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5-20-96 Ryan White Bill Signing White House
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5-20-96 Ryan White Bill Signing White House
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James (Terry) Edmonds' Files
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FOIA Number: 2006-0462-F
FOIA
MARKER
This is not a textual record. This is used as an
administrative marker by the William J. Clinton
Presidential Library Staff.
Collection/Record Group:
Clinton Presidential Records
Subgroup/Office of Origin:
Speechwriting
Series/Staff Member:
Terry Edmonds
Subseries:
OA/ID Number:
10985
FolderID:
Folder Title:
5-20-96 Ryan White Bill Signing White House
Stack:
Row:
Section:
Shelf:
Position:
S
0
0
0
0
Withdrawal/Redaction Sheet
Clinton Library
DOCUMENT NO.
SUBJECT/TITLE
DATE
RESTRICTION
AND TYPE
001. schedule
Cover Sheet for Schedule (1 page)
05/20/96
P6/b(6)
002. fax
To Richard Sorian from Terry Edmonds (partial) (1 page)
nd
P6/b(6)
COLLECTION:
Clinton Presidential Records
Speechwriting
Terry Edmonds
OA/Box Number: 10985
FOLDER TITLE:
5-20-96 Ryan White Bill Signing White House
2006-0462-F
ry649
RESTRICTION CODES
Presidential Records Act - |44 U.S.C. 2204(a)]
Freedom of Information Act - [5 U.S.C. 552(b)]
P1 National Security Classified Information [(a)(1) of the PRAJ
b(1) National security classified information [(b)(1) of the FOIA]
P2 Relating to the appointment to Federal office |(a)(2) of the PRA]
b(2) Release would disclose internal personnel rules and practices of
P3 Release would violate a Federal statute |(a)(3) of the PRA]
an agency [(b)(2) of the FOIA]
P4 Release would disclose trade secrets or confidential commercial or
b(3) Release would violate a Federal statute |(b)(3) of the FOIA]
financial information [(a)(4) of the PRA]
b(4) Release would disclose trade secrets or confidential or financial
P5 Release would disclose confidential advice between the President
information [(b)(4) of the FOIA]
and his advisors, or between such advisors [a)(5) of the PRA]
b(6) Release would constitute a clearly unwarranted invasion of
P6 Release would constitute a clearly unwarranted invasion of
personal privacy [(b)(6) of the FOIA]
personal privacy |(a)(6) of the PRAJ
b(7) Release would disclose information compiled for law enforcement
purposes [(b)(7) of the FOIA]
C. Closed in accordance with restrictions contained in donor's deed
b(8) Release would disclose information concerning the regulation of
of gift.
financial institutions [(b)(8) of the FOIA]
PRM. Personal record misfile defined in accordance with 44 U.S.C.
b(9) Release would disclose geological or geophysical information
2201(3).
concerning wells [(b)(9) of the FOIA|
RR. Document will be reviewed upon request.
PRESIDENT WILLIAM J. CLINTON
RYAN WHITE BILL SIGNING
THE WHITE HOUSE
MAY 20, 1996
Good morning. Today, I am pleased to sign legislation to continue the Ryan White
CARE Act for the next five years. But before I do, I want to thank Secretary Donna
Shalala, who is in Geneva; AIDS Policy Director, Patsy Fleming; the members of Congress
who are here today; Senator Ted Kennedy who could not be with us today, but who has been
a leader on this issue; and the dozens of organizations represented in this room today, who
are on the front lines of this struggle.
Finally, I want to thank Jeanne [JEANNIE] White for standing with me today. Your
son was an American hero. He taught the truth about AIDS. And he helped people all over
the world to understand that people with AIDS deserve, not only the best medical care
available, but also our compassion and our love. For that, we are all eternally grateful.
It is hard to believe but AIDS has been with us now for almost two decades. In that
time, more than half a million Americans have been diagnosed with AIDS and more than
300,000 of our sisters and brothers have died. AIDS has taken too many friends and loved
ones from every one of us in this room. It has shaken the faith of many, but it has also
inspired a remarkable community spirit, as evidenced by your presence here today.
The truth is, we are not powerless in the face of this challenge. Look how far we
have come. At one time we thought of AIDS as the end of life and the death of hope. But,
today, through the twin miracles of science and spirit, we have made great progress. People
are living longer. Infection rates are going down among a number of previously high-risk
groups. And there is hope for a cure.
We now know that AIDS affects all Americans. Every person with HIV or AIDS is
somebody's son or daughter, somebody's brother or sister, somebody's parent or
grandparent. We cannot allow discrimination of any kind to blind us to what we must do.
The Ryan White CARE Act has been a big part of our progress. Since it became law
in 1990, this bill has helped hundreds of thousands of people get the care they need in clinics
and doctors' offices. It has kept people out of hospitals so they could be cared for at home
surrounded by family and loved ones. And it has paid for the growing assortment of
promising drugs that are helping so many people with AIDS live longer and healthier lives.
I am proud that our FDA has speeded up the approval of these new drugs.
As I sign this legislation, I am pleased to announce that today the Department of
Health and Human Services has awarded $350 million in funds authorized under this bill to
all 50 states and 49 U.S. cities. We are also making available another $52 million to help
more people with AIDS get the drugs they need. And this legislation will help states
1
capitalize on a recent medical breakthrough -- we now know that with voluntary testing and
the use of AZT, we can prevent HIV transmission from a pregnant mother to her child. It is
estimated that we can end this tragic form of transmission by the end of the century. It is
our job to make it happen.
But even as we celebrate our progress, we should not forget that this fight is not over.
We must do more to stop the rising tide of infection among women, communities of color
and young people -- particularly young, gay men. Until there is a cure, we cannot, and we
must not rest.
In his autobiography, Ryan White described himself as "just another kid from
Kokomo." We all know he was more than that. He taught a nation to care instead of hate;
to embrace people living with AIDS as part of our American family; to always extend the
hand of hope.
The legislation I am signing today offers that hope for another five years. Let us all
pray that no President will ever need to sign another bill because we will have found a cure
for AIDS and a vaccine to protect every American.
Thank you.
2
PRESIDENT WILLIAM J. CLINTON
RYAN WHITE BILL SIGNING
THE WHITE HOUSE
MAY 20, 1996
Good morning. Today, I am pleased to sign legislation to continue the Ryan White
CARE Act for the next five years. But before I do, I want to thank Secretary Donna
Shalala, who is in Geneva; AIDS Policy Director, Patsy Fleming; the members of Congress
who are here today; Senator Ted Kennedy who could not be with us today, but who has been
a leader on this issue; and the dozens of organizations represented in this room today, who
are on the front lines of this struggle.
Finally, I want to thank Jeanne [JEANNIE] White for standing with me today. Your
son was an American hero. He taught the truth about AIDS. And he helped people all over
the world to understand that people with AIDS deserve, not only the best medical care
available, but also our compassion and our love. For that, we are all eternally grateful.
It is hard to believe-but AIDS has been with us now for almost two decades. In that
time, more than half a million Americans have been diagnosed with AIDS and more than
300,000 of our sisters and brothers have died. AIDS has taken too many friends and loved
ones from every one of us in this room. It has shaken the faith of many, but it has also
inspired a remarkable community spirit, as evidenced by your presence here today.
The truth is, we are not powerless in the face of this challenge. Look how far we
have come. At one time we thought of AIDS as the end of life and the death of hope. But,
today, through the twin miracles of science and spirit, we have made great progress. People
are living longer. Infection rates are going down among a number of previously high-risk
groups. And there is hope for a cure.
We now know that AIDS affects all Americans. Every person with HIV or AIDS is
somebody's son or daughter, somebody's brother or sister, somebody's parent or
grandparent. We cannot allow discrimination of any kind to blind us to what we must do.
The Ryan White CARE Act has been a big part of our progress. Since it became law
in 1990, this bill has helped hundreds of thousands of people get the care they need in clinics
and doctors' offices. It has kept people out of hospitals so they could be cared for at home
surrounded by family and loved ones. And it has paid for the growing assortment of
promising drugs that are helping so many people with AIDS live longer and healthier lives.
I am proud that our FDA has speeded up the approval of these new drugs.
As I sign this legislation, I am pleased to announce that today the Department of
Health and Human Services has awarded $350 million in funds authorized under this bill to
all 50 states and 49 U.S. cities. We are also making available another $52 million to help
more people with AIDS get the drugs they need. And this legislation will help states
1
capitalize on a recent medical breakthrough -- we now know that with voluntary testing and
the use of AZT, we can prevent HIV transmission from a pregnant mother to her child. It is
estimated that we can end this tragic form of transmission by the end of the century. It is
our job to make it happen.
But even as we celebrate our progress, we should not forget that this fight is not over.
We must do more to stop the rising tide of infection among women, communities of color
and young people -- particularly young, gay men. Until there is a cure, we cannot, and we
must not rest.
In his autobiography, Ryan White described himself as "just another kid from
Kokomo." We all know he was more than that. He taught a nation to care instead of hate;
to embrace people living with AIDS as part of our American family; to always extend the
hand of hope.
The legislation I am signing today offers that hope for another five years. Let us all
pray that no President will ever need to sign another bill because we will have found a cure
for AIDS and a vaccine to protect every American.
Thank you.
2
PRESIDENT WILLIAM J. CLINTON
RYAN WHITE BILL SIGNING
THE WHITE HOUSE
MAY 20, 1996
Good morning. Today, I am pleased to sign legislation to continue the Ryan White
CARE Act for the next five years. But before I do, I want to thank Secretary Donna
Shalala, who is in Geneva; AIDS Policy Director, Patsy Fleming; the members of Congress
who are here today; Senator Ted Kennedy who could not be with us today, but who has been
a leader on this issue; and the dozens of organizations represented in this room today, who
are on the front lines of this struggle.
Finally, I want to thank Jeanne [JEANNIE] White for standing with me today. Your
son was an American hero. He taught the truth about AIDS. And he helped people all over
the world to understand that people with AIDS deserve, not only the best medical care
available, but also our compassion and our love. For that, we are all eternally grateful.
It is hard to believe but AIDS has been with us now for almost two decades. In that
time, more than half a million Americans have been diagnosed with AIDS and more than
300,000 of our sisters and brothers have died. AIDS has taken too many friends and loved
ones from every one of us in this room. It has shaken the faith of many, but it has also
inspired a remarkable community spirit, as evidenced by your presence here today.
The truth is, we are not powerless in the face of this challenge. Look how far we
have come. At one time we thought of AIDS as the end of life and the death of hope. But,
today, through the twin miracles of science and spirit, we have made great progress. People
are living longer. Infection rates are going down among a number of previously high-risk
groups. And there is hope for a cure.
We now know that AIDS affects all Americans. Every person with HIV or AIDS is
somebody's son or daughter, somebody's brother or sister, somebody's parent or
grandparent. We cannot allow discrimination of any kind to blind us to what we must do.
The Ryan White CARE Act has been a big part of our progress. Since it became law
in 1990, this bill has helped hundreds of thousands of people get the care they need in clinics
and doctors' offices. It has kept people out of hospitals so they could be cared for at home
surrounded by family and loved ones. And it has paid for the growing assortment of
promising drugs that are helping so many people with AIDS live longer and healthier lives.
I am proud that our FDA has speeded up the approval of these new drugs.
As I sign this legislation, I am pleased to announce that today the Department of
Health and Human Services has awarded $350 million in funds authorized under this bill to
all 50 states and 49 U.S. cities. We are also making available another $52 million to help
more people with AIDS get the drugs they need. And this legislation will help states
1
capitalize on a recent medical breakthrough -- we now know that with voluntary testing and
the use of AZT, we can prevent HIV transmission from a pregnant mother to her child. It is
estimated that we can end this tragic form of transmission by the end of the century. It is
our job to make it happen.
But even as we celebrate our progress, we should not forget that this fight is not over.
We must do more to stop the rising tide of infection among women, communities of color
and young people -- particularly young, gay men. Until there is a cure, we cannot, and we
must not rest.
In his autobiography, Ryan White described himself as "just another kid from
Kokomo." We all know he was more than that. He taught a nation to care instead of hate;
to embrace people living with AIDS as part of our American family; to always extend the
hand of hope.
The legislation I am signing today offers that hope for another five years. Let us all
pray that no President will ever need to sign another bill because we will have found a cure
for AIDS and a vaccine to protect every American.
Thank you.
2
PRESIDENT WILLIAM J. CLINTON
RYAN WHITE BILL SIGNING
THE WHITE HOUSE
MAY 20, 1996
Good morning. Today, I am pleased to sign legislation to continue the Ryan White
CARE Act for the next five years. But before I do, I want to thank Secretary Donna
Shalala, who is in Geneva; AIDS Policy Director, Patsy Fleming; the members of Congress
who are here today; Senator Ted Kennedy who could not be with us today, but who has been
a leader on this issue; and the dozens of organizations represented in this room today, who
are on the front lines of this struggle.
Finally, I want to thank Jeanne [JEANNIE] White for standing with me today. Your
son was an American hero. He taught the truth about AIDS. And he helped people all over
the world to understand that people with AIDS deserve, not only the best medical care
available, but also our compassion and our love. For that, we are all eternally grateful.
It is hard to believe but AIDS has been with us now for almost two decades. In that
time, more than half a million Americans have been diagnosed with AIDS and more than
300,000 of our sisters and brothers have died. AIDS has taken too many friends and loved
ones from every one of us in this room. It has shaken the faith of many, but it has also
inspired a remarkable community spirit, as evidenced by your presence here today.
The truth is, we are not powerless in the face of this challenge. Look how far we
have come. At one time we thought of AIDS as the end of life and the death of hope. But,
today, through the twin miracles of science and spirit, we have made great progress. People
are living longer. Infection rates are going down among a number of previously high-risk
groups. And there is hope for a cure.
We now know that AIDS affects all Americans. Every person with HIV or AIDS is
somebody's son or daughter, somebody's brother or sister, somebody's parent or
grandparent. We cannot allow discrimination of any kind to blind us to what we must do.
The Ryan White CARE Act has been a big part of our progress. Since it became law
in 1990, this bill has helped hundreds of thousands of people get the care they need in clinics
and doctors' offices. It has kept people out of hospitals so they could be cared for at home
surrounded by family and loved ones. And it has paid for the growing assortment of
promising drugs that are helping so many people with AIDS live longer and healthier lives.
I am proud that our FDA has speeded up the approval of these new drugs.
As I sign this legislation, I am pleased to announce that today the Department of
Health and Human Services has awarded $350 million in funds authorized under this bill to
all 50 states and 49 U.S. cities. We are also making available another $52 million to help
more people with AIDS get the drugs they need. And this legislation will help states
1
capitalize on a recent medical breakthrough -- we now know that with voluntary testing and
the use of AZT, we can prevent HIV transmission from a pregnant mother to her child. It is
estimated that we can end this tragic form of transmission by the end of the century. It is
our job to make it happen.
But even as we celebrate our progress, we should not forget that this fight is not over.
We must do more to stop the rising tide of infection among women, communities of color
and young people -- particularly young, gay men. Until there is a cure, we cannot, and we
must not rest.
In his autobiography, Ryan White described himself as "just another kid from
Kokomo." We all know he was more than that. He taught a nation to care instead of hate;
to embrace people living with AIDS as part of our American family; to always extend the
hand of hope.
The legislation I am signing today offers that hope for another five years. Let us all
pray that no President will ever need to sign another bill because we will have found a cure
for AIDS and a vaccine to protect every American.
Thank you.
2
May 1996
*
Presidential Calendar
Sunday
Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
2
3
4
April
June
Champiras in Ltfo" Olympic Event
Maraing Coffee
Meeting w/ See Perry & CINCS
Live Radio Address
SMTWIFS
M
Meeting - Arafit
Memorial Service
Down For Day BL Evening @ HERO
Tapings
1 1 , 4 ,
DNC Afternoon Coffee
VP Lanch
am
Hold For Family There
to
"
13
" 03 " 13
Tea w Billy & Roth Gradum
Product Liability Vato Event
WH Correspondent's Disness
M 19 % IT n BY 20
16
(7
18
5
20
n
"
WH Reception For 25th Amily. of
Congressional Meeting
21 21 23 u 28 26 n
13 24 29 26 " ID "
Wolf Tap
White House Movie a Reception
28 29 X
30
IV Olymple Dianer, Off Complex
Dinner Henoring Billy Graham
Guard COMMER (D)
5
6
7
8
9
10
II
Cinco de Mayo
Day on
DNC Coffee
Ph. & ONL (9.00 - 12:30 pm)
Greek State Visa
Presentation of the Commander in
Day X Evening ON
Day BY Evening OH
Hold For Family Time (sitemoon)
NEW JERSEY TRAVEL
Foreign Policy Meeting " hour)
Mreting w/ Director Deutch
Chiefs Trophy
"In Performance @ the White House"
TORRICELLI DINNER, N/
VP Lunch
Congressional Meeting
Tape Radio Address
AFTERNOON COFFEE
Penn State Commencement Address
DNC GALA
Saxephone Club
DC. INE NC Primaries
12
13
14
15
16
17
18
Mother's Day
DNC Coffee
MORNING COFFEE
Conference Call w/ Mayors
Corporate Responsibility Breakfast @
DNC Coffee
Armed Forces Day
Day dk Evening Off
Gangs Event
DNC LUNCH, OFF COMPLEX
Interview w/ USA Today
wa
Megan's Law Bill Signing
Day & Evening Off
Hold For Family Time
VP Meeting
DC Certinunity Leaders
Peace Officer's Memorial (12:45 pm.
Corporate Responsibility EVENT DC
Tape Radio Address
Military & PPD Department (30 min)
Washington Post Interview (E.J.
1:45 pon)
Drop By Inter-Asserican Dislogue
Public Event, MO
! ONC DINVERS, OFF COMPLEX
Dianne)
Down For Day @ 2:00 pen
Dinner. DC
Drop By NAACP Legal Defense
Gephardit Dianer. MD.
Hold Evening
Fund Reception, DC
SW Voter Dinner. DC
NE WV Frimaries
19
20
21
22
23
24
25
Day e Evening on
Bill Signing
DNC Coffee
Commencement Address # US Coast
Was king Meeting bancelled KOHL
Hold Day
Live Radio Address
Hold For Family Time
Remarks to Pacific Basin Economic
Memorial Service (T)
Guard Academy, New London, CT
Wisconsin (lan)
Evening Off
Council. DC
DNC LUNCH @ WH
Intrepid Event, NYC
Hold Evening For Family Time
VP Meeting
Interview
DNC Fundraiser, Standford CT
DNC WH Lunch
Speech Prep
RON Wisconsin
Photo w/ NCAA Baskerball
DNC Dinner. on Complex
Champions
Gov. Dean Fundraiser, DC
DNC Jewish Dinner, DC
Arkaniss Primary
26
27
28
29
30
31
Day & Evenue on
Memorial Day Observed
ave Coffee
Murting Coffee
New Orleans, LA
may at Events on
Veterar's Events Artington, VA
Meeting of the President's Council on
Blue Ribbon Schools Event
Daton Rouge LA
Evening Off
Commer Narcotics
Meeting w/ Democratic Governors
RON WH
VP Lanch
Meeting w/ Gav. Caperton (10 min)
Videos
Office Photo Ops
WII Hispanic Reception
Hold Evening
id (R) & Ky Funnance
Printed on Friday, May 17, 1996 11:15 AM
Withdrawal/Redaction Marker
Clinton Library
DOCUMENT NO.
SUBJECT/TITLE
DATE
RESTRICTION
AND TYPE
001. schedule
Cover Sheet for Schedule (1 page)
05/20/96
P6/b(6)
COLLECTION:
Clinton Presidential Records
Speechwriting
Terry Edmonds
OA/Box Number: 10985
FOLDER TITLE:
5-20-96 Ryan White Bill Signing White House
2006-0462-F
ry649
RESTRICTION CODES
Presidential Records Act - [44 U.S.C. 2204(a)]
Freedom of Information Act - [5 U.S.C. 552(b)]
PI National Security Classified Information [(a)(1) of the PRA]
b(1) National security classified information [(b)(1) of the FOIA]
P2 Relating to the appointment to Federal office [(a)(2) of the PRA]
b(2) Release would disclose internal personnel rules and practices of
P3 Release would violate a Federal statute [(a)(3) of the PRA]
an agency [(b)(2) of the FOIA]
P4 Release would disclose trade secrets or confidential commercial or
b(3) Release would violate a Federal statute [(b)(3) of the FOIA]
financial information [(a)(4) of the PRAJ
b(4) Release would disclose trade secrets or confidential or financial
P5 Release would disclose confidential advice between the President
information [(b)(4) of the FOIA]
and his advisors, or between such advisors a)(5) of the PRA]
b(6) Release would constitute a clearly unwarranted invasion of
P6 Release would constitute a clearly unwarranted invasion of
personal privacy |(b)(6) of the FOIA]
personal privacy [(a)(6) of the PRA]
b(7) Release would disclose information compiled for law enforcement
purposes [(b)(7) of the FOIA]
C. Closed in accordance with restrictions contained in donor's deed
b(8) Release would disclose information concerning the regulation of
of gift.
financial institutions [(b)(8) of the FOIA]
PRM. Personal record misfile defined in accordance with 44 U.S.C.
b(9) Release would disclose geological or geophysical information
2201(3).
concerning wells [(b)(9) of the FOIA]
RR. Document will be reviewed upon request.
FKI ZI: 45 FAX
D-BAER
SCHEDULE OF THE PRESIDENT
FOR
MONDAY, MAY 20, 1996
FINAL
tba
MORNING RUN
9:00 am-
MEETING
9:15 am
OVAL OFFICE
Staff Contact: Leon Panetta
9:15 am-
BRIEFING
9:30 am
OVAL OFFICE
Staff Contact: Tony Lake
9:35 am-
BRIEFING
9:45 am
OVAL OFFICE
Staff Contact: Laura Tyson
9:50 am
THE PRESIDENT departs the White House via motorcade en route
Constitution Hall
[drive time: 5 minutes]
9:55 am
THE PRESIDENT arrives Constitution Hall
Greeters:
Russell Finmore, Chairman, Pacific Basin
Economic Council
Gary Tooker, Incoming Chairman, Pacific Basin
Economic Council, Chairman and CEO,
Motorola Company
10:00 am-
REMARKS TO THE PACIFIC BASIN ECONOMIC COUNCIL
10:50 am
CONSTITUTION HALL
Remarks: Vinca Showalter
Staff Contact: Laura Tyson
Event Coordinator: Lucie Naphin
OPEN PRESS
-
Off-stage announcement of the President, accompanied by
Russell Finmore, Chairman, Pacific Basin Economic Council.
-
Russell Finmore makes remarks and introduces the President.
-
The President makes remarks.
- of May 17, 1996 7:00pm
HKI
21:48
FAX
DDD BAER
4008
Upon conclusion of remarks, the President works a ropeline
and departs.
10:55 am
THE PRESIDENT departs Constitution Hall via motorcade en route
the White House
[drive time: S minutes]
11:00 am
THE PRESIDENT arrives the White House
11:05 am-
BRIEFING
11:15 am
OVAL OFFICE
Staff Contact: John Hilley
11:20 am-
BILL SIGNING CEREMONY FOR THE RYAN WHITE
11:45 am
RE-AUTHORIZATION ACT OF 1996
ROOSEVELT ROOM
Remarks: Terry Edmonds
Staff Contact: John Hilley
Event Coordinator: Nicole Elkon
POOL PRESS
-
The President, accompanied by Jeanie White, enters the
Roosevelt Room and proceeds to the podium.
-
The President makes a statement.
--
The President signs the bill.
-
The President shakes hands and departs.
12:00 pm-
LUNCH WITH VICE PRESIDENT GORE
1:00 pm
OVAL OFFICE
1:15 pm-
LUNCH
2:15 pm
BLUE ROOM
Staff Contact: Doug Sosnik, Ann Stock
2:15 pm-
PHONE/OFFICE TIME
5:05 pm
OVAL OFFICE
5:10 pm-
BRIEFING
5:15 pm
OVAL OFFICE
Staff Contact: Kitty Higgins
a of May 17, 1996 7:00pm
5:15 pm
CONFERENCE CALL WITH WAYNE COUNTY
5:25 pm
OFFICIALS ON AIRPORT EXPANSION
OVAL OFFICE
Remarks: Gabrielle Bushman
Staff Contact: Kitty Higgins
CLOSED PRESS (Oval Office)
OPEN PRESS (Detroit)
5:30 pm-
OFFICIAL PHOTOS WITH THE 1995 - 1996 MEN'S
6:10 pm
AND WOMEN'S NCAA BASKETBALL CHAMPIONS
EAST ROOM
Remarks: Russell Horwitz
Staff Contact: Alexis Herman
Event Coordinator: Sarah Farnsworth
OPEN PRESS
-
The President and the Vice President arrive in the Green
Room for an event briefing.
-
The President and the Vice President are announced into the
East Room and proceed to the stage.
-
The Vice President makes welcoming remarks and introduces
the President.
-
The President makes remarks and introduces Pat Summitt,
Coach, University of Tennessee women's basketball team and
Rick Pitino, Coach, University of Kentucky men's basketball
team.
-
Pat Summitt makes remarks and invites Michelle Marcinik,
player, University of Tennessee women's baskerball team and
Latina Davis, player, University of Tennessee women's
basketball team, to present the President with a gift.
-
Rick Pitino makes remarks and invites Mark Pope, University
of Kentucky men's basketball team, to present the President
with a gift.
-
The President and the Vice President pose for a group
photograph with each team.
-
The President and the Vice President proceed to the Blue
Room for 1 receiving line.
Upon conclusion of the receiving line, the President and the
Vice President depart.
as of May 17. 1925 7:00pm
DEBAER
6:20 pm
THE PRESIDENT departs the White House via motorcade en route
the Washington Court Hotel
[drive time: 10 minutes]
6:30 pm
THE PRESIDENT arrives the Washington Court Hotel
Greeters:
Governor Howard Dean
Governor Gaston Caperton
6:35 pm-
RECEPTION FOR GOVERNOR DEAN
6:55 pm
MONTPELIER ROOM
The Washington Court Hotel
Staff Contact: Doug Sosnik
Event Coordinator: Laura Graham
CLOSED PRESS
-
The President does a photo receiving line.
7:00 pm-
DINNER FOR GOVERNOR HOWARD DEAN
7:30 pm
ATRIUM BALLROOM
The Washington Court Hotel
Remarks: Jordan Tamagni
Staff Contact: Doug Sosnik
Event Coordinator: Laura Graham
CLOSED PRESS
Off-stage announcement of the President, accompanied by
Governor Howard Dean and Governor Gaston Caperton.
Governor Gaston Caperton makes welcoming remarks and
introduces Governor Howard Dean.
-
Governor Howard Dean makes remarks and introduces the
President.
-
The President makes remarks.
-
Upon conclusion of remarks, the President works a ropeline
and departs.
7:35 pm
THE PRESIDENT departs the Washington Court Hotel via
motorcade en route the Jefferson Hotel
[drive time: 5 minutes]
a of May 17, 1935 7:13pm
DDC I BACK
7:40 pm
THE PRESIDENT arrives the Jefferson Hotel
Greeters:
Don Fowler, Chairman, Democratic National
Committee
Marvin Rosen, Finance Chair, Democratic National
Committee
Stan and Sydney Shuman
Ann Marie Fowler, Catering Manager, Jefferson
Hotel
7:45 pm-
DINNER FOR DEMOCRATIC NATIONAL COMMITTEE
8:45 pm
MONTICELLO ROOM
The Jefferson Hotel
Staff Contact: Doug Sosnik
Event Coordinator: Lucie Naphin
CLOSED PRESS
-
The President, accompanied by Don Fowler, Chairman,
Democratic National Committee, Marvin Rosen, Finance
Chair, Democratic National Committee, Stan Shuman and
Sydney Shuman, enters the room, greets guests and proceeds
to his seat at the table.
-
Don Fowler makes welcoming remarks and introduces Stan
Shuman.
-
Stan Shuman makes remarks and introduces the President.
-
The President makes remarks and opens an informal
discussion with guests.
--
Upon conclusion of the discussion, the President departs.
8:50 pm
THE PRESIDENT departs the Jefferson Hotel via motorcade en route
the White House
[drive time: 10 minutes]
9:00 pm
THE PRESIDENT arrives the White House
BC AND HRC RON
THE WHITE HOUSE
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OFFICE OF NATIONAL AIDS POLICY
EXECUTIVE OFFICE OF THE PRESIDENT
750 17th Street, N.W.
Washington, DC 20503
Phone: 202-632-1090
Fax: 202-632-1096
FACSIMILE COVER SHEET
TO: Terry Edmonds
FAX NUMBER: 456-5709
FROM: Richard Sorian
DATE: 5/19/96
PAGES INCLUDING COVER SHEET: 4
COMMENTS:
Terry, these are our comments. I have tried to differentiate between
things we have to have versus things we would like to have. The
former are indicated by the use of the word "should." The latter are
indicated by the use of the word "could." Let me know if you have
any other questions.
Thanks!
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05/17/96 09:46
002
Card 9
DRAFT
Card1
PRESIDENT WILLIAM J. CLINTON
RYAN WHITE BILL SIGNING
Cards
THE WHITE HOUSE
MAY 20, 1996
Good morning. Today, I am pleased to sign legislation to continue the Ryan White
?
CARE Act for the next five years. But before I do, I want to thank Secretary Donna
Chillity, who is in Geneva; AIDS Policy Director, Patsy Fleming; the members of Congress
who are here today: Senator Ted Kennedy who could not be with us today, but who has been
a leader on this issue; and the dozens of organizations represented in this room today, who
are on the front lines of this struggle.
Finally. I want to thank Jeanne [JEANNIE] White for standing with me today. Your
son was an American hero. He taught the truth about AIDS. And he helped people all over
the world to understand that people with AIDS deserve, not only the best medical care
available, but also our compassion and our love. For that, we are all eternally grateful.
have been diagnosed
It is hard to believe but AIDS has been with us now for almost two decades. Today,
Ln that time,
more than half a million Americans are with AIDS and more than 300,000 of our
sisters and brothers have died. AIDS has taken too many friends and loved ones from every
one of us in this room. It has shaken the faith of many, but it has also inspired a remarkable
community spirit, as evidenced by your presence here today.
The truth is, we are not powerless in the face of this challenge. Look how far we
have come. At one time we thought of AIDS as the end of life and the death of hope. But,
today, through the twin miracles of science and spirit, we have made great progress. People
are living longer. Infection rates are going down among a number of fore Hously high risk
groups. And there is hope for a cure we have also come B long way in our understanding
of who gets AIDS and how they get it.
We now know that AIDS affects all Americans. Every person with HIV or AIDS is
somebody's son or daughter, somebody's brother or sister, somebody's parent or
grandparent. We cannot allow discrimination of any kind against gays and lesbians, or
anyone to blind us to what we must do.
The Ryan White CARE Act has been a big part of our progress. Since 1990, this bill
has helped hundreds of thousands of people get the care they need in clinics and doctors'
offices. It has kept people out of hospitals so they could be cared for at home surrounded by
family and loved ones. And it has paid for the growing assortment of miracle drugs that are
helping so many people with AIDS live longer and healthier lives. I am proud that our FDA.
has speeded up the approval of these new drugs. to record times.
promising
As I sign this legislation, I am pleased to announce that today the Department of
Health and Human Services has awarded $350 million in funds authorized under this bill to
1
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05/17/98 09:47
003
all 50 states and 49 U.S. cities. We are also making available another $52 million to help more
people with AIDS get the drugs they need. And this legislation will help states capitalize on
a recent medical breakthrough - we now know that with voluntary testing and the use of
AZT, we can prevent HIV transmission from a pregnant mother to her child. This
legislation will help us get this life-saving information out to more women.
But even as we celebrate our progress, we should not forget that this fight is not over.
We must do more to stop the rising tide of infection among women, communities of color
and young people -- particularly young, gay men. Until there is a cure, we cannot, and we
must not rest.
In his autobiography, Ryan White described himself as "just another kid from
Kokomo." We all know he was more than that. He taught a nation to care instead of hate;
to embrace people living with AIDS as part of our American family; to always extend the
hand of hope.
The legislation I am signing today offers that hope for another five years. Let us all
pray that no President will ever need to sign another bill because we will have found a cure
for AIDS and a vaccine to protect every American.
Thank you.
2
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THE WHITE HOUSE
WASHINGTON
May 20, 1996
MEMORANDUM TO TERRY EDMONDS
FROM:
RICHARD SORIAN, OFFICE OF NATIONAL AIDS POLICY
SUBJECT: DRAFT RYAN WHITE SIGNING REMARKS
Thanks for giving us a look at the rewrite. It's excellent! We have only a few suggestions.
1st paragraph: Third sentence, I would suggest changing the spelling of the Secretary's
name from "Chillily" to "Shalala." She stopped using the old spelling last year.
3rd paragraph: The second sentence should read: "In that time, more than half a million
Americans have been diagnosed with AIDS and more than 300,000 of our sisters and
brothers have died."
4th paragraph: You should take out the words "previously high-risk" from the sixth
sentence.
The last sentence should be deleted.
6th paragraph: Second sentence should begin: "Since its enactment in 1990, TI
Fourth sentence: You could change "miracle" to "promising"
Sixth sentence could be amended by adding the words "in record time."
7th paragraph: Second sentence could be amended to say "We are also making available
another $52 million to help more people with AIDS get the drugs they need."
The language on mother-to-child transmission should be strengthened. How about adding
back the sentence you had in the last draft about "having the power to virtually end mother-
to-child transmission of HIV by the end of this century. It is our job to make that hope a
reality."
DRAFT
PRESIDENT WILLIAM J. CLINTON
RYAN WHITE BILL SIGNING
THE WHITE HOUSE
MAY 20, 1996
Good morning. Today, I am pleased to sign legislation to continue the Ryan White
CARE Act for the next five years. But before I do, I want to thank Secretary Donna
Chillily, who is in Geneva; AIDS Policy Director, Patsy Fleming; the members of Congress
who_are here today; Senator Ted Kennedy who could not be with us today, but who has been
a leader on this issue; and the dozens of organizations represented in this room today, who
are on the front lines of this struggle.
Finally, I want to thank Jeanne [JEANNIE] White for standing with me today. Your
son was an American hero. He taught the truth about AIDS. And he helped people all over
the world to understand that people with AIDS deserve, not only the best medical care
available, but also our compassion and our love. For that, we are all eternally grateful.
It is hard to believe but AIDS has been with us now for almost two decades. Today,
more than half a million Americans are living with AIDS and more than 300,000 of our
sisters and brothers have died. AIDS has taken too many friends and loved ones from every
one of us in this room. It has shaken the faith of many, but it has also inspired a remarkable
community spirit, as evidenced by your presence here today.
The truth is, we are not powerless in the face of this challenge. Look how far we
have come. At one time we thought of AIDS as the end of life and the death of hope. But,
today, through the twin miracles of science and spirit, we have made great progress. People
are living longer. Infection rates are going down among a number of previously high-risk
groups. And there is hope for a cure. We have also come a long way in our understanding
of who gets AIDS and how they get it.
We now know that AIDS affects all Americans. Every person with HIV or AIDS is
somebody's son or daughter, somebody's brother or sister, somebody's parent or
grandparent. We cannot allow discrimination of any kind against gays and lesbians, or
anyone -- to blind us to what we must do.
The Ryan White CARE Act has been a big part of our progress. Since 1990, this bill
has helped hundreds of thousands of people get the care they need in clinics and doctors'
offices. It has kept people out of hospitals so they could be cared for at home surrounded by
family and loved ones. And it has paid for the growing assortment of miracle drugs that are
helping so many people with AIDS live longer and healthier lives. I am proud that our FDA
has speeded up the approval of these new drugs.
As I sign this legislation, I am pleased to announce that today the Department of
Health and Human Services has awarded $350 million in funds authorized under this bill to
1
all 50 states and 49 U.S. cities. We are also making available another $52 million to help
people with AIDS get the drugs they need. And this legislation will help states capitalize on
a recent medical breakthrough -- we now know that with voluntary testing and the use of
AZT, we can prevent HIV transmission from a pregnant mother to her child. This
legislation will help us get this life-saving information out to more women.
But even as we celebrate our progress, we should not forget that this fight is not over.
We must do more to stop the rising tide of infection among women, communities of color
and young people -- particularly young, gay men. Until there is a cure, we cannot, and we
must not rest.
In his autobiography, Ryan White described himself as "just another kid from
Kokomo." We all know he was more than that. He taught a nation to care instead of hate;
to embrace people living with AIDS as part of our American family; to always extend the
hand of hope.
The legislation I am signing today offers that hope for another five years. Let us all
pray that no President will ever need to sign another bill because we will have found a cure
for AIDS and a vaccine to protect every American.
Thank you.
2
Richard 547-2855
babies from infection. We now have it in our power to virtually put an end to perinatal
transmission of HIV by the end of this century. This bill will help us accomplish that and
we must all apply ourselves to this critical task.
Finally, let me say to all of you, and to all Americans, if we continue to work
Aysed to
together, I am confident we will win this fight. Look at how far we have come. In the four
be
budgets I have submitted to the Congress, we have increased the Ryan White Care Act by
death
129 percent, bringing help to many thousands of Americans who would otherwise have
but
sentence
nowhere else to turn. We have also increased funding for AIDS-related research and
prevention. And we have fought discrimination against people living with HIV and AIDS on
new
every front. People are living longer. Infection rates are declining among a number of
their
previously high-risk groups. We are making progress. But we must do more -- particularly
is
to stop the rising rate of infection among women, communities of color, and young people
hope
especially young, gay men. Until there is a cure for AIDS, we cannot, and we will not rest.
fora
cure_
[AIDS affects all Americans men, women and children. For a long time,
discrimination, including homophobia, kept many people from getting the kind of care they
needed. This act goes a long way towards tearing down those barriers.]
No
shade
In his autobiography, Ryan White described himself as "just another kid from
be.
Kokomo." We all know he was more than that. He taught a nation to care instead of hate;
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discriment
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I am signing this legislation for Ryan, for Jeanne, and for the thousands and
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sexual
rededicate gurselves, to the fight ahead. And let us resolve to win.
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DOCUMENT NO.
SUBJECT/TITLE
DATE
RESTRICTION
AND TYPE
002. fax
To Richard Sorian from Terry Edmonds (partial) (1 page)
nd
P6/b(6)
COLLECTION:
Clinton Presidential Records
Speechwriting
Terry Edmonds
OA/Box Number: 10985
FOLDER TITLE:
5-20-96 Ryan White Bill Signing White House
2006-0462-F
ry649
RESTRICTION CODES
Presidential Records Act - |44 U.S.C. 2204(a)]
Freedom of Information Act - [5 U.S.C. 552(b)]
P1 National Security Classified Information [(a)(1) of the PRA|
b(1) National security classified information [(b)(1) of the FOIA]
P2 Relating to the appointment to Federal office [(a)(2) of the PRA|
b(2) Release would disclose internal personnel rules and practices of
P3 Release would violate a Federal statute |(a)(3) of the PRA]
an agency [(b)(2) of the FOIA]
P4 Release would disclose trade secrets or confidential commercial or
b(3) Release would violate a Federal statute [(b)(3) of the FOIA]
financial information |(a)(4) of the PRA]
b(4) Release would disclose trade secrets or confidential or financial
P5 Release would disclose confidential advice between the President
information [(b)(4) of the FOIA]
and his advisors, or between such advisors |a)(5) of the PRA]
b(6) Release would constitute a clearly unwarranted invasion of
P6 Release would constitute a clearly unwarranted invasion of
personal privacy |(b)(6) of the FOIA]
personal privacy [(a)(6) of the PRA]
b(7) Release would disclose information compiled for law enforcement
purposes [(b)(7) of the FOIA]
C. Closed in accordance with restrictions contained in donor's deed
b(8) Release would disclose information concerning the regulation of
of gift.
financial institutions |(b)(8) of the FOIA]
PRM. Personal record misfile defined in accordance with 44 U.S.C.
b(9) Release would disclose geological or geophysical information
2201(3).
concerning wells [(b)(9) of the FOIA|
RR. Document will be reviewed upon request.
THE WHITE HOUSE
WASHINGTON
OFFICE OF
SPEECHWRITING
PHONE: (202) 456-2777
FAX: (202) 456-5709
TO:
Richard Sorian
FROM:
Terry 632-1096 Edmonds
RECEIVER FAX:
RECEIVER PHONE:
NUMBER OF PAGES (INCLUDING COVER SHEET):
3
COMMENTS: Please get back to me by
8:30 monday morning if you have
home at
any comments. / Can be reached at
(b)(6)
Than Ks, [002]
Terry
***WARNING***
Unauthorized use of these materials is subject to federal prosecution
THE WHITE HOUSE
WASHINGTON
OFFICE OF
SPEECHWRITING
PHONE: (202) 456-2777
FAX: (202) 456-5709
TO:
Kevin Thurm
FROM:
Terry Edmonds
RECEIVER FAX:
690 7755 7203
RECEIVER PHONE:
NUMBER OF PAGES (INCLUDING COVER SHEET): 4
COMMENTS:
***WARNING***
Unauthorized use of these materials is subject to federal prosecution
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OFFICE OF NATIONAL AIDS POLICY
EXECUTIVE OFFICE OF THE PRESIDENT
750 17th Street, N.W.
Washington, DC 20503
Phone: 202-632-1090
Fax: 202-632-1096
FACSIMILE COVER SHEET
TO: Terry Edmonds
FAX NUMBER: 456-5709
FROM: Richard Sorian
DATE: 5/17/96
PAGES INCLUDING COVER SHEET: 2
COMMENTS:
Thanks again for your great work!
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Suggested language for RWCA signing statement:
I am very pleased to announce that today, the Department of Health and Human Services has
awarded nearly $450 million in funds authorized under this bill to all 50 states and 49 U.S.
cities. We have also announced the availability of another $52 million in funding for AIDS
drug assistance programs. This money is a lifeline of support for thousands of men, women,
and children across this country who struggle, day to day, with the virus in their bodies.
6-
Kevin
EE19 2069
EXECUTIVE OFFICE OF THE PRESIDENT
17-May-1996 04:30pm
TO:
Michael Waldman
FROM:
Jeremy D. Benami
Domestic Policy Council
CC:
James T. Edmonds
SUBJECT:
Ryan White remarks
The draft remarks from Terry look good. I understand there is
some concern they may be too long. I just wanted to make sure you
knew that there is no other program for the signing - no other
speakers. So we have the audience and the members here for just
the POTUS remarks. I would urge erring on the side of an extra
minute or two of remarks from him since the whole thing will be
rather short.
Thanks.
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2
otherwise have nowhere else to turn. We have increased funding for AIDS-related research
and prevention and fought discrimination against people living with HIV and AIDS on every
front.
Just today, seven American cities (Cleveland/Lorain/Blyria OH; Fort Worth/Arlington TX;
Hartford CT; Middlesex/Somerset/Hunterdon NJ; Minneapolis/St. Paul MN; Sacramento
CA; and San Jose CA) were added to the list of metropolitan areas receiving assistance under
this Act. That brings the total number of communities receiving direct assistance under this
Act to 49. Over the last three years, the number of cities eligible for Ryan White CARE Act
funding has nearly doubled. That is a somber reflection of an epidemic that continues to
grow.
Six years ago, when this law was first enacted, 161,000 Americans had been diagnosed with
AIDS and 100,000 men, women, and children had already lost their lives. Today, those
numbers are much, much greater. In December, the Centers for Disease Control and
Prevention reported that more than half a million Americans have been diagnosed with AIDS
and more than 300,000 of our sisters and brothers have died. So, clearly the need is much
greater than it was before.
The Ryan White CARE Act has provided hundreds of thousands of Americans with care that
improves the length and quality of their lives. It delivers primary care to those who are
living with HIV or AIDS who are either uninsured or do not have sufficient insurance to
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3
cover the costs of their care. The CARE Act keeps people with AIDS out of the hospital
and at home with their families and loved ones. Without the Ryan White CARE Act, people
with AIDS often would be adrift in a world filled with immediate threats to their health and
their lives. The CARE Act reaches out a hand of hope to people with HIV and AIDS and
their families.
Before the Ryan White CARE Act was enacted in 1990, our health care infrastructure was
crumbling under the weight of costly illnesses. States, cities, and individual families were
struggling to cope with the rising and unmet demand for care. Hospital emergency rooms
were crowded with people living with AIDS who, because of their lack of coverage, had no
other choice.
The Ryan White CARE Act provides us with a model of care that should be emulated in
other parts of our health care system. Its emphasis on outpatient care and prevention means
people with AIDS are living longer and living better despite their HIV infection.
Our investment in AIDS research, prevention, and care has begun to pay important
dividends. In the past ten years, the average life expectancy of a person diagnosed with
AIDS has doubled from five to ten years. We were all encouraged recently by the very
rapid approval by the Food and Drug Administration of the first three members of a new
class of drugs known as protease inhibitors - the last one was approved in just 42 days.
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5
also rising quickly among women, communities of color, and young people, especially young
gay men. So we must do more and we will.
All of this is encouraging. But until there is a cure for AIDS we cannot -- and we will not --
rest. We must continue to reach out a hand of hope.
The legislation I am signing today offers that hope for another five years. It is my sincere
wish that no President will ever need to sign another bill extending this program again
because we will have found a cure to AIDS and a vaccine to protect everyone from this
deadly disease.
In his autobiography, Ryan White described himself as "just another kid from Kokomo."
Well, we all know that he was much more than that. He taught a nation to care instead of
hate; to embrace people living with AIDS and make them members of our families; and to
always, always reach out a hand of hope. This Act, which bears Ryan's name, is but one
reminder to our nation of a life that was far too short but so full of love.
For Ryan, for Jeanne, for the thousands and thousands of Americans who live every day
fighting this virus and this disease, for all the other parents and children of our nation, let us
rededicate ourselves to the fight ahead. For them, and for all of us, let us win that fight.
Thank you.
(Jeanie) Ryan scerk
as educates fighter w/
Ryan white Foundation
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4
These drugs have the promise of stopping the AIDS virus in its tracks so we must work
together to make sure that every person who needs these drugs can obtain them.
I was pleased, too, that the Congress saw fit to approve my request for $52 million in
additional funds for the AIDS Drug Assistance Program under the Ryan White CARE Act.
This money, when combined with Medicaid coverage, will help to ensure that Americans
living with HIV have access to these remarkable drugs.
I am also extremely encouraged by the fact that we now know that we can block transmission
of HIV from a pregnant woman to her child. To do that, we all must do a better job of
empowering women by providing them with information about the benefits of antibody
testing and AZT treatment during pregnancy and childbirth and for a short period of time
after birth. We know that mandatory testing of newborns will not prevent a single baby
from becoming infected. The Centers for Disease Control and Prevention have provided us
with very valuable guidelines recommending routine counseling and voluntary testing for all
pregnant women. This is very sound advice and I am pleased that this legislation embraces
that public health approach. We have it in our power to virtually put an end to perinatal
transmission of HIV by the end of this century. This bill gives us the tools to accomplish
that and we all must apply ourselves to this critical task.
We are also seeing some progress in our AIDS prevention efforts. Infection rates have
declined in several populations that were heavily impacted by the epidemic. But the rates are
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Statement of the President
on
Signing of S.641
The Ryan White Comprehensive AIDS Resources Emergency Act Amendments of 1996
Thank you Secretary Shalala and AIDS Policy Director Fleming for your constant leadership
in the national fight against AIDS. Thank you Jeanne (Jeannie) White for being here today
and for sharing with our nation your remarkable son, Ryan, whose fight we all carry on.
And let me express my appreciation to the dozens of organizations who are represented in
this room today who are on the front lines of this war on AIDS.
Today, I sign into law S. 641, the Ryan White Comprehensive AIDS Resources Emergency
Act Amendments of 1996. In my heart -- and I think in all of our hearts -- I wish that this
legislation were not necessary. It is my hope that in the future it will not be necessary. But
today, with nearly one hundred Americans losing their lives to AIDS every day and another
two hundred Americans being diagnosed with AIDS every twenty-four hours, it is, indeed,
quite necessary. In fact, it is essential.
As President, I am committed to fighting and winning the war against AIDS. In the four
budgets that I have submitted to the Congress, we have increased funding for the Ryan White
CARE Act by 129 percent, bringing help to many thousands of Americans who would
The Ray Family
BC (Orlando, Florida)
The family of Ricky Ray faced the tragedy of losing a teenage son and brother to AIDS.
Ricky, a hemophiliac received a blood transfusion containing the AIDS virus. He spent much
of his life fighting discrimination of HIV-positive people. On November, 8, 1992 the
President telephoned Ricky in the hospital. Ricky died on December 13, 1992 at age 15.
The Ray family presented the President with a picture of Ricky when they came to the White
House for the Pageant of Trees Christmas celebration. (They were invited guests of the First
Family and they sat in the President's box.) The picture of Ricky is among the President's
personal belongings in the Oval Office.
Last November, Louise Ray lost her bid to become State Representative in Florida's 3rd
District. The boys, Robert and Randy are continuing their monthly AIDS treatment at N.I.H.
Robert is very ill and has been hospitalized several times in the past few months. Their
daughter Candi is fine. Clifford Ray, the father, works at Central Florida Reception Center in
Orlando-- a prison facility serving all of Central Florida, but is hoping to go to theological
school soon.
Teann Scoggins
MEG (York County, Pennsylvania)
Teann Scoggins met the First Lady and Mrs. Gore during the 1992 Campaign. Upset that the
Mayor would not welcome the Clinton's and the Gore's to York, Ms. Scoggins arranged for
flowers to be put in their hotel room. The First Lady called Ms. Scoggins to thank her; Mrs.
Gore sent a thank you letter. Continually during the campaign, and since, Ms. Scoggins has
communicated with the President and Vice President on issues of concern to her.
Ms. Scoggins' community involvement has grown over the last year. She is Chair of the
York County Crop Walk, which raises money for the hungry. She is active with the local
Easter Seals chapter. She has also worked with the Susan Byrnes Health Education Center,
teaching children in Pennsylvania and Maryland about issues ranging from dental hygiene to
AIDS
Ms. Scoggins is also an "outspoken activist" opposed to the U.S. position on the illegal
Chinese immigrants awaiting deportation, who have been held up in the York County jail for
over two years. She fears that if the immigrants are returned to China they will most likely
be executed. To help pay for their legal services, the immigrants make origami from paper
brought to them by their lawyers who then sell them in the community. Ms. Scoggins has
written to the President and Vice President regarding this situation and plans to bring a piece
of the origami for the President to the luncheon.
15
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THE
WASHINGTON
Office of the Press Secretary
For Immediate Release
December 6, 1995
REMARKS BY THE PRESIDENT
AT THE WHITE HOUSE CONFERENCE
ON HIV AND AIDS
The Cash Room
Treasury Building
1:10 P.M. EST
THE PRESIDENT: First of all, thank you, Sean, and thank
you, Eileen. Thank you, Patsy Fleming and Secretary Shalala,
Secretary Cisneros. Thank you, Dr. Scott Hitt, and all the members
of the President's Advisory Council. I think most of them were
actually sitting in the overflow room so the rest of you can be here.
But I thank them -- we heard them; let's give them a hand, maybe they
can hear us. (Applause.)
I thank Dr. Varmus, Dr. Kessler, all the others here who
are involved in dramatic effort that they are making in the fight
against AIDS. Most of all, I thank all of you for coming and for
giving us a chance to have this first-ever White House Conference on
HIV and AIDS.
So much has been said by the speakers who have spoken
before, and so much is still to be said by the panelists and perhaps
by some of you in the audience, but I'm going to do what I can to
shorten my remarks, because I want to spend most of my time listening
to you and focusing on where we go from here. But there are a few
things that I would like to say.
First of all, this is a disease, and we have never
before had a disease we could not conquer. We can conquer this.
(Applause.) I believe that -- in my lifetime, we've eliminated small
pox from the planet and polio from our hemisphere. We can do better,
and we can do better until we prevail.
The threat of AIDS, just the very threat of it, has
changed the lives of millions of people. And you heard from the talk
about prevention, about which I want to say more in a moment, it
needs to change the lives of millions of more Americans. It has
taken too many friends and loved ones from every one of us in this
room. For millions of people it has shaken their very faith in the
PRESERVATION PHOTOCOPY
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future.
THE WHITE HOUSE
But it's also inspired a mommunity spirit.
One of the people on this program today, Demetri Moshoyannis, who is
right behind me, grew up in a typical American -- I think he's still
there -- (laughter) -- grew up in a typical American suburb in a
typical American community. He attended college, became politically
active, with a quick mind and an active spirit. He was clearly a
rising star. After graduating, he joined the Corporation for
National Service to help us start Americorps.
While he was working for AmeriCorps, he found out he was
HIV positive at the ripe old age of 23. He took the news as a
challenge, to use his communications skills, his organizational
skills and his leadership skills to educate and support his peers and
help them escape the threat. He represents the combination of
heartbreak and hope that makes this epidemic so unique. I am
grateful to him, grateful to Sean, grateful to Eileen, grateful to
every one of you who also represents that remarkable combination. We
have to be worthy of your continuing courage.
Twelve days ago, the Centers for Disease Control
reported that our nation reached another sad milestone in the AIDS
epidemic -- a half million Americans have now been diagnosed with
AIDS and more than 300, 000 have died. on this very day, and on every
day from this day forward until we do something to change it, 120
more Americans will lose their lives, another 160 people will be
diagnosed with the disease, nearly 140 will become infected with HIV.
That's why this meeting is important. It gives us an
opportunity to say to America what the facts are, to rally our
troops, to search our minds and hearts, to leave here with more
weapons than we came to make progress in this battle.
Our common goal must ultimately be a cure, a cure for
all those who are living with HIV, and a vaccine to protect all the
rest of us from the virus. A cure and a vaccine, that must be our
first and top priority. (Applause.)
When I ran for President, I said that I would do
everything I could to pull together the necessary resources and to
organize them, and to exercise real direction toward this goal. At a
time of dramatic spending cuts, as Secretary Shalala said, we have
nonetheless increased overall AIDS funding by about 40 percent. If
my budget passes -- and on this item, it actually might pass this
year -- we'll have a 26 percent increase in research. For the first
time since the beginning of the epidemic, there is now one person in
charge of the nation's entire NIH AIDS research program, Dr. William
Paul. And though more budget cuts are coming, we have got to protect
the research budget and the Office of AIDS Research. I will oppose
any effort to undermine the research effort or the Office of AIDS
Research. (Applause.)
I want all our fellow Americans to know that this
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investment in science has paid tremendous dividends. Today people
with AIDS live twice as long as THEy Whit just HOUSE to years ago,
especially those who seek early conditions
that used to mean a quick and often very painful death for people
living with HIV can now be treated and even prevented.
Since this administration began, I also want to
compliment Dr. Kessler and the FDA. In record time they are now
approving new classes of AIDS drugs that will help to restore the
damaged immune systems of people with HIV. Indeed, there was a study
released last week which says that the United States is now approving
drugs faster than any European nation. And a drug company executive
was recently quoted as saying that we are now two years ahead of
Europe in the approval of AIDS drugs. Thank you, bring on more.
This is a good direction. (Applause.)
Again, we have a lot to look forward to. Combination
drug therapies are showing great promise as a means for controlling
the virus in the human body. And just last year we found that the
use of drug therapy could actually block HIV transmission from mother
to child. Our scientists tell me it's within our grasp to virtually
eliminate pediatric AIDS by the end of the decade by offering all
pregnant women HIV counseling and testing and guaranteeing that they
have access to the treatment they need to protect their unborn
children. We can give a generation of Americans the freedom of being
born without HIV. We can do it, and we will. (Applause.)
I think all of us know we have to do more. And you may
have ideas for us. In the end -- I want to emphasize this over and
over again -- whenever we have these conferences, it's important for
the President to speak, but it's also important for the President and
the administration to hear. And you don't learn much when you're
talking. So I want to urge you all here during this meeting today
and afterward in following up, we are combing the country and the
world for the best ideas about what to do next.
To move the search for a cure forward and to accelerate
the pace, I have asked the Vice President to convene à meeting of
scientists and leaders of the pharmaceutical industry to identify all
the ways in which we might accelerate the development of vaccines,
therapeutics, and microbicides that can protect people from HIV and
the infections it causes. There are no guarantees in science, of
course, but the collective will of government and energy -- industry
-- can overcome huge obstacles as we have seen just in the last few
years.
Second, let me say I am very pleased that the decision
that was made at the NIH to put Dr. Paul in charge of coordinating
the AIDS research of the NIH, for the first to have it all
reconciled, coordinated and directed, has worked out very well. But
we need to extend this effort government-wide. That's why I have
asked Patsy Fleming to coordinate an inner-departmental working group
that will be chaired by Dr. Paul to develop a coordinated plan for
HIV and AIDS research all across every single department of our
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government, including developing,& coordinated research budget. And
I want a report in the next 90 days. That HOUS 16 the next important step
-- (applause).
WASHINGTON
We can't afford any unnecessary delays or missed
opportunities. And I'm convinced that these two steps will help us
to avoid those.
In addition to the work in research, we have to continue
to do what we can to assure that those who are living with HIV and
AIDS get the support and the care they need. And I want to talk
about this is some detail.
For people with AIDS, the current debate over how to
balance the federal budget is far more than a question of political
rhetoric. It is a matter of survival, primarily because of Medicaid.
Even if we are successful, and I believe we will be, in reauthorizing
the Ryan White CARE Act, at higher levels of funding -- and as you
heard the Secretary say, we've increased funding by, I believe, 108
percent in the last three years -- that is less than 20 percent of
the total money spent to care for people with HIV and AIDS.
Medicaid is the lifeline of support. It provides health
care for nearly half of the 190,000 Americans living with AIDS
provides health care for nearly half of the 190,000, including 90
percent of the children. It provides access to doctors, to
hospitals, to drugs, to home care, the things that allow people to
live their lives more fully. It pays for the drugs that keep HIV
under control for longer and longer periods of time. And it pays for
drugs that prevent the infections that often end the lives of those
with AIDS. Medicaid pays for the care that allows families to stay
together.
Yet today, Medicaid, a program that parenthetically also
is eligible to cover one in five American children -- that's how many
-- 22 percent of our children are living in such difficult
circumstances that they are eligible for Medicaid. And one of the
things about the congressional budget that I objected to so strongly
is that it slashes spending on Medicaid by over $160 billion and
turns it into a block grant, thus eliminating a 30-year national
commitment we have made to the poor, especially to poor children,
which I might say has given us the lowest infant mortality rate in
our history. It is the one thing we have done that has helped us to
drive down infant mortality among poor people who otherwise never see
doctors. It has given elderly people -- millions of them -- a
dignified life in nursing home, or getting home care. And it has
helped people with disabilities, not just people with HIV and AIDS,
but millions and millions of families on limited incomes with
children born with cerebral palsy, children born with spinibifida,
families that could never afford to buy a decent wheelchair for their
children, much less send them to camp in the summertime or have them
in an appropriate living setting. And it is the lifeline for people
with HIV and AIDS.
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I say again, the Ryan White THE health WHITE Care HOUSE Act is
important. I'm proud of the fact that We have doubled the funding.
I am fighting for more funding thisAgeaNGTONam proud of the fact
that it enjoys some bipartisan support in the Congress. I am proud
of the fact that when there was an attempt in the Senate to
eviscerate it, and turn it into a political football, the Senate
almost unanimously turned it back.
But be not deceived, we could double it. And if this
Medicaid budget goes through, it is a stake in the heart of our
efforts to guarantee dignity to the people with AIDS in this country.
(Applause.) Thank you. (Applause.)
I want to say one other thing. I want to thank the
Secretary of Housing and Urban Development for the work that he has
done to increase opportunities in housing for people living with
AIDS. (Applause.) We have taken some tremendous hits in the HUD
budget, some of them we have inflicted in an attempt to get the
deficit down. And there will doubtless be further reductions which
will require reorganization on an unprecedented scale at the
Department. But Henry Cisneros and I were together on the day before
Thanksgiving at a shelter serving food, and he told me again the one
thing that we must not do is to undermine the ability of the
Department of Housing and Urban Development to try to provide
dignified, adequate, compassionate housing opportunities for people
living with AIDS.
so I say to you, when we talk about balancing the
budget, I'd like to remind you that our administration has cut the
deficit nearly in half in ways that were honorable and fair and
enabled us to increase our investment in things that mattered, not
just the war against AIDS, but education, technology, medical
research, the environment, to bring the deficit down and lift the
society up. And that's the way we ought to approach this.
I want to say more about this in a minute, but this
budget debate, because it requires tough choices, will inevitably
require us to define what kind of people we really are. When times
are easy and you can just dole out money to everybody that shows up
at the door, it's pretty hard to tell what your values are. When
times are tough, and you have say yes some places and no others, it
becomes far, far clearer.
So I ask you to help us in the fight against the
Medicaid cuts, to help us to preserve Secretary Cisneros's ability to
support housing opportunities.
I got the message. I heard what you said about
prevention. I would point out that in the last two years we have
asked for increases in our prevention budget. But I am very worried
about what's happening there because of what has already been said.
We have to set a goal. And I hope you will suggest one
coming out of this conference. We have to reduce the number of new
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infections each and every year until there are no more new
infections. And we all have to THE the WHITE that. HOUSE (Applause.)
WASHINGTON
We know that for this to work it has to be targeted and
it has to be sustained, as the gay community demonstrated in the
1980s. We know now we have to pay particular attention to young
people and those who abuse drugs. There is a lot of evidence that
huge numbers of our young teenagers continue to be completely
heedless of the risks of their behavior.
I was pleased to see the public service announcements
that Secretary Shalala released to educate young people and to urge
them to take responsibility to protect themselves. I would say we
ought to go further, and you need to help us. We have to educate
these kids, but we also have to tell them they cannot be heedless of
the consequences of their behavior.
It is not enough to know -- they must act. It is in the
nature -- it is one of the joys of childhood that children think they
will live forever. It is one of the curses of childhood in some of
our meanest neighborhoods that children think they won't live to be
much beyond 25 anyway. In a perverse way, both of those attitudes
are contributing to the problem, because one group of our children
think that they are at no risk because nothing can ever happen to
them -- they're bulletproof; another group believes that no matter
what they do, they don't have much of a future anyway. And they are
bound together in a death spiral when it comes to this. This is
crazy. We have got to find some way to tell them you must stop this.
We are doing what we can to make those toughest
neighborhoods safer. Believe it or not, amidst all the talk here in
Washington, you could hardly know it, but out there in America in
almost every community, the crime rate is down, the welfare rolls are
down, the food stamp rolls are down, the poverty rolls have dropped
for the first time in over a decade. Why? Because if you invest in
people and their future and jobs are created and people go to work
and hope begins to be infused in people's lives, all of the problems
we talk about here in Washington give way to opportunities in the
lives of people.
But we see with this -- with this problem, whether there
is an atmosphere of opportunity or an atmosphere of hopelessness, too
many teenagers are ignoring the responsibilities they have to protect
themselves. We have to find better ways, and maybe more help from
different people, to get inside their minds, to shake their spirits,
to make them know care about them and we want them to have a future.
But we cannot do the one thing that only they can do, which is to
control their own decisions. And we have to do more. And if you've
got any better ideas for me, believe me, I am all ears.
I want to say, too, just a little word about the
importance of trying to tie our prevention efforts with HIV and AIDS
to our prevention efforts with drugs and substance abuse, because
that's the second big problem area of populations. In 1993 and again
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OFFICE OF NATIONAL AIDS POLICY
EXECUTIVE OFFICE OF THE PRESIDENT
750 17th Street, N.W.
Washington, DC 20503
Phone: 202-632-1090
Fax: 202-632-1096
FACSIMILE COVER SHEET
TO: Terry Edmonds
FAX NUMBER: 456-5709
FROM: Richard Sorian
DATE: 5/13/96
PAGES INCLUDING COVER SHEET: 6
COMMENTS:
Here's my draft. Let me know what I can do to help. Thanks.
THE WHITE HOUSE
WASHINGTON
OFFICE OF
SPEECHWRITING
PHONE: (202) 456-2777
FAX: (202) 456-5709
TO: Jay Heinbach
FROM:
Terry Edmand
RECEIVER FAX:
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COMMENTS: Per your request Call me
by 8:30 Am monday with any comments.
than ks,
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***WARNING**
Unauthorized use of these materials is subject to federal prosecution
DRAFT
PRESIDENT WILLIAM J. CLINTON
RYAN WHITE BILL SIGNING
THE WHITE HOUSE
MAY 20, 1996
Good morning. Today, I am pleased to sign legislation to continue the Ryan White
CARE Act for the next five years. But before I do, I want to thank Secretary Donna
Shalala, who is in Geneva, and AIDS Policy Director, Patsy Fleming for their excellent
leadership in the national fight against AIDS. I want to thank the members of Congress who
are here today for your support of this vital legislation, which passed with overwhelming
and
bipartisan support. Senator Ted Kennedy could not be with us today, but he deserves a
Sen.
special thanks for his leadership in the passage of the origiinal bill and his work on this
kendy
reauthorization. I also want to express my appreciation to the dozens of organizations
could
represented in this room today, who are on the front lines of this struggle. Finally, I want to not
thank Jeanne [JEANNIE] White for standing with me today. Your son was an American
be
hero. He taught the truth about AIDS. He showed us the meaning of dignity and the pain
here
that discrimination causes. And he helped people all over the world to understand that
with
people with AIDS deserve, not only the best medical care available, but also our compassion
us
and our love. For that, we are all eternally grateful.
ft is has now been with now for almost two decades.
Six years ago, when this law was first enacted, 161,000 Americans had been
diagnosed with AIDS and 100,000 men, women and children had already lost their lives.
Today, those-numbers are much greater. In December the CDC reported that more than half
a million Americans are living with AIDS and more than 300,000 of our sisters and brothers
have died. AIDS has taken too many friends and loved ones from every one of us in this
room. It has shaken the faith of many, but it has also inspired a remarkable community
spirit, as evidenced by your presence here today.
The truth is, we are not powerless in the face of this challenge. Look how far we
have come. At one time we thought of AIDS the end of life and the death of hope. But,
today, through the twin miracles of science and spirit, we have made great progress. People
are living longer. Infection rates are going down among a number of previously high-risk
groups. And there is hope for a cure. We have also come a long way in our understanding
of who gets AIDS and how they get it.
We now know that AIDS affects all Americans. Every person with HIV or AIDS is
somebody's son or daughter, somebody's brother or sister, somebody's parent or
grandparent. UNO one should be discriminated against because they have AIDS. not because
they are poor not because they are people of eolor, and not because they are gay or lesbian.
discrimation of an kind- anyone
The Ryan White CARE Act has been a big part of our progress. Since 1990, this bill
alle
offices. It has kept people out of hospitals so they could be cared for at home surrounded by to lend
has helped hundreds of thousands of people get the care they need in clinics and doctors'
family and loved ones. And it has paid for the growing assortment of miracle drugs that are to what
do. we must
8:30 - A.M.M.monday-Don
1
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in the crime bill in 1994, we increased our federal investment in
drug treatment. And I'm working THE to why to convince Congress to do
even more. We know that the rightwkind dreatment programs work.
We know that the right kind of prevention programs work. And we know
that we can marry the two.
I've asked the CDC to convene a meeting of state and
local people involved in both public health and drug prevention to
develop an action plan that integrates HIV prevention and substance
abuse prevention. And I hope that we can do that and do it now,
because I think it will make a significant difference.
I have to tell you that I am very worried that what we
see with the HIV rates among juveniles is now being mirrored in drug
use. Last year's statistics showed unbelievably that drug use among
people 18 to 34 was going down, but casual drug use among people 12
to 17 was going up. I think it is clearly because there are too many
kids out there raising themselves, thinking nobody cares about them
and not thinking there's much of a future. So we have to deal with
these two things together.
And while we search for a cure, work to improve
treatment, strive to prevent new cases and to protect the hard-won
gains of the past, I'd also like to say just a word about the basic
human rights of people living with HIV and AIDS.
AIDS-related discrimination unfortunately remains a
problem that offends America's conscious. The Americans with
Disabilities Act now offers more than 40 million Americans living
with physical or mental disabilities, including those living with HIV
and AIDS, protection against discrimination. And the Justice
Department, the Department of Health and Human Services, the Equal
Employment Opportunity Commission, they have been vigorously
enforcing the ADA. We're about to launch a new effort to ensure that
health care facilities provide equal access to people with HIV and
AIDS.
We simply cannot let our fears outweigh our common sense
or our compassion. And as Sean said, we can't let our bigotry -- to
use his word, we can't let our homophobia blind us to our
obligations. (Applause.)
I say that for two reasons. One is that the fastest
growing group of people with the HIV virus are not gay men. This is
not a disease that fits into the homophobic world view. But the
second reason is that regardless of sexual orientation or race or
income or even whether a person has sadly fallen victim to drug abuse
-- as someone who has lived in a family with an alcoholic and with a
drug abuser -- every person -- I say this with clear knowledge,
experience and conviction -- every person with HIV or AIDS is
somebody's son or daughter, somebody's brother or sister, somebody's
parent, somebody's grandparent.
And when we forget this, when we forget that all the
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people who deal with this are our fellow Americans and that most of
them share our values and our hopes THE WHITE and our dreams and deserve
dignity and decency in the treatmaASHINg.IOn them, we forget a very
great thing that makes this a special country. And we forget it at
our own peril.
In one way or another nearly every person in America at
one time in his or her life has been subject to some sort of scorn.
Woodrow Wilson once said that you could break a person with scornful
words just as surely as with sticks, and beat him. And I think
that's an important thing, too, to remember.
The American people need to know that everybody in this
country and, indeed, throughout the world, is now vulnerable to this
disease. We need to identify what our responsibilities are in this
country, and our responsibilities to developing countries, are to
deal with the problem, to search for a cure, to search for a vaccine,
to deal with the treatment issues. But I'm not sure it doesn't begin
with dealing with our own hearts and minds on this. That's where you
have to come in.
Frederick Douglas said, during the great struggle
against slavery, that it was not light that is needed, but fire; not
the gentle shower, but thunder; the feeling of the nation must be
quickened, the conscious of the nation must be roused. That's what
you came here to do.
Don't forget this -- most Americans are good people.
The great burden we have as Americans is that when we have to deal
with something new, too often we can't deal with it from imagination
and empathy, we have to actually experience it first. I do not want
to wait until every single family has somebody die before we have a
good policy -- (applause) --.
So I ask you -- I understand anger and frustration, but
I will never understand it until someday and something happens to me
and I know the sand is running out of my hour glass. so I can't
totally understand it. But I ask all of you to remember this -- this
is fundamentally a good country. Alexis de Tocqueville said in the
1830s that this was a great country because we are a good country.
And if we ever stop being a good country, we would no longer be a
great country.
So I ask you to use this moment to give America a chance
to be great about this issue, give our people a chance to feel this
the way you feel it, to see it the way you see it, to know it the way
you know it.
When I was getting ready for the conference yesterday, I
called Bob Hattoy sitting back there in the room. I said, what do
you think I ought to say tomorrow? What do you think is going to
happen? We were talking. And he said, I think you ought to think
about all the people who waged this battle with us in 1992 who aren't
around anymore. And so we just went through them name by name.
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And then right before I came THE WATEROUSE looked at the
picture of little Ricky Ray that WASHINGTON desk at the White House
in the Oval Office. And I remembered his family and the members that
are still struggling with it.
Give the country a chance to be great about this. Shake
them up. Shake me up. Push us all hard. But do it in a way that
remembers this is fundamentally a good country. Every now -- when we
stray, we get off the track a little bit, but we're still around for
more than 200 years because most of the time when the chips are down,
we do the right thing. And I am convinced that people like you can
get this country, starting here in Washington, to do the right thing.
Thank you, and God bless you all. (Applause.)
or Mr. President, we will now begin the roundtable
discussion with reports from each of the workshops. I'd like to
begin with Dr. Renslow Sherer. He will report to you from the
primary care and benefits workshop.
Dr. Sherer is a dedicated clinician and researcher who
is head of the AIDS program at Chicago's Cook County Hospital.
Q Mr. President, let me add my voice to thank you for
being the first President in 14 years to convene such a conference.
I have four messages for you from the primary health care group, and
that's for you and the Advisory Council and for the nation. And I'm
really echoing many of the comments that you've just made.
Mr. President, we've made great progress in HIV care
since the epidemic began. We have therapies now, as you mentioned,
combination therapies that can improve the length of an individual's
life and the quality of their life. We've learned a great deal in
the management of HIV and established systems of care, much of which
is through the benefits of the Ryan White CARE Act. In future, we
need to build on the experience and expertise of those caregivers
around the country who have worked for so hard for so long.
But in order to do that, we're concerned about the fact
that our care system is seriously threatened by the potential for
Medicaid cuts that are being debated right now. We urgently need you
and the nation to support full funding for Medicaid and for the Ryan
White CARE Act without mandatory testing requirements. Included in
that need is the availability for all who need it for lifesaving
drugs. Today, in several states -- in New York state and Kansas --
people who have had access to life-saving drugs may not now be able
to receive them because of funds having expired through Title II of
the CARE Act and through other means for the availability of those
drugs.
Third, we need to improve access into our health care
system for all who need it. In Chicago where I work, we think there
are 34,0000 with HIV, but only 10,000 of those are identified, know
PRESIDENT WILLIAM J. CLINTON
RYAN WHITE BILL SIGNING
THE WHITE HOUSE
MAY 20, 1996
Good morning. Today, I am pleased to sign legislation to continue the Ryan White
CARE Act for the next five years. But before I do, I want to thank Secretary Donna
Shalala, who is in Geneva, and AIDS Policy Director, Patsy Fleming for their excellent
leadership in the national fight against AIDS. I want to thank the members of Congress who
are here today for your support of this vital legislation and for all our efforts in the struggle
against AIDS. And I want to express my appreciation to the dozens of organizations
represented in this room today, who are on the front lines of this struggle. Finally, I want to
thank Jeanne [JEANNIE] White for standing with me today. Your son was an American
hero who taught the truth about AIDS. By his courageous example, the showed us the
meaning of dignity and the pain that discrimination causes. And he helped people all over
the world to understand that people with AIDS deserve, not only the best medical care
available, but also our compassion and our love. For that, we are all eternally grateful.
Since its inception in 1990, The Ryan White CARE Act has provided hundreds of
thousands of people with care that improves the length and quality of their lives. It delivers
primary care to those living with HIV or AIDS who are either uninsured or do not have
sufficient insurance to cover the cost of their care. The CARE Act also keeps people with enables
AIDS out of the hospital and at home with their families and loved ones. And it helps them
obtain essential prescription drugs that are $0 many people with AIDS live longer,
healthier lives.
I am proud that we have speeded up the approval of these new drugs. Just recently,
the FDA gave very rapid approval of the first three members of a new class of protease
[PRO-T-ACE] inhibitor drugs. The last one was approved in just 42 days. The legislation I
am signing today will help ensure that Americans living with AIDS have access to these
remarkable drugs.
As I sign this legislation, I am pleased to announce that today the Department of
Health and Human Services has awarded $350 million in funds authorized under this bill to
all 50 states and 49 U.S. cities. We have also announced the availability of another $52
million in funding for AIDS drug assistance programs. This money is a lifeline of support
for thousands of men, women, and children across this country who struggle, day to day,
with the virus in their bodies.
This legislation also gives us the tools to help prevent transmission of HIV from a
pregnant woman to her child. We now know how to do this. In fact, the Centers for
Disease Control and Prevention have published guidelines recommending routine counseling
and voluntary testing for all pregnant women. This legislation releases money to the states to
empower women to learn their HIV status, to get treatment with AZT and to protect their
1
DRAFT
PRESIDENT WILLIAM J. CLINTON
RYAN WHITE BILL SIGNING
THE WHITE HOUSE
MAY 20, 1996
continue
IX
Good morning. Today, I am pleased to sign legislation to fund the Ryan White
who
CARE Act for the next five years. But before I do, I want to thank Secretary Donna Shalala
is
and AIDS Policy Director, Patsy Fleming for your their excellent leadership in the national fight
Meneva
against AIDS. I also want to thank the members of Congress who are here today for your
support of this vital legislation and for all our efforts in the struggle against AIDS. Finally, I
want to thank Jeanne [JEANNIE] White for standing with me today. Your son was an
American hero who taught the truth about AIDS. By his courageous example, he showed us
the meaning of dignity. And he helped people all over the world to understand that people
with AIDS deserve, not|only the best medical care available, but also our compassion and
our love. For that, we are all eternally grateful.
Hend the
Since its inception in 1990, The Ryan White CARE Act has provided hundreds of
thousands of people with care that improves the length and quality of their lives. It delivers
primary care to those living with HIV or AIDS who are either uninsured or do not have
sufficient insurance to cover the cost of their care. The CARE Act keeps people with AIDS
out of the hospital and at home with their families and loved ones. And it helps them obtain
essential prescription drugs that are helping so many people with AIDS live longer, healthier
lives.
I am proud very that we have speeded up the approval of these new drugs. Just recently [PRO-T
the FDA gave rapid approval of the first three members of a new class of protease inhibitor ACE)
drugs. The last one was approved in just 42 days. The legislation I am signing today will
help ensure that Americans living with AIDS have access to these remarkable drugs. It
includes $52 million in additional funds for the AIDS Drug Assistance Program.
Johnstory
This legislation also gives us the tools to help prevent transmission of HIV from a
pregnant woman to her child. We now know how to do this. In fact, the Centers for
Disease Control and Prevention have published guidelines recommending routine counseling
and testing for all pregnant women. This legislation releases money to the states to empower
women to learn their HIV status, to get treatment with AZT and to protect their babies from
infection. We now have it in our power to virtually put an end to perinatal transmission of
HIV by the end of this century. This bill will help us accomplish that and we must all apply
ourselves to this critical task.
Finally, let me say to all of you, if we continue to work together, I am confident we
will win this fight. Look at how far we have come. In the four budgets I have submitted to
the Congress, we have increased the Ryan White Care Act by 129 percent, bringing help to
many thousands of Americans who would otherwise have nowhere else to turn. We have
also increased funding for AIDS-related research and prevention and fought discrimination
1
against people living with HIV and AIDS on every front. People are living longer. Infection
rates are declining among a number of previously high-risk groups. So, we are making
progress. But we must do more -- particularly to stop the rising rate of infection among
women, communities of color, and young people -- especially young, gay men. Until there
is a cure for AIDS, we cannot, and we will not rest.
In his autobiography, Ryan White described himself as "just another kid from
Kokomo." We all know he was more than that. He taught a nation to care instead of hate;
to embrace people living with AIDS as part of our American family; to always extend the
hand of hope.
I am signing this legislation for Ryan, for Jeanne, and for the thousands and
thousands of Americans who live every day fighting this virus and this disease. Let us all
rededicate ourselves to the fight ahead. And let us resolve to win.
Thank you.
I am very pleased transure that the
DHIHS
2
DRAFT
PRESIDENT WILLIAM J. CLINTON
RYAN WHITE BILL SIGNING
THE WHITE HOUSE
MAY 20, 1996
Good morning. Today, I am pleased to sign legislation to fund the the Ryan White
CARE Act for the next five years. But before I do, I want to thank Secretary Donna Shalala
and AIDS Policy Director, Patsy Fleming for your excellent leadership in the national fight
against AIDS. I also want to thank the members of Congress who are here today for your
support of this vital legislation and for all our efforts in the struggle against AIDS. Finally, I
want to thank Jeanne [JEANNIE] White for standing with me today. Your son was an
American hero who taught the truth about AIDS. By his courageous example, he showed us
the meaning of dignity. And he helped people all over the world to understand that people
with AIDS deserve, not only the best medical care available, but also our compassion and
our love. For that, we are all eternally grateful.
Since its inception in 1990, The Ryan White CARE Act has provided hundreds of
thousands of people with care that improves the length and quality of their lives. It delivers
primary care to those living with HIV or AIDS who are either uninsured or do not have
sufficient insurance to cover the cost of their care. The CARE Act keeps people with AIDS
out of the hospital and at home with their families and loved ones. And it helps them obtain
essential medical drugs that are helping so many people with AIDS live longer, healthier
lives.
I am proud that we have speeded up the approval of these new drugs. Just recently,
the FDA gave rapid approval of the first three members of a new class of protease inhibitor
drugs. The last one was approved in just 42 days. The legislation I am signing today will
help ensure that Americans living with AIDS have access to these remarkable drugs. It
includes $52 million in additional funds for the AIDS Drug Assistance Program.
This legislation also gives us the tools to help block transmission of HIV from a
pregnant woman to her child. We now know how to do this. We just have to do a better
job of educating women about the benefits of antibody testing and AZT treatment during
pregnancy and childbirth and for a short time after birth. We now have it in our power to
virtually put an end to perinatal transmission of HIV by the end of this century. This bill
will help us accomplish that and we must all apply ourselves to this critical task.
Finally, let me say to all of you, if we continue to work together, I am confident we
will win this fight. Look at how far we have come. In the four budgets I have submitted to
the Congress, we have increased the Ryan White Care Act by 129 percent, bringing help to
many thousands of Americans who would otherwise have nowhere else to turn. People are
living longer. Infection rates are declining among a number of previously high-risk groups.
So, we are making progress. But we must do more -- particularly to stop the rising rate of
infection among women, communities of color, and young people -- especially young, gay
1
men. Until there is a cure for AIDS, we cannot, and we will not rest.
In his autobiography, Ryan White described himself as "just another kid from
Kokomo." We all know he was more than that. He taught a nation to care instead of hate;
to embrace people living with AIDS as part of our American family; to always extend the
hand of hope.
I am signing this legislation for Ryan, for Jeanne, and for the thousands and
thousands of Americans who live every day fighting this virus and this disease. Let us all
rededicate ourselves to the fight ahead. And let us resolve to win.
Thank you.
2
DRAFT
PRESIDENT WILLIAM J. CLINTON
RYAN WHITE BILL SIGNING
is
bad,
THE WHITE HOUSE
-P.2
MAY 20, 1996
AIDS
Startey
Good morning. Today, I am pleased to sign legislation to continue the Ryan White
+
frething
CARE Act for the next five years. But before I do, I want to thank Secretary Donna
Shalala, who is in Geneva, and AIDS Policy Director, Patsy Fleming for their excellent
leadership in the national fight against AIDS. I want to thank the members of Congress who
Ryan
are here today for your support of this vital legislation and for all our efforts in the struggle
Shite
against AIDS. And I want to express my appreciation to the dozens of organizations
represented in this room today, who are on the front lines of this struggle. Finally, I want to
Act-
thank Jeanne [JEANNIE] White for standing with me today. Your son was an American
since
hero. He taught the truth about AIDS. He showed us the meaning of dignity and the pain
1990- that discrimination causes. And he helped people all over the world to understand that
perlase prego and our love. For that, we are all eternally grateful.
people with AIDS deserve, not only the best medical care available, but also our compassion
It onlans offunds
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longer, healthier lives.
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I am proud that we have speeded up the approval of these new drugs. Recently, the
AIDS
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ACE] inhibitor drugs. The last one was approved in just 42 days. The legislation I am
terrible
is
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As I sign this legislation, I am pleased to announce that today the Department of
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all 50 states and 49 U.S. cities. We have also-announced the availability of another $52
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EXECUTIVE OFFICE OF THE PRESIDENT
17-May-1996 05:50pm
TO:
(See Below)
FROM:
Ann M. Cattalini
Office of Legislative Affairs
SUBJECT: Participants for Ryan White Bill Signing
PARTICIPANTS IN THE SIGNING OF THE RYAN WHITE REAUTHORIZATION ACT
Monday, May 20, 1996
Jeanne White, the mother of Ryan White
Sen. Bill Frist (R-TN)
Sen. Tom Harkin (D-IA)
Sen Ted Kennedy was
Sen. Orrin Hatch (R-UT)
the the morring force on this
- wan't be there
Sen. Nancy Kassebaum (R-KS)
Rep. Steve Gunderson (R-WI)
Rep. Nancy Pelosi (D-CA)
originalbill +
19908 for reauthorization
Rep. John Porter (R-IL)
Rep. Henry Waxman (D-CA)
Patsy Fleming
Distribution:
TO: Jeremy D. Benami
TO: Jeffrey Levi
TO: Marsha Scott
TO: Nicole Elkon
TO: James T. Edmonds
TO: Anne E. McGuire
CC: Helen P. Howell
AIDS affects all Americans--men, women and children. For a long
time, discrimination, including homophobia, kept many people from
getting the kind of care they needed. This act goes a long way
to get that much needed care to all Americans.
364-4283
Terry -
Marsha
the kejinning or the end?
Carthis be insed odher
Bruce Reed I'll be bachin 1 hr. .
FAX- 690-7755
Jash
so in to BC
tonight
Mon. 8-
632-
where is
Don-
1090
people
part onceb G frizess source - affeart
human discrim now every body can get
SENT BY:Xerox Telecopier 7020 ; 5-17-96 ; 5:29PM ;
2026321096->
94565709;# !
OFFICE OF NATIONAL AIDS POLICY
EXECUTIVE OFFICE OF THE PRESIDENT
750 17th Street, N.W.
Washington, DC 20503
Phone: 202-632-1090
Fax: 202-632-1096
FACSIMILE COVER SHEET
TO: Terry E.
FAX NUMBER: 456-5709
FROM: Richard Savia
DATE:
PAGES INCLUDING COVER SHEET: 12
COMMENTS:
see last page for
Voluntary testing language
PRESERVATION PHOTOCOPY
helping so many people with AIDS live longer and healthier lives.
our FDAhas
I am proud that we have speeded up the approval of these new drugs. Recently, the
FDA gave very rapid approval of the first three members of a new class of protease PRO-T
States ACE] inhibitor drugs The last one was approved in just 42 days. and it will help
As I sign this legislation, I am pleased to announce that today the Department of
Health and Human Services has awarded $350 million in funds authorized under this bill to
all 50 states and 49 U.S. cities druce We are also announced the availability of another $52 $52%ohelp
million in funding for settle AIDS drug assistance programs. This money is a lifeline of support
with the virus in their bodies. and it help states capt ones medical break thuess
for thousands of men, women, and children across this country who struggle, day to day
2 sentence
This legislation also releases money to the states to better inform and counsel discuss
and we are capitalying on something parents have
recent
pregnant women about how they can prevent HIV transmission to their child. One of the it is
scientific
most exciting breakthroughs in our fight against AIDS is the discovery that voluntary testing poso
and the use of AZT can block HIV transmission from mother to child. We know this works.
discovery
Already it has resulted in a 10 percent drop in the number of babies born with HIV between
2-we
1994 and '95. This legislation will help us save more innocent lives. enothetragedy of
babies being born with HIV.
can
But even as we celebrate our progress, we should not forget that this fight is not over.
already
We must do more to stop the rising tide of infection among women, communities of color
volus
and young people -- particularly young, gay men. Until there is a cure, we cannot, and we
must not rest.
In his autobiography, Ryan White described himself as "just another kid from
Kokomo." We all know he was more than that. He taught a nation to care instead of hate;
to embrace people living with AIDS as part of our American family; to always extend the
hand of hope.
The legislation I am signing today offers that hope for another five years. Let us all
pray that no President will ever need to sign another bill because we will have found a cure
for AIDS and a vaccine to protect every American.
Thank you.
2
Page 3
21ST REFERENCE of Level 1 printed in FULL format.
Copyright 1990 Gale Research Inc.
All Rights Reserved
Newsmakers 1990
1990; Issue 3
LENGTH: 676 words
NAME: Ryan White
SIDELITES:
OBITUARY NOTICE: Born C. 1972 in Kokomo, Ind.; died of acquired immune
deficiency syndrome (AIDS), April 8, 1990, in Indianapolis, Ind. Ryan White
became a prominent spokesperson for people with AIDS. While movie star Rock
Hudson was the first well-known American to die of AIDS, young Ryan was the
first to tear down AIDS stereotypes, and, as his minister said at his funeral, to
"make AIDS a disease, not a dirty word.' White, a hemophiliac, was diagnosed
with the disease in 1985, after he was given a tranfusion of blood which had
been contaminated with the AIDS virus. Because of ignorance about AIDS at that
time, his hometown neighbors and classmates harassed and ostracized him. White
and his mother fought education officials who tried to bar him from attending
Kokomo's public high school, but even after the courts declared that White could
legally attend classes, half of the teenaged students stayed home. White and his
family felt compelled to leave the town. In 1987 the 15-year-old student was
welcomed in Cicero, another Indiana town, where White found the companionship he
had been missing. People quoted White as saying that the worst thing for him in
Kokomo was that, "I had no friends. I was lonely. All I wanted was to go to
school and fit in."
Many people in the mid-1980s thought that AIDS was an easily transmitted
disease and that only homosexuals could get it. Even after medical research
proved these theories false, a hysteria gripped many communities and people with
AIDS were harassed throughout the country. The Village Voice quoted Ryan
White's explanation of the hecklers: "Their fear just took hold of them." White
fought prejudice against people with AIDS by speaking to groups around the
country about AIDS facts and answering questions regarding his experiences.
Although he was not the typical AIDS carrier, White empathized with all the
social groups particularly ravaged by the disease: intravenous drug users, the
poor, and homosexuals. "I've learned that God doesn't punish people,' White said
at a question-and-answer meeting about AIDS reported in People. "I've learned
that God doesn't dislike homosexuals, like a lot of Christians think. AIDS isn't
their fault, just like it isn't my fault. God loves homosexuals as much as He
loves everyone else."
The ordeal in Kokomo added emotional strain to the physical battle White was
fighting against AIDS. Students in his high school defaced his locker and
folders, and his family's house and car were regularly vandalized. White was
severely underweight and ill during this period, but when he was welcomed to
Cicero, all of his acquaintances agreed that he blossomed. Several Cicero school
officials made special efforts to educate students and their parents about AIDS
before White began attending school. As a result, White was warmly received in
the community and made many friends. In 1988, People quoted Indiana University
Page 4
Newsmakers, 1990
Medical Center's Dr. Kleiman, who said that "all the scientific data we had
would not have pointed to him being with us today and doing so well
I'd like
to think it's because I'm a good doctor, but I can't take full credit
He's
got a great attitude, and that plays a big part. He's optimistic, not a
quitter."
White's courage and willingness to share his experience taught many people to
fight stereotypes and ignorance. President George Bush said of him: "Ryan has
helped us to understand the truth about AIDS, and he's shown all of us the
strength and bravery of the human heart." Many of the celebrities who had
befriended Ryan White attended his funeral; his pallbearers included rock star
Elton John, talk show host Phil Donahue, and football player Howie Long. Despite
all the notoriety, a high school friend recalled that Ryan White "didn't want
people to feel sorry for him. He hated that. He just wanted to be a regular
kid."
SOURCES: New York Times, April 12, 1990;
Newsweek, April 23, 1990;
People, May 30, 1988; April 23, 1990;
Village Voice, April 24, 1990.
LANGUAGE: ENGLISH
LOAD-DATE: August 12, 1991
217
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hundred Cancus
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Pacificiamericom orman Minetta
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3383
Document No.
WHITE HOUSE STAFFING MEMORANDUM
5/15
5/15
DATE:
ACTION/CONCURRENCE/COMMENT DUE BY:
6:15pm
SUBJECT:
Remarks- Asian Pacific Cauces Draner
ACTION FYI
ACTION FYI
VICE PRESIDENT
McCURRY
PANETTA
McGINTY
McLARTY
NASH
ICKES
QUINN
LIEBERMAN
RASCO
RIVLIN
REED
BAER
SOSNIK
CURRY
STEPHANOPOULOS
EMANUEL
STIGLITZ
GIBBONS
STREETT
HALE
TYSON
HERMAN
WALLEY
HIGGINS
WILLIAMS
HILLEY
Speding
KLAIN
Toiv
Waldmen
LAKE
Matsei
LINDSEY
kyl
REMARKS:
Comments to Tery Edenonds by 6:00 pm
RESPONSE:
Memorandum for T. Stern
The NSC concurs on the Remarks for the Asian Pacific Caucus Dinner.
Anthony Lake
Staff Secretary
Ext. 6-2702
We have reinforced our military engagement -- through our five security alliances,
our forward-deployed presence and our commitment to maintain 100,000 American troops in
the Pacific. And we are harnessing the region's tremendous growth to benefit the American
people.
The dynamic economies of the Asia Pacific region are already accounting for one-
quarter of the world's output and growing every day. Already, more than 50 percent of
America's trade is with the nations of the Pacific, sustaining three million good American
jobs. In the last three-and-a-half years, exports to Asia have increased by more than 44
percent. And the late Commerce Secretary, Ron Brown, the best friend American business
ever had, worked tirelessly to help U.S. firms expand business opportunities in Asian
countries. His successor, Mickey Kantor, will continue on that path. But, our healthy
economic ties have always been rooted in mutual trust and respect for the law. We want to
keep it that way. That's why we will be firm in our insistence on fairness and we will not
hesitate to take actions like the sanctions we are imposing on China in response to the
pirating of American property, protect American lemmic interests when
necessary.
This year you are going to hear two different visions of what America should be in
the 21st century. My vision is clear: I believe that the future requires not only the existence
of opportunity, but making sure that every American has the chance to seize that opportunity.
We should all be working to give people the ability to make the most of their own lives - as
workers, as family members and as citizens in communities.
America is in the best position to seize the vast opportunities of the new global
economy because of the depth of our values and the strength of our diversity. I believe that
our best days are ahead of us, but only if we step up to our common responsibilities to help
all our children live up to their fullest dreams. If we all pull together, we will continue to be
the greatest nation on earth.
Thank you and God bless you all.
4
EXECUTIVE OFFICE OF THE PRESIDENT
UNITED
OFFICE OF MANAGEMENT AND BUDGET
STATE
WASHINGTON, D.C. 20503
THE DIRECTOR
May 10, 1996
96 MAY 10 P 7 : 08
MEMORANDUM FOR THE PRESIDENT
SUBJECT:
Enrolled Bill S. 641 - Ryan White CARE Act
Amendments of 1996
Sponsors - Sen. Kassebaum (R) KS and 65 others
Last Day for Action
May 20, 1996 - Monday
Purpose
Reauthorizes appropriations for and amends the programs
contained in the Ryan White Comprehensive AIDS Resources
Emergency (CARE) Act of 1990.
Agency Recommendations
Office of Management and Budget
Approval (Signing
statement attached)
Department of Health and
Human Services (HHS)
Approval (Signing
statement attached)
Office of National AIDS Policy
Approval (Informally)
Department of Labor
Approval (Informally)
Office of Science and
Technology Policy
Approval (Informally)
Department of Housing and
Urban Development
Approval (Informally)
Department of the Treasury
No objection
(Informally)
Department of Justice
No objection
(Informally)
Office of Personnel Management
No objection
(Informally)
Department of the Interior
No objection
(Informally)
Office of National Drug
Control Policy
No comment
Discussion
S. 641 would authorize appropriations of such sums as may be
necessary for each of FYs 1996-2000 for grants that fund health
and support services to people with HIV in States, cities, and
local communities across the Nation. The enrolled bill is in
keeping with your strong support for legislation to reauthorize
the programs and activities contained in the Ryan White CARE Act.
S. 641 passed the House by a vote of 402-4 and the Senate by
voice vote.
As enrolled, S. 641 would maintain the current structure of
the Ryan White CARE Act:
-- Part A provides emergency relief grants to eligible
metropolitan areas (EMAs) disproportionately affected by
HIV. One-half of the Part A funds are distributed by
formula, and the remaining funds are distributed
competitively.
-- Part B provides grants to States and territories. The
funds are used to provide medical support services;
continue insurance payments; provide home care services;
and purchase medications necessary for the care of
individuals with HIV. Funding for Part B is distributed
by formula.
-- Part C supports early intervention services on an
outpatient basis -- including counseling, testing,
referrals, and clinical, diagnostic, and other
therapeutic services. This funding is distributed by
competitive grants.
-- Part D provides grants for research and services for
pediatric AIDS patients.
The major provisions of S. 641 are described below. A
detailed summary of the bill's provisions is attached to the HHS
views letter.
Major Provisions of S. 641
Limit eligibility under Part A. Part A eligibility would be
defined to include only those areas that have a population of at
least 500,000 individuals. This new definition would take effect
immediately upon enactment of S. 641. In addition, beginning on
October 1, 1996, only cities with a cumulative total of more than
2,000 cases of AIDS over the previous five-year period would be
eligible for Part A funds. Under current law, the qualifying
factors are 2,000 or more cumulative cases and a per capita
incidence of not less than 0.0025. The new eligibility standards
would not apply to current EMAs.
- 2 -
New formulas. S. 641 would authorize new formulas for both
Parts A and B funds. For Part A funds, the formula would be
based on the most recent ten-year weighted estimate of living
AIDS cases in each EMA, instead of cumulative AIDS cases. This
change is designed to correct the inequity in the current formula
that tends to benefit those EMAs where the epidemic has been
present the longest. For Part B funds, the formula would be
revised to use a ten-year weighted estimate of living cases in
each State, instead of a two-year AIDS case count. In
calculating State grant awards, 80 percent of the Part B
appropriation would be allocated based on the weighted ten-year
estimate of living AIDS cases across the State. Twenty percent
of the appropriation would be allocated based on the above
formula minus those cases within EMAs in each State. This change
responds to the criticism that the current formula double counts
-- i.e., some States have received double benefits by counting
all cases in the State, even though Part A funds were available
to provide services in EMAs.
Both the new Part A and B formulas would become effective
upon enactment. In addition, under S. 641, areas that received
either Part A or B funds in FY 1995 would be guaranteed at least
the same amount in FY 1996. Guarantees for future years would be
decreased minimally.
Special Projects of National Significance (SPNS). The
enrolled bill would establish a new Part in the Ryan White CARE
Act to include SPNS. Currently, SPNS is funded by a 10 percent
Part B set-aside. Under S. 641, it would receive either
$20 million annually or a three percent set-aside from each of
the other four Parts of the Ryan White CARE Act, whichever is
greater (but never to exceed $25 million). In addition, The AIDS
Education and Training Centers program would be transferred from
Federal health professions education authorities to the new Part
of the Ryan White CARE Act. S. 641 would authorize
appropriations of such sums as may be necessary for each of
FYs 1996-2000 for the AIDS Education and Training Centers
program.
Perinatal testing. In the Spring of 1995, the Centers
for Disease Control and Prevention (CDC) issued guidelines
recommending that all pregnant women be counseled on the benefits
of HIV testing and AZT treatment and that they be offered
voluntary HIV antibody testing. The enrolled bill would require
all States -- within 120 days of enactment of S. 641 -- to
certify to the Secretary of HHS that they have in effect
regulations or other measures to implement the guidelines from
CDC for HIV counseling and voluntary testing of pregnant women.
S. 641 would authorize appropriations of $10 million for each of
FYs 1996-2000 to assist States in implementing the existing CDC
guidelines.
- 3 -
S. 641 also would require the Secretary of HHS to determine
by 1998 whether HIV testing of newborns has become a national
standard of practice. By the year 2000, mandatory State testing
of children born to women who have not undergone prenatal HIV
testing would take effect if counseling alone does not reduce the
number of infected children by 50 percent, or if less than
95 percent of women counseled actually get tested. States that
do not meet at least one of the above standards and fail to
institute a mandatory newborn HIV testing program, would lose
Federal funding under Part B of the Ryan White CARE Act.
Other provisions. S. 641 would: (1) authorize technical
assistance and planning grants to cities that will become
eligible for Part A funds; (2) require cities to allocate a
specified percentage of its funds for providing services to
women, infants, and children; and (3) require States to use a
portion of its Part B funds for drug assistance programs,
including the provision of "therapeutics to treat HIV disease".
Under S. 641, Federal employees would not be required to
attend HIV/AIDS training programs. According to the Office of
Personnel Management, this is consistent with current Federal
employee training guidelines. In addition, none of the funds
authorized under Part D of the Ryan White CARE Act can be used
to fund "AIDS programs, or to develop materials, designed to
promote or encourage
intravenous drug use or sexual
activity
Conclusion and Recommendations
In its views letter, HHS states that the Ryan White CARE Act
programs offer crucial assistance that has made it possible for
people with HIV and AIDS to lead more productive lives in their
community. HHS notes that its "concerns with requiring HIV
testing for newborns have been met in large part by provisions
which place primary emphasis on counseling and voluntary testing
of pregnant women for HIV." The Department has attached a draft
signing statement to its views letter and recommends that a
signing ceremony be scheduled for S. 641.
We join HHS and the Office of National AIDS Policy in
recommending approval of S. 641. Attached for your consideration
is a draft signing statement that was prepared by HHS and edited
by the Office of National AIDS Policy. It highlights the
achievements and importance of the Ryan White CARE programs and
the advances being made to combat the spread of HIV/AIDS.
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The draft signing statement has been reviewed and approved
by HHS, the Office of National AIDS Policy, the Departments of
Housing and Urban Development, the Interior, and Justice, the
White House Office of Science and Technology Policy, the Office
of National Drug Control Policy, and this Office.
Cliam Qur
Alice M. Rivlin
Director
Enclosures
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STATEMENT BY THE PRESIDENT
Today I am signing into law S. 641, the "Ryan White CARE Act
Amendments of 1996. " This law reflects our Nation's continuing
commitment to care for people living with HIV and AIDS, as well
as our efforts to extend the quality and length of their lives.
The reauthorization of this vital program by overwhelming
bipartisan majorities in the Congress sends a clear message that
this country continues to care about the thousands of our fellow
citizens affected by the AIDS epidemic. Under my Administration,
funding for the Ryan White CARE Act grants has more than doubled
since fiscal year 1993.
S. 641 would authorize appropriations during fiscal years
1996-2000 for grants that fund medical and support services to
people with HIV and AIDS across the Nation. Under S. 641, the
Ryan White CARE programs will continue partnerships between the
Federal Government, the States, many cities, community
organizations and clinics, and a broad array of health care
providers. With its emphasis on locally determined, outpatient
community-based care, we will relieve the fiscal burden caused by
utilizing inappropriate and expensive inpatient care in public
hospitals.
Six short years ago when the Ryan White CARE Act was first
enacted, a cumulative total of over 161,000 cases of AIDS had
been reported to the Centers for Disease Control and Prevention
(CDC) and over 100,000 Americans had died of the disease. As of
March 1996, over 530,000 cases have been reported, and there have
been more than 320,000 American deaths. AIDS is the leading
cause of death for all Americans aged 25 to 44. It is estimated
that between 600,000 and 900,000 Americans are now living with
HIV disease, and CDC estimates that approximately 40,000
Americans become infected every year.
Prior to the Ryan White CARE Act, there were many
communities where the health care infrastructure was
collapsing under the sudden and intense burden posed by the AIDS
epidemic. Many individuals with HIV disease were not receiving
needed health care and support services. States, cities, and
individual service providers were struggling to provide care for
the growing numbers of people with HIV disease who increasingly
came from disenfranchised groups, with little or no income, and
no health insurance or other sources of support to pay for needed
care.
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Today more than 300,000 people receive services under the
various programs supported by the Ryan White CARE Act. These
services range from direct provision of outpatient primary care
to supportive services that permit people living with HIV and
AIDS to continue living productive, independent lives. Since the
original passage of the Ryan White CARE Act six years ago, the
number of cities eligible for special assistance has grown from
16 to 49, which reflects the growth in the number of individuals
needing services.
Despite this harsh reality, the investment in research to
find a treatment and cure for HIV disease is making progress.
The rapid approval of a new class of anti-HIV therapies offers
new hope that this virus can be held in check for extended
periods of time. As soon as we learned of the benefits of these
new therapies, I proposed -- and Congress enacted -- a
$52 million Budget Amendment for fiscal year 1996 so people with
HIV could purchase these and other medications. We have also
learned that by administering the drug AZT, we can reduce the
transmission of HIV infection from mothers to infants by
approximately two-thirds.
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The Ryan White CARE Act provides the mechanisms and the
resources to translate these and other research advances into
practice by providing access to state of the art health care for
thousands of Americans living with HIV and AIDS. The AIDS Drug
Assistance Program, funded under Title II of the Ryan White CARE
Act, will help make life-saving and life-extending treatments
available to people who could not otherwise afford them. The
implementation of the voluntary prenatal counseling and testing
guidelines through Ryan White funded programs should dramatically
reduce perinatal transmission of HIV infection.
There is a long way to go toward finding a cure or a
vaccine. Until then, the Ryan White CARE Act programs will
continue to help all people with HIV disease to access care-
related services.
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