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Originally Processed With FOIA(s): FOIA Number: S S FOIA MARKER This is not a textual record. This is used as an administrative marker by the George Bush Presidential Library Staff. Record Group/Collection: George H.W. Bush Presidential Records Collection/Office of Origin: Speechwriting, White House Office of Series: Speech File Backup Files Subseries: Chron File, 1989-1993 OA/ID Number: 13760 Folder ID Number: 13760-004 Folder Title: Groundbreaking-Hospital for Sick Children 6/13/91 [OA 8324] [2] Stack: Row: Section: Shelf: Position: G 26 21 4 6 001 1 526-8937 Call for pickup Time Dept. Charge Today's 4/25 Telephone # Return Washington 076104 01 DAVID C CORP HOSPITAL FOR 1731 BUNKER Date WASHINGTON 2 HSC 529-2791 Destroy BUSINESS HOSP SICK CHILDR JOU No. of Pages From Company Location Fax # Original Disposition: Attach Document At ine VOLUME 10, NUMBER 39 ONE DOLLAR As customers pinch, hospitality trade sells harder, cuts deeper Hospitals: A temporary job charted the 19- By MOLLY D. RATH head. They'r trimming staffs, improving year career path The freeze in big conventions coming to customer service, cutting down on inven- for Dr. Con- town- coupled with travelers' recession- tory and they're all marketing much hard- 5202 529 2791 stance U. Battle, wisened spending ways - has had an er, more intelligently." Telephone # unwelcome effect on Washington's entire Restaurants are luring visitors with 20 chief executive $3.7 billion-a-year hospitality trade. percent discounts and piling plates with of The Hospital larger portions; linen launderers are offer- for Sick Chil- THIRD IN AN ing hotels fixed-rate, per-room prices; and dren in D.C. The $700 that the average convention- cast, the National Restaurant Association 02/25/92 18:09 Fax Transmittal Memo 7672 White House Speech Wrtes OCCASIONAL SERIES cab companies are starting to stay closer to where the fares are. Businesses everywhere are hurting. In a recent foodservice industry fore- Finance: The sale of Perpel jewel- its profitable mortg eer once spent when in Washington, the predicted an anemic recovery for the Cap- my- is likely to occur befo: bread and butter of hundreds of local busi- ital region's eateries, food purveyors and March, according to the Res To Carol Aarhus 456-6218 nesses, is declining, forcing restaurateurs, tabletop suppliers. According to the NRA, Trust Corp., the agency spa commercial launderers and limousine ser- Washington restaurant sales will be $928 the spinoff. vices to rightsize and readjust to a climate million in 1992, up 2 percent from 1991 of changing customer demand: more ser- Menu price inflation this year is expected Advertising & Marketing: ? vice for less money. to be 3.8 percent compared to last year's Blockbuster Video franchisee Post-it brand Company Location Comments "It's called bottom-line shopping," said 3.4 percent, the lowest it's been since to go it alone, leaving local ac Fax one restaurant supplier. "Cash flow is 1965. Projections for Maryland and Vir- Needham Washington out an down and businesses are reducing over- See HARD-HIT, page 25 worth about $750, 000, Extended Page *****$*DIGIT 10017 BB0607/20/92 267 RD R SICK CHILDREN HILL RD SE DC 20017 JRNAL WEEK OF FEBRUARY 24, 1992 Global bank group seeks huge block of space PAGE 12 etual's crown International Finance Corp., IMF agage compa- boom in wake of world shifts are the end of By MELANIE WELLS esolution The World Bank, bolstered and embold- earheading ened by business in Eastern Europe, is PAGE 5 bursting at its downtown D.C. seams and is scrambling for upwards of 500,000 square The largest feet of new space for divisions like the e has decided International Finance Corp., the Business ul shop DDB Journal has learned. n account "The World Bank and the IMF will be PAGE 16 the biggest developers in Washington in PAGE 2 WASHINGTON BUSINESS JOURNAL 002 Week of February 24, 1992 Filing Systems That Work IN THE NEWS Open Shelf Filing Mobile Filing Systems Color Coded Filing Supplies Lateral & Vertical Files OFFICE Sales 4 Planning # Installation A WORLD HOSP SICK CHILDR Afterhours & Weekend Conversions Complete Workflow analysis 652 Elden Street, Herndon, VA 22070 703-471-9555 Office Supplies Filling Systems Business Furniture Office Machines A career of care: Dr. Constance U. Battle, chief executive of The Hospital for Sick Children. Page 12. ADVERTISING & MARKETING MANUFACTURING Rappahannock County 735 acres The Washington area's biggest Block- Fairchild Corp. reported losing $7.7 mil- buster Video franchisee has broken away lion for the quarter ended in December and from corporate's regional advertising group, cut 550 jobs in its aerospace-fastener sec- DDB Needham Washington, and hired its for in an effort to hold down costs. own in-house marketing guru. Page 6 6202 529 2791 Page 16 Mobil Corp.'s flat performance for 1991 is likely to continue this year because of stagnant oil prices and slow growth in the world economy, analysts say. MEADOVBROOK FINANCE Page 10 Picturesque farming estate located at the foot of the Blue Ridge Mountains, Residence overlooks a 10 acre lake and is reminkscent of hunes in the Siviss Alpa, Formal berwood gardena, all weather tennis court, 60 x 28" concrete nool guest house. manager house John Morton III, the former president tenant houses, barns and 9 ponds 11/4 hours from Washington, D.C. 18:10 and chief executive officer of the now TRANSPORTATION $2,350,000 defunct Perpetual Savings Bank, says he X will return to the Washington area one day, The Virginia Toll Road Corp., a private FRANK HARDY INC REALTORS but probably not before he retires from the venture which plans to build a vital trans- FARM AND ESTATE BROKERS banking profession. portation route linking Fairfax and Loudoun Page 4 counties, is negotiating to sell a stake in the 02/25/92 project to Paris-hased Transroute Corp. 02/25/92 18:11 202 529 2791 HOSP SICK CHILDR 003 PAGE 12 WASHINGTON BUSINESS JOURNAL Week of February 24, 1992 JOURNAL PROFILE Heating the handicapped: Dr. Con- stance U. Battle, head of The Hospital for Sick Children. with Kimmi, an 18- month-old patient a Constance Urciolo Battle work and abilities, even though 1 had my position and vantage point" self-doubts; you encouraged me to be That Battle is a woman in her position strong and believe in myself." puts her in an even smaller group. Accord- Battle herself has had role models, like Work with disabled children ing to the American College of Healthcare the classmate, 20 years her senior, who Executives, last year 17 percent of the encouraged Battle not to give up her career chief exccutives of U.S. hospitals not affil- when Ursula was. born. And the former inted with a religious order were women. head of George Washington University influenced her career path Battle has been a leader of women in Medical Center, who gave her gentle medicine, locally and nationally. She ded- encouragement and a great recommenda- icates several mornings a week to tutor a tion. And Parrott, who pointed her toward female medical student through a mentor By LOUISA SHEPARD ESCOBAR Battle has special insight into the strug- The Hospital for Sick Children. program set up by the American Women's onstance Urclolo Battle's resume gles of the handicapped: Her eldest child, "I saw the great opportunity here. It was C Medical Association. runs 16 pages, but it was a tein- Ursula. is severely disabled by cerebral in dire straights, it was in a mess, but it had Not only the students look to her as a purary job that didn't even make palsy, born breach 24 years ago when Bat- such potential," she said. mentor. Dr. Lillian Gonzalez-Pardo, a the list that set the direction of her the was in the middle of her residency at the Battle turned the ailing hospital around, pediatric neurologist at the University of career. University of Rochester. bringing in a medical staff that is commit- Kansus, asked Battle to speak as a role Battle said she never seriously consid- ted to transitional care, and boosting the In the late 1960s when her then-husband model at her induction as association pres- decided to finish his residency at the Uni- ered pulling back her career, even though hospital's ragged reputation. ident last year. her mother said she should. "The only "She's certainly a very efficient admin- versity of Illinois in Chicago. Battle took a In her letter Gonzalez-Pardo wrote: job at the dental school's center for cranial thought I had in my head was what would istrator. She's very skillful, and has a great "You are a prime role model in your pro- facial anomalies. She ended up mediating help Ursula. I felt I could become more sense of direction," said Dr. Roselyn Epps, fessional work, the compassion you have meetings of 30 or more doctors to decide knowledgeable," Battle said, showing a member and former director of the non- for the patients and families you deal with, treatment for children with malformed family picture of herself with Ursula and profit hospital's board. "She is a very hard as well as your personal strength in caring faces. her two sons, 20-year-old Bill and 16-year- working person who is able to face chal- for your own daughter who has a major dis- "It turned out to be fantastic. 1 learned old Chris, lenges and move forward." ability, but I know brings joy to you and The hospital is only one of a couple how to coordinate a big team of subspe- Battle, 51, is one of those women who your family. cialists to orchestrate the care of a child has managed to do it all, Divorced in 1979, dozen of its kind in the country, rehabili- "You had trust and confidence in my whose condition is incredibly complex," she has raised her three children in her tating children who have gone through sig- Potomac home. One of the many seminars nificant trauma- - a premature birth, or an said Battle. "I had a taste of sitting nt the she conducts is titled: "The Professional auto accident - and preparing them and core, sitting at the hub, and making it hap- pen." Woman as Mother." DOSSIER their parents for life, That led her ultimately to become chief How did she manage? "I always say, and "We don't make heroic cures here, and I'm not being silly, just barely.' we hardly ever diagnose things heroleally executive officer and medical director of Battle said she doesn't know if she Constance Urciolo Battle, M.D. here, but we do enable a child to become The Hospital for Sick Children, where for missed out on anything, but she does The Hospital for Sick Children more functional, to reach his potential 19 years shc has been orchestrating care of severely disabled children in transition always feel under pressure. "It's kind of a here," Battle said. "We do help a family style of mine," she said. "I always liked it, Title: Chief Executive Officer and Medical adjust to him and take care of him and from the hospital trauma unit to their par- being under fire." Director ready itself for him." ents' homes. Her position puts her in that line. The Under construction outside Battle's Dr. Robert Parrott. former director of fact that Bartle is both a physician and a Age: 51 window is an 80-bed wing expected to Children's Hospital, National Medical hospital administrator is unusual, outside Spouse: Divorced admit patients by January. Six years in the Center, encouraged Battle to take over large teaching hospitals. For example, she works, it will be for the sickest children, leadership of the struggling hospital when Residence: Potomac is the only physician on the board of the and will have an array of now equipment she came to him for advice in 1973. She D.C. Hospital Association, and is chair- Noteable Quote: "There is a real lension and services. including a small apartment had just returned to D.C. after a two-year woman-clect. fellowship in health administration at Uni- between administrators and physicians, for families to live for several days, to learn "There is a real tension between admin- often vying for power, often distrusting one to care for their disabled children. The versity of Chicago's business school. istrators and physicians, often vying for another's group. If you act as & CEO and as existing building, constructed in 1926 and "I was struck then by her intelligence, power, often distrusting one another's a physician, that confounds the whole sce- modeled after a French chateau, will be and her hard work. but particularly her group. If you act as a CEO and 85 a physi- nario. I happen to be quite comfortable with used for administrative offices. and 50 dedication to children with disabilities," clan, that confounds the whole scenario," the fact that It puts me in à unique position beds for children needing longer-term sald Parrott, now director emeritus of Chil- Baule said. "I happen to be quite comfort- rehabilitation. dren's. and vantage point" able with the fact that it puts me in a unique See HER OWN DISABLED. page 25 004 is risky. Underwriter Thomas James Asso- cal-disk storage systems which can hold "It's been a niche market until now," Though the firm is a ciates of Rochester has consented to thousands of times more data than electro- said Egil Juliussen, editor of the Comput- charges of market manipulation by the magnetic systems in common use today er Almanac "It's still just at. the early start-up: it has added SEC. can store backlogs of inventory orders, stages before it takes off." together the financial Thomas James and its employees were financial records or law briefs. Optical disk technology has existed for forced to disgorge $1.5 million in 1990 for Sales of optical disk drives have grown a decade, but the software pieces are still statements of its four making misrepresentations and omissions 35 percent in the last year, said Jim Porter, coming together, he said. potential acquirees to in four initial public offerings president of Disk/Trend Inc. in Mountain So Network Imaging is in the right field The size and reputation of underwriters View, Calif. Large information compilers, ifit can pull it all together. Though the firm show earnings of $88,000 are taken into account by potential such as the federal government and Amer- is a start-up, it has added together the on revenue of $8 million investors. ican Express, are using the systems, he financial statements of its four potential No one at Network Imaging could be said. acquirees to show earnings of $88,000 on for 1991. reached for comment. "The major computer makers are offer- revenue of $8 million for 1991. The companies it plans to buy are: Symmetrical Technologies of For the whole boatload, Network Imag- HOSP SICK CHILDR Knoxville, Tenn., which makes optical ing is paying $870,000 and 285,000 of its Her own disabled child fueled Dr. Battle's storage systems. Each optical disk holds shares. With these troops it plans to go 650 megabytes of information - about after computer sales in the financial, fed- 100,000 printed pages - and systems are eral government and legal markets. passion for the welfare of sick children built to hold scores of disks. The officers and shareholders of the PE Systems of Alexandria, a govern- company aren't selling any shares in the son of my age. I just found it all fascinat- ment contractor. The firm provides engi- offering. But three officers will receive HER OWN DISABLED continued from page 12 ing." neering and encryption services to military $75,000 each that they are owed in back "This is my fourth baby," Battle said of and intelligence agencies. pay. the expansion. Battle grew up in D.C., her father a pro- Fundraising is on target, with $15 mil- fessor with a double doctorate in linguis- lion borrowed and $3 million donated SO tics and philology. She attended George far, almost reaching the $19 million need- Washington University School of ed, she said. Medicine, graduating in 1967, went to SMALL COMPANIES Battle led the charge to convince the city Rochester for her internship and residency 202 529 2791 to approve the expansion, armed with stud- and then to Chicago where she was the ies of D.C.'s children, and the hospital's only physician and only female awarded a The following price quotations are for common stocks of Washington-area companies not general- long waiting list. fellowship from the U.S. Department of ly available from automatic quotation services or other major publications. The list, supplied by Even though most of their care is paid by Health, Education and Welfare at the Uni- Wachiel & Co. Inc. Brokers and Underwriters, represents approximate dealer prices on Wednesday, Feb. 19, at 4:00 p.m. Medicaid, the hospital is financially versity of Chicago Business School. healthy, partly because it is not drained by Battle teaches at George Washington, BID ASKED BID ASKED Anadac Inc. 6-1/4 Howard and Children's, and leads semi- 6-1/2 Industrial Training Corp. 7 8 a trauma center. Battle said the hospital has Bowles Fluidics Inc. .05 a 2 percent to 3 percent positive operating nars at her hospital. She also writes papers, .15 Information Analysis Inc. 3-1/2 4-1/2 margin. dozens of them. One landed her on nation- Bresler & Reiner 9 12 Integral Systems 8-1/4 9 18:12 al television Prime Time Live, 48 Century Bancshares 2-1/4 4 Interference Control 1/32 1/16 Although she never dreamed of being an DASI Inc. administrator, Battle knew she wanted to Hours, 20/20 about caring for disabled 1-1/4 1-t/2 Luskins Inc. 1/4 5/8 Data Measurement 1-3/8 1-5/8 be a doctor when she was five years old and infants kept alive by high-technology Medical Advisory 7/32 3/8 medicine. Essex Corp. 3 3-1/2 her parents brought her back a doctor's bag Noxso Corp. 12-1/4 12-5/8 Exolech Inc. 3/16 1/2 Ross Industries 3/8 and nurse's cape from a trip to New York "We have the power to save babies," she wa 02/25/92 F&E Res Sys Tech 2-5/8 2-3/4 City. said. "We have to keep trying, but we have Security Storage 115 170 Hadron Inc. 3/8 7/16 SSE Telecom 5-3/8 "] was intrigued by what doctors did," to do it in a concerted way, and if it doesn't 5-3/4 Hallmark Bank & Trust 6 she said. "I remember when 1 turned six 9 Sutron Corp. 7/16 work for some, we have to take care of 3/4 System Tech Assoc. .10 .25 and I reached the average weight for a per- them throughout their lives." THE HOSPITAL FOR SICK CHILDREN August 29, 1991 We thought you would enjoy receiving our community newsletter, Small Talk, in which our Groundbreaking Celebration was featured prominently. The Celebration was a truly historic moment for everyone at the Hospital. We hope that when you read the stories and see the pictures you remember our important goals. Without your support, and the support of many others in the Washington area, we would not be able to deliver the special care needed by so many children. Our building project will be the key to the future for severely ill children. We are determined to keep delivering individualized, family-centered care designed to help each child reach the best level of development. We want to know how well each child can be. Thank you once again for your interest in the Hospital for Sick Children. Sincerely, Any J. Sally J. Smith Director Development and Community Relations HIMA Jed Director S. noz Public Relations 1731 Bunker Hill Road, NE Washington, DC 20017 202.832.4400 Sharing in the United Black Fund FACT- CHECK COPY perk.Jeavons Staffed for 4pm Tues. 6/11 immunization tie needed. (Hinchliffe/Blymire) June 7, 1991 11:30 p.m. CHILDREN Draft Three PRESIDENTIAL REMARKS: HOSPITAL FOR SICK CHILDREN 10am Thursday, June 13, 1991 1:30 pm Dr.Constance Ack- Sullivan Battle ofthe Board Washington, D.C. Montgomery Mr Stephen Ch. I think Barbara's a little jealous. She heard that 62 years CEO Dir ago the First Lady laid the cornerstone for the main building; so ;Med. she was hoping to do this job today. But I told her I wanted to . You see, Barbara's talked with me about her work here. She speaks with a grandmother's special love for those most in need. I've met some of you kids at my house, when you've X come for have beento Christmas parties. tours But I wanted to see this place for myself. re-work And you know something -- even listening to Barbara's stories didn't prepare me. I expected to feel sadness, but I felt something more -- real hope. As parents, we desperately want to protect our kids. We want to spare them pain or fear. That's why our hearts go out to families whose kids lie in the incubators and cribs and wheelchairs behind those walls. It's hard to face a world in which your children suffer. You ride an emotional rollercoaster. You struggle to make it from sunrise to sunset. You must draw upon the tools of courage, faith, and love to withstand the bitterness, the self-pity, the pain -- and the haunting knowledge that other children are leading carefree and happy lives. [[Barbara and I know. We've been there. ]] These marvelous kids have won their first great battle -- the battle for life. Now they're fighting the battle for recovery. And my money's on them. 2107/69 for your Lives An How Spen helpons keyl 1st SPON non of HVQ- CHECK HIQ-CHECK cobh A I - needs extra TLC after medical procedure 2 This is the place where they start. It may be hard for some of us to walk into this hospital. But you can't help but get drawn into the drama that unfolds within its walls. You see notes at the end of the cribs -- "she smiles when tummy is rubbed" -- or "he reaches for panda when it's moved away." As get signs you look through the thicket of ventilators, catheters, wires, cords and monitors, you catch glimpses of stuffed animals, photos benfused before of parents, little cards or drawings. Some tiny bodies bear the marks of what brought them here -- society's ailments -- abuse, accidents, drugs. But the staff's love and care cast a special light upon everything. I was reminded of a Bible verse that describes apostles who did their work because it was right -- and its rightness brought them joy. It says: "We were gentle among you -- like a nurse taking care of her children." " Gentle among us -- like the nurse in a rocking chair, cradling an infant swathed in tubes. Or the one who dressed a comatose girl in a new dress. The little girl, in her twilight world, may never pose for anyone, but she radiated a very special (NolandGump) beauty. Gentle like the senior citizen volunteer sitting next to OKV a window, feeding the blind toddler on his lap. The caregivers Jed have created within a maze of machines and respirators a human world -- a community of hugs and kisses. A world where people talk not of how sick the kids are -- but of how well they can be. WTimes A world where a nurse, explaining why she does what she does, Metro says without pausing to think it over: "They feel our love." can like mags. do. them, 3 You know, we toss around the word "miracle" a lot. But this hospital reminds us of its true meaning. A real miracle is ababy names. can't use saving one child. It's watching Jeb take the first unassisted breath of his two year life. It's seeing Lucy, paralyzed from get earno her high school dioloma real the neck down in a car crash, learning to draw with her mouth. astet - can computer stories It's saying goodbye to Pattie, who entered here 20 months ago, (gen) premature and weighing 24 ounces -- and who left here beaming, will leave here next mo. victor with mom and dad. 14mos. old been there We care for these kids because every single life is a primie precious. We feel for them because we feel deeply the right of all to realize their full potential as human beings -- and to afam. going home of because we want them to live with dignity and with pride. Schildron cheat That's the legacy of the Hospital for Sick Children -- a parents. legacy that must spread. I was amazed to hear that this is one Jed of only about a dozen similar hospitals in the entire nation. We 20? need more places like this -- transitional care facilities for kids who no longer require a hospital's acute care but who aren't handful" "a well enough to go home yet. We need communities like this, where parents can apply the salve of love -- and can learn how to care for their kids in the years ahead. The staff here is developing a program that shows how to set up this kind of hospital. I hope health-care professionals across this country will enroll and develop more hospitals like hospital about this one. Remarkably, facilities like this charge half of what traditional hospitals charge. And they work: They stabilize Jed children and give them the best possible chance to live -- and 4 recover. We will need more such centers, since the technologies that save lives also create more long-term care challenges. Barbara's told me you always have a waiting list. She's also told me you never turn away children whose families can't pay. I look at your plans for expansion, and think of how many more lives you'll be able to touch. The Hospital for Sick Children is a hidden treasure. And it brings out the hidden treasure in kids who otherwise might have been forever forgotten. No one who walks through your doors can leave without feeling a kind of sacred awe. You bring alive the prayer of St. Francis: "Where there is despair, let me SOW hope. Where there is darkness light. And where there is sadness joy. " Thank you for the life-transforming love you show. I will never forget this place -- or any of you. May God bless you -- your inspiring work -- and the very special kids inside. # # # # # Volunteer Director Karen King 8324400 MWF Jed@ 202-223 home 6479 (703) Beind 979 3111 beeper / hursday, June 130 Name Organization Phone Fax Dan Renberg Lead White House Advance 828-4952(w) 429-704. 703-276-7157(h SALLY SMITH HSC 202-526-8937 (0)529-279 202.342.9214 (H) Ded Nitzberg HSC 202-526-8937 (o) 529-27° 202- 223 - 6479 (H) Ohga Byll HSC 202-526-8937 (w) 301-439-3318 (H) ROD MONTEITH COMMUNICAIDS, Inc 703/549-4424 JR RANDELS HARGROVE, INC. 301/459-1400 Kevin McHale WH Comm Agency 202/395-5206 DALE W. ELLENBARGER WHCA 202 395-4056 James C. Rowh WHCA/Audio Visual 202 395-4220 Carol Blymire WH Speechwriting 202-456-7750 Suzanne faulk Presidential adv. 202/456-7565 . JIM KNODELL U.S. SECRET senv. 202/395-4011 AL FRASCOIA USSS /TSD 301-763-4864 Norman HARDY USSS-TSD 202-395-6396 KATHY JEAVONS WH - Public Liaison 202-456-7845 Paula Reano WH Press Advance 202-586-202 Fax 586-998 Robert Boswell usss/washington F.O. 202 6345100 1700 BLOCK BUNKER HILL RD. N.E. HARGROVE 9 I 20'-0" ////////// /////////// 11111111 ///////// IIIIIIII 5' PRESS RISER (2) 4' X 36' , 9'-0" STAGE MI -0 ã 12" x in NOTE: SEATING PROVIDED FOR 286 INSIDE THE TENT MICHIGAN AVE. N.E. DEDICATION FOR HOSPITAL FOR SICK CHILDREN of I WASHINGTON D.C. TELL SHEET SCALE: 1'-0" ACCIDENCE DRAWN PURANCELS MADER DATE: AUTOCAD 06/07/91 i 910HFSCH DRAWING NO. P1 Walk-through 6/10/91 10am Jed or Sally Smith Dan Rendberg , tead No tour. Will have children /therapists 15-20 in a roped-off 20-25 +40 people area for grip-n-grin. 5-7 minutes, no prompter POTUS arrives 10am w/FLOTUS & Sullivan seating under tent - 250 still more possibly outside (500-600 potential ?) CK unless they useadifferentbanner dais Dr. Constance Battle, CED & Medical Director Mr. Stephen Montgomery Ch. of the Board POTUS FLOTUS Sullivan Mr. Montgonery will introduce POTUS Battle Montgomery NEWS FROM THE HOSPITAL FOR SICK CHILDREN 1731 Bunker Hill Road, NE . Washington, DC 20017 202.832.4400 For more information, contact: Jed Nitzberg, (202) 526-8937 June 13, 1991 FOR IMMEDIATE RELEASE WASHINGTON POST AMONG TOP DONORS BACKING HOSPITAL GROWTH In response to the Washington metropolitan area's growing need for specialized pediatric medical services, The Washington Post has emerged as a significant donor to the Hospital for Sick Children's building and renovation project. "When one thinks of news in Washington, the first organization which comes to mind is The Washington Post,' said Sally Smith, the Hospital for Sick Children's Director of Development and Community Relations. "And when we were looking for supporters, one of our first actions was to turn to The Post. Its leadership recognized our need, and responded. They helped make the job of providing care to children a little easier." The Post has, over the years, donated nearly $200,000 towards the Hospital's medical and therapeutic programs for severely ill and disabled children. Of that, $50,000 has been targeted for the construction of the new 80-bed wing, an underground garage, education and conference center, therapy suites, parent training center and needed renovations. As part of the Groundbreaking Celebration marking the start of the project, representatives from the newspaper were acknowledged at a special luncheon honoring leading donors to the Hospital's Capital Campaign. (See "Major Donors Honored at Start of Project"). The newspaper's involvement with the Hospital for Sick Children has had a personal as well as corporate flavor. When she was a young woman, Kay Graham was an active volunteer on behalf of the Hospital. She participated in a variety of fund raising efforts with others similarly concerned about the health and welfare of Washington's children. That personal concern, combined with The Post's interest in local issues due to its prominence in the Washington business community, has transformed the connection from one individual to the current, significant corporate support. But the personal touch has not been lost: Vincent Reed, Ph.D., The Post's Vice President of Communications is currently a member of the Hospital's Board of Directors. ### June 4, 1991 Suggested Themes and Messages About The Hospital for Sick Children I) The Hospital is a special place for President and Mrs. Bush a) Mrs. Bush has visited at least twice b) She has also starred in our presentation video and PSA c) They have also referred dignitaries such as Queen Noor to us as a visitor d) The Hospital's patients have visited the White House for the annual Christmas tour and Easter activities II) The Hospital holds a unique position in local healthcare a) It is the only pediatric transitional care hospital in the Washington metropolitan area b) It treats children who are well enough to leave the acute care hospitals but not well enough to go home c) This frees up beds at the acute care facilities d) The Hospital for Sick Children delivers services at 1/3 to 1/2 the cost of acute care facilities e) We provide comprehensive services designed to bring each child and family to the best possible level of development and preparation before the discharge to home III) This expansion and renovation is meeting a growing need for transitional care services a) The Hospital has been at capacity since 1986 b) There is currently a waiting list for admission c) There are more children being saved by medical technology d) But the children being saved have more ongoing problems which need to be treated over time but not necessarily in an acute care setting IV) The Hospital is a successful response to a critical medical need a) It is efficient and cost-effective b) With all of the societal and health problems which exist, HSC has become a wonderful answer for some of these problems by being in the right place at the right time with its brand of care b) The Joint Commission on Accreditation of Healthcare Organizations recently awarded us a special commendation for achieving 96 out of 100 points on our most recent review c) We have had visitors from all over the country and even places such as the Soviet Union and Canada who want to learn about what we do d) We are also involved in projects such as a federal grant to produce a video and text about our developmental intervention program for national distribution V) The staff faces tough cases each day but they persevere with an attitude of hope and determination a) There are many moments of joy when children who come to us with many severe, life-threatening conditions are able to go home to families who have been trained to take care of them VI) There are also plenty of volunteers and donors who make the Hospital's work possible day after day, month after month a) That support comes in many ways work with the children, helping in the offices, making donations large and small b) As the Hospital grows, that help is going to be even more crucial VII) The Hospital is a hidden treasure in the DC metro area, and is one of only a handful of such facilities across the country. VIII) The Hospital also brings out the hidden treasures in each of our children. HOSPITAL SPECIAL: all needs -- medical, intellecyual, emotional, social and H psychological desperately ill children chance to live to fullest potential through therapy and care (dont' use whole phrase) unsettle your heart hard to look at a world where innocents suffer such sorrow never discharge or turn down because of inability to pay kisses, hugs, cuddling notes on bottom of crib not just how sick they are -- how WELL they can be offers tenderness, friendship, best medical care possible never so busy with intricacies of medical cre couldnt' give time, attention, affection transitional care facility for children from 2 weeks to 21 H years who are no longer acutely ill, but are not yet well enough to go home -successfully fills a niche in pediatric care very few in country (one of barely dozen) -- only one of kind in area, for area's most severely ill and disabled has received intensive care, still too sick to go home critical need for respiratory-dependent and developmentally-disabled infant care -- overly taxes acute care hospitals -- a niche in specialty care H free us beds at acute care facilities see in their eyes lessons of society -- the innocent victims of drugs, abuse, etc. health care facility taht addresses the "whole child" HC (60% of patients stay from one year to 18 months) It type of care important for family too -- because teaches how H to care for child -- family involvement importnat here -- developing a curriculum on how to implement this type of HC program elsewhere call to create more facilities like this one -- cost-effective (1/2 the cost) HC and medically-effective a role model -- can cut health care costs frees up beds at acute=care facilities is responding to the need H waiting list; more and more being saved by technology -- means more ongoing problems Joint Commission on Accreditation of Healthcare organizations, special commendation for 96 out of 100 oints volunteers stabilize the condition and give the child the best H possible chance at a normal life is a home -- trying to release to lives of hope, but in meantime playrooms and outdoor playgrounds ? visitors' book -- purpose -- "Love" "you will feel up for any challenge you may face after reading about these inspiring medical professionals and courageous young chidren." defy the odds such joy smallest steps mean the world -- -- (anecdotes: Washington Business Journal excerpt) RENOVATIONS E ambitious expansion project -- increase total number of beds by 50 --to renovate and expand; four units "gurgles happily when tummy is gently rubbed" -- or "reaches for panda when moved by attending nurse. " stufed animals; photo of parents; world of ventilators, catheters, tubes, heart motors, emergency life support equipment (change order around, subtract and/or add) -rocking chair with bottle parents "an emotional rollercoaster" -- family=centered care success story wtih scars --is a hidden treasure; brings out hidden treasures in our children miracles first breath without respirator; five-year-old first word paralyzed teenager h.s. diploma -- health care workers are miracle workers -- daily miracles as well, like the constant patience and love that take months to be rewarded the love shown; positive feelings; "They feel our love" -- coma child who, in her twilight world, will never know wearing dress H this is reality after the drama of the life=saving treatments when we talk of the future, we often talk in large, sweeping generalizatidns. HCS brings us back to reality. Saving one child is a miracle. European P-P. HS=hg IF health HOSPITAL FOR SICK CHILDREN L=lem --Speech: Thursday, June 13, 1991, 10 a.m. N=mune --DC Commissioner of Social Services; DC Commissioner of Public Health; Secretary Sullivan?; FLOTUS; children from hospital in front two or three rows -backhoe breaking down a wall like breaking down barriers to care for sick children TO DO: get 1st Four Freedoms speech Sinead will GB go inside beforehand? HISTORY: 62yman 1929 wing, Mrs. Herbert Hoover laid the cornerstron 1968 modern wing; 1984 new respiratory care unit parents need quiet, private place E $19 million expansion and renovation project ongoing education program (caring for sick chilcren) next: parent training program partment situation, get used to caring for their child FLOTUS visited at least twice -- Queen Noor -- patients to WH for évents like Christmas party for the handicapped -- Egg Roll?; Marillan Quayle CHILDREN: children are a gift from the Lord 1 Thessalonians 2:7: "But we were gentle among you, like nurse taking care of her children." (in reference to apostles who preach for the sheer joy, seek no special pleasure or privilege, no special glory.) "These are our children/Don't let them slip away Show them a future free of sadness" (Take 6) courageous little spirits battling to hang onto life premature -- would have died ten years ago; and intensive 2 H ,rehabilitation and developmental programs to receo er from life- threatening a ccidents or diseases are survivors -- won bht ebattle for surival, now fighting battle for recovery lives transformed by small victories C have extraordinary needs but many spent large part of small lives here children are our future life demands courage and determination the attention and afrirmation given these fragile little lives shows show every single human life precious, at every stage, every moment, every condition -- must revere, and must make every life full potential as a human being KK --vulmerable - life Enrold int ind June 3, 1991 MEMORANDUM FOR THE QUEEN OF SICK CHILDREN FROM: THE DEPUTY QUEEN OF SICK CHILDREN TDQOSC SUBJECT: HOSPITAL FOR SICK CHILDREN Hi! I spoke to Jed Nitzberg, a communications guy for Constance Battle, this morning and here's what he had to say. The groundbreaking ceremony is on the 13th at 10 a.m. It will take place at a park across the street from the Hospital, since construction has already been started. The Hospital is already in existence; it has a number of wings. The 1929 wing, of which they are tearing down a section to build this new wing; a 1968 section; and now this new wing. Something interesting about the 1929 wing -- Mrs. Herbert Hoover laid the cornerstone. The new wing will house 80 beds, all new therapy areas, nursery areas, and most importantly, quiet areas. The hospital decided that parents needed a quiet, private place to confer with physicians, or even their children. The wing should be complete in 1995. This groundbreaking marks the start of a $19 million expansion and renovation project. After they've finished doing this expansion project, they have plans to renovate the remainder of the 1929 wing. They will build a conference area where they will continue their employee education programs. They have an on-going education program, dealing with such issues as how to work a new monitor to caring extensively for sick children. Also after this expansion project, they plan to develop a parent training program apartment situation where they will have parents and their sick children living in an apartment situation to get them used to caring for their child without round-the-clock professional care. Again, this is not the wing we're talking about at the speech, I just thought it would be nice for you to know, and maybe make a reference to somewhere in the speech. POTUS and FLOTUS have had prior involvement with this hospital. FLOTUS has visited at least two times. She appeared in their video and 60-second PSA. The Bushes have sent visiting dignitaries to visit, like Queen Noor. Some of the patients have come to the WH for events, like the Christmas party for the handicapped, and I think the Easter Egg Roll. - continued - I spoke with my minister about biblical quotes, and he suggested the following: From Psalms 127:3 "Lo, sons are a heritage from the Lord, the fruit of the womb a reward. " This is nice, because we could say something like, "Psalms 127 says that children are a gift from the Lord. We must leave a Godly heritage to our children -- we must leave the world a better place than we found it. This hospital is ensuring that these children are given a chance at life -- a chance at making their world a better place to live. " From 1 Thessalonians 2:7 "But we were gentle among you, like a nurse taking care of her children." This is in reference to those apostles who preach for the sheer joy of preaching the word of God, that they seek no special pleasure or privilege, no special glory. They talk about the fact that they could have used the fact that they were apostles of Christ to their advantage, but they did not, as they " were gentle among you = From All I Really Need to Know I Learned in Kindergarten "Be aware of wonder, remember the little seeds in the styrofoam cup, the roots go down and the plant goes up and nobody really knows how or why, but we are all like that and it is still true, no matter how old you are when you go out unto the world it is best to hold hands and stick together. " From "Where will the Children Play?" by the musical group Take 6 "We look in the mirror every morning Not realizing there's a warning These are our children Don't let them slip away We've got to uplift them Give them guidance Show them a future free of sadness" Sinead From State of the Union, 1990 "To the children out there tonight, with you rests our hope, all that America will mean in the years ahead. Fix your vision on a new century -- your century, on dreams you cannot see, on the destiny that is yours and yours alone. June 3, 1991 MEMORANDUM FOR BETH-O-RAMA FROM: CAROL-O-RAMA CORAME SUBJECT: FOLLOW-UP ON THE HOSPITAL-O-RAMA There's a package being hand-delivered this afternoon that will go into detail on all of this, but I thought I'd familiarize you with the scoop. The walk-through for this is on the 7th, I think, but we should go tomorrow. There will be some local dignitaries present: DC Commissioner of Social Services, DC commissioner of Public Health, etc. This event is supposed to tie-in somehow to the immunization event that precedes it in the Rose Garden. The President will probably be accompanied by Secretary Sullivan, although they're not quite sure yet. Dr. Battle will welcome everyone to the event, there will be an invocation, and then POTUS speaks. After his remarks, he will signal the groundbreaking to begin. They plan for him to sound an air horn, and the backhoe will start digging. Maybe this might work into a neat piece -- the backhoe, or whatever large piece of equipment will be doing the damage, will be breaking down a wall. Maybe you could work in one of your Bethisms about breaking down walls means breaking down barriers to caring for sick children, etc. You're better at this than I am, so I'll shut up now. Mrs. Quayle has been to this hospital, as well -- I forgot that in the last memo. Also, FLOTUS will be accompanying POTUS. There will be children from the hospital in the front two or three rows. They don't have an exact number, it depends on the kids' health. The new wing has no name, because they haven't found a major donor yet. This hospital is so neat because it specializes in transitional care. Very few hospitals in the country do this, and this is the only one of its kind in the area. A clinical liaison nurse handles admissions and discharges. Patients only get in by referral, there is no emergency room or anything like that. Here's an example of the kind of patient: A premature infant born at a local hospital who has received intensive neonatal care, but who is still too sick to go home. He would spend some time in this transition care before going home. - continued - This type of care is important for the family because it teaches them how to care for their child. Family involvement is important here, although some patients are wards of the state. The Hospital has been at capacity for years, and have a waiting list to get in. The hospital is working on developing a curriculum on how to implement this type of program elsewhere. THey're still in the research phase, but it's a good idea. I think this speech should be a call to creating more facilities like this one. It is cost-effective (1/3 to 1/2 the cost of regular hospital care), and is medically-effective. It's important to stress that this Hospital should be a role model for others to follow. This type of care can cut health care costs, I would imagine, because parents can learn how to take care of their children instead of taking them to the emergency room anytime anything small happens. I asked him to be thinking about anecdotes. He said he sent some over in the package, and that if we wanted different ones, we should call. I did want to ask him one more thing -- about volunteer services at the Hospital. I bet POTUS would like to know about that. I'll ask him tomorrow, or whenever we can get up there. I think this is going to be a great speech. I still haven't found out if we're announcing any policy -- I heard from Kathy Jeavons that it is supposed to tie in with the immunization event. P.S. Run the word "Quayle" through SpellCheck. My favorite alternative is letter L. Volunteer programs? to age 21 also has a parents 108 yrs. old founded as a freshair home I siblings groups. support then convolesence. - TB during TB breakoutete. aug length of stay 4mos. - yr - 18 mos. Her. Hoover, Is. did ribbon cutting in '56 for 29 building new area less than 20 transitional care like this Nat'l Asso of Childrens Hospitals swimming & holsebackniding therapeatic programs Vol- 20 of them Noland Gump - "t just want to help at least 3 hrs. /week also getting day care staying a long time" "planning on started Weekly Compilation of Presidential Children's Inn Documents June 21, 90 Monday, June 25, 1990 Volume 26-Number 25 Pages 965-999 CD tos/oanin rat fir Dos all-in-1 June 20 / Administration of George Bush, 1990 the deficit through proposals requiring a Milliken, president of Milliken Industries; balanced budget and a line-item veto. If the Mike Krzyzewski, coach of the Duke Uni- Congress can't make these cuts, give the versity basketball team; and author Thomas President what 43 Governors have, and let Wolfe. Following his remarks, the President him have a shot at it. returned to Washington, DC. And finally, there's the issue of fighting crime. And last May I outlined our Violent Crime Act. And at its heart is the belief that for anyone killing a law enforcement offi- cer, no legal penalty is too tough. Liberals Remarks at the Ribbon-Cutting oppose the death penalty. And where does Ceremony for the Children's Inn at the Jesse stand? Where I do: We want to elimi- National Institutes of Health in nate loopholes that allow these, the worst Bethesda, Maryland criminals, to escape just punishment. And June 21, 1990 what's more, we want to expand its cover- age to include major drug traffickers. Not What a beautiful day! Thank you, Dr. Sul- sometime, not someplace but right now all livan. And I love the music, too. I love to across America. sing. We heard you when we were just get- I'm told that Jesse's favorite movie is ting ready to come out here. Thank you "Patton." And in closing, let me recite the very much. I guess I needn't tell this group, words of Patton telling his troops that in infiltrated by so many doctors and friends coming months they would often wonder from NIH, of my high regard for our Secre- whether they'd retreat under fire. "Don't tary of HHS, Dr. Sullivan. I'm just delighted worry about it," he advised them. "I can he's with me and very proud to be intro- assure you, you will all do your duty." For duced by him. I really want to single out 18 years Jesse Helms has done his duty, those who have worked so hard, recogniz- acting as a United States Senator to protect ing that I might, by omission, risk offend- what Mayberry's own Aunt Bee, of the be- ing. But Bar and I've had this warm wel- loved "Andy Griffith Show," called "home come here, and then we've been reading and people's feelings, and how they grew up on the hard work that's gone into it. up." He continues to lead with the civility Certainly, I want to single out Debbie Din- and conscience that is a metaphor for North gell for her commitment, Dr. Pizzo, Dr. Carolina and with a spirit that would make Raub, Dr. Vagelos, Alan Kay, Carmala Wal- even General Patton proud. gren, Chris Downey, Kathy Russell, and- Two years ago, after an operation, Jesse- again, excuse me, I'll stop there-but every- typical of him-disobeyed the doctor's body else as well. order by leaving his sickbed early to hit the It's good to see so many friends and be- campaign trail for me and Dan Quayle. And lievers from the Hill over here-from Cap- I'll never forget how he literally stood up to itol Hill, those who are giving this project a support me. And tonight, I came down here lot of heartfelt support-Congressmen Din- to pledge him my support. You know where gell and Downey and Walgren and Morella Jesse stands: for a safe, strong, and moral and Lowery. Welcome to all. And a special America. And I need him in the United greeting to the kids, the parents, and the States Senate, so let's keep him there-for friends who have come down from NIH this your sake, for North Carolina's sake, and for morning. America's sake. I have been so impressed by what I've And thank you for this occasion. And let's learned about the unique concept of Chil- reelect Jesse Helms. And God bless the dren's Inn. Barbara and I have talked about United States of America. Thank you. it, and she's told me of this wonderful con- cept. It's an extraordinarily sensitive idea to Note: The President spoke at 7:25 p.m. in provide this place of refuge and renewal so Liberty Hall at the Merchandise Mart. In that sick children and their families can live his remarks, he referred to Jack Hawk, together during treatment. I am very chairman of the State Republican Party; moved to be here today to see how joyously Jack Laughery, president of Hardees; Roger your vision of caring has been realized. This 988 Administration of George Bush, 1990 / June 21 is a story of how dreams come true, and if you have volunteered to help, and I would you believe with all your heart and work encourage the others to listen to her mes- with all your might, dreams do come true. sage. Yours is also an inspiring message of brav- We can't forget those who simply care, ery, sacrifice, and hope that can bring to- like the eighth graders at Baker Intermedi- gether individuals, political parties, profes- ate School in Damascus, Maryland, who sionals, volunteers, private businesses, and made a squadron of 35 toy airplanes for the then the Government itself. The Children's Inn. Inn, this extraordinary home for those who But above all, it will be the families them- need it most, is a remarkable lesson in unity of purpose and caring. As brilliant Points of selves who will be providing the love. As Light in the hard, dark world of battling your Children's Inn slogan says: "There is a illness, you've given this rare and loving closeness that can only come from the gift, and you've shown your belief in the family." shining role which family support plays in Let me give you an example of the im- the treatment of a sick child. portance of the family bond in bringing Carmala and Debbie and Chris and all of new hope to a sick child. Today 10-year-old the congressional spouses, your vision and Breanne Schwantes can swim up to 54 laps compassion and caring touch us all very a day, plays hard with her sisters and cous- deeply. Dr. Pizzo, your professional com- ins, and is so concerned about the penguins mitment to this dream has lasted a decade; in Antarctica that she even wrote a letter to the remarkable legacy that you've helped me about them. But she could have spent to create will last for generations. And, Dr. these last 10 years in a world bounded by Vagelos, you and Merck & Co. have em- her hospital room walls, like others with her bodied in a most exemplary way the ideal illness, for Breanne has osteogenesis imper- of corporate responsibility, utilizing the fecta, brittle bone disease. But what is more unique talents and gifts that your company important is that she also has her loving has to give. And then to NIH: Your gener- parents, Terry and Theresa, and sister, Eliz- ous gift of land and medical expertise has abeth. and will change the lives of many of the When Breanne's condition was diagnosed, children and so many, many others. Your Theresa gave up her Ph.D. work, saying leadership and gifts, both spiritual and phys- nothing else mattered except devoting her- ical have made this dream an astonishing self to the health of her daughter and the reality. health of her family. And she says: "We The lesson of the Inn will show us all that decided that our gift to Breanne would be the most important part of life is a very that she have a life that was full and joyous simple one: taking time to hold a hand, and that all of our lives would be truly share a laugh, wipe away a tear. Many lived." And now, whether at home in Wis- people will be doing exactly that to comfort consin or in the Schwantes' second home the 36 families who will live at this Inn: here at NIH, those who know Breanne say people like resident manager Kate Higgins it is her family's depth of support that has and her staff; people like the volunteer given this child her life. fundraisers and more than 4,000 donors There is nothing that hurts more than a who have raised over $7 million for con- child afraid of the darkness whose cries go struction and who will continue to raise unheard, a lonely child whose tiny spirit is $500,000 a year for operating expenses; wrapped up in a brave fight too big for its people like those at the Clinical Center and years. And that is what this splendid cause, the entire campus of NIH, who have been your splendid cause, so eloquently recog- involved in caring for decades, in planning nizes. for years, and in construction since last As I thought about why I was so deeply August. I think it's wonderful that over touched by the sensitivity of your concept, I 3,000 of you came to tour this place earlier remembered Barbara's words a couple of this week. And Debbie said that-knowing weeks ago at Wellesley. To me they sum up her, I'm sure there were a few arms twist- the spirit of this place: that the family is the ed-but nevertheless, she said that most of key to everything. She told the graduates 989 June 21 / Administration of George Bush, 1990 there, you may remember, "You will never Proclamation 6149-National Sheriffs' regret not having passed one more test, not Week, 1990 winning one more verdict, or not closing June 21, 1990 one more deal. You will regret, however, time not spent with a husband, a friend, a By the President of the United States child, or a parent." of America We share the belief that the family is the A Proclamation bright center of love and life itself. Quite simply: Family comes first. This year, the National Sheriffs' Associa- Those of you who are parents of these tion marks half a century of service to law enforcement officials and to the American special, gravely ill children share some- thing. You learn to carve out your daily public. Incorporated on September 26, lives with the tools of courage, faith, and 1940, in the State of Ohio, the Association love. was established to form and perpetuate an efficient organization of the sheriffs of the Dr. Vagelos and Dr. Pizzo and the United States and to raise the level of pro- Friends of the Children's Inn are people of fessionalism in the office of the sheriff, exceptional goodness, and we are very, very among sheriffs' deputies, and among other grateful to them. And I also want to thank law enforcement personnel. the nurses, the nurses who hold these kids The National Sheriffs' Association edu- in their arms and take care of them, and all cates the public on law enforcement issues the other fine people here at NIH who help and maintains training programs for its and care. And to the families of these kids— members. It also represents the interests of you live with a special grace. You who sheriffs and other law enforcement officials spend precious time with these kids, these before the executive and legislative intensely ill children, have learned the true branches of the Federal Government, as meaning of the prayer of St. Francis: well as at the State and local levels of gov- ernment. "Where there is despair, let me sow hope; where there is darkness, light; Today the organization represents more and where there is sadness, joy." than 26,000 city and county law enforce- ment officials nationwide, including more You've had the extraordinary opportunity than 1,700 sheriffs. It is a leader in the Na- to bring joy and strength to each other, and tion's law enforcement community. that is the greatest strength of all. In recognition of the 50th anniversary of Thank you, and God bless this wonderful the National Sheriffs' Association and in work right here at this very special Inn. honor of all those individuals who serve And now off to cut the ribbon. their fellow Americans as sheriffs, the Con- gress, by S.J. Res. 264, has designated the Note: The President spoke at 10:14 a.m. out- week of June 24 through June 30, 1990, as "National Sheriffs' Week" and has author- side of the Children's Inn. In his remarks, ized and requested the President to issue a he referred to Secretary of Health and proclamation in observance of this event. Human Services Louis W. Sullivan; Philip Now, Therefore, I, George Bush, Presi- Pizzo, Chief of Pediatrics at the National dent of the United States of America, do Cancer Institute; William F. Raub, Deputy hereby proclaim the week of June 24 Director of the National Institutes of through June 30, 1990, as National Sheriffs' Health; P. Roy Vagelos, chairman and chief Week. I call upon the people of the United executive officer of Merck & Co., Inc.; Car- States to honor all sheriffs during the week mala Walgren, Debbie Dingell, Chris for their courageous and dedicated efforts Downey, Alan Kay, Kathy Russell, and to preserve the rule of law and ensure do- Katie Lowery, president, vice president, sec- mestic tranquility. retary, and members of the board of direc- In Witness Whereof, I have hereunto set tors of Friends of the Children's Inn, re- my hand this twenty-first day of June, in spectively. the year of our Lord nineteen hundred and 990 -VS Luben this Anali community 1 aid REPRINTED FROM THE WASHINGTON BUSINESS JOURNAL MAGAZINE - MARCH/APRIL 1990 Washington BUSINESS JOURNAL™ TM Excerpted from Publisher's Letter - Dear Reader: With this issue, we herald spring when, we hope, Washington business turns optimistic with the new season. In researching the market for 1990, we've found pockets of worry here and there, but overall, the area's business community appears to be feeling OK about the prospects for the remainder of the year. After stepping back rather cautiously in the first quarter to have a look, most Washington businesses have discovered that our region now has a diverse enough economy to withstand a downturn in government spending. The further good news is that defense spending cuts will not Lastly, please take a few min- utes to read Susan Stocker's story on the Hospital for Sick Children, a unique and valuable institution that is too often overshadowed by the better- known Children's National Medical Center. You will feel up for any chal- lenge that you may face after reading about these inspiring medical profes- sionals and courageous young chil- dren. Sincerely, James A. Rice James A. Rice Publisher he Hospital for Sick Child- D.C.'s Other T ren, an 80-bed pediatric care facility in Northeast D.C., despite vast advances in its patient care throughout its 106-year history, still struggles with a Children's Hospital persistent identity problem. Many Washington area residents don't even know it exists and others are still un- clear about what exactly it does. "To this day, when I ask people to Despite its 106-Year History, donate, they say 'I already gave,' " says Dr. Constance U. Battle, chief ex- Washington's Hospital for Sick Children ecutive and medical director of the hos- pital since 1973. "What they mean, of course, is that they gave to Children's Struggles to Find an Image [National Medical Center]. The confu- sion is still there and it's unfortunate." One of barely a dozen pediatric spe- By SUSAN J. STOCKER cialty hospitals in the country, the Hos- 8/ WBJ MAGAZINE Picking up a crayon with her mouth, FEATURE her head shakes from the effort, but she delivers the biggest smile her therapist has seen yet. Feeling the impact of the city's rise in Tiny preemie Jamie, born at 26 weeks low-birth weight babies (averaging to a young, drug-addicted mother, about 1,300 a year), area acute care weighed just less than two pounds at hospitals are being squeezed financially birth. Weaned off a respirator after due to expensive, long-term infant care. spending four months at a nearby acute "There's a real critical need for respi- care hospital, Jamie wasn't gaining ratory-dependent and developmentally weight and was again ventilator-depen- disabled infant care here," says How- dent. She would not develop normally ard Jessamy, president of the D.C. as other healthy babies do and would Hospital Association. "It overly taxes have to play catch-up for much of her acute care hospitals both staffwise and infant life. moneywise. It's a niche in specialty care One day the staff can gather around that's not met very well by other seg- to give a child a discharge party com- ments of the community." plete with balloons, punch and cake; The Hospital for Sick Children sees the next, another can be lost to a mal- that niche as one of the only true formed heart that could no longer hang growth areas of clinical hospital care onto life. today. Its 80 beds are usually full and as The hospital manages to do a little many as 17 new cases can be awaiting better than break even by successfully admission during any one week. About filling a niche in pediatric care, even 60 percent of the patients admitted will though it relies on Medicaid for more have to stay from one year to 18 than 80 percent of its income, competes months for staff with the likes of Children's Those statistics — and a beefed-up National Medical Center and must deal effort at image-building - have led the with the city's serious socio-medical hospital on an ambitious expansion problems that have, in some cases, project that will increase the total num- caused its patients' illnesses. ber of beds by 50. Despite local neigh- "We're able to operate in the black borhood opposition, it expects to start through using all of our wits to recap- demolishing an existing building con- ture our daily costs," says David C. structed in 1929 to make way for a new, Corro, administrator. $13-million addition. Construction is Patient revenue and donations for the planned to begin in June. year ending Dec. 31, 1989, were ex- The project will be financed through pected to total $12.5 million. Operating planned District bond sales and an ag- expenses will take about $12 million of gressive fundraising campaign. The that. Yet daily costs per patient range work also includes renovation of the from $350 to $475 roughly half the hospital's second existing gabled brick cost of care in an acute care setting - building off South Dakota Avenue primarily because physician fees are in- N.E. cluded in the daily rates and the hospi- "Technology in itself has put us in a tal contracts lab and X-ray services to catch-22 situation," says chief execu- outside providers. It also doesn't have tive Battle. "Advances in medical tech- to support costly operating rooms or nology have increased the baby's emergency rooms like acute care facili- chances of surviving conditions that pital for Sick Children acts as a transi- ties do. would have meant death even 10 years tional care facility for children from The hospital, however, does support ago. But with that comes the need for two weeks to 21 years who are no longer salaries and benefits comparable to more money to provide that new level acutely ill, but are not yet well enough those of its primary competitor for staff of care." to go home. - Children's National Medical Center. Under Battle's 16-year leadership, the It's a facility that's home to happy "We try to track Children's salaries hospital has evolved from a struggling and sad stories alike. A year ago, two- very closely," said Carolyn Harris, who institution providing basic convalescent and-a-half-year-old Johnny could not manages the hospital's 92 direct care- care to a health care facility that ad- eat. He was fed through surgically im- givers (RNs, LPNs and patient care as- dresses the "whole child" - both phys- planted intravenous lines that corrected sistants) as director of nursing. "So sal- ical and mental care management is- his congenital malabsorption - inabil- ary is hardly an issue here." sues. ity to digest food. Now, Johnny sits up Generally, degreed nurses with In fact, through its long history, the in his own highchair and is starting to roughly eight years of experience will hospital has changed its name four eat. like any child his age would. earn about $16 an hour to start at either times as its patient care focus shifted Lucy, a wide-eyed 11-year-old, is in hospital. The major recruitment differ- along with its mission. the midst of her physical therapy ses- ence between the two pediatric facili- Originally a country home for child- sion. Paralyzed from the neck down as ties: Children's is a large, teaching hos- ren in 1883, it became The Children's a result of a serious car accident, she pital with substantial research dollars Convalescent Home in 1951; The Child- must learn how to live all over again - and educational opportunities; The ren's Convalescent Hospital in 1956; without the use of her hands and feet. Hospital for Sick Children is not. continued on next page MARCH/APRIL 1990 / Soon to be demolished to make way for a new $13-million addition, the old wing of the hospital dates back to the 1920s. a child defy the odds by living beyond its life expectancy or see a child take its first steps at age three or four fills you with such a joy." And even small steps can mean cru- cial improvements for the patients at the hospital. "Other hospitals work to fix the pa- tient and that may be the extent of it," Battle says. "We pick up from there - we look to stabilize the condition and give the child the best possible chance at a normal life. But there are plenty of other obsta- cles to that as well. About 10 of the hos- pital's patients are wards of the District and increases in the numbers of co- caine-addicted and AIDS babies has added to the hospital's burden. continued from previous page father, holding her as a newborn. "Children here lately linger longer as and The Hospital for Sick Children in Against the walls stand the reminders a result of their unstable social back- 1968. of the real reasons these kids are here - grounds," says nursing director Harris. "We try to optimize the full potential ventilators, catheters, tubes, heart mon- "It's become part of their regular bag- of every child," Battle says. "Bringing itors and emergency life support equip- gage." the hospital to a high level of medical ment One child some time ago was in what competence and bringing in the devel- Unit C also handles congenital condi- doctors call a vigil coma, in which the opmental approach are the most impor- tions, but of a less acute nature than patient's eyes may be open, but whether tant things we've accomplished here." those of Unit B. Unit D cares for child- he sees or hears what is going on is un- And the fruits of the work are evident ren with serious congenital defects, de- known. The family was not overly in- throughout the four units of the hospi- generative conditions, brain damage volved with the child; visits were scarce, tal. and accident or abuse victims. but they wouldn't allow the child to be In Unit A, the ambulatory unit, the In 1989, the hospital had 84 dis- placed on no-code status where no ex- older children interact freely since most charges. Of those, 35 went home, three traordinary emergency efforts are em- are more mobile than other patients. transferred to another facility, eight ployed to save its life. Most children in Unit A are members of died and the remainder went back to "We had to resuscitate that child sev- what the hospital calls The Breakfast an acute care hospital, perhaps to re- eral times," recalls nurse Moore. "And Club, where children eat together to turn later. to see a child come back with even less learn table manners and social behav- "The rewards aren't the same here as each time is, well, it's just really ior, and go on field trips and tutoring they are in a regular hospital," says tough." sessions outside of the hospital. Barbara Moore, assistant director of During the long-term stays and ups Respiratory care Unit B, dedicated by nursing clinical services and an eight- and downs of a child's development, former Surgeon General C. Everett year veteran active duty nurse. "To see parents are often forced to ride an emo- Koop in 1984, is the most populated tional rollercoaster. hospital unit - 20 children are treated "Sometimes they even try not to get here along with a customized develop- too attached to someone they might not mental care plan for each child that is have for too long," she says. "It almost neatly tacked to the baby's crib. frightens them.' "Gurgles happily when tummy is And the attempt at distancing the gently rubbed, notes one baby's de- personal relationship between the scriptive page at the foot of his crib. health care provider from the patient in "Reaches for panda when moved by at- a special pediatric setting like the Hos- tending nurse," reads another. pital for Sick Children is, most find, Each crib holds a myriad of toys and just that - an attempt. stuffed animals, each selected especially "After a while, you learn to try to for the child's current level of develop- pull yourself back and not get too in- ment. In one doll-sized bassinet, for ex- volved with a child, but it's hard to let ample, where a premature baby girl lies that happen," Moore says. sleeping, several black and white "In your heart, you get involved de- stuffed toys sit close by to help the in- spite what you think you should or fant distinguish the contrasts of light shouldn't do." and dark. Taped to the top left corner Constance U. Battle, chief executive, has been Susan J. Stocker is a Washington Business of the crib is a photo of the baby's leading the hospital for 16 years. Journal reporter. 10 WBJ MAGAZINE roching MONDAY, NOVEMBER 13, 1989 TECHNOLOGY THE WALL STREET JOURNAL R25 PAYING TH PRICE PRISONERS OF TECHNOLOGY Modern science has rescued these children, but for what kind of life? By CATHY TROST HE TECHNOLOGY T that gives life to pre- mature and sick babies sometimes becomes their captor. At the Hospital for Sick Children in Washington D.C., a seven-year-old girl lies HORACIO CARDO motionless in bed, her legs cradling a stuffed rabbit. She wears a pretty green dress; yellow ribbons are tied care- fully in her hair. On the wall are posters of a tropical island serted by parents who are un- machines and medicines that touched or pushed," it says. and a white kitten. willing or unable to cope. Fos- keep her alive. Breathing Another boy has a rare in- The child was born with a ter homes and other facilities tubes run from the ventilator testinal disorder that requires degenerative neuromuscular are in short supply already; in into her neck and a feeding pumping nutrients through disease that has left her more some cases, state or local reg- tube cuts into her stomach the heart and bypassing the helpless than a newborn. ulations even make it impossi- above the tiny bear cartoons stomach. Almost two years At birth, "it was assumed ble to place a child with a on her diapers. She gets nine old. he sits in a high chair, she would die and she didn't," breathing or feeding tube in a different types of medications isolated in a special room, says a doctor. "She survived group home. And few couples daily to treat her kidney and playing with a Mickey Mouse only because of technology." are willing to adopt and care respiratory problems, includ- pop-up toy. At night, the doc- Tubes fastened to a ventilator for a child who may always ing steroids that puff out her tors say, he plays with his pump force oxygen into her be at the mercy of a machine. tiny cheeks, and drugs to tubes and punches the but- lungs and keep her trachea And so they stay on. And keep her calm. tons on his feeding pump. moist; a winking blue panel on. "I walk through the halls The daily schedule posted They hope he will improve records her heart and respira- every day and see the lives over her crib reads like Army and go home to his parents. tory rate. Another tube feeds these children lead long after maneuvers: "0001-aerosol But the future is less bright her. the drama and glamour of [medicine spray], cpt [chest for a girl nearby, born with treatment decisions have been pats to loosen secretions], SX the same disorder, whose fam- The child has been in hos- made," Constance Battle, the [suctioning], meds, vital ily is unstable and probably pitals since birth-in this one medical director at the Hospi- signs." Doctors say she used incapable of caring for her. since 1984. "She is fully tech- tal for Sick Children, wrote to be so agitated by noises The hospital has had nology-dependent," says Olga two years ago in a medical that if they stood by her bed many successes, rehabilitating Byll, a hospital official. "She journal. "I watch the children talking, her heart rate would and sending children home to may react to a specific staff whose families have gone on, zoom and she would have a families and lives of hope, and member or recognize a per- who have become emotionally bronchial spasm. Work-shift Dr. Battle makes a point that son's voice, but we're not sure distanced and moved on (with changes would leave her so technology performs miracles, what she recognizes and guilt and self-recrimination) to. rattled it would take hours to too. The medical staff tries doesn't recognize." What can new chapters in their lives. get her to breathe normally hard to make the hospital a she do? "Nothing," says Ms. "And I witness and think again. home. There are playrooms Byll. of the long lonely Saturday Though there's no evi- and outdoor playgrounds, a And probably never will. afternoons when many of the dence in her case, such be- developmental program to For the young girl is one of nurses and therapists are gone havior can indicate maternal help the children move for- an increasing number of chil- and the children are slowly drug abuse. To soothe her, ward and learn new skills, dren who are "prisoners of passing the time, minute by lights are dimmed, soft music trips to fast food restaurants technology"-patients who minute. It is at those mo- turned on, and screens placed and amusement parks, and would have died at birth ments that I berate the tech- around her bed to muffle weekly family-style dinners. without life-salvaging technol- nology that has allowed us to noise. Her parents visit, and Doctors give the children bar- ogy but who can't stay alive create a new agony, an exis- doctors hope she may be able rettes and new clothes, and without its continuing assis- tence somewhere between life to go home someday. volunteers come in to cut and tance. and death." Next to her bed is a two- perm their hair. Many are children who In this nether world one year-old boy whom nurses are "There's not a child some- were born too soon and too day, a three-year-old-boy, who carrying back from group one hasn't fallen in love small, or with grave diseases, at birth weighed barely half a therapy. They carry him, his pound, leans on a special de- with," says Margaretia Jack- or both. Modern science has portable oxygen unit and his rescued these children; now vice to prop himself up. He is stomach tube. A splint helps son, a senior attending physi- society has to decide whether a case study of the ravages of straighten his legs, and he cian. "But [the staff] still goes that's a blessing or a curse. extreme prematurity. He has cries out, pushing his glasses home after eight hours and takes vacations. It's not the The luckiest children even- upper respiratory problems down. around his nose and tually go home with their and feeding tubes, and 80 lit- twisting angrily in his bed. A same thing as having a mother." tle muscular tone that he breathing and feeding tubes, nurse rubs his head sympa- needs help to stand. Emotion- nighttime breathing alarms, thetically, saying he's proba- And the children keep ally, he is & 10-month-old, suction machines and other bly angry because he doesn't coming. The 80-patient hospi- smiling and blowing bubbles want to come back to bed. tal has plans to add 50 beds. medical paraphernalia. But at the nurses who nuzzle him Over his crib is posted a sign Says Ms. Byll: "The projec- many are too damaged to ever go home. Others are de- as they pass by. telling nurses about his devel- tion is the numbers will just In the infant room, a 14- opmental progress and needs. keep increasing." month-old girl born prema- "Give him toys that rock or turely lies surrounded by the make music when they are Ms. TROST IS A STAFF REPORTER IN THE WALL STREET JOURNALS WASHINGTON BUREAU. THE HOSPITAL FOR SICK CHILDREN BUILDING PROJECT FACT SHEET Purpose: To renovate and expand our current facility in response to the growing number of children in the greater Washington area who require the specialized care only HSC provides. Result: The new facility will increase our capacity by more than 60% -- from 80 beds to 130 beds. Specialized Respiratory Therapy Therapy Physical Therapy Treatment Speech and Hearing Therapy Rooms in our Occupational Therapy New Facility: Recreational Therapy The new, expanded and more modern facility will enable better coordination between therapies and improved patient services. New and Family Training Apartment where parents prepare Expanded for their child's return to home. Here, under Services medical supervision, parents will have an opportunity to practice caring for their child, which will give them greater confidence when they take their child home. Laboratory and X-ray facilities to allow faster testing and results to take place on-site rather than using outside services. A Conference and Training Center to provide educational and training seminars to our staff and the area's medical community, as well as ongoing health related programs of interest to the general community. Two 25-bed Units to provide for children who need longer term rehabilitation. HSC is the only facility in the D.C. area providing this very specialized medical care to children. 80 beds for children requiring specialized rehabilitative transitional care. Project Timetable: Groundbreaking June 13, 1991 New wing construction Sept. 1991-Dec. 1992 Move into new wing January - March, 1993 Renovations Jan. - June, 1993 Financing: Total cost of the project is estimated to be $19 million. The majority of financing will be obtained through the sale of bonds. The Capital Campaign has a goal of $2.5 million. The current total raised for the project is $1.3 million. Campaign Committee Co-Chairmen: Mr. and Mrs. Mitchell P. Rales (3/91) 2 You may not have heard of the Hospital for Sick Children before. Because the miracles that happen here are not the kind that get written up in the newspapers. Our miracles are the kind that no one ever hears about except for the nurses, therapists, and doctors who are actually present when they happen: A premature baby takes its first breath without the help of a respirator. A five-year-old boy who has never uttered a word in his life finally manages to squeak out his first "Hello." A teenager who is unable to move from the neck down earns her high school diploma. The Hospital for Sick children is the Washington area's only pediatric specialty hospital. We treat kids with chronic illnesses and multiple disabilities whose conditions are no longer medically acute but who are not yet ready to go home. Timmy is three and one-half years old. He came to the Hospital for Sick Children with Fetal Alcohol Syndrome and Bronchopulmonary Dysplasia (BPD) and has progressed to the point where he could be discharged to his grandmother. Deeply concerned about the responsibility she will be assuming, Timmy's grandmother is working through her fears with one of our social workers and looking forward to the day when the boy can come to live with her. Susan is a twelve year old with cerebral palsy and malnutrition. She came to our hospital from Children's Hospital in order to receive extensive physical, occupational, speech and feeding therapy. Although Susan will soon be ready to be discharged, she will not be able to receive the care she needs at home. Our social workers are now looking for a foster home or for other options for Susan's placement. In reading about these children, you can see that the Hospital for Sick Children treats patients requiring a wide variety of care and therapies. Among the 80 young patients who are here today, for example, there are kids with chronic lung disease, cerebral palsy, leukemia -- and victims of child abuse. There are children who have been severely brain damaged in car accidents and kids who were born with such congenital diseases as cleft palate or cardiac defects. And, of course, we have many, many premature babies. (Tragically the Washington area has twice the national average in premature births.) THE HOSPITAL FOR SICK CHILDREN As the surgeon steps out of the operating room, he removes his mask, wipes the sweat off his brow, and walks over to the worried parents. "It's going to be a long and difficult recovery," he says. "But your child is going to live. = The parents hug each other and collapse into joyful tears. The music swells. The credits roll. On the screen it says "The End. " Dear Friend, Although it may sound like something you'd expect to see in the movies, scenes like the one above happen in real life almost every day. At acute-care facilities like Children's Hospital, Georgetown, and GW, the miracles of modern technology routinely save young lives that would have been lost just a few years ago. So there's nothing exaggerated about the scene I just described to you. Nothing, that is, except for one little point: You see, in the movies that's where the story ends. But in real life, it's only where the story begins. In real life, there's another scene, a scene that involves real-life people at a real-life place -- a place called the Hospital for Sick Children. An ambulance pulls up to the front door. Inside is a tiny premature baby, dwarfed by the medical equipment that surrounds her. There are tubes coming out of her nose, tubes coming out of her throat and wires are attached to her tiny arms and legs. She is being transferred from the Washington Hospital Center where she was born nine weeks premature. The doctors there accom- plished a miracle in keeping her alive. But now her condition is stable. And with the proper medical care she will probably live. But what kind of life she'll live depends on what happens here, at the Hospital for Sick Children. And in a way, it also depends on you. 628-6661 1731 Bunker Hill Road, NE Washington, DC 20017 202-832-4400 Sharing in the United Black Fund 4 Will you help our children achieve this special goal? Earlier, I mentioned that at the Hospital for Sick Children we believe in a team approach. But while I talked about the respiratory therapist, the feeding therapist, and all the others, there was one critical member of our team I failed to mention: You. Your contribution to the Hospital for Sick Children of $25, $50, or $100 is what enables these kids to stay on the road to recovery. We never turn down or discharge any patient because of inability to pay But in order to maintain that policy, we must ask for help from generous people like you. A little money goes a long way at a hospital like this. In fact, it costs only slightly more than half as much to care for a chronically ill child here than it would in an acute-care facility. That means your contribution is not eaten up by thick layers of medical bureaucracy and overhead. Instead, it goes directly to the children who need it. A gift of twenty dollars, for example, will buy a special mirror for an infant's crib. The Batacas -- a soft bat that's used as a tool -- can be purchased for $37.95. A contribution of $100 will buy a wheeled walker to help a disabled child learn to walk. And if you can give as much as $1,000, you'll know that your gift is buying one of the extra-large cribs that we need for our pre- schoolers. But whatever amount you give, what I'm really offering you is the chance to take part in one of our miracles Not the kind of miracle you see in the movies but the kind of miracle where the love and dedication of many caring people -- including yourself -- make it a life worth living. You can be a miracle worker for a child. Please send a gift today. Constance Sincerely, u. Buttle M.D. Constance U. Battle, MD Chief Executive Officer and Medical Director P.S. I wish I could introduce you personally to some of our brave little patients and the many special people who work here. Instead, I've enclosed some photographs to give you an idea of our special needs and of what life is like here at our hospital. 3 The one thing all of our kids have in common is that they are survivors They came to the Hospital for Sick Children from an acute-care facility where they bravely won the battle for survival Now they are here to fight the battle for recovery. Fortunately, it's one they don't have to fight alone. In acute-care facilities, as in the movies, the emphasis is on the heroic efforts of a single individual -- the surgeon, for example. But at the Hospital for Sick Children, we emphasize the coordinated efforts of a team of health-care professionals. One child may have as many as nine different therapists assigned to him -- ranging from a respiratory therapist who gradually weans him off his respirator to a feeding therapist who helps teach him how to eat without the help of a feeding pump to a recreational therapist who adds a measure of joy to his life. Treating patients like ours is a long, difficult, and often frustrating process. We have learned to measure progress not in days or weeks, but in months and even years. Yet progress does occur. And when it does, it's thrilling. Sometimes when I'm walking down the hall, I hear squeals of laughter and applause break out in one of the rooms and I know that a patient has had a break- through. A seven year old's first steps, perhaps, or first words. These halls are filled with the sounds of love. Despite all of the high-tech medical machinery we have here, we never lose sight of the fact that these are children and that they need kisses and hugs and cuddling. Such affection and nurturing are important parts of their recovery. Without it, long- term hospitalization at their age would be devastating. Yet even though we develop lasting relationships with our patients, all of our efforts are geared toward sending them home. Discharge planning begins on the day of admission. And our social workers carefully prepare parents in both an emotional and a practical sense for the day when their child will come home. The glorious "Goodbye Parties" we have here are an exquisite mixture of sadness and joy and deep professional and personal satisfaction. We know we have met our goal not when a child has a complete medical recovery because in many cases that's impossible -- but when we have a child on the road to achieving his fullest potential as a human being. And which of us could ask more out of life than that? To Carol Date "/12 Time WHILE YOU WERE M Holly Williamson of Bell OUT VPM Phone X4430 this 6/12 Area Code Number Extension TELEPHONED PLEASE CALL CALLED TO SEE YOU WILL CALL AGAIN WANTS TO SEE YOU URGENT RETURNED YOUR CALL Message Surq. hen. Novello will be w/POTUS & Sullivan at the Hospital for sick children tomorrow — should be acknowledged in the speech Operator AMPAD EFFICIENCY® 23-021 CARBONLESS THE HOSPITAL FOR SICK CHILDREN CAPITAL CAMPAIGN BUILDING FOR THEIR FUTURE THE HOSPITAL FOR SICK CHILDREN and S espite the successes of today's medicines and surgery, many children cannot be quickly healed. For them, getting well takes time, patience and determination. For them, the Hospital for Sick Children is a place of loving care and hope. home. Our patients come for many reasons: premature birth, congenital defects, illnesses and accidents. They need specialized medical care and therapy to acquire or re-acquire the skills they should have at their age. Approximately half our patients are prematurely THE LONG ROAD HOME born infants, almost all of whom, if born ten years ago, would have died soon after birth. Despite medi- cal breakthroughs, the infants who come to us arrive with serious problems. Many are dependent on ven- tilators, because their lungs are not yet ready to function on their own. They must be slowly weaned off the ventilators and helped to breathe on their own. They must be carefully monitored for infec- The Hospital for Sick Children is tions which for them could be fatal. a transitional care hospital, the Another group of children are here because they bridge between an acute care hospital and a child's home. need intensive rehabilitation and developmental pro grams to recover from life threatening accidents or disease. Their needs vary widely. Their ages range up to 21 years. Finally, we have some young patients who have lit- tle or no hope of full recovery. Modern medicine has no miracle drugs or technology to cure them. But he Washington area benefits from many hospi- the Hospital for Sick Children is here, day in and day tals that handle emergencies and routine care for pa- out, offering tenderness, friendship and the best tients with acute illnesses. Of all the hospitals in our medical care possible to help them develop to their region, however, only the Hospital for Sick Children best ability. specializes in care, therapy and rehabilitation for Of all the hospitals in the Washington metro- children who need longer hospitalization before politan area, no other provides the kind of care they can go home. children receive at the Hospital for Sick Children. We are not an acute care hospital. We do no sur- Our children are survivors. They need medically gery. We have no emergency room. The Hospital competent care and more. They need people stand- for Sick Children is a transitional care hospital, the ing by them, helping them down the difficult road bridge between an acute care hospital and a child's that will take them home. T&E H S s for: 2 Of all the hospitals in the Washington metropolitan area, no other provides the kind of care children receive at the Hospital for Sick Children. STATE jes skrijt. duimples OR children 3 Through more than a hundred years of service, we have been known for our deep devotion to children. 4 BEHIND A SPECIALIZED MODERN HOSPITAL, STANDS A CENTURY OF EXPERIENCE AND LOVING CARE. With generous community support, the Hospital for Sick Children has evolved, providing new kinds of care to new groups of patients. ven before the turn of the century, children in the Washington area had the benefit of specialized care from the Hospital for Sick Children. Through more than a hundred years of service, we have been known for our deep devotion to children. If a child who received our care many decades ago were to return, he would not recognize today's Hos- pital for Sick Children. The rheumatic fever patients who once filled SO many beds are gone. So are the iron lungs for polio victims. But if that child, now an elderly gentleman, walked around he would recog- nize the same spirit of loving care amid the modern medical technology. Over the course of our century of patient care, medical science has been transformed. With gen- erous community support, the Hospital for Sick to become a leader in rehabilitation for children. Children, also, has evolved, providing new kinds of But we have never been SO busy with the intri- care to new groups of patients. We have expanded cacies of medical care and therapy that we could not our services in occupational and physical therapy, give our patients the time, the attention, the affec- speech-language pathology and recreation therapy tion that every child needs. 5 THE CHALLENGE OF LONG-TERM PEDIATRIC CARE Each week of a young child's life is unique and critical to development. Confinement and illness of- ten cause young patients to lag behind other children of their age: in growth, in motor skills, in speech, in all areas of development. While we provide medical care, we also provide intensive therapy to help our patients regain skills they have lost, or to acquire skills they never had the chance to learn. Each child is different. Each child has a potential to fulfill. We help each of our patients to reach that potential. We are concerned not just with how sick our chil- Each child is different. Each child dren are, but with how well they can be. has a potential to fulfill. We help each of our patients to reach that Our children see their lives transformed by small potential. victories. When a multiply handicapped child learns to eat unaided, that small victory will change every day of her life and the lives of those who care for her. For a child who will never walk, learning to operate a motorized wheelchair carries with it an immeasur- able gain in his dignity. Our therapists help children achieve these victories. Even before a child is admitted to the Hospital for Sick Children, our interdisciplinary team of pediatri- cians, physical therapists, occupational therapists, speech-language pathologists and other specialists draw up an individualized treatment plan for each child. The goal of the plan is to send the child home, and our eyes are steadfast on that goal. Our children have extraordinary needs. But there are ordinary needs that must be met as well. Play, friendship, celebration, privacy, adventure the Hospital for Sick Children strives to meet these 7 ordinary needs, and that's one of the things that makes us extraordinary. Most children who spend weeks or months in a hospital miss important social experiences and the rich influences of family life. Through family visits, field trips and special events, the Hospital makes a strong and continual effort to bring home life and the outside world inside the Hospital. The Hospital for Sick Children is a leader in the highly specialized field of transitional pediatric care. Our leadership is built on more than our expertise with medical technology. Our greatest achievements are our innovations to make our Hospital meet the needs of both our patients and their families. The measure of our success is not what happens within Progress demands flexibility the walls of the Hospital but what happens when our from people, institutions and children go home. facilities. We are intensely proud of our accomplishments at the Hospital for Sick Children. But progress de- mands flexibility from people, institutions and facili- ties. There are times in the life of an institution when dedicated and innovative people come up abruptly against the limitations of the physical facili- ties in which they work. Medical care has changed dramatically since our Hospital was built. The limitations of our present building make it more difficult to accommodate es- sential equipment and provide recreational space and social experiences for our children. 8 REVIEW OF RELATED SKILLS Studies have shown that the Washington area will need 200 long-term pediatric beds by the year 2000 Unless we take action now, our waiting list will grow very long. A TIME FOR CHANGE 80 beds, and no other hospital in this region is li- censed to provide this special care for children. Ar three times in the last 60 years, the Hospital We also face the need to adapt our facilities to the for Sick Children has made major changes in our fa- demands of today's medical and therapeutic care. cilities, responding to changes in medical science The newer wing of our present building was de- and in community needs. In 1929, we moved to our signed more than 25 years ago. New equipment, present site to accommodate more children. In 1968, never contemplated in that design, now crowds our we constructed a modern hospital wing to meet the patients' living space. Our occupational and physical needs of more medically complex patients. In 1984, therapists find that small and fragmented therapy we opened our new respiratory care unit to accom- spaces hinder them in working together on coordi- modate the growing numbers of ventilator-depend- nated therapy; and there is insufficient space for play ent infants. therapy, which experts agree is essential to children's Today the mounting pressures of medical technol- normal development. ogy and health crises demand another major change. In addition, our older children need more normal Unless we make that change, many children in our living space - social space where they can relax, community will not receive the care they need. read, watch television, and eat meals with their The Hospital for Sick Children has been operating friends and family. For children who have spent a at capacity since 1987. For some time, we have had a large part of their short lives in a hospital, these waiting list. Unless we take action now, that waiting everyday experiences are precious and make im- list will grow very long. Studies by regional health portant contributions to their development. care authorities have shown that the Washington We are ready to change. To meet the growing area will need 200 long-term pediatric beds by the need, the Hospital for Sick Children has sought and year 2000. Today, the Hospital for Sick Children has received permission from local planning authorities 9 Children are the future. We all wish to see them enjoy the best that life can offer. You can ease their struggle, you can give their lives more promise. to expand to 130 beds. STEPPING FORWARD At the same time, we will modernize our present TO MEET THE NEED treatment facilities, allowing us to give more effi- cient care, and adding the kind of space that our children need. efore designing our new building, the Board Without this bold action, we would be trying to and staff of the Hospital for Sick Children traveled to give 1990s care in a 1920s building. But with strong pediatric hospitals all across the country. We con- support from the Washington community, we will sulted with hundreds of pediatric care professionals, build the facilities that will take us into the next assessing advantages and shortcomings of each insti- century. tution's physical plant. We have taken the best ideas The Hospital for Sick Children is ready to take a from each of these hospitals and designed a new giant step forward: offering our sophisticated medi- building to provide more efficient and effective cal care to more children, providing them with bet- service to our patients. ter living and playing space while they are here, and In our plans, the 1929 wing now used for adminis- improving the quality of the therapy we give them. tration will be replaced with a new 80-bed pediatric Step with us for a moment into the future of pedi- wing carefully designed for today's medical care, to- atric care at the Hospital for Sick Children. day's habilitative and rehabilitative techniques. It will 10 provide ample space for all the services we now pro- In addition, our new facility will provide confer- vide and for the staff who provide them. ence space where we can fulfill our educational re- The plans include an apartment where parents sponsibility as the Washington area's center for pedi- can spend two or three days with their child in a nat- atric transitional care. We will use this space not ural home-like setting before the family returns to only to train our own staff, but also to train parents their own home. They can take on the new chal- and others who work with handicapped children in lenge of caring for their child with the confidence the schools, recreation departments, social service gained from first-hand experience and professional agencies, and other hospitals. guidance. The fulfillment of these ambitious plans will help When this wing is operating, the 1968 wing will us achieve our ultimate goal: sending children home. be remodeled into a 50-bed facility, serving children who need less intense medical supervision. Its envi- ronment will be less medical, less institutional, and will provide still more natural experiences. Yet it will be a place dedicated to the intense therapeutic work that these children have before them. Our children are survivors. They need medically competent care and more. They need people standing by them, helping them 11 AN INVITATION D riven by the commitment of our Board to meet lion in grants and contributions. The balance of the the needs of children, the Hospital for Sick Children cost of the new facility will be financed. has launched a capital fund raising campaign. The Hospital for Sick Children is seeking pledges We invite individuals, foundations, and corpora- for the capital campaign which can be paid imme- tions to join in this campaign to make a tremendous diately or spaced over a period of three years. difference in the lives of children. The new facility provides many opportunities for For more than 100 years, the Hospital for Sick permanent recognition of major gifts, as well as op- Children has been the beneficiary of generous sup- portunities for commemorative gifts. We will be port from Washington's leading citizens. They have happy to discuss these opportunities in detail. felt the special satisfaction of helping the unfortu- Children are the future. We all wish to see them nate and courageous children who come to us for enjoy the best that life can offer. care. From our patients, life demands courage and de Today, to build a facility for our sophisticated care, termination. We stand by them as they take the diffi- the Hospital for Sick Children is calling on leaders cult steps that will carry them home. You can take a who recognize our unique place in pediatric care and step with them. You can ease their struggle, you can who share our commitment to caring for some of give their lives more promise. the area's most vulnerable children. We invite your generous support for the capital To fulfill our ambitious goal, the Hospital will need campaign of the Hospital for Sick Children. You will at least $13 million for construction and equipment. be helping this unique hospital extend a proud cen- 0930895000 We are committed to raising a minimum of $1.5 mil- tury-old tradition as we build for their future. Design: LLOYD GREENBERG, STUDIO GROUP Photography: RHODA BAER, DAVID HATHCOX, GREG PEASE, JEFFREY WILKES Writer: PAUL BENNETT THE HOSPITAL FOR SICK CHILDREN 1731 BUNKER HILL ROAD, NE WASHINGTON, DC 20017 202 832-4400 mom and son HEADS UP came a long way to SUMMER telethon HEAD INJURIES ummer vacations are times of adventure for children. With cut a bike rider's serious head injury b renda and Dennis Prince's appear- ance on the early June Children's Miracle Network Telethon was a triumph. It was far removed from shown that wearing a helmet can her past drug use, and three-year-old Dennis' struggling start in life. S The story of strength and recovery captivated the Telethon's hosts another year of school behind risk by 85 percent. The helmet and, undoubtedly, the many local viewers. them, and the next one barely should be approved by the Ameri- Those viewers responded to the Princes' story, and the many other stories told a thought, the days are filled can National Standards Institute over the weekend, by donating more than $1.5 million. That was an all-time with sports and exploring (ANSI) or the Snell Memorial high for the event. or just simply Foundation. An ANSI or The annual Children's Miracle Network Telethon is a national broadcast seen relaxing. But good Snell sticker means the on 190 stations, organized by the Osmond Foundation of Utah. Locally, the safety habits shouldn't helmet's construction Hospital for Sick Children and Children's National Medical Center produce the take a vacation just meets certain 22-hour fund raiser with WDCA-TV Channel 20. In addition, scores of volun- because children do. industry standards teers work throughout the year to raise money One summer for impact resistance crucial to the hospitals' work. danger is head injury. A and strap strength. Dennis was born with the odds against him. He serious head injury has the And with helmets was failing to thrive, primarily because he lacked potential to change a life. coming in the brightest the natural reflexes for sucking and swallowing Head trauma can be as colors and patterns, properly. That meant he could not orally receive simple as cuts and small bumps, to wearing one can be fashionable the nutrients he needed for survival. Only the severe injury to the brain itself. A and sensible! slender lifeline of a feeding tube kept his small serious injury can produce behavior Appropriate helmets should also body functioning. changes such as irritability, aggres- be used for sports He also had neurological problems which sion or withdrawal, loss of use in such as baseball interfered with his natural social, emotional and limbs or paralysis, eye problems, and lacrosse intellectual development. coordination problems and, where rock-hard Brenda came close to losing Dennis before he building project off to at start! much to hope and anticipation, W ith the first signs the Hospital's building and renovation program are being seen. Partial demolition of the 1929 wing is finished. Excavations and construction of the new 80-bed patient wing and the education/conference center are ready to begin. This work has also created changes for visitors to the Hospital: the main entrance to the Hospital has been closed and an alternate one established. Signs direct visitors to the new entrance. The main driveway has also been closed (except for emergency vehicles) and traffic has been diverted to the smaller side parking lot. Inside work has also occupied the Hospital staff and construction crews. Shifting personnel around to fit into limited office space has been the most taxing problem, especially in the 1929 wing. While space will be tight during construction of the new nursing units and ancillary service areas, employees are remaining flexible and optimistic. KEY DONORS RECOGNIZED FOR SUPPORT W hen the challenge to build a new Hospital for future generations of children was put to the community, it took conviction and commitment to step forward first. These leading donors made the first significant investments needed to get the momentum of the Capital Campaign under way. The following individuals and organizations were acknowledged durino the groundhreakino celebration GO!!! RECOGNIZED FOR THE SIGNIFICANT CONTRIBUTION TO THE CAPITAL CAMPAIGN, GROUP OF LEADING DONOR SET WERE HONORED AT A SPECIA LUNCHEON AFTER THE GROUND BREAKING CEREMONY. SEEI HERE ARE DR. CONSTANCI BATTLE, THE HOSPITAL'S CEO AND MEDICAL DIRECTOR, READY... AND NATHAN WEINBERG AND BERNARD SIEGEL OF THE THE HARRY AND JEANETTE WEINBERG FOUNDATION. 13,1991 IDNE AN ARTIST'S RENDERING OF THE NEW HOSPITAL FOR SICK CHILDREN. WHEN COMPLETED IN 1993, THE HOSPITAL ith the grandeur of a Presidential WILL HAVE A TOTAL OF 130 BEDS, NEW TREAT- visit and the festive atmosphere of MENT AREAS, AN balloons, a band, clowns, and nearly UNDERGROUND GARAGE, A CONFERENCE CENTER, 500 dignitaries, healthcare profes- A PARENT TRAINING APARTMENT, AND sionals, Hospital employees, patients, OTHER CRUCIALLY neighbors and donors, the Hospital NEEDED FACILITIES. for Sick Children broke ground on June 13 for its $19 million expansion and renovation project. "You know, when you're dealing in medicine, whether you're a doctor or not, we toss around the word 'miracle' a lot. But this hospital reminds [me] of its true meaning," said President George Bush, the special guest of the day. Accompanying the President were First Lady Barbara Bush, Secretary of Health and Human Services Louis Sullivan, M.D., and U.S. Surgeon General Antonia Novello, M.D. "We've dreamed about this for a long time, and now it's becoming a reality," said Constance U. Battle, M.D., Chief Executive Officer/Medical Director of the Hospital. "The Washington area is about to see the growth of a special SPITAL FOR SICK CHILDR healthcare resource." The expansion and renovation will bring the Hospital's total number of beds up to 130. It will also add needed facilities such as new therapy suites, private family consultation rooms, a lab, an x-ray room, a parent training Summer 1991 THE HOSPITAL FOR SICK CHILDREN THERAPIST EXCHANGE S M A talk INSIDE SPARKS 2 SET ... GO!!! IDEAS AND READY... 13,1991 CELEBRATION! JUNE SPECIAL PHOTO FEATURE: THE HOSPITAL FOR SICK CHILDREN INNOVATIONS CELEBRATES ITS GROWTH! 3 A BUILDING PROJECT OFF EVENT TO A GREAT START! NEW PROGRAM started by the Hospital for Sick KEY DONORS RECOGNIZED FOR SUPPORT Children's rehabilitation thera- pists is giving them some new 4 VALUNTEERS perspectives on their work. modeled on the idea of foreign exchange HEADS UP ON SUMMER HEAD INJURIES programs in high schools and colleges," explained David Greenberg, the Hospital's MOM AND SON CAME A LONG WAY TO TELETHON Chief of Clinical Operations. "Just as ex- APRIL 22 change students learn about another was an country's culture, our therapists are learn- evening of food, music and well- ing about other hospitals' treatment systems." deserved thanks for the Hospital's Members of the Hospital for Sick Children's Physical, Occupa- special helpers - its volunteers. tional, Speech and Hearing, and Recreation Therapy departments are Over 80 people who donate their involved in the program. Individuals make contact with therapists at other facilities in the Baltimore and Washington metropolitan areas time, energy and skills to the Hospital and arrange for tours, meetings and observations of patient care. gathered to be recognized for their selfless According to Greenberg, the program is an opportunity for the work. After being entertained by a string trio from the Hospital's therapists to pick up tips on new or improved patient care Duke Ellington School for the Performing Arts, the volunteers methods, while enhancing facility-to-facility communication. In addi- were addressed by Hospital officials. tion, therapists from other hospitals are invited to visit the Hospital and see how the Hospital for Sick Children's innovative, developmen- Constance U. Battle, M.D., CEO/Medical Director, praised tally-oriented therapies are provided. their work and told them how they helped the Hospital staff. She "It was a really great experience," said Mary Beth Mulliken, one of also reminded them of the role they play in the Hospital's the Hospital's occupational therapists, who recently visited the mission of helping children develop to their fullest potential. Kennedy Institute in Baltimore. "I learned about important accredita- The volunteers at the event play many parts at the Hospital. tion procedures, as well as some new equipment we should purchase. There were members of the June Fair Committee, I really think it will help our overall patient care." organizers of the Children's Miracle Network Telethon, Patient Service Volunteers, mem- SMALL tALk bers of the Speakers Bureau, and civic and business group members who have WiNS AWArd found their own spe- CLAP cial ways to help the CLAP CLAP small talk has received an award in the Hospital's young patients. newsletter category of the Eighth Annual All of the volunteers share a Healthcare Advertising Awards Competition sponsored by the publication Healthcare Market- devotion to the severely ing Report. ill and disabled pa- With over 3,300 entries in the entire contest from CLAP CLAP tients. the United States and 10 foreign countries, Small Talk The ceremonies closed with was among the seven award winners in its category. The publication received one of five merit awards. presentations of plaques and small gifts to those present. all unacigiound parking galage. The Hospital for Sick Children is the Washington metropolitan area's only pediatric transitional care facility. The THE CONSTRUCTION SITE TOURED BY THE HOSPITAL'S DONORS WILL SOON BE TRANSFORMED INTO demand for the Hospital's services has A SOPHISTICATED, MODERN FACILITY READY TO HELP MORE CHILDREN. grown with the increase in premature and low birthweight babies, as well as other children suffering severe illnesses and injuries who are being saved by advancing technology. It was also a day of recognition for the contributions of the donors who have helped finance the project, the employees who help the Hospital's fragile young patients, and the many members of the community who support the Hospital's efforts. President Bush praised the results of those efforts. "The Hospital for Sick Children is a hidden treasure. And it brings out the hidden treasure in kids who otherwise "I was amazed to hear that this is one of only a handful of similar hospitals in this WISHINGTON OF might have been forever forgotten," he said. THE Bush also called for the creation of other facilities like the Hospital for Sick Children. country I hope health care professionals across this country will learn from it and go on to develop more facilities like this one. They're cost-effective. They work." After his remarks, UNITED Bush gave autographs and talked with the Hospital patients who came out for the celebration. THE Also appearing at the Groundbreaking were a representative of Mayor Sharon Pratt Dixon who presented a proclama- OF tion for "Hospital for Sick Children Day", D.C. Senator SEAL STATE Florence Pendleton, and Advisory Neighborhood Commissioner Joanne Boxley. RECOGNIZING THEIR WORK AND COMMIT- MENT TO THE HOSPITAL, DR. CONSTANCE BATTLE PRESENTS A SPECIAL GIFT TO CAPITAL CAMPAIGN Co- CHAIRMEN MITCHELL AND LYN RALES. PRESIDENT BUSH TAKES TIME TO TALK WITH ONE OF THE HOSPITAL'S PATIENTS. $500,000 AND ABOVE Ms. DIANA K. PRYOR CASHEN THE HARRY AND JEANETTE WEINBERG MISS ANNE C. EAGLES FOUNDATION ROSELYN P. EPPS, M.D. THE JAMES M. JOHNSTON TRUST $100,000 - $499,999 THE KIPLINGER FOUNDATION, INC. HOSPITAL EMPLOYEES AND Anonymous MR. JOHN DANIEL KISER PATIENTS CAME OUT TO ENJOY THE FUN AND FESTIVITIES. THE ARCANA FOUNDATION THE EMPLOYEES HAVE PLAYED A SPECIAL ROLE IN PLANNING, AND BY THE MARY AND DANIEL LOUGHRAN CONTRIBUTING MORE THAN $42,000 TOWARD THE PROJECT. THE WALTER BROWNLEY FOUNDATION TRUST MR. KEVIN G. THE ESTATE OF MCANANEY MARY McConville MR. AND MRS. STEPHEN MR. & MRS. MONTGOMERY MITCHELL P. RALES & JACOB B. SHAPIRO YOU MISS RUTH U. PAUL THE MAURICE C. MR. MICHAEL G. RYAN Ms. JULIA WALSH FOUNDATION "Our early gains $50,000 - give us great $99,999 confidence that this THE BENDER FOUNDATION will be a successful Campaign," THE EATON FOUNDATION said Stephen Montgomery, HSC BOARD OF Development Chairman of the Hospital's Board THE ESTATE OF WILHELMINA L. S. RILEY of Directors. "We have a commit- THE WASHINGTON POST ted Campaign Committee of community leaders, an unques- $25,000 - $49,999 tionable need and an institution ARTHUR ANDERSEN & Co. that has an unparalleled ability to A. H. BAKER Co. meet that need. Over the next C & P TELEPHONE year, we will be reaching out to MAKING THE CELEBRATION EVEN THE ESTATE OF NANCY LEITER CLAGETT MORE SPECIAL WAS THE PRESENCE OF PRESIDENT AND MRS. the entire community to give BUSH, SEEN HERE GREETING DR. BATTLE. IN HIS REMARKS, THE PRESIDENT PRAISED THE WORK THE CLARK-WINCHCOLE FOUNDATION everyone an opportunity to OF THE HOSPITAL, CALLING IT "A HIDDEN TREASURE". THE PRESIDENT ALSO STRESSED THE NEED THE GEORGE PRESTON MARSHALL FOR SUPPORTING THE HOSPITAL AND CREATING MORE FACILITIES LIKE IT. participate in this exciting FOUNDATION project." THE EUGENE & AGNES E. MEYER HEALTHCARE PROFESSIONALS FOUNDATION AND ADVOCATES TURNED OUT ROSPITAL THE WALTER G. Ross FOUNDATION TO WISH THE HOSPITAL WELL SICE condate AT THE START OF ITS PROJECT. SEEN HERE ARE (FROM LEFT): $10,000 - $24,999 DR. DANIEL EIN, PRESIDENT OF THE MEDICAL SOCIETY OF MR. GREGORY T. ABELL D.C.; ROBERT SWEENEY, ALEX. BROWN & SONS FOUNDATION PRESIDENT OF THE NATIONAL ASSOCIATION OF CHILDREN'S CONSTANCE U. BATTLE, M.D. HOSPITALS AND RELATED INSTITUTIONS; DR. CONSTANCE BATTLE, CEO/MEDICAL DIRECTOR OF THE HOSPITAL FOR SICK CHILDREN; DR. CARLESSIA HUSSEIN, DEPUTY COMMIS- SIONER, D.C. COMMISSION ON PUBLIC HEALTH; AND STEPHEN MONTGOMERY, CHAIRMAN OF THE HOSPITAL'S BOARD OF DIRECTORS. circumstances, deam. mgn speeus. third month of pregnancy. Cocaine and PCP were Other symptoms of and roller skaters should also part of Brenda's life during the pregnancy. head injuries can also have head protec- But she rejected the relationship between her include listlessness, tion. drug use and the problems Dennis was born with. vomiting, confu- Swimming and "I had a problem trying to accept that drugs caused sion and loss of diving in unfamiliar his problems," she said. Drugs, thankfully, are one consciousness. waters requires caution. Diving burden lifted from her life: Brenda has been drug- A major cause of should only take place in familiar free for about one year. head injuries are falls. Precautions waters where there are no underwa- Flexibility on the part of the Hospital staff went a long way to Brenda and are as simple as making sure shoes ter obstructions. Never dive in Dennis' success. For example, the Social Services staff was willing to rotate are clean and dry, removing shallow water. personnel until Brenda found someone with whom she connected. There was obstructions from floors, closing Everyone getting into the family also training as to how to care for Dennis and his special needs. "The training doors and drawers and keeping car should be in a seatbelt, a proven went great. The staff supported me 100 percent," said Brenda. clothes from dragging on the safety precaution. Infants and Right now Brenda is looking forward to all of the good times she and Dennis ground. Please see the Winter 1991 children should also be placed in a can have together. "I want to do more with him. I always wanted a child to issue of Small Talk for more informa- secure car seat. share things with. I want to show him a lot of things in the world." tion on preventing falls. If your child suffers a head Other precautions can reduce the injury, please seek medical help chance of serious injury from immedi- S M common summertime activities. ately. A STEPHEN MONTGOMERY Studies have talk Chairman, HSC Board of Directors CONSTANCE U. BATTLE, M.D. CEO/Medical Director SALLY J. SMITH, CFRE Director, Development and Community Relations VOL.1 ISSUE 4 SUMMER 1991 JED S. NITZBERG THE HOSPITAL FOR SICK CHILDREN Director, Public Relations, Editor 1731 Bunker Hill Road, NE Washington, DC 20017 (202) 832-4400 WICKHAM & ASSOCIATES, INC. Design Small Talk is a publication of the Development and Community Relations Department of the Hospital for Sick Children. No portion of this newsletter may be reproduced without permission. 07916000 Sharing in the United Black Fund THE HOSPITAL FOR SICK CHILDREN NON-PROFIT ORG. 1731 BUNKER HILL ROAD, NE U.S. POSTAGE WASHINGTON, DC 20017 PAID WASHINGTON, DC PERMIT NO. 2159 HROUGHOUT HER CAREER IN MEDICINE and 16 years at the helm of the Hospital Hundreds of donors help the Hospi- for Sick Children, Constance U. Battle, tal during the year. They provide the financial support that enables M.D., has seen technologies and tech- the Hospital to maintain and niques develop which once were only dreamed improve its about. She has also seen problems created by equipment NAMES these advances. With finan- care professionals] not only to give their and children the best possible care but to also services. cial shortfalls plaguing the be honest about the potential outcomes. I hospital industry and new have tried to create an environment at the health risks lurking, Dr. Hospital for Sick Children where parents Among the are an important part of their child's WE'D LIKE YOU TO Battle has just one ongoing overall care. They should know what's regular desire: ensuring that the Hospital for Sick happening every step of the way," said Dr. donors to the Children keeps pace with the changing Battle. She refers to this as family KNOW Hospital is a medical needs of children. centered care.' small segment am now seeing children survive who, had they been born ten years ago, of special wouldn't have had a chance, said Dr. donors - the Battle, the Hospital's Chief Executive foundations. Officer/Medical Director. "The limits are Three local at every turn, abundant foundations gained recognition by being tested changes exciting." becoming the first major donors to time when the Hospital's current building ment for DURING infants was campaign. wait. If the CEO'S infant was The EATON FOUNDATION, named after developed TENURE Richard Eaton (now-deceased founder of the United enough to Broadcasting Company), became aware of the Hospital stay alive, through foundation president, Gerald Hroblak. Hroblak, lived. Today, who is also Chief Executive Officer of United Broadcasting ventilators, monitors, medicines and other Changing technology and patient needs (which owns WDJY-FM in the District), has been a long- advanced technology let infants survive over the years have also meant a changing time supporter of the Hospital's June Fair. Not only did and thrive who are born weighing less Hospital staff. Today's care givers at the the foundation give a verv generous donation of $40.000 Hospital a team providing balanced HOSPITAL FACING MORE PATIENTS, SIMPLE STEPS TO Less space REMEMBER FOR YOUR RESPONDING TO THE NEEDS OF THE CHILD'S CARE community has always been part of the mission of the Hospital for Sick Children. The community is now facing new, complex needs which the Hos- pital is preparing to handle. And these needs are our child's health is a precious commodity. not expected to diminish soon. Since 1986, admissions to Hospital for Sick Children has proven to y The Hospital for Sick Children has some tips be a crucial resource in caring for many the Hospital have increased to help you care for your child : of these children who are too sick to go by 39 percent. Currently, the home yet ready to leave the acute care Hospital is filled to capacity, setting. "The problem we face is that we're and there is usually a waiting FUND RAISING JUNE FAIR COMMITTEE GROUPS The Board also raises money from the Washing- REACHES ALL TIME HIGH WITH SUNNY SKIES ABOVE AND SUNNY SMILES ALL ton Thrift Shop, which is run in cooperation around, the Hospital for Sick Children's June Fair MAKE with several other children's health organiza- completed its 18th year of successful fund raising. tions in the city. On June 22, the annual bazaar brought in more "These gifts to the Hospital make all of our members feel closer to the children and staff. We than $31,000 - the highest total in the Fair's history. look forward to reviewing the Hospital's needs "I was ecstatic. It was the biggest and best for the upcoming years and continuing our turnout we ever had," said Lily Williams, the IMPACT tradition of giving," said Ms. Fisk. Fair's 1990 chairperson. "There was a beautiful The blood gasanalyzer examines patient blood spirit from everyone working at the June Fair." samples to determine the concentrations of oxy- AT For the last 18 years, the Fair has brought gen and carbon dioxide, especially crucial when together a variety of social clubs, civic and reli- HOSPITAL weaning a patient from a ventilator to track the gious groups, and local businesses. By donating effectiveness of the child's own respiratory sys- 100 percent of their day's earnings tem. Most importantly, having the tests done in-house rather than at a dis- to the June Fair fund, the groups have managed over the years to tant lab cuts down on spoiled raise more than $160,000. specimens while increasing A special feature of this year's the speed and accuracy of the results. Fair was an appearance by Marilyn Quayle, wife of the Vice President The new bus, built entirely of the United States. Mrs. Quayle THE HOSPITAL to the Hospital's specifica- declared the official opening of the FOR SICKCHILDRI tions, can accommodate up Washington. D.C. Fair and then visited with the vari- to six wheelchair-bound pa- ous participants. She also spent time tients and 18 regular passen- with some of the Hospital's patients. gers. The bus has a wheel- chair lift with manual back- "Mrs. Quayle's interaction was fantastic. You could see her deep up system, double air condi- concern for these special children," tioning and heating units, said Ms. Williams. Ms. Williams also expressed her deep store: a much needed blood gas analyzer and special inflatable shock appreciation for the hard work of long-time Honorary and patient bus for the Hospital. absorbers for a safer, Chairperson Tom Mack, President of Tourmobile Inc., and "Every member of the board contrib- smoother ride. to Constance U. Battle, M.D., Hospital CEO/Medical Direc- uted their time and financial resources Sally Smith, Director of tor, for devoting her entire day to the Fair. to raise this money," said Linda Fisk, the Development and Commu- 1989 - 1990 chairperson of the group. nity Relations, works closely BOARD OF DEVELOPMENT HELPS PURCHASE NEEDED EQUIPMENT "These items were of the highest priority for the Hospital." with the Board of Development. "Over the years the Board's WITH OVER $75.000 IN HAND FROM SEVERAI FUND RAISING The Board of Development raised the monev for the fund raising activities have been essential to us. Without its Fall 1990 THE HOSPITAL FOR SICK CHILDREN S M A HAVE YOU HEARD THE NEWS? Hospital INSIDE expertise tapped 2 talk by media W hen it comes to treating FUND RAISING GROUPS MAKE BIG children with special needs, IMPACT AT HOSPITAL the Hospital for Sick Children wasn't Two groups of devoted volunteers have born yesterday. The expertise built up recently made significant contributions to over the last 107 years has made the the Hospital. Hospital a valuable information source. The Hospital has been especially help- SMOOTH SAILING FOR ful to the news media, both locally and YOUNG PATIENT nationally. Reporters have learned that One child's happy story. the Hospital for Sick Children has important stories to tell and that they VOLUNTEERS FILL SPECIAL ROLES can depend on the Hospital to provide Many people are giving their time and information quickly and accurately become very aggressive in getting our messages out. We've also become more accessible to the press. We know we 3 can help them a lot," said Stephen Montgomery, Chairman of HOSPITAL FACING MORE PATIENTS, the Hospital's Board LESS SPACE of Directors. The Hospital is responding to increased "For years demand with growth. ELCOME TO THE FIRST ISSUE OF SMALL TALK. THIS we focused our attention newsletter is our way of telling everyone about the excit- SIMPLE STEPS TO REMEMBER FOR internally, YOUR CHILD'S CARE ing things happening at the Hospital for Sick Children. It always develop- A few tips to help you and your child. ing services to is your chance to see some of the important work being offer top done by the Hospital for the Washington area's most severely ill and disabled children. 4 In these pages you will read about our children as they work quality pediatric health through the long, difficult recovery process. Staff members will share their care. Now we want to share own thoughts about the ups and downs of watching children reach NAMES WE'D LIKE YOU TO KNOW that expertise." The Hospital's expertise and Some early supporters of the the smallest of goals as they make the transition from Hospital accessibility have paid off. Hospital's expansion. to home. There will also be news about Hospital During the last year, the Hospital has been in the news CHANGES ABUNDANT DURING events and issues, as well as important CEO'S TENURE numerous times, including ABC's The Hospital's leader looks health and safety information. "Prime TIME LIVE," "20/20," CBS "48 back over the old Hours," Channel 32's "Evening Small Talk will also let you know and the new. Exchange," and The Wall Street Journal. how you can get involved with the Health care industry journals, such as Hospitals magazine, have also sought Hospital for Sick Children and its out the Hospital for Sick Children's unique role in the spectrum of unique perspective on a variety of issues. health services. Maybe volunteering to Advertising is another avenue of work with the children will spark your interest. Your donation of money or recognition that has become available to the hospital. Donations the Hospital equipment will make a crucial difference in the life of one of our children. received from organizations and And now, please begin your journey into the world foundations in the past allowed (continued on page 2) of the Hospital for Sick Children with Small Talk. shopping. The results were better than anything found in a Antiques Show and its 2nd Annual Flower and Garden Show. Smith. Volunteers Fill Special Roles FOR ave you ever considered for help. Administrative volunteers help YOUNG PATIENT H becoming a volunteer but with small projects or special events. couldn't find just the right They also pick up new skills when they place to do it? There are some cute little join the Speakers Bureau. The Bureau faces at the Hospital for Sick Children teaches volunteers the pain-free tricks to ne of the best ways to see the ultimately could have been fatal. that may change your mind. One look public speaking and then sends them importance and effectiveness of In an attempt to correct the problems, and you are hooked. out to various community groups to the work of the Hospital for surgeons at a Washington, D.C., hospital Unsure of what you can do? There is spread the Hospital's messages. Sick Children is to meet our patients. In performed several operations on something just right for every volunteer. There are a few simple rules about each issue of Small Talk, we'll present Samantha's digestive system. After that Maybe it's being a Patient Support becoming a Hospital for Sick Children one of our children's cases. hospital stay, she came to the Hospital Volunteer, helping staff members volunteer. All volunteers must be at While we are proud of our children's for Sick Children. provide our well-known warmth, least 16 years old and in good health. progress, we must also honor their right When she was admitted to the companionship, and nurturing which In order to build a warm, productive to privacy. Therefore, all patient names Hospital for Sick Children, Samantha make each child's stay in the Hospital relationship with our patients we also have been changed to preserve was a frail baby. She was placed on less traumatic. After training, volunteers ask that Patient Support Volunteers confidentiality. our Total Parenteral Nutrition act as escorts on field trips, help children serve a minimum of three hours a week. system. In TPN, a tube is surgi- with homework, or give the extra hugs For more information about volun- Samantha was born too small and cally implanted, allowing nutrients and cuddles our smallest patients need. teering at the Hospital for too soon, delivered at about seven to be pumped directly into the Becoming a non-patient care volun- Sick Children, please contact Karen months gestation. Being born bloodstream while bypassing teer means being our version of the King, Volunteer Coordinator, two months premature was a digestive system problems. calvary: always ready to respond to a call at 832-4400, ext. 260. signal to Samantha's family Despite an occasional and doctors that her life would setback, Samantha bounced not be easy. back splendidly. MEDIA continued from page 1 Samantha was found to Today, three-year-old magazine advertisements to be created "We're going to put our name in have "short gut syndrome" (a Samantha is walking, singing, and placed. The Hospital has now every reputable newsroom in the reduced amount of intestines), going on field trips with other taken to the airwaves with its message Washington area," said Montgomery. which ultimately led to intestinal Hospital patients, and doing everything by running ads on WKYS-FM, WGAY- "While not every contact will produce failure (all food absorption and muscle else a normal toddler should. Quite FM, WWRC-AM, WGMS-AM/FM, a story, we want editors and reporters activity stopped). She was failing to simply, according to one of her nurses, and WMAL-AM. to know that we are available to give thrive, and her intestinal problems Samantha is "doing just fine. With the momentum started, the them all the help we can." Hospital plans to keep moving ahead. tall list of 12-15 patients. According to health these complex cases were ever imagined, Cleaning baby's teeth and gums can be done care researchers, the number of said Constance U. Battle, CEO/Medical gently with a soft patients who need the type of care Director. baby wash- offered by the Hospital for Sick In response, the Hospital obtained a cloth. When Children is expected to increase. A Certificate of Need (CON) from the recent study determined that the District government. The CON gives your child has Washington, D.C., region will permission for the addition of 50 beds gone beyond the need at least 200 beds by the and major renovations to the facility. teething stage, a year 2000. These changes and expansions have been small, soft tooth- The increases are due to many welcomed by the medical community as brush can be used. factors; for example, more well as the Hospital's neighbors. premature and low birthweight Dr. Battle is confident that the entire babies than ever before are being Washington metropolitan area will show saved, and there are more pregnant its support for the Hospital. This is the Young babies should not women without proper only facility of its type serving the sleep with a pillow. It prenatal care giving Washington metropolitan area. I'm might obstruct their birth to extremely sure people will realize it's in their breathing. sick, fragile babies. best interest to have a sophisti- There is also a need cated facility with a full range for low cost alternatives of medical and rehabilitation to pediatric acute care services. Nobody knows when Have your children's feet mea- facilities for children recover- they may need our services," sured regularly, making sure ing from injuries and illnesses. The said Dr. Battle. there is adequate room in the shoe's length and width for STEPHEN MONTGOMERY S M A Chairman proper fit and allowance for growth. talk Board of Directors If possible, buy your children's CONSTANCE U. BATTLE, M.D. shoes at a children's shoe store where Chief Executive Officer/ Medical Director the personnel are experienced in fitting small feet. SALLY J. SMITH Director, Development and VOL. 1, ISSUE 1, FALL 1990 Community Relations Make sure your hands are clean before JED S. NITZBERG THE HOSPITAL FOR SICK CHILDREN Director, Public Relations disinfecting and dressing your child's Editor 1731 Bunker Hill Road, NE cuts and scrapes. Washington, DC 20017 WICKHAM & ASSOCIATES, INC. (202) 832-4400 Design For more information about your child's specific medical needs, please consult a physician. (Tips taken from Child Health, edited by Small Talk is a publication of the Development and Community Relations Department of the Hospital for Barry and Pamela Zuckerman. Hearst Books: New York, 1986) Sick Children. No portion of this newsletter may be reproduced without the permission of the Director of Development and Community Relations. 09905000 Sharing in the United Black Fund SMALL talk FALL 1990 donation as well. of progress. As more premature and low trained to handle the complex cases we birthweight infants are saved, the need for see and new treatments we use. Even our While many voices call for action on children's health longer, ongoing care becomes more non-patient care employees do their best issues, often little action is taken. THE GEORGE crucial. Often these children are to find new ways to make the Hospital PRESTON MARSHALL FOUNDATION demon- born with even better," said Dr. Battle. strated its commitment to children's health with a $40,000 complex The Hospital and its staff are now gift to the campaign. The foundation, named for the physical equipped to handle current and upcom- former owner of the Washington Redskins, has not simply problems ing health crises. Substance written a check to the Hospital: foundation personnel abuse has created a new type of have made it a habit to check in regularly for news of any patient with new family prob- Hospital changes. lems. "We are adapting. Of course, it's not easy and never has Just as the Hospital is committed to meeting changing been. But these children also health care needs, so is the EUGENE AND deserve a chance, even though AGNES E. MEYER FOUNDATION. The founda- they've started off with strikes against tion has made an initial grant of $40,000 for beds dedi- them," said Dr. Battle. What troubles cated to children with HIV- or AIDS-related conditions. Dr. Battle most is that the long-term As one of the most well-known local foundations, the effects of some drugs on infants, such as Meyer Foundation and the Hospital have a natural crack cocaine, are not known. partnership in the fight for better children's health. But there are bright spots on the horizon. When it comes to discussing the future of the Hospital, Dr. Battle sees only These foundations are some of the hundreds of local donors which could good things. "We're ready to take our who are steadfast and special supporters of the Hospital for be fatal. Consequently, next important steps - major expansion Sick Children. As the building and Annual Fund campaigns their families are in a fragile state, and renovation. It's something we have to progress through the year, many more people will be making unsure whether the child will live or die, do if we are to keep meeting the health a difference in the lives of our patients. sometimes angry or depressed that their care needs of the Washington area's baby is the less than perfect child they children. Some children will always expected. need special hospital care. We'll be "These families depend on us [health there to give it." THE HOSPITAL FOR SICK CHILDREN 1731 BUNKER HILL ROAD, NE WASHINGTON, DC 20017