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Disabled Community
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Records of the Office of Political Affairs (Clinton Administration)
Peter Shakow's Files
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FOIA Number: 2007-0143-F
FOIA
MARKER
This is not a textual record. This is used as an
administrative marker by the William J. Clinton
Presidential Library Staff.
Collection/Record Group:
Clinton Presidential Records
Subgroup/Office of Origin:
Political Affairs
Series/Staff Member:
Peter Shakow; Joe Velasquez
Subseries:
OA/ID Number:
5120
FolderID:
Folder Title:
Disabled Community
Stack:
Row:
Section:
Shelf:
Position:
S
28
5
3
2
Withdrawal/Redaction Sheet
Clinton Library
DOCUMENT NO.
SUBJECT/TITLE
DATE
RESTRICTION
AND TYPE
001. memo
Joe Velasquez to Waves; RE: Personally Identifiable Information
03/16/1994
b(6)
[partial] (1 page)
002. memo
Denise Rozell to Peter Shakow; RE: Personally Identifiable
03/03/1994
b(6)
Information [partial] (1 page)
003. memo
Denise Rozell to Peter Shakow; RE: Personally Identifiable
03/21/1994
b(6)
Information [partial] (1 page)
COLLECTION:
Clinton Presidential Records
Political Affairs
Peter Shakow; Joe Velasquez
OA/Box Number: 5120
FOLDER TITLE:
Disabled Community
2007-0143-F
db4520
RESTRICTION CODES
Presidential Records Act - [44 U.S.C. 2204(a)]
Freedom of Information Act - 15 U.S.C. 552(b)]
P1 National Security Classified Information [(a)(1) of the PRA]
b(1) National security classified information [(b)(1) of the FOIA]
P2 Relating to the appointment to Federal office [(a)(2) of the PRA]
b(2) Release would disclose internal personnel rules and practices of
P3 Release would violate a Federal statute [(a)(3) of the PRAJ
an agency [(b)(2) of the FOIA]
P4 Release would disclose trade secrets or confidential commercial or
b(3) Release would violate a Federal statute [(b)(3) of the FOIA]
financial information |(a)(4) of the PRA
b(4) Release would disclose trade secrets or confidential or financial
P5 Release would disclose confidential advice between the President
information [(b)(4) of the FOIA]
and his advisors, or between such advisors [a)(5) of the PRA)
b(6) Release would constitute a clearly unwarranted invasion of
P6 Release would constitute a clearly unwarranted invasion of
personal privacy [(b)(6) of the FOIA]
personal privacy [(a)(6) of the PRAJ
b(7) Release would disclose information compiled for law enforcement
purposes [(b)(7) of the FOIA]
C. Closed in accordance with restrictions contained in donor's deed
b(8) Release would disclose information concerning the regulation of
of gift.
financial institutions [(b)(8) of the FOIA]
PRM. Personal record misfile defined in accordance with 44 U.S.C.
b(9) Release would disclose geological or geophysical information
2201(3).
concerning wells [(b)(9) of the FOIA]
RR. Document will be reviewed upon request.
January 28, 1994
The Honorable Bill Clinton
President
The White House
Washington, DC 20500
Dear Mr. President:
Eight months ago, you announced your intent to nominate us to serve as members of the
National Council on Disability. We were thrilled. We were challenged and honored to
be asked to assist your Administration in shaping public policy as it relates to Americans
with disabilities. With issues such as health care reform, welfare reform, and education
reform on your agenda, our nominations sent a strong message to the disability
community that our concerns would not be forgotten.
Now, many months later, we are frustrated by our inability to meaningfully assist in these
important deliberations. Moreover, while we wait, appointees from the Bush and
Reagan Administrations continue to officially provide your Administration with policy
input on disability issues. While we appreciate the magnitude of the task of filling the
many vital positions within government, we hope this process will be moved forward.
With the withdrawal of Bobby Simpson as your nominee for RSA Commissioner and
with the resignation of Justin Dart as Chairman of the President's Committee on
Employment of People with Disabilities, many in our community are concerned that our
voice will not be heard and that the Clinton Administration is, in fact, losing ground.
While we know this not to be the case, prompt attention to these vacancies and others of
importance to the disability community will reaffirm the commitments you made during
your campaign to enable us to better assist you in these historic reforms.
Mr. President, we appreciate the leadership you have provided on a range of issues
affecting people with disabilities. Your strong commitment to health reform that
includes people with disabilities, your vigorous enforcement of the Americans with
Disabilities Act and other civil rights laws, and your historic meeting with the disability
The Honorable Bill Clinton, Page 2
community in July demonstrate your true understanding of our issues. We remain
committed to assisting you in fulfilling the policy you outlined so well during your
campaign: inclusion, not exclusion; independence, not dependence; empowerment, not
paternalism.
Sincerely,
Marcusrest
Michele Alioto,ss
Marca Bristo
Michele Alioto
Chair-Designee,
Member-Designee,
National Council on Disability
National Council on Disability
and
President,
Access Living of Metropolitan Chicago
Bonnie O'Day,ss
Kate Pew Walters,
Bonnie O'Day
Kate Pew Wolters
Member-Designee,
Member-Designee,
National Council on Disability
National Council on Disability
bcc: Joe Velasquez
MAR-22-1994 16:12 FROM US OFF. CONSUMER AFFAIRS TO
94567929 P.01
UNITED STATES
OFFICE OF CONSUMER AFFAIRS
1620 L ST. NW Suite 700, Washington, D.C. 20036
TO: Peter Shakow
Tel.# 456.6257
Fax # 456.7929
FROM: PAUL Steven miller
Tel.# 634-96-0
Fax # (202) 634-4135
MESSAGE: As we discussed
2 page actoond
MAR-22-1994 16:13 FROM US OFF. CONSUMER AFFAIRS
TO
94567929 P.02
NCIL
National Council on independent Living
21.11 Wilson Blvd... Suite 405
Allington VA 22201
VOIDE (703) 528-3406
TI/IDD (703) 628-3407
FAX (703) 825-3409
March 22, 1994
Officers
Productiont
Denise A Figuerou.
TROY, New York
Internal Yise Predition
Helen Roth
Logan. was
Carol H. Rasco
Edemal Yice President
Powl Spooner
Assistant to the President on
Reminghum, Massachusetts
Secretary
Domestic Policy
Gino MoDanald
The White House
Topeles, Kansas
1600 Pennsylvania Avenue
Treasurer
Mohard Qunden
Washington, DC 20500
SyMania Onlo
Regional Representative:
Challiperson
Dear Ms. Rasco,
Kathleen Kleinmann
Washington, Pennaylvanta
members-At-Larige
On Thursday, April 28, 1994, the National Council on
Marro Brite
Chicago, limits
Independent Living will host: a Fund Raising gala reception and
moniny Granbeig
Los Angeles Colliamies
dinner in Washington, DC. We are coming together on this
Chester Helms
evening to celebrate the tremendous importance of health care
Charlotte, North Carolina
Morths Hodgernith
reform and it's relationship to citizens with disabilities. We
Topeirs, Kansas
believe your participation is vital to anhance the significance of
Dana Jackson
Adington. Virginia
this event. Therefore, please accept this as an invitation to be
Robert Mohoels
our Keynote Speaker at the dinner which will be held at the
Phiodsiphic Pennsylvania
William ciubodun
Hyatt on Capitol Hill.
Lowernes. Massachusetts
Regional Representatives:
Region:
The National Council on Independent Living (NCIL) is an
MON Womboon
Boston, Masrachusetts
organization run by and for people with a variety of disabilities.
Region #
The accomplishments of NCIL over the pest ten years is due to
Todo Eggient
Alcony, New York
the tireless energy and commitment of its reembership,
lingion III
volunteers and allies across the nation. It has established itself
Kathleen Kieinmann
Washington, Pennsylvonia
as the national voice for the independent living movement, the
Register N
Independent living centers and people with disabilities who are
Jan Day
Louisville, Kentucky
leaders in the disability rights movement. NCIL played 8 direct
Region V
Lee Sohulz
role in building a grassroots commitment to the passage of the
Americans with Disabilities Act (ADA). Members have
Region
Condoce LOW
dedicated many hours in Washington and at home in educating
Norman Oklahoma
the Congress and the public about the importance of the ADA.
l'egion VII
Michael Donnelly
NCIL has taken 1 leadership position in the resuthorization
Topeka Karnes
of the Rehabilitation Act, and has been directly Involved in other
Region VIII
Mary Joster
related disability laws.
Boulden Delerado
Region x
Kenny UNI
Recently, NCIL has opened an office In Washington, DC.
3an Prancisco, Callfornia
As you are aware, the cost of running a national office and
Regton X
Duams French
Ancharage,
NOT JUST RESPONDING TO CHANGE BUT LEADING IT.
MAR-22-1994 16:13 FROM US OFF. CONSUMER AFFAIRS
TO
94567929 P.03
Resco, Page 2
providing Information and services to he membership throughout the nation la high.
Therefore, we have embarked on 8 fund raising: campaign to supplement dur limited
resources, SQ that we can better serve our membership and Increase our
involvement in assuring a greater quality of life for all Americans with Disabilities.
Your commitment to universal health care, which includes people with
disabilities is applauded by all of us in the movement. This upcoming dinner and
meeting is the big event for persons with disabilities, and as the Keynote Speaker,
you will be communicating with the cross-disability leadership. Our membership
will also have the opportunity to share with you their concerns about health care
reform. The needs of citizens with disabilities in the area of health care Is crucial.
By you coming together with us we can jointly address the many health care issues
which relate to disabled Individuals.
It is our hope that you can accept our Invitation. Your participation can
make a meaningful change in the lives of all people with disabilities. I will contact
your office shortly to discuss further details.
Thank you for your attention to our request. We at NCIL look forward to
this wonderful opportunity.
Sincerely,
Desise
Denise A. Figueroa
President
THE WALL STREET JOURNAL.
DATE:
3/23/9
PAGE:
A-14
Disabilities Law, Health Hazard
By JAMES BOVARD
AIDS-infected waiter who had taken a
There are roughly 7,000 HIV-positive
The movie "Philadelphia," portray-
leave after coming down with double pneu-
physicians in the U.S. A 1992 Centers for
ing a law firm's discrimination against
monia. (The Hartford Courant noted that
Disease Control study observed that, un-
an AIDS-infected lawyer. won two Acad-
the waiter "started losing weight and be-
der one set of assumptions, "the estimated
emy Awards Monday night. While the
came sluggish and weak. He left food un-
probability that [an HIV-infected) surgeon
movie is generating sympathy for peo-
der the warmers too long. and his hands
will transmit HIV at least once during the
ple with AIDS, little attention is being
shook so much that he couldn't carry cock-
rest of his/her career is 8.1%."
paid to the people whose lives are be-
tail trays.")
Even if a doctor with HIV lies to his
ing endangered by federal policies that
The presumptions created in the ADA
patients and claims not to be infectious,
increasingly prevent companies from
can turn every decision about the job and
he is still entitled to full protection un-
protecting employees or customers from
work assignments of a contagious indi-
der the ADA. Philip Benson, a Min-
contagious fatal diseases. Few people
vidual into a court battle. Civil-rights pol-
neapolis physician, continued delivering
realize how expansive the Americans
icy concerning contagious diseases is in-
babies and doing invasive genital and
With Disabilities Act is, and how it can
fluencing firefighting. In a path-breaking
rectal examinations for nearly a year
threaten their own health.
case last December, federal judge Joyce
after he came down with AIDS; the Min-
The Supreme Court laid the ground-
Hens Green ruled that the District of Co-
nesota Board of Medical Examiners in
work for a broad protection of the rights of
lumbia fire department violated an infec-
September 1990 permitted him to con-
contagious people in a 1987 decision that a
tious firefighter's civil rights because he
tinue practicing even after he had open
school board wrongfully fired a teacher
was specifically prohibited from doing
sores on his hands and arms as long as
with tuberculosis. Under the ADA, passed
mouth-to-mouth resuscitation. But the
he wore double gloves. Dr. Benson re-
in 1990, "any physiological disorder or con-
firefighter had hepatitis B, which infects
portedly lied to his patients when they
dition which substantially limits one of a
300,000 people and kills 7,000 people a
asked questions about his sores and his
person's 'major life activities' can be
year.
sharp weight loss, and also allegedly
classified as a handicap that employers
The biggest impact of the new discrim-
failed to wear gloves during some ex-
are prohibited from discriminating
ination-contagion philosophy is on health
aminations.
against. Since contagious diseases are
care. The federal Department of Health
While many HIV-infected surgeons vol-
physiological disorders-voila!-discrimi-
and Human Services penalized a Westch-
untarily cease practicing, others are not so
nating against people with contagious dis-
ester County, N.Y., hospital in 1992 be-
inclined. In late 1992, an AIDS-infected or-
ease can be a federal crime.
cause it prevented an HIV-positive phar-
thopedic surgeon. sued Mercy Catholic
Employers are now required to hire
macist from preparing intravenous solu-
Medical Center of Philadelphia for revok-
people with contagious diseases unless
tions, even though the hospital did offer
ing his hospital privileges. The hospital of-
they can prove that
the pharmacist another position where
fered to allow the surgeon to continue
the person poses a
there was far less danger of transmitting
practicing if his patients signed consent
large risk to other
REGULATORY
the disease:
forms stating that they had been informed
workers or their cus-
CHOKEHOLD
Hospital, the journal of the American
of the doctor's HIV status. The surgeon
tomers. The Equal
Hospital Association, noted that the
sued. American Medical News noted. "Ad-
Employment Oppor-
Westchester hospital "justified its stance
vocates for people with HIV insist that re-
tunity Commission, in its implementing
by noting its large number of very ill pa-
quiring notification [of patients) is tanta-
regulations for the ADA, announced: "De-
tients and that pharmacists often stick
mount to revoking [hospital] privileges."
termining whether an individual poses a
themselves accidentally and must break
The suit is still pending.
significant risk of substantial harm to oth-
glass vials in order to prepare IV solutions.
The failure of policies that indulge in-
ers must be made on a case by case basis."
In a worst-case scenario
pharmacists
fectious surgeons was made stark in a re-
"Significant risk" was defined in congres-
could stick themselves with a fine-gauge
cent investigation of a UCLA surgeon who
sional reports authorizing the law as a
needle and be unaware of it. That needle
spread hepatitis B to 18 patients undergo-
high probability of substantial harm.
would then be inserted in a bag with solu-
ing heart surgery in 1991-92. Amazingly.
Restaurants are now obliged to give the
tions, contaminate the solution, and then
the hospital had tested the surgeon, dis-
benefit of the doubt to potentially conta-
infect a patient." But federal officials
covered he was infected, and yet still per-
gious job applicants. James Coleman, an
ruled that the hospital violated the rights
mitted him to continue operating without
attorney for the National Council of Chain
of the infectious pharmacist. The hospital
warning patients of the additional deadly
Restaurants, observed in 1992, "What we
was forced to pay him $330,000 for, among
risks they faced. The hepatitis was appar-
were told in no uncertain terms was 'We
other things, the "emotional damage" it
ently spread to patients through tiny holes
[Congress] are going to use the restaurant
had inflicted on him.
in surgical gloves. The New York Times
industry as a vehicle for forcing a change
Federal regulations are resulting in a
noted yesterday that "the hospital's deci-
in public attitude with respect to AIDS. If
cloak of secrecy being imposed on what
sion to allow the surgeon to keep on oper-
it costs you money, too bad.'
may be life-or-death information to pa-
ating even after he was found to be in-
It is extremely unlikely that someone
tients. The ADA gave health care work-
fected
is in compliance with federal
could contract AIDS as a result of eating a
ers the right to continue performing in-
guidelines."
meal prepared by an AIDS-infected per-
vasive surgery without disclosing to pa-
The UCLA case makes a mockery of
son, but such individuals often are hit by
tients that there is a risk that they could
the CDC's universal precautions-which,
other illnesses-such as tuberculosis-that
contract AIDS from the health care
if followed. supposedly protect patients
are contagious.. A Farmington. Conn.,
provider.
from infected doctors and dentists. Yet,
restaurant was sued by the state Commis-
studies in recent years have found that
sion on Human Rights and Opportunities
as many as 47% of gloves suffer from
after the réstaurant refused to rehire an
defects, punctures or leaks during
surgery.
The ADA is also restricting how health
62
care workers may protect themselves
cont
from contagious patients. (The CDC has
identified 120 cases of documented or pos-
sible occupational transmission of
AIDS/HIV to health care workers, and
hepatitis B kills over 200 health care
workers a year.) The official news maga-
zine of the American Dental Association
warned dentists last November that
"dentists should be
aware that they
could be charged with discrimination for
using 'extra precaution' while treating
HIV patients.
Unfortunately, federal policy toward
contagious diseases seems increasingly
simply a question of clout in Washington.
In 1990, the International Association of
Fire Fighters-a politically powerful
union-succeeded in persuading Congress
to include a provision in a law requiring
that emergency response employees be no-
tified when they had been exposed to air-
borne infectious disease.
It is peculiar to see how far federal
law goes to protect firefighters, in-
fected or otherwise. Firefighters must
be notified when they have been ex-
posed to the plague-even though "per-
son-to-person transmission of plague
has not been documented since 1924,"
as a Federal Register notice observed
Monday. Firefighters and emergency
medical technicians have a federal
right to be notified any time they are
in the same vehicle with a person with
TB-yet hospital patients have no right
to be notified when their surgeon is
HIV positive, despite the CDC study
showing that there could be an 8%
chance that an HIV-infected surgeon
will effectively kill one of his patients
by spreading HIV.
Federal policy makers act as if it is
more important to minimize prejudice
against people with infectious diseases
than to minimize the spread of the dis-
eases themselves. The Americans with
Disabilities Act is creating a "civil right"
that is the antithesis of individual rights-
of freedom of contract-and of the right of
informed consent. Maybe someday some-
one will make a movie about it.
Mr. Bovard writes often on public policy.
63
Stan Herr
MEMORANDUM TO JOE VALASQUEZ
FROM:
Paul Steven Miller
-634-9610
DATE:
March 21, 1994
SUBJECT:
Need Commitments
Independent Living
(
Town Hall Meeting May 2, 1994 during the NCIL Meetings
Attendance and Participation by the First Lady
Co-sponsored by Senators Kennedy and Harkin
April 28th Gala Fundraiser - 250-350people.
Administration Presence??? Carol Rasco???
July 26th ADA Event
Make it a Healthcare event -- Bush Signed the ADA but did not
have the courage to tackle healthcare reform. Healthcare makes
the promise of the ADA a reality. President ties healthcare to
the ADA.
1000
South Lawn
Large gathering of folks on the South Lawn and then they go up
to the Hill to lobby for healthcare reform.
Other Issues
Surrogate Training on Healthcare during the NCIL Meetings
Lack of Disabled Surrogates Speaking on Healthcare Reform
National Council on Disability -- disability community is pushing very
hard for the resignation of all of the Reagan and Bush appointees
March 17, 1994
MEMORANDUM TO EMILY, POLITICAL AFFAIRS
FROM:
DINA
DK
RE:
COALITION OF CITIZENS WITH DISABILITIES
The following people from the disability community attended the meeting with J.
Veronica Biggins on March 16, 1994:
Becky Ogle
Patrisha Wright
Paul March
Denise Rozell
Justin Dart
Ann Marie Hughey
Curt Decker
Mike Lux from Public Liaison also attended the meeting.
Withdrawal/Redaction Marker
Clinton Library
DOCUMENT NO.
SUBJECT/TITLE
DATE
RESTRICTION
AND TYPE
001. memo
Joe Velasquez to Waves; RE: Personally Identifiable Information
03/16/1994
b(6)
[partial] (1 page)
COLLECTION:
Clinton Presidential Records
Political Affairs
Peter Shakow; Joe Velasquez
OA/Box Number: 5120
FOLDER TITLE:
Disabled Community
2007-0143-F
db4520
RESTRICTION CODES
Presidential Records Act - |44 U.S.C. 2204(a)]
Freedom of Information Act - 15 U.S.C. 552(b)]
P1 National Security Classified Information |(a)(1) of the PRAJ
b(1) National security classified information [(b)(1) of the FOIAJ
P2 Relating to the appointment to Federal office |(a)(2) of the PRAJ
b(2) Release would disclose internal personnel rules and practices of
P3 Release would violate a Federal statute ((a)(3) of the PRA]
an agency [(b)(2) of the FOIA]
P4 Release would disclose trade secrets or confidential commercial or
b(3) Release would violate a Federal statute [(b)(3) of the FOIA]
financial information [(a)(4) of the PRAJ
b(4) Release would disclose trade secrets or confidential or financial
P5 Release would disclose confidential advice between the President
information [(b)(4) of the FOIA]
and his advisors, or between such advisors [a)(5) of the PRA]
b(6) Release would constitute a clearly unwarranted invasion of
P6 Release would constitute a clearly unwarranted invasion of
personal privacy [(b)(6) of the FOIA]
personal privacy |(a)(6) of the PRA]
b(7) Release would disclose information compiled for law enforcement
purposes [(b)(7) of the FOIA]
C. Closed in accordance with restrictions contained in donor's deed
b(8) Release would disclose information concerning the regulation of
of gift.
financial institutions [(b)(8) of the FOIA]
PRM. Personal record misfile defined in accordance with 44 U.S.C.
b(9) Release would disclose geological or geophysical information
2201(3).
concerning wells |(b)(9) of the FOIA]
RR. Document will be reviewed upon request.
March 16, 1994
MEMO TO WAVES
FROM:
JOE VELASQUEZ, ROOM 115, EXT 6-6257
RE:
WAVE REQUESTS FOR 3/17
Please wave the following people in to see me at 2 PM in Room 115.
Curtis Decker
[001]
Ann Marie Hughey
Becky Ogle
(b)(6)
Denise Rozell
Leonard Rubinstein
Patrisha Wright
Thank you.
Clinton Library Photocopy
03/16/94 18:02
202 347 4023
NADDC
001
NATIONAL
200
ASSOCIATION
OF
DEVELOPMENTAL
DISABILITIES
COUNCILS
1234 Massachusetts Avenue, NW
Suite 103
Washington, DC 20005
202-347-1234
FAX COVER
TO:
Emily = Political
FAX:
456-7929
FROM: Denise Rocell
(FAX 202-347-4023)
DATE: 3/16/94
NO. OF PAGES TO FOLLOW: 1
MESSAGE: Emily- - Here is a copy of the
memo I sent to Peter with the addition
of Ann Marie Thanks!
Denve
Withdrawal/Redaction Marker
Clinton Library
DOCUMENT NO.
SUBJECT/TITLE
DATE
RESTRICTION
AND TYPE
002. memo
Denise Rozell to Peter Shakow; RE: Personally Identifiable
03/03/1994
b(6)
Information [partial] (1 page)
COLLECTION:
Clinton Presidential Records
Political Affairs
Peter Shakow; Joe Velasquez
OA/Box Number: 5120
FOLDER TITLE:
Disabled Community
2007-0143-F
db4520
RESTRICTION CODES
Presidential Records Act - |44 U.S.C. 2204(a)]
Freedom of Information Act - [5 U.S.C. 552(b)]
P1 National Security Classified Information [(a)(1) of the PRA|
b(1) National security classified information [(b)(1) of the FOIA]
P2 Relating to the appointment to Federal office [(a)(2) of the PRA]
b(2) Release would disclose internal personnel rules and practices of
P3 Release would violate a Federal statute [(a)(3) of the PRA|
an agency [(b)(2) of the FOIA]
P4 Release would disclose trade secrets or confidential commercial or
b(3) Release would violate a Federal statute [(b)(3) of the FOIA]
financial information |(a)(4) of the PRA|
b(4) Release would disclose trade secrets or confidential or financial
P5 Release would disclose confidential advice between the President
information [(b)(4) of the FOIA]
and his advisors, or between such advisors [a)(5) of the PRAJ
b(6) Release would constitute a clearly unwarranted invasion of
P6 Release would constitute a clearly unwarranted invasion of
personal privacy [(b)(6) of the FOIA]
personal privacy [(a)(6) of the PRA]
b(7) Release would disclose information compiled for law enforcement
purposes [(b)(7) of the FOIA]
C. Closed in accordance with restrictions contained in donor's deed
b(8) Release would disclose information concerning the regulation of
of gift.
financial institutions [(b)(8) of the FOIA]
PRM. Personal record misfile defined in accordance with 44 U.S.C.
b(9) Release would disclose geological or geophysical information
2201(3).
concerning wells [(b)(9) of the FOIA]
RR. Document will be reviewed upon request.
03/16/94
18:02
202 347 4023
.NADDC
002
NATIONAL
200
ASSOCIATION
OF
DEVELOPMENTAL
STAM Hair
DISABILITIES
COUNCILS
1234 Massachusetts Avenue, NW
Suite 103
Washington, DC 20005
202-347-1234
TO:
Peter Shakow
FROM:
Denise Rozell
DATE:
March 3, 1994
RE:
Attendance at March 17, 1994 Meeting with Joe
Velasquez
Peter -
Here are the names and dates of birth of the people who will be
attending the meeting at 2:00 pm on March 17, 1994 with Joe
Velasquez. I also included their phone numbers in case you need
them. Call me if you have any questions.
[002]
Curtis Decker -
(b)(6)
National Association of Protection and Advocacy Systems
202-408-9514
Ann Marie Hughey -
(b)(6)
National Council on Independent Living
703-525-3406
Becky Ogle -
(b)(6)
National Association of Medical Equipment Services
703-836-6263
Denise Rozell -
(b)(6)
National Association of Developmental Disabilities Councils
202-347-1234
Leonard Rubinstein -
(b)(6)
Bazelon Center for Mental Health Law
the
202-467-5730
Patrisha Wright -
(b)(6)
Disability Rights Education and Defense Fund
202-986-0375
STAM Uni HAREbe, 8150 #1 de onutreal WA bility roon
These people met w
Note
any one else
should be
J. veronica Biggins +
there
Mike Lux yesterday to
Complain that the WH
Clinton Library Photocopy
ianoring them, etc.
THE WHITE HOUSE
WASHINGTON
March 29, 1994
MEMORANDUM FOR DAVID KUSNET
From:
Joe Velasquez
Subject:
Presidential Statements and the Disabled Community
In recent meetings, leaders of the disabled community expressed to me their concern
that, while the President does a good job of including diverse groups through his
speeches and statements, disabled Americans are perennially left out.
Can your shop help address this problem (whether it is perception or reality)?
Thanks.
MEMORANDUM TO JOE VALASQUEZ
Reterme Herr
FROM:
Paul Steven Miller
-634-9610
is
DATE:
March 21, 1994
SUBJECT:
Need Commitments
Independent living
Town Hall Meeting May 2, 1994 during the NCIL Meetings
Attendance and Participation by the First Lady
Co-sponsored by Senators Kennedy and Harkin
April 28th Gala Fundraiser - 250-350 people.
Administration Presence??? Carol Rasco???
July 26th ADA Event -
Make it a Healthcare event -- Bush Signed the ADA but did not
have the courage to tackle healthcare reform. Healthcare makes
the promise of the ADA a reality. President ties healthcare to
the ADA.
1000 South lawn
Large gathering of folks on the South Lawn and then they go up
to the Hill to lobby for healthcare reform.
Other Issues
Surrogate Training on Healthcare during the NCIL Meetings
Lack of Disabled Surrogates Speaking on Healthcare Reform
National Council on Disability -- disability community is pushing very
hard for the resignation of all of the Reagan and Bush appointees
* Communication = INCLUDE PEOPLE WITH
DISAMUNES is PANT of
AMERICA MESSAGE
Denise NAT ASSO of Dispiner COUNCILS
people w/ develying distates
CCD civl Rights
Derek
protection & Advoccy 6
legal requestitus
Cocus ON AOA
Becky
WAS ASQU for med Eq
LEN mustal
leyal & policy issus
Nat! Suppert cuty
02/15/94 17:35
Z 512 492 0022
over
02/08/94 12187
X 512 442 8522
AD#PT OF TX
P.84
ADAPT
FREE OUR PEOPLE
jv-
Action?
The President of the United states
The White House
1600 Pennsylvania Avenue, NW
Washington, DC 20500
No
January 12, 1994
My Dear Mr. President:
ADAPT (American Disabled for Attendant Programs Today) wants to
personally meet with you when ADAPT comes to Washington in April,
1994. The purpose of this meeting will be to discuss your admin-
istration's continuing commitment to the inclusion of community-
based personal attendant services in the Health Security Act as
it works its way through Congress this spring.
ADAPT's position is that no matter what form the Health Security
Act takes it must include a section on a community-based attend-
ant services program that every state must participate in. This
program must have a minimum set of standards that every state
would have to meet, with no exception.
These standards should include, but not be limited to:
1) availability based on functional need, 2) availability for
people of all ages, 3) allowing maximum control of the service
both in an agency administered system as well as a direct pay
situation, 4) availability 24 hours a day, 7 days a week, with
provisions for back-up and emergency services, 5) allowing for
cost sharing for people with higher incomes, and 6) allowing for
health-related tasks to be performed by unlicensed persons in
certain instances.
This meeting with ADAPT will show your commitment to make commu-
nity-based attendant services a reality for the thousands of
Americans with disabilities and their families, (regardless of
their age or disability) who are faced with institutional place-
ment. The members of ADAPT have personal experience with the
institutional bias of our current long-term service system. Many
have been warehoused in nursing homes and other large institu-
tions for people with disabilities. They want to meet with you
this spring!
12 Broadway
Denver, Colorado 80203
303 733 9324
....
02/15/94 17:35
= 512 442 0522
AD@PT OF TX
P.03
02/08/94 12:08
2 512 442 0522
ADOPT OF TX
P.85
ADAPT
FREE OUR PEOPLE
You have talked about the health security that every American
should expect. In these talks, however, you have not emphasized
how important a community-based, long term service system is for
people with disabilities, regardless of age or disability. You
emphasize the medical aspects of your program, but do not give as
much time to the long-term support needs of people with disabili-
ties. These support services will, in fact, improve the overall
health of those receiving services and avoid or delay costly
doctor or hospital costs.
Your long-term service plan still keeps nursing home placement as
an entitlement, while capping the home and community section of
the plan. You must challenge the stranglehold the nursing home
industry has on our long-term care system and make home and
community based attendant services the focus of your long-term
service system.
This meeting could be an opportunity for you to make a major
speach on the need for a community based, long term care system
in this country. This meeting will focus the American public on
the need for these long term in home supports and send a message
to the 42 million disabled Americans that your administration is
committed to providing the services needed to keep people as
independent and productive as possible.
The opportunity for change has never been better. Your leader-
ship is critical if the long term care portion of the Health
Security Act is to remain.
We would appreciate your response by March 1, 1994.
For An Institution Free America,
AV M
Michael W. Auberger
National Organizer
12 Broadway
Denver, Colorado 80203
303 733 9324
2000
ADAPT ATLANTIS
15:11
16/21/10
THE WALL STREET JOURNAL.
DATE:
3/23/9
File
PAGE:
A-14
Disabilities Law, Health Hazard
By JAMES BOVARD
AIDS-infected waiter who had taken a
There are roughly 7,000 HIV-positive
The movie "Philadelphia," portray-
leave after coming down with double pneu-
physicians in the U.S. A 1992 Centers for
ing a law firm's discrimination against
monia. (The Hartford Courant noted that
Disease Control study observed that, un-
an AIDS-infected lawyer. won two Acad-
the waiter "started losing weight and be-
der one set of assumptions, "the estimated
emy Awards Monday night. While the
came sluggish and weak. He left food un-
probability that (an HIV-infected) surgeon
movie is generating sympathy for peo-
der the warmers too long. and his hands
will transmit HIV at least once during the
ple with AIDS, little attention is being
shook so much that he couldn't carry cock-
rest of his/her career is 8.1%."
paid to the people whose lives are be-
tail trays.")
Even if a doctor with HIV lies to his
ing endangered by federal policies that
The presumptions created in the ADA
patients and claims not to be infectious,
increasingly prevent companies from
can turn every decision about the job and
he is still entitled to full protection un-
protecting employees or customers from
work assignments of a contagious indi-
der the ADA. Philip Benson, a Min-
contagious fatal diseases. Few people
vidual into a court battle. Civil-rights pol-
neapolis physician, continued delivering
realize how expansive the Americans
icy concerning contagious diseases is in-
babies and doing invasive genital and
With Disabilities Act is, and how it can
fluencing firefighting. In a path-breaking
rectal examinations for nearly a year
threaten their own health.
case last December, federal judge Joyce
after he came down with AIDS; the Min-
The Supreme Court laid the ground-
Hens Green ruled that the District of Co-
nesota Board of Medical Examiners in
work for a broad protection of the rights of
lumbia fire department violated an infec-
September 1990 permitted him to con-
contagious people in a 1987 decision that a
tious firefighter's civil rights because he
tinue practicing even after he had open
school board wrongfully fired a teacher
was specifically prohibited from doing
sores on his hands and arms as long as
with tuberculosis. Under the ADA, passed
mouth-to-mouth resuscitation. But the
he wore double gloves. Dr. Benson re-
in 1990, "any physiological disorder or con-
firefighter had hepatitis B, which infects
portedly lied to his patients when they
dition which substantially limits one of a
300,000 people and kills 7,000 people a
asked questions about his sores and his
person's 'major life activities' can be
year.
sharp weight loss, and also allegedly
classified as a handicap that employers
The biggest impact of the new discrim-
failed to wear gloves during some ex-
are prohibited from discriminating
ination-contagion philosophy is on health
aminations.
against. Since contagious diseases are
care. The federal Department of Health
While many HIV-infected surgeons vol-
physiological disorders-voila!-discrimi-
and Human Services penalized a Westch-
untarily cease practicing, others are not so
nating against people with contagious dis-
ester County, N.Y., hospital in 1992 be-
inclined. In late 1992, an AIDS-infected or-
ease can be a federal crime.
cause it prevented an HIV-positive phar-
thopedic surgeon. sued Mercy Catholic
Employers are now required to hire
macist from preparing intravenous solu-
Medical Center of Philadelphia for revok-
people with contagious diseases unless
tions, even though the hospital did offer
ing his hospital privileges. The hospital of-
they can prove that
the pharmacist another position where
fered to allow the surgeon to continue
the person poses a
there was far less danger of transmitting
REGULATORY
practicing if his patients signed consent
large risk to other
the disease:
forms stating that they had been informed
workers or their cus-
CHOKEHOLD
Hospital, the journal of the American
of the doctor's HIV status. The surgeon
tomers. The Equal
Hospital Association, noted that the
sued. American Medical News noted, "Ad-
Employment Oppor-
Westchester hospital "justified its stance
vocates for people with HIV insist that re-
tunity Commission, in its implementing
by noting its large number of very ill pa-
quiring notification [of patients) is tanta-
regulations for the ADA, announced: "De-
tients and that pharmacists often stick
mount to revoking [hospital] privileges."
termining whether an individual poses a
themselves accidentally and must break
The suit is still pending.
significant risk of substantial harm to oth-
glass vials in order to prepare IV solutions.
The failure of policies that indulge in-
ers must be made on a case by case basis."
In a worst-case scenario
pharmacists
fectious surgeons was made stark in a re-
"Significant risk" was defined in congres-
could stick themselves with a fine-gauge
cent investigation of a UCLA surgeon who
sional reports authorizing the law as a
needle and be unaware of it. That needle
spread hepatitis B to 18 patients undergo-
high probability of substantial harm.
would then be inserted in a bag with solu-
ing heart surgery in 1991-92. Amazingly,
Restaurants are now obliged to give the
tions, contaminate the solution, and then
the hospital had tested the surgeon, dis-
benefit of the doubt to potentially conta-
infect a patient." But federal officials
covered he was infected, and yet still per-
gious job applicants. James Coleman, an
ruled that the hospital violated the rights
mitted him to continue operating without
attorney for the National Council of Chain
of the infectious pharmacist. The hospital
warning patients of the additional deadly
Restaurants, observed in 1992, "What we
was forced to pay him $330,000 for, among
risks they faced. The hepatitis was appar-
were told in no uncertain terms was We
other things, the "emotional damage" it
ently spread to patients through tiny holes
[Congress] are going to use the restaurant
had inflicted on him.
in surgical gloves. The New York Times
industry as a vehicle for forcing a change
Federal regulations are resulting in a
noted yesterday that "the hospital's deci-
in public attitude with respect to AIDS. If
cloak of secrecy being imposed on what
sion to allow the surgeon to keep on oper-
it costs you money. too bad.'
may be life-or-death information to pa-
ating even after he was found to be in-
It is extremely unlikely that someone
tients. The ADA gave health care work-
fected
is in compliance with federal
could contract AIDS as a result of eating a
ers the right to continue performing in-
guidelines."
meal prepared by an AIDS-infected per-
vasive surgery without disclosing to pa-
The UCLA case makes a mockery of
son. but such individuals often are hit by
tients that there is a risk that they could
the CDC's universal precautions-which,
other illnesses-such as tuberculosis-that
contract AIDS from the health care
if followed, supposedly protect patients
are contagious.. A Farmington, Conn.,
provider.
from infected doctors and dentists. Yet,
restaurant was sued by the state Commis-
studies in recent years have found that
sion on Human Rights and Opportunities
as many as 47% of gloves suffer from
after the réstaurant refused to rehire an
defects, punctures or leaks during
surgery.
The ADA is also restricting how health
62
care workers may protect themselves
con
from contagious patients. (The CDC has
identified 120 cases of documented or pos-
sible occupational transmission of
AIDS/HIV to health care workers, and
hepatitis B kills over 200 health care
workers a year.) The official news maga-
zine of the American Dental Association
warned dentists last November that
"dentists should be
aware that they
could be charged with discrimination for
using 'extra precaution' " while treating
HIV patients.
Unfortunately, federal policy toward
contagious diseases seems increasingly
simply a question of clout in Washington.
In 1990, the International Association of
Fire Fighters-a politically powerful
union-succeeded in persuading Congress
to include a provision in a law requiring
that emergency response employees be no-
tified when they had been exposed to air-
borne infectious disease.
It is peculiar to see how far federal
law goes to protect firefighters, in-
fected or otherwise. Firefighters must
be notified when they have been ex-
posed to the plague-even though "per-
son-to-person transmission of plague
has not been documented since 1924."
as a Federal Register notice observed
Monday. Firefighters and emergency
medical technicians have a federal
right to be notified any time they are
in the same vehicle with a person with
TB-yet hospital patients have no right
to be notified when their surgeon is
HIV positive, despite the CDC study
showing that there could be an 8%
chance that an HIV-infected surgeon
will effectively kill one of his patients
by spreading HIV.
Federal policy makers act as if it is
more important to minimize prejudice
against people with infectious diseases
than to minimize the spread of the dis-
eases themselves. The Americans with
Disabilities Act is creating a "civil right"
that is the antithesis of individual rights-
of freedom of contract-and of the right of
informed consent. Maybe someday some-
one will make a movie about it.
Mr. Bovard writes often on public policy.
63
Withdrawal/Redaction Marker
Clinton Library
DOCUMENT NO.
SUBJECT/TITLE
DATE
RESTRICTION
AND TYPE
003. memo
Denise Rozell to Peter Shakow; RE: Personally Identifiable
03/21/1994
b(6)
Information [partial] (1 page)
COLLECTION:
Clinton Presidential Records
Political Affairs
Peter Shakow; Joe Velasquez
OA/Box Number: 5120
FOLDER TITLE:
Disabled Community
2007-0143-F
db4520
RESTRICTION CODES
Presidential Records Act - |44 U.S.C. 2204(a)]
Freedom of Information Act - [5 U.S.C. 552(b)]
P1 National Security Classified Information [(a)(1) of the PRA]
b(1) National security classified information [(b)(1) of the FOIA]
P2 Relating to the appointment to Federal office [(a)(2) of the PRA]
b(2) Release would disclose internal personnel rules and practices of
P3 Release would violate a Federal statute [(a)(3) of the PRA]
an agency [(b)(2) of the FOIA]
P4 Release would disclose trade secrets or confidential commercial or
b(3) Release would violate a Federal statute [(b)(3) of the FOIA]
financial information |(a)(4) of the PRA]
b(4) Release would disclose trade secrets or confidential or financial
P5 Release would disclose confidential advice between the President
information [(b)(4) of the FOIA]
and his advisors, or between such advisors [a)(5) of the PRA]
b(6) Release would constitute a clearly unwarranted invasion of
P6 Release would constitute a clearly unwarranted invasion of
personal privacy [(b)(6) of the FOIA]
personal privacy [(a)(6) of the PRA]
b(7) Release would disclose information compiled for law enforcement
purposes |(b)(7) of the FOIA]
C. Closed in accordance with restrictions contained in donor's deed
b(8) Release would disclose information concerning the regulation of
of gift.
financial institutions [(b)(8) of the FOIA|
PRM. Personal record misfile defined in accordance with 44 U.S.C.
b(9) Release would disclose geological or geophysical information
2201(3).
concerning wells [(b)(9) of the FOIA]
RR. Document will be reviewed upon request.
03/21/94
16:44
202 347 4023
NADDC
002
NATIONAL
200
ASSOCIATION
OF
DEVELOPMENTAL
DISABILITIES
COUNCILS
1234 Massachusetts Avenue, NW
Suite 103
Washington, DC 20005
202-347-1234
TO:
Peter Shakow
FROM:
Denise Rozell Denise
DATE:
March 21, 1994
RE:
Attendance at March 23, 1994 Meeting with Joe
Velasquez
Peter -
Here are the names and dates of birth of the people who will be
attending the follow-up meeting at 2:30 pm on March 23, 1994 with
Joe Velasquez. I also included their phone numbers in case you
need them. Call me if you have any questions.
Justin Dart -
(b)(6)
[003]
Curtis Decker -
(b)(6)
National Association of Protection and Advocacy Systems
202-408-9514
Ann Marie Hughey -
(b)(6),
National Council on Independent Living
703-525-3406
Paul Marchand -
(b)(6)
The Arc
202-785-3388
Becky Ogle -
(b)(6)
National Association of Medical Equipment Services
703-836-6263
Denise Rozell -
(b)(6)
National Association of Developmental Disabilities Councils
202-347-1234
Leonard Rubinstein -
(b)(6)
Bazelon Center for Mental Health Law
202-467-5730
Patrisha Wright -
(b)(6)
Disability Rights Education and Defense Fund
202-986-0375
Clinton Library Photocopy
APR-01-1994 13:36 FROM US OFF. CONSUMER AFFAIRS
TO
94567929 P.02
MEMORANDUM TO MIKE LUX, Special Assistant to the President
FROM:
Paul Steven Miller
DATE:
April 1, 1994
SUBJECT:
POTUS Schedule and National Council on Disability Health Care Hearings --
Possibility of Arranging a Meeting with POTUS and Disabled Persons
Involved in the Hearings.
In looking at the President's schedule for next week, it appears that he will be
in the same areas at the same time as some of the National Council on Disability Health Care
Hearings. It would be a terrific hit for us if there is time for the President or First Lady to
either (1) make an appearance at one of the hearings or (2) to meet with a group of persons
with disabilities who either testified or will testify at the hearings. While I recognize that
there may not be the time on his or her schedule to appear or become involved with one of
the hearings, there may be time to arrange a short meeting with a group of persons with
disabilities who are in town to testify at the hearing. The hearing in Topeka, Kansas on
April 6, 1994 might present a good opportunity.
Arranging a short meeting with a group of disabled persons involved in the
hearings would be less burdensome to the President's schedule, would be relatively easy to
set up, and would create tremendous excitement in the disability community. Such a meeting
would not be in lieu of any events which are currently being discussed for May 2, 1994 in
Washington. I have attached a copy of the schedule of National Council Hearings for your
reference. Please do not hesitate to call me about this idea.
Of course, a meeting between the President and/or First Lady and disabled
leaders can be arranged in any of the cities in which he or she are planning to do health care
events during the next week.
cc:
Joe Valasquez
APR-01-1994 13:36 FROM US OFF. CONSUMER AFFAIRS
TO
94567929 P.03
NATIONAL COUNCIL ON DISABILITY
An independent federal agency working with the President and the Congress to increase the
inclusion, independence, and empowerment of all Americans with disabilities.
March 11, 1994
Dear Colleague:
The National Council on Disability will host a series of town meetings on.making health care reform
work for individuals with disabilities. The purpose of these town meetings is to give people with
disabilities and Interested citizens an opportunity to fully participate in one of the most important
issues before us today - health care reform. By paying close attention to the concerns of people with
disabilities, we can have a tremendous impact on the scope and quality of future health care options
for all Americans.
The town meeting schedule, 8:30 a.m. to 3:30 p.m., is as follows:
March 30
San Diego, CA
San Diego Hilton, 1775 E. Mission Bay Drive - Capri & Riviera
Rooms
April 5
Austin, TX
Texas Rehabilitation Commission, Brown-Heatly Building, 4900
North Lamar Boulevard - Public Hearing Room
April 6
Topeka, KS
Ramada Inn, 420 SE 6th - Grand Ballroom
April 9
New York, NY
Holiday Inn Crown Plaza, 1605 Broadway . Act One Ballroom
April 11
Philadelphia, PA
Holiday Inn City Centre, 1800 Market Street Peale Baliroom
We strongly encourage you to participate in the event scheduled in your area. If you have any
questions or would like to reserve time for testimony in advance of the event, please contact Ramona
Lessen or Mark Quigley at the numbers listed below. Please note that in order to provide time for
every participant to let his or her views be known. testimony will be limited to five minutes per
person. However, there will be time allotted at the end of each day for participants to meet,
summarize their thoughts and forward this information to the Council. Please feel free to post or
circulate this invitation to others who may be interested in participating. Also, feel free to reprint
this letter or mention these events in any or your upcoming correspondence or newsletter mailings.
Thank you for your work to increase the independence, self-sufficiency, and Inclusion of all
Americans with disabilities. To accommodate those individuals who have environmental and chemical
sensitivities, these meetings will be conducted in 8 smoke-free atmosphere and will be free of all
aromatic fragrances. Also, sign language Interpreters will be provided. We look forward to seeing
you soon.
Sincerely,
John A. Gannon
Acting Chairperson
1331 F Street, N.W.
Suite 1050
Washington, D.C. 20004-1107
(202) 272-2004 Voice
(202) 272-2074 TT
(202) 272-2022 Fax
MEMORANDUM
TO:
Alexis Herman, OPL
FROM:
Bob Sevigny, DNC
RE:
Events for the Disability Community
DATE:
March 29, 1994
You asked for additional information on the two events for the disability community scheduled
for May 2 that we previously discussed. Those events are: (1) a march over the Memorial
Bridge to the Lincoln Memorial with a series of speeches planned at the Memorial; and (2) a
proposed national disability teleconference on health care with the President or First Lady.
Details on these events and relevant background information are set forth below:
1. Lincoln Memorial Event
General Outline: This event is designed to emphasize the importance of health care reform
and long term care to people with disabilities and to help mobilize the grass roots in
support of these goals. The President or First Lady would be asked to make a ten to fifteen
minute speech on the impact/benefit of health care reform and long term care on people
with disabilities. If we thought it would be useful, an opportunity to take select questions
from the audience or meet with representatives from the grassroots of the community could
be easily arranged.
Timing/Schedule: As currently planned, the march will begin at Arlington Cemetery and
proceed across the Memorial Bridge at approximately 11:30 A.M. It is scheduled to arrive at
the Lincoln Memorial at 12:40 P.M. Once the group arrives at the Lincoln Memorial there will
be a series of speeches from approximately 1:00 P.M. until 2:00 P.M. The event organizers
have provided a tentative schedule for the event (see attachment A) but have stated that they
would make whatever adjustments are necessary to conform to the President's or the First
Lady's schedule.
Sponsors/Participants: March is sponsored principally by three major groups:
- American Disabled for Attendant Programs Today (ADAPT), a national grassroots disability
organization that will come to Washington to demonstrate in favor of health care reform and
long term care. ADAPT was in Washington last summer for a march for attendant care services
and met with HHS Secretary Schalala.
- National Council on Independent Living (NCIL), perhaps the preeminent national grass roots
organization of and by people with disabilities with Independent Living Centers serving people
with disabilities in virtually every major metropolitan area in the nation;
- National Rehabilitation Association (NRA), a national organization of persons working in
rehabilitation and employment services for persons with disabilities.
- In addition, most national disabilities organizations have national offices and local chapters
or affiliates that will be participating in support of this event. If the President were to agree to
speak at the Lincoln Memorial the organizers of this event would seek additional sponsors from
major disability organizations and other groupings including the Long Term Care Campaign,
AARP, and the Health Care Reform Project.
2
Other Invited Guests: Event organizers have invited Senator Edward Kennedy, Senator Tom
Harkin, Representative Major Owens, Representative Pat Schroeder, and Justin Dart to address
the audience.
Crowd Size: As currently envisioned, without the President or First Lady, the march is
expected to attract approximately 2,300 people. If the President or First Lady were to appear
and sufficient advance notice of that fact was given (three to four weeks) crowd size could be
substantially increased with cooperation from key organizations in the community. In addition,
Justin Dart has offered to commit up to $10,000 to rent busses to bring people in from nearby
communities. Other groups could also be expected to commit resources to bring people in to
hear the President.
Media Coverage: March organizers have an excellent track record in attracting media coverage
in Washington and have hired media person to work this event. Prime Time Live from ABC
and HBO Cable have already committed to cover this event. They have also been very
successful in the past in obtaining coverage on CNN. Event organizers have already contacted
all local and national media and they will arrange for radio, TV and print media interviews in
advance of the main group of arriving in Washington. They will work with invited speakers
media people to maximize media coverage. In addition, event planners intend to videotape the
entire event and distribute the video tape throughout the community in support of health care
reform. Clearly, news that the President or First Lady would address this group would
tremendously increase media coverage of the event.
*Positive Considerations: This will almost certainly be one of if not the largest disability event
ever held even without the participation of the President or the First Lady. With their
participation the event would clearly break all records for this community and would be an
excellent vehicle for reaching via free media people with disabilities all across the nation. The
audience will be composed of leaders and grassroots activists from the disability community
from virtually every state and significant disability organization in the country including many
people who would never otherwise have the opportunity to see or hear the President or the First
Lady. Opportunities for media coverage will be very good. Event participants will spend the
remainder of their time in Washington demonstrating in favor of health reform or lobbying
members of Congress in support of health reform and long term care.
*Concerns: Even with a very large crowd by disability community standards (5,000 to 10,000
people) the crowd at the Lincoln Memorial may look small to TV cameras that may cover the
event thus diminishing its potential impact. Weather is another imponderable for such a large
outdoor event although the event is scheduled to occur rain or shine. Finally, with a crowd this
size, it is certainly possible that there may be some people opposed to actions by the President.
This is particularly the case if it is perceived that the President has consented or acquiesced to
the elimination of long term care from the health care plan. Event organizers have, however,
given their word that there will be no negative incidents. With this in mind, the organizers have
already told Act Up that they will not be permitted to participate in either the march or the
Lincoln Memorial event.
3
2. National Town Meeting for People with Disabilities
This event was apparently conceived of as either an alternative to or a supplement to the march
and Lincoln Memorial event to attract the President or First Lady. The idea is again that it is
critically important for the President or the First Lady to address the interests or concerns of
people with disabilities to enable us to mobilize the grassroots of the community in support of
the community. While few specific details on this proposal have been set, it appears that
preliminary discussions were held between Pat Wright and Senator Kennedy's office and with
Senator Harkin's staff. No commitments seem to have been made but there was apparently
interest in the proposal. In addition, Justin Dart has reserved a large committee room in the
Hart Senate Office Building on May 2 that was used for hearings on the American's with
Disabilities Act.
The concept is that the audience would be composed of a representative group of people with
disabilities (leaders and grassroots) from all over the country that had come to Washington for
the Lincoln Memorial event or other disability events occurring around that time. The audience
size could number several hundred in the room that has been reserved.
The format would probably be to have the President or First Lady give a brief introduction and
overview of the health care and long term care and then allow questions and interaction from
the studio audience and from persons at satellite down and up link locations across the country.
If Senators Kennedy and Harkin were to participate in this event, they would presumably be
given the opportunity to make brief opening statements and also respond to questions. Length
of the event would probably be either an hour or an hour and a half.
Down link sites could be set up across the country to permit the principals to interact with a
large national audience. Additionally, if the President or First Lady were to agree to appear,
discussions would begin with C-Span and other TV networks to arrange for the broadest possible
national airing of this event. Finally, the entire event would be videotaped for distribution in
the disability community.
*Positive Considerations: The event would have the possibility of reaching a very wide national
audience in the disability community. The audience and the questions could be carefully screened
so there would be very little likelihood of an embarrassing situation. The room could easily be
packed with people so there would be no concerns that the event would look small relative to
other events conducted for other constituency groups. Also, there would be no concerns about
weather impairing the event. This event would allow the President or the First Lady to directly
address and energize the "grassroots" and leadership of the disability community on this
critically important issue. This would be an unprecedented event that would clearly indicate the
President's interest in this community and that he shares their concerns on this and other
important issues.
*Concerns: Clearly, the consensus of the disability community is that it is vital to have an event
with the President or the First Lady on the subject of health care regardless of where the
4
ultimate location is or what forum is chosen. However, holding this town meeting event on the
same day as the Lincoln Memorial event could be viewed as undercutting a large grass roots
event and slighting some of those who traveled to Washington, at great cost and difficulty, to
participate. If the decision is made to choose the televised national town meeting format over
the Lincoln Memorial event, one solution to this problem could be to simply hold it on another
date either shortly before or after the march or in the morning of the day on the day of the since
timing would not be as critical for a teleconference.
ADAPT
FREE OUR PEOPLE
March Participants:
The march participants will be comprised of four different
groups;
1. American Disabled for Attendant Programs Today, (ADAPT)
members who have come from twenty-eight states to advocate for
health care issues related to disability such as personal
assistance services.
ADAPT is a grassroots disability rights organization
headquartered in Denver with approximately five thousand members
in thirty-three states.
ADAPT anticipates having five hundred members attending the
march.
2. National Council for Independent Living, (NCIL) members will
be holding their annual convention in Bethesda, Maryland.
NCIL is an organization of four hundred Independent Living
Center directors and staff who provide services and advocacy
directors.
NCIL will have approximately eight hundred members attend the
march.
3. The National Rehabilitation Association, (NRA) will be
holding their annual convention in Washington D.C..
NRA has over five thousand members who are employed in
rehabilitation and employment services for people with
disability.
NRA will have approximately five hundred members attend the
march.
12 Broadway
Denver, Colorado 80203
303 733 9324
001
ADAPT ATLANTIS
3037339324
10:24
03/28/94
ADAPT
FREE OUR PEOPLE
4. The Local Disability Community at large are individuals with
disabilities who live within one hundred and fifty miles of
Washington D.C.. As was the case with the ADA March the local
community turned out in large numbers.
The Local Disability Community will have approximately five
hundred people attend the march.
It is clear that the Bridge to Freedom March will be the
largest disability event ever.
12 Broadway
Denver, Colorado 80203
303 733 9324
900
ADAPT ATLANTIS
3337339324
10:24
03/28/94
03/28/94 12:19
2 512 442 0522
AD@PT OF TX
P.02
OF
STATE OF TEXAS
OFFICE OF THE GOVERNOR
AUSTIN, TEXAS 78711
ANN W. RICHARDS
GOVERNOR
March 24, 1994
The Honorable William Jefferson Clinton
The President
The White House
1600 Pennsylvania Avenue
Washington, D. c. 20500
Dear Mr. President:
I am writing in support of the provisions for home and community-
bill. based care, including attendant services, in your health reform
As you know, today's federal programs and health insurance
policies have an institutional bias so people too often are
forced into a hospital or nursing home to get the services they
need. Living in an institution is usually more costly, and most
people would choose to live in their own home rather than enter a
hospital or nursing facility. They should have that choice.
In Texas, we are implementing a Medicaid waiver to allow people
to receive community-based services rather than being forced into
nursing facilities. But to make community-based services
available to everyone, we need for them to be covered under the
national health reform bill.
Representatives of the national ADAPT organization have requested
a meeting with you in May. Members of the Texas chapter of ADAPT
are committed and effective supporters of community services, and
I believe they can have an impact on national health reform. I
hope you can meet with their representatives.
I appreciate your including home and community-based care as a
Tum Renards part of health reform
Sincerely,
ANN W. RICHARDS
Governor
POST OFFICE Box 12428 At STIN. TEXAS 78711 0121 163 2000 (VOICE) (512) +75-3165(TDD)
Printed (M) Reev. 1011 Paper
ADAPT
FREE OUR PEOPLE
MEDIA:
ADAPT over the past ten years has a long and successful
history with the Washington print and visual media. ADAPT has
built a local and national credibility with the media.
ADAPT is already in contact with the D.C. media in
preparation for our arrival in May. Primtime from ABC and HBO
Cable have both committed to follow the events surrounding ADAPTs
presence in Washington. All the local and national media have
been contacted once. We are now arranging for radio, TV, and
Newspaper interviews prior to the main body of ADAPT arriving.
ADAPT will have one person assigned to media relations. Our
media specialist has been dealing with the D.C. and national
media for more than five years.
ADAPTs media specialist will begin daily contacting the
D.C. media approximately two weeks prior to our arrival. At that
time we will begin to publizie the May 2, 1994 March.
ADAPT will work with our invited speakers media liaison to
insure the maximum media saturation.
PARTICIPANTS
ADAPT has invited Senator Kennedy, Representative Owens,
Justin Dart and Representative Shroeder to speak to the
disability community attending the march and events at the
Lincoln Memorial on May 2, 1994.
At this time not all of our speakers have confirmed their
appearance. If the President or the First Lady accept their
invitation we will adjust the schedule to accommodate theirs.
ADAPT will make any accommodations necessary to our program to
permit the President or First Lady to address the crowd.
All speakers will be addressing Health Care Reform and and
its effects on people with disabilities.
12 Broadway
Denver, Colorado 80203
303 733 9324
900
ADAPT ATLANTIS
23037339324
10:25
03/28/94
ADAPT
FREE OUR PEOPLE
A BRIDGE TO FREEDOM
HEALTH CARE
MAY 2, 1994
PROPOSED AGENDA
11:30 A.M. - March leaves Arlington Cemetery
12:40 P.M. - March arrives Lincoln Memorial via Memorial Bridge
12:50 P.M. - Music performed by Johnny Creshendo
12:55 P.M. - M.C. Bob Kafka welcomes crowd
Introduces Justin Dart
01:00 P.M. - Justin Dart Speakers
01:10 P.M. - Bob Kafka introduces Rep. Major Owens
01:10 P.M. - Rep. Owens speaks
01:20 P.M. - Bob Kafka introduces Stefanie Thomas
01:20 P.M. - Stefanie Thomas speaks
01:30 P.M. - Bob Kafka introduces Senator Ted Kennedy
01:30 P.M. - Senator Kennedy speaks
01:40 P.M. - Bob Kafka introduces Johnny Creshendo
12 Broadway
Denver, Colorado 80203
303 733 9324
002
ADAPT ATLANTIS
3037339324
10:23 03/28/94
ADAPT
FREE OUR PEOPLE
A BRIDGE TO FREEDOM
HEALTH CARE
MAY 2, 1994
PROPOSED AGENDA
01:40 P.M. - Johnny Creshendo performs
01:45 P.M. - Bob Kafka introduces President Clinton
01:45 P.M. - President Clinton addresses crowd
01:55 P.M. - Bob Kafka thanks the President and
Introduces Michael Auberger
01:55 P.M. - Michael Auberger speaks
02:05 P.M. - Bob Kafka closes ceremonies
02:05 P.M. - Johnny Creshendo performs
02:05 P.M. - Crowd begins to disperse
02:10 P.M. - Cleaning crew begins
02:25 P.M. - Required cleaning ends
12 Broadway
Denver, Colorado 80203
303 733 9324
003
ADAPT ATLANTIS
3037339324
10:23 03/28/94
Joe-
since you met w/ disability
types w/ OPC & DNC
thought you may want
to make sure that they
are aware of this. D
don't know if it has
been announced - get
ROUTING SLIP
DATE: 4/18/94
FROM: Ricki Seidman
Assistant to the President
and Director of Scheduling and Advance
TO: SUBJECT: galludet University
Baer
Street
Speech writing
X
JOAN BAGGETT
PAT GRIFFIN
REBECCA CAMERON
JOHN PODESTA
MARK GEARAN
JACK QUINN
DAVID GERGEN
CAROL RASCO
CINDY GIRE
BOB RUBIN
MARCIA HALE
PATTI SOLIS
ALEXIS HERMAN
GEORGE STEPHANOPOULOS
NANCY HERNREICH
ANN STOCK
HAROLD ICKES
CHRISTINE VARNEY
PHIL LADER
DAVID WATKINS
ANTHONY LAKE
ANNA WINDERBAUM
Fy
BRUCE LINDSEY
MAGGIE WILLIAMS
MACK McLARTY
MELANNE VERVEER
FILE:
Accepted
JOE VELASQUEZ
TONY WILSON
cc:
Cassie O'Neice
FOR YOUR
INFORMATION
X
ADVICE
ACTION
COMMENTS: anna 1 had UolNerada - Y Hope ARK High that day
opsionsly can't do. Fyi you may already know This
colleen
THE WHITE HOUSE
WASHINGTON
Schedule Proposal
3/24/94-- UPDATED
ACCEPT
REGRET
PENDING
Ricki Seidman, Assistant to the President for
Scheduling and Advance
OM:
Susan Brophy, Legislative Affairs
REQUEST:
POTUS deliver commencement address, Gallaudet
PURPOSE:
This is important to Majority Whip Bonior.
BACKGROUND:
Rep. Bonior is a trustee of Gallaudet University. The
school recently appointed its first deaf president (after
they had originally offered the position to a hearing
administrator.) Bonior was a supporter of appointing
a deaf president and thinks it would be a nice gesture
on your part if you spoke at their graduation
ceremony.
Update
At the WH Democratic Caucus reception, 3/23/94,
POTUS told Bonior he would do this event.
DATE AND TIME:
May 13, 1994, 1:30 p.m.
DURATION:
To be determined
LOCATION:
University Field House, Gallaudet University, D.C.
PARTICIPANTS:
Faculty, graduates
OUTLINE OF EVENTS:
To be determined
REMARKS REQUIRED:
Speechwriting
MEDIA COVERAGE:
Probably
VICE PRESIDENT'S ATTENDANCE: Optional
RECOMMENDED BY:
Legislative Affairs
CONTACT:
Susan Brophy (x62231), Karen Hancox (x66620)
on 3.23@ reception
POTUS told Bariones
THE WHITE HOUSE
3.24 memo
Richi needsto ash
WASHINGTON
POTUS
Schedule Proposal
3/17/94
94 MAR 18 A10 22
ACCEPT
REGRET
PENDING
TO: 3.22 memo
Ricki Seidman, Assistant to the President for
Scheduling and Advance
FROM: pending.
Susan Brophy, Legislative Affairs
REQUEST:
POTUS deliver commencement address, Gallaudet.
PURPOSE:
This is important to Majority Whip Bonior.
BACKGROUND:
Rep. Bonior is a trustee of Gallaudet University. The
school recently appointed its first deaf president (after
they had originally offered the position to a hearing
administrator.) Bonior was a supporter of appointing
a deaf president and thinks it would be a nice gesture
on your part if you spoke at their graduation
ceremony.
DATE AND TIME:
May 13, 1994, 1:30 p.m.
DURATION:
To be determined
LOCATION:
University Field House, Gallaudet University, D.C.
PARTICIPANTS:
Faculty, graduates
OUTLINE OF EVENTS:
To be determined
REMARKS REQUIRED:
Speechwriting
MEDIA COVERAGE:
Probably
VICE PRESIDENTS ATTENDANCE: Optional
RECOMMENDED BY:
Legislative Affairs
CONTACT:
Susan Brophy (x62231), Karen Hancox (x66620)
GALLAUDET UNIVERSITY
COPY
Office of the President
800 Florida Avenue, N.E.
Washington, D.C. 20002-3695
(202) 651-5005
February 24, 1994
The President
The White House
Washington, D.C. 20500
My dear Mr. President:
It is with great pleasure that I write to invite you to speak at
the 125th Commencement of Gallaudet University on May 13, 1994.
Several hundred bright and talented young people from across the
country and around the world will be sent off with not only a
degree from Gallaudet but with a great sense of self-confidence
and a fierce determination to make this world a better place.
Our commencement is especially noteworthy in this day and age
when disabled citizens are demonstrating as never before that we
expect the same rights and responsibilities as our fellow men and
women who may be "differently abled."
On this occasion, we would also be honored to present you with an
Honorary Degree, recognizing the extraordinary life of public
service to which you have long been dedicated.
As you may know, Gallaudet University was established by an
Enabling Act passed by Congress and signed into law in 1864 by
President Abraham Lincoln. Since that time the University has
been honored by the presence of dignitaries from the White House,
the Congress, and various departments of the government. The
history of these visits records seven former Presidents of the
United States including Ulysses S. Grant, James A. Garfield,
Chester Arthur, Grover Cleveland, Benjamin Harrison, Theodore
Roosevelt and Lyndon B. Johnson.
Since President Lincoln signed Gallaudet's Charter, every sitting
President has served as Patron of the University and, beginning
with President Lincoln, the diplomas which are awarded to
Gallaudet graduates are signed by the President of the United
States.
I write today also to explain why your presence at our 125th
Commencement would be so special. Recently, one of your fellow
Arkansans, Dr. Glenn Anderson, was elected Chairman of the
Gallaudet University Board of Trustees. Dr. Anderson is the
second deaf person and the first African-American to hold this
significant position. You no doubt recall that Dr. Anderson
The President
February 24, 1994
Page Two
served on your Governor's Commission on People with Disabilities
from 1983 to 1989 and was Chairman from 1987 to 1989. He is
currently Director of Training for the Rehabilitation and
Research Training Center for Deaf and Hard of Hearing Persons at
the University of Arkansas in Little Rock, where he also holds
the rank of professor. His wife, Karen, worked with Judy
Steelman, the Volunteer Coordinator at Clinton/Gore Headquarters
in Little Rock, where she assisted in opening up your campaign to
deaf people through staff training in the use of TDDs and how to
handle TDD calls.
In addition, our Vice President for Academic Affairs, Dr. Roslyn
Rosen, was a member of your transition team in her (then)
capacity as President of the National Association of the Deaf.
Finally, one of our most outstanding students, Warren Snipe, was
honored to be invited to the Martin Luther King Day celebration
at Howard University where you spoke. Warren was chosen to bring
greetings on behalf of Gallaudet University on this occasion. He
recounted to me with great excitement how he had met you at the
White House reception later that day and personally invited you
to attend his commencement ceremonies this coming May.
Mr. President, please consider according Dr. Anderson, Warren,
our wonderful class of graduates and their families and friends
the great honor of your presence at Gallaudet's 125th
Commencement on Friday, May 13, 1994, at 1:30 p.m. in our
University Field House.
Your presence on this occasion would continue the long tradition
of Presidential visits to this national and international center
of learning for deaf people, and would be perceived by disabled
people across the nation and those who serve them as an
expression of your continued interest and concern for those
Americans who have an additional challenge in life and who meet
this challenge boldly.
I await with great hope your favorable acceptance of this
invitation to address the Gallaudet University Class of 1994 in
the name of the high office which you hold as Patron of this
University.
Sincerely,
/s/
I. King Jordan
President
IKJ/mtd
THE WHITE HOUSE
WASHINGTON
OFFICE OF POLITICAL AFFAIRS
PHONE: . (202) 456-6257
FAX: (202) 456-7929
JOE VELASQUEZ TOM EPSTEIN RETA LEWIS LINDA MOORE
PETER SHAKOW
JOE TRAHERN
KAREN ANDERSON
OTHER
To:
Cindy Gire
Date:
# of Pages 2
(including cover)
Fax Number:
66298
Office Number:
Message:
CONGRESSIONAL DELEGATION
New Jersey has 13 members in the House of Representatives; seven Democrats and six
Republicans. Both Senators are Democratic.
U.S. Senator Bill Bradley (D) has served since 1979. He currently serves on the Energy &
Natural Resources; Finance; and Special Aging Committees. Senator Bradley was one of
the biggest supporters of NAFTA in the Senate and led the fight for the treaty on the
Senate floor. He is not up for re-election until 1996.
U.S. Senator Frank R. Lautenberg (D) has served since 1983. He currently serves on the
Appropriations; Budget; Environment & Public Works and Small Business committees.
Senator Lautenberg voted against the President's budget package this spring and against the
NAFTA in November. He is up for re-election this year.
New Jersey's 4th Congressional District. Republican Christopher Smith represents Trenton
and its eastern surroundings. In his seventh term, Smith has a surprisingly strong reelection
rate for a Republican in this Democratic town. His main focus in Congress has been
abortion -- he was executive director of the New Jersey Right to Life Committee before
being elected -- and he has gained somewhat of a national following for his high profile
opposition to the Freedom of Choice Act and other pro-choice legislation. His position on
this issue matches that of many of his (predominantly Catholic) constituents. His interest
extends to children's issues.
The other members of the New Jersey Congressional Delegation are:
Rep. William J. Hughes (D)
Rep. Jim Saxton (R)
Rep. Frank Pallone, Jr. (D)
Rep. Christopher H. Smith (R)
Rep. Robert C. Torricelli (D)
Rep. Marge Roukema (R)
Rep. Robert Menendez (D)
Rep. Bob Franks (R)
why
Rep. Robert E. Andrews (D)
Rep. Dean Gallo (R)
Rep. Herbert C. Klein (D)
Rep. Dick Zimmer (R)
Rep. Donald Payne (D)
HERE
Notes:
Representatives who voted for the NAFTA are in bold.
Representatives facing difficult races are in italics.
where
you
Give Duna gml <<< 5
Thentan
will
be
openling
the
m
THE WHITE HOUSE
WASHINGTON
March 29, 1994
MEMORANDUM FOR CINDY GIRE
X 6640
From:
Joe Velasquez
Subject:
National Council for Independent Living Speaking Request
The National Council for Independent Living (NCIL) would be honored to have Mrs.
Gore as a speaker for their gala dinner here in Washington on April 28, and I hope you
will give the invitation full consideration.
The NCIL is one of the nation's premier organizations that promotes the rights of
disabled people, serving as a national voice for the independent living movement, playing
a key role in the passage of the Americans with Disabilities Act and keeping a watchful
eye on its implementation. (This year marks the final stage in the law's implementation.)
Approximately 250 - 300 of the organization's (and the disabilities rights movement's)
top political activists and opinion leaders will attend this dinner, which kicks off their
annual meeting. It will be a terrific opportunity to address the concerns this group has
regarding the health care reform plan as it relates to the disabled community.
Many leaders and grassroots activists in this constituency group are angry with the lack
of attention their special needs with regard to health care reform have been given. Mrs.
Gore's presence at the dinner would go a long way towards assuaging their discontent.
Please advise.
Thanks.
PRESIDENTIAL APPOINTEES WITH DISABILITY
4/26/94
PUBLICLY ANNOUNCED
APPOINTEE
POSITION
Last Name
First Name
Title
Designation
Dept/Agency
Type
Heumann
Judith
Asst Secretary
Special Educ & Rehab Service
Education, Department of
PAS
Torres-Gil
Fernando
Asst Secretary
Aging
Health & Human Svcs, Dept of
PAS
Lindsay
Reginald C
Judge
Massachusetts
Judges, US District Court
PAS
Acheson
Eleanor D
Asst Atty Gen
(Legal Policy)
Justice, Department of
PAS
Verderber
Nancy
Member
Presidential Scholars, Comm on
PA
Brown
Jesse
Secretary
Veterans Affairs, Department of
PAS
Vogel
Raymond J
Under Secretary
Benefits
Veterans Affairs, Department of
PAS
Brickhouse
Eugene A
Asst Secretary
(Human Resources & Admin)
Veterans Affairs, Department of
PAS
Starkloff
Max
Member
WH Fellowships, Pres Comm on
PA
Bristo
Marca
Chair & Member
Disability, National Council on
PAS
0'Day
Bonnie
Member
Disability, National Council on
PAS
Wolters
Kate P
Member
Disability, National Council on
PAS
Alioto
Michele
Member
Disability, National Council on
PAS
Walker
Hughey
Member
Disability, National Council on
PAS
Schroeder
Fredric K
Commissioner
Rehabilitation Services Admin
Education, Department of
PAS
Employment of People with Disabilities, President's
Jacobson
Neil
Vice-Chair
Cmte on
PA
Prepared by: Information Systems Group
Office of Presidential Personnel
1
Noncareer SES, Schedule C and Other Appointees with Disability
4/26/94
Publicly Announced
Last Name
First Name
Title
Area
Dept/Agency
edA1
Aamodt
RV
Mail Analyst
White House Correspondence
The White House
AD
Allem
Janet C.
Deputy Chief of Staff
Finance & Administration
Agency for Intl Development
AD
Boorstin
Robert
Spec Asst to the Pres for Policy Coordination
Ofc of Communications
The White House
AD
Breedlove
James W.
Regional Administrator
Region VI
Small Business Administration
C
Butler-Bush
Tonia
Staff Assistant/Writer
White House Correspondence
The White House
AD
Carey
Paul
Spec Asst to the Pres (Senate)
Ofc of Legislative Affairs
The White House
AD
Clarkson
Shirley
Director
Office of Public Affairs
Archives & Records Admin, Nat'l
C
Deane
Bonnie L.
Assoc Dir/Sci, Tech, & Infra (Human Res)/NEC
Ofc of Policy Development- NEC
The White House
AD
Derian
Michael
Confidential Assistant to the Administrator
Federal Crop Insurance Corporation
Agriculture, Department of
C
Gwin
Holly L.
General Counsel
Office of Science & Tech Policy
C
Itzkoff
Donald M.
Deputy Administrator
Federal Railroad Administration
Transportation, Department of
SES
Jones
Robert L.
Special Assistant to the Sec & Dep'ty Sec
Office of the Secretary
Veterans Affairs, Department of
C
Livingstone
Craig
Asst to the Counsel to the Pres (Security)
Ofc of General Counsel
The White House
AD
May
Joyce
Asst Director, Administrative Oper Divis
Ofc of Administration
The White House
AD
Mitchell
Beatriz de Obaldia
Special Assistant
OSERS
Education, Department of
C
Moses
Howard R.
Deputy Assistant Secretary
Office of Spec Ed & Rehab Services
Education, Department of
SES
Parisi
Patricia
Special Assistant
Office of the Secretary
Education, Department of
C
Pearlstein
Deborah N.
Writer
The White House
AD
Savage
Elizabeth
Special Assistant
Civil Rights Division
Justice, Department of
C
Seelman
Katherine D.
Director
Nat'l Inst on Disability & Rehabilitation Rsrch
Education, Department of
SES
Shiffrin
Richard L.
Deputy Assistant AG
Office of Legal Counsel
Justice, Department of
SES
Spires
Cynthia Ann (Thes)
Special Assistant
Ofc of Asst to the Sec for Field Mngmnt
Housing & Urban Dev, Dept of
C
Tecklenberg
Michael H.
Spec Assistant to the Assistant Attorney General
Office of Antitrust
Justice, Department of
C
Weintraub
Philip
Assistant Mail Clerk
White House Correspondence
The White House
AD
Williams
Robert
Director
Admin for Developmental Disabilities-ACF
Health & Human Svcs, Dept of
SES
Winter
Michael A.
Special Assistant to the Opty Associate Secretary
Office of Intermodolism
Transportation, Department of
C
Zwally
Kurt D.
Staff Assistant
Ofc of Policy Development- Env Pol
The White House
AD
Prepared by: Information Systems Group
Office of Presidential Personnel
1
THE WHITE HOUSE
WASHINGTON
ATTORNEY CLIENT PRODUCT
PRIVILEGED AND CONFIDENTIAL
FOR INTERNAL DISTRIBUTION ONLY
June 22, 1994
MEMORANDUM FOR WHITE HOUSE DISABILITIES EVENT PLANNING GROUP
TODD CAMPBELL
CHRIS CERF
JOE VALASQUEZ
DEBBIE FINE
MIKE LUX
BOB BOORSTIN
PAUL MILLER
STAN HERR
FROM:
JOEL KLEIN
MARVIN KRISLOV
mr
RE:
Future Plans
In our initial meeting, we discussed various tasks to be
undertaken in connection with the planned July 26 event to
celebrate the anniversary of passage of the ADA. We have planned
a meeting for this Friday, June 24 at 2:00 p.m. in the Bisenhower
Room
Room of the White House Conference Center and have invited
211
selected outside persons to attend. Below please find a list of
tasks and suggested assignments; your input is welcome.
We anticipate the Friday meeting will focus on the July 26
event. We hope that other groups will meet and begin work on
other tasks in the meantime.
1. Event Planning
Confirm date. Coordinate with community.
Involve agencies and identify activities, speakers,
etc.
All hands- Valasquez, Miller, etc.
2.
Record of Accomplishments/Message:
In preparation for event but also in general terms.
Need to coordinate with agencies to identify
accomplishments, prepare materials, and pinpoint future
goals.
DETERMINED TO BE AN ADMINISTRATIVE
MARKING Per E.O. 13526
Sec.
3.2(C)
Initials:
PB
Date: 11/6/17
Herr, Boorstin, Fine, Lux along with agencies esp.
Savage (DOJ), Labor, Education, SBA, EEOC
3.
White House Coordinator for Disabilities Issues:
We need to obtain the position and select the person.
Klein, Miller, Campbell (?)
4.
Other Appointments
Expedite vetting for Access Board, Council on
Disability, and Council on Mental Retardation.
Miller, Krislov
5.
White House Accessbility Issues.
Work with GSA and/or persons in complex to identify
areas of concern, and remedy.
Cerf, Campbell
OFFICE OF THE VICE PRESIDENT
WASHINGTON
TO: Jol
FROM: Michela Alioto
Deputy Assistant for Domestic Policy
Alil
Per our conversation & have
attached a short memo 2 on a couple
of ideas I have for ADA events
youn July 26.
for a little over a week(All on
unfortunately. because am be leaving
some lose ends & wednot able
June 26) have been trying to the to up
put together a detailed outline
on the OTRB issue at DOT l
gave what has a transpired mg The project,
rough sutch of
however, is being spear spearhaded by
Stephen Kaplan general over
-
Frank Kruesi, Asst. Sec. for
Handportation Policy at DOT
you can leave me a message met
If you need me for anything
(202)3332020. I'd like to be a part of
these ideas or not- so
this if you decide to run let w/
me know.
Thanks
Michela
CLINTON LIBRARY PHOTOCOPY
THE WHITE HOUSE
WASHINGTON
July 5, 1994
MEMORANDUM FOR MARVIN KRISLOV
From:
Joe Velasquez
Subject:
ADA Event
I asked Michela Alioto to put together her thoughts on a possible ADA event a few weeks
ago.
We should take her thoughts into account as we make final plans for the event on the 26th.
Please advise.
Thanks.
June 13, 1994
MEMORANDUM FOR JOE VALESQUEZ M
FROM:
MICHELA ALIOTO
RE:
POSSIBLE ADA EVENTS ON JULY 26
ISSUE
The issue at hand is a home-run ADA event to solidify the Administration's support for the
ADA while publicly reemphasizing its importance to the Administration. I think I may have
such an event.
BACKGROUND
When the ADA was enacted it gave one very significant provision -- it excluded over-the-
road-buses (OTRB's), basically Greyhound buses, from complying with the ADA until 1996.
By that time, DOT was to come up with a decision on how OTRB's would satisfy the ADA.
In the meanwhile, OTA was commissioned to look into the matter and supply DOT with an
assessment of the cost as well as a recommendation for implantation.
In their report, OTA supported making all new OTRB's accessible. The OTA report was
subsequently sent to DOT and later disseminated among the Assistant Secretaries for full
consideration and comment. Those comments were than sent to the Secretary for a decision.
Word has it that Secretary Pena agrees with OTA's recommendations and will approve them
with one exception. DOT would like to see the subsidies marked in the National Highway
Systems Bill go through -- they just passed in the House. If they go through, Pena is
expected to back OTA's recommendations
ADA EVENT WITH THE PRESIDENT
As you know, transportation is an intrinsic part of Title II of the ADA. Its importance rests
in the fact that it insures independence for people with physical disabilities.
Agreeing with and supporting the disability community by requiring OTRB accessibility,
while continuing to otherwise implement the ADA -- as we have begun to do here in the
White House -- would solidify our relationship with this constituency while strengthening
our bond of support.
An announcement of this magnitude would be historic and would set a strong precedence for
the Administration's support of the ADA. It would cement a much needed relationship with
the disability community, and we would be supplying them with a victory Bush was unable to
win.
ADA EVENT WITH THE VICE PRESIDENT
In addition, Vice President Gore's co-sponsorship of the ADA as a Senator makes him an
important asset of this day's events. Considering his work on the NII and the NII's
importance to people with disabilities, I thought he should do a separate telecommunications
event after the President's.
The theme; "A White House Accessible To All People" would give the Vice President the
forum to show off the accessible forms of telecommunications products that will be available
to insure compliance with Title IV of the ADA; while, once again, showing the
Administration's support of the ADA.
RECOMMENDATIONS
Ensure that DOT supports OTA's recommendations.
Primary Event: An announcement by the President with Secretary Pena of the
Administration's support of OTRB accessibility.
Secondary Event: A demonstration by the Vice President of NII accessibility.