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Originally Processed With FOIA(s): FOIA Number: S S FOIA MARKER This is not a textual record. This is used as an administrative marker by the George Bush Presidential Library Staff. Record Group/Collection: Donated Historical Materials Collection/Office of Origin: Frieden, Lex, Collection Series: Printed Materials Subseries: Periodicals OA/ID Number: 52132 Folder ID Number: 52132-004 Folder Title: "SCI Digest - Summer 1979" Stack: Row: Section: Shelf: Position: MODEL SYSTEMS' Volume One Summer - 1979 SCI DIGEST REHABILITATION SERVICES ADMINISTRATION, U.S. DEPARTMENT OF HEALTH, EDUCATION AND WELFARE AL WA MODEL SPINAL CORD INJURY SYSTEM COMPONENTS AZ VA National Data CA Research TX Center CO PA FL NY IL MO MA FRONT COVER: This schematic diagram is symbolic of the functional interrelationships between the Regional Model Spinal Cord Injury (SCI) Systems, the National SCI Data Re- search Center and the Rehabilitation Services Administra- tion, U.S. Department of Health, Education and Welfare. Each circle represents an individual Regional SCI System with the appropriate State abbreviation within the circle showing the location of each. Copyright© 1979 by the National Spinal Cord Injury Data Research Center, Good Samaritan Hospital, Phoenix, Arizona. All rights reserved. No parts of this publication may be reproduced or transmitted in any form or by any means, electronic or mechanical including photocopy, recording or any information storage or retrieval system, without permission in writing from the National Spinal Cord Injury Data Research Center. MODEL SYSTEMS' Volume One Summer - 1979 SCI DIGEST In This Issue From the Data Bank EDITORIAL. John S. Young 2 Featured Guest THE RUSSIAN EXPERIENCE. Robert R. Jackson 3 Featured Articles A SYSTEM APPROACH TO EMS FOR SPINAL CORD INJURY VICTIMS. Philip R. Fine, Samuel L. Stover, and Michael J. DeVivo 5 SPINAL CORD INJURY AND THE EMT Philip R. Fine and Samuel L. Stover 8 ARIZONA EMERGENCY MEDICAL SYSTEM John M. Vivian and Carolyn J. Mitchell 28 System Statistics STATISTICAL INFORMATION PERTAINING TO SOME OF THE MOST COMMONLY ASKED QUESTIONS ABOUT SCI - PART II. John S. Young and Nancy E. Northup 11 DATA BANK - CURRENT STATUS 36 This-N-That ASIA NOTE 22 CORRECTION 24 FROM THE DATA BANK DEPARTMENT OF HEALTH, EDUCATION AND WELFARE THE NITTY-GRITTY OF DATA COLLECTION Office for Human Development Services "Let's collect some data!" This lau- Arabella Martinez, Assistant datory proposition is a bit like say- Secretary ing "Let's get married!" Exciting Rehabilitation Services revelations and the pursuit of hap- Administration piness are envisioned with little Robert R. Humphries, heed given to future implications or Commissioner Medical Research Office consequences. We can contem- J. Paul Thomas, Project plate the ectasy now and deal with Manager the agony later. In 1970, the Southwest Regional PUBLISHED BY: System for Treatment of Spinal In- National Spinal Cord Injury Data jury (SWRS) was funded by the Research Center Rehabilitation Services Administra- Good Samaritan Hospital tion (RSA), U.S. Department of 1130 East McDowell Road Health, Education and Welfare, to Suite A-6 demonstrate a regional system of Phoenix, Arizona 85006 John S. Young, M.D. spinal cord injury (SCI) care. Among John S. Young, MD, Director the objectives of the program was the development of a data A.M. Bowen, Adm. Director base to document the results achieved, particularly rehabili- tation outcomes and cost effectiveness. PUBLICATION STAFF The original data base - long on fantasy and short on prag- EXECUTIVE EDITOR matic realism - contained 472 variables designed to answer John S. Young, MD all of the clinical, psychological, social, vocational and eco- nomic questions of interest to the multiple professional dis- EDITOR ciplines involved in providing or paying for the services re- Roberta McCutchen quired by the spinal cord injured. The number of variables STAFF EDITORS adopted for inclusion in the data base almost became a status Nancy E. Northup symbol for each specialty. Medical social workers wanted so- Ann M. Peters cial data. Vocational counselors needed vocational data. Physical and occupational therapists required functional data. Worst of all, orthopedists, neurosurgeons, psychiatrists, plas- CONTRIBUTING EDITORS tic surgeons, urologists, pulmonary physicians and other Lorraine Buchanan, PA Lorna Christenson, VA medical specialists were anxious to acquire statistical "re- Michael J. DeVivo, AL sults" of their clinical contributions. Glenn Goldfinger, NY Over the course of the first year, it became apparent that such Marsha Hanak, NY a "shotgun" approach was counter productive. The volume Marianne Kaplan, IL of data required was uncollectable, unmanageable and quite Roberta Koontz, MA Yvonne Lopez, AL meaningless when the variance indigenous to spinal cord in- Carolyn J. Mitchell, AZ jury was compounded by the relatively small number of cases Cathy Muhlbauer, CO represented in the data bank. The original 472 variables were James O'Heir, FL then reduced to 108, sacrificing "completeness" for credibility. Carol A. Smith, TX As additional Regional Model SCI Systems were funded by Erwin H. Sprengel, CA Karen Wagner, MO RSA, a mechanism for pooling common data was obviously C. Gerald Warren, WA necessary to create a sample large enough to minimize the (continued on page 34) 2 Model Systems' Volume One FEATURED GUEST THE RUSSIAN EXPERIENCE Robert R. Jackson*, MD Medical Director Craig Hospital Director, Rocky Mountain Regional Spinal Cord Injury System In recent years, several spinal cord injured American Citizens have journeyed to the Polenov Institute in Russia for reportedly "new" treatment of their injuries. All these visits were widely pub- licized by the news media in the United States. The great outcry in the media spilled over into demands from various groups that the Federal establishment as well as private agencies not only investigate this Russian phenomenon but also support the use of these reportedly "new" treatments for the spinal cord injured in the U.S. The time has come to place this matter in perspective. The work reported by Dr. L.A. Martinian is admittedly an effort at extending the work begun in this country (U.S.A.) over 30 years ago. The original investigators were primarily Drs. L. W. Freeman, William Robert R. Jackson, M.D. F. Windle and William W. Chambers who reported on experimen- tal work with animals. They noted that certain pyrogens and, later, certain enzymes seemed to influence the recovery of central nervous system function in what were otherwise spinal injured laboratory animals. Dr. Martinian's work is summarized in English in the book, Experimental Studies in Regeneration of Spinal Neurons (V.H. Winston and Sons, 1977, Editor: Tat'yana Nesmeyanora). In essence, the claim is made that the trypsin experiments started by Dr. L. W. Freeman, University of Indiana, have been extended using various enzymes including hyaluronidase and lactase. Apparently, these endeavors were translated into an unknown number of human experiments by Dr. Veniamin Ugriumov, Director of the Leningrad Research Institute of Neurosurgery. He used not only the enzymes but also hyperbaric oxygen in his human experiments. In June 1976, both Drs. Martinian and Ugriumov visited the United States in May and June at the invitation of the National Institute of Neurological and Communicative Diseases and Stroke *Dr. Jackson is now Executive Vice-President, Rehabilitation, CASE MANAGEMENT, INC., Denver, Colorado. SCI DIGEST 3 Summer - 1979 (NINCDS), National Institute of Health (NIH). The Russians did not offer any details of their work but rather spoke in broad terms about a general attitude and approach to therapy. The number of patients they'd treated was not given. (For a more detailed description of the treatment program in question, please see the article by Dr. E. Mannarino in the Paraplegia News, 32, p., 79, or The Journal of the American Paraplegia Society, II, March 1979.) At this point, what would otherwise have been a little noticed clinical experiment became the sub- ject of great interest and speculation as a result of extensive publicity by the lay press in the United States. Multiple endeavors by the Director of the Stroke and Trauma Program of NINCDS, by the Chairman of the Medical Advisory Committee of the National Spinal Cord Injury Foundation and by many other interested individuals, both inside and outside our government, failed to produce any results confirming those reported in the Russian literature. No verifiable solid scientific evi- dence has been found to confirm that the course of human central nervous system trauma is altered by the reported treatments at the Polenov Institute in Leningrad. Dr. Robert White's com- ments on his endeavors at the 1979 ASIA Meeting substantiates the lack of confirming evidence reported by other U.S. scientists. Furthermore, under the auspices of NINCDS, Dr. Lloyd Guth and others attempted to repeat the Martinian experiments. (The results of these experiments were reported at the 1979 American Association of Neurological Surgeons in April.) Dr. Guth found that if he used the reported Martinian technique for sectioning the spinal cord of a rat that, indeed, a number of the animals apparently did achieve neurological recovery. However, when the animals were sacrificed, and the spinal cords examined, some intact anterior fibers were found. Apparently, these fibers were left intact by the sectioning technique used by Martinian. It has been known for years that if as little as five percent of the animal's cord is left intact, significant apparent neurological recovery can occur. Dr. Guth then refined the sectioning technique to ensure complete severing of the spinal cord. In those animals, with complete sectioning of the cord, no neurological recovery occurred. Following these studies, U.S. investigators stated that "the report of spinal recovery following transection was probably due to the incompleteness of the transection rather than to enzyme treatment." Thus, serious doubt now exists about the validity of Dr. Martinian's findings and about their appl- icability to the treatment of spinal injury in humans. Further efforts in this country and elsewhere to repeat the Martinian experiments led to the con- clusion that - as reported by NINCDS - "No evidence was found that enzyme treatment sig- nificantly reduced scar formation or affected restitution of sensation, posture or locomotion in spinal rats." Disregarding the failure of a number of qualified investigators to get hard facts from the Soviet Union and the inability of qualified research personnel to repeat the Martinian experiments, the rather provocative United States news stories have continued thus raising the expectations of a "cure" for many of the spinal injured. As a matter of fact, Messrs. Waldrep, Hurt, and Turcotte three U.S. Citizens who visited the Soviet Union for treatment - have announced the formation of a new foundation to pursue further exploration of the Russian techniques. They are promoting the intrathecal enzyme combined with hyperbaric oxygen as a procedure for the treatment of spinal cord injured humans. From interviews - both audio/visual and printed - with these three gentlemen and other U.S. Citizens who visited the Soviet Union, there is no question that the intensive and virtually one-on- one physical therapy program, which continues throughout the treatment day, does have a ben- eficial effect on existing musculature and the patient's general outlook on life. However, all U.S. Citizens who received the "Russian" treatment remained paraplegic - any "improvements" are clearly those attributable to intensive physiotherapy and psychological support. (concluded on page 34) 4 Model Systems' Volume One FEATURE ARTICLE A SYSTEMS APPROACH TO EMS FOR SPINAL CORD INJURY VICTIMS Philip R. Fine, PhD, MSPH, Samuel L. Stover, MD, Michael J. DeVivo, MPH UAB Spinal Cord Injury System University of Alabama in Birmingham Birmingham, Alabama The eventual medical outcome for the spinal cord injured patient is dependent, in great part, on the handling the victim receives at the injury scene and the appropriateness of the emergency management. The spinal cord injured patient when initially examined is frequently found to have a number of unique problems with which emergency medical personnel must cope. Experience has shown that the likelihood of adverse consequences may be significantly reduced if a rapid but appropriate decision making procedure is followed. 1 The sequence of steps in decision-making may be shown in a flowchart format commonly referred to as an algorithm. Steps or junctures in a process of this nature are designated by a series of standard symbols frequently used by computer programmers. 2 In the remainder of this article, the general Operational Algorithm currently being implemented by the Regional Model Spinal Cord Injury (SCI) System, located at the University of Alabama in Bir- mingham (UAB), will be described. Although certain processes or steps (particularly those per- taining to reporting or recordkeeping requirements) are unique to the UAB Center, the general scheme is suitable for numerous other applications. The portion of the algorithm discussed herein is restricted to the Emergency Medical Service (EMS) component of an overall management/care system. Since the Regional Model SCI System is a functional unit of a larger general rehabilitation facility, the rehabilitation steps are not included, but they do exist and are available on request. BACKGROUND A major objective of the federally sponsored Regional Model Spinal Cord Injury Program is the development of an organized continuum or "system" of care for the spinal cord injured patient. For investigative purposes, satisfaction of very specific criteria determines whether the patient is con- sidered "System," or "Nonsystem". Yet, when a patient is admitted to the Spinal Cord Injury Sys- SCI DIGEST 5 Summer - 1979 tem, regardless of research category classification, all activities and services are initiated and pro- vided without further distinction; that is, all patients receive exactly the same medical and allied health services. The current Operational Algorithm was included with the Fifth and Sixth Annual Reports of the UAB SCI System (a limited number of copies are available through the Center). The Algorithm or Systems flowchart is the product of considerable effort and activity expended in developing a suit- able "front end" or Emergency Medical Service (EMS) component. SEQUENCE OF DECISIONS AND RECOMMENDED PROCEDURES The extreme left portion of the algorithm designates the point of trauma. After notification and arrival of appropriate EMS personnel, decisions regarding immediate disposition, care, and man- agement of the patient must be made. It must be determined whether life support is required; whether immobilization of the patient is necessary; and, in the case of accidental events resulting in entrapment of the patient, whether special extrication procedures are needed. An affirmative determination at any decision point results in the provision of the particular service or requirement cited. Such a response is depicted as a Systems Loop. During disposition and handling procedures, the patient must be continually monitored and reas- sessed for changes in life-support requirements. If, in fact, changes in life-support requirements are observed, they must be provided by EMS personnel. At this point, the patient is more thoroughly evaluated for the possibility of spinal cord injury. If such an injury does not appear to exist, the patient is transported to the closest appropriate hospital or trauma center following radio notification by EMS personnel of patient evacuation and probable arrival time. EMERGENCY MEDICAL FACILITY If the patient is believed to have sustained a spinal cord injury, the distance from the accident site to the Regional Spinal Cord Injury Center is determined. If the accident site is more than 25 miles from a Regional SCI Center, the patient is transported to the nearest appropriate medical facility. Simultaneously, the Regional SCI Center is notified by radio of the patient's evacuation to that emergency medical facility. On arrival at the emergency room, the patient's medical status is further evaluated, and the pre- liminary spinal cord injury diagnosis is reassessed. A medical decision as to the stability of the patient's general medical condition is then made. If the patient's condition is stable, and appropriate immobilization of the spine is confirmed, the Regional SCI Center is so notified. The patient is then transferred to the Regional SCI Center without being admitted to the local hospital. If the patient's medical condition is unstable and additional emergency medical attention is re- quired, the attending physicians then become responsible for making appropriate arrangements for medical and/or surgical care. This will most likely require a short term admission of the patient to the local hospital. REGIONAL SCI CENTER CARE If the accident site is 25 miles or less from the Regional SCI Center, the patient is evacuated, in most instances, directly to the Center bypassing other hospitals. Hospital "drive-by" may be for- gone if: The patient's condition deteriorates enroute to the SCI Center. Local transfer agreements and evacuation protocols require local hospital evaluation. 6 Model Systems' Volume One Nonetheless, after admission to the Regional SCI Center/Acute Care Area, no further distinction is made between patients whose trauma sites were more or less than 25 miles from the Center. Following admission to the Acute Care Area of the Regional SCI Center, appropriate medical and data collection activities are initiated. For example, upon admission to the University of Alabama in Birmingham Hospital through the Emergency Department, standing orders exist which result in immediate notification of the following services: Neurosurgery, Urology, Orthopedics, Trauma, and Rehabilitation Medicine. The primary admitting service very likely will be Neurosurgery. However, by virtue of the University Cooperative Agreement, all services identified above participate from the onset in patient care activities. The SCI Registry is queried to determine whether early notification of the particular patient's injury, as called for in the algorithm, occurred, and if not, the Registry is notified accordingly. At this point, provision of acute medical care is continued until the patient is ready for transfer to the rehabilitation facility. SUMMARY Recapping the Operational Algorithm and the team which serves the needs of the spinal cord injured patient: the numerous disciplines represented by a variety of health professionals assume roles and responsibilities of equal importance. Fundamental to an approach of this nature is co- ordination of individual activities coupled with an appreciation and, understanding of the profes- sional roles of other participating disciplines. It is apparent that the logistical requirements of a spinal cord injured patient are seriously beyond the practical capacity of any single discipline or individual. For this reason, we are strong advocates of the multidisciplinary team approach to their care. The algorithm depicts, of course, the "ideal" management sequence. It is readily admitted that real time modification is often necessary because the most complex variable, the patient, frequently has special requirements which must be met on a practical basis. In fact, an inherent strength of the system lies in its ability to be responsive to the special needs presented by each individual patient. It would be unrealistic to suggest that this model will be suitable for application in every spinal cord injury care setting. Yet the fundamental structure, in its current state of refinement, is most as- suredly valid. During the coming year, further refinement of the operational system is anticipated along with improved efficiency in the delivery of multidisciplinary care to the patient who has suf- fered spinal cord trauma. REFERENCES 1. Cheshire, D. E.: The complete and centralized treatment of paraplegia: a report on the spinal injuries center for Vic- toria, Australia. Proceedings of the 16th Annual Clinical Spinal Cord Injury Conference, Long Beach, California, 39-49, 1967. 2. Alexander, D. E., and Messer, A. C.: Fortran IV Pocket Handbook, New York, 1972, McGraw-Hill, Inc., p. 2-3. (Reprinted with permission of the BREMSS Newsletter) SCI DIGEST 7 Summer-1979 FEATURE ARTICLE SPINAL CORD INJURY AND THE EMT Philip R. Fine, PhD, MSPH, Samuel L. Stover, MD UAB Spinal Cord Injury System University of Alabama in Birmingham Birmingham, Alabama INTRODUCTION The disparity between the actual and the ideal delivery of medical care is probably most marked in the handling of patients with spinal cord injury. In few other areas of medicine does the lag between technical knowledge about a disorder and its actual implementation seem as great. Na- tional and International experience indicates that patients with acute spinal cord injuries are best managed at comprehensive health care centers specially equipped to provide a multidisciplinary team approach to patient care. 1 Yet, the most sophisticated spinal cord injury center can do no better than the Emergency Medical Service (EMS) component responsible for the immediate post- injury extrication, immobilization, stabilization and evacuation of the injured person. The Emergency Medical System is the organized entity which deals, initially, with the spinal cord injury victim. The Emergency Medical Technician (EMT), who is at the forefront of patient care activities immediately after the accident, assumes an important role in determining the eventual outcome of the patient's care and treatment. EMS AND THE SPINAL CORD INJURED A well organized system of care for spinal cord injured patients consists of two separate and distinct components. The first component involves patient care activities from the time of injury until ad- mission to a specialized spinal cord injury center. The second, concerns patient care activities subsequent to admission to the specialized medical facility. The injury, its characteristics, prog- nosis and basic emergency management procedures will be examined. HOW THE INJURY NORMALLY OCCURS Injuries resulting in quadriplegia or paraplegia are usually secondary to direct spinal cord trauma and may result from a fracture or dislocation of the surrounding vertebral elements or from pen- etrating missiles such as bullets or knife wounds. The characteristics of the bony injury to the spinal 8 Model Systems' Volume One column and the neurological injury to the spinal cord and nerve roots must be considered individ- ually and in detail to accurately assess the extent of trauma, select the proper emergency treatment and, thus, increase the likelihood of accurately predicting the patient's eventual physical condition. NEUROLOGICAL INJURY The neurologic injury to the spinal cord must be differentiated from the neurologic injury of the nerve roots. Spinal cord injuries which are complete (total motor and sensory loss) for twenty-four (24) hours are unlikely to have good functional recovery. Nerve roots which are injured in or about the area of trauma (even with complete cord injuries) may recover. Spinal cord injury in the cervical area is incomplete if any sensory or voluntary motor function remains below the level of the cervical cord injury. In the lumbar and sacral areas, the injury is incomplete if there is sacral sparing. Spinal shock may affect the spinal cord a segment or two above the level of actual cord injury. Therefore, with time and disappearance of the spinal shock, some return of function and sensation may occur in the myotome or dermatome at the level of injury. ETIOLOGY Motor vehicle accidents are the leading cause of spinal cord injury followed by either gunshot wounds or diving accidents. 2,3,4 Other water sports, stabbings, falls, and industrial accidents ac- count for the vast majority of all remaining injuries. Statistics from spinal cord injury centers throughout the United States indicate that three to four times more males suffer spinal cord injury than females. 2,3,5 The average age group is the mid-to-late twenties with the great bulk of the accidents involving persons between 15 and 40 years of age. ASSOCIATED INJURIES Associated injuries sustained by the patient at the time of spinal cord injury may be totally missed due to loss of muscle control and lack of sensation. 6 The long bones of the extremities must be checked carefully for fractures and appropriate treatment initiated if the patient is to be able to manipulate a wheelchair or walk with crutches and braces in the future. Joint dislocations, which may totally disable a person, even if his spinal cord injury proves to be transient, may be easily overlooked and should always be considered. Intra-abdominal bleeding may be occult (due to the loss of sensation) and must be carefully evaluated. Intra-thoracic injuries, such as rupture of the diaphragm, fractures of the ribs, pneumothorax, hemothorax or hemopneumothorax may be masked by decreased tidal volume in the quadriplegic patient whose intercostal muscles have been paralyzed. Associated injuries frequently delay prompt transfer of the victim from the first hospital to a spe- cialized spinal cord injury (SCI) unit. After initial resuscitation and/or stabilization, however, the transfer should not be delayed further if a bed is available in a SCI unit. In fact, it is advisable to require that the patient be transported to the closest designated medical care facility, rather than to one that may be physically closer to the accident site but is not equipped to provide appropriate acute spinal cord injury care. Past experience has shown that the long term prognosis for the spinal cord injured patient is improved if the early acute care is in keeping with accepted stan- dards. 6 Evidence suggests that simply "getting the patient to any nearby hospital" is, ultimately, not in the best interest of the patient, unless there is an immediate life threatening situation, such as uncontrolled bleeding or respiratory shutdown, either of which would preclude transfer to a designated trauma center. SCI DIGEST 9 Summer 1979 TRANSPORTATION - ROAD ACCIDENTS Proper management of a spinal injured patient at the place of injury such as at the site of a traffic accident, before transportation to an acute care hospital, is extremely important. A fracture of the spine is usually evident to the first trained medical observer who arrives at the scene. Bystanders must be instructed to leave the patient in the position in which he is found and to make no attempt to place the victim in a more comfortable position. Emergency Medical personnel must be trained to immediately identify a possible spinal fracture, by asking the patient to specify the site of his pain and to move his extremities. If a spinal fracture is suspected, with or without neurological injury, a road accident victim must not be moved until appropriate stretchers are available. The victim should then be carefully moved while maintaining the position of deformity - picked up by at least three persons as a log and placed on an appropriate stretcher. The spine should be im- mobilized with special spine splints or with sandbags properly placed about the neck and/or the trunk. Other associated injuries of the extremities should be splinted in the position in which the patient is lying. WATER SPORTS Patients who suffer paralysis after diving, or while engaged in other water-sport activities, should be gently pulled from the water. If possible, the cervical spine should be maintained in a neutral position. If the patient shows evidence of drowning, turn the victim completely on his side, while carefully supporting his head, with his hips higher than his shoulders to help drain the water from the lungs. The victim should not be placed in a prone position, and the neck should not be twisted to one side. Of course, if the patient is in respiratory distress due to drowning, mouth-to-mouth resuscitation to restore breathing takes precedence but the spine should be very carefully ex- tended, with sumultaneous traction applied to the tongue to open the airway. GUNSHOT WOUNDS Gunshot wounds usually do not result in instability of the spine. These patients can be placed on a regular litter or stretcher and may be loaded into the ambulance in a supine position. Many gunshot victims may have associated injuries which will require other emergency medical procedures. PREVENTING AGGRAVATION OF THE INJURY During the first few hours following an injury to the spine, an incomplete spinal cord injury may progress to a complete spinal cord injury. This may be caused by one of three factors: Progressive swelling and edema of the cord causing interruption of neural transmission. Pressure on the vascular supply causing gradual ischemia of the spinal cord area. Aggravated trauma from rough and/or improper handling. Approximately 10 percent of all patients have injuries which became worse during the first day. Spinal cord injured patients must be handled very carefully to ensure that further neurological damage is not due to traumatic handling. If neurological function impairment is due to edema only, functional recovery is possible. But, if the impairment is attributable to vascular embarrassment by venous congestion and gradual infraction, the condition is probably not reversible. (concluded on page 33) 10 Model Systems' Volume One