Ask the Scholar

Document scope · 1 page
doc
Scholar
Ask about this object, its catalog metadata, its source description, or the page inventory. For page-specific OCR and visual context, open one of the page chats.

Scholar Source Context

Document identity
localId
372625859
label
Social Security [1986]
core
doc
dtoType
document
pageCount
1
Source metadata
Source extras
naId
372625859
levelOfDescription
fileUnit
recordType
description
ocrSource
nara-archive
Single page context
seq
1
pageIndex
0
type
document
mediaId
f2aa75df599d19f0
ocrText
Originally Processed With FOIA(s): FOIA Number: S S FOIA MARKER This is not a textual record. This is used as an administrative marker by the George Bush Presidential Library Staff. Record Group/Collection: Donated Historical Materials Collection/Office of Origin: Frieden, Lex, Collection Series: Printed Materials Subseries: Reference Materials OA/ID Number: 52161 Folder ID Number: 52161-003 Folder Title: Social Security [1986] Stack: Row: Section: Shelf: Position: TASKS AND TIME-LINE FOR SSDI/MEDICARE CONFERENCE Tasks By Whom Critical Dates Dec Jan 8 9 10 11 12 15 16 17 18 19 22 23 24 25 26 29 30 31 1 2 5 6 7 8 9 12 13 14 15 16 19 20 21 22 23 26 27 28 29 30 0 Procurement delivered to GCS LINZER X o Meeting of Steering Committee HERRELL X Contact person at Social Security Meeting rooms Typing Duplication Mailing-Envelopes/Labels Recorder for day two Name tags o Working paper Draft CONSUL/SSA X Final CONSUL X Typing HOLMES Duplication HOLMES o Participant lists CONSUL X Typing HOLMES Duplication HOLMES o Letter of invitation (final-day 1) CONSUL X Typing/AS signature HOLMES Duplication (25) HOLMES o*Letter of invitation (final-day 2) CONSUL X Typing/AS signature HOLMES Duplication (45) HOLMES o Agenda (day 1 and day 2) Draft CONSUL X Final CONSUL X Enter on AS calendar LINZER Typing HOLMES Duplication HOLMES PAGE 2. TASKS AND TIME-LINE FOR SSDI/MEDICARE CONFERENCE Tasks By Whom Critical Dates Jan Feb Mar 26 27 28 29 30 2 3 4 5 6 9 10 11 12 13 16 17 18 19 20 23 24 25 26 27 2 3 4 5 6 9 10 11 12 13 16 17 18 19 20 0 Mailing HOLMES/ Procure envelopes/labels (60) LINZER Assemble enclosures: HOLMES/ Letter of invitation, background LINZER papers, participant list(s), agenda 40 day one pkgs., 20 day 2 pkgs. X Mail HOLMES X 0 Confirmation of participants CONSUL X 0 Conference logistics: (3/2 &3/3) Reserve meeting room X Procure conference supplies (40 participants day 1/20 day 2) Name tags/tents Tablets, pencils Rubberbands Staplers Magic markers/Easel Masking tape HOLMES X Assemble materials for meeting: Agenda Pencils Sign-in sheet Name tags Tents HOLMES/ Participant lists LINZER X *Interpreters Readers LINZER Sign-Language LINZER 0 Meeting Recorder (day 1) CONSULT X Recorder (day 2) X Resource support for AS (day 2) CONSULT X PAGE 3. TASKS AND TIME-LINE FOR SSDI/MEDICARE CONFERENCE Tasks By Whom Critical Dates Mar Apr May 16 17 18 19 20 23 24 25 26 27 30 31 1 2 3 6 7 8 9 10 13 14 15 16 17 20 21 22 23 24 27 28 29 30 1 4 5 6 7 8 0 Final Report Draft CONSULT X X Final CONSULT X Typing HOLMES Duplication HOLMES o Submission to AS HERRELL 0 Presentation to Disability Adv. Council and Commission of Soc. Sec. (Revision 1: 12/3/86) DRAFT Economics of Disability - SSDI/Medicare Introduction The service system for disabled Americans creates major work disincentives for many beneficiaries. The number of disabled Americans not returning to work for fear of losing their benefits is currently unknown, but we believe that the number is substantial. There are increasing indications that many disabled Americans of working age are capable of finding, being placed in, or returning to employment that pays substantial wages. However, there are about 5.9 mil- lion working age adults who are receiving disability benefits from Social Secu- rity Disability Insurance or Supplemental Security Income programs because they are not working and they have been evaluated as having an impairment that is so severe that they are not able to perform any job in the national economy. De- spite these Federal entitlement evaluations, we believe that current SSA work disincentives are major factors contributing to the large number of Americans receiving benefits for total disability and not trying to reenter the work force. On February 24, 1986 a forum on disability was convened before the U.S. Department of Education, National Institute of Handicapped Research on the Economics of Disability. The meeting was much a needed opportunity for key policy officials, with a recently honed awareness of the nature of severe im- pairments and their implications, to reassess the potential many disabled peo- ple have to return to productive, active lives. As an outgrowth of this conference, we are proposing a second conference focusing specifically on the issues involving individuals who have left gainful employment due to a disabling condition and the disincentives for them returning to work. Objectives We proceed with the premise that, whenever possible, disabled Americans - including persons who have incurred severe handicaps, should be encouraged to return to regular job sites. It is our belief that the fear of losing disabil- ity cash benefits or medical benefits from Social Security Disability Insurance or Supplemental Security Income is a significant disincentive for working age adults who might, with some form of continuing support, choose to return to work. As Federal policy begins to respond to this issue, a conference will be held involving rehabilitation professionals from many disciplines. The confer- ence will help to: develop a concept of SSDI/Medicare disincentives as seen by rehabilita- tion experts, consumers, and advocates, develop recommended policy options for dealing with the SSDI/Medicare disincentives. convene a small group of key policy officials to begin to build a con- sensus around some of the recommended policy options. 2 Structure The conference will be sponsored by the Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education, and take place over two consecutive days during early March in Washington, D.C. The forum will purposefully provide linkages to other related activities at the Federal level. During the first day, approximately 30 to 40 individuals representing government, business, congress, consumers and disability advocacy groups will work together to develop a precise definition of SSDI/Medicare disincentives. This group will also present a set of policy options for dealing with these disincentives. The Social Security Administration will provide staff support with actuarial data and program impact statements SO that the conferees will have available the most current information for their deliberations. On day two of the conference, a working group consisting of 10-15 key policy officials will be charged with building a consensus around some of the options proposed by the larger group during day one. This group will further examine the issue of disincentives and develop a concept paper that provides an analysis and recommends a course of action grow- ing out of a consensus by the group on some of the recommended policy options that resulted from the first day of the conference. This concept paper will result in a report to the Assistant Secretary, Office of Special Education and Rehabilitative Services. The consensus building process is critical in attaining the objectives for the conference. The Assistant Secretary, Office of Special Education and Re- habilitative Services, will then present the report to the Disability Advisory Council and the Commissioner of Social Security for consideration. 3 The Disability Advisory Council was recently appointed by the Secretary of HHS pursuant to a provision of P.L. 99-272. This bill directed Secretary Bowen to establish an advisory council to study and make recommendations concerning SSA's disability programs so that more beneficiaries will be encouraged to return to work. The Council consists of leaders in rehabilitation, industry, unions, disability advocacy groups and the medical profession as well as inter- ested private citizens. The Council will be looking to enhance incentives to work and to remove disincentives. The Council will meet monthly from January to October and has also scheduled 4 field hearings on these issues. Management OSERS will hire a consultant to develop the background packages, work with Social Security Administration, and serve as the Secretary to the group. The Steering Committee members will be responsible for providing administrative services. These services include: secretarial support, lists of participants and logistical support. A list of the Steering Committee members is attached. 4 STEERING COMMITTEE Marty Ford Doug Badger Association for Retarded Citizens Social Security Administration 1522 K Street, N.W. Suite 516 Room 114 Altmeyer Washington, D.C. 20005 6401 Security Blvd. Woodlawn, MD 21235 785-3388 8-934-8177 Dave Esquith Committee on Education and Labor John Wodatch Room 535 Coordination and Review Section House Annex 2 Civil Rights Division, DOJ 3rd and D Streets, S.W. 320 First Street, N.W. Washington, D.C. 20151 HOLC Bldg./Rm. 850 Washington, D.C. 20531 226-3110 724-2227 Don Galvin Washington Business Group on Health Judy Boggs National Rehabilitation Hospital HCFA/HHS 102 Irving Street, N.W. Hubert H. Humphrey Bldg. Washington, D.C. 20010 Room 314 G 200 Independence Ave., S.W. 877-1122 Washington, D.C. 20201 Jay Rochlin 245-8502 President's Committee on Employment of the Handicapped Michael Herrell 1111 20th Street, N.W. OAS/OSERS 6th Floor Room 3120 MES Washington, D.C. 20036 U.S. Department of Education 330 C Street, S.W. 653-5044 Washington, D.C. 20202 Lex Frieden 732-1439 National Council on the Handicapped 800 Independence Avenue Suite 814 Washington, D.C. 20591 267-3235 Jim Young Deputy Executive Director PCMR/OHDS U.S. Department of Health and Human Services 330 Independence Avenue, S.W. Washington, D.C. 20201 245-7634 FEDERAL DISABILITY POLICY: A FORUM ON WORK DISINCENTIVES Agenda 9:00 A.M. Opening Remarks. - Dr. David Gray Director, National Institute on Disability and Rehabilitation Research 9:15 A.M. Structure of the Forum: The Charge to the Participants Dr. Leonard Perlman 9:30- Panel #1 - - Income Support (SSDI) and Work Disincentives; 10:40 A.M. The Effects of SGA and Other Structural Issues. 10:40- Break 11:00 A.M. 11:00 A.M. The Honorable Madeleine Will and The Honorable Steve Bartlett to provide Welcoming Remarks. 11:20- Panel #2 - Medical Benefits (Medicare) and Work Disincentives. 12:30 P.M. 12:30- Lunch Break 1:30 P.M. 1:30- Panel #3 - Eligibility Conditions, Entrance Requirements, 2:40 P.M. and Their Effects (SSDI and Medicare). 2:40- Break 3:00 P.M. 3:00 P.M. Summary of Key Options to be Considered 3:30 P.M. Adjourn PANEL MEMBERS PANEL #1: INCOME SUPPORT 1. Douglas Badger Social Security Administration Room 114 Altmeyer Building 6401 Security Boulevard Woodlawn, MD 21235 8-934-8177 2. Ms. Marty Ford Association for Retarded Citizens 1522 K Street, N.W. Suite 516 Washington, D.C. 20005 (202) 785-3388 3. Martin Gerry, * 1 Thomas Circle Suite 350 Washington, D.C. 20005 (202) 223-0570 4. David Gray, Ph.D. Director, NIDRR U.S. Department of Education Mary Switzer Building 330 C Street, S.W. Room 3060 Washington, D.C. 20202 (202) 732-1134 5. Mr. Dale Hanks Commonwealth of Virginia Vocational Rehabilitation Services 4901 Fitzhugh Avenue P.O. Box 11045 Richmond, VA 23230 800-552-5019 * Moderator PANEL #2: MEDICAL 1. David Esquith Committee on Education and Labor Room 535 3rd and D Streets, S.W. Washington, D.C. 20151 (202) 226-3110 2. Ms. Karen Franklin Policy Associate United Cerebral Palsy Association Community Services Division 1522 K Street, N.W. Suite 1112 Washington, D.C. 20005 (202) 842-1266 3. Mr. Allen Jensen Subcommittee on Public Assistance and Unemployment Compensation Room B-317 Rayburn House Office Building Washington, D.C. 20515 (202) 225-3625 4. Douglas Martin, Ph.D. Culver City Senior Center 4153 Overland Culver City, CA 90230 (213) 202-5864 5. Malcolm Morrison, Ph.D. * Office of the Associate Commissioner for Disability Social Security Administration Room 100 Altmeyer Building 6401 Security Boulevard Baltimore, MD 21235 8-934-0301 6. John H. Noble, Ph.D. School of Social Work University of Buffalo Allen Hall 3435 Main Street Buffalo, NY 14214 (716) 636-3381 7. Gail Schwartz Washington Business Group on Health 229-1/2 Pennsylvania Avenue, S.E. Washington, D.C. 20003 (202) 877-1526 * Moderator PANEL #3: ELIGIBILITY 1. Ronald Conley, Ph.D. Administration on Developmental Disabilities Department of Health & Human Services Room 347-D Hubert Humphrey Building 200 Independence Avenue, S.W. Washington, D.C. 20201 (202) 245-2890 2. Lex Frieden National Council on the Handicapped 800 Independence Avenue Suite 814 Washington, D.C. 20591 (202) 267-3235 3. Edward Hester, Ph.D. Rehabilitation Programs Menninger Foundation 700 Jackson 9th Floor Topeka, KS 66603 (913) 233-5501 4. Richard Melia * NIDRR U.S. Department of Education Mary Switzer Building 330 C Street, S.W. Room 3428 Washington, D.C. 20202 (202) 732-1195 5. Mr. Claude Myer State Director Department of Vocational Rehabilitation Services/State Office 620 Northwest Street P.O. Box 26053 Raleigh, NC 27611 (919) 733-3364 6. Mr. David A. Rust Associate Commissioner for Disability Social Security Administration Room 508 Altmeyer Building 6401 Security Boulevard Baltimore, MD 21235 (301) 594-2730 * Moderator WORLD INSTITUTE ON DISABILITY/ NATIONAL COUNCIL OF INDEPENDENT LIVING SSDI WORK INCENTIVE PROPOSAL Section I Background Information on SSI Work Incentives During the 99th Congress, the major SSI Work Incentives - Section 1619 A and B - were permanently authorized. Section 1619 provides special cash payments to SSI recipients at a reduced level so they can obtain or continue in part-time or full-time employment. Section 1619 B allows recipients to maintain SSI status once they are ineligible for cash payments, in order to receive Medicaid benefits under "Title XIX". These two provisions have provided a significant oppor- tunity for disabled individuals on Supplemental Security Incone (SSI) to obtain employment, reduce dependency on the government, and contribute to our society. In addition to permanent authorization of Section 1619 A and B, this legislation: 1. Repeals the "Trial Work Period" and the "Extended Period of Eligibility" provisions that formerly applied to SSI. 2. Permits an individual to move from one category of eligibility to another (ie, Regular SSI payments, 1619 A, and 1619 B) based on earnings. 3. Provides for the continuation of regular SSI payments through the second full month for Section 1619 re- cipients in public institutions and medical facilities. 4. Requires that the cost of impairment related work ex- penses for the disabled and the cost of achieving a "Self Support Plan, together with the value of publicly funded attendant services, be added to the consideration of whether an individual's earnings provide a "reason- able equivalent" of benefits which the individual other- wise would have been entitled to in the absence of earnings. Clarifies that state supplementary payments are to be considered in such determinations. Requires that the "reasonable equivalent" of benefits criteria under Section 1619 B be based upon informa- tion and data that are updated at least once a year. 5. Mandates continued Medicaid coverage in Section 209 B states to those SSI recipients who are eligible for Medicaid under a state's more restrictive criteria, beginning with the time they became eligible under Section 1619. 6. Provides that the Social Security Administration should have among its employees persons who are specifically knowledgable about the Section 1619 program, and that such persons be available to provide assistance to SSA District Offices. 7. Requires the Secretary of Health and Human Services to automatically notify individuals receiving SSI on the basis of disability, of their potential eligibility under Section 1619 at the following: times: - when eligibility is intially awarded - when earned income first exceeds $200 per month - periodically thereafter so long as earned income exceeds $200 per month 8. Provides continued Medicaid coverage for those individuals who lose their eligibility for SSI when their income increases because they become newly eligible for SSDI as a "Disabled Adult Child" (DAC), or because of an increase in their benefits as a DAC. The SSI work incentives have opened the doors for disabled individuals to fully participate in their community and achieve independence. The SSI work incentives are the foundation and model for developing a similar work incentive for SSDI beneficiaries. Section II Proposed SSDI Work Incentives Purpose To improve the Work Incentives for permanently disabled persons receiving Title II, Social Security Disability Insurance (SSDI) benefits, so that they will be encouraged to work to their full potential. Under current law, although several work incentives exist, the following groups of SSDI beneficiaries experience serious disincentives to employment: -2- dual SSDI/SSI recipients (persons who receive a 1ow SSDI benefit, and an additional SSI payment) SSDI beneficiaries with significant medical problems, who depend upon Medicare coverage now and will always need need medical coverage in order to function and to work. SSDI beneficiaries with earning capacity in excess of $300 per month Policy Options The following is a list of widely ranging policy options which we believe would greatly enhance the work incentives in Title II. Some of the options are relatively complete in themselves and others are only partial solutions which require additional pro- visions to bring about a comprehensive work incentive. The most complete options are listed first with partial solutions following. In addition, actual case histories are cited in support of various provisions. 1. Develop an SSDI program similar to the SSI "1619 A" program that allows disabled individuals to obtain employment and receive partial cash benefits based on earnings, until a "break even" point is reached (similar to 1619 A) - Monthly benefits would be reduced when the person passed the SGA level, one dollar for every two dollars of earnings over SGA. 2. Create an SSDI program that extends Medicare eligibility in the same way that Medicaid is extended under SSI 1619 B - This incentive is important because it protects Medicare benefits when earnings are too high for cash benefits, but not high enough to offset the loss of Medicare. - currently, many beneficiaries do not want to pursue employment in fear of losing Medicare benefits after 36 to 48 months (the current limit) - this is significant to persons pursuing part-time employment because health benefits are not generally provided to part-time workers 3. Develop a work incentive for SSDI/SSI recipients that are dual enrollees. The SSI 1619 program addresses their SSI payments. However, no work incentive addresses their SSDI benefits. --3- - Title II payments are now provided dual enrollees on an all or nothing basis while they work. For the first 12 months of work activity they receive Title II payments with no reduction based on earnings. After 12 months of work activity above SGA, the Title II payments stop completely, and after 24 months beyond the extended period ofeligibility (EPE), Medicare ceases. An incentive could be provided by applying the SSI benefit reduction formula, as a result of earnings, to the Title II payment of dual enrollees - that is, use the standard $65 per month earned income exclusion and one-half the remainder to determine countable income and in turn the Title II monthly benefit amount. Allow the application of impairment related work expense exclusions (IRWE) in calculating the monthly Title II cash payment amount for dual enrolless; also allow the same exclusions for a PASS. - Broaden Section 1619 eligibility for dual enrollees to include receipt of a Title II (Section 202) payment as well as the current criteria of receiving Title XVI (Section 1611) payments. - Eliminate the 9-month Trial Work Period and 15-month EPE as it applies to Title II for dual enrollees in favor of their direct usage of Section 1619. - Define the extended period for Medicare benefits as 48 consecutive months after the first month of work activity above SGA instead of 24 months from the end of the EPE. - Include for dual enrollees the cash-out value of Title XVIII in the calculation formula for determining the reasonable equivalent of earnings threshold (RET) for Section 1619(b). Currently, dual enrollees have a disincentive to work activity in that their upper level of earnings (RET) does not take into account the value of Medicare payments which reduce outlays by Medicaid. This results in a lowering of the upper limit on their earnings as compared with SSI only recipients. This suggestion would eliminate such a discrepancy. It also provides for a method of continuing Medicare eligibility beyond the extended 48- month period should a person's income not provide an equivalent for the loss of these benefits. -4- - Set the order of cash benefits reduction because of earnings as first the Title XVI Federal Benefit Rate, then the State Supplemental Portion (where applicable), and finally the Title II amount. 4. Make the Title II Substantial Gainful Activity (SGA) amount for disabled persons equal to that provided blind recipients by Section 223 (d) (4) of the Social Security Act. This would, in effect, make the current SGA level $680 per month and would be the same as the "exempt amount" under Section 203(f) (8). The "exempt amount" is the amount of earned income which a person age 65 to 70 may have without reducing their Social Security retirement benefits. 5. Eliminate the first 24-month Medicare waiting period for Title II recipients. 6. Extend indefinitely the time a working disabled person is given during which he or she may return to Title II recipient status without triggering a second 24-month Medicare waiting period. This would be in lieu of the current 5-year (7-year Disabled Adult Children) maximum time limit. 7. Allow Title II beneficiaries who are working to pay a premium for continuing Medicare at the end of the 48-month extended coverage period; premiums would not exceed more than 8% of their income. (This option was proposed by Senator Broyhill last year in S. .2686.) 8. Add a "hold harmless" provision to the Title II computation of earnings formula equivalent to that afforded blind recipients. Such a provision would assure Title II recipients who work despite having a continuing disability that their future cash payments would not be reduced because their post-disability earnings averaged less than those prior to their disability. In effect, this provision would guarantee a working Title II recipient that should they ever need to again receive Title II cash payments the payment amount would be equal to the amount they received prior to SGA plus any actual cost of living adjust- ments given Title II recipients as a whole. Presented by Douglas Martin, Ph.D. at the Department of Education SSDI Work Incentives Forum April 9,1987, Washington, D.C. For more information contact (213) 202-5864 -5- CASE HISTORIES See Options Problem: John is a paraplegic who graduated from High School #1 and #2 in 1974 and was in a motorcycle accident in 1977. John is married and has two children and is on SSDI. After his accident, he entered work activity at a local shelter workshop and ended up using three months of his Trial Work Period Service Months. John did not realize that he used up three months of his Trial Work Period while employed at the shelter workshop. His employ- ment to the shelter workshop did not provide sufficient income to support his family. If he would have continued and used up all nine months of his Trial Work Period, John would have been cut off the SSDI Program and not have sufficient income to support his family. Also, he would not receive continued Medicare benefits after three years. As a result, John has been forced to stay on the system and not pursue employment opportunities. Solution: Develop an SSDI Work Incentive Program similar to the SSI 1916A Program that would allow disabled individuals to obtain employment and receive partial cash benefits based on earnings. Another solution is to create an SSDI Program that extends Medicare eligibility in the same way that Medicaid is extended in SSI | 1619B. These two solutions would allow John to obtain part-time employment or some kind of employment and receive partial cash benefits to support his family until he earns significant income. -6- See Option Problem: Mary is a respirator dependent quadriplegic who lives #3 in a state that does not supplement Title XVI. She was receiving Title II and Title XVI before she began working January 1985. The last month of her EPE was December 1986. She is now (March 1987) on the third month of her 24 month extended Medicare coverage. She is also covered by Medicaid under Section 1619(b). Her actual monthly respirator cost is $670.00. Of this Medicare approves $464.00/ month and pays $371.00/month. Medicaid pays the remainder of $299/month. Mary recently had an opportunity for promotion at work which made her ineligible for continued 1619(b) status because her earnings exceeded the reasonable equivalent of earnings threshold (RET). This would not have happened to an identical person who was SSI eligible only because such a person would have been covered exclusively by Medicaid which would have paid the entire $670.00 monthly for her respirator and this full amount would have been a part of the RET calculations, not just the $299.00/month in Mary's case. Currently, the value of Medicare is not counted as part of the RET. In this example the disincentive for being a dual enrollee is $371 per month. Solution: Add the cash-out value of Title XVIII to the calcu- lation of the RET which now includes only Title XVI, XIX and publically funded attendant services. -7- Problem: See Option Peter is a quadriplegic who lives in a state with a federally #3 administered supplement. He is a dual enrollee and has been working for 6 months. He earns $750/month gross wages. This is his first work attempt. He receives $395 Title II and $185 Title XVI. Peter's IRWE's are $350/month. He needs a driver to take him to and from work as well as personal assist- ance on the job. He also uses a specially equipped van. Peter cannot claim IRWE's in this case solely because he is a dual enrollee. If he were a Title XVI only recipient this exclusion would be applicable. Under present rules (20 CFR 416.1112(c) (5) and 416.2030) in order to claim IRWE's a recipient must have total countable income after the IRWE exclusion that does not exceed the full FBR of Title XVI. Solution: Provide for a $1 for $2 spend down on Title II and allow IRWE exclusions to calculate cash payments with reduction sequence: Title XVI, then SSP, then Title II. See Option Problem: #3 Carol is a paraplegic with a seizure disorder. She lives in a state with a federally administered supplement. She is a dual enrollee with $360 Title II and $220 state supplement. She needs Medicaid for expensive medication to control her seizures in order to work. She began working one year ago. Six months before her first work her father retired and she began to receive -8- Title II payments. Her gross wages were $665 per month and at the end of 9 months of SGA she was found ineligible for Section 1619 and continuing Medicaid because she did not receive at least $1 of federal benefits under Title XVI. Her Title II payment had replaced this benefit and SO rendered her ineligible for the medical coverage she needed to continue working. She was not yet eligible for Medicare because of the 24 month waiting period. Solution: Allow Section 1619 eligibility for dual enrollees to include receipt of a Title II (Section 202) payment as well as the current Title XVI (Section 1611) payments. -9- PAYING A PRICE TO WORK Disabled from a stroke and le- gally blind, Deborah McKeithan, 33, travels to Capitol Hill today to lobby against work disincentives for the handicapped. The problem: Switching from a volunteer job to a salaried position, she'll lose Social Security Disability Income bene- fits, including the all-important Medicare insurance. "I want to be- come a taxpayer," she said. "But my last major setback cost $20,000, and insurance companies say I'm uninsurable. I must have Medi- McKEITHAN: Fight- care, and I'm willing to pay my fair ing for handicapped share." From a motorized scooter-wheelchair, the energet- ic North Carolinian is pushing Fair Share Incentive Plan to let the working disabled buy Medicare insurance on a slid- ing scale based on income. McKeithan - founder and pres- ident of Handicapped Organized Women, a support group based in Charlotte with 140 chapters in 43 states - will be on hand when the bill is introduced today by Rep. Alex Mc- Millan, R-N.C., and Sen. David Durenberger, R-Minn. WASHINGTON TODAY President Reagan lunches with sponsors of the Bicen- tennial Commemorative Commission on the Constitution. Senate hearing on Medicare hospital-payment rates. House hearing on EPA pesticide program. Written by Paul Leavitt. Contributing: Leslie Phillips, Jeannie Williams, Johanna Neuman and Margaret G. Bigger. need for functional exam eligablity - phasic disablitys SSDI like SSI Insurance and income cross cutting view of costs and benefits advocates waiting Supplemental Security Income means that when past work is precluded the primary focus of the disability defini- Supplemental Security Income (SSI) was added to the Social Security Act in tion is whether an individual can do work and not whether the person can get work. 1972 as Title XVI. SSI provides monthly cash payments to aged, blind and disabled needy persons. There are nationally uniform federal eligibility standards. SSI The Social Security Administration uses a five step sequential process in deter- replaces state welfare programs to the same group of eligible persons. mining whether there is a disability for both SSDI and SSI purposes. SSI recipients must meet certain income and resource limits to become eligible Step 1 - Determine whether the individual is working, and does it constitute for benefits. The regular Federal SSI benefit standard for an individual for 1985 is substantial gainful activity. $325 a month and $448 for a couple. States may supplement the regular federal SSI Step 2- If the individual is not engaged in SGA, determine whether the in- payment standard. The result is often a combined state-federal payment which can dividual has a severe impairment which causes a significant restric- vary from state to state. Individuals who are in a public hospital or other public in- tion in performing work related functions. stitution where most of the bill is paid by Medicaid, the monthly federal SSI pay- Step 3- If a severe impairment is present see if the impairment is listed in SSA ment is reduced to $25 to allow for small personal expenses while they are in the regulation and/or whether it meets the duration requirement (12 hospital or institution. There are complex regulations which take into account the months) and level of severity. living situation, income disregards, in kind support, resources and deeming of in- come to determine the monthly payment level. Step 4 - Determine whether the individual can do work which he/she has previously done. While many, if not most, SSI recipients are covered by Medicaid, states have three options on how to cover recipients. Step 5 — If the person cannot do previous work, determine whether he/she can engage in SGA based on residual functional capacity for work 1) Automatic eligibility through agreement between SSA and the state. and vocational factors such as age, education and prior work ex- 2) Automatic eligibility but with separate Medicaid application. perience. If the person is determined not to be able to engage in SGA 3) State imposed Medicaid eligibility requirements that are usually more restric- at this stage then the disability is allowed. tive than federal criteria. Contact should be made with the appropriate state agency to determine which Substantial Gainful Activity method is used in your state. It is important that the concept of substantial gainful activity (SGA) is understood since it is used in determining whether a disability exists and also plays Definition of Disability an important role in several of the work incentives. While eligibility criteria differ greatly between Social Security Disability In- The primary consideration in determining whether work activity is SGA is the surance beneficiaries (Title II) and Supplemental Security Income recipients (Title countable earnings derived from the employment. The current countable earnings XVI), the definition of disability is the same for both programs. The Social Securi- guideline representative of SGA for nonblind employees is earnings averaging over ty Act sets out a unique definition of disability. $300 per month (called the primary guideline). There is also a secondary SGA guideline for employees which is currently $190 per month of countable earnings. The statute provides in essence: That an individual must have a medically deter- The significance of the SGA secondary guideline is that earnings below the secon- minable impairment which has precluded or can be expected to preclude any dary amount are generally presumed not to be SGA. For earnings between the substantial gainful activity (SGA) for twelve months or terminate in death. Fur- primary amount ($300) and the secondary amount ($190) it is necessary to consider ther, the impairment must not only prevent a person from doing his/her past work, certain nonmonetary criteria to determine if the work is SGA. but also prevent him/her from doing any other substantial gainful work that exists in the national economy. The statute specifically requires consideration of an in- The nonmonetary criteria involve two tests. dividual's age, education, and past work experience in determining disability; 1. Test of Comparability - Does the work compare to that done by unim- however, it precludes consideration of any matters that go to the issue of employa- paired individuals in the community engaged in the same or similar occupa- bility, e.g., job openings, or whether the person would be hired if applied for the tions for their livelihood and job. In essence, the critical issue is whether the impairment and the individual's 2. Test of Worth - Is the individual's work clearly worth more than the age, education, and past work experience precludes the performance of SGA. This primary earnings guideline ($300 per month)? 2 3 For individuals employed in a sheltered workshop or similar rehabilitation facility, the SGA secondary guideline is of little significance. If their earnings are below the SGA primary guideline ($300 or less), the earnings are generally presum- ed not to be SGA. By reason of specific legislation in 1978, there is no secondary guideline for the blind under Title II and there is a larger SGA earnings guideline for the blind. It is currently $550 per month and the guideline increases with the Consumer Price In- dex. The blind, under Title XVI, are not subject to the SGA tests. In determining countable earnings of employees for SGA purposes, any sub- sidies provided by an employer plus impairment-related work expenses (IRWE) are deducted from gross earnings. Impairment related work expenses can be deducted from gross earnings before determining countable earnings for SGA purposes. The Social Security Ad- ministration also allows deductions of subsidies from gross earnings. A subsidy will be found to exist when wages exceed the value of services performed. Subsidies will be found to exist where an individual requires unusual supervision or assistance in order to perform work or where individual productivity is not used to determine wage level. In some instances periods of employment above the SGA level can be considered an unsuccessful work attempt (UWA). To qualify as a UWA, the work must have been of 3 months duration or less and been discontinued or markedly reduced because of the impairment or removal of conditions essential to further perfor- mance, such as special hours, equipment, or other assistance on the job. With ad- ditional qualifications the unsuccessful work attempt can last up to 6 months. 4 I. BASIC PROVISIONS OF SSI AND SSDI Social Security Disability Insurance Program The Social Security Disability Insurance program (SSDI) provides monthly cash benefits for workers under age 65 who become disabled. Coverage for the Social Security Disability Insurance Program is basically the same as for the Social Securi- ty Old Age Survivors Insurance (OASI) program. However, there are differences in insured status and administration of the programs. A percentage of the Social Security taxes paid by workers is allocated to the Disability Insurance Trust Fund. This is the source of funds for monthly benefits paid to the disabled worker and dependents and for administrative expenses of the program. In addition, the revenue derived from the taxation of disability benefits is also deposited in the Trust Fund. There are four types of disability beneficiaries: 1) Disabled Worker 2) Spouse Benefit 3) Child's Benefit 4) Disabled Child's Benefit Note that many clients receive SSDI benefits because they were disabled prior to age 18 or they are the son or daughter of an insured parent who has retired, become disabled or died. To receive disability benefits, a worker must have the requisite number of quarters of coverage. Workers age 31 or over who are not blind must have 20 quarters of coverage during the preceding 40 quarters. Workers under age 31 must have been covered for at least one half of the quarters since they reached age 21. However, a minimum of six quarters is required. The amount of SSDI benefits is based on the earnings and length of employment of the worker. Benefits may be reduced if other federal state and local benefits are being received. Disability determinations are made by state agencies which make determina- tions following guidelines and regulations issued by SSA. SSA may review state determinations and under the 1980 amendments must review non-permanently disabled persons every three years. Benefits may be terminated if there has been medical improvement in the person's condition and the person is able to engage in substantial gainful activity (SGA). 1 FEDERAL DISABILITY POLICY: A FORUM ON WORK DISINCENTIVES Agenda 9:00 A.M. Opening Remarks - The Honorable Steve Bartlett 9:10 A.M. Introduction to the Forum - The Honorable Madeleine Will 9:20 A.M. Structure of the Forum: The Charge to the Participants (Chairperson to be selected) 9:30- Panel #1 - Eligibility Conditions for SSDI and Their 10:40 A.M. Effects ; Determinants of Employability 10:40- Break 11:00 A.M. 11:00- Panel #2 - Medical Benefits and Work Disincentives; 12:30 P.M. Issues of Medicare, etc. 12:30- Lunch Break 1:30 P.M. 1:30- Panel #3 - Income Support and Work Disincentives; The 2:40 P.M. Effects of SGA and Other Financial Issues. 2:40- Break 3:00 P.M. 3:00 P.M. Summary of Key Options to be Considered 3:30 P.M. Adjourn PARTICULARS LOCATION: The L'Enfant Plaza Hotel is located at 480 L'Enfant Plaza, S.W. in Washington, D.C. (202) 484-1000 LODGING: You will need to make your own transportation and hotel reservations. The hotel rate is $120.00 per night for a single room. A block of rooms has been reserved under the Department of Education Social Security Disability Conference. Due to a very limited amount of rooms, please make your reservations as soon as possible. MEALS: At participant's own expense. STATEMENT OF EDUCATION UNITED STATES DEPARTMENT OF EDUCATION OFFICE OF THE ASSISTANT SECRETARY FOR SPECIAL EDUCATION AND REHABILITATIVE SERVICES UNITED STATES OF FAMERICA Lex Frieden National Council on the Handicapped 800 Independence Avenue Suite 814 Washington, D.C. 20591 Dear Mr. Frieden: You are cordially invited to be a panelist at a meeting on Social Security Disability Insurance entitled, "Federal Disability Policy: Forum on Work Disincentives," to be held on Thursday, April 9, 1987, from 9:00 A.M. until 3:30 P.M. The Forum will be held at the Loews L'Enfant Plaza Hotel in Washington, D.C. Enclosed please find an agenda of the day's events. Should you have any questions, please feel free to contact Mr. Leonard Perlman at (301) 460-1397. We are very excited about this Forum and are anxious to hear your views and perspectives. I look forward to participating with you in this important event. Sincerely, Madeleine Scill Madeleine Will Assistant Secretary Enclosure 400 MARYLAND AVE., S.W. WASHINGTON, D.C. 20202