Ask the Scholar

Document scope · 1 page
doc
Scholar
Ask about this object, its catalog metadata, its source description, or the page inventory. For page-specific OCR and visual context, open one of the page chats.

Scholar Source Context

Document identity
localId
351002215
label
"Rehabilitation Engineering Sourcebook" [1979]
core
doc
dtoType
document
pageCount
1
Source metadata
Source extras
naId
351002215
levelOfDescription
fileUnit
recordType
description
ocrSource
nara-archive
Single page context
seq
1
pageIndex
0
type
document
mediaId
d50c6f418f52d5ae
ocrText
Originally Processed With FOIA(s): FOIA Number: S S FOIA MARKER This is not a textual record. This is used as an administrative marker by the George Bush Presidential Library Staff. Record Group/Collection: Donated Historical Materials Collection/Office of Origin: Frieden, Lex, Collection Series: Printed Materials Subseries: Manuals OA/ID Number: 52104 Folder ID Number: 52104-003 Folder Title: "Rehabilitation Engineering Sourcebook" [1979] Stack: Row: Section: Shelf: Position: REHABILITATION ENGINEERING SOURCEBOOK © Copyright 1979 Institute for Information Studies 400 N. Washington St. Falls Church, VA 22046 Library of Congress Cataloging in Publication Data Institute for Information Studies (Falls Church, Va.) Rehabilitation engineering sourcebook. 1. Vocational rehabilitation. 2. Rehabilitation. I Title. HD 7255. I56 1979 326.8'5 79-24747 ISBN 0-9 35294-02-3 This publication was made possible in part by Grant #22 P-59236/3-01 from the National Institute of Handicapped Research Department of Health, Education and Welfare Washington, D.C. PREFACE The topic for this document was selected by a nominating panel of rehabilitation service providers including: Robert Lusin Jacequeline Sanchez Vocational Rehabilitation 1265 Race Street Eastern Area Office Denver, Colorado 80206 P.O. Box 30010 Lansing, Michigan 48909 Dr. Eugene Murphy and Tammy Sowell Eric Lucero, Supervisor Assistant to the Director Division of Vocational Rehabilitation Office of Technology Transfer Southern District Veterans Administration 631 Lake Avenue 252 Seventh Avenue Pueblo, Colorado 81004 New York, New York 10001 The Panel suggested several topics of urgent concern, but gave "potential and actual contributions from the field of rehabilitation engineering" their clear top priority rating. The Final Selection Review Board endorsed this choice without reservation, and stressed that the document should be a practical aid to providers rather than an expository work. Dick LeClair, Chief, Office of Research Utilization and Training, National Institute of Handicapped Research, deserves the credit for the initial suggestion that the main body of the text consist of case examples - paired statements describing actual problems encountered by people with disabilities and the specific technological solutions which were brought to bear. This suggestion was followed up by a telephone survey of nearly three dozen rehabilitation practitioners - with state vocational rehabilitation agency counselors and "sheltered" workshop personnel being most heavily represented - seeking opinions on the desirability of such an approach. The idea was met with resounding enthusiasm. Next it quickly became evident that many excellent sources of suitable data existed in the various rehabilitation engineering projects throughout the country. Participating Projects A program ideally suited to generating the type of information sought was discovered in Project IMPART (Innovative Matching of Problems to Available Rehabilitation Technology), established by the Texas Rehabilitation Commission in collaboration with the Southwest Research Institute with funding assistance from the Rehabilitation Services Administration. IMPART acts as a clearinghouse in that it receives rehabilitation problems and searches for individualized solutions. It is a public service available to anyone living in Texas and neighboring states who has a work related rehabilitation problem. Dr. Carol Whitcraft, Project Director, expressed the opinion that information sharing such as planned for this document was "an idea whose time has come" and became the first rehabilitation engineering project director to participate in its development. The problem/solution format was quickly dubbed a "Dear Abby" approach, which brought to mind another source of information, one long appreciated by counselors in the California Department of Rehabilitation. For more than five years, A.G. Garris, Assistive Device Consultant with the California agency, has written a column in the departmental newsletter titled "Dear A.G." Questions are submitted by counselors with problems relating to some aspect of their clients' performance capabilities in the hope that A.G. might know of some technological solution. The column has been greatly appreciated over the years because he often did know of a workable solution. When he did not, he was available to evaluate the situation and could frequently devise one. A.G. too, was pleased by the opportunity to see wider dissemination of the fruits of his labors, and those of Charles Eckles, a consultant with whom he often collaborates. A total of 15 different agencies (centers, projects) or individuals contributed to the production of this document. In addition to the IMPART and "Dear A.G." files, other sources of problem/solution statements are described below. Since 1976, the Rehabilitation Engineering Center of The Cerebral Palsy Research Foundation in Wichita, Kansas, has published a series of technical briefs titled "Problem Solving with Rehabilitation Engineering - Tech Brief". Each brief describes specific problems experienced by clients and employees of Center Industries. Center Industries operates under the same administration as the Foundation, and is a job shop which predominantly hires workers with disabilities. Innovative jigs and fixtures created for use there are well represented in the briefs. John Jonas, Executive Vice President of the Foundation, provided the needed materials for abstracts of selected briefs to be included here. Jerry Kuns, Vocational Specialist for the Sensory Aids Foundation of Palo Alto, California, provided materials describing work and training related problems experienced by blind or partially sighted individuals and the technological solutions which were successfully applied by Foundation staff, often in collaboration with other agencies. The California Department of Rehabilitation, and the Rehabilitation Engineering Center of the Smith-Kettlewell Institute of Visual Sciences in San Francisco directed by Lawrence Scadden, are two primary examples of collaborators. Dr. Samuel Genensky, Director of the Center for the Partially Sighted at the Santa Monica Hospital Medical Center, provided additional problem/solution statements relating to sensory aids useful in work, training, or other aspects of the person's life. The Center offers both direct services to individuals and conducts an extensive research program. Dr. O.B. Billings of The Institute for Rehabilitation and Research at the Texas Medical Center in Houston, provided a large volume of problem/solution statements from their files. All aspects of life performance, from the most basic activities of daily living to very specialized work related demands are well represented in the materials from TIRR. Mickey Christiason, Recreation Therapist at Rancho Los Amigos Hospital in Downey, California, contributed many items on recreation related devices. Most of these are commercially available but not well known. The Rehabilitation Engineering Program at Northwestern University contributed a number of items, and Margaret Pfrommer of their staff was particularly helpful in providing follow-up information. Anthony Staros, Director of the Veterans Administration Prosthetics Center, arranged for the contribution of several richly detailed descriptions of extensive technological intervention on behalf of very severely disabled individuals. Many of these solutions reflect the innovative work of Saleem Sheredos, an engineer who works closely with the VAPC Clinical Engineering Center. The Rehabilitation Engineering Department of the Woodrow Wilson Rehabilitation Center in Fishersville, Virginia, contributed items reflecting the innovative work taking place in that program. Reuven Kruger, of the Research Utilization Laboratory made the materials available. Florian Caligiuri, Executive Director of the California Association of the Deaf provided materials for the development of items illustrating problems and technological solutions for people who are deaf. Ray Disinger, Director of the Special Assistance to the Handicapped Office of Pacific Telephone in Los Angeles contributed a number of items based on the efforts of that office. Finally, James Reswick, Director of the Rancho Los Amigos Rehabilitation Engineering Center, not only arranged for the contribution of case examples illustrating the work of their Project Threshold, but also provided general consultation and guidance for the development of this document. ii TABLE OF CONTENTS Preface i Table of Contents iii List of Illustrations iii Abbreviations and Acronyms iv I. Introduction I-1 II. Guidelines for Formulating Problem Statements II-1 III. Case Examples: Problems and Solutions III-1 Activities of Daily Living III-3 Communication III-11 Homemaking III-17 Mobility III-19 Recreation III-21 Training III-27 Transportation III-33 Work III-37 IV. Resources for Further Information and Solutions For Further Information (FFI) Entries IV-1 Exhibits and Expositions IV-5 Publications IV-6 Rehabilitation Engineering Centers IV7 Indexes Problem Index Solution Index LIST OF ILLUSTRATIONS SCANNING BLACKBOARD 111-29 TYPEWRITER MOUNT III-31 CYLINDRICAL PARTS SELECTOR FEEDER III-38 HOLDING TRAY III-39 MODIFIED TUBE BEADING MACHINE 111-40 SPINDLE DRILLING FIXTURE III-46 PNEUMATICALLY-POWERED WIREBENDER III-49 SPECIAL TYPEWRITER TABLE III-55 THREE AXIS CRIMPER III-56 iii ABBREVIATIONS AND ACRONYMS ADL Activities of Daily Living ALS Amyotrophic Lateral Sclerosis BP Blood Pressure CCTV Closed Circuit Television E&J Everest and Jennings HITE Houston Independence Through Engineering L.E. Lower Extremity(ies) MD Muscular Dystrophy REC Rehabilitation Engineering Center SCI Spinal Cord Injury(ed) TDD Telecommunications Device for the Deaf TTY Teletypewriter U.E. Upper Extremity(ies) VAPC Veterans Administration Prosthetic Center VR Vocational Rehabilitation iv INTRODUCTION Scope of Document The document is designed to serve as a sourcebook, or reference work, for day-to-day use by rehabilitation practitioners whose clients find themselves barred from certain activities by functional limitations resulting from disablement. Here, the user may learn whether a similar problem has elsewhere been found to have a technological solution. It is a practical aid which chronicles actual rehabilitation problems which have been successfully resolved through the use of technology, especially applications issuing from the field of rehabilitation engineering. Specifically excluded are discussions of historical, theoretical, and programmatic matters (which are covered in considerable detail in other current reports and articles) on the role of rehabilitation engineering in serving people with physical and sensory disabilites. It is not meant to be a comprehensive or exhaustive sourcebook. It is, rather, a sharing of information which has been recorded in various projects throughout the country on efforts to solve client problems, through means of rehabilitation engineering, which have worked - at least once. The selection of cases presented here reflects the response to efforts to encourage projects and individuals to share information on their successes. It is not intended to reflect the proportionate efforts being directed into the various problem areas nationwide. Also, there has been no intention to generate new information in the course of preparing this document. It is simply a means for disseminating existing information with great utilization potential which has been heretofore available to only a few. The looseleaf format was selected in response to high priority recommendations given by participants in a study conducted by SRI International, funded jointly by NASA and the California Department of Rehabilitation, aimed at designing a model rehabilitation engineering information exchange system. Following those recommendations, the materials presented here are con- strued as a "starter set" to which the user may add as further resource information of a similar sort becomes available. The following section, titled "Guidelines for Formulating Problem Statements" summarizes the most effective ways for either disabled individuals or rehabilitation practitioners to "place their orders". That is, it describes how to ask concisely and unambiguously for exactly what is needed - in functional terms - so the respondent can search effectively and efficiently for exactly what is needed - in technological terms - to devise a solution. Section Three, titled "Case Examples: Problems and Solutions" comprises the main body of the text. These are brief summaries of actual problems experienced in the life performance areas of: Activities of Daily Living, Communication, Homemaking, Mobility, Recreation, Training, Transportation, and Work, paired with solutions which were successfully used by or known to the contributors. It is hoped that this material will serve as a consciousness-raising function, with respect to the remarkable technological potential existent today, as well as its more specific informational function relating to the cases cited. The fact is, there are now technologically feasible solutions to a heretofore undreamed of range of problems stemming from physical and sensory disabilities. Now that this potential is being recognized with increasing funding from a variety of sources, progress is being made at a quickening pace. Today, there is often good reason to hope for a device or a system that will make it possible for a blind, deaf or paralyzed person to do with relative ease what was unequivocally impossible less than a decade ago. The materials in the third section will demonstrate this, and will also give the reader an overview of types of work being pursued by each of the contributing projects. Section Four presents an annotated listing of the contributing rehabilitation engineering centers and projects. The annotations briefly describe areas of specialization and/or other pertinent information about the resource cited. The citations in this section are also given as sources of further information relating to specific case examples in Section Three. They are repeated in Section Four simply as a convenience to the reader. Intended Audience Because the focus of this document is on the types of problems encountered by disabled people after they have reached the vocational stage of their rehabilitation, it is oriented toward a primary audience of rehabilitation counselors and work supervisors. Whether a rehabilitation counselor is employed by a state vocational rehabilitation agency, a local government, a private agency or facility, or is working in private practice, the problem/solution case materials presented here should have relevance to problems encountered in the caseloads. Just as no two human *Christy, et al, "Suggested Approach for Establishing a Rehabilitation Engineering Information Service for the State of California," Stanford Research Institute International, 1978. I-1 beings are alike, no two problems and their solutions will be identical; but similar problems which have been successfully resolved should provide direction to the counselor in seeking a workable variant that will solve the problem at hand. The same holds true for work supervisors, whether they are employed by "sheltered" workshop facilities or are working in mainstream in- dustry. It is expected that other rehabilitation practitioners will also find the document useful. Re- habilitation staff in hospitals may find that the kinds of rehabilitation planning they do at the early stages of rehabilitative treatment are influenced by their knowledge of the increased potential of their patients for future life and work activities. Thus, occupational, physical, and re- creational therapists, nurses, physicians, and other allied health professionals may make use of this sourcebook. It may also contribute to meeting the needs of rehabilitation engineers - as suggested in the SRI International report cited earlier - for "information on past attempts to design equipment for particular needs." Usage of Document This sourcebook can be used in several different ways. One reader may wish to simply read through it to gain an overview of the kinds of technological solutions which have been devised to meet problems which rehabilitation counselors, work supervisors, and others confront in their work with individuals who have disabilities barring. them from certain activities. Such a reader would be making use of the consciousness-raising function of the document, becoming familiar with the general range of problems which can be solved through the application of technology. Another reader may already be aware of the general range of solutions being made possible by the field of rehabilitation engineering, and want to use the sourcebook strictly as a reference manual, to look up specific solutions which have been devised to meet a particular type of client problem. This reader might use the index tabs to locate the life performance area in which a client is experiencing difficulty, or the "problem index" listings at the end of the document to locate a specific problem, or type of problem, which parallels that being confronted. Still other readers may have heard of devices, or seen them, but be unsure of their applications. They could use the "solution index" listings at the end to locate the device in question in order to learn how that device has been used for practical problem solving. Every effort has been made to provide ample descriptors in the indexes to help readers who may have only fragmented information about devices, or who may view the problem in terms of global disability categories as opposed to specific functional limitations. Descriptors relating to job or other life performance area demands are also included, providing an additional way to key into the materials presented. When the solution consists of a commercially available device, the name and address of at least one vendor is mentioned, and telephone number, contact name, and approximate cost range are given if available. When applicable, additional sources of further information are also given. When an innovative solution is described, the name of the innovator (usually by organiza- tion rather than an individual) is provided along with the appropriate address to which to write for further information. Many of the simpler innovative solutions could potentially be replicated, or serve as a starting point for innovative variation, using only the information presented here - particularly when illustrations have been provided. Some of the more complex innovative solutions cannot be described in adequate detail to permit replication in a sourcebook such as this. The contributors to this sourcebook will welcome inquiries from users who wish to make use of solutions they have devised, and the needed information for such follow-up is given with each case example. The format of the sourcebook allows the user to enter notes when further information is ob- tained relative to specific problem/solution pairs and to include additional problem/solution pairs which may become available from a variety of sources, including personal experience. Future Development of the Sourcebook As indicated earlier, the present document is construed as a starter set to which users may add new materials of a similar sort as they become available. Should it be warranted by the response to this initial attempt to organize scattered pockets of information into a useful overview of rehabilitation engineering accomplishments, the Institute for Information Studies may continue to produce supplementary materials for inclusion in Sections Three (case examples) and Four (annotated listing of resources). Hopefully, other organizations will be encouraged to do so as well. For this reason, the Institute will appreciate feedback as to the utility of this document and suggestions for how future efforts along similar lines might be improved. The form included with this package of materials is an evaluation form, and it is hoped that you will complete and return it for this purpose. I-2 GUIDELINES FOR FORMULATING PROBLEM STATEMENTS "The quality of the answer depends on the quality of the question." In order to make the most effective use of consultants, specialists, and other experts, there is a fine art which must be developed - the art of asking the question. Conversely, one of the greatest deterrents to getting an answer that will help is failing to phrase the question in a precise, unambiguous manner. This is a familiar issue to rehabilitation counselors who work in state vocational rehabilita- tion agencies and contract for work evaluation/adjustment services from workshops and other re- habilitation facilities. If they don't spell out exactly what they want to know about a client's work capabilities and limitations, they may receive an interesting report which, nonetheless, offers little helpful guidance for rehabilitation planning. The facility staff are acutely aware of the problem, too. They express frustration over having to "second guess" what the referring party wants to know when the request is a global plea for help rather than an explicit, itemized requisition for discrete items of information. This is a very old problem within the public-private rehabilitation partnership, and the lessons are being learned continuously by newcomers to the field. The same kind of problem is now arising in the new interdisciplinary partnership between rehabilitation practitioners of various sorts and rehabilitation engineers. For example, many of the questions and problems posed to Project IMPART of the Texas Rehabilitation Commission and the California Department of Rehabilitation's Rehabilitation Engineering Section are questions that might more properly be addressed to another kind of consultant, or they provide insufficient background information to allow the technological specialist to comprehend the actual and specific need. Now that referring parties are beginning to learn how to "place their orders" correctly with work evaluation/adjustment facilities, they must learn to place a different kind of order with tech- nological specialists. It is even more crucial to do so for this reason: referring parties ordinarily use work evaluation/adjustment facilities in their own local areas. Thus, any needed follow-up to clarify an unclear request - though time consuming - is fairly easy to accomplish logistically. This is not so with many of the rehabilitation engineering resources. Project IMPART, for example, is a public service available to anyone in Texas and neighboring states who has a work- related rehabilitation problem. Frequent long distance calls to Austin, Texas may be frowned upon. And well they might, when the need could be circumvented by learning how to phrase the request precisely and unambiguously in the first place. Many readers of this document will have clients on their caseloads or disabled workers under their supervision who might be helped to function more independently or efficiently through the application of technology. The reader, therefore, may wish to submit a problem to one of the resources learned about here - or perhaps some other - in hopes of finding a feasible, afford- able, technological solution to a rehabilitation problem. The following guidelines are offered to help in formulating the statement of the problem in a way that will facilitate an on-target response with minimal delay. First, it is important to adopt an analytic mode of thinking, a mental set of breaking down the global, problem-fraught situation into its component problem parts. The technological con- sultant needs to know what, specifically, the person needs or wants to do that she/he cannot because of what specific functional limitation(s). The problem statement should describe the specific activity the person needs/wants to per- form in what may seem to be microscopic detail. To say that the person wants to work as a secretary is not explicit enough. What particular aspects of secretarial work are impeded by the person's functional limitations? Is it reaching top filing drawers from a wheelchair? Is it typing at a competitive rate due to shoulder weakness? Each specific aspect of impeded performance must be spelled out. It is important in this respect to remember that the rehabilitation engineer or other techno- logical consultant is an expert in technology, but not necessarily in jobs, homemaking, recreation, or whatever the life performance area in question may be. As implied above, the specific nature of the functional limitation(s) must also be spelled out in detail. Diagnostic categories such as spinal cord injury, poliomyelitis, arthritis, and the like do II-1 not tell enough. Even as explicit a descriptor as "quadriplegic" does not convey suffient informa- tion because the term is applied to a considerable variety of functional patterns. The specific activities which are impeded must be spelled out; such as manipulating tape recorder controls, lifting a telephone receiver, or reaching materials. One of the most basic rules of good report writing also applies to the formulation of problem statements in a request for rehabilitation engineering consultation. That is, "Avoid abstractions and write in terms of directly observable behavior." In report writing, this rule avoids the miscommunications that can arise when the writer and a reader interpret abstract conceptions such as "the client tends to be 'dependent' or 'well motivated' in different ways. However, if writers describe the behavior which leads them to conclude that a client is 'dependent' or 'well motivated', then readers can draw their own conclusions from the behavioral data and misunder- standings are less likely to occur. In consultation requests, the rule provides the same sort of protection against ambiguity. For example, to say "The client can type only fifteen words per minute due to upper extremity weakness" does not convey the picture one would observe if one had the opportunity to watch the client type. On the other hand, to say "The client has good use of her hands but only fair biceps and extremely weak shoulders; thus, she has the dexterity to type but cannot hold her arms in position for more than half a minute without resting for an equal time" gives the consul- tant an immediate picture of the type of solution needed. All that is left is to determine how to implement it. In summary, the essential information needed is a description of the client in terms of the particular functional limitations which are interfering with his or her efforts to perform a specified activity or set of activities. In addition, it is generally helpful to provide the person's disability diagnosis and any background information which might clarify the problem statement. An important example would be previous efforts to achieve a technological solution which were less than satisfactory. In formulating the statement of the problem, it may help to ask yourself if you have dealt adequately with each of the following questions: 1. What does the individual want or need to do that s/he cannot do: a. At all b. Efficiently/effectively? 2. What is the general nature of the desired/needed activity in terms of basic life perform- ance areas? (E.g., training, work, homemaking, recreation, ADL, communication, mobility, transportation, two or more of these designations, other.) 3. What specific activity (or activities) does the individual wish/need to engage in? (E.g., secretarial work, college coursework, cooking, bowling, grooming, speaking, stair climbing, driving, other.) 4. What specific aspects or components of this activity are impeded? (E.g., reaching, lifting, manipulating small objects, reading, telephoning.) 5. What is the general nature of the functionally limiting condition that interferes with per- forming the activity (or activities)? (E.g., Post-SCI quadriplegia, post-polio weakness, arthritic joint inflammation, visual impairment, hearing impairment.) 6. What is (are) the specific functional limitation(s) associated with the conditions that pre- clude or impede performance? (E.g., lack of finger function, unable to do independent wheelchair transfer, unable to grasp objects, 20/400 vision in better eye, total deafness.) 7. How do the specific performance demands of the activity interact with the individual's specific functional limitations to create the performance problem? (E.g., unable to dial telephone, unable to transfer to toilet during work hours, unable to squeeze stapler, unable to read small typeface on insurance documents, unable to hear warning signals.) 8. What kind of help is wanted/expected from the technological consultant queried? (E.g., evaluation only, referral to existing/local resources, device development, other.) As can be seen, this is a funneling technique in which the questions evolve from the general to the progressively more specific in terms of both the performance demands of the activity in question and the functional limitations that interfere with its execution. By answering these questions, you can better ensure that your problem statement will communicate the needed data precisely and unambiguously to the technological consultant whose help you are seeking. II-2 CASE EXAMPLES: PROBLEMS AND SOLUTIONS This section is comprised of case examples in the form of problem/solution pairs. It has been divided into eight subsections each of which contains problem/solution pairs applicable to a particular life performance activity. The eight subsections include Activities of Daily Living, Communications, Homemaking, Mobility, Recreation, Training, Transportation, and Work. The format of problem/solution pairs has been standardized to facilitate easy reading and quick-look referral. Problem/solution pairs contain the following components: Case Number Problem Description: (title) Impairment Etiology(ies) Functional Limitation(s) Performance Activity Device Name Solution Description: (title) Each component of the problem/solution format is described below. Case Number Each case number uniquely identifies a particular problem/solution pair. The case number consists of an alphabetic designator followed by a dash and a unique, two-digit number which is assigned sequentially. There are eight alphabetic designators; they represent the life perfor- mance activities into which problem/solution pairs may be categorized. The eight designators include: A - Activities of Daily Living C - Communications H - Homemaking M - Mobility R - Recreation T - Training P - Transportation W - Work Thus the first two problem/solution pairs under the category Activities of Daily Living are assigned case numbers A-01 and A-02; the first two entries under the category Communications are C-01 and C-02, and so on. Impairment Etiology This element provides information about the disabling condition(s) which may result in func- tional limitation(s) that interfere with the performance of a particular activity. Examples of entries under this component include Spinal Cord Injury (SCI), Cerebral Palsy, and Stroke. Some solutions have been found applicable to specific functional limitations regardless of impairment etiology; the designation "any etiology" has been used to indicate this situation. Functional Limitation(s) Functional limitation(s) describes the particular physical or sensory deficit(s) associated with the impairment etiology which precludes or impedes performance of some activity. Examples of specific functional limitations include respiratory paralysis, limited grasp, or upper extremity weakness. Performance Activity The performance limitation is described in terms of the specific activity to be performed as opposed to the more general categories such as homemaking or work. Specific performance activities include breathing while sitting, stair climbing, reading, or wheelchair propulsion. Device Name The term shown indicates the general type of device utilized to solve a particular perfor- mance problem. Types of devices may include dexterity aids, mobility aids, remote controls or muscle stimulators. III-1