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Clinton Presidential Records Digital Records Marker This is not a presidential record. This is used as an administrative marker by the William J. Clinton Presidential Library Staff. This marker identifies the place of a publication. Publications have not been scanned in their entirety for the purpose of digitization. To see the full publication please search online or visit the Clinton Presidential Library's Research Room. - GLU:ADA ADA picture U.S. Department of Justice Civil Rights Division - acorm a ECOL Disability Rights Section Enforcing the ADA: Looking Back on a Decade of Progress A Special Tenth Anniversary Status Report from the Department of Justice July 2000 This is a special edition commemorating the tenth anniversary of the enactment of the ADA. This report, previous status reports, and a wide range of other ADA information are available through the Department's ADA Home Page on the World Wide Web (see page 38). Fle.ADA Report from the Subcommittee on Expanding Employment Opportunities for Young People with Disabilities TO THE PRESIDENTIAL Vichi v/ TASK FORCE ON EMPLOYMENT - First Lady'e - OF ADULTS WITH DISABILITIES alen Co-Chairs: Sue Swenson, Commissioner Administration on Developmental Disabilities Department of Health and Human Services Curtis Richards, Deputy Assistant Secretary Office of Special Education and Rehabilitative Services Department of Education 17 OF EDUCATION UNITED STATES DEPARTMENT OF EDUCATION MITED STATES of AMERICA OFFICE OF SPECIAL EDUCATION AND REHABILITATIVE SERVICES The Honorable Alexis Herman Chairwoman, Presidential Task Force on Employment of Adults with Disabilities The Honorable Tony Coelho Vice-Chair, Presidential Task Force on Employment of Adults with Disabilities 200 Constitution Avenue, N.W., Room S-2312 Washington, D.C. 20210 Dear Chairwoman Herman & Vice-Chair Coelho: Under cover of this memorandum, we transmit the 1999 report to the President from the Committee on Access to Employment and Lifelong Learning Subcommittee on Expanding Employment Opportunities for Young People with Disabilities. We understand that this report will be made available concurrent with publication of the full Task Force report in December. The report contains a summary of current and planned activities and was drafted with the assistance of Subcommittee members. It addresses school-to-work transition and other strategies designed to improve young people's opportunities for success in the workforce. We approve this report as written and submit it to you for publication and public use. Sincerely, Curtis Richards, Deputy Assistant Secretary Sue Swenson, Commissioner Office of Special Education and Administration on Developmental Rehabilitation Services Disabilities, US Department of Health and Human Services 600 INDEPENDENCE AVE.. S.W. WASHINGTON. D.C. 20202-2500 Our mission is to ensure equal access to education and to promote educational excellence throughout the Nation. Mission and Goals Background The Subcommittee on Expanding Employment Overview Opportunities for Young People with Disabilities, co-chaired by Sue Swenson, Commissioner of the In its first report to President Clinton and Vice Presi- Administration on Developmental Disabilities, and dent Gore, the Task Force recognized the impor- Curtis Richards, Deputy Assistant Secretary of the tance of focusing attention on the issues facing Office of Special Education and Rehabilitative Ser- young people with disabilities. One of the recom- vices, established the following mission and goals. mendations in The charge of the Subcommittee is to: states: 1. Review and analyze current data on the status The Administration should work with States, of young people, with and without disabilities, communities, schools and others to assist young transitioning from adolescence to adulthood people with disabilities with the tools they need and the world of work. to believe in themselves and to pursue positive futures; to avoid teen pregnancy, substance abuse 2. Identify and promote effective practices that and other risk behaviors; to finish high school assist young people with disabilities in successful- and go on to college or work; to take full advan- ly transitioning from adolescence to employment. tage of school-to-work and community and 3. Review and analyze current legislative authorities national service opportunities; to experience, and programs that affect young people with dis- learn from, and build on early life successes; and abilities, and make recommendations for the to assume positive control and responsibility for their individual lives and futures. alignment or improvement of Federal programs that ensure successful transition of young people With this recommendation, the Task Force called with disabilities to employment. for an end to the expectation that yet another gen- The goals of the Subcommittee are to: eration of young people with disabilities would stay out of the workforce and become dependent 1. Identify and eliminate Federal policies that are on public assistance programs. Therefore, the lead- barriers to employment for young people with ership of the Task Force created the Subcommittee disabilities. on Expanding Employment Opportunities for Young People with Disabilities as a subcommittee 2. Make recommendations that promote effective of the Committee on Access to Employment and Federal policies and eliminate policies which are Lifelong Learning. barriers to employment. Definition of Terms 3. Develop an action plan that leads to a coordinat- ed and aggressive national strategy to ensure that At the Subcommittee's first meeting, the breadth of young people with disabilities enter the work- issues to be considered seemed daunting. Before force at comparable rates and pace as their non- shaping a specific charge, members of the Subcom- disabled peers. mittee believed it necessary to begin by defining the key terms that would guide its work: Who is the tar- 4. Develop recommendations for influencing State get audience? What is meant by transition and and local policy and practice for young people employment? The following common definitions with disabilities and chronic health conditions in were developed: achieving employment. Subcommittee on Expanding Employment Opportunities for Young People with Disabilities 19 Young People: The focus of the Subcommit- tion services in the transition process for young tee's work will be on young people between 14 people with disabilities. and 25 years old. However, it is important to remember that young people begin thinking Research focusing on progress toward these goals about work at much earlier ages. It is not has revealed both troubling and encouraging indica- uncommon for elementary and middle-school tors relating to transition from adolescence to adult- students to emulate adult role models and aspire hood and the world of work. Data generated to their professions. The Subcommittee believes through research, especially longitudinal research, that its work will occasionally address issues illustrate both areas of progress and need. The Sub- related to people younger than high school age. committee reviewed a series of research and policy studies and conducted a series of "listening sessions" Transition: For the work of the Subcommittee, with stakeholders. transition is defined as the movement of young people with disabilities into employment. Activi- First, the Subcommittee examined the draft results ties promoting this movement must be based on of a review conducted in 1996 by the White House an individual's self-determined preferences and Domestic Policy Council on transition policy, titled interests. These activities should include, but not School-to-Work Transition: Disability Policy Review. be limited to, lifelong learning, community expe- The Subcommittee also reviewed data from the riences, and the development of a career path, Department of Education/Office of Special Educa- health and wellness, and other post-school and tion Programs' 1993 National Longitudinal Transi- adult living objectives. To accomplish this, it tion Study, data analyses of beneficiaries from the may be necessary to consider supports, related Social Security Administration, and the Department services, and other issues including: evaluation; of Education's participation rates of students with planning; reasonable accommodations; access to disabilities in postsecondary education. adequate health care and insurance coverage; income supports; vocational training and rehabili- The Subcommittee sponsored and participated in a tation; service learning; school-, work-, and com- series of "listening sessions" to solicit input from munity-based experiences (paid and unpaid); and young people with disabilities, their families, educa- assistive technology. tors, service providers and others about barriers faced by young people with disabilities transition- Employment: For the work of the Subcommit- ing from adolescence to adulthood and work. tee, employment is defined as regular engage- These included a Town Hall meeting in Los Angeles ment in skilled activities for payment. sponsored by the Task Force, a roundtable discus- sion hosted by the National Council on Disability, a Policy Issues Youth Policy Forum sponsored by the Social Securi- ty Administration and the National Institute on Dis- The Americans with Disabilities Act of 1990 (ADA) ability and Rehabilitation Research, a luncheon dis- identifies equality of opportunity, full participation, cussion at the National Council on Disability's independent living and economic self-sufficiency as Youth Leadership Forum, and a meeting of the key goals for persons with disabilities. Similarly, the Healthy and Ready to Work Federal Interagency Individuals with Disabilities Education Act (IDEA) Work Group. During the course of its work, the aims to "stimulate the improvement of the vocation- Subcommittee plans to continue its participation in al and life skills of students with disabilities to these types of "listening sessions" to ensure that a enable them to be better prepared for transition to broad base of input is incorporated into the work adult life and services." The reauthorization of the of the Task Force. Rehabilitation Act in 1998 echoed these goals by incorporating IDEA's definition of transition servic- From these activities, several patterns emerge which es and increasing the focus on vocational rehabilita- should be considered for future policy develop- ment. First, the population of young people with 20 Presidential Task Force on Employment of Adults with Disabilities Committee Reports disabilities is growing and becoming more diverse. between the ages of 18 and 25 currently receive SSI For example, according to the Census Bureau, there benefits. Of those, only 10 percent report some are 25.1 million Americans between the ages of 15- form of work activity. Each year, 16,000 18-year-olds 21 years of age, 12.1 percent of who have a disabili- and 56,000 individuals between 19 and 25 years of ty or chronic health condition. Among 95 million age are approved for SSI benefits. In addition, data people between the age of 24-44, almost 15 percent from the U.S. Census Bureau indicate that almost 80 have a disability. percent of individuals ages 22-44 who do not have disabilities have private insurance coverage, three More importantly, this population is growing much percent have public insurance and 17 percent are more diverse, with significant rises expected in the uninsured. In contrast, in the same age group, numbers of African, Native, Asian and Hispanic among individuals with disabilities almost 58 per- Americans with disabilities. According to data from cent have private coverage, 22 percent have public the Survey of Income and Program Participation insurance and almost 20 percent are uninsured. (1993), an ongoing, nationally representative panel survey of the economic status of the non-institution- Data indicates that many young people with disabili- alized, civilian population living in the U.S., the over- ties are dependent on Federal income support and all rate of disability is highest for Native Americans public health insurance benefits. Promoting greater (21.9%), followed closely by African Americans self-sufficiency among beneficiaries cannot be (20.0%), whites (19.7%), Hispanics (15.3%), and achieved without eliminating work disincentives. Asians and Pacific Islanders (9.9%). The possibility of losing health insurance and other crucial benefits discourages many from seeking For women with disabilities, the situation is worse. work. Further, for those who are employed, oppor- Of the total population of adults with disabilities, tunities to increase wages and earnings may be men are twice as likely to be employed, are more avoided for fear of losing these benefits. As the sys- likely to work full-time, and, on average, receive high- tem currently exists, many potential workers remain er wages. The barriers faced by all women in the unemployed and dependent, not because of laziness workplace are compounded for women, of all ages, or indifference, but because working is simply not with disabilities. The "double discrimination" of being in their best economic or medical interests. a woman with a disability is evident in all aspects of employment, including the employment-related pro- Third, technology is transforming opportunities for grams provided to individuals with disabilities. young people with disabilities. Assistive technolo- gy, distance learning, and the Internet are among Second, access to health care, insurance coverage, the technological innovations that are significantly and income supports present barriers to employ- transforming the workplace and lifelong learning ment for young people with disabilities. While rapid opportunities for young people with disabilities, advances in medical science have enabled over 90 and will continue to do so at a rapid rate into the percent of children born with special needs to next century. reach adulthood, youth with special health care needs are much less likely than their non-disabled Fourth, education, vocational rehabilitation, and peers to finish high school, pursue postsecondary workforce development efforts are signaling the education, get jobs, or live independently. Few coor- transformation of programs designed to serve peo- dinated services have been available to assist them pie with disabilities. Nowhere is this trend more in their developmental transitions from school to noticeable than in policies dealing with young peo- work, home to independent living and pediatric- ple with disabilities. In the education arena, for based care to adult-based care. example, the trend is toward increasing expecta- tions and academic skills, and including young peo- Current Supplemental Security Income (SSI) and ple with disabilities in all aspects of general educa- Medicaid benefit systems also create barriers to tion reform, as reflected by the Individuals with employment. Nearly 600,000 young people Disabilities Education Act Amendments of 1997, Subcommittee on Expanding Employment Opportunities for Young People with Disabilities 21 Goals 2000, Improving America Schools Act, and the The IDEA Amendments of 1997 further strength- School-to-Work Opportunities Act. ened transition programs. For example, the law emphasizes the need for transition planning to Another example of the general systems reform begin earlier (at age 14) and mandates that young trend is demonstrated by the Workforce Investment people know their rights and exercise self-determi- Act of 1998 (WIA). The WIA brings a new emphasis nation and choice in program selection and design. on how youth are served within the workforce This is critical as findings from the Office of Special development system. WIA's major services for young Education Programs' monitoring of State educational people include: (1) the establishment of local youth systems show a frequent lack of transition planing councils; (2) comprehensive services based on indi- in the Individualized Education Program (IEP) vidualized assessment; (3) youth connections and process. As a result, too many young people never access to the One-Stop Career Center system; and (4) receive the counseling, career education, vocational performance accountability. The Department of training, assistance in obtaining adult health care, Labor's publication, The Workforce Investment Act of and adequate insurance and other services they 1998: A Vision for Youth, specifically mentions need to make successful transitions from school to young people with disabilities as a specific target work, or school-to-college-to-work population under WIA. Federal policy efforts must ensure that young people with disabilities are includ- We also know that as the level of education rises, so ed in the opportunities that WIA presents. does labor force participation, and these rates increase much more sharply for people with disabil- In addition, as a part of WIA, the Rehabilitation Act ities than those without disabilities. For example, was amended with increased attention focused on among people 25-64 years of age who have a dis- transition. In addition to adding a definition for tran- ability, only 16 percent of those with less than 12 sition services, WIA mandates that State vocational years of education are working or looking for work. rehabilitation plans include coordination with The rate rises to 27.3 percent for those who com- responsible State education officials to facilitate the plete 12 years of school, increases again to 40.9 per- transition of youth with disabilities from education cent for those with 13 to 15 years of education, and to vocational rehabilitation services. State plans reaches 50.6 percent for people with 16 or more must include interagency agreements that provide years of education. Increasing academic skill expec- information about technical assistance for education tations and expanding lifelong learning opportuni- agencies, personnel training, agency financial ties are critical aspects of future success for young responsibilities, outreach, and student identification people with disabilities. policies and procedures. The transition needs of young people with disabili- Fifth, there is a tremendous need to improve plan- ties require appropriate services according to indi- ning and delivery of transition services. While some vidualized needs. However, data show that con- individuals with disabilities appear to have better sumer-driven services are elusive: transition outcomes, others do not. According to Only a third of young people with disabilities the Department of Education, 20 percent of young adults with disabilities do not graduate from high who need job training actually receive such school, compared to 9 percent of young adults with training. no disabilities. Approximately 23 percent of young Only a fourth of young people who need life people without disabilities have graduated from col- skills training, tutoring, interpreting or personal lege, as compared to less than 10 percent of young counseling receive these services. people with disabilities and only 6 percent of young Contacts with vocational rehabilitation agencies, people with significant disabilities. Youth and young postsecondary institutions, job placement pro- adults with severe emotional disturbances, for exam- grams, employers, social service and mental ple, experience particularly poor outcomes. health agencies are substantially less frequent for students with serious emotional disturbances. 22 Presidential Task Force on Employment of Adults with Disabilities Committee Reports Within three to five years after exiting school Department of Education more than half of all young people with emo- tional disturbances are arrested at least once. The absence of needed services and the bleak out- comes of many young people underscore the need Transition Technical Assistance. The National for effective policies and programs. How to improve Transition Alliance (NTA) has identified promis- service delivery for all young people with disabilities ing programs and practices from across the is therefore a fundamental policy question. country which promote the transition of youth with disabilities towards desired post-school out- Students with disabilities want better education and comes. The NTA provides technical assistance to training opportunities to help them prepare for School-to-Work State grantees and disseminates employment and independent living. To keep pace information regarding transition and school-to- with the ever increasing technical skills required by work issues nationwide. the job market, more individuals with disabilities are taking advantage of postsecondary education than ever before: In 1978, the percentage of full-time col- lege freshman reporting disabilities was 2.6 percent; in 1991, this figure more than tripled to 8.8 percent. Model Demonstration. Since 1985, OSEP has Still, there is much room for improvement. funded over 300 secondary education model demonstration and outreach projects that Studying progress and pitfalls helps us better under- develop, implement, evaluate, and disseminate stand the complexities of transition for young peo- new or improved approaches for serving the ple with disabilities. By learning from these, educat- needs of students in high schools, and empha- ed choices may be made to improve transition size school-based learning activities that are service delivery and to assist all young people in linked to occupational skills standards and chal- attaining the national goals. The needs of young lenging academic standards. people with disabilities transitioning from adoles- cence to adulthood are great. Issues of coordina- Self-Determination. Another of OSEP's sustained tion, accountability and access must be addressed to efforts is in the area of self-determination. This promote positive transition outcomes, and the Fed- effort has demonstrated that, with appropriate eral government's leadership role must be asserted guidance, students are clearly capable of partici- to ensure that all means all. pating in planning and decision-making regard- ing their futures. Self-determination is the ulti- If post high school academic and employment out- mate goal of education. comes are to improve, effective transition strategies and activities must occur for all young people with Systems Change. In 1991, OSEP initiated a spe- disabilities. Only then will the goals of equal oppor- cial grants program, specifically intended to tunity, full participation, independent living, ade- make available one-time, five-year grants to indi- quate health care and insurance coverage and eco- vidual States for the purpose of establishing nomic self-sufficiency become a reality. responsive State systems that address the school- to-work transition needs of young people with disabilities. These grants are intended to assist Current Activities States in developing effective strategies and pro- The Subcommittee's initial task was to share infor- cedures for implementing new requirements for mation among the participating agencies in order to transition services included in the IDEA Amend- identify innovative programs and practices, possible ments of 1997. To date, each State has received a duplication, and gaps. The following briefly summa- five-year systems change grant. rizes current agency activities: Subcommittee on Expanding Employment Opportunities for Young People with Disabilities 23 Information Dissemination: OSEP funds the the effectiveness of those services, reduce job- HEATH Resource Center, the national clearing- lessness in Indian communities and serve tribally house on postsecondary education for individu- determined goals consistent with the policy of als with disabilities, to assist in the transition self-determination. More recently, the "Section from school to college. 121 projects" (formally known as Section 130 under the Rehabilitation Act of 1973 as amend- ed) have sought to reduce the continuing high rates of unemployment on reservations. Data Systems Change. Building on lessons learned from 1996 shows that RSA funded 32 projects. from the OSEP Transition Systems Change proj- In 1999 RSA expected to provide 28 additional ects, RSA recently funded State Systems Change grant awards, which may include successful con- projects focusing on improved employment out- tinuing, as well as new projects. comes for individuals with disabilities. These RSA also supports Capacity Building for Tradition- projects address the systemic barriers that per- sons with disabilities face when seeking employ- ally Underserved Populations, another program to improve services provided under the Rehabili- ment, particularly those who participate in Social Security programs. Most of these six proj- tation Act. This program targets services provid- ed to individuals from culturally diverse back- ects include emphases on youth and young adults with disabilities. grounds, and provides outreach and technical assistance to Indian tribes and other entities Special Projects. A number of RSA's special proj- working with culturally diverse groups to ects target youth and young adults with disabili- enhance their capacity and promote their partici- ties. For example, Project RISE in Spring Lake pation in activities funded under the Rehabilita- Park, Minnesota has developed a transition and tion Act. The 12 recent awards provided grants supported employment model program for tran- to State and public or private nonprofit agencies sitioning students that addresses their employ- and organizations, including Indian tribes and ment and independent living needs. The model historically black or Hispanic institutions of high- emphasizes coordination among businesses and er education serving traditionally underserved State and local agencies that provide transporta- racial and ethnic groups. tion, mental health services, and employment services for students with disabilities. Partners for Youth With Disabilities, Inc. of Boston, Massa- chusetts has an entrepreneurship program for Rehabilitation Research and Training. NIDRR youth with disabilities using a multi-tiered supports Rehabilitation Research and Training approach of classroom instruction, mentorship, Centers (RRTC) that directly and indirectly ben- and business community development in order efit transitioning young people with disabilities. to assist youth with disabilities in transition. Some of these focus on mental illness, support- ed employment, community living, and employa- Attention to Diverse Needs. RSA has provided bility. The RRTC at the University of Hawaii, the support for persons from diverse racial and eth- National Center for the Study of Postsecondary nic groups, as demonstrated by implementation Educational Supports, focuses specifically on of the Indian Employment, Training and Related postsecondary educational supports for students Services Demonstration Act of 1992. This was with disabilities. one of two major programs designed to address the high rates of unemployment for American Indians with disabilities. The initial program Demonstration Projects. OSERS and OPE have demonstrated how Indian tribal governments provided important technical assistance to shape could integrate the employment, training and the new "Demonstration Projects to Ensure Stu- related services they provide in order to improve 24 Presidential Task Force on Employment of Adults with Disabilities Committee Reports dents with Disabilities Receive a Quality Higher builds on these successes and also includes the Education." This $5 million program focuses on Gear Up Program, designed to increase early the development of education models for stu- awareness and encourage all students to aspire dents with disabilities, and at least two awards towards postsecondary education. will target the needs of students with learning disabilities specifically. Activities include devel- Department of Labor oping innovative teaching strategies (including Youth Opportunity Grants. The Employment distance learning and assistive technology), syn- and Training Administration (ETA) will award thesizing research, professional development and competitive grants under the Youth Opportuni- training, evaluation, and dissemination. The over- ty initiative in January 2000. The Workforce all purpose of these demonstrations is to Investment Act specifies that Youth Opportunity increase postsecondary faculty awareness and grants are to be used to increase the long-term preparedness so that students with disabilities employment of youth who live in empower- receive the accommodations and supports neces- ment zones, enterprise communities, and high- sary for quality educational experiences. poverty areas. These projects will develop high- Attention to Diverse Needs. The population of quality programs that help individual youth find young people with disabilities is growing much better jobs and increase their educational attain- more diverse. While significant rises are expect- ment, and achieve community-wide increases in ed in the number of Asian and Hispanic Ameri- youth employment rates and educational attain- cans with disabilities, increased attention will ment. Young people with disabilities are includ- also need to be given to the needs of African ed in the target population to be served by American and American Indian youth with dis- these grants. abilities. High school counselors, teachers, other Demonstration Projects. DOL's 15 Disability staff and community members must be prepared Employment Grants spur innovation, coordina- to provide culturally appropriate guidance to tion and quality outcomes for improving employ- these students, as they provide guidance and ment outcomes for individuals with disabilities. access to resources that will facilitate successful Many of these projects address the needs of transition to postsecondary education for all youth and young adults with disabilities. young people. Support has historically been pro- vided to students from diverse cultural groups, Department of Health and Human Services students with disabilities, and disadvantaged stu- dents through special programs designed to ben- efit underserved populations. Recent Federal leg- islation provides additional assistance through the Higher Education Amendments of 1998 Healthy and Ready to Work (HRTW). The (HEA). The intent of HEA is to improve outreach HRTW initiative (1) focuses on young people to students and strengthen linkages to employ- with special health needs and the transition to ment and secondary education programs. HEA adulthood and (2) promotes wellness and also continues to improve educational opportu- improved access to appropriate health care. This nities through the TRIO Programs (Educational includes moving from the pediatric to adult Opportunities for Low-Income and Disabled health care system and reducing health crisis Americans) and the Fund for the Improvement episodes so youth can optimize their transition of Postsecondary Education (FIPSE) programs. from secondary to post-secondary education, The FIPSE and TRIO programs (including employment, and self-sufficiency. Through Upward Bound and Talent Search) have HRSA's Special Projects of Regional and National improved educational opportunities for all stu- Significance funding mechanism, MCHB has dents, including opportunities that focused implemented nine demonstration projects specifically on students with disabilities. HEA Subcommittee on Expanding Employment Opportunities for Young People with Disabilities 25 addressing transition for young people with spe- 250 young people (aged 15 to 17) per year will be cial health care needs and funded a national cen- examined soon after their supplemental security ter to provide technical assistance to the projects Income (SSI) disability review process is completed. and to State programs, and to promote intera- After conducting enhanced assessments, the partici- gency partnerships on the Federal level. pants will be referred to the State Vocational Reha- bilitation agencies, the Department of Labor employ- The projects are reporting outcome information ment programs (in particular the school-to-work in categories corresponding to six national MCHB system), Department of Health and Human Services performance measures that assess the health and programs, and other agencies for services and inter- well-being of children with special health needs, ventions, as appropriate. From this three year pilot including issues such as employment status, project, SSA will examine the impact of an early and access to a medical "home" (not a place, but a sys- more proactive approach on the successful transi- tem of services that is community-based, cultural- tion of young people from school, and the SSI rolls, ly competent, comprehensive and continuous) to work. SSA expects this initiative to: inform young and a source of health insurance. people and their families about work incentives and work; motivate and assist them in transitioning to work; increase independence and decrease depend- ence on public benefits; and inform SSA operations Data Collection. ADD funds three ongoing data and policy development. centers, one of which provides comparative data by State on costs and outcomes associated President's Committee on Employment with the employment of people with develop- of People with Disabilities mental disabilities. The President's Committee operates four youth- focused programs designed to foster both the career Employment and Temporary Assistance to development and leadership skills of young persons Needy Families. ADD funded a three-year techni- with disabilities. cal assistance project to improve access to employment under TANF for people with devel- Workforce Recruitment Program. Each year, opmental disabilities. trained recruiters are sent to approximately 140 colleges and universities, all across the country, Self-Determination. A three-year nationwide to interview over 1,500 college students with project to improve self- determination for per- disabilities. Each student interviewed is evaluat- sons with developmental disabilities has been ed and a descriptive narrative is prepared. In the funded by ADD. early spring of each year, a listing of all these stu- Family Support. ADD funded 22 States (over $4 dents is released to employers who either have million) to establish Family Support Systems pledged to hire these students for paid summer Change projects to develop a comprehensive sys- internships, or who are actively recruiting job tem of family support services. The projects applicants with disabilities for both paid sum- focus on helping children achieve independ- mer internships or full-time employment. This ence, productivity, inclusion, and integration by program is designed to facilitate contact ensuring that families are supported in raising between college students with disabilities and their children with disabilities at home. interested employers. Social Security Administration High School/High Tech (HS/HT). There are presently over 60 HS/HT programs in 20 states In 1999, SSA announced a new, three year pilot proj- across the country. HS/HT is an enrichment activ- ect, known as the "Youth Continuing Disability ity designed to provide special education stu- Review Initiative," in which the particular needs of dents with experiences, mentors and paid intern- 26 Presidential Task Force on Employment of Adults with Disabilities Committee Reports ships in technology-related occupations. Through for young people with disabilities (see "Future these activities, students are challenged to Issues," below). expand their ambitions and to seek post-second- ary education as well as careers in technology- 1. he Sub- related fields. Local HS/HT programs represent a committee will work to expand existing Federal coalition of community organizations, employers government internship opportunities for young and school systems, all working together to pro- people with disabilities, such as the Workforce vide these activities. HS/HT is a dramatic way to Recruitment Program for People with Disabili- break down stereotypes and to offer an extracur- ties and the High School-High Tech Program, ricular activity that affords students alternative both run by the President's Committee on ways to find their potential. Employment of People with Disabilities. Other opportunities should also be expanded for Youth Leadership Forums. In the summer of young people with disabilities, such as the Presi- 2000, 25 state-level conferences for high school dential Management Internship Program, White age students with disabilities are being planned House and other agency fellowships and intern- to provide each state's participants with career ships, and the high school summer intern jobs and leadership skills development. Participating program. In addition, we recommend that pub- students are afforded the opportunity to share lic-private sector partnerships be created to experiences and ideas with other students with develop new internship opportunities and to disabilities and, thereby, grow in self-awareness expand existing internship opportunities for and community spirit. The goal of this effort is to young people with disabilities with an emphasis impact these students' futures as well as prepare on leading technology industries. the next generation of disability leaders. The five- year goal of this annual program is to bring this 2. program to each of the 50 states. The Subcommittee is developing an initiative to stimulate higher participation rates National Youth Leadership Conference. With the of young adults with disabilities in postsec- support of key federal agencies, the President's ondary education. This will be done, in part, by Committee holds an annual National Conference emphasizing the need for lifelong learning for in Washington, D.C. This four day program is led people with disabilities, stimulating greater par- by young people with disabilities and offers ticipation of vocational rehabilitation consumers them programming in the areas of civil rights, in postsecondary education, and focusing inten- empowerment and career planning. sive efforts on young people who receive Social Security and Supplemental Security Income (SSI) disability benefits. Recommendations 3. The Subcommittee recommends that the Social Subcommittee Security Administration explore fiscally sound Recommendations options for regularly increasing the Substantial Gainful Activity (SGA) level, with an emphasis on The Subcommittee, recommends the following six young adults with disabilities transitioning into actions be addressed by Federal agencies or funding employment. We also recommend that SSA pur- sources. These recommendations can be imple- sue necessary legislative and regulatory changes mented through budget authority or by interagency to increase the age limit and the amount of the work groups. The Subcommittee will continue to SSI. Student Earned Income Exclusion. examine policy options and to formulate recom- mendations to align and improve Federal programs 4. The Subcommittee will work to Subcommittee on Expanding Employment Opportunities for Young People with Disabilities 27 coordinate and expand a Federal interagency disabilities, who were charged with taking the National Youth with Disabilities Leadership results of the conference and making policy recom- Development Program funding priority. mendations to the conference sponsors. 5. The Youth Policy Work Group submitted a proposal The Subcommittee recommends the for a "Voluntary Social Insurance Life Voucher Sys- inclusion of a target goal for Healthy People 2010 tem," a consumer-controlled vehicle for accessing dealing with young people with disabilities and needed supports for maximum independence. This transition. Medical practices and health care includes, but is not limited to, education (elemen- services must be delivered in a way that empow- tary, secondary and postsecondary), access to ade- ers young people to take progressively increasing quate health care and insurance coverage, employ- control of managing their own health care. ment, housing, transportation, income supports, and technology and assistive devices. 6. The Subcommittee is The Voluntary Social Insurance Life Voucher System examining strategies to coordinate various would be a program in which young people volun- research projects being implemented by agen- tarily apply and are given the opportunity to write cies. These include the Department of Educa- their own budgets and ongoing "future plans" for tion's second National Longitudinal Transition their needed supports. In these plans, individuals, Survey, the Social Security Administration's sur- possibly with the assistance of others, would look at vey of children who receive SSI, and the Depart- (1) what supports they will need annually, and (2) ment of Labor's military aptitude study and what supports they could acquire on their own youth opportunity study. The Subcommittee which would require no financial assistance, such as believes it important to assure that these surveys a circle of support from friends and family. Individu- are asking the appropriate research questions in als would submit their proposals for the dollars of order to help policymakers better understand services they would require to be equal to non-dis- the barriers faced by young people with disabili- abled peers. The financial portions could include ties. The differing goals and strategies for devel- educational supports, housing and transportation, oping these surveys will affect the degree to vocational training and support, access to adequate which such coordination can be achieved. Nev- health care and insurance coverage, as well as any ertheless, interactions between sponsoring agen- other supports necessary to achieve an ultimate cies will enhance the effectiveness of the surveys goal of self sufficiency. in answering important questions for young peo- ple with disabilities. Once a plan is approved, it would be managed by the person with a disability. If there were any Youth Policy Work Group changes, amendments could be made through quar- terly reviews. The benefit of this idea is that it Recommendation would have positive effects on the competitive mar- Of specific import to the work of the Subcommit- ket. For example, education would be forced to improve when individuals could take their dollars tee was input from young people. For example, sig- and receive education at the institution of their nificant input was obtained from the annual Social choice at any age. Security Administration and NIDRR employment conference in July 1999. This conference, which Plans could be contained in a "credit card" in the Subcommittee co-sponsored, focused primarily which individuals access their money, as well as on issues related to transitioning young people look at their long-term life plan budget and narra- with disabilities to adult health care, employment tive. The Youth Policy Work Group believes that and independence. One of the major activities of this system could possibly be maintained by a cor- the conference was to create a Youth Policy Work porate entity, such as Visa or MasterCard, in lieu of Group, comprised exclusively of young people with 28 Presidential Task Force on Employment of Adults with Disabilities Committee Reports the existing social service system. The existing sys- Future Issues tems (e.g., Social Security, Vocational Rehabilitation, Public Health, Medicaid, Public Assistance, Special The Subcommittee has developed a growing list of Education) would work together to assist individu- issues to devote its attention, and that of the Task als in identifying the dollar amounts and supports Force, over the next three years. As a follow-up to to create successful life plans which are flexible this report, the Subcommittee will develop a plan and change over time. Additionally, these systems for addressing these critical issues: would pool program dollars into a common fund in which there was one application. Eligibility for Research different supports would be based on medical and Coordinate interagency research agenda, such as financial needs. longitudinal studies. This proposed model changes the direction of pro- Examine and synthesize "Best Practices" and grams that "take care of" individuals by using public study the use of social marketing to design an financial supports for a lifetime. Supports would be awareness campaign to publicize and to replicate only those that were necessary and useful toward proven practices. the person's ultimate life goals. All individuals would have to give back to this system, possibly Policy Development when reaching a certain age, by being engaged in meaningful work activity, whether paid or volun- Examine and develop a "Memorandum of Under- teer. Since work activity in this model is mandato- standing" between the Department of Education, ry, it would operate under the assumption that all Department of Labor, the Social Security Adminis- people can contribute to their communities. When tration, Administration on Developmental Disabil- a person acquires paid employment, premiums ities, the Health Resources and Services Adminis- would be paid into the voucher system. tration, and the Substance Abuse and Mental Health Services Administration for policy guid- The Youth Policy Work group believes that this sys- ance and coordination to State and local agencies tem would support and encourage people to work regarding youth transition services and programs. and contribute to their communities, as well as achieve valuable experience toward chosen life Investigate how implementation and monitoring goals. Under this model, all individuals would have efforts at the Federal level will strengthen to show productive activity. Life plans and personal enforcement of existing laws, including Title V of activity would need to display a commitment the Social Security Act, IDEA and the Rehabilita- toward achieving self-sufficiency. This system is an tion Act, and how these efforts can assist States investment in people and their futures, not only by in strengthening enforcement at the local level. the system but by the individuals involved. Every- one is vested in the ultimate outcome: productive, Develop a comprehensive initiative focused on tax-paying citizens. young people in foster care receiving SSI bene- fits to expand the Federal Independent Living While this proposal raises as many questions as it Program, offer economic support, provide access answers, it reflects the frustrations, fears and values to adequate health care and insurance coverage, of today's young people with disabilities. The Sub- and create a transitional living program. committee believes it is significant that so much of the Youth Policy Work Group's proposal focuses on Create a fiscally sound grants/budget initiative the themes of system collaboration and coordina- within the Departments of Health and Human tion, self-direction, consumer control and choice. Services, Education, and Labor, and the SSA to increase the delivery of assistive technology, including state of the art computer equipment, to transition-age students. Subcommittee on Expanding Employment Opportunities for Young People with Disabilities 29 Formalize the Healthy and Ready to Work Feder- range of work-based learning opportunities for al Interagency Work Group through a Presiden- high school and college students with disabilities tial Directive or legislative change, with clear during the academic year by enhancing existing responsibilities and authority for the appropriate Federal government work-based learning pro- Federal agencies to work together around the grams, and where necessary, creating new oppor- issue of young people with disabilities transi- tunities for young people with disabilities. tioning to adulthood and independence. A corollary is the Federal Interagency Coordinat- Create a "Get-to-Work" initiative focused on the ing Council for Young Children with Special large numbers of young people with disabilities Needs that is mandated under the Department who are still on Social Security and/or SSI disabil- of Education's legislation. ity benefits six months after completing college. Conduct a review of all Federal agency goals Develop and expand use of individualized under the Government Performance and Results accounts for young people with disabilities Act (GPRA), identifying those that apply to the available through the Health Care Financing needs of young people with disabilities in transi- Administration. tion and examining where there is overlap, opportunities for coordination, and gaps. Assure that health insurance incorporates the Title V requirement to develop a community sys- Investigate fiscally sound mechanisms, through a tem of services that provides health care through demonstration project or legislative change, to a medical "home" (not a place, but a system of require the Maternal and Child Health Programs services that is community-based, culturally com- for Children with Special Needs to work with petent, comprehensive and continuous). the schools and the State vocational rehabilita- tion agencies, to prepare young people before Examine and develop initiatives which strength- age 16 so they will have received the services en the critical role of family members in the tran- they need to help them be good candidates for sition of young people with disabilities. This vocational rehabilitation services and real jobs effort could also examine the link between fami- for real pay, with benefits. ly involvement and self-determination, choice and consumer control. Develop a mechanism to allow the blending of Federal funding when it is for the same purpose, Develop a National Youth Mentoring Program in so that funding "follows" individuals with disabili- partnership with State and local government and ties and allows them to obtain the services they private sector employers. need with less bureaucratic red tape, more con- sumer choice and greater satisfaction. Examine how Federal programs serving young people with disabilities can be enhanced to Institutionalize feedback from young people increase and integrate academic and career with disabilities into policy development and development skill outcomes critical to successful assure their participation in Federal, State and transition results. local policymaking. Public Awareness, Technical Assistance Program Development and Training Support and reinforce the goal expressed in the Launch a public relations campaign to increase recently released Office of Personnel Manage- student, parental and provider expectations of ment's report, Accessing Opportunity: The Plan young people with disabilities. for Employment of People with Disabilities in the Federal Government, to expand the full 30 Presidential Task Force on Employment of Adults with Disabilities Committee Reports Investigate methods for effectively reaching assessment through the entire life span and mul- underserved populations, including those with tiple service delivery systems. low literacy levels, non-English speakers, those who speak English as a second language, and Refine and publicize the Department of Labor's those without access to the Internet. Youth2Work and "YO! Movement" Web sites and use them as vehicles to disseminate information Conduct a Transition Summit and Research on young people with disabilities in transition. Forum for State and local educators (e.g., second- ary, adult and postsecondary education), vocation- al rehabilitation professionals, workforce develop- Conclusion ment providers, SSA staff, researchers, grantees, advocates, young people with disabilities and fam- Based on the Subcommittee's activities and input ilies to address transition services policy and from stakeholders, several themes emerge: raising implementation issues for the future. expectations; family involvement; employer Work with the Department of Labor's Employ- involvement; changing demographics; and connect- ment and Training Administration to develop a ing and strengthening access to adequate health care and insurance, education, vocational rehabilita- technical assistance, training and outreach cam- paign that assures youth with disabilities are tion and workforce development, and work incen- tive reform efforts. properly served and participating in DOL's youth programs, including Job Corps, Youth It is imperative that specific strategies be examined Opportunities, School-to-Work, Year Round and implemented to change expectations for young Youth, and Summer Youth. people with disabilities. The Subcommittee will Direct the Department of Education to develop develop innovative strategies to work with families a model "Personal Learning Plan Guidance" that and service providers around expectations and to assists all students in receiving educational serv- widely promote a message about increasing expec- ices and transitioning from school to work, or tations for young people with disabilities. Another school to college to work. theme is the crucial role of family members in the successful transition of young people with disabili- Build, expand and coordinate self-advocacy ties. Balancing the role of families with the emerg- instruction for youth with disabilities. ing role of young people in determining and choos- ing their own road to transition and independent Develop training materials and programs for living will be addressed. schools and community-based organizations to educate young people with disabilities about Employers, both large and small, are increasingly accommodations. raising concerns that many young people do not have the necessary entry-level skills (academic, voca- Have accommodations follow individual from tional, and employment) to be successful on their school, postsecondary education and into work. first job. Public-private partnerships with a variety of employers will be initiated in order to expand Emphasize the need to expand career prepared- and increase the full range of work-based learning ness and development in elementary and middle opportunities for young people with disabilities. school years as well as during the early years of high school education. The Subcommittee is committed to addressing the theme of changing demographics and increasing Develop a disability diagnostic tool(s) that can diversity of young people with disabilities and how follow the person with a disability from early current Federal programs are meeting the needs of a Subcommittee on Expanding Employment Opportunities for Young People with Disabilities 31 changing, and more diverse, population. This issue Resources will be discussed in greater detail in future reports. American Council on Education, HEATH Resource Center, Finally, the Subcommittee continues to assess College Freshman with Disabilities:A Statistical Profile. Washington, DC: 1992. health, education, vocational rehabilitation, work- Cameto, R., "Support Services Provided by Secondary Schools." force activities, and work incentive reform efforts. In Wagner, M., The Secondary School Programs of Students We are looking at how strengthened enforcement with Disabilities:A Report from the National Longitudinal Study of Special Education Students. Menlo Park, CA: SRI of existing laws, coordination of general system International, 1993. delivery activities, and improved use of work incen- Hebbler, K., "Overview of the High School Experiences of Students tives can improve transition results and ensure that with Disabilities." In Wagner, M. (Ed.), The Secondary School young people with disabilities access, participate, Programs of Students with Disabilities. Menlo Park, CA: SRI International, 1993; U.S. Department of Education, Office of and benefit from these important programs. The Educational Research and Improvement, National Assessment of Healthy and Ready to Work Federal Interagency Vocational Education Interim Report to Congress: Executive Work Group will be crucial to this assessment and Summary, Washington, DC., 1994. resulting Federal activities. Marder, C., Weschler, M., and Valdes, K., Services for Youth with Disabilities after Secondary School:A Special Topic Report from the National Longitudinal Transition Study of Special Education The issues facing young people with disabilities Students. Menlo Park, CA: SRI International, 1993. who need to transition into the workplace are Newman, L., "Social Activities." In Wagner, M., Newman L., D'Amico, immense. They face multiple barriers - low family R., Jay, E.D., Butler-Natlin, P., Marder, C., and Cox, R., Youth with and provider expectations, poor self esteem, lack of Disabilities: How are They Doing? The First Comprehensive Report from the National Longitudinal Study of Special educational and vocational supports, inadequate Education Students. Menlo Park, CA: SRI International, 1991. service delivery coordination, and health care and income support disincentives. The Subcommittee is raising all of these issues in an informed, research- based approach to problem solving. It will craft a coherent national policy addressing the needs of young people with disabilities that the Task Force can adopt and promote. We refuse to throw another generation of young people into a welfare-like dependency system of public benefits. We must instill a strong sense of personal worth and responsibility, self-direction and independence, personal productivity and self- sufficiency in future generations of young adults with disabilities. 32 Presidential Task Force on Employment of Adults with Disabilities Committee Reports Members of the Subcommittee on Expanding Employment Opportunities for Young People with Disabilities Sue Swenson, Commissioner Administration on Developmental Disabilities, Department of Health and Human Services Curtis Richards, Deputy Assistant Secretary Office of Special Education and Rehabilitative Services, Department of Education Department of Education: Office of Special Education and Rehabilitative Services - Rehabilitation Services Administration and Office of Special Education Programs; Office of Postsecondary Education; Office of Bilingual Education and Minority Language Affairs; Office of Adult and Vocational Education Departments of Education and Labor: National School-to-Work Office Department of Health and Human Services: Office of Family Assistance; Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs; Office of Civil Rights; Substance Abuse and Mental Health Services Administration; Office of Community Services Department of Labor: Employment and Training Administration - Office of Disabilities Initiatives and Office of Youth Programs; Women's Bureau National Council on Disability President's Committee on Employment of People with Disabilities Social Security Administration: Disability and Income Security Programs - Office of Employment Support Programs; Office of Policy Subcommittee on Expanding Employment Opportunities for Young People with Disabilities 33 GROUP REPORTS DAY ONE June 20, 2000 National Transition Summit Group #1 Desired Outcome: Independent living and "meaningful citizenry" (includes sustainable and meaningful employment) Action: Educate local one stop operators and partners; state agencies; Federal agencies on the impacts of Employment On Public Entitlements and Insurance. step: create partnerships with state agencies that govern financial institutions to produce educational materials-Model at Federal Level. Action: Increase Employer Involvement step: provide real financial incentives (e.g., tax credits) Action: Align educational systems, including standards-based education, to produce multiple opportunities for young people. steps: 1) increase department of education budget 2) policy directives that specifically target kids with all disabilities Priority: Accessible health care and expanded affordable coverage Action: Create vehicles that ensure continue insurance of young people (post 18 years of age) step: Federal policy (e.g., universal health care, expansion of title V) Action: Empowerment of young people and families step: 1) educate on rights & resources grant monies from Federal agencies) 2) Federal/National Bill of Rights with mandate to states to create Bill of Rights as well. Action: Encourage multi-agency collaborations through transitions. steps: 1) flexibility in funding at sate and Federal levels 2) look at "limiting" language in policy to prevent tracking of young people with respect to services (loosen the definition of "whose kid is it?") Group #2 Day 1 1. Fully fund IDEA and follow through with implementation. 2. Enhance Inter Agency Collaboration through a system where funding follows individual. 3. Provide person-centered One Stop Services from date of diagnosis where funding follows individual. 4. Provide competency based professional development to all service providers. 5. Fund a media campaign to raise expectations. Group # 3 Day 1 1. Reauthorization of IDEA with language change -"person-centered" strategies 2. Federally sponsored technical assistance to all stakeholders-include WBL; info on all systems, programs (system alignment). 3. Research/development for model programs; include evaluation. 4. Public information/awareness campaign. 5. Accountability for stakeholders -schools, employers. Group 4 Day 1 1. Make all Federal agencies accountable by tying dollars to youth outcomes through GPRA, medicaid; monitor local providers (education community providers, medicaid) by outcomes. 2. Require that state improvement plans and grants incorporate core competencies related to long term planning, goals, and outcomes for youth with disabilities; addressing raining needs of educators, related services, and medical. 3. The Task Force should conduct a comprehensive, nationwide, culturally sensitive campaign to increase awareness of the capabilities and contributions of youth with disabilities; target all audiences. 4. Create and fund a Federal interagency commission for transition-aged youth; including all stakeholders. 5. Collect, analyze, and disseminate information and data related to the intended and unintended consequences of standards-based education for youth with disabilities. Group 5 Day #1 1. Require interagency collaboration with strong mandates to co-fund programs/services. 2. Require postsecondary schools to offer a broad range of curricula and support services to prepare individuals for employment and self-sufficiency. 3. Develop a system of professional development that cross-trains educators, employers and related service providers that reflects the education/service provider licensor/certification framework. 4. Require workforce development programs to document the participation and successful completion of students with disabilities, including students with severe disabilities. 5. Infuse STW (school-to-work) principles (contextual teaching and learning, work-based learning), functional skills, career development, and lifelong learning into the curriculum across all subject areas. Group #6 Day 1 1. Task Force should work with Congress to redefine eligibility for public. Income support and related benefits so that the definition supports employment. 2. Enforce the requirements of IDEA and other legislation, particularly that which pertains to the education of individuals with disabilities. 3. Establish local youth councils to promote the training and education of youth with disabilities regarding their civil rights. 4. Create tax incentives and recognition which encourage employers to participate in job fairs, STW and hire people with disabilities. 5. Improve and support student skills and employability skills: create community based experiences; courses in job employment skills; and include in all STW programs. Group #7 Day 1 1. Refocus Federal policy to support individual choice and control. 2. Fully fund and implement IDEA with a focus on accountability for outcomes. 3. Clearly identify and disseminate information about existing employer incentives to support hiring and retention of people with disabilities. 4. Ensure that youths and adults with disabilities have all of the support and opportunity necessary to reach their full potential. 5. Build community capacity through public education and awareness that goes beyond the K-12 school system. 6. Create a system of access to information that facilitates the competency and capacity of youths with disabilities and their families to advocate for their needs. Group #8 Day 1 Priorities 1. A public awareness campaign concerning the needs of students with disabilities and the wide range of disabilities. 2. Review, identify, and re-align existing policies that support services for students with disabilities across federal agencies. 3. Identify "best practices" for students with disabilities to: Improve skills by: a) self-knowledge b) self-advocacy c) social skills To provide a good match in education/training programs, careers, and jobs, and to promote success. 4. Provide funding for the development of mentorship programs for youth with disabilities. 5. All Federal policy concerning youth with disabilities will have a focus upon the development of self awareness and advocacy skills: Is the language there? Is stated properly? Include in all "Request for Proposals" (RFP's). Group #9 Day 1 Priority #1 Initiate- Comprehensiveness and consistency in training which empowers stakeholders and results in: 1. Flexible delivery of culturally competent supportive services. 2. Strategies unique to the community. 3. Which results in positive outcomes for the individual. Action- Increased funding for research and training that mandates cross agency participation. Priority # 2 Increased availability of funding and resources that promotes a range of housing options that honors individual choice. Action- Create and expand creative financing options for individual home ownership and other housing options. Priority # 3 Create authentic collaboration and coordination in service delivery through a single point of entry for information and services. Action- Create and promote an integrated national database* that promotes collaboration and coordination. *to access any database. Group # 10 Day 1 Priority #1: The Task Force will create strategies to ensure success in supporting goals of all students and families with a special emphasis on underserved populations. Priority #2: The Task Force will establish community wide strategies to provide and develop partnerships to ensure resource integration for all students. Priority #3: The Task Force will put forth an agenda that promotes inclusive (i.e. most integrated) lives and redefines special education as a means of support. Priority #4: The Task Force will promote data-driven change strategies to build capacity to do things differently. Priority #5: The Task Force will promote funding to appropriately support the priorities. Group #11 Day 1 1. Create a user friendly transition system. 2. Promote youth empowerment. 3. Produce a positive image campaign. 4. Demonstrate to employers the benefits of hiring people with disabilities. 5. Expand access to health coverage. 6. Crate a Presidential Youth Task Force. Group #12 Day 1 The Task Force should: 1. Increase the number of youth with disabilities who participate in work based learning within the federal government and outside. 2. Change SSI policy: to ensure work-based learning does not threaten SSI eligibility to increase income and assets for student-earned income exclusion to ensure that SSI participants retain entire cash benefits until combined income exceed poverty level. 3. Examine ways to identify and reclaim youth with disabilities who are out of school: seek ways to engage out-of-school youth with disabilities in training, education, and developmental opportunities (e.g., WBL) examine the impact of high stakes testing on youth with disabilities to ensure no adverse impact. Group #13 Day 1 Guiding Principles: Build a system of consumer-driven (student/"family") support based on civil rights and self advocacy that is customized to individual needs (over system needs) offers informed choices recognizes diversity of individuals (socio-economic, ethnic, racial, gender, cross- disability) maximizes use of funding; manages resources effectively is a life-long continuing process that integrates child and adult model (e.g. learning, teaching, program, service delivery) aligns system goals and outcomes to consumer needs, evolving as needs change establishes a national baseline of expected services and support Recommendations Federal government models the coordination/collaboration and linkages of services and program and research efforts. Eliminate redundancy in Federal programs. Establish a national education campaign to build awareness of services and rights. Increase capacity of community to focus on unserved and underserved populations by professional development training and competitive employment for community members to meet service needs. Federal funding guidelines should require a standard representation of paid consumers, where Federal money flows. Add disability to SBA Section 8A to promote consumer-owned businesses. GROUP REPORTS Day Two June 21, 2000 National Transition Summit EMPLOYERS: Group #1 Day 2 Actions to take: 1. Help educate other employers about STC. Help them understand importance of involvement especially in career and technical education. Communicate benefits of participation. 2. Help education groups understand how to market to employers. Heightened understanding from employer perspective of what employers need. 3. Employers need to better communicate the skills people need to function the workplace including technical skills but especially assisted technology skills. 4. Employers should assist with and inform the curriculum development process. Federal Support Needed: Minimize points of contact for employers (better coordination through One-Stops) Identify and promote intermediary entities to broker connections between employers, schools, and agencies. More help from schools and agencies to provide young people with the support they will need to succeed beyond secondary ed in the workplace. (E.g., employers need support to effectively accommodate young people with disabilities.) Better communicate availability of existing financial supports that help businesses accommodate workers with disabilities. (Especially to small and medium sized businesses, includes health care.) LOCAL PROVIDERS: Group #2 Day 2 Come to common understanding on the nature and importance of customer choice/control/responsibility. Help build employer led intermediary organizations. Develop local collaboratives to achieve system alignment (a la youth councils) Enhance, strengthen and expand professional development opportunities and recruit and prepare transition specialists. Create opportunities to participate in post Summit follow on activities, e.g. working groups, issue groups. How Federal Government Can Help Encourage and fund expansion of employer-led intermediary organizations. Offer incentive grants to states and localities to accomplish inter-agency cross training. Fund the creation of a collaborative of national organizations that would concentrate on developing consistent principles and common language. Encourage and support the development of more transition specialist education and training programs. LOCAL PROVIDERS: Group #3 Day 2 What 5 (five) actions can our stakeholder group, Local Agencies, take to make the priorities happen? We took 2 of the 5 priorities. 1ˢᵗ-Improve employment rate: Include the infusion of STW Employer partnerships Health insurance What we can do? 1. Educate employers about youth with and without disabilities. 2. Include employers to: a) understand their needs and vice versa b) be a part of planning development process of STW curricula 3. Collaborate internship with employer financed by service provider 4. Get community to support participating employers How can the Federal Government equip, empower, and support us to do it? 1. Streamline tax incentives for hiring youth a) user friendly b) publicize the tax incentives 2. Examine tax incentive policy remove ceiling/make it flexible -maybe replace hiring with mentoring or other activities. 3. Support the development of web based clearinghouse that's local and relevant-"One-Stop WordNet." 4. Assure outcome accountability: for funded programs. 5. Make community organizations aware of availability funding sources. 6. Align SSI/work incentives. 7. Improve access to health care so it's not a dis-incentive to employers. 8. Long-term public service/awareness campaign. 2nd Align programs and services and foster community partnerships to improve outcomes. What we can do? 1. Willing to communicate/offer services to foster partnerships. a) committed to be a partner in "One-Stop Shops." 2. Coordinate information and application for all community organizations so consumer can access in one place and process is user friendly. What Federal government can do? 1. Universal application for services Federal and local services. 2. Provide funding incentives, i.e. matching grants to those communities with a proven track record of collaborative team-work resulting in successful outcomes for youth. National Advocacy Organizations: Group #4 Day 2 Action #1: Establish and cultivate opportunities for young people with disabilities and their families to acquire leadership skills, knowledge of their rights and responsibilities and control of the services and supports designed for their benefit at the local, state, national, and international level. Federal Action: 1. RFP's will include the priority action as a requirement for funding. 2. New and existing state implementation plans will be required to incorporate this goal. Action #2: Advocate for full funding and implementation of IDEA to realize the spirit as well as letter of the law. Federal Role: Need presidential and bipartisan leadership supporting this action without negatively impacting other education or human service programs. Action #3: Develop partnerships at the local, state, national, and international level with private sector employers to assist youth with disabilities to transition to productive and satisfying careers. Federal Role: 1. Make tax incentives consistent and easier to understand. 2. Involve businesses in strategic planning. Action #4: Advocate that Federal systems impacting youth with disabilities (i.e., education, health, employment, and income supports) work to align their goals and practices to support equality of opportunity, economic self-sufficiency, independent living and full participation in all aspects of society. Action #5: Advocate for the strategic alignment at the local, state, and Federal levels of general, special, and vocational services in K-12 systems. Federal Role: 1. Require that teacher preparation and instructional methods be based on scientific research. 2. Increase collaboration among departments and programs of the U.S. Department of Education. Action #6: Set national goals targeting quantifiable outcomes for employment, dropout rates, independent living, postsecondary enrollment, community participation, and quality of life. Federal Role: Accept goals established by national advocacy organizations and establish regular monitoring and reporting mechanisms. Action #7: Refocus Federal policy and redesign systems to focus on person centered services with individuals choice and control. Federal Role: Each agency develop plans to move to individual choice and control of budgets, services , and supports. National Organizations: Group #5 Day 2 1. Create, maintain and market a database that is comprehensive, searchable, user-friendly, interactive of all state and federal resources and programs that is easily accessed. Federal Role: fund this database either issue an RFP or use existing projects (IDEA Partnerships?)-Long term commitment. 2. Create and share information/articles including best practices with other national organizations that can be used in publications to be disseminated to a variety of audiences e.g. educators, families, employers, rehab professionals, policy-makers, and other key opinion leaders. Federal Role: Assist in dissemination, review materials within 90 days, initiate materials to be disseminated to members of national organizations 3. Advocate for full funding for existing legislation not at the expense of other education or human service programs. Federal Role: Fully fund legislation-administration can request Congress can approve. 4. National organizations can work together to develop a model set of valid and reliable indicators used to measure the success of the system to produce desired outcomes. Federal Role: Share expertise and make this a priority. 5. Encourage increased employer and labor involvement through employer led organizations promoting employers as a valued constituency group. Federal Role: Disseminate information; involve Department of Commerce; learn from past failed efforts; and provide incentives. Parents/Parent Organizations: Group #6 Day 2 Parent Action: Advocacy for our children Federal Role: Enforce law/policies that exist Pull funding for organizations not in compliance Require Federal and state/tribal interagency councils Transition Department of cross-agency dedicated staff, within state government Capture and distribute data regarding transition Parent Action: Learn options/opportunities and provide info to our children Federal Role: Seamless system of services Easy to understand written info about what is available, where to go for assistance dedicated funding for transition, including cultural competency/sensitivity and family values Parent Action: Partnership with our children in planning/development of training for medical people Federal Role: Dedicated funds to train/support healthcare professionals in serving adults with disabilities (seamless transition from child->adult medical/health services). State Agencies: Group #7 Day 2 Action: Create more flexibility within the curriculum to require the development of life and career- focused skills, together with academic skills, on an individual basis. Federal Support: 1. Funding streams that support the development of career-focused skills, including co-mingled funds. 2. Legislate the availability of financial aid for career programs at the postsecondary level for less than an associate degree and part-time students. Action: Increase interagency coordination Examples: 3. reorganize agencies to facilitate working together 4. joint planning or state plan submission 5. high-level agency staff coordination/problem-solving, e.g. kids cabinet Federal Support: 6. Require federally-funded programs to submit coordinated plans 7. Provide for possibility of co-mingling funds Action: Increase number of qualified teachers (e.g.) 8. increase level of respect 9. increase number of related service personnel to assist teachers 10. use community health and employment service providers in the schools 11. sponsor cross-training programs for teachers, related service providers and leadership Federal Support: Discretionary grants should compel collaboration of agencies related to purpose of grant. Action: implementation and monitoring of IDEA, particularly transition requirements. Provide targeted technical assistance. Federal Support: 12. Increase funding for TA 13. Funds tied to outcomes 14. do not fund states not implementing the requirements. Action: Require student-lead IEP's and goal-setting. 15. require self-determination training and experiences for family and students 16. staff development for teachers around self-determination 17. feedback from students and families as part of IEP for accountability. Federal Support: Add Federal requirements for above in IDEA with additional funding. Universities/Projects: Group #8 Day 2 Action 1: Develop the leadership for state and local stakeholders to promote the understanding of the philosophy of transition and its interpretation across all disciplines. Federal: 1. Funding to support training of state and local stakeholders 2. Continue model demonstration programs. Action 2: Promote awareness and develop strategies for integrating transition/STW into standard- based education. Federal: Provide monitoring and technical assistance to ensure the realization of this goal. Action 3: Expand the role of Centers for Independent Living (CIL) in transition services. Federal: 1. Provide funds to support these services. 2. Within RFP process, encourage collaboration CILs. Action 4: Universities should make available programs for students with all disabilities including those students with developmental disabilities. Federal: Develop model university level programs for students with developmental disabilities. Action 5: All youth and adults with disabilities shall have accessible, expanded, and affordable health care. Federal: 1. Promotion of medical education 2. Assuring coverage beyond 18 years of age 3. Expansion of coverage by Title V programs, managed care organizations, and sate children's Health Ins. programs. Universities/Projects: Group #9 Day 2 Action: Advocacy for national database Federal Support: Create multi-source databank which integrates data refunding and resources. Action: Training packages for MOU for educators. Federal Support: Provide access to existing MOU's web based. Action: Web based laboratory. Federal Support: Fund it. Action: Demonstrate/model the importance of career development and applied academics at all levels of education. Federal Support: Examine statutory changes and personnel prep grant priority. Design a seamless funding mechanism among DOL, DOE, HHS that are responsible for providing services to young adults with disabilities. Action: provide TA, program evaluation and training in: 4. transition systems change 5. evaluation/outcome data 6. teacher preparation 7. others (distance education, technology resources) Federal Support: Priorities for grants and support. Federal Participants: Group # 12 Day 2 What will support the different Federal agencies in aligning resources and keeping disability issues on the "radar" screen? 1. Establish an inter agency committee to develop "seamless" grants that include the priorities discussed (e.g., WBL, focus on OSY with disabilities). 2. Develop a resource map to share with Federal agencies and grantees. 3. Train and educate ALL Federal staff on disability issues and legislation. 4. Create a one-stop shop for providers to access resources and available training to better serve PWD. 5. Hold Federal agencies and their grantees accountable to disability law and regulations. Youth: Group #10 Day 2 1. The Task Force on Youth with Disabilities will advise Federal agencies on ways to facilitate self-advocacy and self-empowerment for youth with disabilities. Mentoring Access to information Inclusive and representative appointee's 2. The Presidential Task Force will recommend to the President the creation of the Task Force on Youth with Disabilities. 3. The Federal government will financially support the youth group (from the Summit) coming back together to finish its task force proposal. 4. The youth group commits to staying in touch through a listserv, a bulletin board, and other ways. WWW.halftheplanetyouthsummit.com (?) Youth Policy Agenda Recommendations Technology Increase access to technology; increase funding for assistive technology Encourage the federal government and agencies at the state, national, and international levels to use the Internet to disperse information Utilize the latest technology, including the internet, to communicate with the youth community Youth Specific Issues Provide information, including relevant laws and public policy, in youth friendly language Increase ease of access to complaint procedures Give youth a legitimate voice in policy making with meaningful positions on government boards and other policymaking bodies Support youth programs at the state and local levels Employment Provide additional opportunities for youth to receive work experience without it negatively effecting their SSI Benefits Recommend that the Social Security Administration create a program specifically for youth in transition Create additional youth related internships, job shadowing and volunteer programs directed at including disabled youth; create a volunteer program within the federal government to fill empty federal positions in a temporary capacity while the government searches for permanent employees Create mentoring programs which match young people with disabilities with other people with disabilities who hold jobs in their interest areas Redefine eligibility for SSI/SSDI so that it is not based on employability, employment status, or income High school transition Create policy at the state level which requires that young people, while in high school, receive training on the relevant policies which affect them. This should include the American's with Disabilities Act, the Individuals with Disabilities Education Act, and policies regarding transition for students who receive special education services. Learning about disability policy should be a requirement of all transition plans and individualized education programs. Educate high school students about registering to vote and the importance of voting as a part of the transition process from high school to adult life Education/training Recommend that federal organizations promote and provide funding for youth education regarding disability systems and related policy including Social Security, Vocational Rehabilitation, ADA, IDEA, Section 504, and other relevant disability policy Recommend that federal and statewide agencies provide training on the basics of how to navigate systems. This would include understanding how to use support programs, the benefits and disincentives associated with transitioning to public supports, and could focus on basic understanding of SSI, Vocational Rehabilitation, and how national legislation affects the lives of youth with Disabilities Educate families through positive support and training on the importance of independence and youth leading their own lives Teacher Training Modify special education teacher certification curriculum to include mandatory courses on disability legislation and policy such as the Americans with Disabilities Act, Individuals with Disabilities Education Act, and transition planning for students who receive special education services Train teachers to support all students in moving to meaningful careers rather than transitioning to public support programs such as SSI Modify general teacher certification to include a course on basic disability issues Provide training and education for educators and those service providers for individuals with disabilities, including congressional offices and federal offices Youth Leadership Encourage youth held positions on local, statewide, national, and international boards, councils, taskforces, and other organizations Promote the development and funding of local and statewide youth leadership conferences and organizations as a method of training and promoting information dissemination Support through funding and endorsement the development programs at the state and local levels which would involve youth mentoring youth Ensure the involvement of young people from multiple cultures, disabilities and languages Create a Presidentially appointed Task Force on youth with disabilities to empower youth and advise federal agencies Create a position to support the assistant secretary on disability at the Department of Labor to concentrate on youth issues Culturally Competent Outreach Department of Labor - Alexis Herman to visit sheltered workshops Department of Health and Human Services - Donna Shalala to visit nursing homes Department of Education - Richard Riley to visit segregated Special Education classroom Department of Housing and Urban Development - Andrew Cuomo to Visit segregated housing projects Create a survey directed at gaining youth perspectives, ideas, and opinions regarding programs and services directed at youth Media Use various non-print media such as radio, television and the internet to reach youth and culturally diverse populations Recommend the development of a public awareness campaign on disability issues which concentrates on the message "Everyone can work and everyone should work" Hold the media accountable for incorrect information Partner with other youth organizations to educate the public on the positive attributes of young people Enforcement Recommend the full funding of the Individuals with Disabilities Education Act Enforce IDEA, ADA, Section 504, and other disability legislation Include disability under all equal employment opportunity notices in all places of employment Support hate crimes legislation Services Fund satellite offices of independent living centers in low income and culturally diverse communities Increase the number of partners in local One-Stop centers; include independent living and other community agencies Increase funding for translators and interpreters Other logical partners to build coalitions: Prudential Youth Leadership; Do Something; YMCA; Campus Student Services; Boy and Girl Scouts of America; Americorps; Jesuit Volunteer Programs; corporate sponsors; 4H of America; local, national and international celebrities; faith communities; Future Business Leaders of America; Trial Lawyers Association; parent organizations; students in juvenile detention centers; Peacecorps