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Originally Processed With FOIA(s): FOIA Number: S S FOIA MARKER This is not a textual record. This is used as an administrative marker by the George Bush Presidential Library Staff. Record Group/Collection: Donated Historical Materials Collection/Office of Origin: Frieden, Lex, Collection Series: Printed Materials Subseries: Papers/Books OA/ID Number: 52112 Folder ID Number: 52112-008 Folder Title: "Disabled Americans' Self Perceptions: Bringing Disabled Americans into the Mainstream" [1986] Stack: Row: Section: Shelf: Position: STUDY NO. 854009 DISABLED AMERICANS' SELF PERCEPTIONS: BRINGING DISABLED AMERICANS INTO THE MAINSTREAM A nationwide survey of 1,000 disabled people Conducted for the INTERNATIONAL CENTER FOR THE DISABLED by LOUIS HARRIS AND ASSOCIATES, INC. -----_ LOUIS HARRIS AND ASSOCIATES CONTENTS Page I. PERCEPTIONS OF CHANGE FOR THE BETTER FOR DISABLED AMERICANS 1 II. WHAT IT MEANS TO BE DISABLED IN AMERICA 3 Working as a Disabled American 8 III. SIGNS OF AN EMERGING GROUP CONSCIOUSNESS AMONG DISABLED AMERICANS 12 IV. BRINGING DISABLED AMERICANS INTO THE MAINSTREAM OF AMERICAN LIFE 14 LOUIS HARRIS AND ASSOCIATES TABLES Table Page 1 A PROFILE OF THE SAMPLE OF 1,000 DISABLED AMERICANS BY KEY 19 MEASURES OF DISABILITY 2 PERCEPTIONS OF HOW THINGS HAVE CHANGED FOR DISABLED PEOPLE 20 IN THE PAST DECADE 3 PERCEPTIONS OF HOW FEDERAL LAWS HAVE HELPED DISABLED PEOPLE 21 4 WHETHER OR NOT ANTI-DISCRIMINATION LAWS SHOULD COVER DISABLED PEOPLE. 22 5 FAMILIARITY WITH SECTION 504 23 6 A COMPARISON BETWEEN DISABLED AND NON-DISABLED PERSONS ON KEY DEMOGRAPHIC VARIABLES 24 7 HOUSEHOLD INCOME BY KEY MEASURES OF DISABILITY 25 8 PERCENTAGE WHO SAY DISABILITY LIMITS THEIR MOBILITY OR SOCIAL 26 ACTIVITIES 9 A COMPARISON BETWEEN DISABLED AND NON-DISABLED PERSONS: HOW OFTEN THEY SOCIALIZE WITH FRIENDS AND FAMILY 27 10 ATTENDANCE OF MOVIES, THEATER, AND LIVE MUSIC PERVORMANCE: DISABLED ADULTS VS. ALL ADULTS 28 11 ACTIVISIM IN COMMUNITY GROUPS: A COMPARISON BETWEEN DISABLED AND NON-DISABLED PERSONS 29 12 SATISFACTION WITH LIFE: A COMPARISON BETWEEN DISABLED AND NON- DISABLED PERSONS 30 13 MOST DIFFICULT BARRIER FACED IN CONNECTION WITH DISABILITY 31 14 PERCENTAGE WHO FEEL DISABILITY HAS PREVENTED THEM FROM REACHING THEIR POTENTIAL IN LIFE 33 15 EMPLOYMENT STATUS OF WORKING AGE DISABLED PERSONS 34 16 A COMPARISON BETWEEN WORKING AND NON-WORKING DISABLED PERSONS ON KEY DEMOGRAPHIC VARIABLES 35 (CONTINUED) LOUIS HARRIS AND ASSOCIATES TABLES (CONTINUED) Table Page 17 A COMPARISON BETWEEN WORKING AND NON-WORKING DISABLED PERSONS ON KEY MEASURES OF DISABILITY 36 18 PERCENT OF WORKING-AGE DISABLED PERSONS IN OR OUT OF THE LABOR FORCE 37 19 A COMPARISON BETWEEN THOSE IN THE LABOR FORCE AND THOSE OUT OF THE LABOR FORCE ON KEY DEMOGRAPHIC VARIABLES 38 20 A COMPARISON BETWEEN THOSE IN THE LABOR FORCE AND THOSE OUT OF THE LABOR FORCE ON KEY MEASURES OF DISABILITY 39 21 A COMPARISON BETWEEN WORKING AND NON-WORKING DISABLED PERSONS OF SELF-PERCEPTION AND SATISFACTION WITH LIFE 40 22 PERCENT OF WORKING-AGE DISABLED PERSONS WHO SAY THEY HAVE ENCOUNTERED JOB DISCRIMINATION 41 23 PERCENT OF WORKING-AGE DISABLED PERSONS WHO SAY THEIR EMPLOYER MADE ACCOMMODATIONS FOR THEIR DISABILITY 42 24 PERCENT OF WORKING-AGE DISABLED PERSONS RECEIVING INSURANCE PAYMENTS OR GOVERNMENTS PAYMENTS 43 25 PERCENT OF WORKING-AGE DISABLED PERSONS COVERED BY PRIVATE OR GOVERNMENT HEALTH PLANS 44 26 HOW MUCH COMMON IDENTITY DISABLED PEOPLE FEEL WITH OTHER DISABLED PEOPLE 45 27 WHETHER OR NOT DISABLED PERSONS ARE A MINORITY GROUP 46 28 RESPONSES TO PROPOSALS ON HOW SOCIETY SHOULD BE INVOLVED WITH DISABLED PERSONS 47 29 PERCENT NOT WORKING WHO SAY THAT THEY WANT TO WORK 48 30 REASONS WHY PEOPLE ARE NOT WORKING AT ALL OR NOT WORKING FULL-TIME 49 31 PERCENT RECEIVING BENEFITS WHO WOULD LOSE BENEFITS IF WORKING FULL-TIME 50 32 REASONS WHY DISABLED PEOPLE'S MOBILITY OR SOCIAL ACTIVITIES ARE LIMITED 51 (CONTINUED) LOUIS HARRIS AND ASSOCIATES TABLES (CONTINUED) Table Page 33 FAMILIARITY WITH AND USE OF MOST COMMON SERVICES FOR DISABLED PEOPLE. . 52 34 PERCENT WHO WOULD CALL AN 800 TELEPHONE NUMBER TO FIND OUT ABOUT SERVICES IN THEIR STATE 53 35 MOST IMPORTANT THING THAT COULD BE DONE TO HELP DISABLED PEOPLE FACE BARRIERS SUCCESSFULLY 54 LOUIS HARRIS AND ASSOCIATES INTRODUCTION This summary provides an overview of the results of Disabled Americans: Self Perceptions--1986. Many findings in the survey do not appear in this summary. The summary includes analyses of the most important and most policy-relevant findings. The full report will be available in March 1986. Defining Disability Past studies of disabled Americans have employed a number of different approaches to define disability. The two most common approaches have been to define disability either as the existence of a limiting health condition which interferes with a person's normal activities or as the existence of a condition which prevents or limits an individual's ability to work. This survey incorporated aspects of both of those approaches, but also includes other criteria: -- A person was defined as disabled if he or she had a disability or health problem that prevented them from participating fully in work, school, or other activities. -- A person was defined as disabled if he or she said that he or she had a physical disability, seeing, hearing, or speaking impairment, an emotional or mental disability, or a learning disability. -- A person was defined as disabled if he or she considered himself or herself to be a disabled person, or if he or she said that other people would consider him or her disabled. LOUIS HARRIS AND ASSOCIATES Using these criteria, the Harris firm found the incidence of disability to be 14% among Americans aged 16 and over. This would place the number of Americans disabled persons in this age group at about 27 million. The Sample The survey is based on 1,000 telephone interviews with a national sample of non-institutionalized disabled persons aged 16 and over, about half of whom were under age 55, and then weighted to the proper proportion in the population. All respondents met at least one of the definitional criteria listed above. When a disabled person was unavailable for an interview, or unable to be interviewed, a proxy was chosen who knows most about that person. About 17% of the interviews were conducted with proxies. All interviews were conducted between November 30, 1985 and December 23, 1985, from the Harris firm's central telephone facility in New York City. Interviews averaged about 30 minutes in length. Measures of Disability The survey included a number of questions which measured types of disability, the extent to which a disability limited the respondent, when the disability began to limit their activities, severity of disability, and whether or not a respondent considered himself disabled. Forty-four percent of the sample said that a physical disability was either their only disability or their most limiting disability. (Physical LOUIS HARRIS AND ASSOCIATES disabilities were defined as nonparalytic orthopedic impairments, neuromotor or neuromuscular disorders, brain disfunction or memory loss, disfigurement, and deformity.) Thirteen percent said their only condition or most limiting condition was a visual impairment, hearing impairment, or speech impairment. Six percent have mental disabilities. Thirty-two percent had other serious health impairments as their only disability or most limiting disability. These included heart disease, respiratory disease, cancer, diabetes, and other major diseases. Thirteen percent of the sample were disabled fro ^ birth to adolescence, 21% were disabled as young adults, 22% were disabled in middle age, and 37% were disabled after age 55. Forty-six percent of the s ample say that their disability prevents them completely from working or keeping house. Thirty-eight percent said that they are limited in the amount or kind of work which they can do. Eight percent said that they are limited in other activities, but not in work. And eight percent said that their disability does not limit them at all. Fourteen percent of the sample described their disability as slight, 31% described it as moderate, 28% described it as somewhat severe, and 24% described it as very severe. And 43% of the live respondents interviewed said that they consider himself or herself a disabled person, while 54% did not. Proxy responses are not included in this figure. The picture which emerges is therefore one of a very heterogeneous group, with people of very different levels of impairment, with very different histories, and with very different experiences of living with their disabilities. LOUIS HARRIS AND ASSOCIATES Notes on Reading the Tables An asterisk (*) on a table signifies a value of less than one-half percent (0.5%). A dash (-) represents a value of zero. Percentages may not always add up to 100% because of computer rounding, multiple answers from respondents, or the elimination of "no answers. " Public Release of the Survey Findings All Louis Harris and Associates surveys are designed to adhere to the code of standards of the Council of American Survey Research Organizations (CASRO) and the code of the National Council of Public Polls (NCPP). Because data from this survey will be released to the public, any release must stipulate that the complete report will also be available, rather than simply an excerpt from the survey findings. Project Responsibility The director of this project at Louis Harris and Associates was Humphrey Taylor, President. The chief analyst was Stuart Leichenko, Research Associate. He worked under the supervision of Michael R. Kagay, Ph.D., Vice President and Division Head. Louis Harris and Associates would like to thank the International Center for the Disabled and the J.M. Foundation for sponsoring this research. We would in particular like to thank Jeremiah Millbank and Jack Brauntuch of the J.M. Foundation, and John Wingate, Nina Hill, Sandy Davis, and Tom Mehnert of I.C.D., and Sandra Perrino and Lex Frieden of the National Council on the LOUIS HARRIS AND ASSOCIATES Handicapped. We are also greatly in debt to the many other people who contributed to the development of the questionnaire. However, responsibility for topics, question wordings, the findings, and for their interpretation rests solely with Louis Harris and Associates. LOUIS HARRIS AND ASSOCIATES -1- I. PERCEPTIONS OF CHANGE FOR THE BETTER FOR DISABLED AMERICANS The survey examined how disabled Americans believe life has changed for them in the past decade, and what role they believe the federal government has played in creating changes for disabled persons. The results confirm that nationwide efforts and the passage of federal laws have made an important difference in the lives of disabled Americans. A. An overwhelming majority of disabled Americans believe that life has improved for disabled persons in the past decade. Seven out of ten disabled persons say that things have gotten somewhat better (47%) or much better (25%) for disabled people during the past 10 years (Table 2). The most severely disabled persons are somewhat less likely to feel that things have improved than are slightly or moderately disabled people. About six out of ten (58%) of those who describe their disability as very severe feel that things have gotten better for them during the past decade. A much larger 80% majority of moderately disabled people and an 83% majority of slightly disabled people feel that things have improved. However, the fact that a substantial majority of even severely disabled people feel that life has improved for disabled people underscores the significance of this finding. B. The survey findings also reveal a powerful endorsement for the role played by the federal government to give better opportunities to disabled persons. A two-thirds (67%) majority of disabled Americans think that LOUIS HARRIS AND ASSOCIATES -2- federal laws passed since the late 1960s to give better opportunities to disabled Americans have helped a great deal or helped somewhat. The strength of this endorsement for a federal program is unsurpassed since the Harris firm began measuring public support for federal programs and laws. It is an encouraging and important confirmation that the federal government has helped, and should continue to help, disabled Americans. C. But it appears that disabled Americans feel that the federal government should go further in its efforts to help disabled Americans. A near consensus feel that anti-discrimination laws that protect minorities should also cover disabled persons. Seventy-five percent of disabled persons believe that anti-discrimination laws should cover them, while only 17% believe that they should not be covered by such laws (Table 4). D. Nearly one-third (31%) of disabled Americans say that they are familiar with Section 504 of the federal Rehabilitation Act of 1973. This is a fairly high level of public familiarity with a specific law. But it is one of several findings in this survey which show that the leaders of the disabled movement have yet to inform the great majority of disabled persons about laws and services designed to assist them in participating fully in society. LOUIS HARRIS AND ASSOCIATES -3- II. WHAT IT MEANS TO BE DISABLED IN AMERICA While life has improved for most disabled people in the past decade, being disabled still means having much less of almost everything in life than most other people in the United States. It means having much less education, and much less money. For the great majority, being disabled means not working, and relying on benefits or someone else for support. Being disabled usually means not getting around and not having a full social life. Disabled people socialize less with friends and family, and are less involved in community activities. Disabled persons go to movies and attend cultural events far less often than the population as a whole. For a majority of disabled persons, having less of all these vital elements of life means that they believe their disabilities have prevented them from reaching their full abilities as a person. They are less satisfied with life than are non-disabled person. However, despite their disadvantaged status, the majority of disabled Americans say that they are satisfied with their lives. Only a minority say that they are dissatisfied with life, a remarkable finding in light of the portrait of hardships revealed in these survey findings. On an individual level, the survey found that being disabled means something different for almost every disabled person. Because the range and effects of disabilities are so broad, the types of problems faced by disabled people also vary greatly. For some, the greatest problems which they LOUIS HARRIS AND ASSOCIATES -4- face are physical: trouble walking, running, or climbing stairs. For other disabled persons, the psychological effects of a disability trouble them most; how they come to see themselves or how they believe other people perceive them. For still others, not being able to steer a car or see well enough to drive may be what troubles them most. Certainly, the inability to work or find a job is a trial faced by the great majority of disabled persons. There are other common problems faced by many disabled persons. But the unifying thread in these findings is the common experience of hardship in one or many aspects of life. Being disabled means a much harder life fraught with many more obstacles than those faced by other Americans. A. Disabled Americans have far less education as a group than do non-disabled Americans. Forty percent of all disabled persons aged 16 and over did not finish high school. This proportion is nearly three times higher than in the non-disabled population, where only 15% of adults aged 18 and over have less than a high school education. The difference in the proportions of disabled and non-disabled persons who have gone on to college are also dramatic. Only twenty-nine percent of disabled persons say they have at least some college education, compared to 48% of non-disabled persons (Table 6) -- and many of the disabled were educated before the onset of their disability. The younger the onset of disability, the lower the level of education likely to be achieved. B. Disabled Americans are much poorer than are non-disabled Americans. Half of all disabled persons (50%) aged 16 and over have a household income LOUIS HARRIS AND ASSOCIATES -5- for 1984 of $15,000 or less. Among non-disabled Americans, only 25% have household incomes in this bracket (Table 6). The same contrast is evident when comparing the proportion of each group whose household income is at least $35,000. Only 12% of disabled persons fall into this bracket, compared to 27% of non-disabled persons. These differences are due in part to the disturbing rate of poverty among older disabled persons. Fully one in three (32%) of disabled persons aged 65 and over report a household income of $7,500 a year or less. Six out of ten elderly disabled persons report household income of $15,000 or less. The more severe the disability, the greater the poverty. As Table 7 shows, the more severely disabled persons are even poorer as a group than slight or moderately disabled persons, or those less limited in their activities. C. A 56% majority of disabled Americans say that their disability prevents them from getting around, attending cultural or sports events, or socializing with friends outside their home as much as they would like (Table 8). This figure rises to 67% among somewhat severely disabled persons, and to 79% among very severely disabled persons. In contrast, only 19% of slightly disabled persons say that their disability limits their mobility or social life. LOUIS HARRIS AND ASSOCIATES -6- D. The result of these limitations is that disabled people -- especially severely disabled people -- socialize less with friends and family than do non-disabled persons. However, seventy-five percent of all disabled persons say that they socialize at least once a week. This figure drops to 67% for very severely disabled persons (Table 9). On this measure, an 18-point gap separates very severely disabled and non-disabled persons. Eighty-five percent of non-disabled persons say that they socialize at least once a week. And of course, they do so more frequently than do disabled persons. E. Disabled persons go to the movies and to cultural events far less often than does the adult population as a whole. Nearly two-thirds (64%) of all disabled persons never went to a movie in the past year. When the Harris survey asked all adults how often they went to the movies, only 22% said that they never went during the past year (Table 10). The differences are equally large when comparing how often disabled and non-disabled people go to the theater or to live popular music perfor- mances. Three-fourths of all disabled persons did not go to a live theater performance or live popular music performance during the past year. Among all adults, about four out of ten said that they did not do SO. Since the proportion of disabled and non-disabled persons living in or around metropolitan areas is about the same, it appears that a lack of money, mobility, transportation and the difficulties of coping with a LOUIS HARRIS AND ASSOCIATES -7- crowded environment; and perhaps under-education among disabled persons, are some of the causes of these differences. F. Disabled Americans are also less involved in community life than are non-disabled Americans. Six out of ten non-disabled persons say that they are somewhat or very active in community groups such as religious groups; volunteer groups, or recreation groups. Only four out of ten disabled persons are active in these kinds of groups (Table 11). Only about one in ten severely disabled persons say that they are at least somewhat active in community life. G. Not surprisingly, disabled persons express less satisfaction with life than do non-disabled persons. Sixty-nine percent of disabled persons say that they are somewhat or very satisfied with life, compared to 90% of non-disabled persons (Table 12). Nevertheless, it is at the least encouraging that only one in four disabled persons express dissatisfaction with life, and that a larger majority are satisfied. But dissatisfaction with life rises to 29% among somewhat severely disabled persons, and to more than one of every three very severely disabled persons (37%). H. Perhaps the most telling measure of how disability affects people is that a 57% majority of disabled persons believe that their disability has pre- vented them from reaching their full abilities as a person. The majority who believe this rises to 72% among severely disabled persons (Table 14). LOUIS HARRIS AND ASSOCIATES -8- Working as a Disabled American For most Americans, striving to reach one's abilities amounts to working to achieve career and financial goals. Our society expects people to work, and the preeminent criterion by which we judge and measure a person's worthis the job that he or she does. Americans below retirement age who do not work live apart from the mainstream of life in this country. Unemployment excludes them from the common experiences known to most Americans. Not working is perhaps the truest definition of what it means to be disabled in this country. No other demographic group under 65 of any size has such a small proportion working. Young blacks, for example, a group often singled out because of their very high level of unemployment, are much more likely to be working than are disabled Americans. A. Two-thirds of all disabled Americans between age 16 and 64 are not working. Only one in four work full-time, and another 10% work part-time (Table 15). Non-working disabled persons describe their employment status as follows: four percent are unemployed and actively looking for work; another seven percent are unemployed but not looking for work; 29% say they are unable to work because of their disability; nine percent are retired; nine percent keep house, six percent are full-time students or trainees, including those in vocational rehabilitation programs; and 1 percent say that they do volunteer service full- or part-time. B. Differences between the employment levels of men and women are modest. Both working and non-working disabled persons below age. 65 are divided LOUIS HARRIS AND ASSOCIATES -9- about evenly between men and women. A small majority of those working are men (54%), and a small majority of those not working are women (53%). But the similarities between the two groups -- disabled people who work and those who don't -- end there (Table 16). Working disabled persons are younger and, far wealthier; many more have at least some college education, and far fewer never finished high school than have non-working disabled persons. For example, over twice as many working disabled persons report a 1984 household income of $25,000 or more (44%) as do non-working disabled persons (21%) never finished high school (22%) as non-working disabled persons (43%). C. More working disabled persons became disabled earlier in life than did non-working persons. This suggests that those who are disabled late in life have more difficulty adjusting to, and overcoming, their disabilities. As one might also expect, working disabled persons are less limited in their activities and less severely disabled than are non-working disabled persons (Table 17). -- A 64% majority of working disabled persons described their disability as slight or moderate. In contrast, a 61% majority of non-working disabled persons describe their disability as somewhat or very severe. D. Another way of looking at disabled persons' work status is by the proportion who are in or out of the labor force, as defined by the Census Bureau. The result offers another significant measure of isolation from the mainstream; and certainly a more revealing measure of isolation than the unemployment rate among disabled persons, which differs little from the national rate. LOUIS HARRIS AND ASSOCIATES -10- Sixty-two percent of disabled persons aged 16 to 64 are not in the labor force; that is, they are not working full- or part-time and are not actively looking for work in the past month (Table 18). These people must therefore depend on insurance or benefits checks for support, or the support of someone else. About six out of ten people who are not in the labor force receive some sort of income support from either insurance payments or government benefit programs. (Of those receiving benefits, a 60% majority say that they are the main wage earner in, or financial support of their household, another indication of the financial pressures affecting disabled people.) The remaining disabled persons not in the labor force (40%) say that they receive no benefits from either an insurance company or from government programs. This group is comprised mainly of women (72%). As a group, those not receiving benefits tend to have more money and more education than those who receive benefits (Table 19). (One reason is that a large majority (69%) of those not receiving benefits say that someone else is the main wage earner in their household.) E. The more severe the disability, the more likely it is that a person is receiving benefits (Table 20). A far greater proportion of those receiving benefits (72%) say that they are somewhat or very severely disabled than do those in the group not receiving benefits (46%). Overall, disabled persons receiving benefits are the most disadvantaged group among all disabled persons. They have less education and less money, LOUIS HARRIS AND ASSOCIATES -11- and are more severely disabled. In the face of these extreme disadvantages, a majority of those receiving benefits must support also themselves. F. There are profound differences between the self-perceptions of disabled people who work and those who do not work. A 59% majority of non-working disabled persons aged 16 to 64 say that they consider themselves disabled or handicapped people. Only one in four (26%) working disabled persons considers himself disabled. G. Working disabled persons also are more satisfied with life than are non-working disabled persons. Eighty percent of working disabled persons say that they are at least somewhat satisfied with life, compared to 62% of non-working disabled persons (Table 21). H. One out of four (25%) working-age disabled persons say that they have encountered job discrimination because of their disability. I. But 35% of disabled persons who work now or who have worked full-time while disabled say that their employer made some sort of accommodation for their disability. This finding suggests that some disabled persons currently working are able to work because their employer adopted a policy or provided some help that allowed them to continue working. LOUIS HARRIS AND ASSOCIATES -12- III. SIGNS OF AN EMERGING GROUP CONSCIOUSNESS AMONG DISABLED AMERICANS The survey included two attitudinal questions never before asked of a national sample of disabled Americans: the extent to which they feel a sense of common identity with other disabled Americans; and whether or not they feel that disabled persons are a minority group in the same sense as blacks and Hispanics. The results show clear signs of an emerging group consciousness among disabled Americans. Many other findings in the survey indicate that most disabled persons view their disability as their own problem. But these attitudinal data suggest that the common experience of not working and being limited in physical and social activities affect the way disabled persons relate to other disabled persons, and how they perceive all disabled people. A. An overwhelming majority of 74% of all disabled Americans say that they feel at least some sense of common identity with other disabled people. Four out of ten disabled persons say that they feel a somewhat or very strong sense of common identity with other disabled people (Table 26). Surprisingly, the strength of this identification varies little among disabled people of all ages, those who have been disabled all or only part of their lives, and among those who are moderately or severely disabled. Clearly, this feeling is strong and widespread among most disabled Americans. B. A 45% plurality of all disabled Americans feels that disabled persons are a minority group in the same sense as are blacks and Hispanics. Forty-two LOUIS HARRIS AND ASSOCIATES -13- percent feel that disabled persons are not a minority group in this sense, and 12% said that they were not sure or refused to answer the question. However, majorities of younger disabled persons and those disabled from birth to adolescence (in large part the same people) believe that disabled persons are a minority group. For example, 56% of persons whose disability began to limit them from birth to adolescence say that disabled persons are a minority group, compared to only 43% of those disabled after age 55. Somewhat fewer slightly disabled persons (40%) feel that disabled persons are a minority group than do moderately (48%) or severely disabled persons (46%). C. When it comes to how disabled persons should be treated under the law, a near consensus emerges. Three out of every four (75%) disabled persons believe that civil rights laws that protect minorities against discrimination should also protect them. ONly 17% disagree. LOUIS HARRIS AND ASSOCIATES -14- IV. BRINGING DISABLED AMERICANS INTO THE MAINSTREAM OF AMERICAN LIFE The survey included a number of questions which identify barriers keeping disabled persons from working, participating fully in other aspects of life, and getting the services which they need. Policymakers should find these results useful as guides in their efforts to effect policies which will bring more disabled Americans into the mainstream of American life. The survey also asked a series of questions to learn how disabled persons think that government and society should, or should not, work to help disabled Americans. A. Overwhelming majorities of all disabled persons think that government and the private sector should (1) increase efforts to educate, train, and rehabilitate disabled persons so that they can join the workforce; and (2) increase efforts to provide equipment and adapt workplaces so that disabled persons can work better and communicate more easily with other workers (Table 28). -- Ninety-five percent of disabled persons think that there should be increased efforts to educate, train, and rehabilitate disabled persons so that they can work. -- Ninety-four percent of disabled persons say that there should be more special equipment in offices and factories, SO that disabled persons can work more easily and communicate better with other workers. B. Much more surprisingly, almost eight out of ten disabled persons (78%) also feel that there should be less government spending for disabled people who are able to work but don't work. (The survey did not seek to learn who is LOUIS HARRIS AND ASSOCIATES -15- able to work but does not. But two-thirds (66%) of disabled persons below age 65 who do not work, say that they want to work (Table 29). ) C. However, large majorities of disabled persons also feel that society must take care of disabled persons who cannot work, so that they are able to live comfortably without working. Eighty-nine percent of disabled persons approve at least somewhat of increased government and private benefits for disabled persons who cannot work. There also appears to be some ambivalence about society bringing pressure to bear on disabled persons to go out and work, regardless of their health. A 54% majority of disabled persons approve at least somewhat of society taking better care of all disabled persons, so that they are not "forced to go out and work," while 43% disapprove strongly or somewhat that society should take this direction in its policies towards disabled persons. But clearly some of the answers we got were contradictions, depending on the wording and the emphasis of the questions. On balance, disabled persons strongly support efforts by government and employers to find ways to encourage many more disabled persons to join the mainstream of working Americans, while also doing more for those who are genuinely unable to work. D. The survey also identified a number of important reasons why many disabled persons are not working at all, or only working part-time. Some of these barriers to work cannot be addressed effectively by policymakers, such as when a person is so severely limited by a disability that they cannot do LOUIS HARRIS AND ASSOCIATES -16- any work at all. But in a number of areas there appears to be much room for changes which will bring disabled persons into the workplace (Table 30). -- Forty-seven percent of disabled persons who are not working full-time and who are under 65 say that employers won't recognize that they are capable of doing a job because of their disability. -- Thirty-eight percent of these disabled persons say that under-education and a lack of marketable skills are important reasons why they are not working. -- About three out of ten (28%) say that a lack of accessible or affordable transportation is an important reason why they are not working. -- And two out of ten (23%) disabled persons say that a lack of needed equipment or devices which will help them work better or communicate more easily is an important reason why they are not working. One issue raised frequently in discussions of barriers which prevent disabled persons from working is fear of a loss of key benefits, such as government health insurance. The survey findings show that 70% of disabled persons who currently receive benefits would lose some benefits if they started working full-time (Table 31). But a much lower 18% of disabled persons not working at all, or currently working part-time, say that fear of a loss of benefits is an important reason why they are not working. It seem that this fear is not one of the most important reasons why more disabled persons are not working. The need for continued medical treatment, current employer attitudes, lack of education and skills, and transportation problems bar many more disabled persons from working. LOUIS HARRIS AND ASSOCIATES -17- E. The most important barrier which prevents disabled people from partici- pating fully in social and cultural activities, and having unlimited mobility, is the fear that their disability would cause them to get hurt, sick or victimized by crime. Fifty-nine percent of disabled persons whose activities are limited say that fear is an important reason why this is so (Table 32). F. A 56% majority of disabled persons who have trouble getting around also say that not having someone to help them get around limits what they are able to do. G. Half (49%) of those whose mobility is limited say that inability to use public transportation, or a lack of special transportation or someone to drive them is an important barrier to a full social life and full mobility for them. H. Four out of ten disabled persons whose mobility is limited say that public buildings and public bathrooms which they can't get into or use were important reasons why they are prevented from getting around as much as they would like to. I. Four out of ten disabled persons whose mobility is limited say that self-consciousness about their disability prevents them from getting around or socializing as much as they would like. J. Most disabled persons are not familiar with some of the most common services available to disabled persons, such as medical and rehabilitation LOUIS HARRIS AND ASSOCIATES -18- services. However, majorities of disabled persons are familiar with vocational rehabilitation (60%) and transportation services for disabled persons (58%). These findings strongly suggest that there is much room for improvement in efforts to inform disabled people about key services available to them. As Table 33 shows, no more than 13% of disabled persons have used these services, which are generally available throughout the country. K. One way to provide information about services to disabled persons would be to fund an 800 number which people could call to find out about services available to them in their state. Three-fourths (76%) of all disabled persons say that they would be very likely (52%) or somewhat likely (24%) to use an 800, free of charge, to find out about services available to disabled persons in their state (Table 34). LOUIS HARRIS AND ASSOCIATES -19- Table 1 A PROFILE OF THE SAMPLE OF 1,000 DISABLED AMERICANS BY KEY MEASURES OF DISABILITY % TYPE OF DISABILITY* PHYSICAL DISABILITY 44 Nonparalytic orthopedic impairments 29 Neuromotor/neuromuscular disorders 8 Brain disfunction/memory loss/senility 6 Other physical disabilities 2 SENSORY IMPAIRMENT 13 Blind/visual impairment 7 Hearing, speech, language 6 MENTAL DISABILITY 6 Mental retardation/D.D. 3 Mental illness 3 OTHER SERIOUS HEALTH IMPAIRMENTS 32 Heart disease/blood or blood vessel disease 16 Respiratory or pulmonary disease 5 Cancer/diabetes/kidney disease/other disease 11 NOT SURE/REFUSED 4 MULTIPLY DISABLED 32 NOT MULTIPLY DISABLED 68 ONSET OF LIMITATION Birth to adolescence 13 Young adult 21 Middle age 22 After age 55 37 LIMITATION OF ACTIVITIES Cannot work, keep house, etc. 46 Limited in amount or kind of work 38 Other activities limited 8 Not limited at all 7 SEVERITY OF DISABILITY Slight 14 Moderate 31 Somewhat severe 28 Very severe 24 RESPONDENT CONSIDERS SELF-DISABLED** Yes 43 No 54 Not sure/refused 3 *Most limiting condition or single condition **Based on 828 designated respondents only LOUIS HARRIS AND ASSOCIATES -20- Q.13 Table 2 PERCEPTIONS OF HOW THINGS HAVE CHANGED FOR DISABLED PEOPLE IN THE PAST DECADE Q.: How do you think things have changed in general for disabled Americans in the past 10 years -- have they gotten much better, somewhat better, somewhat worse, much worse, or haven't they changed at all in the past 10 years? No It Much Somewhat Somewhat Much Change Depends Not Sure Base Better Better Worse Worse at All (Vol.) Refused Total 1,000 % 25 47 6 6 9 1 6 Age 16-34 years 190 % 26 55 4 2 9 1 3 35-44 years 136 % 21 56 7 5 7 1 3 4 45-54 years 145 % 25 46 8 8 9 1 55-64 years 232 % 25 47 6. 5 11 1 5 65 and over 296 % 27 39 4 7 8 2 10 Onset of Limitation Birth-adolescence 139 % 28 57 6 - 8 - 2 Young adult 226 % 24 50 5 6 11 2 2 Middle age 216 % 23 45 7 9 11 - 6 After age 55 336 % 27 43 7 6 7 2 9 Limitation of Activities Cannot work, keeps house, etc. 455 % 22 45 6 8 10 1 7 Limited in amount or kind of work 381 % 29 49 7 3 8 1 4 Other activities limited 86 % 28 48 6 2 9 1 5 Not limited at all 77 % 26 48 2 5 11 I 7 Severity of Disability Slight 144 % 33 50 4 2 8 1 3 Moderate 310 % 30 50 6 3 5 1 6 Somewhat severe 284 % 22 50 6 5 11 1 5 Very severe 237 % 19 39 9 12 12 1 8 LOUIS HARRIS AND ASSOCIATES -21- Q.14c Table 3 PERCEPTIONS OF HOW FEDERAL LAWS HAVE HELPED DISABLED PEOPLE Q.: Since the late 1960's, the federal government has passed laws to give better opportunities to disabled and handicapped Americans. How much do you think these laws have helped disabled Americans -- have they helped a great deal, somewhat, not too much, or hardly helped at all? Helped Not Hardly a Great Too Helped Not Sure / Base Deal Somewhat Much at All Refused Total 1,000 % 22 46 14 10 8 Age 16-34 years 190 % 15 48 19 12 5 35-44 years 136 % 14 52 13 17 4 45-54 years 145 % 17 45 19 9 11 55-64 years 232 % 24 47 15 6 7 65 and over 296 % 29 42 9 9 11 Onset of Limitation Birth-adolescence 139 % 21 48 19 6 7 Young adult 226 % 14 46 14 19 7 Middle age 216 % 19 46 18 8 8 After age 55 336 % 29 43 11 8 9 Limitation of Activities Cannot work, keeps house, etc. 455 % 23 42 14 12 8 Limited in amount or kind of work 381 % 22 48 14 _9 7 Other activities limited 86 % 20 49 15 6 10 Not limited at all 77 % 17 58 14 4 7 Severity of Disability Slight 144 % 25 49 14 6 7 Moderate 310 % 21 51 12 8 8 Somewhat severe 284 % 21 47 15 10 8 Very severe 237 % 22 39 16 14 8 LOUIS HARRIS AND ASSOCIATES -22- Q.14b Table 4 WHETHER OR NOT ANTI-DISCRIMINATION LAWS SHOULD COVER DISABLED PEOPLE Q.: Do you think that the civil rights laws that cover minorities against discrimination should also cover disabled persons, or not? Should Should Not Not Sure/ Base Be Covered Be Covered Refused Total 1,000 % 75 17 9 Age 16-34 years 190 % 82 14 4 35-44 years 136 % 83 11 6 45-54 years 145 % 77 17 6 55-64 years 232 % 72 21 8 65 and over 296 % 68 18 14 Onset of Limitation Birth-adolescence 139 % 86 10 4 Young adult 226 % 77 17 5 20 7 Middle age 216 % 73 After age 55 336 % 71 16 13 Limitation of Activities Cannot work, keep house, etc. 455 % 75 15 10 Limited in amount or kind of work 381 % 73 19 7 Other activities limited 86 % 79 12 10 5 Not limited at all 77 % 72 23 Severity of Disability Slight 144 % 74 19 7 Moderate 310 % 78 15 7 Somewhat severe 284 % 72 19 9 Very severe 237 % 75 15 10 LOUIS HARRIS AND ASSOCIATES -23- Q.15a Table 5 FAMILIARITY WITH SECTION 504 Q.: In 1973, the federal government passed the Rehabilitation Act. One section of that act, Section 504, prohibits any program, business or activity that gets federal money from discriminating against people who have handicaps. Before this interview, how familiar would you say you were with this law -- very familiar, somewhat familiar, not too familiar, or not familiar at all? Not Very Somewhat Not Too Familiar Not Sure/ Base Familiar Familiar Familiar at All Refused Total 1,000 % 8 23 29 39 1 - Age 16-34 years 190 % - 10 25 27 38 136 % 13 30 20 38 - 35-44 years 45-54 years 145 % 6 23 27 44 - 55-64 years 232 % 8 24 31 36 * 65 and over 296 % 6 20 34 39 2 Onset of Limitation Birth-adolescence 139 % 10 33 29 28 - Young adult 226 % 14 24 20 43 2 2 Middle age 216 % 5 21 31 41 After age 55 336 % 6 22 32 39 1 Limitation of Activities Cannot work, keeps house, etc. 455 % 8 20 31 41 1 Limited in amount or kind of work 381 % 9 27 26 37 1 Other activities limited 86 % 8 26 30 35 1 I Not limited at all 77 % 4 21 36 39 / Severity of Disability Slight 144 % 7 30 25 39 I Moderate 310 % 9 22 32 36 2 Somewhat severe 284 % 7 25 30 38 - Very severe 237 % 9 20 29 42 * LOUIS HARRIS AND ASSOCIATES -24- Table 6 A COMPARISON BETWEEN DISABLED AND NON-DISABLED PERSONS ON KEY DEMOGRAPHIC VARIABLES Disabled Non-Disabled Persons Persons Sex 44 46 Male 56 54 Female Region 23 24 East 25 25 Midwest 32 31 South 20 20 West Area 31 31 Central City 42 46 Other Urban Areas 27 23 Outside Metropolitan Areas Age 7 16-24 years 9 25-34 years 12 35-44 years 13 45-54 years 25 55-64 years 20 65-74 years 13 75 and over Education 40 15 Less than high school 31 37 High school graduate 15 25 Some college 14 23 4-year college graduate or more Household Income 25 12 $7,500 or less 25 17 $7,501 to $15,000 $15,001 to $25,000 16 21 $25,001 to $35,000 12 16 7 15 $35,001 to $50,000 5 12 $50,001 or more Race 80 81 White 10 11 Black 6 6 Hispanic Marital Status Married/Living Together 56 58 ** 13 22 Single Divorced/Widowed/Separated 31 20 *Based on a 1985 national sample of 1,064 adults aged 18 and over who say that they don't have a limiting disability or health problem. **1984 national figures for entire adult population. "Living together" was not offered as a response for this question. LOUIS HARRIS AND ASSOCIATES -25- Q.F3 Table 7 HOUSEHOLD INCOME BY KEY MEASURES OF DISABILITY Q.: Which of the following income categories best describes the total 1984 income of all wage earners in your household, including income from benefits and insurance payments? Was it (READ LIST)? $7,500 $50,001 or $7,501- $15,001- $25,001- $35,001- or Not Sure/ Base Less $15,000 $25,000 $35,000 $50,000 More Refused Total 1,000 % 25 25 16 12 7 5 10 Age 16-34 years 190 % 15 19 22 19 10 8 7 35-44 years 136 % 18 22 21 12 14 8 4 45-54 years 145 % 26 20 14 17 10 7 5 55-64 years 232 % 28 28 17 9 6 4 7 65 and over 296 % 32 29 12 8 3 1 16 Onset of Limitation Birth-adolescence 139 % 22 13 21 18 9 10 7 Young adult 226 % 22 23 16 13 10 7 9 Middle age 216 % 28 24 17 10 8 3 10 After age 55 336 % 28 32 13 9 3 2 13 Limitation of Activities Cannot work, keeps house, etc. 455 % 35 27 13 8 6 1 10 Limited in amount or kind of work 381 % 19 24 19 14 8 5 11 Other activities limited 86 % 12 21 19 14 9 16 8 Not limited at all 77 % 18 20 18 18 13 9 5 Severity of Disability Slight 144 % 15 19 24 14 10 11 7 Moderate 310 % 21 25 14 14 9 4 12 Somewhat severe 284 % 26 26 19 12 8 4 6 Very severe 237 % 35 28 11 8 3 2 13 LOUIS HARRIS AND ASSOCIATES -26- Q.17 Table 8 PERCENTAGE WHO SAY DISABILITY LIMITS THEIR MOBILITY OR SOCIAL ACTIVITIES Q.: Does your disability prevent you in any way from getting around, attending cultural or sports events, or socializing with friends outside your home as much as you would like to, or not? Yes, Does Not Not Sure/ Base Prevents Prevent Refused Total 1,000 % 56 43 1 - Age 16-34 years 190 % 39 60 1 % 53 47 - 35-44 years 136 45-54 years 145 % 63 36 1 232 % 56 44 * 55-64 years 65 and over 296 % 65 34 1 Onset of Limitation Birth-adolescence 139 % 47 51 1 - Young adult 226 % 59 41 Middle age 216 % 60 39 1 After age 55 336 % 66 33 1 Limitation of Activities Cannot work, keeps house, etc. 455 % 73 26 1 Limited in amount or kind of work 381 % 52 48 * Other activities 86 % 29 71 - limited Not limited at all 77 % 5 95 - Severity of Disability Slight 144 % 19 81 - Moderate 310 % 45 55 * Somewhat severe 284 % 67 31 1 237 % 79 20 * Very severe LOUIS HARRIS AND ASSOCIATES -27- Q.19 Table 9 A COMPARISON BETWEEN DISABLED AND NON-DISABLED PERSONS: HOW OFTEN THEY SOCIALIZE WITH FRIENDS AND FAMILY Q.: About how often do you socialize with close friends, relatives, or neighbors? At Least Less Than Not Sure/ Base Once a Week Once a Week Refused Non-Disabled Persons* 1,064 % 85 15 * Total Disabled Persons 1,000 % 25 * 75 Age 16-34 years 190 % 79 20 1 28 1 35-44 years 136 % 71 45-54 years 145 % 69 32 - - 55-64 years 232 % 75 25 65 and over 296 % 78 22 * Onset of Limitation Birth-adolescence 139 % 77 23 - Young adult 226 % 75 25 * Middle age 216 % 70 29 * After age 55 336 % 76 24 * Limitation of Activities Cannot work, keeps house, etc. 455 % 69 31 * Limited in amount or kind of work 381 % 79 20 1 Other activities limited 86 % 83 17 - 20 - Not limited at all 77 % 81 Severity of Disability Slight 144 % 78 22 - Moderate 310 % 80 19 * Somewhat severe 284 % 75 24 * 237 % 67 32 I Very severe *Based on a 1985 national sample of adults aged 18 and over who say that they don't have a limiting disability or health problem. LOUIS HARRIS AND ASSOCIATES -28- Table 10 ATTENDANCE OF MOVIES, THEATER. AND LIVE MUSIC PERFORMANCES: DISABLED ADULTS VS. ALL ADULTS More Than 2-3 4-5 6-10 11-20 20 Not None Once Times Times Times Times Times Sure Movie attendance in past 12 months Disabled persons % 64 8 13 5 5 3 2 * All adults % 22 7 19 11 15 14 12 * Attendance of live theater performances in past 12 months Disabled persons % 77 8 9 3 2 1 * * All adults % 40 8 26 11 10 4 1 1 Attendance of live popular music performance in past 12 months Disabled persons % 77 8 8 4 1 1 * * All adults % 47 10 23 8 7 3 1 * LOUIS HARRIS AND ASSOCIATES -29- Table 11 ACTIVISM IN COMMUNITY GROUPS: A COMPARISON BETWEEN DISABLED AND NON-DISABLED PERSONS Q.20: Are you very active, somewhat active, or not active in any community group such as a religious group, volunteer group, or recreation group? Very Somewhat Not Not Sure/ Base Active Active Active Refused Non-Disabled Persons* 1,064 % 28 32 40 * Total Disabled Persons 1,000 % 15 21 64 * - Age 16-34 years 190 % 14 26 60 - 136 % 18 24 58 - 35-44 years 45-54 145 % 16 21 63 - 55-64 232 % 16 19 66 - 65 and over 296 % 14 19 67 * Onset of Limitation Birth-adolescence 139 % 20 23 57 - 226 % 15 23 62 - Young adult Middle age 216 % 13 21 67 - After age 55 336 % 13 19 68 * Limitation of Activities Cannot work, keep, house, etc. 455 % 8 16 76 * Limited in amount or kind of work 381 % 21 27 52 - Other Activities Limited 86 % 19 19 62 - 21 54 - Not limited at all 77 % 25 Severity of Disability Slight 144 % 25 29 46 - Moderate 310 % 17 24 59 - Somewhat Severe 284 % 13 21 66 - Very Severe 237 % 9 12 78 * *Based on a 1985 national sample of adults aged 18 and over who say that they don't t have a limiting disability or health problem. LOUIS HARRIS AND ASSOCIATES -30- Table 12 SATISFACTION WITH LIFE: A COMPARISON BETWEEN DISABLED AND NON-DISABLED PERSONS 0.9: How satisfed are you with life in general -- very satisfied, somewhat satisfied, neither satisfied nor dissatisfied, somewhat dissatisfied, or very dis- satisfied? Neither Satisfied Somewhat Very Somewhat Nor Dis- Dis- Very Dis- Not Sure/ Base Satisfied Satisfied Satisfied Satisfied Satisfied Refused Non-disabled persons * 1,064 % 50 40 3 5 1 1 Total disabled persons 1,000 % 39 30 3 16 8 3 Age 16-34 years 190 % 35 42 4 12 5 1 35-44 years 136 % 38 26 4 17 15 - 45-54 years 145 % 28 32 4 22 12 2 55-64 years 232 % 43 25 2 20 8 3 65 and over 296 % 43 30 4 11 6 Onset of Limitation Birth-adolescence 139 % 40 38 2 8 10 2 Young adult 226 % 32 33 6 18 9 1 Middle age 216 % 39 26 3 22 7 3 After age 55 336 % 38 29 3 16 8 6 Limitation of Activities Cannot works keep house, etc. 455 % 29 30 3 21 12 4 Limited in amount or kind of work 381 % 43 31 3 14 6 3 Other activities 86 % 52 29 6 7 2 4 limited Not limited at all 77 % 62 29 1 5 3 - Severity of Disability Slight 144 % 55 31 1 11 2 2 Moderate 310 % 47 33 4 10 3 2 Somewhat severe 284 % 31 33 4 23 6 3 Very severe 237 % 29 25 3 16 21 7 Based on a 1985 national sample of adults aged 18 and over who say that they don't have a limiting disability or health problem. LOUIS HARRIS AND ASSOCIATES -31- Table 13 MOST DIFFICULT BARRIER FACED IN CONNECTION WITH DISABILITY (Base: 1,000) Q.89: What is the most difficult barrier that you have faced in connection with your disability or health problem over the years? What other barriers have you faced? Most Other Difficult Barriers Barrier Faced * * Lack of communication with people 2 1% Unable to read/write * * Lack of education * 1% Stress/Anxiety * * Loss of friends * Isolation/loneliness/alienation 1% Equal consideration from employer/job discrimination * 1% * - Built environment inaccessible * * Discrimination by insurers * 1% Sex life limited * - Inability to plan future/accomplish goals * - Lack of motivation/use disability as excuse * - Unable to get rehabilitation * * Not treated as an equal Unable to get treatment/medical care needed * * * * Government policy towards disabled * Unable to work due to lack of transportation - 6% 8% Any other mentions Don't know/no answer 4% - No barriers faced 8% LOUIS HARRIS AND ASSOCIATES -32- Table 13 (Continued) MOST DIFFICULT BARRIER FACED IN CONNECTION WITH DISABILITY (Base: 1,000) Q.89: What is the most difficult barrier that you have faced in connection with your disability or health problem over the years? What other barriers have you faced? Most Other Difficult Barriers Barrier Faced Limited/lack of mobility 10% 4% Unable to walk/stand/run/climbi stairs 10% 4% Unable to work because of disability 7% 5% All aspects of life limited 4% 3% 4% 3% Pain Hearing problems/trouble hearing in groups 4% 1% Unable to do housework 3% 3% Need to depend on others/lack of independence 3% 3% People's behavior towards me/reaction towards me 3% 1% Unable to participate in sports 3% 2% Can't see/can't see well enough to drive 2% 2% Lack of strength/energy 2% 2% Accepting oneself as disabled/accepting one's limitations/coming to terms with disability 2% 1% Financial problems/lack of financial security 2% 2% Unable to drive 2% 1% Can't find a job 2% 1% Social activities/social life limited 2% 1% Breathing difficulties/problems 2% 1% Speech difficulties/people have trouble understanding speech 2% 1% Surgery/recovering from surgery 1% 1% Depression 1% 1% Unable to lift/carry 1% 2% Problems with family/family attitudes 1% * Unable to get a better job 1% * Lack of confidence/feeling of inadequacy 1% * Taking medication 1% 1% Problems with concentration/memory 1% * Unable to use hands 1% 1% Going to hospital/doctor often 1% * 1% * Job insecurity Weather conditions * 1% LOUIS HARRIS AND ASSOCIATES -33- Q.87 Table 14 PERCENTAGE WHO FEEL DISABILITY HAS PREVENTED THEM FROM REACHING THEIR POTENTIAL IN LIFE Q.: Do you feel that your disability or health problem has in any way prevented you from reaching what you feel are your full abilities as a person, or not? Has Has Not Not Sure/ Base Prevented Prevented Refused Total 1,000 % 57 40 2 Age 16-34 years 190 % 50 46 4 - 35-44 years 136 % 60 40 45-54 years 145 % 65 34 1 55-64 years 232 % 61 36 3 65 and over 296 % 54 43 3 Onset of Limitation Birth-adolescence 139 % 56 40 4 Young adult 226 % 64 35 1 Middle age 216 % 63 36 2 After age 55 336 % 58 40 3 Limitation of Activities Cannot work, keeps house, etc. 455 % 69 28 3 Limited in amount or kind of work 381 % 56 43 2 Other activities limited 86 % 30 67 2 Not limited at all 77 % 22 78 - Severity of Disability Slight 144 % 29 69 2 Moderate 310 % 52 45 2 Somewhat severe 284 % 62 36 1 Very severe 237 % 72 25 4 LOUIS HARRIS AND ASSOCIATES -34- Table 15 EMPLOYMENT STATUS OF WORKING AGE DISABLED PERSONS (Base: 703 respondents aged 16-64) Q.23: Which of the following categories best describes your current employment situation? % Working 33 Full-time 24 Part-time 10 Not Working 66 Unemployed and looking for work 4 Unemployed but not looking 7 Unable to work because of disability/ health problem 29 Retired 9 Keeping house 9 Full-time student/trainee/or in vocational rehabilitation 6 Full- or part-time volunteer service 1 Not Sure/Refused 1 LOUIS HARRIS AND ASSOCIATES -35- Table 16 A COMPARISON BETWEEN WORKING AND NON-WORKING DISABLED PERSONS ON KEY DEMOGRAPHIC VARIABLES Working Non-Working Disabled Disabled Persons Persons Base 244 454 % % Age 16-24 years 9 12 25-34 years 23 9 35-44 years 30 12 45-54 years 18 20 55-64 years 19 47 Income $7,500 or less 9 29 $7,501 to $15,000 20 25 $15,001 to $25,000 21 17 $25,001 to $35,000 20 10 $35,001 to $50,000 13 7 $50,001 or more 11 4 Education Less than high school 22 43 High school graduate 34 34 Some college 17 15 4-year college graduate or more 27 7 Marital Status Married/living together 70 56 Single 16 19 Divorced/widowed/separated 14 25 Sex Male 54 47 Female 46 53 LOUIS HARRIS AND ASSOCIATES -36- Table 17 A COMPARISON BETWEEN WORKING AND NON-WORKING DISABLED PERSONS ON KEY MEASURES OF DISABILITY (Base: Those aged 16-64) Working Non-Working Disabled Disabled Persons Persons 244 454 Base % % Onset of Limitation Birth-adolescence 20 16 41 22 Young adult 18 31 Middle age 7 23 After age 55 Not limited at all 12 7 Limitation of Activities Cannot work, keep house, etc. 15 58 Limited in amount or kind of work 57 29 Other activities limited 16 6 Not limited at all 12 7 Severity of Disability 29 8 Slight 35 29 Moderate 27 30 Somewhat severe 7 31 Very severe LOUIS HARRIS AND ASSOCIATES -37- Table 18 PERCENT OF WORKING-AGE DISABLED PERSONS IN OR OUT OF THE LABOR FORCE (Base: 703 respondents aged 16-64) % In Labor Force * 38 Out of Labor Force * 62 Receiving government benefits or insurance payments 36 Not receiving benefits or payments 24 Not sure if receiving benefits or 2 payments *Defined as working full-time, working part-time, or unemployed and looking for work in past month. **Defined as unemployed and not looking for work, those unable to work because of disability, retired, housekeeping, students or trainees, and volunteer workers. LOUIS HARRIS AND ASSOCIATES -38- Table 19 A COMPARISON BETWEEN THOSE IN THE LABOR FORCE AND THOSE OUT OF THE LABOR FORCE ON KEY DEMOGRAPHIC VARIABLES In the Out of the Labor Force Labor Receiving Not Receiving Force Benefits Benefits Base 277 244 167 % % % Age 16-24 years 11 8 16 25-34 years 25 7 9 35-44 years 29 12 10 45-54 years 17 12 19 55-64 years 18 52 46 Income $7,500 or less 10 36 21 $7,501 to $15,000 21 29 19 $15,001 to $25,000 20 15 20 $25,001 to $35,000 19 7 14 $35,001 to $50,000 13 4 11 $50,001 or more 10 1 8 Education Less than high school 23 47 39 High school graduate 36 34 31 Some college 17 13 20 4-year college graduate or more 24 5 10 Marital Status Married/living together 67 56 58 Single 18 17 19 Divorced/widowed/separated 15 27 22 Sex Male 54 58 28 Female 46 42 72 LOUIS HARRIS AND ASSOCIATES -39- Table 20 A COMPARISON BETWEEN THOSE IN THE LABOR FORCE AND THOSE OUT OF THE LABOR FORCE ON KEY MEASURES OF DISABILITY (Base: Those aged 16-64) Out of Labor Force In Labor Receiving Not Receiving Force Benefits Benefits 277 244 167 Base % % % Onset of Limitation Birth-Adolescence 21 14 18 Young adult 42 25 14 18 33 31 Middle age 7 24 25 After age 55 3 12 Not limited at all 121 Limitation of Activities Cannot work, keep house, etc. 17 73 42 Limited in amount or kind of work 55 21 38 Other activities limited 16 3 8 12 3 12 Not limited at all Severity of Disability Slight 27 5 12 Moderate 37 21 37 27 33 24 Somewhat severe 6 39 23 Very severe LOUIS HARRIS AND ASSOCIATES -40- Table 21 A COMPARISON BETWEEN WORKING AND NON-WORKING DISABLED PERSONS OF SELF-PERCEPTION AND SATISFACTION WITH LIFE (Base: Those aged 16-64) Working Non-Working Disabled Disabled Persons Persons 244 454 Base % % Self-Perception Considers self disabled 26 59 Does not consider self disabled 73 41 Satisfaction With Life Very satisfied 48 1 32 80 62 Somewhat satisfied 32 } 30 Neither satisfied nor dissatisfied 4 3 Somewhat dissatisfied 12) 212 15 33 Very dissatisfied 3) 12 Not sure/refused 1 2 LOUIS HARRIS AND ASSOCIATES -41- Table 22 PERCENT OF WORKING-AGE DISABLED PERSONS WHO SAY THEY HAVE ENCOUNTERED JOB DISCRIMINATION Q.: Do you feel that you have ever encountered job discrimination because of your disability or health problem, or not? Total * Base 566 % Have encountered job discrimination 25 Have not encountered job discrimination 72 Not sure/refused 3 *Not asked of students, most retired persons, and unemployed persons not looking for work. LOUIS HARRIS AND ASSOCIATES -42- Table 23 PERCENT OF WORKING-AGE DISABLED PERSONS WHO SAY THEIR EMPLOYER MADE ACCOMMODATIONS FOR THEIR DISABILITY Q.: Has your employer made accommodations for your disability or health problem, or not? Q.: When you worked full-time, did your employer make accommodations for your disability or health problem, or not? Total * Basc 356 % Employer made accommodations 35 Accommodations not made 61 Not sure/refused 4 *Asked of those currently working full- or part-time and those not working who have full-time work experience while disabled. LOUIS HARRIS AND ASSOCIATES -43- Table 24 PERCENT OF WORKING-AGE DISABLED PERSONS RECEIVING INSURANCE PAYMENTS OR GOVERNMENT PAYMENTS (Base: 703 respondents aged 16-64) Q.96: Now I'd like to mention different kinds of programs and benefits that people have. As I read each of the following items, please tell me whether you currently receive the benefit or payment, or not. % Those receiving Unemployment insurance 2 Worker's compensation 6 Short-term disability insurance 3 Private long-term disability insurance 5 Supplemental Security Income or SSI, or Social Security disability benefits (SSDB or SSDI) 29 Aid to families with dependent children or AFDC 4 Veterans benefits 11 Total who receive either an insurance payment or government benefit 46 LOUIS HARRIS AND ASSOCIATES -44- Table 25 PERCENT OF WORKING-AGE DISABLED PERSONS COVERED BY PRIVATE OR GOVERNMENT HEALTH PLANS (Base: 703 respondents aged 16-64) Q.97: Now I'd like to read off a few different kinds of health plans or health insurance that people have, including those provided by the government. As I read each of the following health plans, please tell me whether you are currently covered by it or not? Those covered by % Health insurance through work, a union, or 49 some other group Private health insurance bought by yourself or someone else in the family 32 Medicare Part A or Part B, that pays hospital or doctor's bills for people aged 65 and over and for some disabled people 21 Medicaid or public aid 13 Total who are covered by private or government health insurance 82 LOUIS HARRIS AND ASSOCIATES -45- Q.12 Table 26 HOW MUCH COMMON IDENTITY DISABLED PEOPLE FEEL WITH OTHER DISABLED PEOPLE Q.: To what extent do you feel that you have a sense of common identity with other disabled people -- do you feel that you have no sense of common identity, some sense of common identity, a somewhat strong sense of common identity, or a very strong sense of common identity? No Sense of Somewhat Very Common Some Strong Strong Not Sure/ Base Identity Sense Sense Sense Refused Total 1,000 % 16 34 20 20 10 Age 16-34 years 190 % 18 39 24 18 1 35-44 years 136 % 16 45 16 21 2 45-54 years 145 % 14 32 22 23 8 55-64 years 232 % 15 34 22 22 8 65 and over 296 % 18 29 16 19 19 Onset of Limitation Birth-adolescence 139 % 11 41 22 23 3 Young adult 226 % 14 40 20 19 7 Middle age 216 % 11 33 27 22 7 After age 55 336 % 20 30 15 20 15 Limitation of Activities Cannot work, keeps house, etc. 455 % 14 31 17 23 14 Limited in amount or kind of work 381 % 17 36 23 20 5 Other activities limited 86 % 15 45 18 12 10 Not limited at all 77 % 31 32 15 16 6 Severity of Disability Slight 144 % 25 41 18 11 5 Moderate 310 % 20 33 19 18 11 Somewhat severe 284 % 12 39 25 19 5 Very severe 237 % 12 27 15 30 15 LOUIS HARRIS AND ASSOCIATES -46- Q.14a Table 27 WHETHER OR NOT DISABLED PERSONS ARE A MINORITY GROUP Q.: Do you feel that disabled persons are a minority group in the same sense as are blacks and Hispanics, or not? Disabled Are a Not a Not Sure/ Base Minority Group Minority Group Refused Total 1,000 % 45 42 12 Age 16-34 years 190 % 54 40 5 35-44 years 136 % 53 44 3 45-54 years 145 % 48 41 12 55-64 years 232 % 45 43 13 65 and over 296 % 37 43 20 Onset of Limitation Birth-adolescence 139 % 56 35 9 Young adult 226 % 49 43 8 48 12 Middle age 216 % 40 After age 55 336 % 43 39 19 Limitation of Activities Cannot work, keep house, etc. 455 % 43 40 17 Limited in amount or kind of work 381 % 47 43 9 Other activities limited 86 % 45 45 10 2 Not limited at all 77 % 48 50 Severity of Disability Slight 144 % 40 52 8 Moderate 310 % 48 41 11 Somewhat severe 284 % 45 45 10 Very severe 237 % 47 36 17 LOUIS HARRIS AND ASSOCIATES -47- Q.15b Table 28 RESPONSES TO PROPOSALS ON HOW SOCIETY SHOULD BE INVOLVED WITH DISABLED PERSONS Q.: I will read you some proposals which have been made on how society should be involved with disabled Americans. Please say for each one whether you strongly approve, somewhat approve, somewhat disapprove, or strongly disapprove (READ EACH ITEM). Strongly Somewhat Somewhat Strongly Not Approve Approve Disapprove Disapprove Sure There should be increased efforts by society for education, job training, and rehabilitation for disabled people, so they can work to support themselves instead of depending on the government 66 29 2 2 2 There should be increased government and private benefits for disabled people who cannot work, so that they can live comfortably without 56 33 6 3 2 working There should be less govern- ment and private spending and benefits for disabled people who can work to support themselves 47 31 8 9 5 There should be increased efforts by society for dis- abled people to have special equipment and devices in. offices and factories, so they can work better and com- municate with other workers more easily 68 26 2 1 2 Society should take better care of all disabled people, so they aren't forced to go out and work 27 27 22 21 31 LOUIS HARRIS AND ASSOCIATES -48- Table 29 PERCENT NOT WORKING WHO SAY THAT THEY WANT TO WORK (Base: 372 working-age disabled persons currently not working) Disabled Persons Do or Do Not Aged 16-64 Who Are Want to Work Not Working * Want to work 66% Do not want to work 34% *Asked of all working-age unemployed persons, persons unable to work due to disability, retired persons, housekeeping, and volunteers. Not asked of students. LOUIS HARRIS AND ASSOCIATES -49- Table 30 REASONS WHY PEOPLE ARE NOT WORKING AT ALL OR NOT WORKING FULL-TIME (Base: 276 disabled persons aged 16-64) Important Reason Because your disability or health problem severely limits what you can do 78% Because you need medical treatment or therapy for your disability or health problem 52% Because employers won't recognize that you are capable of doing a full-time job due to your disability or health problem 47% Because you think no full-time work is available in your line of work or you can't find it 40% Because you don't have the skills, education, or training needed to get full-time jobs 38% Because you can't get affordable, convenient, or accessible transportation to and from work or housing near work 28% Because you need special equipment or devices to do your work, talk to or hear other workers, or get around at work 23% Because you would lose benefits or insurance payments 18% Because you can't arrange childcare or have other family responsibilities 15% LOUIS HARRIS AND ASSOCIATES -50- Table 31 PERCENT RECEIVING BENEFITS WHO WOULD LOSE BENEFITS IF WORKING FULL-TIME (Base: 181 working-age disabled persons not in labor force who receive benefits) Would or Would Not Disabled Persons Not in Lose Benefits if Working Labor Force and Full-time Receiving Benefits Would lose benefits 70% Would not lose benefits 30% *Includes only working-age unemployed persons not looking for work, persons unable to work due to disability, those keeping house, and volunteers who say they receive government payments or insurance payments. Not asked of students and retired persons. Excludes those "not sure" about receiving benefits. LOUIS HARRIS AND ASSOCIATES -51- Table 32 REASONS WHY DISABLED PEOPLE'S MOBILITY OR SOCIAL ACTIVITIES ARE LIMITED (Base: Those who say their disability limits their mobility or activities) Q. 18a: Here are some reasons who people don't get around, attend events, or socialize with friends outside their homes as much as they want to. Please say if each is an important reason or is not an important reason why you don't get around, socialize, or attend events as much as you would like to. Total Slightly or Somewhat or Disabled Moderately Very Severely Persons Disabled Disabled Base 559 165 378 Because of fear that your disability or health problem might cause you to get hurt, sick, or victimized by crime 59% 58% 59% Because you need someone to go with you or help you but don't always have someone 56% 48% 59% Because you are not able to use public trans- portation or becuase you can't get special transportation or someone to give you a ride when you need one 49% 44% 51% Because you are self-conscious about your disability 40% 40% 40% Because you come across many public buildings and places that you can't get into or that have bathrooms which you can't use 40% 38% 40% Because you have difficulty in seeing, talking, or hearing 37% 32% 39% LOUIS HARRIS AND ASSOCIATES -52- Table 33 FAMILIARITY WITH AND USE OF MOST COMMON SERVICES FOR DISABLED PEOPLE (Base: 1,000) Q.93a: I'm going to read you some services available to disabled people. Please say if you are familiar or not familiar with each service. Q.93b: Have you used (READ ITEM), or not? Have Familiar Used Vocational rehabilitation 60% 13% Transportation services for disabled people 58% 10% Medical and rehabilitation services for disabled people 44% 13% Section 8 and other housing for disabled people 31% 3% Independent living centers 25% 2% LOUIS HARRIS AND ASSOCIATES -53- Table 34 PERCENT WHO WOULD CALL AN 800 TELEPHONE NUMBER TO FIND OUT ABOUT SERVICES IN THEIR STATE Q.95: One way to help people learn about services would be to have a free 800 telephone number for people to call, where they would find out about all services available to disabled people in their state. How likely would you be to call a free 800 number for help finding out about services available to you in your state -- very likely, somewhat likely, not too likely, or not likely at all? Very Somewhat Not Too Not Likely Not Sure/ Base Likely Likely Likely At All Refused Total 1,000 % 52 24 9 13 2 Age 16-34 years 190 % 57 26 14 7 2 35-44 years 136 % 63 22 4 11 1 45-54 years 145 % 59 21 10 11 - 55-64 years 232 % 50 26 11 13 - 65 and over 296 % 44 26 8 18 4 Regions East 228 % 53 23 5 18 1 Midwest 254 % 51 23 13 13 * South 321 % 51 23 11 12 3 West 197 % 55 27 8 10 1 Limitation of Activities Cannot work, keep house, etc. 455 % 57 20 9 13 2 Limited in amount or kind of work 381 % 53 26 8 11 1 Other activities limited 86 % 31 30 15 22 1 Not limited at all 77 % 44 29 13 15 - Severity of Disability Slight 144 % 45 26 11 17 1 Moderate 310 % 50 26 10 13 1 Somewhat severe 284 % 58 23 9 10 1 Very severe 237 % 52 22 10 15 2 LOUIS HARRIS AND ASSOCIATES -54- Table 35 MOST IMPORTANT THING THAT COULD BE DONE TO HELP DISABLED PEOPLE FACE BARRIERS SUCCESSFULLY (Base: 791 who say they still face barrier(s)) Q.91: What is the most important thing that could be done to help you face this (these) barrier (s) successfully? Is there anything else that could be done? Other Things Most Important That Could Things That Be Done Could be Done (Other Mentions) Nothing/nothing can help 22% Get better/improve health 6% * Find a cure/cure me 6% * Get specific treatment/therapy 5% 1% Accept myself as disabled/accept limitations 5% 1% Keep good psychological attitudes 4% 1% Change people's attitudes/change the way people react towards me 3% 1% Get specific equipment/device 3% * Find a job/employment 3% 1% Need someone to assist me 3% * Improve financial situation/get more money 3% 1% Counseling/support groups/therapy 3% 1% Get medication/better medication 2% 1% Support from friends, family, co-workers 2% * Exercise 1% 1% Make built environment accessible 1% * Improve social life/get out more/see people more 1% 1% Equal consideration from employers/change employer attitudes 1% 1% Get education/more education 1% 1% Get social security/government benefits 1% * Get more social security/government benefits 1% * Alleviate the pain 1% - Get rehabilitation/get into a rehabilitation program 1% * Better transportation 1% * Have employer make adaptations/adapt workplace 1% * Vocational/job training * * Get insurance/better insurance coverage/better insurance for further disabilities * * Improve/change government policy * * Any other mentions 6% 2% Don't know/no answer 13% LOUIS HARRIS AND ASSOCIATES