxet Rd. 737-7550 No. Providence - 1951 Smith West Warwick - 17 Provi- St. 231-5290 dence St. 821-540 Pawtucket - 109 Main Street Westerly - 57 Spruce St. 596-2814 (placement) 726-0500 Woonsocket - 217 Pond St. 769-822 17 Broadway (benefits) 726-0500 Vermont Barre - 347 No. Main St. 479-0536 Newport - 18 Main St. 334-6545 Bennington - 108 Gage St. 442-6376 Rutland - 19-23 Wales St. 773-3338 Brattleboro - 4-6 Main St. 254-4555 St. Albans - 86 North Burlington - 59-63 Pearl St. 658-1120 Main St. 524-5948 Middlebury - Middlebury St. Johnsbury - 44 Eastern Shopping Plaza 388-4921 Ave. 748-3177 Montpelier - 6 E. State St. 223-2366 Springfield - 25 Main St. 885-2167 Morrisville - Pleasant St. 888-4545 White River Junction - 5 No. Main St. 295-3136 3. HELPING ORGANIZATIONS Small Business Administration; The Small Business Administration is able to provide a wide range of assistance to persons considering small business enterprises, including informational work shops, limited counseling and guidance, and a wealth of publications dealing with all aspects of operating a self-owned business. Some examples of smal business enterprises are: copy/mimeograph service; magazine subscription agen cy; animal breeding; telephone answering service; vending machine operation babysitter placement agency and a good many other possibilities. Operating a mall business requires extensive exploration, research, and organization and hould not be undertaken without measurable knowledge of its potential for uccess, cost factors, geographical location, and other applicable considerations. Dn the other hand, this option can very often represent a viable and marketable ocation for a severely disabled person and as such should be carefully consid- red when appropriate and/or necessary in vocational planning. Commission on Employment of the Handicapped The Commission on Employment of the Handicapped provides general informa- tion about employment services and assistive agencies available to handicapped persons. It does not provide direct employment assistance. The commission is also involved in legislation relevant to the employment rights of the disabled population. For further information, contact: Maine - Governor's Committee on Employment of the Handicapped, c/o 81 Stanley Jones, Bureau of Rehabilitation, 32 Winthrop Street, Augusta, 04330 289-3056 Massachusetts - Massachusetts Commission on Employment of the Handi- capped, Charles F. Hurley Building, Government Center, Boston 727-6470 New Hampshire - Governor's Committee on Employment for the Handi- capped, 105 Loudon Road, Concord 271-3121 Vermont - Governor's Committee on Employment of the Handicapped, 81 River Street, Montpelier, 05602 828-2861 National Alliance of Businessmen (NAB) The National Alliance of Businessmen attempts to link disadvantaged workers with jobs in industry. Although most of its work and assistance has been di- rected toward veterans, ex-offenders, and poverty groups, NAB appears both open to and interested in assisting handicapped persons whenever possible and can be contacted to determine possible job assistance. Connecticut - National Alliance of Businessmen, 250 Constitution Plaza, New Haven 249-5241 Maine - National Alliance of Businessmen, The Greater Portland Chamber of Commerce, 142 Free Street, Portland 04101 772-2811 This is a job placement service available to residents of Cumberland County. Massachusetts - National Alliance of Businessmen, Boston Regional Office, 50 Federal Street, Boston, 02110 482-6513 Other Employment Resources Other sources of employment assistance are: Maine Department of Manpower Affairs, Employment Security Commission, Divi- sion of Employment Services, Augusta 289-3431 Regional offices are listed in the telephone directory under "Maine, State of." Each regional office has a counselor who works specifically with the handi- capped. Massachusetts Task Force on the Handicapped, Inc., a joint effort of the Massachusetts Re- habilitation Commission and the Division of Employment Security, serves as a job clearinghouse for handicapped persons and, whenever possible, provides direct job development and placement assistance. In addition, the Task Force consults with employers and/or employees about possible job modifications and maintains a current listing of statewide job openings. Contact: Task Force on the Handicapped, Inc. Charles F. Hurley Building Government Center, Boston, Massachusetts 727-6451 or 727-4211 New Hampshire 82 Concentrated Employment Program, 50 Lowell Street, Manchester, Director: W. Eugene Garlichs 669-3912 Services: Full scale personalized assistance to disadvantaged unemployed and under-employed persons. Services include outreach and recruiting, counsel- ing and assessment, orientation, support, basic education, vocational training, work experience, job development and placement, and continued follow-up. Eligibility: A resident of Manchester or a surrounding town, who qualifies under the terms of the U.S. Department of Labor definition of a "disadvan- taged individual," and who can become permanently employable through the services provided by CEP. Fee: None Contact: All agency referrals and inquiries regarding eligibility should be made through Mr. W. Eugene Garlichs, Director, or Mr. David L. Crowell, Deputy Director. Vermont Office of Manpower Services, Montpelier, Vermont, Director: Don Holland 828-3355 4. SPECIAL RESOURCES Occupational Outlook Handbook Published yearly by the U.S. Department of Labor, the Occupational Outlook Handbook describes the requirements and job duties of hundreds of occupa- tions, lists the employment outlook of specific jobs, and provides names and ad- dresses of organizations directly knowledgable about career opportunities. It is an excellent resource for exploring occupational families (e.g. allied health professions, technical and trade areas, etc.) and specific jobs, and is relatively easy reading. Copies may be obtained from local libraries or can be purchased from the U.S. Department of Labor, Washington, D.C. Dictionary of Occupational Titles (DOT) This publication identifies by job title and describes by job function over 10,000 ifferent jobs. Although it tends to be rather technical and stuffy, it can provide aluable information about what is required, both physically and mentally, to erform a specific work task. Copies of the Dictionary of Occupational Titles re available at all Division of Employment Security Offices, as well as from ocal libraries. ob Adaptations ery often a particular job, seemingly inappropriate and/or impossible for a pinal cord injured person, can be adapted to his or her individual capacities nd limitations without jeopardizing the performance expectations of an em- loyer. Job adaptations can involve alterations in equipment, work procedures, nd in the physical environment, as well as the use of special aids and devices in erforming a task. Adapting a job for a severely physically disabled individual 83 ometimes requires little more than imagination - for example, if 10% of an in- pection job involves the physical task of packaging and stacking boxes, this ask could be traded to an able bodied employee in exchange for an equivalent, on-physical, 10% duty of his. Spinal cord injured persons, counselors and interested employers throughout New England who wish assistance in job evaluations and/or adaptations should ontact: Tufts New England Medical Center, Biomedical Engineering, Box 1014, 171 Harrison Avenue, Boston, Massachusetts 02111 956-5036 or Charles Snell, Industrial Engineer, Massachusetts Rehabilitation Commission, 296 Boylston Street, Boston, Massachusetts 727-2183 On-The-Job Training Programs (OJT) some instances, the Division of Employment Security (DES) or the Division of Vocational Rehabilitation (DVR) can provide financial incentive and support employers who are willing to train, and subsequently employ, a disabled per- on. Length of training and salary levels will vary greatly with the skill require- nents of the job, but are generally at competitive levels. An on-the-job training program can be of real value to an employer in that he is able, at low financial isk, to fully train an employee his own way. In the process of teaching a partic- ular skill, he will also gain some level of work productivity. Although many DES and DVR counselors do not have the time to personally develop OJT programs for eligible clients, they are often able to sponsor such programs once a willing employer has been discovered. As a result, if a disabled person wishing to learn a kill (e.g. bookkeeping) can find an employer willing to teach it at minimal per- onnel costs, this should be presented to DES or DVR for sponsorship consider- tion. Unpaid Work Experience potentially strong selling point for job seekers is the ability to present to em- bloyers a record of actual work experience. Section 501 of the Rehabilitation Act of 1973 indicates that handicapped persons may acquire this work experi- ence without pay in Federal agencies. Although opportunities are limited, those interested in learning more about this possibility should contact the Federa Civil Service Commission. Insurance Risk Information Many employers are reluctant to hire physically disabled persons because they anticipate an increase in their workman's compensation premiums. In fact, in surance companies do not take the physical condition of employees into accoun when computing a firm's premiums for workman's compensation. Premiums are computed in two ways: rates are broadly based on the occupational hazards o the class into which the employer falls, or on the employer's past accident track record. Research done by a private industrial firm confirms that "the safety record of properly placed disabled workers is similar to that of able-bodied persons." A pamphlet which explains the issues of workman's compensation and safety 84 records is: "Hiring the Handicapped: Facts and Myths" American Mutual Insurance Alliance, 20 N. Wacker Dr., Chicago, Illinois 60606 5. BIBLIOGRAPHY Adaptation of Jobs for the Disabled. 1969. $3.20. International Labor Office, United Na tions, New York, N.Y. 10017. Affirmative Action to Employ Handicapped People: How the New Law on Federal Con tracts Affects the Employer/Protects the Job Seeker and Employee. U.S. Department of Labor, Employment Standards Administration, Washington, D.C. "Disability is no Handicap." Joe Wolfe. Alliance Review. Winter 1973-74. (Reprint) Free President's Committee on Employment of the Handicapped, Washington, D.C. 20210 Employment for the Handicapped: A Guide for the Disabled, their Families and their Coun selors. Nashville, Tennessee. Abindon Press. 1967. "Employment of Physically Handicapped Persons in the Federal Service." (Pamphlet) Bureau of Recruiting and Examining, Office of Public Policy Employment Programs, U.S Civil Service Commission, 1900 E. Street NW, Washington, D.C. 20415 Good Personnel Practices Include the Handicapped. (Pamphlet) Free. Mass. Commission or Employment of the Handicapped, Charles F. Hurley Building, Government Center, Boston Mass. 02114 727-6470 Guide for Federal Agency Coordinators in Selective Placement of the Handicapped: Identi- fying and Eliminating Architectural Barriers. (Pamphlet) 1974. Free. Office of Selective Placement Programs, U.S. Civil Service Commission, 1900 E. Street NW, Washington, D.C 20415 "Handbook of Selective Placement in Federal Civil Service Employment of the Physically Handicapped, the Mentally Restored, the Mentally Retarded and the Rehabilitated Offend er." (Pamphlet) Bureau of Recruiting and Examining, Office of Public Policy Employment Programs, U.S. Civil Service Commission, 1900 E. Street NW, Washington, D.C. 20415 Selected References on the Vocational Counseling, Placement and Employment of Handi capped Workers. Chicago, Illinois. National Easter Seal Society. 1975. Working Together the Key to Jobs for the Handicapped. AFL-CIO. (Pamphlet) 1973 Free. President's Committee on Employment of the Handicapped, Washington D.C. 20210 J. HOUSING Adequately accessible housing is of primary importance to spinal cord injured persons. It must include negotiable ramps, doorways, bathrooms and, when pos- sible, modified kitchen areas. However, the reality of existing housing options, especially in the private sector, clearly dictates that an individual is not likely to find this ideally defined level of accessibility. The following guidelines for selecting a house or apartment were written by the Rancho Los Amigos Hospital, although it is recognized that practically no existing house or apartment will meet these requirements. In selecting a living arrangement then, it is best to look for individually workable features to accommodate your wheelchair. Where barrier-free apartments are either not feasible or desirable, a downstairs apart- ment in an older home with wide doorways (at least 30") and a large bathroom 85 might be a good start. 1. GUIDELINES FOR SELECTING A HOUSE OR APARTMENT Outside House/Apartment 1. Flat walk (about twice as wide as wheelchair) up to entrance. 2. As few stairs as possible. Remember it requires about 1 foot of ramp for every inch of stair, so be sure you have enough room for this. 3. Will the owner permit ramp to be built? 4. Easy access to where car is parked, preferably over a paved surface. Inside House/Apartment 1. Single levels in house/apartment are desirable. 2. Doorways into and throughout house/apartment should be wide enough for wheelchair and/or equipment to fit through. Be sure to include the bathroom door. (Measure at the narrowest point with the door open - 26" minimum and 30" if possible.) 3. All rooms and hallways should be wide enough for wheelchair/equipment to fit through (hallway needs to be at least 45" at narrowest point). 4. Sill (threshold) on entry door should be as low as possible. 5. There should be either firm wall to wall carpeting or no carpeting. Loose shag rugs are difficult to maneuver a wheelchair over and hazardous with ambulat- ing equipment. Bathroom 1. You need to be able to get wheelchair parallel to tub or shower. If you have a tub/shower combination, a shower curtain is best, or if not, glass doors; and track should be removable (get owner's permission). 2. Avoid bath stall showers with narrow doors and high ledges and unusually short bathtubs. 3. Toilet - make sure there is enough space on either or both sides for wheel- chair approach. 4. Will owner permit installation of grabbars near toilet, tub or in shower? 5. You can get in closer to the sink if there are no cupboards underneath. Bedroom 1. Can clothes be removed and re-hung in the closet from a sitting position? If necessary, will the owner permit clothes rod to be lowered? 2. Enough room to maneuver in the bedroom for activities such as transfer and making the bed. Kitchen 1. Enough room so you can maneuver easily in the kitchen. 2. Adequate cupboards and drawers that you can reach from a wheelchair. 3. Refrigerator doors that can be opened safely from a wheelchair. 4. Stove controls that can be reached safely from wheelchair. 5. Can equipment be positioned near dining table? 6. Enough space to allow wheelchair to approach or get underneath sink. 86 Miscellaneous 1. Nearby laundry facilities that person can get to and operate. 2. Shopping facilities nearby. 3. Lights, heater, air-conditioning switches, windows, and telephones that can be operated from a wheelchair. 2. PUBLIC HOUSING UNITS Federal law indicates that 10% of all low-income housing be accessible to and us- able by handicapped persons. In addition, most states require that a percentage of elderly public housing be designed specifically for and appropriate to handi- capped persons. Most of these accessible apartments are one bedroom in size, however, limiting their availability to families. Connecticut The Office of Housing and Urban Development (HUD) will provide information and/or assistance with rent subsidies and barrier-free housing. The address is: 999 Asylum Avenue, Hartford, Connecticut Telephone: 244-2119 The following lists housing units in Connecticut with handicapped units. For specific information on apartment availability, contact the appropriate city housing authority. Bethel Augustana Homes 334-6178 Bloomfield Wintonbury Park 233-1264 Bridgeport Washington Heights Sycamore Place 336-2813 Farmington Tunxis Apartments 673-2444 Hartford Vine Court 527-9126 Brotherhood Homes 247-3755 Immanuel House 525-4228 Ten Marshall House 249-3350 Capitol Towers 522-1151 Tuscan Homes 525-7983 St. Christopher 238-2955 Middletown Stoneycrest Tower 238-2955 Newfield Towers 238-2955 New Haven Fairbank 787-1237 Bella Vista I 238-2955 Bella Vista II 238-2955 New Milford Butterbrook Hill Norfolk Meadowbrook Apartments 379-6970 Wallingford Silver Pond Apartments 238-2955 Waterbury Prospect Towers 756-4685 Savings Tower 755-0131 Lambda Rho 757-2445 Nottingham Tower 754-8915 Valley Mall Manor 754-0445 Eastgate 756-4685 Robin Ridge 87 787-1237 West Hartford West Hartford 236-5961 Fellowship Housing Maine Under Section 8 of the Housing and Urban Development Act, the Maine State Housing Authority will be providing rent subsidies to eligible individuals or families living in existing housing units in several Maine communities. The ap- plicant must either be living in an apartment which he cannot really afford or, in the event he locates new housing and, provided the landlord agrees, he can ap- ply for a rent subsidy through his local housing authority. For further informa- tion, contact the Maine State Housing Authority in Augusta or your local Hous- ing Authority. The state rent subsidy program, which went into effect January, 1975, requires that one of every 10 new units approved by the Maine State Housing Authority be accessible for the handicapped/wheelchair confined. The first building under this program was started in October of 1975 and it is expected that within a year 300 units will be under construction, 30 of which will be wheelchair ac- cessible. These units will be located in various communities throughout the state. Eligibility for renting or leasing one of the above subsidized units is based on income, assets, and housing needs. The landlord of each housing complex will be responsible for handling rental applications. The following is a list of planned construction sites. LOCATION NO. OF HANDICAPPED UNITS. DEVELOPER/BUILDER Bath 5 Bath Housing Authority Belfast 1 Waldo Cnty. Comm. Action Biddeford 4 Tambone Bridgton 1 York-Cumberland Dev. Corp. Cape Elizabeth 1 Balfour *Dover-Foxcroft 1 P & I Realty - Bangor Fairfield 1 Andy Lessard Falmouth 1 York-Cumberland Dev. Corp. Lincoln 1 Rosenthal LOCATION NO. OF HANDICAPPED UNITS DEVELOPER/BUILDER Lisbon 1 Vachon Madawaska 1 Truitt McLaughlin Madison 1 Brad Ronco Hallowell Millinocket 1 Truitt McLaughlin Milo 1 Milo Housing Auth. Corp. Old Orchard Beach 1 Begin, Fregeau & Mokarzel Paris 1 Bahre Patten 1 Hathaway Richamond 1 Brad Ranco - Hallowell * Rockland 1 Laukke Saco 1 York-Cumberland Dev. Corp. * Skowhegan 1 Mark Moody 88 The majority of the above units are one and two bedroom apartments specified for the elderly and the handicapped. Those areas which will have family units are starred' For further information on public housing units, contact: Maine State Housing Authority, Augusta, Maine Tel. 622-3126 Massachusetts There are over 200 housing authorities in Massachusetts, each responsible for elderly and handicapped housing. Rent is based on individual income and there are no residency requirements to qualify for public housing units. A 1970 Massachusetts state law requires that a minimum of 5% of all newly constructed public housing be accessible. NUMBER OF LOCATION HANDICAPPED UNITS PHONE NUMBER DESIGN SCORE** Acushnet 4 995-1203 14 (10) * Agawam 6 786-1297 *Amesbury 6,8 388-2022 Amherst 4 256-0206 19 * Andover 7 475-2365 20 *Arlington 7 646-3400 19 (17) Attleboro 5 222-0151 19 * Auburn 4 832-3674 Avon 6 848-7480 11 (10) Barre 4 355-4081 19 (18) Bedford 3,4 275-2428 15 (Bedford Village) Belchertown 3 323-4064 15 Bellingham 4 883-7418 18 (Oak Woods) * Belmont 4 484-2160 Beverly 9 926-3000 (Salem Tower) NUMBER OF LOCATION HANDICAPPED UNITS PHONE NUMBER DESIGN SCORE** Blackstone 4 883-4161 14 Boston - S. End (Franklin Sq. House) 9 742-4989 (Concord House) 8 426-5266 Boston - E. Boston (Land Fall West) 6 227-7870 (E. Boston Rehab.) 4 445-0845 Boston 11 426-5266 Boston - Jamaica Plain (Forbes Building) 14 524-1180 Braintree - Monatiquot Village 2 848-2400 10 Bridgewater 3 697-7405 8 89 Cambridge (Memorial Drive) 15 926-3000, 868-0808 (Cambridge Court) 5 354-6645 *Cambridge 10 864-3020 Canton 8 828-5820 Chatham 4 945-0478 11 Chelmsford 8 256-7425 11 Chelsea 5 884-2763 (Carter Heights) 5 884-2522 Chicopee 3 292-1785 Cohasset 4 383-1383 Danvers 4 777-0909 Dennis 3 394-6378 Dighton 4 679-2937 16 Duxbury 4 934-6618 18 E. Bridgewater 4 378-3838 15 E. Boston 6 227-7870 E. Boston 4 445-0845 Easthampton 4 527-1600 10 (8) Easton 8 238-7685 15 Fairhaven 6 993-1144 19 Everett (Everett St. Plaza) 13 387-1774 (Glendale Court) 13 387-6389 Fitchburg 13 345-5032 17 Fall River (Highland Heights) 208 678-2861 Foxboro 4 543-5840 Framingham 5 879-7562 15 * *Franklin 4 528-2220 Gardner (Colonial Apts.) 2 227-7870 Georgetown 4 325-6331 17 (15) * *Gloucester 4 283-4434 19 (Central Grammar) 8 227-7897 NUMBER OF LOCATION HANDICAPPED UNITS PHONE NUMBER DESIGN SCORE Grafton 6 838-2549 17 Granby 4 17 Greenfield 4,5 773-3188 20 Hatfield 3 Holbrook 4 767-0024 6 Holliston 4 429-6266 19 Holyoke (Elmwood Towers) 14 (413) 534-5667 Hopedale 4 473-8120 13 (17) Hopkinton 4 *Hudson 8 562-9268 17 (16) 90 Ipswich 3 356-2860 *Kingston 4 585-2178 Jamaica Plain 14 524-1180 Lee 4 243-3464 12 (13) Lawrence (Rita Hall) 10 227-7870 * Leicester 4 892-4620 16 Lenox 4 637-1455 8 Leominster 9 537-2861 16 (17) Lexington 4 861-0261 11 Lincoln (Lincoln Woods) 7 227-7897 Littleton 10 486-4287 18 (17) Lowell, (Raymond 9 Lord Manor) 4 227-7897 Ludlow 583-8976 Lynn 13 (St. Stephen's Tower) 227-7897 (Louis Barett 14 Residence) 8 592-8100, 581-5000 * Lynn 4 592-1966 18 Manchester 3 526-1511 *Mansfield 4 339-6890 Marshfield 834-4333 18 Marlborough 11 (Academy Knoll) 4 227-7870 Marblehead 631-2580 11 (13) Maynard (Summer 12 Hill Glen) 5 326-5800 Medfield 4 359-8505 (Wilkens Glen) 326-5800 Medford (Mystic 27 Valley Towers) 3 723-6185 Medway 8 533-8731 9 (10) * Melrose 4 Merrimac 4 18 (19) NUMBER OF LOCATION HANDICAPPED UNITS PHONE NUMBER DESIGN SCORE** Methuen 6 682-8607 14 (13) Milford 4 473-9521 12 Millis 3 376-8181 Monson 3 267-3557 New Bedford 25 993-1711 19 Newburyport 4 465-7216 12 Newton 4 969-8404 Norfolk 4 528-4800 14 Northampton 5 584-4030 19 (20) Northampton 6 Norton 4 969-8404 16 No. Andover 3 686-3816 Norwell 4 91 Norwood 8 762-3767 10 (11) Oxford 5 987-5055 16 Pittsfield (Oak Hills) 4 (413) 499-1630 Peabody (Crowninshield Apts.) 25 227-7870 (Tannery) 592-0400 Plymouth 5 746-2105 Quincy 10 471-7050 18 (Wollaston Manor) 16 723-1995 Randolph 8 963-7071 20 Revere 10 284-4394 Rowley 3 948-2371 6 Roxbury 2 442-0210 Salem 8 744-4432 14 Salisbury 5 462-7268 Saugus 4 233-2116 11 Scituate 10 15 Seekonk 4 336-6382 Sharon 6 784-5565 17 (18) Shrewsbury 5 757-0323 Somerville 16, 8 625-1152 Somerset 6 11 Southboro 4 Southbridge (South Village) 8 764-7675, 227-7870 Southbridge 8, 12 765-9314 18 So. Hadley 4 532-3194 18 So. Lincoln Ctr. 7 227-7897 Southwick 4 569-3161 17 Spencer 4 885-4314 19 (16) Springfield (Bergen Circle) 15 426-5266 (Chestnut Park) 22 523-8603 (Hunter Place) 4 (203) 624-4171 NUMBER OF LOCATION HANDICAPPED UNITS PHONE NUMBER DESIGN SCORE* Stoneham 10 438-0734 6 (5) Stoughton (Knoll's Brook) 11 828-8100, 828-5973 *Sudbury 4 443-5569 Swansea 4 679-5828 11 *Taunton 10 *Templeton 4 *Tewksbury 4 851-6171 *Topsfield 5 Uxbridge 7 278-3232 10 Ware 4 967-4477 15 (16) Wareham 4 295-9009 92 Wayland 4 655-6310 19 (18) Webster 7 943-1634 17 (18) Wellesley 3 235-0223 11 Westborough 3 366-1225 10 W. Bridgewater 3 588-2781 14 Westfield 6 568-0031 Westford 4, 6 692-6011 Westport 4 675-2039 11 W. Springfield 5 788-0847 Weymouth (Colonial 5 331-2323 Village) 12 337-3121 *Winchendon 5 297-2280 Winchester 4 729-6806 16 (15) *Winthrop 8 Worcester (Washington Hts.) 12 523-4886 (Lincoln Village) 68 256-0961 (Coe's Pond) 25 723-6185 *Designates 90% or more of units completed **Designates accessibility level on a scale of 1-20 with 20 representing fu accessibility. It should be noted that the Boston Housing Authority has many wheelchair a cessible units located throughout the city in several housing units constructe for the elderly. The apartments have wide doors, lower counters, stoves, ligl switches, emergency alarm systems, and grab bars at tub and toilet. All ha parking adjacent to the entrance. Interested persons may contact: Harold Remmes or Vivienne Thomson Boston Housing Authority 1701 Washington Street, Boston, Mass. 02118 247-1694 Assistance in locating public housing in Massachusetts may be obtained from: John Morrison or Cheryl Davis Department of Community Affairs Bureau of Housing for the Handicapped Commonwealth of Massachusetts 100 Cambridge Street, Boston, Mass. 02202 727-3247 New Hampshire For information on barrier-free housing and rent subsidies in New Hampshire, contact your local housing authority or the Office of Housing and Urban Devel- pment (HUD). Address: 1230 Eim Street, Manchester, New Hampshire 03101 669-7011 This office also serves Vermont and Maine. 93 Berlin Housing Authority 10 Granite Street, Berlin, N. H. 03570 752-4240 Claremont Housing Authority 243 Broad Street, Claremont, N. H. 03743 542-6411 Concord Housing Authority 40 South Main Street, Concord, N. H. 03301 224-4059 Dover Housing Authority 62 Whittier Street, Dover, N. H. 03820 742-5804 Exeter Housing Authority 11 Pleasant Street, Exeter, N. H. 03833 778-8110 Keene Housing Authority 105 Castle Street, Keene, N. H. 03431 352-6161 Laconia Housing and Redevelopment Authority 25 Union Avenue, Laconia, N. H. 03246 524-2112 Lancaster Housing Authority Town Hall, Lancaster, N. H. 03584 788-2468 Lebanon Housing Authority South Main Street, West Lebanon, N. H. 03784 298-5753 Manchester Housing Authority 34 Fir Street, Manchester, N. H. 03101 625-8936 Nashua Housing Authority 101 Major Drive, Nashua, N. H. 03060 883-5661 New Hampshire State Housing Commission 1087 Elm Street, Room 402, Manchester, N. H. 03101 622-9848 Newmarket Housing Authority P. O. Box 308, Newmarket, N. H. 03857 659-5444 Northumberland Housing Authority Town Hall, Northumberland, N. H. 03584 668-0252 Portsmouth Housing Authority 245 Middle Street, Portsmouth, N. H. 03801 436-4310 Rochester Housing Authority Wellsweep Acres, Rochester, N. H. 03867 332-4126 Salem Housing Authority Municipal Building, Salem, N. H. 03079 893-355 Somersworth Housing Authority 42 Bartlett Avenue, Somersworth, N. H. 03878 692-286 Rhode Island There are 131 federally assisted and two low rent public housing units in Rhod Island which are adapted for handicapped use. All are located in elderly housin units. NUMBER OF HANDICAPPED LOCATION UNITS TEL. NO No. Providence - Spring Villa Apts., McQuire Road 6 231-144 Providence - Huntington Tower, Benedict Street 10 331-313 94 Providence - Parkis Place, 9 Parkis Avenue 18 331-057 Providence - Olney Tower, One Valley Street 24 Providence - Charles Place, 460 Charles Street 20 274-121 Providence - 1890 House, 53 Jackson Street 6 521-103 Providence - Charles Gate Square Apts., No. Main St. 14 751-323 Warren - Kickemint Village 11 Woonsocket - Waterview Apts., Privilege Street 10 769-166 Woonsocket - Mt. Vernon Apts., Diamond Hill Road 12 762-238 In addition, the city of Warwick has constructed a housing unit with fou apartments designed for handicapped occupancy. Housing is also available from: Bannister House, 135 Dodge Street, Providence, R. 1. 02906 274-322 Further information on housing in Rhode Island can be obtained by contacting Department of Community Affairs, Division of Housing & Governmental Services, 150 Washington St., Providence, R. I. 02903 227-285 Office of Housing and Urban Development, Providence Insuring Office, 330 Federal Building, Providence, Rhode Island 528-435 Vermont: Barrier-free apartments are gradually becoming available throughout the state There is usually a waiting list but contact should be made with the local housin authority to apply. Vermont Housing Authorities: Barre Housing Authority P.O. Box 525, Barre, Vermont 05641 476-318 Bennington Housing Authority 100 South Street, Bennington, Vermont 05201 442-800 Brattleboro Housing Authority 100 Melrose Terrace, Brattleboro, Vermont 05301 254-607 Burlington Housing Authority 230 St. Paul Street, Burlington, Vermont 05401 864-053 Montpelier Housing Authority 155 Main Street, Montpelier, Vermont 05602 229-9232 Rutland Housing Authority 5 Tremont Street, Rutland, Vermont 05701 775-2926 Springfield Housing Authority 80 Main Street, Springfield, Vermont 05156 885-8905 Vermont State Hot sing Authority 101 Main Street, Montpelier, Vermont 05602 826-3295 Ninooski Housing Authority P. O. Box 248, Winooski, Vermont 05404 655-2360 3. PRIVATE APARTMENTS There is a great deal of variability in architectural barriers present in most private apartments. Older buildings, while often less expensive, may have more exten- 95 sive barriers. When calling about modern apartment buildings, ask whether they are "garden style" since these usually have the least entrance barriers. The most comprehensive way to locate a private apartment is to explore and utilize the newspaper advertisements, real estate agencies, and helpful or knowledgable friends. Massachusetts The following list of private apartments was derived from a questionnaire mailed to members of the Massachusetts Association of Paraplegics, Inc. in May, 1974. These are apartments that spinal cord injured persons have lived in and have found generally adequate. Call to find out about present availability of units. Boston Morville House Accessibility: The entrance is ramped and The Fenway there is an elevator in the building. There are 100 Norway Street 14 units designed for the handicapped: one 261-8533 bedroom and efficiency units. Brookline 1440 Beacon Street Accessibility:- Level entrance, wide bathroom 738-1550 doors. Cambridge Continental Gardens Accessibility: Rear entrance has one step. 14 Concord Avenue Management will allow ramp. Elevator in 364-2626 building. 308 Memorial Drive Accessibility: Level entrance, wide bathroom 368-0808 doors. East Dennis Melpet Apartments Accessibility: Level entrance, narrow bathroom Route 134 door, parking at the door. Fall River Highland Heights Apts. Accessibility: Completely accessible. Apart- 1197 Robeson Street ment complex. Contact: Fall River Housing Authority P.O. Box 989, Fall River 02722 678-2861 Lynn Neptune Towers Accessibility: Ramped entrance, wide bath Neptune Blvd. room door, nearby parking. 595-6401 Malden 630-Salem Street Accessibility: Completely accessible. 96 322-9460 Norwood Nassau Gardens Accessibility: Ramped back entrance, wide 208 A Bahama, Drive bathroom doors. 769-4900 Windsor Gardens Accessibility: Level entrance to some units 624 Walpole Street wide bathroom doors. 762-8282 Springfield Bay State Place Accessibility: Level entrance, wide bathroom 414 Chestnut Street doors. 733-7894 Watertown 24 Pattern Street Accessibility: One step from side entrance, ac cess to ground floor apartments, narrow bath room doors. Winthrop Governors Park Accessibility: Two high-rise buildings, ne Governors Drive steps, elevator. 846-7170 Fort Heath Apartments Accessibility: Ramp at back entrance. 846-7300 Worcester Lincoln Village Accessibility: Level entrance, wide bathroon 37 Pleasant Valley Drive doors. 852-2256 33 Pleasant Valley Drive Accessibility: Wide doorways, managemen plans to install ramp. Maine Three apartment complexes in the state of Maine have special units available for the handicapped. They include: Biddeford 04005 Ledgewood Apartments 6 of 60 units 9 Graham Street Livermore Falls 04254 Livermore Terrace Apartments 3 units available Saco 04072 Golden Village Apartments 1 of 12 units 21 Bradley Street 4. HOUSES 97 In general, real estate agents and newspaper advertisements are the most helpful sources of locating a house to purchase or rent. Usually ranch style homes are most accessible or most easily adapted. In many larger cities in New England, Tenant's Organizations and/or housing as- sistance organizations may be helpful in locating suitable housing. These agencies are generally listed in the Yellow Pages of the telephone book under "Social Service" organizations. 5. HOUSING MODIFICATIONS AND ACCESSIBILITY Persons in need of housing adaptations and modifications may obtain assistance from the following sources: The Division of Vocational Rehabilitation (DVR) in each state can often pro- vide, at no cost, an architectural consultant and/or the names of knowledgeable architects who can assess architectural barriers, recommend solutions, and es- timate costs. In cases where the needed modifications can be related to the pro- cess of vocational rehabilitation (i.e. toward enabling an individual to become employed or to become more independent in homemaking tasks), DVR can ab- sorb the costs of these modifications. The decision to do so, however, is based on individual considerations and should be discussed with your vocational rehabilitation counselor. The Staff of a Hospital Rehabilitation Unit, especially the physical and occupa- tional therapists, are often willing and able to make home visits to evaluate needed housing adaptations. Other Physically Disabled Persons who have been through the experience of home modifications can provide valuable information about the process, as well as visually demonstrate the results of those modifications. These persons can be located through either of the above sources or through local consumer groups. Community Action Programs (CAP) In Maine, assistance with home renovations may be provided by regional Com- munity Action Programs. Eligibility for this service requires owning a home, re- ceiving Aid to Families with Dependent Children (AFDC) or Supplemental Se- curity Income (SSI), and needing repairs or replacements to remove health or safety hazards. This program provides labor and some tools, and the individual provides the materials. The home improvement program is financed on a year-to- year basis and may not be available at all times. In other New England States, Community Action Programs can sometimes provide general assistance with housing adaptations. To determine the kinds of assistance available, contact the CAP program nearest you. Agencies currently providing this service in Maine include the following: Penquis Community Action Program, 611 Hammond Street, Bangor 98 Coastal Economic Development, Inc., 48 Front Street, Bath Androscoggin Task Force on Human Needs, 240 Main St., Lewiston Washington-Hancock Community Agency, Main and Center Streets, Machias Aroostook County Action Program, Skyway Industrial Park, Presque Isle 6. TRAILERS Barrier-free mobile homes are now being developed and marketed. One company currently building barrier-free mobile homes is: Specialty Homes, Inc. 2 Salt Creek Lane, Hinsdale, Illinois (312) 325-6628 Transportation costs of moving a trailer from Illinois, to New England would be very expensive; however, Specialty Homes can be a resource for overall informa- tion and specifications. Some local mobile home dealers can provide informa- tion on building specifications needed for trailer adaptation. Trailers may also be rented to meet the need for short term housing. Each trailer model has different dimensions and will need to be checked for adequate door width and turning radius (particularly within the bathroom). Twenty- eight-inch wide doors will allow access unless you have an extra wide wheel- chair. Be sure to check that the corridor width will allow the wheelchair to turn into the bathroom or bedroom. The front entrance will, of course, have to be ramped. Local trailer manufacturers and distributors may be found in the Yellow Pages. 7. COMMUNAL/TRANSITIONAL HOUSING The need for Independent Living Centers, especially for high-level quadriplegics who require assistance with daily living activities, is sorely recognized. Without transitional housing, spinal cord injured persons are often forced to enter nurs- ing homes or chronic care facilities. Transitional housing can also bridge the gap for all levels of spinal cord injured persons between the hospital and full return to community living. Maine Independent Living Center, Bangor: Residents must be engaged in an educa- tional or work-related program and must be in need of attendant care services. The goal of the Center is to provide transitional housing in preparation for moving into the community. Physical Layout: The Center is located at Husson College's Bell Hall. It cur- rently consists of five single rooms with plans to expand in future years. Meal tickets are available for all residents and all meals are provided by the Husson College cafeteria service. Transportation: The Center operates a bus for transporting students to other 99 schools in the Bangor-Orono area or for transportation of residents to and from work. Financial Arrangements: The individual is expected to contribute toward his room and board charges with a portion of his room costs subsidized by the Maine Housing Authority. Attendant care is provided by the Bangor Coun- seling Center, Home Health Services Agency and is paid for with Medicaid, Medicare, private insurance or vocational rehabilitation funds. For further information, contact: Director, Independent Living Center c/o Husson College 1 College Circle Bangor, Maine Massachusetts Three facilities, with a fourth planned for the Worcester area, presently provide communally supported housing. Boston Center for Independent Living, Inc., Boston Physical Layout: The Center is presently located in Boston University's Theology and Towers dormitories, both wheelchair accessible buildings, with plans underway to relocate to the Statler Hotel. Present accommodations house 12 persons and each unit is a double room. Meal tickets are available for the Boston University cafeteria and kitchen facilities are provided in the basement of the dormitory. Requirements: The individual must be involved in a higher education or training program or be employed in the community; must need attendant care for activities for daily living; and must be willing to use the Center as a transitional step toward eventual community living. Transportation: The Massachusetts Rehabilitation Commission will provide transportation to other schools for those individuals eligible for M.R.C. ser- vices. The Center is centrally located at B.U. so that residents who are B.U. students can use their wheelchairs to commute to classes. The Center hopes to purchase a small van in the future. Financial Arrangements: The individual is responsible for room and board (usually paid by SSI, SSDI or personal funds). Medicaid funding will provide for personal care attendants and consultants. Attendants are often students from Sargent College of Allied Health Professions. A physician, occupational therapist, physical therapist, and rehabilitation nurse are available for con- sultation. For further information, contact: Director, Boston Center for Independent Living, Inc. 745 Commonwealth Avenue Boston, Massachusetts. 353-4100 Wellington Hall, Waltham 100 Physical Layout: Presently located on the grounds of Middlesex County Hospital in Waltham, Wellington Hall is a special unit with private rooms for each resident. Present accommodations house nine persons. A study and lounge area, kitchen, and dining room are all located within the unit. Requirements: The individual must be vocationally active (e.g. attending school or working in the community), in need of attendant care, and medi- cally covered. Transportation: The Massachusetts Rehabilitation Commission provides transportation to vocational programs. For further information, contact: Martha Franz (social worker), Middlesex County Hospital, Trapelo Road, Waltham, Mass: 02154 Tel. 894-4600 Lenox Hill Nursing Home, Lynn Physical Layout: This nursing home/physical rehabilitation facility has de- veloped a 25-bed area for spinal cord injured persons. Most rooms are three- bed units with two private rooms available. Kitchen facilities and two re- creation areas are located on the ground floor. Requirements: The individual must be involved in a physical rehabilitation or vocational program. Some residents attend North Shore Community College, Salem State College, Graham Junior College, Career Academy, I.T.T. Technical Institute or Boston University. Transportation: The unit has a Roycemobile to take residents to local schools, jobs, and recreation programs. Transportation to vocational training is sponsored by Massachusetts Rehabilitation Commission. Further informa- tion is available by contacting: Jeff Goldfarb, Rehabilitation Coordinator Lenox Hill Nursing Home and Rehabilitative Hospital 70 Granite Street, Lynn, Mass. Tel. 581-2400 NURSING HOMES Although not ordinarily an acceptable living arrangement, sometimes nursing omes receive discharged spinal cord injured persons because of limited housing esources. In circumstances which require or result in a nursing home placement, is extremely wise to consider and evaluate the facility's location to shopping enters and available activities, overall accessibility, general population make-up, ransportation supports, and whenever possible, its "atmosphere" and attitude concerning life, illness, and independent growth and development. Maine The Maine Department of Human Services, Division of Hospital Services in Augusta maintains a directory of licensed nursing homes and licensed boarding homes in Maine. These homes are listed by county and a call to your local Human Services Office, Hospital Services representative, can tell you which 101 nomes in your community are accessible. 9. MISCELLANEOUS Home Identification Sticker A sticker is available for placement on the bedroom window of a handicapped adult or child to alert firemen that special assistance is necessary in the event of a fire emergency. This sticker is a national symbol and may be obtained from ocal fire departments. K. TRANSPORTATION Transportation is basic to working or going to school and is a necessity in mair taining contact with the community. For many spinal cord injured persons, th best means of transport is by automobile since bus, subway and rail are ofte inaccessible. An automobile is safe, comfortable, and usually reliable. A key t the rehabilitation of any spinal cord injured person is the development of trans portation options which meet his needs. 1. MOTOR VEHICLE OPERATION Driver Evaluation and Training 102 Nearly all spinal cord injured persons can drive their own automobiles and van People with good upper extremities can drive a hand controlled vehicle wit ease and safety. Those with limited use of their upper extremities can also b good drivers due to assistive devices and the many power assists in today's moto vehicles. Several states provide comprehensive screening and evaluation procedures fd the severely disabled, while others require clearance through the Medical Affail Bureau of the Registry of Motor Vehicles. If an evaluation is required, it wi assess motor function, strength, range of motion, vision, and perception. The following schools offer driver training in vehicles with hand controls and/o appropriate equipment. A doctor's statement is needed prior to initiating les sons. In most cases, a specially trained driving instructor is able to determine th appropriate adaptations needed. Fees generally range from $10.00 - $16.00 pe hour with the number of lessons needed depending upon the skills and pro ficiency of the handicapped driver. Massachusetts Brookline - Garber's Auto Driving School, 566-2100 or 734-210 1406 Beacon Street Maynard - Maynard Driving Academy, 74 Main St. (617) 897-337 Area: Statewide Service: Driver training with hand controls, sells and installs hand controls. Taunton - Davis Auto School, 7 Taunton Green (800) 242-0250 (toll free Area: Brockton, New Bedford, Fall River, Taunton and surrounding area Worcester - Central Massachusetts Rehabilitation 852-045 Center, 299 Lincoln Street New Hampshire Contact Paul St. Pierre, Director of Driver Education, Crotched Mountain Center, Greenfield 03047. Rhode Island Contact Paraplegia Association of Rhode Island, P.O. Box 6906, Providence 02940. Vermont Contact Hazel Parry, DeGoesbriand Unit, Medical Center Hospital of Vermont, Burlington 656-2367 or Mr. L. Benger, Vermont Achievement Center, 88 Park Street, Rutland. 775-2395 Department of Motor Vehicles Licensing most states persons who become disabled must be cleared through a Medical Affairs Bureau or Medical Advisory Committee to obtain or renew a driver's icense. A letter from a physician specifying the disabling condition is required. o obtain a license, apply at your local motor vehicles office or Medical Affairs Bureau. At the discretion of the examiners, you may be asked to demonstrate our ability to use your adaptive equipment to pass the driving test. Your 103 icense will be endorsed describing the equipment you need. Connecticut - Motor Vehicle Department, 60 State Street, Wethersfield (203) 566-3863 Maine - Motor Vehicle Division, 242 State St., Augusta (207) 289-3581 Massachusetts - Registry of Motor Vehicles, Medical Affairs Bureau, 100 Nashua Street, Boston (617) 727-3865 New Hampshire - New Hampshire Division of Motor Vehicles, 85 Loudon Road, Concord 271-2371 Rhode Island - Motor Vehicle Registry, State Office Building, Providence (401) 277-3000 Vermont - Vermont Motor Vehicle Department, State Street, Montpelier 828-2121 Plates and Privileges Handicapped plates can be obtained upon physician verification that a signifi- ant disability exists. These plates give the handicapped person the privilege of unlimited parking time at meters and in places especially designated for the handicapped. Apply to the Motor Vehicle Department in your area. New Hampshire There are no "HP" plates in New Hampshire as yet. New Hampshire does, how- ever, have a "walking disability" card which allows for certain parking privileges. To obtain a card, send a letter including the license plate number of your car along with a doctor's certification of your disability to: Mr. Clayton Osbourne, Department of Motor Vehicles, 85 Loudon Road, Concord 03301 Hand Controls There is a wide variety of adaptive driving equipment on the market with many differences in safety, reliability, design, and price. The type of equipment needed is based on the strengths of the driver. Since each person has unique re- quirements, it is extremely important to obtain the correct equipment. Seek ex- pert advice from people with experience in the field of handicapped driving be- fore purchasing equipment. There is no economy in cheap adaptive equipment. t is not safe. Three Main Types of Hand Controls Push-Pull (push for brake, pull for gas) Disadvantage: Can either accelerate or brake but not both simultaneously which is needed on a hill stop. Requires functional grip. Push and Twist (push for brake, twist to accelerate) Advantage: Can accelerate and brake simultaneously. Disadvantage: Handicapped persons without rotation at wrist or god grasp cannot use this. Push and Right Angle (push for brake, accelerate at right angle) Advantage: Any handicapped person needing hand controls can use Most sophisticated. Disadvantage: Hardest of all three to learn. 104 State Manufacturers and Distributors The following are some manufacturers of hand control systems throughou New England. Connecticut Wilfred Dombroski, 249 West Park Ave., New Haven 06511 (203) 469-356 Massachusetts Ashmont Welding, Dorchester Ave., Dorchester (617) 436-886 Henry Dufresne, P.O. Box 931, Worcester (617) 755-2942 or 727-645 Sells and installs Gresham and Wells-Enberg controls. Ellis, Inc., 1001 Commonwealth Ave., Boston (617) 782-477 Bob Harris, P.O. Box 81, Burlington (617) 862-383 Sells and installs Wells-Enberg controls. Sleeper Equipment, Littleton Rd., Rtes. 110 & 225, Westford (617) 692-884 Rhode Island Paraplegia Association of Rhode Island, P.O. Box 6906, Providence 02940. P.A.R.I. will lend hand controls to assist in learning how to drive. If the individual wishes, he or she may then purchase the controls from P.A.R.I. R.I. Limb Company, 80 Elmwood Ave., Providence (401) 941-623 Vermont Spillanes Mobile service Center, 811 Williston Road, Burlington Tom Norway, RFD No. 2, Randolph National Manufacturers and Distributors M. Ross Company, Star Route, Elizabeth, Colorado 80107 Wells Enberg Co., Inc., 2505 Rural Street, Rockford, Illinois 61107 Drive-Master Corporation, 61 North Mountain Ave., Montclair, N.J. 0704 Kroepke Kontrols, 104 Hawkins St., New York, N.Y. 10464 (212) 885-15 Handicaps, Inc., 4345 So. Santa Fe Drive, Englewood, Colorado 80110 Gresham Driving Aids, Inc., P.O. Box 405, 30800 Wixom Road, Wixom, Michigan 48906 The National Institute for Rehabilitation Engineering, 238 Poplar Avenue, Pompton Lakes, New Jersey 07442 Rental of Automobiles with Hand Controls Disabled persons needing automobile controls in order to drive encounter speci problems when traveling and wishing to rent a car. Hand controls are availabl however, advance planning is essential and it is usually easier to deal with super- visory personnel than with the booking clerk. Do not make reservations for hand controls through local agents. Reservations should be made through the national toll free number for Hertz and the regional number for Avis. These numbers are listed in the Yellow Pages of most tele- phone books. Neither Hertz nor Avis charge extra for hand controls. However, Hertz does ask for an additional $25 deposit on cash transactions involving these controls. This does not affect credit card rentals. Hand controls through Avis are available any- where in the United States if the reservation is made two weeks prior to the rental. They are also compiling a list of stations in foreign countries which have hand controls. Hertz has controls available at 10 locations: Detroit Metropolitan Airport, San Francisco International Airport, Los Angeles International Air- 105 port, Chicago O'Hare International Airport, Logan International Airport (Bos- ton), Miami International Airport, Dallas-Fort Worth Regional Airport, Atlanta Airport (Georgia), National Airport (Washington, D.C.), and at the Hertz agent at 310 East 48th Street in New York City. Hertz hand controls, available only on Ford LTD models, must be returned to the same déaler from which they are rented. Avis will confirm that the controls will be at the station with the re- served automobile. Avis emphasizes that the customer should be explicit when making the reservation. This would be a good policy with Hertz as well. Guidelines on Buying an Automobile The following guidelines are recommended when purchasing a vehicle: 2-door sedan for wheelchair user (wider doors, no center post) Service available in most towns (since spinal cord injured persons don't hitchhike well!) American made (i.e. Chevrolet, Ford and Plymouth) Intermediate or standard size Suitable price Automatic transmission Comfortable Maximum visibility from driver's seat Power brakes Power steering Power window Especially for severely disabled persons Power locks Good safety harness Adjustable split seat; enough room between back of front seat, when seat is forward to permit wheelchair to enter when folded, and enough space between back of front seat when it is all the way back to contain wheel- chair in transit. Seat height should be approximately same height as wheelchair seat to make transfers easier. Side and rear view mirrors Determine how vehicle will be used Air conditioning for desert V8 for mountains Front wheel drive for snow and mud Dimmer switch on dashboard or steering wheel Hand controls Swing away or removable head rests to permit throwing left arm over back of seat to load wheelchair. Hand operated emergency brake Hand operated windshield washer The location of the adaptive equipment should not interfere with the opera- tion of the car by non-handicapped person. Vans and Buses Many high level quadriplegics who are unable to transfer independently to and from an automobile find it easier to drive a van from their wheelchair, using an automatic lift or ramp to get in or out. Information on vans, lifts, and ramps may be obtained from: 106 Lance International Ltd., 1391 Blue Hills Ave., Bloomfield, Conn. (203) 242-6281 Braun Corporation, 1014 S. Monticello, Winamac, Indiana 46996 (219) 947-6157 Cheney Wheelchair Van Lifts, 3015 South 163rd Street, New Berlin, Wisconsin 53151 (414) 782-1100 Brockton Dodge, 1906 South Main Street, Rte. 28, Brockton, Mass. (617) 588-5110 Target Industries, P.O. Box 3898, 8 Heywood Street, Springfield, Mass. 01101 (413) 736-5442 Speedy Wagon Sales Corporation, 4105 Old Highway, 94 South, St. Charles, Missouri 63301 (314) 447-5145 Para Industries Ltd., No. 6-4826 Eleventh Street, N.E., Calgary, Alberta, Canada (403) 276-3133 Royce International, 4345 So. Santa Fe Drive, Englewood, Colorado, 80110 (303) 789-1032 Automotive Conversion Corp., 2588 Industrial Row, Troy, Michigan 48084 (313) 549-7070 For further information, see chapter on Equipment. Auto Insurance Many insurance companies will insure handicapped drivers without putting them in an assigned risk category. Check with the larger insurance companies, such as Aetna, Travelers, Liberty Mutual, etc. Handicapped Parking Areas Special parking areas for handicapped drivers are slowly spreading throughout the country. Watch for these in public parking areas, shopping centers, hospitals, doctors' offices, and rest stops. Some effort is needed in educating the general public not to use these parking areas. Funding Sources The Vocational Rehabilitation Commission will often pay for driver training evaluations, lessons and adaptive equipment when the driver is eligible for Voca- tional Rehabilitation services and when the need is related to vocational ob- jectives, i.e. vocational training, school or work. Apply to your local Vocational Rehabilitation Office. Some private insurance companies will also pay for evalu- ations, training, and adaptive equipment. In Massachusetts, The Handicapped Commuters Fund, Inc., 9 Park Street, Bos- ton 02108, Tel. (617) 723-4680, will assist physically disabled residents of Mas- sachusetts, who meet the Massachusetts Rehabilitation Commission's eligibility standards, in the purchase of a specially equipped private vehicle by providing an interest-free loan for twenty percent of cost of vehicle. 2. PUBLIC TRANSPORTATION SERVICES Throughout New England, public transportation services for physically disabled persons is, at best, minimal. 107 Massachusetts Bay Transportation Authority (MBTA) Office of Special Needs, 145 Darthmouth St., Boston 722-5123 At the present time, use of public transportation is extremely difficult and often impossible for physically disabled persons. The MBTA has initiated three major programs to begin servicing persons with special transportation needs: Handicapped persons are eligible for 1/2 fares. This program is primarily directed toward individuals who are ambulatory, however, since no provisions exist to accomodate wheelchair users. Under a station modernization program, accessibility features (i.e. elevators, ramps) will be incorporated into Ashmont, Washington, Park and State Street Stations. Projected completion date is 1977. In addition, all future MBTA construction will be designed to accomodate physically disabled persons. Two experimental projects slated for 1976 will provide daily low cost trans- portation to severely disabled individuals in a selected 3-5 town area. This small van or bus service will transport persons to and from school or work. 3. PRIVATE TRANSPORTATION SERVICES Maine Maine's Office for the Elderly, which serves the elderly and the handicapped, will provide transportation on an "as available" basis when transportation is needed to reach medical services, to get to meal sites (such as Senior Citizens meal programs), to obtain personal services (banking, shopping, etc.) or to parti- cipate in recreational programs. Currently there are minibuses and cars located in all regions of the state. Three vans with hydraulic lifts are being ordered and should soon be available. These three vans will be located in Portland, Lewiston, and Central or Coastal Maine. For further information contact: Aroostook Regional Task Force of Older Citizens, Presque Isle 764-3396 Eastern Maine Task Force on Aging, Bangor 947-0561 Operation Sea Me, Rockland (800) 432-7839 Northern Kennebec Valley Community Action Council, Waterville (800) 452-8760 Regional Transportation Program, 127 St. John St., Portland 775-6503 (Serves Cumberland County.) By January, 1976, this organiza- tion plans to have 3 busses with hydraulic lifts. Project Independence, Auburn 784-7520 Abilities and Goodwill, Inc. in Portland has a van with a hydraulic lift which is available on a part-time basis. There is a charge for this service. Bangor Regional Rehabilitation Center in Bangor has a van with a hydraulic lift which is available to vocational rehabilitation clients on a part-time basis. York County Community Action Corporation has a van with a hydraulic lift which can be used for residents of that county. Contact York County CAP at the County Court House, Alfred, Maine, Telephone 324-5762. 108 None of these transportation services are available on a regularly scheduled basis. Vocational Rehabilitation can pay for transportation services provided by a private carrier when the transportation is part of a program aimed at rehabilita- tion and employment. Massachusetts The following is a listing of private transportation services available to persons in wheelchairs. Most are approved by the Department of Public Welfare as carriers who meet Medicaid requirements and standards. Transportation services under Medicaid encompass only medically-related trips (i.e. outpatient visits to and from hospitals, clinics, and doctor's appointments) and do not provide for other travel needs, such as transportation to and from work. Some carriers, however, do offer services for recreational and social activities and are open to attempting to meet an individual's specialized transportation needs. Companies should be contacted directly to ascertain their specific services. Cost - Payment generally averages $14 per visit plus mileage rates. Taxi compan- ies have standard fare rates. Allston - Wheelchair Ambulance Service, 147 Kelton St. (617) 782-9449 Arlington - Armstrong Ambulance Service, 1241 Massachusetts Ave. (617) 648-0612 Attleboro - King Ambulance & Oxygen, 10 Union St. (617) 266-1600 Boston - Them, Inc., 141 Milk Street (617) 542-5461 Town Taxi, 160 Ipswich St. (617) 536-5000 ReWhit Transportation, 31 Stanhope St. (617) 536-4000 Brookline - Bay State Taxi, 156 Lawton St. (617) 566-5000 Stavis Ambulance Service, 322 Washington St. (617) 232-2218 Chelsea - H. Caplitz Transportation Co., 39 Orange St. (617) 884-5963 Danvers - Lyons Ambulance Service, 28 Elm St. (617) 744-1500 Dorchester - Handy Cabs, 42 Ramsey St. (617)655-7300 or 265-7161 Covers "All around Rte. 128" into Boston Framingham - Chaulk Ambulance Service, 7 Main St. (617) 872-2900 Haverhill - Shanahan Ambulance Service, 20 Crowell St. (617) 372-8511 Holbrook - Melanson Limousine Service, 59 Rinedone St. (617) 767-2146 Holyoke - Para Medic Ambulance Service, 36 No. Bridge St.. (413) 733-3147 Hudson - Marlboro-Hudson Ambulance Service, 7 Kathleen Road (617) 767-2146 Jamaica Plain - Brewster Ambulance Service, 20 Brokley Rd. (617) 445-3060 Leominster - Tri City Medi-Van, 33 Birchcroft Rd. (617) 534-5175 Lexington - Corcoran Ambulance, 240 Bedford St. (617) 275-8888 Transportation Management, 4 Militia Drive (617) 861-0500 Lowell - Handi Van of Lowell, 82 Parkview Avenue (617) 453-4317 Medic Bus Service, 61 Willow Street (617) 458-2592 Lynnfield - Ambulette, Inc., 10 Alderney Way (617) 334-6300 Mansfield - Norfolk-Bristol County Ambulance, 590 Elm St. (617) 399-2633 Mattapan - Crawford Associates Transportation Inc., 1563 Blue Hill Avenue (617) 296-3680 Medford - Mystic Services, Inc., 273 Riverside Avenue (617) 396-9845 Methuen - Williams School Transportation, Inc., 18 Mystic Street (617) 682-4545 Milton - Fallon Ambulance Service, 95 Eliot St. (617) 698-0244 Northampton - Medi-Van Services, Inc., 32 Damon Rd. (617) 584-9322 Peabody - Travel Time, 14 Hardy Street (617) 532-2266 Pittsfield - Roy's Cabulance Service, 741 Tyler St. (413) 445-5701 Roxbury - Yellow Cab Corp. of Boston and Brookline, 109 1890 Columbus Ave. (617) 522-3000 Saugus - Transpo, Inc., 44 Birch Street (617) 233-3727 So. Attleboro - Perry Ambulance, Rte. 1A and 123 (617) 399-7350 Springfield - Forest Park Ambulance, Inc., 1186-88 State Street (413) 739-7373 Gold Cross Eastern Ambulance, same address & phone as Forest Park Ambulance, Inc. Courtesy Ambulance Service, Inc., 302 Locust St. (413) 737-5438 West Springfield Servi-Car, P.O. Box 3781 (413) 736-4933 Stoughton - Wheelchair Transit, Inc., 30 Crescent Ave. (800) 242-0298 Waltham - Waltham Central Square Taxi, Inc., 30 Elm St. (617) 893-2000 or 894-2000 Westboro - Custom Mini Coach, Inc. (617) 366-0100 Weston - Medi-Cabs of Massachusetts Bay, Inc., 56 Colpitts Road. (Covers Eastern Mass. to Worcester.) (617) 899-8700 Worcester - Arrow Cab Company, 90 Madison St. (617) 756-5184 Scott McAvoy Ambulance Service, 13 Harlem St. (617) 756-4906 Worcester Ambulance Service, 227 Grafton St. (617) 757-7287 New Hampshire A scheduled limousine service from various locations to airports covering the towns of Concord, Manchester, Nashua, Milford and Derry is offered by Hudson Bus Lines Limousine Service. Reservations are recommended. Call for schedules and reservation information: 1-800-572-1804. Rhode Island Cranston Transvan, 858 Park Ave., Cranston 02910 461-2400 Cranston Transvan can provide transportation within Cranston for health ser- vices to selected locations in Providence and Warwick. Talbot House, 428 Pine St., Providence 02907 751-4560 or 725-8220 Talbot House has implemented a transportation service for the severely disabled with the assistance of a Vocational Rehabilitation Establishment Grant. The ve- hicle used is a Wayne Busette equipped with a hydraulic lift for wheelchair clients. It is envisioned that this vehicle will supplement the existing services currently utilized at a competitive price. A two-way radio will be installed short- ly to insure prompt pick-up and return. Service can be arranged by calling 751-4560 (Talbot No. 5) or 725-8220 and asking for Mr. Charles Alves. Vermont "Project Mobility" is applying for a specially designed bus which will accommo- date four wheelchairs to provide transportation for the elderly and handicapped in Chittenden County. Yellow Cab, 225 Church St., Burlington 864-7411 Yellow Cab drivers have received information and instruction on the transfer of handicapped persons. 4. BUSES The Greyhound Bus Company has initiated a "Helping Hand" service which al- lows an attendant and/or companion of a handicapped person to travel free. To 110 be eligible, a written statement from a physician is required verifying that an attendant is needed. Greyhound is also installing wider doors, ramps, hand- rails and adapted restrooms in its new or remodeled facilities. Further informa- tion is available at local Greyhound Bus Terminals. 5. AIR TRAVEL Air travel is possible for persons in wheelchairs. At the present time, each airline is allowed to institute its own policy regarding the transport of physically dis- abled persons. As a result, airline accommodations can and do vary greatly. It is best to check with each individual airline about their policies and procedures for air travel in a wheelchair, especially since these can be subject to legislative changes. In general, the airlines prefer advance notification that you will be trav- eling in a wheelchair. Deal directly with the airlines registration. Tell them you will need assistance in getting aboard and disembarking. It is often a good idea to request a seat nearest the entrance. It is advisable to travel first class if you can afford it. The seats are more accessible and you get better attention. Get to the airport at least half an hour before departure time. In most instances airlines will want to board you first. Put your name and address on your wheelchair and removable arms and foot rests. Don't let go of your cushions or you may never get them back. Be sure you get a baggage check for your chair. 6. OTHER TRANSPORTATION SOURCES American National Red Cross Services: Transportation on a first-come, first-served basis for visits to medical facility (doctor's office, clinic, hospital). Eligibility: Unable to meet own transportation needs to and from doctor's of- fice or medical facility. Must reside within boundaries of local chapter providing services. FISH Services: A 24-hour service manned by volunteers to provide emergency trans- portation in a defined neighborhood area. A variety of services are ren- dered according to the needs of the area and the ability of the volunteers to provide them. Eligibility: Resident within a defined neighborhood area. 7. BIBLIOGRAPHY "Wheelchair Air Travel" $2.35 postpaid Clare Millar, Box 7 Blair, Cambridge, Ontario, Canada Includes valuable tips on planning a trip, preparation and overcoming problems which may occur. "Transportation for the Disabled" "Accent Summer" 1975 111 "Public Transportation for the Disabled" "Accent Spring" 1976 L. EDUCATION 1. PUBLIC SCHOOLS Each of the New England states is mandated by law to provide a public educa- tion to all students, including those with special needs. Public education in this sense means instruction within the school system to whatever extent possible. When needed, specialized education is provided in the home, hospital, or institu- tion, as is evaluation and diagnosis of special problems; transportation; corrective and/or supportive services; and other special needs opportunities as required. In implementing this mandate, each state has established its own mechanism for de- termining and providing services to all physically, intellectually, or emotionally handicapped persons. In general, this mechanism involves the formation of an 112 administrative/evaluative unit which meets as a team to diagnose the handicap- ping condition, recommend an individualized educational program, and insure. the implementation of its recommendations. The school's decision regarding special education may be appealed by a student's parents or guardians by re- questing a hearing, either orally or in writing, before the state board of educa- tion or its equivalent. Information on specific public. education laws may be ob- tained by contacting the State Education Department. In addition, if a spinal cord injured person is physically unable to attend school, even for part of a day, he still has a right to have a teacher come to his home or hospital. For more information about home and hospital programs, contact your Regional Office of Special Education. Connecticut Education Department, Vocational Rehabilitation, 600 Asylum St., Hartford 566-3316 Maine Educational & Cultural Services Department, Special Services - Public Information, State House, Augusta 289-3241 Massachusetts Education Department, Special Needs Bureau, 182 Tremont St., Boston 727-8143 New Hampshire State Department of Education, Vocational Rehabilitation Div., Special Education Section, 105 Loudon Road, Building No. 3, Concord 03301 271-3741 Rhode Island Department of Education, Education Information Center, 22 Hayes Street, Providence 277-2035 Vermont Education Department, Special Ed. & Pupil Personnel Services, Montpelier 828-3141 2. GENERAL EDUCATION DEVELOPMENT (GED) EXAMINATIONS Persons who have not earned a high school diploma may do so by successfully ompleting GED examinations. The five tests (English, Literature, Math, Sci- and History) focus upon the general knowledge level expected of high graduates. If necessary, the tests may be taken more than once and, when inimum scores are earned, a GED high school equivalency diploma is awarded the State Department of Education. This diploma is recognized by most olleges, universities, and employers. The cost for these examinations is mini- Information on GED testing can be obtained from your state Department Education. It is worth noting that GED tests are not as difficult as they may pear. For example, if a person passes three of the five tests, he must retake the two he has failed. Preparation Courses one-to-one tutoring and group instruction programs are available to help individual prepare for the GED tests. To find such a program, contact the uidance department of your local high school, check the phone book for adult 113 arning centers, contact a local community or junior college, or call the Divi- of Vocational Rehabilitation for a referral to the program nearest you. For xample, the University of Maine at Portland-Gorham sponsors an Urban Adult earning Center at 68 High Street in Portland. The services provided are tutor- (grades 1-12), educational evaluation and testing, and preparation for GED COLLEGES AND UNIVERSITIES large number of colleges and junior colleges have disabled students in atten- ance. Although many of these schools are not fully accessible, persons in wheel- hairs are often able to individually work out and overcome problematic situa- ons. In choosing a school, accessibility is obviously a major factor, but some exibility is needed so that this one factor does not overshadow other equally inportant considerations, such as the quality of course offerings, the market- bility of the training program, etc. It is advisable to spend a day on the campus experience first hand what barriers must be dealt with. Nationwide, there eems to be a growing awareness of the needs of handicapped students on cam- uses and, as a result, a number of schools have made commitments to improve verali accessibility. In addition, many schools have established offices to coor- inate services to handicapped students. The following is a partial list of colleges nd junior colleges in New England, some of which offer these special services. Connecticut University of Connecticut, Storrs 06268 - Has ramped curbs, reserved park- ing, special counselors, including a vocational rehabilitation counselor. University of Hartford, 200 Bloomfield Ave., West Hartford 243-4100 Has classroom ramps, modified restroom facilities, ramped curbs. Maine University of Maine at Portland-Gorham Gorham Campus, 37 College Avenue, Gorham 839-3351 Portland Campus, '96 Falmouth Street, Portland 773-2981 The Portland campus at the University of Maine is barrier-free in that acces can be gained to all classroom and dining facilities. Toilet facilities, wate fountains, and telephone booths have been adapted to accommodate whee chairs. The Gorham campus is not totally barrier-free, although the majo classroom buildings, the dining facilities, and two dormitories are accessible The University of Maine at Portland-Gorham has a Handicapped Students Services Office to provide supportive services to potential students, as well a to enrolled students. Services provided by this office are: orientation to th University campus; assistance in securing academic counseling; assistance t students with personal and social adjustment problems; assistance in removin architectural barriers which prevent students from majoring in all curricula attempts to increase the University community awareness of the handicappe student; and help for students in procuring attendants and drivers. 114 In addition the University of Maine Portland-Gorham. campus has made th following services available to handicapped students: Two completely wheelchair accessible housing units. Assistance with registration. Special carrels in the library for students in wheelchairs. Assistance with transportation arrangements. Special parking privileges to students with physical disabilities. Adapted physical education programs. Husson College, Bangor, Maine (207) 324-534 Husson College is barrier-free in that all classrooms are accessible. One wd men's and one men's dormitory have been renovated to provide access fo wheelchairs. The Husson swimming pool is not accessible yet. Colby College, Mayflower Hill, Waterville (207) 873-113 Colby College has library ramps and reserved parking. Most Maine colleges are willing to accomodate wheelchair confined students They do not, however, have totally accessible buildings or services. If a poter tial student is interested in a particular college or university in Maine, ofte arrangements can be made with the Student Services Office to facilitat wheelchair access. Massachusetts A large number of Massachusetts colleges and junior colleges have disable students in attendance, including Boston University, University of Massachu setts (both Boston and Amherst campuses), Assumption College, Salem Stat College, Mass. Bay Community College, Mass. Institute of Technology, Ha vard University, Quinsigamond Community College, Springfield Technica Community College, Southeastern Massachusetts University, and Massaso Community College. Several colleges have created a formal unit to coordir ate services to handicapped persons. Many have assigned either full- or par time coordinators with varying responsibilities, which often include advocat ing for disabled students, acting as a liaison with outside agencies, and servin as a central resource for both students and faculty. The following is a list di lleges and persons who may be contacted for information about specific ograms and courses, to arrange visits and tours of the campus and to as- in admissions procedures. merican International College - 170 Wilbraham Road, bringfield. Dean of Student Services - D. Irving Conrad (413) 737-5331 nna Maria College - Paxton 01612 - Sr. Dorilda ynn, Chairperson, Department of Education 757-4586 ssumption College - 500 Salisbury Street, Worcester, ean of Students - Leo Zabinski 752-5615 entley College - Beaver and Forest Streets, Waltham, 2154 Dean of Students Office - Mary Conley 891-2000 oston University - George Sherman Union, Room 4-11, 55 Commonwealth Ave., Boston 02215 - AI DeGraf, Co- rdinator, Disabled Student Services 353-2921 115 randeis University - 415 South Street, Waltham, 02154 Robert Saul Kim, Dean of Student Affairs 647-2000 unker Hill Community College - Rutherford Avenue, harlestown, 02129 - Dr. Pearl G. Waterhouse, Dean Student Services 241-8600 raham Junior College - 632 Beacon Street, Boston, 2215 - Lyle J. Clevenger, Dean of Admissions 536-2050 arvard College - Phillip Brooks House, Cambridge, 2138 - Richard Lazar 495-5526 Iniversity of Massachusetts - Amerherst - 227 Whitmore dministration Building, Amherst, 01002 - Paul Applebee, oordinator, Handicapped Student Affairs (413) 545-0892 Iniversity of Massachusetts . Boston - Dorchester, 2125 - Lilliam Ross, Andrea Schein, Resource and ounseling Center for the Handicapped 287-1900 (X 2923) lassasoit Community College - 290 Thatcher St., Brockton 588-9100 lassachusetts Bay Community College - 57 Stanley treet, Watertown, 02172 - George I. Blaisdell, Dean f Men 926-2600 lount Wachusett Community College - Elm Street, Sardner, 01440 - Thomas Keene, Rehabilitation Project 623-6600 ortheastern University - 408 Churchill Hall, Boston, 2115 - Sylvia Brown, Ruth Bork, Co-operative Educa- on Research Center 437-3783 orth Essex Community College - 100 Elliot St., Haver- ill, 01830 - David H. Lipsey, Counseling Office 374-0721 orth Shore Community College - Beverly, 01915 Ann Coles, Assistant Director, Special Services 927-4850 immons College - 300 The Fenway, Boston, - harlotte Morocco, Dean 738-2000 outheastern Massachusetts University - North Dart- houth, 02747 - Barrie G. Phelps, Dir. of Admissions; harles R. Ratto, Dir. of Counseling 997-9321 pringfield Technical Community College - Armory quare, Springfield, 01105 - Jacqui Bailey, Counselor pec. Services (413) 781-6470 (X43) Stonehill College - 320 Washington St., N. Easton 696-040 Tufts University - Medford - James M. Steindler, Dean of Students Wheaton College Norton, 02766 - E. Susan Petering, Dean of Students; Michael T. Wood, Dir. of Residential Living 285-772 Wheelock College 200 The Riverway, Boston, 02215- Dean of Student Affairs Office 734-520 Several organizations are available to offer counseling, information, and a sistance to any person interested in attending a Massachusetts College: Intercampus Committee for Handicapped Students (ICCHS) c/o Northeastern University, 408 Churchill Hall, Boston, 02115 116 Paul Parravano 739-1156 Ruth Bork 437-378 Resource and Counseling Center for Handicapped Students University of Massachusetts, Boston Harbor Campus, Dorchester, 0212 Lillian Ross, Andrea Schein 287-1900, Ext. 292 Boston University Committee for Handicapped Students George Sherman Union, Room 411, 775 Commonwealth Ave., Bostor 353-365 New Hampshire The State University and each of the accredited colleges in New Hampshir has a placement service and attempts to place graduates in appropriat employment. Antioch Graduate School, Harrisville 03450 827-338 Castle Jr. College, Windham 03087 893-611 Colby-Sawyer College, New London 03257 526-201 Dartmouth College, Hanover 03755 646-111 Franconia College, Franconia 03580 823-850 Nathaniel Hawthorne College, Antrim 03440 883-822 Hesser College, Manchester 03104 668-666 Keene State College, Keene 03431 352-190 McIntosh College, Dover 03820 742-351 University of N. H. (Merrimack Valley Branch), Manchester 03102 668-070 Mount St. Mary College, Hooksett 03106 485-953 New England College, Henniker 03242 428-221 New Hampshire College, Manchester 03101 668-221 Notre Dame College, Manchester 03104 623-184 Franklin Pierce College, Rindge 03461 899-511 Plymouth State College, Plymouth 03264 536-155 Rivier College, Nashua 03060 888-131 St. Anselm's College, Manchester 03102 669-103 University of New Hampshire, Durham 03824 862-136 The University of New Hampshire, Durham, is not barrier-free; howeve three dormitories and the library are wheelchair accessible. The admissio office advises spending a day on campus to assess its physical layout. Community Colleges Lebanon Community College, Lebanon 03766 448-1634 Monadnock Community College, Peterborough 03458 924-3611 Rhode Island R.I. Junior College (fully accessible) - 400 East Avenue, Warwick 02886 825-1000 Bryant College (limited accessibility) - 145 Hope, Providence 02906 232-1200 Providence College (limited accessibility) - River Avenue, Providence 02908 865-1000 Brown University (limited accessibility) - Prospect, Providence 02912 863-1000 University of Rhode Island (limited accessibility) - Committee on the Handicapped - students/faculty, Narragansett 02882 792-2221 117 Johnson & Wales College (limited accessibility) - Abbott Park Place, Providence 02903 331-3915 Roger Williams College (accessible dorms)-Ferry Rd., Bristol 255-1000 Vermont The University of Vermont - 85 So. Prospect St., Burlington 656-3370 Several students in wheelchairs have been or are presently enrolled in degree programs at the University. Not all buildings are wheelchair accessible; how- ever, a campus map was printed in 1975-76 which shows handicapped access to buildings, parking areas, and restrooms. The Office of Architecture Barrier Control has recently been established to provide a comprehensive plan to eliminate barriers to the handicapped. The University recognizes an obligation to make its facilities available to all Ver- monters. Thus far, it provides to handicapped students: special parking privi- leges; adapted physical education programs; and some accessible housing. 4. VOCATIONAL-TECHNICAL SCHOOLS Public Training Many school systems offer excellent vocational-technical training at minimal cost. Although many programs are offered as part of a student's high school curriculum, others are offered part-time or evenings through post-graduate programs. To follow is a partial listing of these training facilities in New England: Maine Capitol Area Regional Technical Vocational Center Cony St. Extension, Augusta 04330 622-3721 Bath Regional Technical Vocational Center Morse High School, Bath 04530 442-8447 Biddeford Regional Technical Vocational Center Biddeford High School, Biddeford 04005 282-1501 Lake Region Regional Technical Vocational Center Lake Region High School, Bridgton 04009 693-6221 Caribou High School Sweden Road, Caribou 04736 496-0821 Dexter Regional Technical Vocational Center Dexter High School, Dexter 04930 924-6471 Kenneth Foster Regional Technical Vocational Center Mt. Blue High School, Farmington 04938 778-3561 Lewiston Regional Technical Vocational Center 156 East Avenue, Lewiston 04240 784-2371 Portland Regional Technical Vocational Center 161 Lancaster St., Portland 04111 775-6357 Presque Isle Regional Technical Vocational Center Presque Isle High School, Presque Isle 04769 764-1356 118 Sanford Regional Technical Vocational Center Sanford High School, Sanford 04073 324-2942 Skowhegan Regional Technical Vocational Center Skowhegan High School, Skowhegan 04976 474-5511 Waterville Regional Technical Vocational Center Waterville High School, Waterville 04901 873-2751 Westbrook Regional Technical Vocational Center Westbrook High School, Westbrook 04092 856-6376 Massachusetts (partial listing) Programs Offered Blue Hills Regional Vocational Technical Auto Repair, Electrical, School, 100 Randolph St., Canton 02021 Machine Shop, Metal 828-5800 Fabrication Occupational Resource Center, Boston's Health Occupations, Cosme- Coops, 240 Heath St., Jamaica Plain tology, Distributive Education, 566-4425 Bilingual Business Bristol-Plymouth Regional Tech. School Auto Repair, Electronics, 940 County St., Taunton 02780 Graphic Arts, Machine Draft- 823-5151 ing Cape Cod Reg. Tech. High School, Culinary Arts, Distributive Ed- Pleasant Lake Ave., Harwich 02645 ucation, Electronics, Masonry 432-4500 Essex Agricultural & Technical Institute Animal Science, Environmental 562 Maple St., Hawthorne 01937 Technology, Floriculture, Plant 774-0050 Science Lynn Vocational & Technical Institute Distributive Education, Elec- 80 Neptune Blvd., Lynn 01902 tronics, Graphic Arts, Data 598-6020 Processing McCann Technical (Northern Berkshire Automotive, Data Processing, Voc. Regional), Hodges Crossroad, Distributive Education, Draft- No. Adams 01247 663-5383 ing, Food Service Minuteman Reg. Voc. Tech. School District Carpentry, Printing, Drafting, 758 Marrett Rd., Lexington 02173 Culinary Arts 861-6500 Montachusett Reg. Voc. Tech. School Air Conditioning/Refrigeration 1050 Westminster St., Fitchburg 01420 Auto Mechanics, Commercial 345-7791 Arts, Electronics Northeast Metropolitan Reg. Vocational Community Service Aide, P.O. Box 23, Wakefield 01880 Graphic Communications, Ap- 246-0810 plied Design, Welding & Fabri- cation Pittsfield Vocational School, Valentine Distributive Education, Draft- Road, Pittsfield 01201 499-1234 ing, Food Trades, Printing Quincy Vocational-Technical School Air Conditioning/Refrigeration Woodward Ave., Quincy 02169 Cabinetmaking, Commercial 472-1568 Art, Pipefitting Southeastern Reg. Voc. Tech. School Business Applications, Com- 250 Foundry St., So. Easton 02375 mercial Foods, Machine Draft- 238-4371 ing, Plumbing 119 Upper Cape Cod Reg. Voc. Tech. School Auto Mechanics, Electrical, 220 Sandwich Rd., Bourne 02532 Food Trades, Painting & 759-7711 Decorating New Hampshire New Hampshire Vocational Technical colleges offer one-year diploma pro- grams and two-year Associate in Applied Science degree programs designed to prepare graduates for skilled and technical employment. Locations of these programs are: Berlin - Milan Road, 03570 752-1113 Claremont - Hanover St. Ext., 03743 542-7744 Laconia - Prescott Hill, 03246 524-3207 Manchester - 1066 Front St., 03102 623-0113 Portsmouth, 150 Greenleaf Avenue, 03801 426-1037 Nashua, 505 Amherst Street, 03060 882-6923 New Hampshire Manpower Training Center, 57 Webster St., Manchester 03104 669-2734 Has training in automotive, printing, clerical, welding, and food service occupations. New Hampshire Technical Institute, Fan Road, Concord 03301 271-2531 Offers programs in such as mechanical engineering technology, electrical- electronic engineering technology, dental hygiene, data processing, busi- ness administration, associate degree nursing, x-ray technology, and dental assistance. Private Training A complete listing of private vocational schools may be found through the Yellow Pages or by contacting the State Department of Education. Before en- folling in a private training program, however, it is extremely wise to investigate the school's claims and curriculum. This may be done by talking to students al- ready enrolled in the program and by ascertaining the school's placement record over the past 1-2 years (e.g. where are your graduates finding jobs?). Private training facilities have come under attack in recent years for making unfounded claims and for having extraordinarily high drop-out rates and poor placement records. Investigate before signing anything! 5. CONTINUING EDUCATION Almost all school districts have adult education and/or continuing education programs through which a person can enroll in a wide variety of subjects, ranging from college credit courses to person interest "mini-courses" (e.g. silk screen ing, photography). Most courses begin in late afternoon or early evening and cor respond with regular academic year schedules. Information on a specific continu ing education program can be obtained by phoning the local school depart ment and requesting placement on its mailing list and/or specific information about course selections. Continuing education courses are especially accommo 120 dating to spinal cord injured persons wishing to enroll in a limited college pro gram, in that they have no admission or minimum course load requirements and earned credits are usually applicable toward formal college programs. Massachusetts Three programs which merit listing because of their size and diversity of courses are: Brockton Adult Education Program - Brockton Community Schools, 470 Forest Ave., Brockton 02401 580-1147 Cambridge Center for Adult Education - 42 Brattle St., Cambridge 02138 547-6789 University of Massachusetts - Div. of Continuing Education, Amherst 545-0111 Vermont High School Adult Education Programs in certain areas are available free to handicapped individuals; however, not all schools have accessible buildings o services. 6. OTHER TRAINING PROGRAMS Horticulture - The Charles County Community College, LaPlata, Maryland has initiated a one-year certificate program and a two-year associate degree pro gram in horticulture. A number of spaces have been reserved for physically handicapped adults. Further information may be obtained from Mrs. Belva Jenson, Biological Sciences Director, Tel: (301) 934-2251. Financial assistance may be available for students. Arts - A publication called Arts and the Handicapped: An Issue of Access lists both opportunities and levels of accessibility in the arts for disabled persons. The booklet is available at $4.00 per copy from: Educational Facilities Laboratories and the National Endowment for the Arts, 850 Third Ave., New York 10022 University of Illinois - The University of Illinois in Urbana has a fully accessible campus with a large disabled student population. Undergraduate and graduate programs are offered in a variety of fields. The University is able to assist spina cord injured persons in housing and attendant care needs. Watchmaking, Clock Repair, Jewelry Repair, Precision Work - The Joseph Bulova School of Watchmaking, 40-24 62nd St., Woodside, N. Y. 11377 offers 9-18 month courses and has trained a large number of paraplegics among its dis- abled population. According to its Director, "Nobody is ever turned away for financial reasons." Further information may be obtained by contacting Benja- min Lipton, Director, at (212) 424-2929. 7. FUNDING Division of Vocational Rehabilitation DVR agencies 'will provide financial support of training programs to eligible clients who are pursuing realistic and appropriate vocational goals. The extent and level of DVR support is subject to counselor-client negotiation, supervis- ory approval, and available agency funds. Veterans Benefits 121 Eligible student-veterans will receive a monthly stipend based on the level of their enrollment (e.g. half-time, full-time, etc.). For information and applica- tion, contact the Veteran's Administration nearest your town of residence. Basic Educational Opportunity Grants (BEOG) The federal government provides financial grants to any person who wishes to attend school and is in financial need. An application for a BEOG can be ob- tained at most high schools and college guidance departments. Scholarships Hundreds of scholarships exist through local, state, federal, and private sources. For example, the Massachusetts Rehabilitation Commission has published a listing of financial aid opportunities in training and can be contacted for specific details. Financial Aid Offices Many schools offer counseling and application assistance to students in need of financial aid. Check with the Financial Aid Office. 8. BIBLIOGRAPHY "Higher Education Facilities and Services for Students with Disabilities," Abt Associates, Inc., 55 Wheeler St., Cambridge, Mass. 02138 "Accessibility of Junior Colleges for Handicapped," President's Committee on Employment of the Handicapped, Washington, D.C. 20210 "Directory of National Associations Relating to the Education of the Crippled and/or Health Impared," request the most recent directory from the Department of Health, Educa- tion and Welfare, Washington, D.C. "Education of the Handicapped Student," Reprint $.50 Rehabilitation Literature, 2023 West Ogden Ave., Chicago, Illinois 60612 "Wheelchairs on Campus," Reprint of May, 1966 Performance, Free, The President's Com- mittee on Employment of the Handicapped, Washington, D.C. 20210 "Higher Education and Handicapped Students," Free from Harry Waters, Ed.D., Kansas State Teachers College, Emporia, Kansas 66801 "Mobility for Handicapped Students," Free from Rehabilitation Services Administration, Department of Health, Education and Welfare, Washington, D.C. 20210 "Guiding the Physically Handicapped College Student," Herbert Rusalem, 1962, $3.00 from Teacher's College Press, Columbia Univ., 1234 Amsterdam Ave., N.Y., N.Y. 10027. "Accommodating Students Who Have Physical Disabilities: A Resource Guide for Massa- chusetts Community Colleges," Technical Education Research Centers, Inc., 44 Brattle St., Cambridge, Mass. 02138. M. SEXUAL FUNCTIONING 1. INTRODUCTION Perhaps no other aspect of spinal cord injury is as individually defined, super- ficially discussed, and generally misconceived as is the area of sexual function- ing. Despite this, a great deal has been accomplished to facilitate sexual fulfill- ment among spinal cord injured people. A spinal cord injury undeniably alters conventional sexual activity. It need not, however, alter a full range of mutually satisfying sexual options. Although some physical adaptations are needed, physical closeness and sexual activity are realis- tically attainable. Despite physical limitations, sex can be a means by which two people's lives, interests, concerns, and love are merged spiritually as well as phy- 122 sically. If a couple has a fine, gentle relationship, filled with mutual respect and concern, their sexual relationship will fall into place. Simply stated, what hap- pens in the bedroom will be all right because the couple has a relationship in the living room that allows for negotiation of a mutually satisfying sex life. To follow is a listing of some publications and articles that explain many of the details about sexual functioning with spinal cord injury. Because much of this material provides concrete "how to" sexual information, it can be of great value in working out meaningful sexual experiences. 2. BIBLIOGRAPHY Anderson, Thomas P., Cole, Theodore M., and Chilgren, Richard A: "Sexual Counseling of the Physically Disabled." Postgraduate Medicine 58 (1): 117-123 (July), 1975. Branson, H.K.: "When a Mate is Disabled-What Sex Solution?" Sexology 34: 98-100 (Sept.), 1967. Carpenter, James O.: "Changing Roles and Disagreement in Families with Disabled Hus- bands." Arch Phys Med Rehabil 55 (June), 1974. Cole, Theodore, M.: "Sexuality and the Spinal Cord Injured." in Green, R. (ed.): Human Sexuality: A Health Practitioner's Text. The Williams and Wilkins Company, Baltimore, Md., 1975, (Chapter 12). Cole, Theodore M.: "Sexual Function in Spinal Cord Injury." Proceedings of the Confer- ence on Continuing Education in the Treatment of Spinal Cord Injuries II: 91-101 (June 28, 29), 1972. Cole, Theodore M., Mooney, T.: Sexual Options for Paraplegics and Quadriplegics. Little Brown and Company, Boston, Mass., 1975. Cole, Theodore M.: "Sexual Problems of a Paraplegic Woman." Med Aspects of Human Sexuality, New York. In press. Comarr, A. Estin: "Marriage and Divorce Among Patients with Spinal Cord Injury I through V" in Proceedings of the 11th Annual Spinal Cord Injury Conference, Brox VA Hospital, New York, pp. 163-215, Oct. 23-25, 1962, U.S. Government Printing Office, 1964. Comarr, A. Estin: "Observations on Menstruation and Pregnancy among Female Spinal Cord Injury Patients." Paraplegia 3: 263-272 (Feb.), 1965. Comarr, A. Estin: "Sex Among Patients with Spinal Cord and/or Cauda Equina Injury." Medical Aspects of Human Sexuality 7 (3): 222-238 (March), 1973. Comarr, A. Estin and Gunderson, B.B.: "Sexual Function in Traumatic Paraplegia and Quadriplegia." Am J Nurs 75: 250-255 (Feb.), 1975. Deyoe, Frank S.: "Marriage and Family Patterns with Long Term Spinal Cord Injury." Paraplegia 10: 219-224 (Nov.), 1972. Eisenberg, M.G. and Rustad, L.C.: "Sex and the Spinal Cord Injured: Some Questions and Answers." U.S. Government Printing Office, Washington, D.C., 1974. Fitzpatrick, Wm. F.: "Sexual Function in the Paraplegic Patient." Arch Phys Med Rehabil 55: 221-227 (May), 1974. Freese, A.S.: "Can Men with Spinal Damage Have Sex?" Sexology 39 (3): 52-55 (Oct.), 1972. Goller, H. and Paeslack, V.: "Our Experiences about Pregnancy and Delivery of the Para- plegic Woman." Paraplegia 8: 161-166 (Nov.), 1970. Goller, H. and Paeslack, V.: "Pregnancy Damage and Birth Complications in the Children of Paraplegic Women." Paraplegia 10: 213-217 (Nov.), 1972. Gregory, Martha Ferguson: "Sexual Adjustment: A Guide for the Spinal Cord Injured." Accent Special Publications. Accent on Living, Bloomington, III., 1974. 123 Griffith, Ernest R. et al.: "Sexual Function in Spinal Cord Injured Patients: A Review." Arch Phys Med Rehabil 54: 539-543 (Dec.), 1973. Griffith, E.R. and Trieschmann, R.B.: "Sexual Functioning in Women with Spinal Cord Injury." Arch Phys Med Rehabil 56: 18-21 (Jan.), 1975. Handicapped Forum: "Monograph on Sexual Functions and Paraplegia." Reprint No. 1106, 11111-87 Avenue, Edmonton, Alberta, Canada. Heslinga, K., Schellen, A. and Verkuyl A.: Not Made of Stone: The Sexual Problems of Handicapped People. Charles C. Thomas, Springfield, III., 1974. Hohmann, George W.: "Considerations in Management of Psychosexual Readjustment in the Cord Injured Male." Rehabilitation Psychology 19 (2): 50-58 (Summer), 1972. Jackson, 1972. R.W.: "Sexual Rehabilitation After Cord Injury." Paraplegia 10: 50-55 (May), Lovity, Robert: "Sexual Adjustment of Spinal Cord Injury Patients" Rehabil Res and Practice Rev 1: 25-29 (Summer), 1970. Masham, Baroness: "The Psychological and Practical Aspects of Sex and Marriage for the Paraplegic." Proc R Soc Med 66: 133-136 (Feb.), 1973. Money, J.: "Phantom Orgasm in Paraplegics." Medical Aspects of Human Sexuality 4: 90-97 (Jan.), 1970. Nagi, Saad Z. and Clark, Donovan L.: "Factors in Marital Adjustment After Disability." Journal Marriage and the Family 26: 215-216 (May), 1964. National Paraplegia Foundation: "Sex Rehabilitation's Step Child." Proceedings from Work- shop: Developing Programs of Sexuality with the Spinal Cord Injured, June 23, 1973. Oppenhimer, W.: "Pregnancy in Paraplegic Patients: Two Case Reports." Am J Obstet Gynecol 110: 784-786 (July), 1971. Pomeroy, 1972. Wardell: "Sexual Function and Paraplegia." Handicapped Forum 1 (2): (July), Romano, Mary D. and Lassiter, Robert E.: "Sexual Counseling with the Spinal Cord In- jured." Arch Phys Med Rehabil 53: 568-572, 575 (Dec.), 1972. Romano, Mary D.: "Sexuality and the Disabled Female." Accent on Living, pp. 26-34 (Win- ter), 1973, Rossier A., Ruffreux M., and Ziegler W.: "Pregnancy and Labor in High Traumatic Spinal Cord Lesions." Paraplegia 7: 210-215, 1969. Singh, Silas P. and Magner, Tom: "Sex and Self-The Spinal Cord Injured." Rehabil Lit 36: 2-10 (Jan.), 1975. Skipper, James K., Jr., Fink, Stephan L. and Hallenbeck, Phillis N.: "Physical Disability among Married Women: Problems in the Husband-Wife Relationship." J Rehabil 5: 16-19 (Sept.-Oct.), 1968. Spock, B. and Lerrigo, M.O.: "Marriage for the Paraplegic." in Caring for Your Disabled Child, MacMillan, New York, 1966, pp. 251-253. Talbot, H.S.: "Psycho-Social Aspects of Sexuality in Spinal Cord Injury Patients." Para- plegia 9: 37-39 (May), 1971. Weber, Doreen K. and Wessman, Henry C.: "A Review of Sexual Function Following Spinal Cord Trauma." Phys Ther 51: 290-295 (March), 1971. MISCELLANEOUS WORKS 124 Berkman, A.H.: "Sexuality: A Human Condition." J. Rehab, pp. 13-15 (Jan.-Feb.), 1975. Berne, Eric: Sex in Human Loving. Simon and Schuster, New York, 1970. Boston Women's Health Book Collective: Our Bodies, Ourselves. Simon and Schuster, New York, 1973. Branson, H.K. and Branson, R.: "Sex and the Handicapped." Sexology 30: 561-564 (March), 1964. Brecher, Edward M.: The Sex Researchers. Little Brown and Company, Boston, 1969. Cole, Theodore M.: "Sexuality and the Physically Handicapped." Human Sexuality: A Health Practitioner's Text. Richard Green, M.D. (ed.), Williams and Wilkins Company, Baltimore, Maryland, pp. 146-170, 1975. Cole, Theodore M.: "Sexuality and Physical Disabilities." Arch Sex Behav 4 (4): 389- 403 (July, 1975. Cole, Theodore M. and Cole, S.S.: "Sexuality, the Practitioner and the Patient: A Problem or an Opportunity." Highlights of the 20th Annual Conference, Veterans Administration Studies in Mental Health and Behavioral Sciences, Chicago. (April), 1975. Cole, Theodore M. and Cole, S.S.: "A Guide for Trainers: Sexuality and Physical Disabil- ity." Program in Human Sexuality, University of Minnesota Medical School, Center for Continuing Education, Region V, Multi-Resource Center, Inc., 1976. Comfort, Alex: The Joy of Sex. Crown Publishers, Inc., New York, 1972. Dalrymple, Willard: Sex is for Real: Human Sexuality and Sexual Responsibility. McGraw- Hill Book Company, New York, 1969. Diamond, M.: "Sexuality and the Handicapped." Rehabil Lit 35: 34-40 (Feb.), 1974. Ellis, Albert and Abarbanel, Albert, eds.: The Encyclopedia of Sexual Behavior. Jason Aronson, Inc., New York, 1973. Francoeur, Robert T. and Anna K. eds.: The Future of Sexual Relations. Prentice-Hall, Inc., New Jersey, 1974. Gagnon, John and Simon, William: Sexual Conduct, The Social Sources of Human Sexual- ity. Aldine Publishing Company, Chicago, 1973. Herrigan, Jackie and Jeff: Loving Free. Gosset and Dunlap, New York, 1973. Hobert, Darion A.: "Sex and the Disabled." Rehabilitation Gazette 5 (16): 30-31, 1973. Kinsey, Alfred, et al: Sexual Behavior in the Human Female. Holt, Rinehart, and Winston, Inc., New York, 1972. Kinsey; Alfred, et al: Sexual Behavior in the Human Male. W. B. Saunders, Philadelphia, 948. Masters, William H. and Johnson, Virginia E.: Human Sexual Inadequacy. Little Brown and Company, Boston, 1970. Masters, William H. and Johnson, Virginia E.: Human Sexual Response. Little Brown and Company, Boston, 1966. D'Neill, Nena and O'Neill, George: Open Marriage. M. Evans and Company, New York, 972. Romano, Mary D.: "Sexual Counseling in Groups." Journal of Sex Research 9: 69-78 Feb.), 1973. Singer, Irving: The Goals of Human Sexuality. W.W. Norton'and Company, Inc., New York, 1973. Zubin, Joseph and Money, John: Contemporary Sexual Behavior. Johns Hopkins University Press, Baltimore, 1973. 125 OTHER SOURCES OF INTEREST The University of Minnesota in Minneapolis has a Program in Human Sexuality sponsored by the Medical School. Periodically they conduct workshops and sem- nars throughout the country regarding sexual function and the spinal cord. in- ured. They have produced three movies dealing with various aspects of the subject. Information on their activities can be obtained through: Dr. Theodore Cole, Research East Building, 2630 University Avenue, S.E., Minneapolis, Minn. 55414 "Sex and the Spinal Cord Injured." A selected bibliography prepared in August, 1973 by Harry A. Schweikert, Jr., Administrative Assistant, PVA, 7315 Wis- consin Avenue, Washington, D.C. 20014 A film entitled "Touching" by Laird Sutton shows a young couple (one member a quadriplegic) who are willing to share their own form of physical intimacy. It is 17 minutes in length; color-source: Multimedia Resource Center, 540 Powell Street, San Francisco, California 94108 (415) 421-5035 Also, the New England Spinal Cord Injury Foundation is conducting sympos- jums on "Sexuality and the Spinal Cord Injured." These events are open to pro- fessionals, and their documentation will be available through the Foundation's information center. N. RECREATION 1. TRAVEL Travel Agencies Several agencies provide travel arrangements and tours for persons concerned with wheelchair accessibility. These trips can be arranged to a wide variety of locations including the West Coast, Mexico, the Orient, and Europe. Descrip- tive brochures on trips and costs are available from: Evergreen Travel Service, Lynnwood, Washington Flying Wheel Tours, 148 West Bridge Street, Box 382, Owatonna, Minn. 55060 (507) 451-5505 126 Grant Travel Consultants, 427 Broad St., Shrewsbury, New Jersey 07701 (201) 842-7747 Handy-cap Horizons, 3250 East Loretts Drive, Indianapolis, Indiana 46227 9317) 784-5777 Hill Travel House, 2628 Fair Oaks Blvd., Sacramento, California 95825 (916) 488-8681 Kasheta Travel, Inc., 139 Main St., E. Rockaway, L.I., New York 11518 Rambling Tours, Inc., P.O. Box 1304, Hallandale, Florida 33009 (305) 921-2161 Travel Information Service, Mass. Rehabilitation Hos- pital, 12th St. & Tabor Rd., Philadelphia, Penn. 19141 The Wheelchair Traveler, Ball Hill Road, Milford, N. H. 03055 Publications An excellent article on Wheelchair Travel appeared in the New York Times, Travel and Resorts Section, on February 23, 1975. "A List of Guidebooks for Handicapped Travelers" is available from the Wo- men's Committee of the President's Committee on Employment of the Handicapped, Washington, D.C. 20210, September, 1972. Information about cruising is available in "Ready for a Vacation? Try a Cruise," in Accent on Living, P.O. Box 726, Bloomington, Illinois 61701. For highway travel information, consult "Highway Rest Areas for Handi- capped Travelers" which lists nearly 400 accessible rest stops in 48 states. Route numbers, direction of traffic served by the rest stop and the milepost closest to the rest stop are provided. Write: The President's Committee on Employment of the Handicapped, Washington, D.C. 20036. A booklet listing accessible Holiday Inns throughout the world can be ob- tained from a local Holiday Inn or by writing to: Holiday Inn Executive Offices, 3742 Lamar Ave., Memphis, Tennessee 38118. In Massachusetts, the Easter Seal Society has published the following book- lets which list accessible public and private buildings, theaters and restaurants "Access to Cambridge" "Wheeling through Springfield" "Wheeling through Worcester" To obtain these booklets, contact: Easter Seal Society, 14 Somerset St., Boston Mass. 02108 227-9605 Easter Seal Society, 30 Highland St., Worcester, Mass. 01608 757-2891 A guide to historical sites and accessible buildings and support services in the city entitled "Access to Boston in '76" is also available by contacting: Boston 200, 1 Beacon Street, Boston, Mass. 02108 338-1976 Booklets for other cities and foreign countries are available from: The Wo- men's Committee of the President's Committee on the Employment of the Handicapped, Washington, D.C. 20210. 2. SPORTS AND RECREATION The field of sports and recreation is as wide and varied as is the number of 127 people who participate in it. Participation in any activity is an individual matter, although many organized programs exist for disabled persons throughout New England. The following listing identifies some of these activities. Archery - Special lightweight adult bows for handicapped persons as well as equipment supplies are available from: Dunmark Manufacturing Co., Ltd. P.O. Box 268, 534 Timothy Street Newmarket, Ontario, Canada (416) 895-1258 Basketball - Several wheelchair basketball teams are in competition throughout New England. Connecticut - New Haven Spokebenders, Stan Kosloski, Manager, 101B County Squire Drive, Cromwell 06416 Massachusetts - Bay State Wheelers, Donald Riel, Manager, 17 Janet Circle, Shrewsbury 01545 842-5961 Brockton Mustangs, Armand Thiboutot, Manager, 14 Elder Road, Needham 02192 Rhode Island - P.A.R.I. Rhode Runners, P.O. Box 6906, Providence 02940 For additional information on organized basketball in your area, contact: National Wheelchair Basketball Association, Rehabilitation-Education Center, Oak St. & Stadium Drive., Champaign, Illinois 61820 Northeast Wheelchair Basketball Association, AI Youakim, Manager, 174 Ruckim Road, Hillsdale, New Jersey Bowling - Many bowling alleys in New England are wheelchair accessible and welcome handicapped bowlers. A phone call will confirm accessibility. For per- sons needing bowling chutes or construction plans and general information, contact: The Garden City Activity Center 295 California Street, Newton, Mass. 02158 (617) 965-3389 Camping - A listing of camping areas throughout the U.S. and its territorie equipped to service physically disabled persons is available in the National Par Guide for the Handicapped, a booklet issued by the National Park Service U.S. Department of Interior. It may be ordered from: Government Book Store John F. Kennedy Federal Building G-25, Government Center, Boston, Mass. 02203 223-6071 A nature trail and fishing pier designed to accommodate wheelchairs is located at Button Bay State Park on the east coast of Lake Champlain, six miles west o Vergennes, Vermont. For general camping information, consult "Camping in a Wheelchair," an article 128 in Accent on Living, summer, 1974. Accent on Living, P.O. Box 726, Bloom ington, Illinois 61701. Issued Quarterly. Cost: $2.50. Camps Massachusetts The Warren Center in Ashland is completely accessible and available by reservation to small handicapped groups and to individual parties Further information is available by contacting: The Easter Seal Society 30 Highland St., Worcester 01608 757-289 Vermont Camp Thorpe at Goshen is a private, non-profit organization which provides camping experiences for children with physical handicaps Activities include swimming, hiking, dramatics, nature study, overnigh camping, sports, crafts, and pioneering. Address: R.F.D. No. 3, Brandon 05733 The Easter Seal Directory of Resident Camps for Persons with Special Need: lists children and adult camps that are available. It can be obtained by sending $1.00 to: National Easter Seal Society for Crippled Children and Adults 2023 West Ogden Avenue, Chicago, Illinois 60612 Fishing A brochure on Handi-Gear fishing equipment can be obtained from Garcia Corporation 329 Alfred Avenue Teaneck, New Jersey 07666 Hunting - In Massachusetts, a two-day deer season for paraplegics is available in certain regions. In Vermont, special provisions are made for spinal cord injured persons to hunt from their cars. For further information, contact your state Fish and Wildlife Agency. Physical Fitness/Gymnastic Activities Local Y.M.C.A.'s and Y.W.C.A.'s, a well as Veteran's Administration Hospitals, sometimes offer a variety of gym nastic activities for disabled persons. For information about specific programs contact the nearest "Y" or V.A. Hospital. Maine Leisure Center for the Handicapped, University of Maine at Portland Gym, 96 Falmouth Street, Portland 04101 Massachusetts -Y.M.C.A., 137 Lexington St., Woborn 01801 935-3270 New Hampshire - Y.M.C.A., 17 Prospect St., Nashua 899-2101 Rhode Island Y.M.C.A., 1225 Park Ave., Cranston 02910 943-0444 Vermont - Y.M.C.A., 266 College St., Burlington 05401 The University of Vermont Saturday Morning Adapted Physical Education Programs provide an opportunity for families, children, and youth in the community to learn and develop sports skills together. Instruction is given in small group settings and focuses on participants' interests and needs. In addi- tion, other activities such as bowling, gymnastics, archery, conditioning weight training, swimming, and others are offered. For information, contact: Dr. Bob Gobin, 208 Patrick Gymnasium, University of Vermont, Burlington, 05401. Swimming -,A number of swimming programs exist throughout New England. Local "Y" 's often provide special hours for pool use by handicapped persons. 129 To determine what swimming opportunities exist in a local area, contact the "Y", the town's recreation department, or the local chapter of the American Red Cross. Swimming programs exist at the following locations: Maine - V.A. Center, Togus; Y.W.C.A., Bangor Massachusetts - Bedford V.A. Swimming Pool, 200 Springs Rd., Bedford 275-7500 Boston Parks & Recreation Department, Boston City Hall, Room 802, Boston 722-4100, Ext. 135 Easter Seal Society, 14 Somerset St., Boston 227-9605 Newton Recreation Department, Newton 969-3171 New Hampshire - Y.W.C.A., 17 Prospect St., Nashua 889-2101 This program offers Red Cross Swimming lessons to people with all dis- abilities. There is no charge for instruction and medical certification is required. Rhode Island - Y.M.C.A., 1225 Park Ave., Cranston 923-0444 Vermont - Vermont Achievement Center, 88 Park St., Rutland. Disabled individuals may use this heated pool on an appointment basis. Medical authorization is required. Fees: $1.00 per adult, $.50 per child with no charge for attendant. Howard Johnson Motor Lodge, Williston Rd., S. Burlington, 05401 Disabled persons may use the heated pool. Contact the manager for in- formation about availability. Competive Sports Track and Field - For information on track and field activities, contact: Connecticut - New Haven Spokebenders, Stan Kosloski, Manager, 101B County Square Drive, Cromwefl, 06416 Rhode Island - New England Wheelchair Athletic Association, Paul DePace, 146 Beaufort St., Providence, 02908 Wheelchair Games The National Wheelchair Games are held each year in June at locations around the United States. To qualify, an individual must first participate in the New England Wheelchair Games. Further information may be obtained by contacting: The New England Chapter, National Wheelchair Athletic Association, 50 Central St., W. Brookfield, Mass., B. Anderson, Secretary 867-2211 The National Wheelchair Athletic Association, c/o Ben Lipton, Chairman, 4024 62nd St., Woodside, New York 11377 Information is also available from your state branch of the National Association. Maine Mr. Robert Hawkes, Main Road, Orrington Massachusetts Bay State Wheelchair Games, P.O. Box 931, Worcester New Hampshire - Mr. Phil Voucher, 35 Currier Ave., Peterborough Vermont --- The Vermont Mini-Olympic Wheelchair Gamesare held for three days at standard gymnasiums at Lyndon State College, Lyndon Center. All events take place in wheelchairs (except those for the blind). Events 130 include: bowling, basketball, archery, riflery, ping pong, volleyball, check- ers, chess, shuffleboard, horse shoes, fly casting, and darts. For information, contact: Mini-Olympics, c/o O.C.C.S.A., Inc., 523 East Main Street, New- port 05855 (802)334-2373 3. RECREATIONAL ORGANIZATIONS In addition to those recreational organizations listed here, it is suggested that you contact your local "Y", community center, high school, college, or recrea- tion department to obtain information on specific programs in your area. Maine Peoples Regional Opportunity Program, Drop-In Center, St. Anne's Rectory, 342 Main Street, Gorham Leisure Center for the Handicapped, University of Maine at Portland Gym, 96 Falmouth Street, Portland 04410 The Leisure Center provides recreational and leisure time activities for handi- capped children and adults. This is a free service and some activities are avail- able on a seven day-a-week basis. Activities include: arts and crafts, music, drama, dance and literature, sports, water sports, social programs and pro- grams for parents. Transportation can be provided by the Center, although in- dividuals are encouraged to provide their own. Director of Library Services, Portland Public Library, 619 Congress St., Portland The Portland Library is initiating a unique leisure time program to provide home library services to individuals who are home-bound, caring for young children or for an invalid. For further information, contact the Portland Library. Massachusetts Young Adults Club of the Greater Merrimack Valley. c/o Easter Seals Society, 26 Chestnut St., Andover 01880 475-1477 This is a social group of disabled and non-disabled young adults (ages 18-30) who plan and attend monthly social events. Activities include sports events, concerts, and weekend camping trips. Rhode Island Leisure Time Services for the Handicapped, Inc., P.O. Box 174, North Kingstown, 02852 294-6372 This organization sponsors and conducts the Rhode Island Special Olympics in cooperation with the Joseph P. Kennedy, Jr. Foundation. Paraplegia Association of Rhode Island, Inc. (P.A.R.I.), P.O. Box 6906, Providence, 02940 P.A.R.I. provides social functions, recreational and competitive athletics includ- ing swimming, wheelchair basketball and track and field teams. Summit Club of Rhode Island, P.O. Box 4711, Rumford, 02916 131 Summit Club provides bowling, swimming, crafts and social events as well as a repertory theater. A new building and program expansion is expected soon. United Cerebral Palsy of Rhode Island, 300 Knight St., Warwick 738-9730 This organization offers a statewide swim recreational program with a physical therapist available. A residential summer camp for children and adults is also in- cluded among its programs. 4. THEATERS, RESTAURANTS AND SPECIAL EVENTS Many restaurants, theaters, movie houses and places of public events, although not always completely accessible, can be patronized. A pre-visit and/or phone call will clarify the accessibility to your needs and there is generally willing help to assist when needed. In Massachusetts, the Boston Garden offers free tickets to most events to wheel- chair confined persons and their attendants. The number of available tickets is limited and advance reservations are necessary. For information, contact the Boston Garden business office (telephone: 227-3206). The following halls have restrooms with stalls for the disabled. Massachusetts John B. Hynes Auditorium, 900 Boylston St., Boston Tel: 262-8000 New England Life Hall, 225 Clarendon St., Boston Tel: 266-7266 Rhode Island Providence Civic Center, 1 LaSalle Sq., Providence Tel: 331-6700 O. INFORMATION SOURCES AND PUBLICATIONS 1. NEW ENGLAND SPINAL INJURY FOUNDATION LIBRARY 369 Eliot Street, Newton Upper Falls, Massachusetts 02164 Tel: (617) 964-0521 The New England Spinal Cord Injury Foundation Library offers a unique col- lection of resource data on spinal cord injury and rehabilitation to the entire six state region. Informational materials will include texts, journals, papers, magazines, brochures, and reprints of articles relating to the spinal cord injured and other disabled persons. 132 Although the Spinal Injury Foundation Library will not officially open until September 1976, basic resource materials are available and the clearinghouse operation begins April 15, 1976. Publications of the Foundation will be sent on request; books and magazines can be lent out, and resource documents will be copied and mailed. Beginning in September, the library will be open Monday through Friday from 9 a.m. to 5 p.m. to all interested persons wishing to study spinal cord injury and its system of care. Some materials must be used on the premises. Others will be offered for circulation, and copies of documents will be supplied upon request. Pertinent films and tapes will also be available. For further information, call the Spinal Injury Foundation Librarian, Kristine Harnisch, at the number listed above. Weekly orientation and training programs in the utilization of the information center will be provided. 2. SUBSCRIPTION PUBLICATIONS The following journals and magazines contain various articles on legislative con- cerns, housing, education, employment, and general interest topics. They also provide a good resource for new equipment ideas. MAP Newsletter P.O. Box 48, Bedford, Massachusetts Subscription rate: $2 or by membership Rehabilitation Gazette 4502 Maryland Avenue, St. Louis, Missouri 63108 Subscription rate: $2 for disabled persons, $4 for non-disabled persons annually Paraplegia News 935 Coastline Drive, Seal Beach, California 90740 Subscription rate: $3.50 - monthly Accent on Living P.O. Box 726, Bloomington, Illinois 61701 Subscription rate: $2.50 - quarterly Rehabilitation Literature National Easter Seal Society, 2023 W. Ogden Ave., Chicago, Illinois 60612 Subscription rate: $10.00 - monthly Performance President's Committee on the Employment of the Handicapped, Washington, D.C. 20210 Subscription rate: free - quarterly The Squeaky Wheel Monthly newsletter of the National Paraplegia Foundation 333 North Michigan Avenue, Chicago, Illinois 60601 Subscription rate: free with membership or by subscription - monthly Achievement 925 N. E. 122, North Miami, Florida 33161 Subscription rate: $1 per year monthly 133 American Journal of Physical Medicine Williams and Wilkins and Company, 428 E. Preston St., Baltimore, Md. 21202 Subscription rate: $12.00 bi-monthly Handy-Cap Horizons 3250 East Loretta Drive, Indianapolis, Indiana 46227 Subscription rate: $2.00 quarterly International Rehabilitation Review 219 East 44th Street, New York, New York 10017 Subscription rate: Subscription included with membership - quarterly Editions in English, Japanese, Spanish and French Journal of Rehabilitation 1522 K Street, N.W., Washington, D.C. 20005 Subscription rate: $5.00 bi-monthly National Association of the Physically Handicapped, Inc., Newsletter 76 Elm Street, London, Ohio 43140 Subscription rate: $1.00 per year or free with membership quarterly National Hookup 5036 Mason Street, Riverside, California 92503 Subscription rate: $1.50 - monthly National Star Newsletter 6219 Naper Avenue, Chicago, Illinois 60631 Subscription rate: $1.50 - bi-monthly The Spokesman Western Disabled Alliance, Inc., Box 444, San Lorenzo, California 94580 Subscription rate: $1.00 - quarterly Social and Rehabilitation Record Government Printing Office, Superintendent of Documents, Washington, D.C. 20402 Subscription rate: $6.40 monthly The Advocate Newsletter published by the Boston University Committee for Handicapped Students, George Sherman Union, Room 411, 755 Commonwealth Avenue, Boston, Massachusetts SCI News Spinal Injury Foundation, 369 Elliot Street, Newton, Massachusetts 02164 Subscription rate: Free - bi-monthly 3. RESOURCE PUBLICATIONS The following publications focus upon some of the special problems encoun- tered by persons with spinal cord injury. They contain general information about topics such as skin care, diet, bowel and bladder care, sexual function, 134 activities of daily living, expectations, general rehabilitation, and mention various organizations which provide assistance to spinal cord injured persons. Handbook of Care for Paraplegic and Quadriplegic Individuals by Judith Kreznel, R.N., and Lois Roher, R.N., Published by the National Paraplegia Foundation, 33 North Michigan Avenue, Chicago, Illinois Single copies: $1.00 The Realities of Spinal Cord Injury Sacred Heart Rehabilitation Hospital, 1545 S. Layton Blvd., Milwaukee, Wisconsin 53215 Free, on request. Primer for Paraplegics and Quadriplegics The Institute of Rehabilitation Medicine, New York Univ. Medical Center, 400 East 34th Street, New York, New York 10016 Free, on request. National Paraplegia Foundation Bibliography National Paraplegia Foundation, 333 N. Michigan Ave., Chicago, III. 60601 The NPF publishes a yearly bibliography of basic paraplegia publications. Many of the articles are technical in nature, but an equal number would be of interest to a cross section of those concerned with spinal cord injuries. Spinal Cord Injury Handbook Rancho Los Amigos Hospital, 7601 E. Imperial Hwy., Downey, Calif. 90242 Spinal Cord Injury - - Hope Through Research - 20 cents What You Should Know About Paraplegia - 25 cents Superintendent of Documents, United States Government Printing Office, Washington, D.C. 20402 Paraplegia, The Man and the Problem Paralyzed Veterans of America, Inc., 7315 Wisconsin Ave. Suite 301W., Wash- ington, D.C. 20014 A Source Book/Rehabilitating the Person with Spinal Cord Injury - 75 cents Superintendent of Documents, U.S. Government Printing Office, Washington, D.C. 20402 Activities of Daily Living - $1.00 By Edith Buchwald Lawton, Inst. of Rehabilitation Medicine, 400 East 34th Street, New York, New York 10016 A Bladder and Bowel Training Program for Patients with Spinal Cord Injury Inst. of Rehabilitation Medicine, 400 E. 34th St., New York, N.Y. 10016 Manual for Training the Disabled Homemaker - $1.00 Inst. of Rehabilitation Medicine, 400 E. 34th St., New York, N.Y. 10016 Aids to Independent Living By Lowman and Klinger, Inst. of Rehabilitation Medicine, 400 E. 34th St., New York, N.Y. 10016 Designing for the Handicapped By Goldsmith, Royal Inst. of British Architects, 66 Portland Place, London W1, England Physical Management for the Quadriplegic Patient Jack R. Ford and Bridget Duckworth, F. A. Davis Company, Philadelphia, Pennsylvania Mealtime Manual for the Aged and Handicapped 135 Inst. of Rehabilitation Medicine, 400 E. 34th St., New York, N.Y. 10016 Hard cover $5.95 Soft cover $2.00 Independent Living of the Handicapped and Elderly May, Waggoner, Hottle, Houghton Mifflin Co., Boston What You Can Do For Yourself - Hints For The Handicapped Patricia Galbreaith, Drake Publishers Inc., New York, New York Wheelchair Bathrooms Paralyzed Veterans of America, Inc., 3636 16th St. N.W., Washington, D.C. 20010 Kitchens for Women in Wheelchairs Univ. of Illinois, College of Agriculture, Extension Service in Agriculture and Home Economics, Urbana, Illinois "Spinal Cord Injury: Its Realities and Psychological Processes" By Karen M. Jasper, unpublished paper available from New England Spinal Cord Injury Foundation, 369 Elliot St., Newton Upper Falls, Mass. 02164. 4. BOOKS OF GENERAL INTEREST Many of the following books are autobiographical in nature and focus upon the author's perception of his handicap and his unique adjustment process. A Caste of Heroes by Lona B. Kennery Published by Dodd Mead and Company, New York, 1966. Available for $2.50 from the National Paraplegia Foundation. This book is the story of a group of young men in a paraplegic ward of a large V.A. Hospital. A World to Care For The Autobiography of Howard A. Rusk, M.D., Random House Publishing House, New York, 1972, $7.95. This is Dr. Rusk's account of how he made rehabilitation an accepted and fundamental aspect of medicine as he devel- oped the Institute of Rehabilitation Medicine (Rusk Institute) in New York City. The Brave World of Hilary Pole by Dorothy Clark Wilson McGraw Hill Book Company, New York, 1972, $5.95. This is the story of Hilary Pole, severely disabled, who with the assistance of the environment control system-POSSUM began a new period of re-communication with her world. Take My Hands by Dorothy Clark Wilson McGraw Hill Book Company, New York, 1963. This is the story of an Indian woman doctor who suffered a spinal cord injury in an automobile accident and subsequently became hand surgeon and rehabilitation specialist. Physical Disabilities, A Psychological Approach by Beatrice Wright Harper and Row Publishers, New York, N.Y., 1960, $19.00. This is a some- what technical book, but conveys significant information about the adjust- ment to a physical handicap. It's Great To Be Alive by Roy Campanella A Laughter In The Lonely Night by Henry Viscardi, Jr. 136 Paul Erickson, Inc., New York, 1961 A Long Way Up: The Story of Jill Kinmont Harper and Row, Inc., New York, N.Y., 1966 A Special Way of Victory: A Courageous Woman Overcomes the Handicaps of Cerebral Palsy by Dorothea Waitzmann John Knox Press, Richmond, Virginia, 1964 Farewell to Fear by Toni Keitlen Bernard Geis, Inc., New York, 1960 Give Us the Tools: A History of Abilities, Inc. by Henry Viscardi, Jr. Paul Erickson, Inc., New York, 1959 Seeing Eye Wife by Virginia Moore Chilton Co., Philadelphia, Pa., 1960 They Wouldn't Quit: Stories of Handicapped People by Ravina Gelfand and Letha Patterson Lerner Publications, Minneapolis, Minnesota, 1962 Your Handicap-Don't Let It Handicap You by Sarah Splaver Julian Messner, New York, 1967 5. LIBRARY SERVICES FOR PHYSICALLY HANDICAPPED Persons with physical disabilities are eligible for special library services, includ- ing talking book machines, tape players, large print books and reading aids. In addition, framed reproductions of famous paintings suitable for hanging on walls to brighten up a room may be borrowed for several months. Most libraries also provide a book drop-off service, either by mail or by private delivery. To utilize these services, phone your local library. Maine The Portland Library is initiating a program to provide home services to individ- uals who cannot get out of their own home or into the library, including those who are housebound providing care to young children or caring for an invalid. Contact Doris Gerber at the Portland Public Library for further information. Library Services, Portland Public Library, 619 Congress St., Portland, Maine Vermont 'Vermont Bookfetch" will let anyone receive library books by mail, postage baid. Books are loaned for a one month period. Only books that are listed in the Vermont Bookfetch catalogue can be ordered. Contact your local library or: Special Service Unit, Department of Libraries, 111 State Street, Montpelier, 05602 (802)223-2311 Ext. 327 FILMS 137 The following films are available through the University of Illinois: A visual depiction of a quadriplegic in various activities of daily living (e.g. dressing, bowel and bladder training, showering and grooming, and driving); The Homemaker with Weak Upper Extremities (Quadriplegia); and The Homemaker with Incoordination. Rental is free for short term use. For information about obtaining these films, contact: Media Resources Branch, National Medical Audiovisual Center (Annex), Station K, Atlanta, Georgia 30324. Films available on wheelchair sports activities were developed by Robert Hawkes and he will show the films to groups as his time allows. Contact Mr. Hawkes, Main Road, Orrington, Maine. "No Man Walks Alone" is a film depicting the progress of an accident victim through a rehabilitation center. Contact the National Paraplegia Foundation. There are several films available dealing with the employment of the handi- capped and architectural barriers. Contact the Maine Office on Employment of the Handicapped, 32 Winthrop Street, Augusta, Maine or the Mass. Associ- ation of Paraplegics. "Stigma I and II" are two radio documentaries about physical disabilities produced by the Center for Independent Living Inc., 2725 Haste Street, Suite 207, Berkeley, California 94704. The first is a frank and informative discussion of living and loving. The second emphasizes the importance of organizing the disabled. Copies: $10.25 to the non-disabled; $3.00 to the disabled. Cinema Pictures, Inc., Robert G. Discus, 10212 Noble Avenue, Mission Hills, California, 91340. Free list of medical-educational films, including films on trauma, transfer, and driver training of quads. "Like Other People" portrays a severely disabled couple in an independent living situation. Available through: Boston University, Abraham Krasker Memorial Film Library, School of Education, 765 Commonwealth Avenue, Boston, Mass. Fee - $10.00. Tel: (617) 353-3272 "Changes" explores the process of rehabilitation in spinal cord injury. Pro- duced by the Craig Rehabilitation Institute, Denver, Colorado. Available through Everest and Jennings, Bensonville, Illinois. (312) 569-2680. The Massachusetts Association of Paraplegics has a film on architectural bar- riers available for loan to local community groups. "Beating the Averages" is aimed at developing greater attitudinal awareness of physical barriers. Fur- ther information is available by contacting: M.A.P., P.O. Box 48, Bedford, Mass. 01730 138 7. BIBLIOGRAPHIC REFERENCE TO OTHER CHAPTERS IN RE- SOURCE DIRECTORY: Accessibility and Architectural Barriers Education Employment Recreation Sexual Functioning Transportation GLOSSARY .B. Architectural Barriers. daptive Modified for easier use by the disabled. .D.L. Activities of Daily Living; those tasks that a person per- forms on a day-to-day basis. dvocacy The act of defending or recommending a cause; to speak or write in support of a specific cause. .F.D.C. Aid For Dependent Children. ffirmative Action The hiring and promoting of individuals regardless of race, sex, national origin, ancestry or disability, providing the individual can perform at the minimum accepted standards. rchitectural Barriers Building design which limits useage by mobility-impaired persons. 139 ladder The sac that collects urine from the kidneys where it re- mains until it is discharged from the body. owling Chute A metal or wooden ramp adaptation that enables a sev- erely physically disabled person to bowl. race An appliance utilized to support a part of the body to facilitate or improve function. atastrophic Severe or abrupt change; disastrous. Catheter A hollow tube used to drain fluids from the body, es- pecially one passing into the bladder to draw off urine. Center for Independent Living Housing for severely physically disabled persons that of- fers attendant care as well as such support services as education, employment and transportation. .H.I.P. Catastrophic Health Insurance Plan; a program of the Rhode Island Division of Vocational Rehabilitation. Clearinghouse An operation that disseminates a wide range of informa- tion sources. Communal Of or pertaining to group living. Compliance The act of yielding or meeting the requirements of. Consumer One who uses a commodity or service; spinal cord in- jured person, or parent or spouse of that individual. Depression A mental state characterized by dejection, withdrawal and sadness. D.E.S. Division of Employment Security; state agency that pro- vides unemployment compensation and employment assistance. Discrimination Prejudice or partiality in attitudes, actions or reactions; show of bias against minorities or disabled individuals. D.O.T. Dictionary of Occupational Titles; source manual used by D.E.S. to determine job classifications. D.V.R. Division of Vocational Rehabilitation; state agency that provides services to disabled persons seeking employment. E.M.S. Emergency Medical Services, a state agency charged with the development of a network of emergency medical care systems. Environmental Equipment Con- Electronic unit that assists people who cannot use their trol Unit hands. Power is generated by mouth, shoulder or eye con- trol monitors for devices which aid in the usage of type- writers, telephones, etc. Fee For Service Payment made to a person or agency that provides program or service. F.I.C.A. Federal Insurance Contribution Act (enacted, 1935, e fective 1937); familiarly known as "Social Security percentage deducted from one's wages or salary, which matched by the employer to be distributed at retiremen Follow-up/follow along Continuing assistance that takes place after release froi services direct treatment; medical, vocational, educational an support services which follow hospitalization. Hand Controls Adaptive equipment which allows persons with limite use of their extremities to drive motor vehicles. Hemiplegia Paralysis of one side of the body. H.E.W. Department of Health, Education and Welfare. I.C.C.H.S. Intercampus Committee For Handicapped Students; a organization based at Northeastern University which pr vides information and assistance to handicapped studen 140 throughout the metropolitan Boston area. Inpatient A patient who is housed as well as medically treated at hospital or rehabilitation facility. Legislation The process of formulating and enacting laws. L.I.V.E. Life-Independence-Victory-Equality; a consumer group Burlington, Vermont. M.A.P. Massachusetts Association of Paraplegics; chapter of th National Paraplegia Foundation. M.C.O.H. Massachusetts Council of Organizations of The Hand capped; an "umbrella" consumer organization which serves as a clearinghouse and coordinator for group representing the handicapped. Medicaid A government program financed by federal, state an local funds which provides hospitalization and medic insurance for persons of all ages within prescribed incom limits. Medical Pertaining to the science or practice of medicine; havin curative properties. Medicare A Federal program providing hospitalization insurand and voluntary medical insurance for disabled persons an people aged 65 and over. Neurosurgeon A physician specializing in the branch of medicine dea ing with the surgery of nerve tissue. N.I.H. National Institute for Health; research arm of H.E.W. the field of health. N.P.F. National Paraplegia Foundation; a broad-based advocat for paralyzed persons in the United States. N.R.A. National Rehabilitation Association; organization for rd habilitation professionals. O.J.T. On-the-job training; learning a job and/or skill by actu ally performing the task. Orthopedist A physician who specializes in the preservation and rd storation of the function of the skeletal system. O.T. Occupational therapy; a skilled profession which assesse and treats physically disabled persons by using selecte activities to promote development or return of function process of teaching techniques to develop independend in A.D.L. O.T.R. Registered Occupational Therapist. Outpatient One who receives treatment at a hospital, clinic or di pensary but is not hospitalized. "Para", Paraplegic A person who is paralyzed in the lower portion of the body and in both legs. Paresis Condition characterized by partial paralysis. P.A.R.I. Paraplegia Association of Rhode Island. State consumer organization; chapter of the National Paraplegia Founda- tion. P.D.A.I. Physically Disabled Association Inc.; a consumer group formed to insure the social and economic betterment of disabled residents of Vermont. Plastic Surgeon A physician who specializes in restoration and reconstruc- tion of body structures that are defective or damaged by injury or disease. Private Insurer A profit-making firm that insures people for illness, in- jury or death. Psychiatrist A physician who specializes in the study, treatment and prevention of mental disorders. Psychological To do with the study of the mind. 141 Psychotherapy A method of treating disease, particularly nervous dis- orders, by mental rather than by physical means. P.T. Physical therapy, the treatment of disease, bodily weak- ness or defect utilizing physical agents such as water, light, heat, and massage rather than drug therapy. "Puff and suck" The method of electronically operating a wheelchair or environmental control unit by breathing in or out. "Quad", Quadriplegic A person paralyzed in all four extremities. Rehabilitation The process of restoring a person who has been ill or dis- abled to a useful and meaningful life by means of coun- seling, education and/or therapy. R.N. Registered Nurse; a graduate nurse who has been regis- tered and legally licensed to practice by state authority. Sliding scale A set of fees that is adjusted to fit a person's income or ability to pay. Spinal cord A column of nervous tissue contained within the spinal column; all nerves to the trunk and limbs are issued from the spinal cord; the center of reflex action containing the conducting paths to and from the brain. Spinal cord injury Damage to the spinal cord through accident which results in partial or complete paralysis. S.S.D.I. Social Security Disability Insurance; an insurance program for persons who have worked a specified number of quarters and have contributed to the social security fund. S.S.I. Supplemental Security Income; an income program based on need. T.B.C.B. Transportation Barriers Compliance Board; Committee formed to present recommendations to Congress and the President, and to generate legislation or executive action to eliminate architectural barriers. Tetraplegic A person who has paralysis of all extremities (syn. quad- riplegic). Traction Deliberate and prolonged pulling of a muscle, as by weights, to correct dislocation, relieve pressure, etc. Transitional Passing from one state of existence to another; an inter- mediate living environment between a hospital and in- dependent living. Urinary Tract Ducts and organs that are involved in the excretion o urine, including the kidneys, urethral tubes, urinary blad der and urethra. Urologist A physician who specializes in medical and surgical man agement of the urinary system and related organs. V.A.; Veterans Administration Federal government agency responsible for services to veterans of the United States Armed Forces. Vertebrae The 33 bony segments of the spinal column. V.N.A. Visiting Nurse Association; home health agency. 142 INDEX Academy of Dentistry for the Handi- Bowling, 127 capped, 22 Braces, 55 Accessibility and Architectural Barri- Braintree Hospital, 6 ers, 63 Brockton Mustangs, 127 Accessibility and Federal Legislation, 63 Brockton Veteran's Administration Hos- Accessibility and State Legislation pital, 6 Maine, 64 Burke, Charles, i Massachusetts, 64 Burlington Dental Clinic (Vermont), 22 Rhode Island, 65 Buses, 106 Accent on Living, 132 Adaptive Clothing, 61 Camping, 128 Aid to Families with Dependent Children "Camping In A Wheelchair", 128 (AFDC), 39 Camps, 128 Air Travel, 110 Caring Persons, 24 American Civil Liberties Union Catastrophic Illness Programs New Hampshire, 31 Maine, 44 143 American Coalition of Citizens with Dis- Rhode Island, 44 abilities, 46 Central Maine General Hospital, 8 Ambulances, 1 Central Massachusetts Rehabilitation Cen- Ambulance Personnel, 2 ter, 7 Archery, 127 Clarke, Barbara W., ii Architectural Barriers Clergy, 24 Board, 64 Clinical Social Worker, 23 Law, 63 Colleges, 113 Assistive Organizations Commission on Employment of the International, 46 Handicapped, 81 National, 46 Communal Housing, 98 Regional, 48 Competitive Sports, 129 State, 49 Comprehensive Care Facilities, 4 Concentrated Employment Program (New Baird, William, M.D., i Hampshire), 82 Bangor Independent Living Center, 99 Continuing Education Programs, 120 Bar Associations Counseling, 23 Connecticut, 30 Crotched Mountain Rehabilitation Cen- Maine, 30 ter, 7 Massachusetts, 30 New Hampshire, 30 Dental Clinics, 22 Rhode Island, 30 Dental Hygiene Clinic (Vermont), 22 Vermont, 30 Department of Education Bartels, Elmer C., i Connecticut, 112 Basketball, 127 Maine, 112 Bay State Wheelchair Games, 130 Massachusetts, 112 Bay State Wheelers, 127 New Hampshire, 112 Berkshire Medical Center, 6 Rhode Island, 112 Berkshire Rehabilitation Center, 6 Vermont, 112 Berzins, Evarists, i Department of Manpower Affairs Bibliographic References to Other Chap- (Maine), 81 ters, 138 Dictionary of Occupational Titles, 83 Bibliography: Accessibility and Architec- Discrimination, Laws Against, 27 tural Barriers, 67 Division of Employment Security Education, 121 Connecticut, 79 Employment, 84 Maine, 79 Sexual Functioning, 121 Massachusetts, 79 Recreation, 126 New Hampshire, 80 Transportation, 111 Rhode Island, 80 Books of General Interest, 135 Vermont, 80 Boston Center for Independent Living, 99 Division of Vocational Rehabilitation Boston Garden, 131 Connecticut, 75 Boston Housing Authority, 92 Maine, 76 Boston Legal Assistance Project, 31 Massachusetts, 76 Boston Parks and Recreation, 129 New Hampshire, 77 Boston University Committee for Handi- Rhode Island, 78 capped Students, 116 Vermont, 78 Driver Education and Training, 102 New Hampshire, 81 Durot, Marcel, i Vermont, 81 Granger, Carl, M.D., 5 Easter Seal Directory of Resident Camps Greenhouse, The, 24 for Persons with Special Needs, 128 Greyhound Bus Company, 110 Easter Seal Society for Crippled Children Groups, 24 and Adults Guidelines for Purchasing an Automo- Connecticut, 49 bile, 105 Maine, 50 Guidelines for Selecting a House or Massachusetts, 50 Apartment, 85 New Hampshire, 52 Guild, Alison, ii Rhode Island, 53 Gym Activities, 128 Eastern Maine Medical Center, 5 Education, 112 Hand Controls, 103 Education Department Handicapped Commuter Fund, Inc. Connecticut, 112 (Massachusetts), 107 Maine, 112 Handicapped Parking Areas, 106 Massachusetts, 112 Harnisch, Kristine, ii New Hampshire, 112 Hartford Easter Seal Rehabilitation Cen- 144 Rhode Island, 112 ter Inc., 7 Vermont, 112 Hartford Hospital, 6 Education Funding, 121 Heist, Robert, ii Elevators, 55 Home Health Agencies, 10 Emergency Medical Services (EMS), 1 Home Health Aids, 18 Employment, 69 Homemaker Services, 18 Employment Discrimination, 29 Hospital Emergency Services, 1 Environmental Control Units, 59 Houses, 97 Equipment Housing, 85 Funding, 62 Housing Modifications and Accessibil- Special, 59 ity, 97 Equipment Suppliers "How to Know If You Are Getting the National, 56 Best Care", 2 State, 58 HUD, Department of Housing and Urban Development, 86 Federal Civil Service Commission, 70 Human Rights, 26 Federal Income Tax, 33 Human Sexuality, 122 Films, 137 Hunting, 128 Financial Assistance Application Procedure, 36 Independent Living Centers, 98 Federal Programs, 36 Info-Line, 52 Private Sources, 45 Information Sources and Publications, 132 State Programs, 39 Insurance Risk Information, 84 First Responders, 1 Intercampus Committee for Handicapped Fishing, 128 Students (Northeastern University), 116 Food Stamps, 39 Intermediate Care Facilities, 5 Foreword, iv International Committee on Technical Freed, Murray, M.D., 5 Aids, 46 "Freedom of Access for Elderly and Han- International Medical Society of Para- dicapped Act of 1975" H.R. 2424, 63 plegia, 46 Funding Sources Introduction, V Educational, 121 Equipment, 62 Jasper, Karen M., ii Job Adaptations, 83 Galvin, Robert J., M.D., i Garden City Activity Center, 127 Lakeville Hospital, 7 Gate City Chapter, National Association Lawton, Robert, i of Physically Handicapped Persons (New Leffert, Robert, M.D., 5 Hampshire), 52 Legal Aid Society of Rhode Island, 31 Gaylord Hospital, 6 Legal Rights, 25 Gear, Allan, i Assistance, 30 General Education Development, 112 Federal Legislation, 25 Examinations, 112 National Legal Programs, 32 Preparation Courses, 113 State Legislation, 26 Going Home, 8 Leisure Center for Handicapped Goldcamp, Otto, M.D., i (Maine), 130 Governor's Committee on Employment of Leisure Time Services for Handicapped the Handicapped, 81 Inc. (Rhode Island), 128 Maine, 81 Lenox Hill Nursing Home and Rehabilita- tion Hospital, 100 National Wheelchair Athletic Associa- Libon, Goldie, ii tion, 47 Library Services, 136 National Wheelchair Basketball Associa- Lifts, 55 tion, 127 LIVE (Life, Independence, Victory, Neurosurgeon, 3 Equality, Esteem, Education), 53 New England Chapter of Paralyzed Veter- Lorentz, John, M.D., 5 ans of America (NEPVA), 48 New England Medical Center Rehabilita- Madigan, Stephen M., ii tion Unit, 5 Magliozzi, Anthony L., ii New England Regional Spinal Cord Injury Maine Human Services, 40 Center (University Hospital), 5 Maine Medical Center, 5 New England Rehabilitation Hospital, 7 Maine Medical Center Dental Clinic, 22 New England Spinal Cord Injury Founda- Maine Paraplegia Association and Wheel- tion chair Confined, Inc., 2 Board of Directors, i Maine Rehabilitation Association, 49 Library and Clearinghouse, 132 Marquis, Bruce E., ii Programs and Services, 48 Massachusetts Association of Paraplegics Staff, ii (MAP), 51 New Hampshire Department of Health and Massachusetts Bay Transportation Author- Welfare, District Offices, 43 ity (MBTA), 107 New Hampshire Legal Assistance, 31 Massachusetts Bureau of Housing for the New Haven Spokebenders, 127 145 Handicapped, 93 Northeast Wheelchair Basketball Associa- Massachusetts Council of Organizations of tion, 127 the Handicapped (MCOH), 51 Nursing Homes, 101 Massachusetts General Hospital, 5 Massachusetts Rehabilitation Commis- Occupational Outlook Handbook, 82 sion, 76 Office of Manpower Services (Vermont), 82 Massachusetts Rehabilitation Hospital, 7 On-The-Job Training Programs, 83 Massachusetts, University of; Resource Orthopedist, 3 and Counseling for Handicapped Stu- dents, 116 Page Turners, 60 Mayo, Terry D., ii Paraplegia Association of Rhode Island McCann, Cairbre, M.D., i (PARI), 53 Medicaid, 39 Paralyzed Veterans of America (PVA), 48 Medical Center Hospital of Vermont, 5 PARI Road Runners, 127 Medical, Rehabilitative and Self-Care, 1 Parry, Hazel, ii Medicare, 36 Physiatrist, 3 Meikle, Elizabeth, R.N., i Physical Fitness, 128 Mental Health Clinics, 24 Physically Disabled Association (Vermont), Mercy Hospital, 8 54 Mercy Hospital Rehabilitation Unit, 7 Pine Tree Legal Assistance, 30 Messore, William, i Pine Tree Society (Easter Seal Society), 50 Mid-Maine Medical Center, 8 Plastic Surgeon, 4 Milhous, Raymond L., M.D., i Portland Public Library, 136 Mossman, Philip, M.D., 5 Portsmouth Rehabilitation Center, 8 Motor Vehicle Departments, 103 President's Committee on Employment of Connecticut, 103 the Handicapped, 47 Maine, 103 Private Apartments, 95 Massachusetts, 103 Psychological Supports and Services, 23 New Hampshire, 103 Psychologist, 23 Rhode Island, 103 Publications, 132 Vermont, 103 Public Housing, 86 Motor Vehicle Operation, 102 Public Interest Law Center for the Phila- Murphy, Robert, iv delphia Bar Association, 32 Myette, Peter J., ii Public Schools, 112 National Alliance of Businessmen, 81 Ramps, Lifts and Elevators, 55 National Center on Law and the Handi- Ranchos Los Amigos Hospital, 85 capped, 32 Recreation, 126 National Legal Assistance Organiza- Recreational Organizations, 130 tions, 32 Rehabilitation Act of 1973, 69 National Paraplegia Foundation, 46 Rehabilitation Center of Worcester National Park Guide for the Handicapped, County, 8 128 Rehabilitation Counselors, 23 National Rehabilitation Association, 47 Rehabilitation Facilities, 6 National Rehabilitation Counseling As- Resource and Counseling Center for sociation, 47 Handicapped Students (University of Massachusetts), 116 Transitional Housing, 98 Rhode Island Division of Housing and Transportation, 102 Governmental Services, 94 Transportation Barriers Compliance Board Rhode Island HUD, 94 (TBCB), 63 Rhode Island Legal Aid Society, 31 Travel, 126 Rhode Island Legal Services, Inc., 31 Travel Agencies, 126 Rhode Island, University of; Committee Travel Publications, 126 on the Handicapped, 117 Tri-State Regional Medical Program, iv "Rights Handbook for Physically Handi- Tufts Biomedical Engineering Project, 61 capped Children", 26 Tufts New England Medical Center, 5 Rosen, Gerald, i Typewriters, 60 Rossier, Alain, M.D., 5 United Community Planning Corporation, Samuels, Robert W., i 51 Self-Care, 9 Universities, 113 Sexual Functioning, 122 University Hospital, 5 St. Francis Hospital, 6 Urologist, 4 St. Joseph's Hospital Dental Clinic (Maine), 22 Vans, 106 Small Business Administration, 80 Vermont Achievement Center, 129 146 Social Security Administration, 36 Vermont Department of Social Welfare Branch and District Offices, 37 Offices, 44 Connecticut, 37 Vermont Mini-Olympics, 130 Maine, 37 Veterans Administration and Veterans Massachusetts, 37 Services, 38 New Hampshire, 38 Offices - Connecticut, 39 Rhode Island, 38 Maine, 39 Vermont, 38 Massachusetts, 39 Social Security Disability Insurance New Hampshire, 39 (SSDI), 36 Rhode Island, 39 Southern Maine Association of Handi- Vermont, 39 capped Persons, 50 Visiting Nurses Association, 10 Special Aids, 61 Vocational Rehabilitation Act of 1973, 69 Spencer, Anne, i Vocational-Technical Schools, 117 Sports, 127 Voter Information, 26 Squeaking Wheels, 54 Standards and Criteria of Care, 2 Walsh, Andrew C., M.D., ii State Hospital Associations, 5 Welfare Offices State Income Tax, 33 Connecticut, 39 State Medical Societies, 4 Maine, 40 Stevens, Helen, R.N., i Massachusetts, 40 Subscription Publications, 132 New Hampshire, 43 Summit Club of Rhode Island, 53 Rhode Island, 43 Supplemental Security Income (SSI), 36 Vermont, 44 Swimming, 129 Wellington Hall, 100 West Roxbury Veterans Administration Talbot, Herbert S., M.D., i Hospital, 5 Task Force on the Handicapped, Inc. Western Disabled Law Resource Center, (Massachusetts), 82 32 Taxes, 33 Western Massachusetts Hospital, 7 Telephones, 59 Wheelchairs, 55 Theatres, Restaurants and Special Events, Wheelchair Games, 129 131 Workman's Compensation, 44 Trailers, 98 Because the New England Spinal Cord Injury Foundation plans to up-date this Resource Directory annually, we ask that you share your knowledge and experi- ences with us, so that we may share them with interested persons throughout New England. What you have learned or discovered through trial and error can be invaluable to someone else. We urge you to complete the following resource form and return it to the Foundation. On behalf of all of us committed to im- proving the lives of spinal cord injured persons, thank you. Please check the appropriate box: Medical, Rehabilitation and Self Care Employment Psychological Supports Housing Legal Transportation Taxes Education Financial Assistance Sexual Functioning Assistive Organizations Recreation Equipment Publications Comments: Fold here NEW ENGLAND SPINAL CORD INJURY FOUNDATION, INC. 369 Elliot Street Newton Upper Falls, Massachusetts 02164 Staple here Additional copies of this booklet may be obtained by returning this form to: New England Spinal Cord Injury Foundation, Inc. 369 Elliot Street Newton Upper Falls, Mass. 02164 Telephone (617) 964-0521 Name Street Address City State Zip Agency or Organization Affiliate