Ask the Scholar

Document scope · 1 page
doc
Scholar
Ask about this object, its catalog metadata, its source description, or the page inventory. For page-specific OCR and visual context, open one of the page chats.

Scholar Source Context

Document identity
localId
353746821
label
"Mainstream: Magazine of the Able-Disabled - September 1990"
core
doc
dtoType
document
pageCount
1
Source metadata
Source extras
naId
353746821
levelOfDescription
fileUnit
recordType
description
ocrSource
nara-archive
Single page context
seq
1
pageIndex
0
type
document
mediaId
198665d1fc780c6e
ocrText
Originally Processed With FOIA(s): FOIA Number: S S FOIA MARKER This is not a textual record. This is used as an administrative marker by the George Bush Presidential Library Staff. Record Group/Collection: Donated Historical Materials Collection/Office of Origin: Frieden, Lex, Collection Series: Printed Materials Subseries: Periodicals OA/ID Number: 52131 Folder ID Number: 52131-005 Folder Title: "Mainstream: Magazine of the Able-Disabled - September 1990" Stack: Row: Section: Shelf: Position: September 1990 $3.00 MAINSTREAM MAGAZINE OF T H E ABLE - DISABLE D Independence Day July 26, 1990 SAFE PASSAGE TO YOUR SHOWER! TUB-MASTER'S new barrier-free shower door offers people with special needs, safe and easy access to their shower. Our attractive, patented door folds completely out of the way for easy access to your shower- ing area. Then close the doors for a water tight shower, keeping the water splash out of the rest of your bathroom. The special design bot- tom track creates a small dam but still allows easy roll-over of your wheel- chair for easy use. This product meets or exceeds national safety standards. Panels are translucent Polystyrene that won't crack or shat- ter but allow light into bathing area. This new barrier free door can be fabricated to fit any opening and space. Call toll-free 1-800-327- Barrier Free Shower Door 1911 for full color catalog and dealer information. HOME OFFICE: 413 VIRGINIA DR., ORLANDO, FL 32803 MM TUB-MASTER CORPORATION FAX: 407/898-3856 407/898-2881 BRANCH PLANT: 1866 LAKE PLACE, ONTARIO, CA 91761 FAX: 714/947-6223 714/947-0777 Circle No. 155 Volume 16, Number 1 MAINSTREAM September, 1990 MAGAZINE OF THE ABLE-DISABLED Features Marty Ball - Making a Difference 7 Americans with Disabilities Act 10 Pulling Out All the Stops to Save the California ILCs 15 Meet Me in St. Louis 23 Getting a Higher Perspective 27 Reflections on Disability and Organized Religion 34 See page 15 The Dressing Dilemma-Fashion - and Disability 39 Departments Editorial Winds of Change 4 Letters 5 Book Review - The Body's Memory 12 Calendar 14 News Briefs 21 Marketplace '90 44 See page 27 Information, Please! 46 Classified Ads 47 On the cover MAINSTREAM The signing of the Americans with Disabilities Act on July 26, 1990. Photo by Worldwide Photos. See page 39 Independence Day July 26, 1990 MAINSTREAM 3 PUBLISHER/EDITOR Cyndi Jones Editorial ADVERTISING ACCOUNT EXECUTIVE Susan L. Shunick ADVERTISING COORDINATOR An Open Letter to Vanessa Marchozzi MARKETING DIRECTOR Justin and Yoshiko Dart Rick R. Prickett CONSUMER LIAISON Moe Fairbanks CLERICAL Linda Moffett Justin and Yoshiko, we know you don't claim the spotlight, EDITORIAL CONTRIBUTORS in fact you shy away from it. You are always focusing it on some- Mary Jane Owen one else who has helped the cause. But we want you to know Yvonne Duffy that we know how much you have done for us. Your sacrifices Tony Young Mark Christiansen of time, health and position to push the civil rights of persons with disabilities forward have not gone unnoticed. In thanks- MAINSTREAM is published giving and love for your gift of self to us. monthly except in January and The Community. June by Exploding Myths, Inc. Editorial, Advertising, and A NEW WIND BLOWING Business Office is located at As we assembled on the White ing to get a comprehensive civil rights 2973 Beech Street, San Diego, CA 92102. House lawn in expectation of the law passed for disabled individuals? I Presidential signing of the Americans told him, "I don't know the Washing- (619) 234-3138 V/TDD With Disabilities Act, a refreshingly ton scene, but is it do-able in such a cool breeze swept across the gathering. conservative administration? Will we MAINSTREAM welcomes I couldn't help but think that a new risk losing the protection we have unsolicited materials for publica- wind was blowing across this nation. under 504? If you think we can do it, tion. All submitted manuscripts Old ways of dealing with disability were I'll help you." and art must be accompanied by being blown away to make room for the Thank God Justin is SO persistant a self-addressed, stamped new. With the stroke of a pen, much and steadfast. envelope. of the past discrimination against peo- There was also a sense of loss in the ple with disabilities was being made air. Some of our friends were lost MAINSTREAM assumes no illegal. along the way -Lowell Weicker, Tony responsibility for unsolicited We listened to George Bush compar- Coelho- real champions of disability materials. ing the signing to taking a sledge ham- issues were remembered. All subscription correspondence mer to the Berlin Wall, and the crowd I only hope that the disability com- should be sent to cheered, and cried. munity has a longer memory than the MAINSTREAM P.O. Box 370598 As I looked around, I felt privileged rest of society. Many of our friends in San Diego, CA 92137-0598. to be present along with 2,000 other Congress are now seeking re-election. Subscription rates are $16.98/ advocates who had worked to get the Let's not leave them dangling. It's up 1 year; $32.00/2 years. ADA passed. Many had argued with to us to get out the vote and keep the each other about the right time, the momentum working. As we work the Reproduction of any portion of right words, the right strategy, what political system, it will keep disability this publication without written pieces are not negotiable? Was 504 issues in the forefront. permission is prohibited. enough? Could we get a civil rights law Sincerely, 1990 Exploding Myths, Inc. passed in such a conservative atmo- All rights reserved. Title sphere in Washington? registered U.S. Patent Office. I remember my response to the ques- Printed in U.S.A. tion posed to me 3 years ago by Justin Cyndi Jones Dart Jr.: What do you think about try- Publisher ISSN NUMBER: 0278-8225 4 September, 1990 Letters EXCEPTIONAL ISSUE HEALTH I would like to commend you on the CARE For generations, you have excellent article covering van modifica- trusted Sears as a source of tion in your October issue. It was an quality products and excellent overview of all of the adap- PRODUCTS dependable service. However, you may not tive equipment that is available on the market. I thought the only thing AS realize that we also offer a wide selection of superior extremely limiting was the van conver- health care products sion vendors that you wrote of. There CONVENIENT with exceptional are many vendors in all states that do savings! AS A range of products so good vehicle conversion work and you extensive that we dedicate a would not want your readers to think special catalog to its that these were the only conversion ven- SEARS presentation. dors available in the country. From disposable wipes to Adaptive Mobility Services, Inc. wheelchairs, hospital beds Orlando, FL to aids to daily living, you'll find it at Sears Healthcare. Our tele- ALL THE NEWS THAT'S FIT catalog consultants are available to offer assis- I read the July issue of your maga- tance that is person- zine from cover to cover and was alized and under- pleased that SO much emphasis was standing, 24 hours a placed on physical fitness for the day, 7 days a week. disabled. I have to confess that I was Order by phone and a "couch potato" until about a year use your Sears Credit Card! ago. After entering a fitness program, I have learned the value of a well rounded exercise program. After working seven years as a voca- FREE tional rehabilitation counselor I have CATALOG finally "seen the light," not only for myself but also to stress the need for fitness with the people I work with. I plan to share your magazine with a number of people who I believe will be encouraged by the articles to consider Featuring quality products from these SEARS and other fine companies. entering an exercise program. Proctor and Gamble Truform HEALTHCARE PRODUCTS Lastly, I would like to ask if you Everest and Jennings Sunrise Medical could provide me with addresses for CALL TOLL FREE weight training organizations for peo- Visit us at the St. Louis Abilities Expo Booth #208 1-800-366-3000 ple with disabilities. A disabled friend of mine is a serious "body builder" who Circle No. 150 was fascinated by the possibility of competing with other disabled weight lifters. If you can help with this request it would be appreciated. Educational Video Tapes Thomas L. Rousseau For people with M.S. and related conditions Rutland, VT by a therapist with M.S. Adjustment to Chronic Illness: By Ira Lipsky, M. Ed., C.R.C. The Bio, Psycho, Social Aspects of Living with Chronic Illness or LMELLA color 60 min. $36.50* Preventing the Evisceration of Hope color 60 min. $36.50* Challenging the Myths of M.S. color 60 min. $36.50* Send your Letters to the Editor to: Sexuality and Disability, Part 1, M.S. and Related Conditions color 45 min. set of Letters, MAINSTREAM Magazine, Sexuality and Disability, Part 2, two: M.S. and Related Conditions color 45 min. $49.50+ 2973 Beech St., San Diego, CA Complete Set $144.00 plus $5.00 S & h 92102. Letters run subject to space *Add $1.50 shipping and handling. +Add $3.00 shipping and handling Send check or money order to: The Kenduskeag Evaluation & Education Services, availability. 304 N. Woodland Blvd. Deland, FL 32720. (904) 738-7881 Circle No. 129 MAINSTREAM 5 BE INDEPENDENT WHILE TRAVELING!! If you enjoy traveling, but prefer to have your own surroundings for your personal comfort, we can help you. We customize motorhomes, travel trailers & fifth wheels to your particular needs. CUSTOM BUILT FULLY WHEELCHAIR ACCESSIBLE!! Some of the handicap options we provide are: Wide aisles Roll in shower Custom mounted toilets WORLD'S Electric wheelchair lock downs zydays 8 way power seat Roll away pilot or co-pilot seat R.V. CENTER Electric door openers LARGEST All types of wheel chair or personal lifts Outside control box Hand controls We can do all of this plus much more! We are not limited to any kind of make or model. These conversions can also be done on either new or pre-owned R.V.'s. The prices including R.V., start at $25,000.00 with full financing available. For more information call 1-800-626-7800 and ask for DEXTER TURNER, head of our Handicap Division. 11028 N. Florida Ave., Tampa, Florida 33612 1-800-626-7800 or (813) 933-7613 Circle No. 131 6 September, 1990 Marty Ball Making a Difference by Marti Gacioch S ometimes getting a person on around for three years in hospitals from Motion Designs, where he stayed until their feet can really mean getting New Jersey to Minnesota," he said. he began to miss the action. them into a chair, says Marty "Nobody knew what to do with me. At "I left mounds of paper and a desk Ball, 52-year-old vice president of sales that time, you were still only considered job behind me because I felt I was los- for Kuschall of America. okay if you were standing upright. So ing sight of making a difference," he "For the past six years I've been they spent all that time and energy try- said. "I wanted to be out in the traveling the world to educate equip- ing to get me on my feet and they trenches, because I believe that we can ment providers how lightweight chair finally succeeded with braces and really make changes through equip- enhance- not detract-fr the per- crutches." ment." Ball said Kuschall wants to ception of disabled people by giving Once he was "rehabilitated" Ball did branch out into other things like porta- them a higher visibility," he said. all the traditional things. He got mar- ble lifts "that can make a real differ- In the late '70s, hospitals and rehab ried. He fathered three kids. He got a ence in an inaccessible environment." facility personnel chose to cling to the successful wig business going, and then "I wish I could have 30-hour days," hefty, stainless steel types that gave he got bored. By the mid '60s, he felt he told me, but judging from his life- wheelchairs a bad name. Unfortu- something was missing, SO newly style Ball still wouldn't have enough nately, those chairs presented an image divorced, he headed for upstate New time to do everything he likes. disabled people are still trying to shat- York, where he found a missing ingre- What leisure time he has is spent at ter. Those antiquated vehicles had all dient in his life involvement with his home in Camarillo, where he lives the style of an obsolete tank and other disabled people through his love with his wife Emily, a paraplegic triath- weighed almost as much. It was of sports. lete. Besides going to dinner and enough to make us want to stay in the "I got started in athletics, basketball theater with her, he finds time for play- closet! We were due for major changes, and road racing years before there were ing guitar, and listening to jazz. He also and Ball definitely had a better idea. many people involved in disabled manages to maintain a close relation- Ball remembered the early days of sports," he said. ship with his three grown children from his personal crusade. Ball started road racing 30 years ago his first marriage when he visits the "I owned a wheelchair dealership on and has played basketball for 20 years. East Coast. the East Coast, and I soon began He was working on a degree in Whenever he has the chance Ball demonstrating lightweights to the OTs recreation at New York State when his also visits schools for disability and PTs at various facilities, and interest in sports led him to build a awareness presentations. explained how these chairs were the better wheelchair. "Kids are great," he said. "They never wave of the future." The International Year of Disabled hold back, and are completely una- Ball is still riding the crest of that People, 1981, proved to be break- bashed with their questions, but I wave, only now his crusade is a global through year for Ball. prefer answering those questions, one. "Three disabled athletes, including rather than hear parents shush their He's on the road (or in the air) 60 myself, and two nondisabled runners, kids in stores when they're curious percent of the year, working hard to ran from Albany to New York City one about my chair. I welcome that curi- break down attitude barriers and create weekend," he said proudly. "That's 175 osity because eventually they'll see my meaningful changes for disabled miles. We did it to promote independ- wheelchair as an everyday thing like a consumers. ence and show that nondisabled and bicycle." Disabled by polio at age 8, Ball has disabled athletes could compete side- Athletics are Bill's primary motiva- faced attitudinal barriers. His face grew by-side." tion. A lean, muscular body attests to serious as he recalled the ignorance he That run attracted major media the fact he works out religiously, log- dealt with as a child. attention from network TV, and it ging 6-10 miles in his chair every morn- "When I got polio I was bounced wasn't long before Ball was hired by ing. When weather is inclement, he MAINSTREAM 7 "Thanks to DragonDictate I am working again; it has changed my life." -Author Yaël Hana Bethiem Just because the job requires a computer, don't count yourself out. Yaël Hana Bethiem doesn't. People everywhere need to use computers in Bill Salyers, Ed.D., Director of Assistive Tech- their work. In many cases people who can't use nology for the National Easter Seals Society, calls computers are barred from higher-paying jobs. DragonDictate "the most exciting technology DragonDictate lets you run a computer with breakthrough in years-a quantum leap." your voice. There's no special programming or DragonDictate runs most of today's stan- long training periods involved. DragonDictate dard business software on 386-based personal gives you the tools you need to compete in to- computers. Its 30,000 word active vocabulary day's high-tech marketplace. doesn't restrict what you say or how you say it. Experienced users report an average rate of With DragonDictate you won't have to count text creation between thirty and forty words per yourself out from higher-paying jobs simply be- minute. It's many times faster than other com- cause you can't type. puter-assistive devices now available. TM DragonDictate DRAGON SYSTEMS, INC. 90 Bridge St., Newton MA 02158 (617) 965-5200 Circle No. 118 uses an indoor treadmill designed for wheelchairs and hydraulic exercise equipment to stay in shape. WHEELERS' And that staying in shape continues to pay off for Ball, who usually places ACCESSIBLE VAN RENTAL, INC. in the top 10 to 12 rank when compet- (800) 456-1371 Reservations ing and recently beat out a man half his age for the number two spot at the (602) 878-3540 Corporate Office May 1990 Bolder Boulder Road Race RENT ME Day, week, or month rentals in Colorado. Delivery and pick-up anywhere Ball has carried his love for sports Fully automatic lifts and ramps and competition to Japan, where he's Tie-down security system been helping to organize the Oita Steering devices Marathon set for November. The ath- letes who will compete there are pri- Hand-controls (as requested) Reasonable rates marily from the Far East, an area of the world that has lagged far behind its Call for a location near you! Western counterparts in the disability Servicing the Southwest ASK ABOUT OUR WHEELERS' FRANCHISES! movement, but Ball believes that Arizona, California, Nevada, Utah, Colorado, New Mexico sports will also prove their key to GRAND OPENING IN FLORIDA-JUNE 1990 independence. "In the U.S., disabled people 'came Circle No. 158 out' by getting involved in sports, and later on, that trickled down to everyone else," he said. "It's the great equalizer. PEDI PILLOWS Through the medium of sport, the con- CUSHION WHEELCHAIR FOOTRESTS cept of independence can be intro- Soft, durable, washable Slippage cord duced everywhere." black polyknit Lightweight Ball plans to continue his sports Secure velcro closure Complimentary to chair activities, and become even more Slips easily on/off Fully guaranteed. standard footplates involved in the area of motivational $23.95 speaking. He'll also be working on a video for clinicians that shows how Send check or money order plus $1.75 shipping and handling to: OVRUS PRODUCTS disabled people function from a wheel- 476 E. Poplar St., Sonora, TX 76950 chair in their daily lives. Custom sizes available. (915) 387-5788 "I realize that I'm in a position to influence people," he said, "and I con- Circle No. 137 sider it a great responsibility. I don't want everyone else to have to break down the barriers I did." FRUSTRATED? Because your paper takes off as you Marti Gacioch is a free-lance writer attempt to write or draw? and wheelchair user. She has been Jimmy Systems, Inc.'s new Clayton board involved with the Independent Living holds the paper where you want it! Movement for over a decade. TELEDYNE RYAN AERONAUTICAL Teledyne Ryan Aeronautical is an equal opportunity employer. For information on current job openings School children gain confidence; teachers find students call (619) 260-5425 or more attentive. send resumes to Staffing Stroke victims have returned to work using the Clayton board. Administrator, 2701 Harbor Non-toxic surface Non-skid feet Dust cover Drive, San Diego, California $19.00+$5.00 SH (IL add $1.40 tax). Send check or money order to: Jimmy Systems, P.O. Box 2715, Country Club Hills, IL 60478 92101. Organizations: please call 1-800-779-0926 for purchase orders. Circle No. 153 Circle No. 128 MAINSTREAM 9 Over 2,000 people gathered on the South Lawn of the White House to witness the signing. ADA Photos by M. Yeager The euphoria of the day was everywhere. b The sense of the unity and diversity of the disabled community was overpowering. The future was present. 10 September, 1990 President George Bush was closely watched by Evan Kemp, Justin Dart, Harold Wilke and Sandy Parrino. Upper left: Justin Dart has a private moment with a fellow patriot. Below: Atsuko Kuwana, Sharon Mistler and Doug Martin watch the ceremonies. MAINSTREAM 11 Book Review It's All Here, Even the Pain The Body's Memory by Jean Stewart, almost too painfully depicted. the garage where she paints her alumi- New York: St. Martin's Press, 1989, 276 This is also a feminist book because num crutches a bright green, then on pp., $16.95. it deals with Kate's struggle to regain to independent living. a positivé body image that is not She thinks she has arrived at a dependent on how she is viewed by healthy acceptance of her disability by Yvonne Duffy others. Likening the violation of her when, at a party, "as a healthy person spirit by the medical profession to a got up from a chair to move around the ean Stewart's first novel is so real J rape, she muses, "How long is the room, she almost blurted, 'Look out! that it reads like an autobiogra- body's memory? If there were no cut, You'll hurt yourself, you forgot your phy. The main character is Kate no bruise, no crater where they took crutches!" but this is only the Meredith, a gutsy English Professor out muscle tissue, if all the evidence beginning. who, courtesy of cancer, is conscripted could be whisked away and the line Kate's realization that she could into the army of 43 million Americans of her hip restored to its old, sweet accomplish much more by using a with disabilities, force she does not curve, would she not still carry that wheelchair than by continuing to join willingly. The denial, the blunder- memory in her bones, carry it forever, endure the pain and instability caused ing remarks of well-meaning friends, the act SO savage that no amount of by her crutches leads her into the realm the reserved parking spaces all taken by anesthesia could have prevented her of agencies. Her benign bemusement non-disabled drivers, the dèmeaning knowledge?" in comparing the use of similar phrases policies of the so-called helping When Kate's first operation "didn't by the Department of Vocational agencies, the steady descent into get it all" and more surgery is needed, Rehabilitation and the IRS-"imple- poverty-they're all there at times, Peter, a drill sergeant indoctrinating her mentation of policy," for example into the forces for disability rights, changes to a kind of black humor as urges her to keep a journal of her expe- she reads a Voc. Rehab. pamphlet, sub- Weight Training Video riences. These entries, letters to friends stituting "Dick" for every instance of with the aba and old lovers, and poetry, along with "the Agency," "Jane" for "the client," American Wheelchair letters and observations of friends and "Spot" for "Disability." She begins Bodybuilding Champion using the third-person perspective, to wonder, "Where are all the other Strength/Toning and form the story. crips?" Cardiovascular Conditioning Peter is a famous, '60s-type folk Her question is answered by soft- For Men, Women, and Children singer, born with short legs that his spoken Sheba, a wheelchair and respir- Medically Approved parents had had amputated in a mis- ator user she meets at a folk music No threat of pressure sores! begotten effort to "normalize" him. festival. Sheba patiently answers Kate's The grizzled balladeer hides his anger many questions, all the while drawing by becoming a stiff-upper-lip-over- her into strategizing, writing letters, coming-all-obstacles type of crip who making phone calls, attending hear- proclaims proudly, "Look at me. I've ings. Finally, after three years, Kate sung to people in twelve countries. notices that her anger has dissipated, Alone. No band, no road manager to replaced "by its stepchild, political lug my stuff around for me. I could clarity. (My vision of us as a minority. have ended up in a sheltered work- My vision of us. My willingness to shop." trade in first person singular for first Positron Productions Kate's rehabilitation is also com- person plural.)" P.O. Box 221106 mandeered by her best friend, Ellen, a Kate's journey is neither easy nor Memphis, TN 38122-1106 six-foot, African-American, profes- glib. She endures enough pain and loss For Info: 1-901-761-3005 sional cellist who is an incest victim. for any life. The Body's Memory is a Regular Price $39.95 Ellen nurtures with a heavy hand sensitively written first novel about one Shipping & Handling $3.00 smothering both Kate and the reader woman's experience as she learns to live Foreign Shipping $8.00 with her over-solicitous, loving care. productively. with her disability. Stewart Check or Money Orders Only! Perhaps Stewart intends us to sense is a talented writer from whom we 2-4 Weeks delivery how Kate is stifled as she fights her way look forward to hearing more in the through the woolly nest, first, out to years ahead. 12 September, 1990 A Better Look A Better Outlook. Begin the journey to maximum fitness with technology that rebuilds paralyzed muscle. You'll work with an elite team of medical professionals under the guidance of Nobel Prize nominee Dr. Jerrold Petrofsky and his research partner Janni Smith. Using Petrofsky and Smith's newest computer-controlled electrical stimulation equipment, available nowhere else in the world, you'll strengthen and tone all the muscles in your body, paralyzed or not. Our program can help you reduce pressure sores, increase cardiopulmonary function and, for some, improve bladder control. You'll feel healthier and look great too! Take the first step to a more fufilling life by calling or writing to us today. Moving Again at the Petrofsky Institute Petrofsky-Allied for Rehabilitation and Research Center for Neuromuscular Rehabilitation (Formerly Casa Corazon) 13765 Alton Parkway 475 Morgan Highway Suite E P.O. Box 1103 Irvine, CA 92718 Scranton, PA 18501 (714) 855-4837 (717) 348-1350 (Covered by most insurance carriers)