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American Association of Persons with Disabilities
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American Association of Persons with Disabilities
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William "Bill" White's Files
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FOIA Number: 2007-0143-F
FOIA
MARKER
This is not a textual record. This is used as an
administrative marker by the William J. Clinton
Presidential Library Staff.
Collection/Record Group:
Clinton Presidential Records
Subgroup/Office of Origin:
Public Liaison
Series/Staff Member:
William White, Jr.
Subseries:
OA/ID Number:
14202
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Folder Title:
American Association of Persons with Disabilities
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S
31
2
9
1
AAPD
AMERICAN ASSOCIATION OF PEOPLE WITH DISABILITIES
MICHAEL AUBERGER
ADAPT
NANCY BLOCH
March 21, 1997
NATIONAL ASSOCIATION
OF THE DEAF
William H. White, Jr.
Juni CHAMBERLIN
The White House
NATIONAL EMPOWERMENT
CENTER
Office of Public Liason
Room 111 ½ OEOB
TED CHILDS
IBM WORKFORCE DIVERSITY
Washington, DC 20502
JUSTIN DART
Dear Bill:
JUSTICE FOR ALL
WILLIAM DEMBY
Many thanks for seeing us yesterday. I greatly appreciate your interest and
DUPONT CORPORATION
support in what we are trying to do in order to improve the quality of life
FRED FAY
for people with disabilities in America.
DISABILITIES RIGHTS IN
VOTER EMPOWERMENT
You have my promise that we will be most cautious in the use of the
DENISE FIGUEROA
document we share.
NCIL - TROY RCIL
LEX FRIEDEN
Let's keep in touch as we watch the growth of the American Association
TIRR
of People with Disabilities.
RON HATLEY
AT&T
CONSUMER AFTAIRS
Sincerely,
PAUL C. HEARNE
THE DOLE FOUNDATION
NEH. JACOBSON
Paul G. Hearne
WELLS FARGO BANK
President and
DR. I. KING JORDAN
GALLAUDET UNIVERSITY
DEBORAH KAPLAN
WID
JOHN KEMP
VERY SPECIAL ARTS
PAUL MARCHAND
THE ARC
RALPH NEAS
LEADERSHIP CONFERENCE
ON CIVIL RIGHTS
MAX STARKLOFF
PARAQUAD
SYLVIA WALKER
HOWARD UNIVERSITY
JIM WEISMAN
EASTERN PARALYZED
VETERANS ASSOCIATION
4401-A CONNECTICUT AVENUE, SUITE 223, WASHINGTON, DC 20008
PATRISHA WRIGHT
DREDF
TELEPHONE: 202-457-8168 / FAX: 202-457-0473
EXECUTIVE OFFICE OF THE PRESIDENT
04-Aug-1995 02:49pm
TO:
justice
FROM:
owner-justice
SUBJECT: FYI: Paul Hearne - AAPD Intro
Prepared Remarks of Paul Hearne
President
American Association of People
with Disabilities
********
Celebration of the Fifth Anniversary of
the Americans with Disabilities Act
and
Announcement of the Formation of the
Americans Association of People
with Disabilities
July 25, 1995
5:30-8:00 pm
Old Ebbitt Grill Atrium
Washington, DC
Thank you!!
This is high class company I am keeping up here. It's a little
intimidating to be on the program with the President of the
United States and the major contender in the next presidential
election, who also happens to be my boss at the Dole Foundation,
Senator Dole.
But it dawns on me that I have one advantage over both President
Clinton and Senator Dole. I just won my election!
I am pleased to be before you as the first President of the
American Association of People with Disabilities.
This is indeed an historic occasion. We have come a long way in
20 short years. I hold the formation of this organization, an
organization of and for people with disabilities, a major
milestone in the history of people with disabilities in America.
On May 3, 1977 people with disabilities first became
protected against discrimination by regulations
implementing Section 504 of the Rehabilitation Act --
the ADA's predecessor.
On September 13, 1988, discrimination against people
with disabilities was outlawed in housing -- both
public and private -- when the President signed the
Fair Housing Act Amendments.
On April 28, 1988, wise members of Congress introduced
the first Americans with Disabilities Act.
On July 26, 1990, a wise President signed the Americans
with Disabilities Act, solidifying a contract between
the federal government and people with disabilities --
a contract that promises full civil rights and full
citizenship for people with disabilities in America.
Today, July 25, 1995, marks the beginning of an
organization that will support people with disabilities
throughout this country as we bring life to that
contract -- as we make greater and greater strides in
governing our own lives and achieving our own goals.
While the federal government plays and will continue to play a
critical and irreplaceable role in assuring access and
opportunity for people with disabilities, it is us -- people with
disabilities ourselves -- with our own energy, our own efforts,
and our own money, who will determine our rightful place in the
free and open marketplace of the private sector.
The American Association of People with Disabilities is ready to
demonstrate, to a largely unaware nation, the political and
social force of 49 million Americans with Disabilities -- as
consumers of goods and services, as employees and tax payers and
as entrepreneurs and leaders.
We had our first official activity as an organization -- a board
meeting -- just a few hours ago. When AAPD is fully operational,
we sill strive to be the focal point for issues and concerns
affecting all people with every disability in the country. We
will seek to provide services and information so that we can help
ourselves solve our problems. By leveraging ourselves as a
constituency in the economy, we will provide benefits for each
other that are not based on an appropriation or charity, but
rather based on the knowledge that we can earn what it costs,
spend what we have to and reap the benefits of our labors.
The AAPD, as we will soon be known, (you're nothing in
Washington if you're not a household acronym!) Is a private non-
profit, non-partisan, organization designed to improve the impact
of all people with disabilities on American society. The board,
whom I will introduce momentarily, represents people with a range
of physical and mental disabilities, from different ethnic and
religious backgrounds, from different political affiliations,
from different geographic regions of the nation. But they have
one thing in common -- they have lived, worked and been committed
to the rights of people with disabilities and to a good quality
of life for people with disabilities for decades.
First, I would like to introduce my colleagues who joined me as
founding incorporators of the organization. Please come forward
as I call your name.
John Kemp
President of United Cerebral Palsy, inc
Washington, DC
Justin Dart, Jr.
Washington, DC
Sylvia Walker
Professor at Howard University
and
I. King Jordan
President of Gallaudet University
Other board members are:
Michael Auberger of ADAPT
Denver, Colorado
Nancy Bloch of National Association of the Deaf
Silver Spring, Maryland
William Demby
Mitchellsville, Maryland
Fred Fay of Justice for All
Concord, Massachusetts
Denise Figueroa of the National Council
on Independent Living
Troy, New York
Lex Frieden of the TIRR
Houston, Texas
Ron Hatley of AT&T
Basking Ridge, New Jersey
Neil Jacobson of Wells Fargo Bank
San Francisco, California
Deborah Kaplan of the World Institute on Disability
Oakland, California
Paul Marchand of the Arc
Washington, DC
Ralph Neas, formerly of the Leadership Conference on Civil
Rights
Washington, DC
Max Starkloff of Paraquad
St. Louis, Missouri
Jim Weisman of Eastern Paralyzed Veterans Association
Jackson Heights, New York
and
Pat Wright of the Disability Rights Education and Defense
Fund
Berkeley, California and Washington, DC
Please join me in a round of applause for the first board of the
American Association of People with Disabilities.
I urge you all to join AAPD today and take advantage of this
opportunity to be charter members. There is a desk at the back
which will provide you with more information.
Thank you!!!
= Moderated Justice-For-All Mailing list =
07/12/95
09:35
202 376 6859
PCEPD
005
JUL
12
'95
08:48
AT&T
FAX
5300
PAGE 4
Annuncing the Creation of the
American Association of Persons with Disabilities
People with disabilities have made great strides in the past decade, highlighted in 1990
by the passage of the Americans with Disabilities Act (ADA). Nevertheless, the need for
continued leadership remains strong. Forty-nine million people one out of every five Americans
-- have a disability. Nearly half the people with disabilities are of an employable age, yet only
one-third are employed. Meanwhile, the percentage who want to work has increased from 66%
to 78% in 1991.
The economic affect of this on our society is substantial. The cost of direct government
and private payments to support people with disabilities of employable age who do not have jobs
is conservatively estimated to be $232 billion annually. By comparison, the annual budget deficit
of the United States is roughly $200 billion. Providing jobs and accommodating people with
disabilities to the workforce, therefore, has an extremely positive impact on our nation's
economy. Perhaps as much as $195 billion a year is lost in earnings and taxes each year
because those with disabilities are unemployed. If only 10 percent of unemployed people with
disabilities were employed, they would become taxpayers and would contribute to the economy
rather than consume benefits.
And yet, as the fifth anniversary of the ADA arrives, it is clear that government alone
cannot make the goals of the ADA a reality. All people with disabilities need consumer and
economic power and a unity of purpose in order to promote the goal of full inclusion in American
society.
The next logical step is the creation of a national, nonpartisan membership organization
that represents people with all types of disabilities and which will be a positive private-sector
force to achieve the following purposes:
1)
To further the productivity, independence, full citizenship, and total integration of
people with disabilities into all aspects of society and the natural environment;
2)
To foster leadership among people with disabilities;
3)
To support the full implomentation and enforcement of disability nondiscrimination
laws, particularly the Americans with Disabilities Act of 1990 and the
Rehabilitation Act of 1973:
4)
To provide Information to the disability community:
07/12/95
09:36
202 376 6859
PCEPD
5.
006
CUL 12 '95
08:48
AT&T FAX 5300
PAGE 5
5)
To promote service availability in the areas of medical equipment and mobility
aids, personal assistance services, Insurance, and other benefits of membership;
and
6)
To educate the public and government policymakers regarding issues affecting
people with disabilities.
On July 25, 1995, on the AVR of the fifth anniversary of the ADA, this idea will
become a reality as a historic gathering of people with disabilities announce the creation
of the Amorican Association of People with Disabilities (AAPD), and in so doing, will
enhance the recognition of people with disabilities 03 a productive force in our society.
For more information, call (202) 363-8970.
07/12/95
09:37
202 376 6859
PCEPD
007
JUL 12 195
08:47
AT&T FAX 5300
PAGE z
DRAFT
7/6/95
Celebrating the Fifth Anniversary
of the Americans with Disabilities Act
and
Announcing the
American Association of People with Disabilities
July 25, 1995
5:30 - 8:00 pm
Atrium of the Old Ebbitt Grill
Washington. DC
6:30
Welcome
The Honorable Tony Coelho
Chair, President's Committee on Employment of People with Disabilities
6:40
The Honorable Robert Dole
Schate Majority I earler
6:50
Justin Dart
Former Chair, President's Committee on Employment of People with Disabilities
7:00
Paul Hearne
President, The Dolc Foundation
Announcement of the American Association of People with Disabilities
Introduction of Board Members
7:10
Judy Heumann
Assistant Secretary for the Office of Special Education
and Rehabilitation Services
U.S. Department of Education
Invited Speakers
(Senators. Representatives. Administration officials)
7:25
The Honorable Bill Clinton
President of the United States
(Dral)
EXECUTIVE OFFICE OF THE PRESIDENT
24-Dec-1995 10:50pm
TO:
justice
FROM:
owner-justice
SUBJECT:
AAPD Current Progress Report
December 15, 1995
MEMORANDUM
To:
AAPD Board of Directors
From:
Paul G. Hearne
Re:
Update
I thought before the holidays it would be good to bring you up to
date on our progress with AAPD.
1) Membership Committee
A membership committee meeting was held at
The Dole Foundation on Thursday, November 9. The
minutes are hereto attached. Two keys decisions
were made at this meeting:
a) Ted Childs, VP of IBM was nominated
for election to the Board of Directors.
b) A fee structure for organizational
membership was created. (See page 2 of the
minutes.)
2) The bulk of our effort is to raise enough for
a large membership mailing solicitation. Since
the 9th of November we have made progress in the
following areas:
a) ELA Foundation - $15,000 to $19,000
for bulk mailing.
b) Robert Wood Johnson Foundation will
support publication of brochure and
investigating grant to provide model
insurance provision program for people with
disabilities through AAPD.
c) American Express - $5,000 to
$10,000 grant for AAPD before the end of the
year.
d) I am aware that you have received
an audit statement from our treasurer, John
Kemp.
3) Benefits
a) NY Life will be meeting with me in
the beginning of the year in order to add
long term care insurance to our package. I
am hoping this can be done before our major
brochure mailing.
b) We are still awaiting a proposal
from Monumental General Insurance Group to
add term life to our initial package.
No other benefits have been added at this time.
4) Publications
Both John Kemp and I have met with a number
of publishers and are attempting to negotiate a
partnership for an AAPD publication in late
spring. Details of such negotiations and a
request for board approval will follow when
appropriate.
5) Membership
We now have 645 members with no solicitation.
Our membership drive could begin one or two months
into the next year if funds are available.
I wish all of you a safe and happy holiday season and look
forward to working with all of you in the coming year.
AMERICAN ASSOCIATION OF PEOPLE WITH DISABILITIES
Membership Committee Meeting
November 9, 1995
11:00 am - 2:15 pm
Committee Members Attending
Nancy J. Bloch, Chair
John Kemp
Justin Dart
Scott Marshall
Don Dreyer (via phone)
Donna Sorkin
Paul Hearne
Jim Weisman
Nancy Bloch opened the meeting with a review of the agenda.
Paul Hearne reviewed progress in the areas of fund raising and
benefits.
FUND RAISING
To date, approximately $46,000 has been raised, a portion of
which is membership revenue. A financial statement was included
in materials provided committee members.
Paul feels that we need at least $100K to $150K for a membership
solicitation mailing. He reported that there are several
possibilities for additional financial support:
1)
The Robert Wood Johnson Foundation is interested in
feasibility of private insurance;
2)
The ELA Foundation has committed $15K.
3)
Paul has meetings with a potential donor on the west
coast who may donate between $250K to $500K.
John Kemp reported that he met with representatives of the
American Hospital Association whose members have "adopted" AAPD
as a funded program. The amount of financial support is not
known.
Paul recommended that large corporations not be approached until
we get our 501 (c) 3 status, brochures are ready and the membership
drive is underway.
BENEFITS
1)
Ray Reid, from Market Enhancement Group of Richmond, VA
has donated a great deal of time putting together benefit package
possibilities that include travel, shopping, durable medical
equipment, reduced prescriptions, etc;
2)
Specialized auto insurance and towing insurance;
3)
Group life insurance (life, term/life, and annuity
benefits) ;
4)
Long term care insurance including personal care
assistance from New York Life;
5)
Investment/Financial Services from Merrill Lynch.
Discussion followed on the need to be careful who we choose as
vendors to avoid the appearance of endorsement. We will start
with basic benefits to initiate the membership drive with the
understanding that we are not locked in to this initial list.
Paul proposed two names for nomination to the AAPD Board.
Membership Committee voted to recommended Ted Childs of IBM to
fill one of two vacant seats.
Nancy opened a discussion of "Membership Nuts and Bolts"
following lunch. Discussion ensued with the following decision:
MEMBERSHIP CATEGORIES AND DUES:
Individuals
$5/year
Organizations Serving People with
-
Disabilities
$100/year
Not-ForProfit
Organizations $250/year*
*no differentiation between national and local chapters
RATIONALE
Keep dues low to encourage large AAPD membership and to
discourage the perception of competition in membership
recruitment between AAPD and organization members.
Membership fees will not be the basis for income
generation
Everyone should be on equal terms in the individual
member category.
Committee members need to address the voting issue and whether
this will be a consumer-driven association. Also, we need to
attract individual members through larger organizations and that
needs to be addressed in the benefits package.
We will need to prepare mailings to target three different
audiences: individuals, organizations and corporations. An
insert can be prepared for the brochure for this purpose.
CORPORATE DONOR STRUCTURE
Limits need to be set.
-
Items AAPD can offer: advertising and market access.
-
Corporate donors will be interested in AAPD as we gain
political clout. Our ability to fund raise among corporations
depends on how we are perceived to represent this constituency
and how well we do it.
AAPD MEMBERSHIP COMMITTEE SUBCOMMITTEES
Membership Material Development
Don Dreyer and Nancy Bloch
Value-Added Benefits
Scott Marshall, Paul Hearne
Ray Reed and Nancy Bloch
Publicity/Public Relations
Jim Weisman
MISCELLANEOUS
Jim will focus PR to increase membership and will develop a media
kit with ideas for publicizing AAPD and membership recruitment
for organizations.
Paul and Nancy will try to get more folks involved in
subcommittee work and will work to develop corporate benefits.
The AAPD Policy Committee should develop policy on AAPD choice of
vendors or services/equipment to people with disabilities.
All material produced by this committee will be in accessible
format - i.e. on e-mail, disk and printed text.
Next Meeting - Mid-December or early January
Respectfully submitted,
Anita B. Farb
Jeannie Meece
EXECUTIVE OFFICE OF THE PRESIDENT
24-Dec-1995 10:50pm
TO:
justice
FROM:
owner-justice
SUBJECT:
AAPD Background - FYI
JUSTICE FOR ALL
For folks who missed the earlier e-mailing, here's some
background on the American Association of People with
Disabilities, from July 1995. Separately we're e-mailing
both a current progress report and a membership application.
Please share them both widely. And join!
Fred Fay
American Association of People with Disabilities
4401-A Connecticut Ave., NW, Suite 223
Washington, DC 20008
Dear Friends,
An opportunity has arrived in our lives. As people with
disabilities, parents or friends of people with disabilities,
we have a chance to day to increase our involvement in and
impact on decisions about our lives. The American Association
of People with Disabilities (AAPD) is a private, nonprofit,
nonpartisan organization incorporated by five key leaders in
the disability community: Justin Dart, Justice for All; Paul
G. Hearne, President of The Dole Foundation; John D. Kemp,
Executive Director of the United Cerebral Palsy Associations;
I. King Jordan, President of Galludent University; and Sylvia
Walker, Director of Howard University's Diversity Programs.
The overarching purpose of the AAPD is to serve as a vehicle
for focusing the organizing around and the influencing the
outcomes of issues and concerns affecting all people with
every type of disability.
AAPD is a membership-serving organization. A package of
BENEFITS is being put together that will be of true value.
Commerce has begun to recognize the potential purchasing power
of people with disabilities. By AAPD's using the leverage or
weight provided by the nation's largest minority, businesses
will be motivated to offer members good bargains on many goods
and services. In preliminary discussions, the probability of
high value goods and services being offered at very competitive
prices looks very favorable.
The OPERATIONS of AAPD are just beginning. It is our intent
to be careful stewards of our limited resources and to build
an efficient, cost-effective organizational structure.
Communications with the membership will be a high priority
operations element. Print, audio and electronic media will be
used to provide the most comprehensive and adaptive communication
possible.
MEMBERSHIP is the third element of the three core or key elements
(Benefits, Operations, and Membership). Enclosed is a membership
application form.
Membership is open to all people. The dues are $5.00 for a
calendar year. Persons who join in 1995 will be Charter Members,
and their membership will be valid through 1996. You can fax and
photocopy this letter and form to friends and colleagues for their
use.
So, take a moment. Respond to this opportunity and become a
Charter Member of the American Association of People with
Disabilities. Join with us, the Board of Directors, and our
many friends to build this organization. Remember, AAPD exists
for the full citizenship, integration, and quality of life for
people with disabilities in America.
Sincerely,
Paul G. Hearne, The Dole Foundation
Michael Auberger, ADAPT
Nancy Bloch, National Association of the Deaf
Justin Dart, Justice for All
William Demby
Fred Fay, Disability Rights In Voter Empowerment
Denise Figueroa, National Council on Independent Living
Lex Friedan, The Institute for Rehabilitation Research
Ron Hatley, AT&T
Neil Jacobson, Wells Fargo Bank
I. King Jordan, Galludet University
Deborah Kaplan, World Institute on Disability
John Kemp, United Cerebral Palsey Associations
Paul Marchand, The Arc
Ralph Neas
Sylvia Walker, Howard University
Announcing the Creation of the
AMERICAN ASSOCIATION OF PEOPLE WITH DISABILITIES
People with disabilities have made great strides in the past
decade, highlighted in 1990 by the passage of the Americans with
Disabilities Act (ADA). Nevertheless, the need for continued
leadership remains strong. Forty-nine million people - one out of
every five Americans - have a disability. Nearly half the people
with disabilities are of an employable age, yet only one-third are
employed. Meanwhile, the percentage who want to work has increased
>from 66% to 78% in 1994.
The economic effect of this on our society is substantial. The
cost of direct government and private payments to support people
with disabilities of employable age who do not have jobs is con-
servatively estimated to be $232 billion annually. By comparison,
the annual budget deficit of the Untied States is roughly $200
billion. Providing jobs and accommodating people with disabilities
to the workforce, therefore, has an extremely positive impact on
our nation's economy. Over $195 billion in earnings and taxes are
lost each year because people with disabilities are unemployed. If
only 10 percent of that group had jobs, a significant amount of
those lost resources would be added to the economy.
And yet, as the fifth anniversary of the ADA arrives, it is clear
that government alone cannot make the goals of the ADA a reality.
All people with disabilities need consumer and economic power and
a unity of purpose in order to promote the goal of full inclusion
in American society.
The next logical step is the creation of a national, nonpartisan
membership organization that represents people with all types of
disabilities and which will be a positive private-sector force to
achieve the following purposes:
1) To further the productivity, independence, full citizenship, and
total integration of people with disabilities into all aspects of
society and the natural environment;
2) To foster leadership among people with disabilities;
3) To support the full implementation and enforcement of disability
nondiscrimination laws particularly the Americans with Disabilities
Act of 1990 and the Rehabilitation Act of 1973;
4) To provide information to the disability community;
5) To promote service availability in the areas of medical
equipment and mobility aids, personal assistance services,
insurance, and other benefits of membership; and
6) To educate the public and government policymakers regarding
issues affecting people with disabilities.
On July 25, 1995, on the eve of the fifth anniversary of the ADA,
people with disabilities will be recognized as a productive force
in our society at an historic gathering to announce the creation of
the AMERICAN ASSOCIATION OF PEOPLE WITH DISABILITIES, a new
membership association serving our nation's largest minority group.
For more information, call (202) 363-8970.