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50 5 + Changuon
of America led by
Celebrity Champions
would like a tour
7 W. It., X brufy
meet H R C r PM
Cauld you much t
descuss this with
mary Burdun
April 16, 1996
CMN
Champions
CHILDREN'S
MIRACLE
Ms. Maggie Williams
Chief of Staff, Mrs. Clinton
The White House
1600 Pennsylvania Ave.
Washington, D.C. 20500
Dear Maggie,
Greetings! I need to bring you up to date on our Champions Across America campaign
which has grown beyond our wildest dreams.
I'm sure you remember Daniella Fortuna from Burbank. Mrs. Clinton met her while in
California at our CMN affiliate, Children's Hospital Los Angeles. And, upon the invitation of
Mrs. Clinton, Daniella recently traveled to Washington to tour the White House. Well,
Daniella is headed back to Washington!
She has been selected as the "Champion" to represent the State of California in our
Champions Across America campaign. In Washington, D.C. she will join up with 50 other
Champions representing every state in the nation and the District of Columbia. I have
enclosed a booklet profiling each of these courageous kids.
This group of children will be led by some of our celebrity Champions: San Francisco 49ers
Quarterback Steve Young, Olympic Gold Medalist Mary Lou Retton, two-sport legend Bo
Jackson, and Duke University Head Basketball Coach Mike Krzyzewski, (Coach "K").
I truly appreciate your continued efforts to help us arrange "Champions" tour(s) of the White
House, (current request attached) and to explore the possibility of the kids and celebrities
briefly meeting Mrs. Clinton and the President at the conclusion of the tour(s). It would be a
wonderful opportunity for the children to have a fulfilling experience similar to that of
Daniella. Upon your approval we will arrange media coverage through our PR firm Hill &
Knowlton.
Should your schedule permit I would like to meet with you in the very near future to discuss
the above. I appreciate your help, thoughts, and suggestions. I will place a personal call to
you in the next couple of days.
Sincerely,
Max
Max Burdick
Vice President
CMN
Champions
CHILDREN'S
MIRACLE
CHAMPIONS ACROSS AMERICA
Washington D.C. Itinerary - May 31, 1996
7:00
Breakfast briefing
8:00
Potty break
8:15
Load buses to White House
Maggie, These times are ideal,
9:00
Proposed arrival at White House
however we are flexible.
Process group through security
9:30
Proposed White House tour
Thanks!
Proposed event with President and Mrs. Clinton
10:45
Potty break
Max
11:00
Load buses to Capitol Hill
11:15
Arrive Capitol Hill
Process group through security
Lunch with Senators, Representatives (catered by: Au Bon Pain, Mrs. Fields)
Speeches, etc.
Quick tour of Capitol Hill?
Potty break
12:45
Load buses for Arlington National Cemetery
1:00
Arrive Arlington National Ceremony
Walk to Tomb of Unknown Soldier
1:30
Ceremony at Tomb of Unknown Soldier (15 minute ceremony) - SET
2:00
Potty break
2:15
Load buses to Lincoln Memorial
2:40
Arrive Lincoln Memorial
Event with Abraham Lincoln & George Washington - Distribute copies of Gettysburg
Address & Constitution
3:30
Walk to Vietnam Veterans Memorial
3:45
Arrive Vietnam Veterans Memorial
Event with Marine Corps Drill Team?
4:15
Potty break
4:30
Load buses to airport
DRAFT 4/16/96
Champions Across America
Champions
NETWORK
CHILDREN'S MIRACLE
In honor of America's real champions.
CMN
NETWORK
CHAMPIONS ACROSS AMERICA
We would like to introduce you to some very special people. Their photos and stories
appear on the following pages. Each one of them is a champion in every sense of the word
based on the opponents they have fought against-and won!
One champion has been selected from every state of the Union and the District of Columbia
as a representative of all the children treated at the 160 CMN-participating hospitals
throughout North America. These 51 champions will congregate in Washington, D.C., on
Friday, May 31 where they will share the message that their lives-and the lives of millions
of other children just like them-are better because of Children's Miracle Network and the
hospitals, stations, and sponsors who make up that network. This team of champions will
then fly to Walt Disney World in Orlando, Florida, where they will launch the annual 21-
hour broadcast, also called CMN Champions, which airs June 1-2.
As you read the stories of these incredible young champions, you will see that the care they
received-and in many cases continue to receive-at CMN-participating hospitals is not
limited to a specific disease, injury, or even age. For instance, you will read about Carlena
Williams from Philadelphia who received counseling which helped her lead an independent,
active life despite her total hearing loss. You will read stories about children with cancer,
AIDS, cerebral palsy, arthritis, Downs syndrome, birth defects, and other life-challenging
problems. You will rejoice in the successful deliveries of babies treated while still in the
womb and in the healthy recoveries of seriously ill and injured children through the age of
18 and beyond. You will get to know children who were the victims of terrible accidents
involving automobiles, trains, fires, and even lawn mowers. You will never forget the story
of little Kaylin Hoffman who was accidentally run over by the van which had picked her up
from preschool. Her injuries were many and severe, including tire tracks imprinted on her
tiny chest. Yet, as a result of the professional and caring help she received at a CMN
affiliate, she is an active, vibrant 6 year old who takes gymnastic lessons.
The common denominator in all of these stories is the high level of care and concern
provided by a CMN-participating hospital. In many instances, the child was initially taken to
another facility for treatment; however, in order to receive the degree of help necessary, he
or she was transferred to the closest CMN-participating hospital. There are also many
stories of children who received care at several CMN-participating hospitals attesting to the
network aspect of the CMN name.
We hope you enjoy feeling the tenacity, spirit, courage, and will to live reflected in the
photos and stories of each of these champion children. We can guarantee one thing: you'll
feel a lot better about life once you spend the time getting to know these Champions Across
America.
ALABAMA
Zachary
Woolley
Age 5
Birmingham, Alabama
Children's Hospital of
Alabama*
Cedars Sinai Hospital
n December 1995,
Zachary Woolley
became one of the
youngest children in the
United States to receive an
assist dog. Zachary's new
best friend, Shadow, goes
everywhere with him -
turning on lights, picking
up items he drops and
literally opening doors
for him.
Born 12 weeks
premature, Zachary was
diagnosed with cerebral
palsy and spent the first
11 weeks of his life in the
hospital. When he was 5-months-old, he began receiving physical and occupational
therapy at The Children's Hospital of Alabama (TCHA). In addition to his ongoing
therapy, Zachary has had numerous surgeries including eye muscle surgeries in 1992
and 1995.
Though Zachary is bound to a wheelchair, he doesn't see any limitations
for himself. He loves playing with Shadow, racing in his wheelchair and
playing with his trucks and cars. Zachary's cheerful personality and
outgoing nature inspires those he meets to never give up.
Champions
COMWAY
Denotes CMN-participating hospital
ALASKA
Kathryn
Petros
Age 10
Anchorage, Alaska
Children's Hospital
Los Angeles*
Children's Hospital
at Providence*
K
athryn Petros'
parents became
concerned
when a pink-eye infection
would not heal on their
eight-year-old daughter.
Then, when she began to
suffer from chronic fatigue
and other infections, their
concern grew.
Kathryn's physician
ordered a routine blood
test which showed she
was suffering from Acute
Lymphocytic Leukemia
(ALL). Kathryn was sent
to Children's Hospital Los
Angeles for her initial
therapy but returned to Children's Hospital at Providence where she went underwent
monthly chemotherapy, weekly blood tests, and regular spinal taps.
Now in complete remission, Kathryn is back playing the harp, taking tap dance
lessons, and cooking. She regularly makes cookies and other baked goods for her
doctors and nurses in the pediatric unit. Kathryn and her parents also
actively work to educate other children about leukemia so that they
understand, rather than fear, the disease and children who have it.
Champions
* Denotes CMN-participating hospital
ARKANSAS
William Bradley
Coleman
Age 6
Walnut Ridge,
Arkansas
Arkansas Children's
Hospital*
hen William
W
Coleman
started
kindergarten this year, it
was a big day for the
Coleman family, who
didn't expect their
newborn son to leave the
hospital. William was
only given a 20 percent
chance of survival
Crowley's Ridge Academy
because of complications
surrounding his
premature birth. But
through the use of an
ECMO (Extra Corporeal
Membrane Oxygenation) machine at Arkansas Children's Hospital, William's
under-developed lungs were allowed to grow at a gentler pace without the stress of
having to provide his body with oxygen.
William is now perfectly healthy and happy. He loves riding his bike,
playing ball and going to school.
. Denotes CMN-participating hospital
ARIZONA
Erica, Nicole,
Danielle and
Marc Lindberg
Age 9
Scottsdale, Arizona
Phoenix Children's
Hospital*
n April 25,
1986 Erica,
Nicole,
Danielle and Marc
Lindberg became the
first set of quadruplets in
the world to be born,
having been conceived
using a process called
low tubal transfer. Born
premature, the children
were the first set of
quadruplets placed in
Phoenix Children's
Hospital Intensive Care
Nursery.
The Lindberg children are now strong, healthy, and actively pursuing their interests
in track, soccer and swimming. Marc, who was only one pound and 15 and 1/2 ounces
at birth, loves to play basketball with his Dad, who coaches both basketball and
soccer. The Lindbergs are all grateful for the specialized treatment received
at Phoenix Children's Hospital.
Champions
* Denotes CMN-participating hospital
ALFORNIA
Daniella
Fortuna
Age 10
Burbank, California
Childrens Hospital
Los Angeles*
7hen Daniella
W
Fortuna was
born, a large,
disfiguring hemangioma
covered much of her face.
Though most
hemangiomas generally
disappear over time,
Daniella's continued to
grow, eventually
threatening her vision and
breathing. Specialists at
Childrens Hospital Los
Angeles performed five
different reconstructive
surgeries on Daniella in
order to remove spongy,
connective tissue on
her face.
While others might consider this challenge a defect, Daniella sees it as an opportunity.
She is a happy, bright, extremely active child who loves spending time with her two
rabbits and two cats. She loves to wear hats and has an extensive collection of them. She
hopes to become an actress some day and spends her Saturdays at an acting class.
Daniella recently hosted First Lady Hillary Clinton at a tour of Childrens Hospital
Los Angeles. The First Lady was delighted with Daniella's personality
and charm.
Thanks to the specialized treatment she received at CHLA,
Daniella is a healthy child with a bright future.
Champions
ПЕГМОЛК
Denotes CMN-participating hospital
CHILDREN'S
MIRACLE
COLORADO
Antonio
Kaufman
Age 4
Colorado Springs,
Colorado
National Jewish
Center for
Immunology and
Respiratory Medicine*
Memorial Hospital
Penrose Hospital
S
hortly after Antonio
Kaufman's first
birthday, his activity
level dropped, he refused
to walk, and was reluctant
to move at all. He was
hospitalized six times in
six months to determine
the problem, but nothing
would eliminate his
stiffness, cramping and
increasing pain. After
extensive testing it was
discovered Antonio had systemic juvenile rheumatoid arthritis.
Antonio received immediate treatment at the National Jewish Center for Immunology
and Respiratory Medicine including intramuscular injections of several medications with
extensive physical and occupational therapy sessions.
Antonio is now without limitations. Though he still continues therapy, he no
longer has morning stiffness, joint swelling, rash or fevers. He is a gentle and
affectionate child whose charming smile, sparkling eyes, and contagious
laugh belie the pain and discomfort he has already suffered.
neiwork
. Denotes CMN-participating hospital
CONNECTICUT
Jessica Lynne
Frey
Age 8
Milford, Connecticut
Connecticut Children's
Medical Center*
hen Jessica
W
Lynne Frey's
parents
brought her home
from the hospital
two-and-a-half months
after her birth, they were
very unsure what life
would have in store for
their daughter, who had
just been diagnosed with
cerebral palsy. Born two
months premature and
weighing only two pounds
and three ounces, Jessica
was forced to fight for her life from its early stages.
Though most people thought she wouldn't live long enough to leave the hospital,
Jessica's determined attitude has allowed her to overcome every challenge she has faced
since her birth. She has had rhizotomy surgery at Connecticut Children's Medical Center to
relieve the tightness in her legs enabling her to walk. One year later she also had an
operation to turn her right hip into place and stretch her hamstrings.
Jessica's cheerful smile and comic sense of humor have helped her triumph
over her disabilities. Her disease hasn't stopped her from being a bright and
talkative girl who seems to grab a hold onto everyone's heart, showing
them that no obstacle in life is too big to overcome.
Champions
Denotes CMN-participating hospital
THERE
ROWERS
DELAWARE
Gabrielle
Archangelo
Age 5
Wilmington, Delaware
St. Christopher's
Hospital for Children*
n March 1991, the
Archangelo family
received one of the
most important phone
calls of their life - a call
informing them that a
liver had become available
for their little girl who
was in desperate need of
one. Born one month
premature, initial tests on
Gabrielle showed that her
liver was not functioning
properly. As she grew
Gabrielle experienced
several bouts of liver failure, and doctors at St. Christopher's Hospital for Children
determined the only solution was a liver transplant.
After finding a suitable donor, doctors successfully completed the surgery that
enabled Gabrielle to begin her road to recovery. Today Gabrielle is healthy and
active. She competed in the 1994 National Transplant Games in Atlanta and
looks forward to the 1996 Games where she will compete in the bowling
and swimming events.
Champions
# Denotes CMN-participating hospital
FLORIDA
Matthew Hurt
Age 10
Orlando, Florida
Shands Hospital at the
University of Florida*
Arnold Palmer
Hospital for Children
and Women
n December 2,
O
1994, Matthew
Hurt was sent
home from school with flu-
like symptoms. When his
condition did not improve,
his parents took him to see
a doctor. Tests showed that
Matthew was suffering
from acute bacterial
endocarditis -
and
an inflammation of the
internal lining of the heart
caused by infection. Matthew was immediately flown to Shands Hospital at the University
of Florida in Gainesville where physicians specializing in pediatric cardiology and
cardiothoracic surgery began treating him.
When Matthew went into congestive heart failure two days later, doctors immediately
performed open heart surgery to replace his aortic valve with a donor valve. Because
the heart was so severely damaged Matthew also received a pacemaker.
Despite his medical obstacles, Matthew continues to love life - spelled
b-a-s-k-e-t-b-a-l-l. Though he may never help the Orlando Magic make it
to the NBA finals, he has already fought the battle of his life and
is winning.
Champions
* Denotes CMN-participating hospital
GEORGIA
Jamar
Joseph
Age 5
Atlanta, Georgia
Scottish Rite
Children's Medical
Center*
hen Jamar
W
Joseph's
case of the
"flu" continuously
worsened, his local
pediatrician referred him
to Scottish Rite
Children's Medical
Center where he was
diagnosed with Burkitt's
lymphoma, an aggressive
form of leukemia. By the
time the disease was
diagnosed, it had already damaged Jamar's nervous system leaving him unable to walk.
Thanks to an intensive treatment program and the work of a pediatric rehabilitation
team, Jamar's leukemia is in remission, and he is again able to run and play with his
friends. His contagious smile and endless giggles have won the hearts of all who
come in contact with him.
Denotes CMN-participating hospital
AWAIT
Jenai
Kaeo
Age 5
Kailua, Hawaii
Kapiolani Medical
Center for Women &
Children*
enai Kaeo's mother
knew something
was wrong when
her normally energetic
daughter began acting
very lethargic. Her
concern grew when red
spots began appearing all
over Jenai's body. Jenai
was taken to the
Kapiolani Medical
Center where she was
diagnosed with ALL -
acute lymphocytic
leukemia.
For the next five months, Jenai received chemotherapy and spinal taps frequently.
She also underwent major surgery to remove part of her liver and all of her spleen.
Though five-year-old Jenai is now in full remission and no longer needs treatments,
she keeps in close contact with other cancer kids from support groups in the
community. She has resumed a normal life, doing what she loves most -
going to school and watching movies.
*
Denotes CMN-participating hospital
(IDAHO
Chad
Mc Tavisch
Age 17
Parma, Idaho
St. Luke's Regional
Medical Center*
had McTavisch
C
was diagnosed
with acute non-
lymphoblastic leukemia
(ADLL) in December 1994,
one of the most difficult
forms of leukemia to treat.
The preferred treatment for
ADLL is high-dose
chemotherapy and bone
marrow transplant, but this
treatment was not possible
because a suitable donor
could not be identified.
Therefore, traditional
chemotherapy was used to
get control of the cancer. When medical expenses for Chad's treatment became a concern,
his friends at Parma High School had an idea for a fund raiser. They recruited teachers and
town leaders to agree to have their heads shaved if enough money was raised for Chad, and
when the dollars came pouring in from generous neighbors, off came the hair! No one had
a better time at the hair-shaving party than Chad, who has a great sense of humor and who
loves to tease his doctors and nurses.
Chad is currently in full remission and wasted no time returning to the the
tennis, wrestling, basketball and football teams at Parma High. He looks
forward to attending college next year to pursue a career in medicine.
Champions
NETWORM
COTLOREN'S
MIRASLE
ILLINOIS
Jamie
Gibson
Age 15
Skokie, Illinois
Children's Memorial
Medical Center*
Montefiore Hospital
ince his birth,
S
Jamie Gibson has
been hospitalized
more than 100 times for
acute pain and severe
complications caused
by sickle cell disease -
an inherited blood
disorder named for the
abnormal shape of the
oxygen-carrying red
blood cells.
But last November
Jamie entered Children's
Memorial Medical
Center in Chicago with renewed hope for an end to his suffering. He underwent a bone
marrow transplant to counter the life-threatening disease. Thanks to his sister, Stacey,
who provided the perfect bone marrow match, Jamie's surgery was a success. Test results
revealed he was cured of sickle cell disease.
Since the surgery, Jamie has had perfect attendance in school with straight
A's - a contrast to past years when he would miss an average of 68 days
because of his disease.
Champions
# Denotes CMN-participating hospital
INDIANA
Alison Paige
Whisman
Age 5
Noblesville, Indiana
Riley Hospital for
Children*
hen Alison
W
Paige
Whisman
was four days old, she
received the world's first
twin-to-twin heart
transplant; the donor
being her brother, Tyler,
who died at birth.
Several weeks premature
and weighing only four
pounds, Paige would
have also died had she
not received her brother's
heart.
Since Paige's initial
discharge from Riley
Hospital for Children in May of 1990, she has returned every four to six weeks for
routine check-ups. Every year, she has a heart biopsy in the winter, a heart
catheterization in the spring, and an echocardiogram in between.
Every day Paige continues to enjoy the gift of life given to her by her
brother. She loves playing outdoors, playing with her favorite Barbie
doll, and watching Disney movies.
Champions
* Denotes CMN-participating hospital
IOWA
Andrew
Yohe
Age 16
Bettendorf, lowa
University of lowa
Hospital and Clinics*
Genesis Medical
Center
n his way home
from school
one day in
September of 1994, Andy
Yohe nearly lost his life in
an accident involving a
moving freight train.
He was immediately
airlifted to the University
of lowa Hospital where
he received trauma care
to save his life. However
Andy's injuries were so
extensive that doctors
were unable to save his
legs. Subsequent
surgeries were required to
fit Andy for prostheses.
Thanks to a special orthotist who fitted first one leg above the knee and the second below
the knee, Andy now walks, roller blades and climbs steps with his "new legs."
Andy continues to enjoy sports like he did before his accident. He has mastered a
wheel chair which enables him to play basketball with his friends. When he isn't
working on pursuing athletic achievements, he works part-time at a local
prosthesis company where he has been offered a part of the business
once he completes his education.
Champions
Denotes CMN-participating hospital
KANSAS
Andrea
Friend
Age 16
Clearwater, Kansas
Via Christi Medical
Center*
W
hen 15-year-old
Andrea Friend
went to the
doctor to find out why she
was having pain in her left
shoulder, she had no idea
she would be diagnosed
with cancer.
Andrea started
chemotherapy treatment
immediately. She received
16 treatments of chemotherapy and blood transfusions over an 11-month period.
She is now off treatments and doing well. She has monthly checkups with her doctor
and has had no further recurrence. Writing poetry is therapeutic for Andrea. Here's an
excerpt from one poem she wrote while recuperating.
16 Going On 104
When I heard the words, I wanted to cry.
My heart fell to my stomach, I wanted to die,
For my life would no longer soar.
I was now 16 going on 104.
My mind and my body ached deeply with pain.
I cried out for help, my tears fell like rain.
There were times I thought I could take no more.
I was 16, but felt 104.
Champions
* Denotes CMN-participating hospital
ENTUCKY
Meredith
Pritchett
Age 16
Lexington, Kentucky
University of Kentucky
Children's Hospital*
Central Baptist
Hospital
eredith
M
Pritchett
was a
healthy, active 14-year
old when diagnosed with
end stage renal infection,
a disease that had
irreparably damaged
her liver.
After being told a
kidney transplant was
the only way she could
live a normal life,
Meredith underwent the
surgery at the University of Kentucky's Children's Hospital - with her mother
providing the perfectly matched kidney.
Eight months after the transplant, Meredith is back to living her full and
active life. She enjoys her new driver's license, spending time with friends,
shopping - but most of all - visiting with other children at the hospital
who have kidney disease.
Champions CHIL3BEN'S MIRACLE INFORMATION
* Denotes CMN-participating hospital
FLOUISIANA
Heather
LeMay
Age 5
New Orleans,
Louisiana
Children's Hospital*
hen Heather
W
LeMay
was just two-
and-a-half years old, she
was diagnosed with cystic
fibrosis. This disease
appears early in childhood
and involves a disorder of
the lungs and glands
causing difficulty with
breathing and digestion.
Heather is frequently
hospitalized at Children's
Hospital to treat various
symptoms of her disease.
In September of 1994, a g-
tube was inserted into her stomach allowing her to receive feedings through a pump.
Heather is not able to eat very much by mouth and receives the majority of her nutrition
through the g-tube, which she calls her "button."
Heather has not let her disease slow her down. As an award-winning artist, her
drawings have been selected for use on holiday cards and store promotions in
New Orleans. Heather's favorite movie is The Lion King and, given the
chance, she can recite and sing almost the entire movie to anyone
willing to listen.
Champions CUILCREN'S MEASLE
Denotes CMN-participating hospital
MAINE
Arian
Haghkerdar
Age II
Bangor, Maine
Eastern Maine Medical
Center*
Wisconsin Children's
Hospital
A rian was
diagnosed
with acute
lymphocytic leukemia
(ALL) when just three years
old. She was treated at
Eastern Maine Medical
Center (EMMC) with
chemotherapy and went
into remission for over
three years.
Unfortunately she
relapsed in 1991 and was
once again treated at
EMMC with the more
traditional therapies. Again, she went into remission, but this past July she relapsed for a
second time. She needed a bone marrow transplant, but because Arian is of a mixed race, a
donor was difficult to find. In order to help locate a proper donor, Arian monitored her own
web site on the internet daily trying to locate the best possible match. She received her bone
marrow transplant at Wisconsin Children's Hospital and is slowly recovering.
Regardless of Arian's health, she always loves to help other kids at the
hospital who are suffering from cancer. She is very loyal to her family,
friends, community and care-givers every one who has made her
progress possible.
Champions
* Denotes CMN-participating hospital
MARYLAND
Megan
Leaf
Age 15
Forest Hill, Maryland
Johns Hopkins
Children's Center*
age three Megan
A
Leaf was
diagnosed with
a genetic disorder that
causes tumors to grow
throughout her body. Since
her diagnosis, Megan has
suffered numerous problems
associated with the disease.
As a preschooler,
difficulties with her vision
led to the discovery of
tumors on her optic nerve,
which took the sight from
her right eye. At 13, doctors
at Johns Hopkins Children's Center found and removed a benign tumor near her brain stem.
Because the problems are ongoing, Megan still sees specialists for yearly checkups.
But Megan's own health problems are only half the story. Having experienced lengthy
hospital visits herself, Megan set out to brighten the hospital stays of other patients. In
1992 she formed Love Box Limited. Every month she delivers to the children "Love
Boxes," containing a stuffed animal, a coloring book, crayons and a toy. Though
Megan's intent was certainly not to win recognition, she was given the
"Outstanding Volunteer Award" by the Governor of Maryland.
Champions
* Denotes CMN-participating hospital
VICHIGAN
Samson Davis
Age 8
Muskego, Michigan
DeVos Children's
Hospital at
Butterworth*
Hackely Hospital
Mary Free Bed
amson Davis was
S
critically injured the
evening of December
21, 1995, when he was
struck by a van while
stepping off a curb on his
way to choir practice.
Samson was rushed to a
nearby hospital where it
was discovered he had
received a life-threatening
head injury which caused
him to lapse into a coma, along with sustaining a broken jaw and broken wrist.
Samson was stabilized and then flown to DeVos Children's Hospital at Butterworth by
helicopter where a team of experts quickly concentrated on reducing the swelling of his
brain, which could cause permanent damage or death. He remained critical for several
days. Then, on Christmas Day, a professional basketball team visited Samson's room. He
surprised everyone by opening his eyes and making an effort to respond to their questions.
Samson made slow but steady progress the following week as the focus now turned to his
other injuries - such as wiring his jaw shut - and rehabilitative care.
Samson can now talk and eat normally and shows no signs that he will suffer
long-term effects of the accident. Samson obviously loves basketball, as
well as football, and looks forward to singing in the choir once again.
Champions
. Denotes CMN-participating hospital
MINNESOTA
Nicole
Anderson
Age 13
Maple Grove,
Minnesota
Gillette Children's
Hospital*
MeritCare
Foundation*
n June 1995 Nicole
Anderson was
involved in a serious
motor vehicle accident
where she sustained a
traumatic brain injury.
While she was still in a
coma, doctors at CMN-
affiliate MeritCare
Foundation in Fargo,
North Dakota deemed
necessary Nicole's transfer
to Gillette Children's
Hospital in St. Paul, Minnesota, also a CMN-affiliate.
While there she underwent intensive physical, occupational and speech therapy.
Thanks to the treatment she received, "Nikki" is mobile with the help of a walker.
Though still not 100 percent, each day she makes remarkable progress in her
speech, balance and walking. Her brush with death has left her energized and
full of life. Since her discharge from Gillette, Nikki takes every opportunity
to ride her horses and play with her cat and two dogs.
* Denotes CMN-participating hospital
MISSISSIPPI
Kyle
Jones
Age 8
Quitman, Mississippi
Children's Hospital at
the University of
Mississippi Medical
Center*
n February 26,
1995, Kyle Jones,
his little brother
Blake and their mother,
Angie, were involved in a
car accident. The accident
claimed Angie's life and
Kyle sustained a severe
closed head injury - a skull
fracture of the left parietal
bone accompanied by
hemorraghing. Blake was
left unscathed.
Kyle received immediate
treatment in both the
pediatric and surgical
intensive care units at Children's Hospital at the University of Mississippi Medical Center. His
injury was so severe, doctors gave Kyle's father, Richard, little hope for the boy's survival. As is
often the case, just when it seemed things could get no worse, Kyle began to improve.
After 26 days, Kyle was stable enough to be moved to UMC's Children's Rehabilitation
Center. Kyle remained in rehab until April 28, receiving daily sessions with physical,
speech, occupational and recreational therapists and educators. Kyle's first move in
physical therapy came after his third session when he gave a kick - in honor
of his favorite action heroes, the Power Rangers. Undaunted, Kyle is
determined to win what some thought was an impossible battle.
*
Denotes CMN-participating hospital
MISSOURI
Jon Matthew
Penprase
Age 12
Springfield, Missouri
Cox Health Systems*
att Penprase
M
was admitted
to Cox
Health Systems hospital
with a headache that
lasted five days. An
emergency spinal tap
and CT scan revealed
meningitis - a
dangerous swelling of
the membranes that
cover the brain. Doctors
immediately performed
two craniotomies to
drain the accumulated
fluid and then a third to
remove fluid in the
frontal area of his brain.
Though Matt's chances of survival were considered slim, he fought his way back. As
in most such cases, survival is only half the story. Matt was subsequently moved into
rehabilitation where he received speech therapy and physical therapy to help regain
speech and movement lost to the meningitis.
Though Matt's recovery is incomplete, his goal is to return to his YMCA
basketball team. Based on Matt's winning attitude, full recovery seems
only a matter of time.
Champions
Denotes CMN-participating hospital
TERMS
PRINT
MONTANA
Ethan
Long
Age 7
Kalispell, Montana
Children's Hospital
and Medical Center of
Seattle*
n April 19,
1989, the Long
family was
blessed with the birth
of their fourth son
Ethan. But their joy was
abbreviated by the news
that Ethan had serious
heart problems. Early
the next morning the
family flew to Seattle
and Children's Hospital,
where Ethan was
diagnosed with aortic
stenosis. At just one week old, Ethan had his first surgery.
Two weeks later he received another surgery to open up his valve. Though doctors
were cautious about Ethan's chances of survival, he recovered. Another surgery
followed 18 months later to replace his aortic valve with a small valve the FDA had then
just approved for clinical trials.
Now, thanks to the treatment he received, Ethan is enjoying his first year of
school. He loves playing outdoors, as well as watching movies and playing
his Nintendo games.
Champions
a Denotes CMN-participating hospital
NEBRASKA
Annie
O'Donnell
Age 14
Omaha, Nebraska
Children's Hospital*
nnie O'Donnell
A
was born with
multiple
congenital conditions
involving the heart,
gastrointestinal tract,
trachea, bones in the back,
and kidneys. Within the first
three hours of Annie's life,
she was transported to
Children's Hospital for an
emergency tracheostomy to
create an opening to her
windpipe which allowed her
to breathe.
Since that first surgery,
Annie has triumphed
through 32 subsequent surgeries to correct the abnormalities associated with her congenital
condition. Each stage along the way has been a milestone in itself. Annie's family heard her
first words when she was age five, following the removal of the tracheostomy. Gradually as
her medical condition stabilized, Annie no longer required the assistance of the machines
which helped her to breathe, and she began to live life as a normal, active youngster.
Now a teenager, Annie loves to play basketball and golf, talk on the phone with
friends, and play with her kittens. She is a charter member of the new Children's
Hospital teen volunteer program serving as an inspiration to hospitalized
youngsters who may be facing what Annie has already overcome.
Champions
Denotes CMN-participating hospital
KNEVADA
Michael
Dowling
Age 8
Las Vegas, Nevada
University Medical
Center of Southern
Nevada*
hortly after Michael
S
Dowling's birth, he
was hospitalized a
number of times with
infections that proved
difficult to eradicate. After
initial treatment Michael
left the hospital. But his
story doesn't end there.
Doctors subsequently
discovered that Michael
was HIV positive.
HIV requires ongoing
care and Michael was no
exception. His initial
diagnosis workup was completed at University Medical Center, and through the years he
has been hospitalized to treat various infections. Though Michael now has an active case
of AIDS, he is an otherwise thriving, healthy and active child.
Michael and his adoptive mother, Diane Dowling, take every opportunity to
educate individuals and the community about HIV and AIDS. When not
carrying the crusade further, Michael loves playing baseball, karate
classes, and spending time with his dog, Lacy Hart.
Denotes CMN-participating hospital
NEW JERSEY
Brittany Taylor
Sauerwald
Age 6
North Arlington,
New Jersey
Children's Hospital of
New Jersey*
n July 3, 1992
Brittany
Sauerwald was
standing on a chair,
posing for a picture. She
fell to the floor - her
head striking a plastic
replica of the Statue of
Liberty. A sharp four
inch piece of plastic
lodged itself into the
center of her brain.
Besides the trauma, the
injury caused a major
blood clot.
Brittany received
emergency treatment at another hospital before being transferred to Children's Hospital
of New Jersey for long-term care.
Thanks to the specialized treatment she received, Brittany is now a beautiful,
active, independent kindergartner. She enjoys life and, inspired by her
experience, wants to one day be a brain surgeon.
Champions
METWORK
.
Denotes CMN-participating hospital
colleren's
CIBACLE
I/NEW HAMPSHIRE
Andy
Norcross
Age 2
Tamworth, New
Hampshire
Maine Medical
Center*
hen Andy
W
Norcross
was born,
the medical team at
Maine Medical Center
assisting with the
delivery knew something
was wrong. Tests
confirmed that Andy
had a hole in
his heart.
At just three days
old, Andy underwent
major, open-heart
surgery where doctors repaired this defect which, left untreated, would have caused the
tiny baby not to thrive.
Andy has now fully recovered and is an active two-year old. Even when he
exhibits characteristics which give the terrible twos their name, his parents
appreciate Andy's energy and potential for a healthy life.
Champions
NETIVORK
*
Denotes CMN-participating hospital
CRILBREN'S
MIRACLE
NEW MEXICO
Willie Jacquez
Age 19
Las Cruces, New
Mexico
Memorial Medical
Center
University of New
Mexico Hospital
illie Jacquez
W
was born
with a severe
congenital heart defect.
Three weeks after
Willie was born, it was
determined he was also a
Downs syndrome infant.
At six months of age,
he underwent corrective
surgery for a club foot.
At age one he had lung
surgery, and at age two
he had open heart
surgery. Just this past
year, Willie was
diagnosed with diabetes. He also suffers from frequent seizures.
Yet, despite these seemingly insurmountable odds, Willie is a winner! He
participates in Special Olympics in basketball and bowling and recently won a gold
medal in pool hockey. He enjoys fishing and camping with his family. When
Willie is not outdoors, he is attending school or selling his wood carvings
at a country store where he works.
Champions
Denotes CMN-participating hospital
THE
NEW YORK
Evita
Spencer
Age 5
Saratoga Springs,
New York
Children's Hospital at
Albany Medical
Center*
vita Spencer
E
went to the
doctor for
an agonizing, yet
seemingly innocuous
leg pain in September
1994. The diagnosis
was acute myelocytic
leukemia - cancer.
Three days after the
diagnosis, doctors at the
Children's Hospital at
Albany Medical
Center implanted a
Hickman catheter, a
semi-permanent tube which makes possible continuous infusion chemotherapy.
Though Evita is still scheduled for more chemotherapy, she enjoys playing with
her older brother, playing dress up and dancing.
Champions
* Denotes CMN-participating hospital
amma
"NORTH CAROLINA
Allison Blair
Williams
Age 9
Oxford, North
Carolina
Duke Children's
Hospital
A llison Blair
Williams was
born with an
unusual combination of
birth defects. Missing
both thumbs and the
radius bone in her right
arm, she also was born
with severely clubbed
hands, completely deaf,
and with a malformation
of her right ear.
As a young child,
Allison underwent many
corrective surgeries at
Duke Children's
Hospital. Her right arm
was in a cast the first
year of her life. When she was four surgeons created opposable "thumbs" from her
index fingers. Thanks to those surgeries Allison can now tie her shoes, cut her food and
fasten buttons on her clothes. Doctors also performed a cochlear implant when
Allison was four, allowing her to experience hearing for the first time.
Now Allison sings in the choir and performs in dance and handbell
groups. With her huge smile and cheerful manner, Allison particularly
enjoys being a normal fourth grader.
Champions
*Denotes CMN-participating hospital
NORTH
AKOTA
Nathan
Cwikla
Age 9
West Fargo, North
Dakota
MeritCare Children's
Hospital*
or 21 days
F
Nathan Cwikla
was in intensive
care at MeritCare
Children's Hospital on
high levels of oxygen.
He was fighting against
systemic lupus, a disease
that was attacking his
lungs, kidneys and liver.
While at the hospital,
Nathan received a
kidney biopsy, bone
marrow tests and blood
transfusions.
Though Nathan is on high doses of prednisone and chemotherapy drugs, his lupus
is in check and he is feeling great. His positive attitude and his ability to accept things
as they come have made a difference in how his family has dealt with Nathan's disease.
During the tough times, it was often Nathan buoying up their spirits instead of the
other way around.
Nathan loves to go camping and fishing with his family in the summer
and enjoys playing in the snow in the winter.
Champions
Denotes CMN-participating hospital
ΓOHIO
DeArron
Burrage
Age 14
Dayton, Ohio
The Children's Medical
Center of Ohio*
hough DeArron
Burrage was
diagnosed with
cystic fibrosis when he
was three months old, he
hopes to represent the
United States in boxing
in the 2000 Olympics.
After having lung
surgery just after his first
birthday, DeArron has
continued treatment at
The Children's Medical
I
Center of Ohio to
manage his disease.
Beyond having two breathing treatments per day and taking enzymes with his meals,
DeArron's condition is stable, enabling him to focus on his athletic and academic
accomplishments rather than his limitations.
Presently DeArron holds more than 20 boxing titles including the national Silver
Glove Championship. DeArron is also a model student and a member of the
National Honor Society. He aspires to go to college to study architecture. His
courage and humility are an inspiration to other patients fighting the
same battle against cystic fibrosis.
Champions
Denotes CMN-participating hospital*
TOKLAHOMA
Patrick Ingle
Age 16
Oklahoma City,
Oklahoma
St. Christopher's
Hospital for Children*
Children's Hospital of
Oklahoma*
Wilmington Medical
Center
atrick Ingle was
born with Drash
syndrome, an
unusual combination of
cancer, kidney failure
and other associated
problems.
At age two he had a
tumor removed and, at age
three, he was hospitalized
for five months while he
underwent radiation
therapy. At age six, Patrick
received a kidney
transplant, which failed in
1994. He has been on dialysis since that time and is waiting for a new kidney.
However, neither Patrick's disease nor the treatment have stopped him from being a
typical teenager. An active Boy Scout, Patrick has earned the rank of Eagle Scout, which
he obtained in part by planning, directing, and helping construct 16 lapboards for
Children's Hospital of Oklahoma. He has also earned four Eagle Palms and is a
member of the Order of the Arrow, an organization which studies Indian
lore. A highlight for Patrick was attending the 1993 BSA National
Jamboree in Virginia.
& Denotes CMN-participating hospital
COREGON
Braydee
Mahan
Age I
Eugene, Oregon
Sacred Heart Medical
Center*
uring a routine
D
ultrasound,
Kristin
Mahan's obstetrician at
Sacred Heart Medical
Center discovered a
cyst - already the size
of an orange - growing
in her baby's chest.
Doctors knew that if
they did not remove the
cyst, the lungs would not
develop and the baby
would be stillborn.
In a desperate
attempt to save her baby,
Kristin chose to have fetal surgery. Doctors advanced a needle through the womb into
the center of the fluid-filled cyst. After three treatments the cyst was gone. Braydee
Mahan was born full term, completely healthy.
Braydee is a completely normal, healthy, incredibly cute 1-year-old -
so says Kristin.
Champions
*Denotes CMN-participating hospital
THEMES
PENNSYLVANIA
Carlena
Williams
Age II
Philadelphia,
Pennsylvania
Philadelphia Child
Guidance Center*
magine living in a world
without sound. From the
time Carlena Williams
was 10 months old, she has
been completely deaf -
unable to hear or express
herself through speech and
sound; unable to obtain basic
information about the world;
unable to hear her parents say
"I love you.
When Carlena came to
the Philadelphia Child
Guidance Center (PCGC) in
1991, she was a very
frightened child who followed
her mother everywhere. She was unable to sleep alone and could not perform routine tasks such as
bathing or dressing without her mother's help. Therapy taught Carlena the strength to conquer her
fears. She gradually became more independent and is now a very happy, secure, and active young
lady. Not only does she take responsibility for her self care, but she helps her mother with
household chores such as preparing family meals and the laundry.
Carlena's transformation is evident - especially to herself. At the end of her
treatment, she requested that her name be changed from Missy, her birth name,
to Carlena. She explained that Missy was a frightened, insecure little child;
Carlena was a mature girl who looked forward to a happy and fulfilled life.
Champions
Denotes CMN-participating hospital
SOUTH CAROLINA
Kaylin
Hoffman
Age 5
Rock Hill, South
Carolina
Medical University of
South Carolina
Children's Hospital*
O
n April 12, 1995,
Kaylin Hoffman
accidentally fell
out of the van that had
picked her up from pre-
school - and was slowly
dragged until the van came
to a stop right on top of her.
She was immediately rushed
to the Greenville Memorial
Hospital where doctors
discovered she had suffered
massive trauma to her chest
and abdomen including a
ruptured spleen, collapsed lungs, liver laceration, pelvic fracture, and torn rectum. She was
also bleeding internally.
Kaylin was placed on the heart/lung machine (ECMO) shortly after her arrival and
remained on the machine for eight days before her lungs were well enough for her to go back
on conventional ventilation. After 10 different surgeries and six weeks in the hospital, Kaylin
was able to go home.
Though she still has abdominal injuries that have resulted in a colostomy, she
lives a normal life where she attends school and even takes gymnastics. The
only thing that separates her from other 5-year olds is that when she
hears an ambulance she stops and prays.
Champions
* Denotes CMN-participating hospital
SOUTH
DAKOTA
Kimberly Kay
Bose
Age 9
Sioux Falls, South
Dakota
South Dakota
Children's Hospital*
University of
Minnesota Hospital
Murray Count
Memorial Hospital
n Kimberly Kay Bose's
short life, she had
been hospitalized for
surgical or medical reasons
more than 65 times. She
was born with an
elevated bilirubin level or
jaundice - which is not
uncommon and not usually
life-threatening. However,
when the problem did not
go away, additional tests
were made and Kimberly was diagnosed with a condition know as biliary atresia, which
would require a liver transplant in order for her to survive.
Kimberly received a new liver shortly after her third birthday and since then has been
fighting a constant battle against the possible rejection of her new organ. Recently,
Kimberly was diagnosed with juvenile rheumatoid arthritis, a crippling disease which
causes severe pain and threatens to blind her if not closely monitored.
Despite this new challenge, Kimberly always maintains a positive attitude.
She loves to play with her dogs, read books and sing country music; but,
most important, she spends her time lighting up the lives of others
with her bright smile and infectious laughter.
Denotes CMN-participating hospital
TENNESSEE
Brittany
Morgan Rogers
Age 3
Knoxville, Tennessee
East Tennessee
Children's Hospital*
Holston Valley
Hospital*
n May 23, 1995,
the unthinkable
happened.
Brittany Rogers' leg was
caught under the blade of a
riding lawn mower
severing her toes,
fracturing her ankle, and
mutilating the muscles on
her lower leg and knee.
Paramedics at the scene
thought Brittany's leg
would have to be
amputated so they made
the decision to air lift her
to East Tennessee Children's Hospital. Forty-three days later, after numerous surgeries
and intense battles against rare infections that threatened not only her leg but her life,
Brittany left the hospital with both legs.
Today Brittany is a typical, energetic little girl who enjoys running,
jumping and skipping on her two strong legs. She loves singing, shopping
and participating in her child Bible class; but most of all she enjoys
watching ER and playing doctor.
Champions
METWORK
a Denotes CMN-participating hospital
CUILDREN'S
MIRASLE
TEXAS
Cody
Edmonson
Age 13
Arp, Texas
Mother Frances
Hospital*
Dallas Rehabilitation
n a tragic accident
during a calf-roping
competition near
Lindale, Texas, Cody
Edmonson nearly lost his
life. While making his
first-ever attempt to rope a
calf, Cody's horse spooked
throwing him to the
ground. With his foot
entangled in the rope,
Cody was dragged around
the arena while his head
smashed against fence
posts and his mouth and
nose filled with dirt.
When Cody arrived at the hospital, his family was told he wouldn't make it through
the night - but this was one tough little cowboy. After months of physical and
occupational therapy at Mother Frances Hospital, Cody leads a normal life. Although
his gait and speech are marked by the accident, Cody doesn't let that stop him.
He loves participating in sports and pursues them all in season. Even
better, he's back in the saddle again and made it to the state
calf-roping competition last year.
Champions
* Denotes CMN-participating hospital
EDILMING
UTAH
Thomas
Beckstead
Age 13
Salt Lake City, Utah
Primary Children's
Medical Center*
homas
T
Beckstead had
his life saved
by both his sister and
twin brother. Because he
has aplastic anemia, a
disease that depletes his
red and white blood cell
counts, Thomas has had
three bone marrow
transplants at Primary
Children's Medical
Center. His twin brother
was the donor for two of the transplants; and, when both those failed, his sister became
the donor for his third transplant.
After a successful but painful surgery, Thomas started school again and is doing
well. Thomas' great smile and attitude have helped him face his challenges.
Champions
* Denotes CMN-participating hospital
VERMONT
Stephanie
Needham
Age II
Middlebury, Vermont
Fletcher Allen
HealthCare*
Porter Hospital
O
ne January
morning last year,
Stephanie
Needham was in the living
room warming herself near
the family's wood stove. She
heard a "whooshing" noise
and realized immediately
that her shirt had ignited.
She ran outdoors to throw
herself into the snow.
Stephanie's brother Jamie,
heard her screams and ran
outside. He continued
rolling Stephi in the snow until the flames were completely smothered then carried his sister
back into the house and applied cold washcloths to her back. He rushed her to a nearby hospital
where it was discovered she had suffered third degree burns over 20 percent of her body.
Stephi was hospitalized for a total of four weeks. One week after the accident, she received
skin graft surgeries on her back, arms, buttocks, and thigh, all of which were very successful.
She will continue to wear pressure garments for the next year, but it hasn't slowed
Stephanie down at all. Just 10 weeks after the accident, Stephi performed four
routines at her dance recital. The "stop, drop, and roll" technique she learned in
school and safety precautions taught by her parents regarding their wood
stove are credited with saving Stephanie's life.
* Denotes CMN-participating hospital
VIRGINIA
Joshua Lee
Sundquist
Age II
Harrisonburg, Virginia
University of Virginia
Children's Medical
Center
fter being
A
diagnosed in
1994 at the
University of Virginia
Children's Medical
Center with Ewing's
sarcoma, a disease where
malignant tumors
develop in the bone
marrow, Joshua
Sundquist underwent
extensive chemotherapy
treatment. However
when the treatment was
unsuccessful, it was determined that Joshua would need to have his left leg amputated
in order to save his life.
Though some children would be traumatized by the experience, shortly after Joshua
was discharged from the hospital for his leg amputation, he went to a neighbor's home
and jumped on their trampoline. He constantly works very hard to prove he is just
as normal as anyone who has both legs. Throughout his illness, Joshua has
exhibited courage and strength under the most adverse of situations and
is a polite, courteous young man with many talents.
Champions
*Denotes CMN-participating hospital
Jacob
Hansen
Age 13
Lake Stevens,
Washington
Children's Hospital
and Medical Center*
n July of 1994,
when Jacob Hansen
went to the doctor
because of flu-like
symptoms, he was
diagnosed with
myocarditis - a disease
where a virus enters the
heart causing irreversible
damage. Though
medication temporarily
helped, further tests
revealed he was in
heart failure.
Immediately after the diagnosis, Jacob went to Children's Hospital to receive a
heart transplant. He stayed at the hospital for 53 days so the doctors could make sure
his body would not reject his new heart and to keep a watch on his weakened
immune system.
Despite the medical challenges Jacob has faced, he is a strong, active young
man who loves playing basketball and trading baseball cards with friends. His
incessantly positive attitude, concern for his family, and ability to see the
bright spots in a dark situation have enabled Jacob to triumph over
his disease.
Denotes CMN-participating hospital
WASHINGTON,DC
Patricia"Patty"
Grindheim
Age 13
Washington, D.C.
Children's National
Medical Center*
St. Mary's Hospital
Medical Colleges of
Virginia
hen Patty
W
Grindheim's
ankle became
sore, she assumed it was
from breaking boards in tae
kwon do. Instead a
cancerous tumor was found
growing within her foot.
When chemotherapy
proved unsuccessful,
doctors at Children's
National Medical Center
performed a procedure with
the intent of saving Patty's foot. However the cancer was already so extensive, they had no
choice but to amputate her leg below the knee.
Patty is currently seen in the outpatient clinic every three months. Her progress has
been excellent, and she is very comfortable with her prosthesis - even to the extent of
playing competitive volleyball. She is a friendly, out-going, energetic young woman
with a marvelous sense of humor. Her large, stuffed animal collection includes
the famous "Bear" who accompanied her every time to the hospital and
served as friend, comforter, and pillow when needed.
Champions
* Denotes CMN-participating hospital
CHILDREN'S
MIRACLE
WEST VIRGINIA
Daniel
Fawcett
Age 3
Grafton, West Virginia
West Virginia
University Children's
Hospital*
orn 12 weeks
B
premature,
Daniel Fawcett
suffered intense medical
problems including
respiratory distress
syndrome and a severe
brain hemorrhage.
Daniel went to West
Virginia University
Children's Hospital
where he received
ventilator and nutritional
support, as well as corrective surgery for paralysis of his legs. He now has excellent
verbal and motor ability and strong social skills.
Despite the trauma he has gone through in his short three years, Daniel is a
delightful child with great potential for success in life.
Champions
Denotes CMN-participating hospital
CERTIFICA
WISCONSIN
Nick
Olszewski
Age 16
Little Chute,
Wisconsin
Children's Hospital of
Wisconsin*
ince his birth,
S
Nick Olszewski
has undergone
46 surgeries in efforts to
correct the numerous
HAWKS
birth defects which were
a result of his premature
birth. His most recent
surgeries last fall were to
correct his spinal cord
and to stop his spinal
fluid from leaking.
Despite these medical
challenges, Nick is an avid sports nut who plays high school football, basketball and
baseball. Beyond his love for sports, Nick is an honor student who plans on pursuing a
career in broadcast journalism and theater. He continues to amaze everyone by
overcoming tremendous obstacles to reach his personal goals.
Champions
. Denotes CMN-participating hospital
QUILLIAN
WYOMING
Melissa
Lyon
Age 8
Evanston, Wyoming
Primary Children's
Medical Center*
elissa Lyon
M
has spent
OUR
most of her
life battling cystic
fibrosis, a common
hereditary disease that
appears in early
childhood. But despite
having a weak
respiratory system and
other problems caused
by her disease, Melissa
continues to enjoy life.
When she isn't
receiving inhale
treatments at Primary
Children's Medical Center in Salt Lake City, Utah, Melissa loves riding horses and just
being outdoors. She also enjoys cross country skiing and playing with her two dogs
and five cats.
Though the disease continues to challenge Melissa, she is doing a great job
maintaining a positive attitude in her fight against cystic fibrosis.
Champions
# Denotes CMN-participating hospital